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Xenotransplantation - Nuffield Council on Bioethics

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Animal-to-Human Transplants : the ethics of xenotransplantati<strong>on</strong><br />

5 The submissi<strong>on</strong>s varied c<strong>on</strong>siderably. The Working Party is especially grateful for<br />

the several specially prepared submissi<strong>on</strong>s that were received, running to more than<br />

ten, and, in <strong>on</strong>e case, almost forty pages. These represented many hours - sometimes,<br />

quite clearly, weeks - of work, and the Working Party is thankful for the public<br />

spirit that prompted such extensive effort. Several submissi<strong>on</strong>s took the form of a<br />

short letter making two or three points relevant to an area discussed in the report,<br />

or drawing attenti<strong>on</strong> to relevant research, legislati<strong>on</strong> and policy development. Short<br />

as these letters were, they were often the result of c<strong>on</strong>siderable deliberati<strong>on</strong> and<br />

c<strong>on</strong>sultati<strong>on</strong>, and the Working Party was much helped by the way in which they<br />

gave an overview and a sense of what was at stake. The Working Party also received<br />

copies of academic work in progress: chapters from books, excerpts from<br />

dissertati<strong>on</strong>s, collecti<strong>on</strong>s of published papers, and copies of articles. This resp<strong>on</strong>se<br />

from specialists in different fields was an immeasurable help to the Working Party.<br />

6 Despite the quality and usefulness of the material that emerged from the c<strong>on</strong>sultati<strong>on</strong>,<br />

it cannot be taken as a representative indicati<strong>on</strong> of public opini<strong>on</strong> as a whole. The<br />

Working Party notes, for example, that the opini<strong>on</strong>s have come more from<br />

researchers than from practiti<strong>on</strong>ers, and that health workers other than doctors have<br />

not resp<strong>on</strong>ded at all. Interestingly, too, no practising transplant surge<strong>on</strong>s took the<br />

opportunity to express views. A patient perspective emerged very rarely: no patient<br />

group resp<strong>on</strong>ded to the c<strong>on</strong>sultati<strong>on</strong>. Bey<strong>on</strong>d this, there are the caveats that often<br />

apply to an exercise such as this. The comments are drawn in the main from a more<br />

affluent, more educated and more privileged secti<strong>on</strong> of the populati<strong>on</strong>. Except in so<br />

far as the views of some religious leaders represent them, opini<strong>on</strong>s of people from<br />

ethnic minority groups remain unexplored. Women’s voices are in a small minority<br />

am<strong>on</strong>g the resp<strong>on</strong>ses. The sixth-form group gave an important insight into views of<br />

young people, but again the bias is towards those from the more privileged secti<strong>on</strong>s<br />

of the community.<br />

7 The Working Party paid careful attenti<strong>on</strong> to the results of the c<strong>on</strong>sultati<strong>on</strong> and the<br />

submissi<strong>on</strong>s were discussed at Working Party meetings. It served as a guide to the<br />

range of views that is to be found am<strong>on</strong>g interested parties and members of the<br />

public. Thus, the public c<strong>on</strong>sultati<strong>on</strong> formed an important comp<strong>on</strong>ent of the<br />

Working Party’s c<strong>on</strong>siderati<strong>on</strong> of the issues and the Working Party is grateful to all<br />

those who took the trouble to resp<strong>on</strong>d.<br />

124

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