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NUFFIELD COUNCIL ON BIOETHICS GENET
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NUFFIELD COUNCIL ON BIOETHICS GENET
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ii The broad framework provided as
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Terms of reference iv The terms of
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vi Page Chapter 7 : INSURANCE 65 Li
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2 the ways in which groups have bee
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4 Both programmes identify potentia
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6 the size of that risk depends on
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8 In addition to the genetic contri
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10 Chromosomal disorders 2.6 Chromo
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12 2.13 Major scientific advances h
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15 Chapter 3 Genetic</stron
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17 if it develops. It is therefore
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any major ethical
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21 Tay-Sachs concluded that “stud
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an X-linked disorder or if either p
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25 children born to younger women (
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27 CURRENT GENETIC SCREENING PROGRA
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30 relatively small numbers of peop
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32 4.10 A number of pilot s
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34 4.12 Two of the cystic fibrosis
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36 Counselling and consent 4.17 In
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38 4.22 Although the training and s
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40 Conclusions and recommendations
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42 future decisions about having ch
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44 The importance of confidentialit
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46 interest may be outweighed by so
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48 5.22 Do additional measures need
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50 muscular dystrophy may not wish
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52 (i) (ii) (iii) a genetic registe
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55 Chapter 6 Employment Introductio
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6.7 There are also foreseeable circ
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ecause of its discriminatory impact
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61 that at the present time there i
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63 legal regulation does not appear
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