a handbook for parents of children with autism spectrum disorders

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Autism Connection, www.autism-connection.org Nonprofit, providing information and resources about Autism and other developmental disabilities. Dr. Carbone (Verbal Behavior), www.drcarbone.net Verbal behavioral therapy. Center for Excellence in Autism Research (CeFAR), http://www.wpic.pitt.edu/research/CeFAR/default.htm This Pittsburgh based Center of Excellence under the direction of Nancy J Minshew, MD, an internationally recognized expert in Autism, is the among the top three CPEA’s in the country. Dr. Minshew is working with a team of scientists from Carnegie Mellon University as well as the University of Illinois at Chicago, to search for the genetic, cognitive, and neurological basis for Autism. Centers for Disease Control, http://www.cdc.gov/ncbddd/autism/ Autism information. Christina Burk, www.christinaburkaba.com Applied Verbal Behavior. Cure Autism Now, www.canfoundation.org An Autism Speaks website. Dana’s View from the Inside, www.danasview.net Message board links and stories of recovery. Dan Marino’s Childnettv www.childnet.tv Dan Marino’s Foundation www.danmarinofoundation.org Defeat Autism Now, www.autism.com/ari ARI, a non-profit organization, publishes the Autism Research Review International, a quarterly newsletter covering biomedical and educational advances in Autism research.
Developmental Delay Resources, www.devdelay.org A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs. Do 2 Learn, www.do2learn.com Offers ASD information and picture schedules. Exploring Autism, www.exploringautism.org Helps families who are living with the challenges of Autism stay informed about breakthroughs involving the genetics of Autism. Explains genetic principles as they relate to Autism and provides the latest research news. Families for Early Autism Treatment, www.feat.org A non-profit organization of parents, family members, and treatment professionals dedicated to providing best outcome education, advocacy and support for the Autism community. First Signs, www.firstsigns.org A national non-profit organization dedicated to educating parents and pediatric professionals about the early warning signs of Autism and other developmental disorders. Generation Rescue, www.generationrescue.org Formed by parents of children who have been diagnosed with childhood neurological disorders (NDs). Provides scientific and medical literature in support of the position that environmental illnesses can be treated through biomedical intervention. Governor’s Commission for Children and Families, www.pachildren.state.pa.us Health and Human Services, advocacy resources, and guides for parents and families. Monarch Educational Materials www.monarchmaterials.com Dedicated to helping individuals diagnosed with Autism, PDD, Asperger’s Syndrome, ADHD, Reactive Attachment Disorder, and developmental delays, by creating tools that promote identification, generalization, social skills, conversational skills, and recall ability.
Page 1 and 2:
A HANDBOOK FOR PARENTS OF CHILDREN
Page 3 and 4:
INTRODUCTION Developmental delays c
Page 5 and 6: What should I do first? Where do I
Page 7 and 8: How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11 and 12: As the parent of a child with Autis
Page 13 and 14: Which types of professionals delive
Page 15 and 16: As a parent, what is my role in the
Page 17 and 18: How might I approach my son or daug
Page 19 and 20: What happens if BHRS is recommended
Page 21 and 22: Who determines if my child will rec
Page 23 and 24: What happens after I file a First L
Page 25 and 26: What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29 and 30: How do I ask for a Fair Hearing? Yo
Page 31 and 32: What happens if my child’s doctor
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Laurel Creek 336 Chestnut Street Mi
Page 52 and 53: Laurel Behavioral Health 520 Ruah S
Page 54 and 55: BLaST IU 17 (Serving Bradford, Lyco
Page 58 and 59: National Autism Association, www.na
Page 60 and 61: Communication Assistance The Commun
Page 62 and 63: Early Intervention contact numbers,
Page 64 and 65: Incidental Teaching, http://www.spi
Page 66 and 67: Autism toolkit for physicians, http
Page 68 and 69: Heather Van Artsdalen Hoover, PHD G
Page 70 and 71: Safety Safety in the home, http://w
Page 72 and 73: State Departments/Agencies/Programs
Page 74 and 75: State Mental Health Agency Charles
Page 76 and 77: Sunbury Support Group Julia Robinso
Page 78 and 79: Religion and Autism http://www.auti
Page 80: Transitioning Transitions for you a
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