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Genetic screening: ethical issues - Nuffield Council on Bioethics

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58<br />

under either or both the Sex Discriminati<strong>on</strong> Act 1975 or the Race<br />

Relati<strong>on</strong>s Act 1976. Discriminati<strong>on</strong> <strong>on</strong> grounds other than those<br />

expressly forbidden by these Acts may well also be against the<br />

public interest.<br />

The legal framework<br />

6.11 There would be no specific legal regulati<strong>on</strong> of genetic <str<strong>on</strong>g>screening</str<strong>on</strong>g><br />

by employers in this country, if it were to be introduced. The<br />

positi<strong>on</strong> would therefore be governed by the general principles of<br />

employment law as they currently exist. Any <str<strong>on</strong>g>screening</str<strong>on</strong>g> might<br />

properly be seen in the general c<strong>on</strong>text of the employer’s duty to<br />

provide a safe place of work, although employers would appear<br />

not yet to be required to screen for genetic disease in order to<br />

comply with their legal obligati<strong>on</strong>s in this field. Employers <strong>on</strong> the<br />

other hand would not be prohibited from undertaking such<br />

<str<strong>on</strong>g>screening</str<strong>on</strong>g> programmes and questi<strong>on</strong>s would then arise as to the<br />

refusal to employ people as a result of the <str<strong>on</strong>g>screening</str<strong>on</strong>g>. Questi<strong>on</strong>s<br />

would also arise if people were dismissed or relocated to other<br />

work if <str<strong>on</strong>g>screening</str<strong>on</strong>g> were introduced after the employment<br />

relati<strong>on</strong>ship had started.<br />

6.12 There are very few direct legal restricti<strong>on</strong>s <strong>on</strong> employers’ hiring<br />

policies in British law. Subject to statutory provisi<strong>on</strong>s such as the<br />

Sex Discriminati<strong>on</strong> Act 1975 and the Race Relati<strong>on</strong>s Act 1976, it<br />

would be lawful to require job applicants to agree to genetic<br />

<str<strong>on</strong>g>screening</str<strong>on</strong>g> and to refuse to employ people who refuse. As a<br />

general rule it would also be lawful to refuse to employ some<strong>on</strong>e<br />

because of the employer’s c<strong>on</strong>cern about the results of the<br />

<str<strong>on</strong>g>screening</str<strong>on</strong>g>. An employer is not under a duty to give reas<strong>on</strong>s for<br />

refusing to employ a job applicant, though under the Access to<br />

Medical Reports Act 1988 an employee may have a right of<br />

access to a medical report sought in c<strong>on</strong>necti<strong>on</strong> with the<br />

employment.<br />

6.13 Possible sources of legal protecti<strong>on</strong> for job applicants are the Sex<br />

Discriminati<strong>on</strong> Act 1975 and the Race Relati<strong>on</strong>s Act 1976. In both<br />

cases discriminati<strong>on</strong> is defined to include direct discriminati<strong>on</strong> and<br />

indirect discriminati<strong>on</strong>. It would be unlawful direct discriminati<strong>on</strong><br />

(<strong>on</strong> the grounds of less favourable treatment) for an employer to<br />

require members of <strong>on</strong>e sex <strong>on</strong>ly or <strong>on</strong>e ethnic group <strong>on</strong>ly to be<br />

screened. It might also be unlawful indirect discriminati<strong>on</strong><br />

(c<strong>on</strong>duct which appears n<strong>on</strong>-discriminatory in principle but which<br />

is discriminatory in practice) for an employer to screen for<br />

c<strong>on</strong>diti<strong>on</strong>s which are c<strong>on</strong>fined wholly or mainly to the members of<br />

<strong>on</strong>e sex or <strong>on</strong>e racial group. A good example of this might be<br />

sickle cell disease, the <str<strong>on</strong>g>screening</str<strong>on</strong>g> for which may be unlawful

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