Genetic screening: ethical issues - Nuffield Council on Bioethics

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Published by <strong>Nuffield</strong> <strong>Council</strong> on Bioethics 28 Bedford Square London WC1B 3EG Tel: 0171-631 0566 Fax: 0171-323 4877 ISBN 0 9522701 0 2 December 1993 reprinted May 1995, June 1996, October 1997 Price £7.50 inc p+p within Europe Add £2.00 per copy for postage outside Europe Please send cheque in sterling with order payable to <strong>Nuffield</strong> Foundation © <strong>Nuffield</strong> <strong>Council</strong> on Bioethics 1993 All rights reserved. Apart from fair dealing for the purpose of private study, research, criticism or review, no part of the publication may be reproduced, stored in a retrieval system or transmitted in any form, or by any means, without the prior permission of the copyright owners.
NUFFIELD COUNCIL ON BIOETHICS GENETIC SCREENING ETHICAL ISSUES
Page 1: NUFFIELD COUNCIL ON BIOETHICS GENET
Page 6 and 7: ii The broad framework provided as
Page 8 and 9: Terms of reference iv The terms of
Page 10 and 11: vi Page Chapter 7 : INSURANCE 65 Li
Page 12 and 13: 2 the ways in which groups have bee
Page 14 and 15: 4 Both programmes identify potentia
Page 16 and 17: 6 the size of that risk depends on
Page 18 and 19: 8 In addition to the genetic contri
Page 20 and 21: 10 Chromosomal disorders 2.6 Chromo
Page 22 and 23: 12 2.13 Major scientific advances h
Page 25 and 26: 15 Chapter 3 Genetic</stron
Page 27 and 28: 17 if it develops. It is therefore
Page 29 and 30: any major ethical
Page 31 and 32: 21 Tay-Sachs concluded that “stud
Page 33 and 34: an X-linked disorder or if either p
Page 35 and 36: 25 children born to younger women (
Page 37: 27 CURRENT GENETIC SCREENING PROGRA
Page 40 and 41: 30 relatively small numbers of peop
Page 42 and 43: 32 4.10 A number of pilot s
Page 44 and 45: 34 4.12 Two of the cystic fibrosis
Page 46 and 47: 36 Counselling and consent 4.17 In
Page 48 and 49: 38 4.22 Although the training and s
Page 50 and 51: 40 Conclusions and recommendations
Page 52 and 53:
42 future decisions about having ch
Page 54 and 55:
44 The importance of confidentialit
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46 interest may be outweighed by so
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48 5.22 Do additional measures need
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50 muscular dystrophy may not wish
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52 (i) (ii) (iii) a genetic registe
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55 Chapter 6 Employment Introductio
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6.7 There are also foreseeable circ
Page 69 and 70:
ecause of its discriminatory impact
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61 that at the present time there i
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63 legal regulation does not appear
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65 Chapter 7 Insurance Introduction
Page 77 and 78:
7.7 Life insurance and health insur
Page 79 and 80:
7.17 Commercial competitiveness in
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7.25 According to the ABI’s posit
Page 83 and 84:
7.34 If insurance companies are to
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75 Chapter 8 Genetic</stron
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77 What are the dangers of stigmati
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79 easier to accept and deal with o
Page 91:
8.22 As it becomes feasible to test
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84 9.3 We emphasise that there shou
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87 Chapter 10 Conclusions 10.1 We s
Page 99 and 100:
counsellors) in particular among th
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91 (iii) the condition is one for w
Page 103:
10.20 We recommend that the Departm
Page 106 and 107:
96 References CHAPTER 1 1. Mennie M
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98 CHAPTER 6 1. Haldane J Heredity
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100 Official legislative and profes
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102 France: Comité Consultatif Nat
Page 114 and 115:
104 Scientific terms Only those ter
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106 Recessive The form of inheritan
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108 Congenital hypothyroidism Mode
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110 but to a lesser degree : about
Page 122 and 123:
112 Hypertrophic cardiomyopathy Mod
Page 124 and 125:
114 Tay-Sachs disease Mode of inher
Page 126 and 127:
116
Page 130:
Nuffield C
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Genetic screening: ethical issues - Nuffield Council on Bioethics

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