Genetic screening: ethical issues - Nuffield Council on Bioethics

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<strong>Nuffield</strong> <strong>Council</strong> on Bioethics Publications 117 Animal-to-Human Transplants : the ethics of xenotransplantation March 1996 £10.00 <strong>Genetic</strong> Screening : Ethical Issues Reprinted Oct 1997 £7.50 Human Tissue : Ethical and Legal Issues April 1995 £10.00 To: Mrs Jill Batty, <strong>Nuffield</strong> <strong>Council</strong> on Bioethics 28 Bedford Square, London WC1B 3EG, UK Fax: +44-171-323-4877 Tel: +44-171-631-0566 From: ____________________________________________________________ ____________________________________________________________ ____________________________________________________________ ____________________________________________________________ Please send me _______ copy(ies) of <strong>Genetic</strong> Screening : Ethical Issues at £7.50 each Please send me _______ copy(ies) of Human Tissue : Ethical and Legal Issues at £10.00 each Please send me _______ copy(ies) of Animal-to-Human Transplants : the ethics of xenotransplantation at £10.00 each Prices include cost of postage within Europe Please add £2.00 per copy for postage outside Europe £ _______ £ _______ £ _______ £ _______ TOTAL £ I enclose cheque for £ _________ made payable (in sterling) to the <strong>Nuffield</strong> Foundation OR Please debit my credit card £ Visa/Mastercard/Eurocard no: (not American Express) ____________/ ____________/ ____________/ ____________/ Expiry date: _____________ Name on card Address of cardholder ________________________________________________________ ________________________________________________________ ________________________________________________________ ________________________________________________________ Postcode Authorised signature ________________________________________________________ ________________________________________________________
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NUFFIELD COUNCIL ON BIOETHICS GENET
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NUFFIELD COUNCIL ON BIOETHICS GENET
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ii The broad framework provided as
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Terms of reference iv The terms of
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vi Page Chapter 7 : INSURANCE 65 Li
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2 the ways in which groups have bee
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4 Both programmes identify potentia
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6 the size of that risk depends on
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8 In addition to the genetic contri
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10 Chromosomal disorders 2.6 Chromo
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12 2.13 Major scientific advances h
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15 Chapter 3 Genetic</stron
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17 if it develops. It is therefore
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any major ethical
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21 Tay-Sachs concluded that “stud
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an X-linked disorder or if either p
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25 children born to younger women (
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27 CURRENT GENETIC SCREENING PROGRA
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30 relatively small numbers of peop
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32 4.10 A number of pilot s
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34 4.12 Two of the cystic fibrosis
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36 Counselling and consent 4.17 In
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38 4.22 Although the training and s
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40 Conclusions and recommendations
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42 future decisions about having ch
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44 The importance of confidentialit
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46 interest may be outweighed by so
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48 5.22 Do additional measures need
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50 muscular dystrophy may not wish
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52 (i) (ii) (iii) a genetic registe
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55 Chapter 6 Employment Introductio
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6.7 There are also foreseeable circ
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ecause of its discriminatory impact
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61 that at the present time there i
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63 legal regulation does not appear
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Page 99 and 100: counsellors) in particular among th
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Page 106 and 107: 96 References CHAPTER 1 1. Mennie M
Page 108 and 109: 98 CHAPTER 6 1. Haldane J Heredity
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Page 120 and 121: 110 but to a lesser degree : about
Page 122 and 123: 112 Hypertrophic cardiomyopathy Mod
Page 124 and 125: 114 Tay-Sachs disease Mode of inher
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