a handbook for parents of children with autism spectrum disorders

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HANDBOOK TABLE OF CONTENTS PAGE(S) How To Start/Evaluation Information 2-4 Medical Assistance 4-10 BHRS/Wraparound Services 10-18 Interagency Services Planning Team (ISPT) 18 Authorization of Services 19 Denial of Services 20-29 Appendix A: DSM-IV TR Diagnostic Criteria for Autism Spectrum Disorder 30 Appendix B: DSM-IV TR Diagnostic Criteria for Asperger’s Disorder 31 Appendix C: DSM-IV TR Diagnostic Criteria for Pervasive Developmental Disorder- Not Otherwise Specified 32 Appendix D: Glossary of Terms 33-35 Appendix E: Levels of Care/Treatment Available 36-37 Appendix F: Complaint Process 38-41 Appendix G. Bureau of Autism Services 42 Appendix H: Community Care Contact Information 43
INTRODUCTION Developmental delays can take on many different forms. Autism and the various Autism Spectrum Disorders are forms of developmental delay. Autism is a neurobiological disorder. Children who have Autism show impairment in social skills, communication skills, and play, as well as evidence of restricted, repetitive, and stereotypical behaviors. These impairments can range from mild to severe, which is why they are often referred to as Autism Spectrum Disorders. Determining whether a child may have special needs can be difficult and overwhelming. This handbook was developed to help parents and caregivers navigate the Pennsylvania mental health system and answer many of the questions that often arise when children receive initial evaluations or begin to receive services. It was written from a parent’s perspective and was designed to provide basic information for parents about the behavioral health services available to their children and how to access these services. While there is a great deal of information included in this handbook, parents or caregivers should use the guide in any way that they choose. We hope that this handbook will make it easier for parents and caregivers to understand both the nature of available services and the processes involved in accessing these services. Autism Spectrum Disorders (ASDs) are a group of developmental disabilities that can cause significant social, communication, and behavioral challenges. People with ASDs handle information in their brain differently than other people. “Autism itself is not the enemy... the barriers to development that are included with Autism are the enemy. The retardation that springs from a lack of development is the enemy. The sensory problems that are often themselves the barriers are the enemy. These things are not part of who the child is... they are barriers to who the child is meant to be, according to the developmental blueprint. Work with the child’s strengths to overcome the weaknesses, and work within the Autism, not against it, to overcome the developmental barriers.” —A person with Autism
Page 1: A HANDBOOK FOR PARENTS OF CHILDREN
Page 5 and 6: What should I do first? Where do I
Page 7 and 8: How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11 and 12: As the parent of a child with Autis
Page 13 and 14: Which types of professionals delive
Page 15 and 16: As a parent, what is my role in the
Page 17 and 18: How might I approach my son or daug
Page 19 and 20: What happens if BHRS is recommended
Page 21 and 22: Who determines if my child will rec
Page 23 and 24: What happens after I file a First L
Page 25 and 26: What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29 and 30: How do I ask for a Fair Hearing? Yo
Page 31 and 32: What happens if my child’s doctor
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Laurel Creek 336 Chestnut Street Mi
Page 52 and 53:
Laurel Behavioral Health 520 Ruah S
Page 54 and 55:
BLaST IU 17 (Serving Bradford, Lyco
Page 56 and 57:
Autism Connection, www.autism-conne
Page 58 and 59:
National Autism Association, www.na
Page 60 and 61:
Communication Assistance The Commun
Page 62 and 63:
Early Intervention contact numbers,
Page 64 and 65:
Incidental Teaching, http://www.spi
Page 66 and 67:
Autism toolkit for physicians, http
Page 68 and 69:
Heather Van Artsdalen Hoover, PHD G
Page 70 and 71:
Safety Safety in the home, http://w
Page 72 and 73:
State Departments/Agencies/Programs
Page 74 and 75:
State Mental Health Agency Charles
Page 76 and 77:
Sunbury Support Group Julia Robinso
Page 78 and 79:
Religion and Autism http://www.auti
Page 80:
Transitioning Transitions for you a
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a handbook for parents of children with autism spectrum disorders

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