Genetic screening: ethical issues - Nuffield Council on Bioethics
Genetic screening: ethical issues - Nuffield Council on Bioethics
Genetic screening: ethical issues - Nuffield Council on Bioethics
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under either or both the Sex Discriminati<strong>on</strong> Act 1975 or the Race<br />
Relati<strong>on</strong>s Act 1976. Discriminati<strong>on</strong> <strong>on</strong> grounds other than those<br />
expressly forbidden by these Acts may well also be against the<br />
public interest.<br />
The legal framework<br />
6.11 There would be no specific legal regulati<strong>on</strong> of genetic <str<strong>on</strong>g>screening</str<strong>on</strong>g><br />
by employers in this country, if it were to be introduced. The<br />
positi<strong>on</strong> would therefore be governed by the general principles of<br />
employment law as they currently exist. Any <str<strong>on</strong>g>screening</str<strong>on</strong>g> might<br />
properly be seen in the general c<strong>on</strong>text of the employer’s duty to<br />
provide a safe place of work, although employers would appear<br />
not yet to be required to screen for genetic disease in order to<br />
comply with their legal obligati<strong>on</strong>s in this field. Employers <strong>on</strong> the<br />
other hand would not be prohibited from undertaking such<br />
<str<strong>on</strong>g>screening</str<strong>on</strong>g> programmes and questi<strong>on</strong>s would then arise as to the<br />
refusal to employ people as a result of the <str<strong>on</strong>g>screening</str<strong>on</strong>g>. Questi<strong>on</strong>s<br />
would also arise if people were dismissed or relocated to other<br />
work if <str<strong>on</strong>g>screening</str<strong>on</strong>g> were introduced after the employment<br />
relati<strong>on</strong>ship had started.<br />
6.12 There are very few direct legal restricti<strong>on</strong>s <strong>on</strong> employers’ hiring<br />
policies in British law. Subject to statutory provisi<strong>on</strong>s such as the<br />
Sex Discriminati<strong>on</strong> Act 1975 and the Race Relati<strong>on</strong>s Act 1976, it<br />
would be lawful to require job applicants to agree to genetic<br />
<str<strong>on</strong>g>screening</str<strong>on</strong>g> and to refuse to employ people who refuse. As a<br />
general rule it would also be lawful to refuse to employ some<strong>on</strong>e<br />
because of the employer’s c<strong>on</strong>cern about the results of the<br />
<str<strong>on</strong>g>screening</str<strong>on</strong>g>. An employer is not under a duty to give reas<strong>on</strong>s for<br />
refusing to employ a job applicant, though under the Access to<br />
Medical Reports Act 1988 an employee may have a right of<br />
access to a medical report sought in c<strong>on</strong>necti<strong>on</strong> with the<br />
employment.<br />
6.13 Possible sources of legal protecti<strong>on</strong> for job applicants are the Sex<br />
Discriminati<strong>on</strong> Act 1975 and the Race Relati<strong>on</strong>s Act 1976. In both<br />
cases discriminati<strong>on</strong> is defined to include direct discriminati<strong>on</strong> and<br />
indirect discriminati<strong>on</strong>. It would be unlawful direct discriminati<strong>on</strong><br />
(<strong>on</strong> the grounds of less favourable treatment) for an employer to<br />
require members of <strong>on</strong>e sex <strong>on</strong>ly or <strong>on</strong>e ethnic group <strong>on</strong>ly to be<br />
screened. It might also be unlawful indirect discriminati<strong>on</strong><br />
(c<strong>on</strong>duct which appears n<strong>on</strong>-discriminatory in principle but which<br />
is discriminatory in practice) for an employer to screen for<br />
c<strong>on</strong>diti<strong>on</strong>s which are c<strong>on</strong>fined wholly or mainly to the members of<br />
<strong>on</strong>e sex or <strong>on</strong>e racial group. A good example of this might be<br />
sickle cell disease, the <str<strong>on</strong>g>screening</str<strong>on</strong>g> for which may be unlawful