a handbook for parents of children with autism spectrum disorders

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Communication Assistance The Communication Mentors’ Network of PA-North Central PA office www.communicationmentors.org Lending library, Communication and Assistive Technology clinics, educational events. 119 Memorial Acres, Sunbury, PA 17801, 570-286-7694 Communication Resources Do 2 Learn, http://www.dotolearn.com/ A web site providing activities to promote independence in children and adults with special learning needs. Free teacher and parent materials. Picture Exchange Communication System (PECS), http://www.pecs.com/ Lori Frost and Andy Bondy pioneered the development of The Picture Exchange Communication System (PECS) beginning in 1985 within the state of Delaware. It is a unique augmentative/alternative training package that allows children and adults with Autism and other communication deficits to initiate and develop functional communication. Boardmaker-Mayer-Johnson, http://www.mayer-johnson.com Enhances learning and human expression for individuals with special needs through symbol-based products, training, and services. To facilitate the creation of symbol-based communication and educational tools, Mayer-Johnson offers a family of powerful, yet easy-to-use Boardmaker software products designed for specific needs. Assistive Communication Links, http://prekese.dadeschools.net/PRIMETime/PTlinks.htm Adapted Books, http://schools.nycenet.edu/D75/academics/literacy/adaptedbooks/catalog.htm Complete catalog of books with pictures files in order to adapt and make them more interactive. Uses boardmaker and Adobe PDF. Department of Public Welfare Bureau of Fee-for-Services, Jean Whitehead, 1-866-588-9819
Dentists Dr. Jay Holthus 210 JPM Road, Suite 302, Lewisburg, PA 17837, 717-531-7117 Hershey, PA, 570-522-7070 Developmental Pediatricians Thomas Chalman, MD Neurodevelopmental Pediatrics, Geisinger Medical Center, Danville, PA 17822, 570-271- 6440 Scott Meyers, MD Neurodevelopmental Pediatrics, Geisinger Medical Center, Danville, PA 17822, 570-214- 9361 Nancy Eisenhauer, MS, PA-C, Physician’s Assistant Neurodevelopmental Pediatrics, Geisinger Medical Center, Danville, PA 17822, 570-271- 5600 Early Intervention Resources First Signs, http://www.firstsigns.org Educates parents, healthcare providers, early childhood educators, and other professionals in order to ensure the best developmental outcome for every child. Goals are to improve screening and referral practices and to lower the age at which young children are identified with Autism and other developmental disorders. The First Signs website provides vital resources that cover a range of issues including healthy development, concerns about a child, screening and referral processes, and treatments for Autism Spectrum Disorders. Checklist for growing children, http://www.dpw.state.pa.us/Child/EarlyIntervention/003670018.htm Appropriate milestones for children ages 1 month - 3 years. Planning for the IFSP, http://www.dpw.state.pa.us/Child/EarlyIntervention/003670020.htm A family’s introduction to Early Intervention program planning.
Page 1 and 2:
A HANDBOOK FOR PARENTS OF CHILDREN
Page 3 and 4:
INTRODUCTION Developmental delays c
Page 5 and 6:
What should I do first? Where do I
Page 7 and 8:
How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11 and 12: As the parent of a child with Autis
Page 13 and 14: Which types of professionals delive
Page 15 and 16: As a parent, what is my role in the
Page 17 and 18: How might I approach my son or daug
Page 19 and 20: What happens if BHRS is recommended
Page 21 and 22: Who determines if my child will rec
Page 23 and 24: What happens after I file a First L
Page 25 and 26: What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29 and 30: How do I ask for a Fair Hearing? Yo
Page 31 and 32: What happens if my child’s doctor
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Laurel Creek 336 Chestnut Street Mi
Page 52 and 53: Laurel Behavioral Health 520 Ruah S
Page 54 and 55: BLaST IU 17 (Serving Bradford, Lyco
Page 56 and 57: Autism Connection, www.autism-conne
Page 58 and 59: National Autism Association, www.na
Page 62 and 63: Early Intervention contact numbers,
Page 64 and 65: Incidental Teaching, http://www.spi
Page 66 and 67: Autism toolkit for physicians, http
Page 68 and 69: Heather Van Artsdalen Hoover, PHD G
Page 70 and 71: Safety Safety in the home, http://w
Page 72 and 73: State Departments/Agencies/Programs
Page 74 and 75: State Mental Health Agency Charles
Page 76 and 77: Sunbury Support Group Julia Robinso
Page 78 and 79: Religion and Autism http://www.auti
Page 80: Transitioning Transitions for you a
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