Genetic screening: ethical issues - Nuffield Council on Bioethics

97
16. Mennie M et al (1993) Prenatal cystic fibrosis carrier <strong>screening</strong> : factors in a woman’s decision to
decline testing. Prenatal Diagnosis, Vol 13, 807-814.
17. Wald J et al (1992) Antenatal maternal serum <strong>screening</strong> for Down’s syndrome : results of a
demonstration project. BMJ 1993;305:391-4.
18. Statham H, Green J (1993) Serum <strong>screening</strong> for Down’s syndrome: some women’s experiences. BMJ
1993;307:174-6. Fig A has been reproduced by permission of the BMJ and of the authors.
CHAPTER 4
1. Department of Health, NHS Management Executive, undated, Chapter 1, paragraph 2.
2. Ideally interpretation should be through a holder of a recognised qualification in interpretation. See, for
example, <strong>Nuffield</strong> Interpreter Project Access to Justice : non-English speakers in the legal system
(<strong>Nuffield</strong> Foundation 1993).
3. The leaflet formed part of a study funded by The Cystic Fibrosis Trust. The study is reported in Bekker H et
al Uptake of cystic fibrosis testing in primary care : supply push or demand pull? BMJ 1993;306:
1584-1586. Permission has been given for the reproduction of part of this leaflet.
4. The leaflet formed part of a study funded by the Wolfson Foundation and reported in Harris H et al Cystic
fibrosis carrier testing in early pregnancy by general practitioners BMJ 1993;306:1580-1583.
Permission has been given for the reproduction of this material.
5. Personal communication July 1993 from Professor D J H Brock, of the Human <strong>Genetic</strong>s Unit of the University
of Edinburgh.
6. Mennie M et al (1993) Prenatal cystic fibrosis carrier <strong>screening</strong> : factors in a woman’s decision to
decline testing. Prenatal Diagnosis, Vol 13, 807-814.
7. Marteau T (1993) Psychological consequences of <strong>screening</strong> for Down’s syndrome BMJ 1993;307:146-
7, commenting on Statham H, Green J (1993) Serum <strong>screening</strong> for Down’s syndrome : some women’s
experiences BMJ 1993;307:174-6.
8. Statham H, Green J, op cit, p 174.
9. Bekker H et al (1993) Uptake of cystic fibrosis testing in primary care BMJ 1993;306:1584-6.
10. <strong>Nuffield</strong> Interpreter Project Access to Justice : non-English speakers in the legal systam (<strong>Nuffield</strong>
Foundation 1993) contains dramatic examples of what can go wrong in the legal system. The Project has
collected material on similar cases in health care.
11. Gillick v DHSS [1986] AC 112.
12. F v West Berkshire Health Authority [1989] 2 All ER 545.
CHAPTER 5
1. Report of the Committee on Privacy, Cmnd 5012 (1972) p 10.
2. X v Y [1988] 2 All ER 648 at p 653 (Rose J).
3. Attorney General v Guardian Newspapers Ltd (No 2) [1988] 2 WLR 805 (Lord Goff).
4. Grubb A and Pearl D (1990) Blood Testing, AIDS and DNA Profiling Law and Policy. Jordan & Sons,
London. p 43.
5. The Scottish Office (1991) Report of a Working Group on the access to named data by management
and administration. Weir R (Chairman).