Network News - Winter 2009/2010 (PDF 3.7Mb - Canadian Breast ...

Network News - Winter 2009/2010 (PDF 3.7Mb - Canadian Breast ... Network News - Winter 2009/2010 (PDF 3.7Mb - Canadian Breast ...

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Profile of a Director I became a Director on the National Board of CBCN, representing Labrador, in 2006. Looking back, am I glad I did! It has been one of the best experiences of my life. I did not know much about CBCN or its mandate. Having joined it, I had a lot to learn and learn fast I did. What helped me the most were the very caring friendly Board members. The Executive Director, the President, the past President and every other Member representing a province or a territory had so much to offer. At the very first AGM I felt like I was part of a group of dedicated friends. Our regular monthly teleconferences have been a place for me to learn about what was going on in the breast cancer world and how I could be of help. CBCN’s October online yearly auction has taken me to various organizations in my area to request them to donate items for the auction. These organizations, through my approach, learned what CBCN has been doing for the breast cancer world in every province and territory. When they understood CBCN’s mission, they gladly supported the on-line auction. On my part, I got a lot of pleasure spreading the word. I had the opportunity to go to San Diego, California and graduate from the Project LEAD Program in 2007. This program taught me about leadership, education, advocacy and development. There were fifty students in the session I attended. Forty-seven came from all parts of the US, one from the UK, one from Australia and I was the only Canadian. Everyone in that group worked very hard for almost 12 hours a day for a complete week that we spent together. We were taught by excellent scientists who imparted the science of breast cancer to us. We were also fortunate to be able to go to the lab and see firsthand how breast cancer cells were dissected and tested. After my return home to Canada, I had the privilege of working as a Scientific Peer Review Community Representative on two of our national research organizations, where I have been able to learn more and to share my views on behalf of the breast cancer community. As you can imagine, this involves a lot of reading, studying and research in order to be able to participate on a panel with Research Scientists. Last June I was a peer reviewer with the Breast Cancer Research Project of the US Department of Defence Reston, Virginia. That in itself was a very positive learning experience where I was able to play an important role in decision making. Even though it was a very demanding task, I learned how to prepare comments on the impact of the research on issues such as disease, prevention, screening, diagnosis, treatment and quality of life after treatment. I was also a volunteer with the World Conference on Breast Cancer that was held in Winnipeg, MB in June 2008. I have committed to work with the Executive of the World Conference on Breast Cancer 2011, which is being held in Hamilton, ON. Being a Director on the CBCN Board has taught me a lot, and I strongly advise breast cancer survivors to get involved in one way or another. It is a real enrichment therapy. If not for CBCN, I would not have done or learned all that I have, and I can proudly say has given me a lot of pleasure to be a part of. • Nina Burford is passionate in learning all she can about breast cancer. Soon after her retirement as a school teacher came her diagnosis in 1997. It was a total shock and a blow as she had never smoked in her life and eaten healthily. Born in Goa, Nina Burford Member of CBCN’s Board of Directors representing Labrador she migrated to Manitoba 39 years ago. Her major is English but she also speaks Portuguese and some French. She is well travelled on every continent. Her second marriage in 1981 brought her to Labrador City, NL where she now lives. She can be contacted at nina.burford@ nf.sympatico.ca Board of Directors Cathy Ammendolea, President, Quebec Alwyn Anderson, Alberta Nina Burford, Labrador, Member-at-Large Linda Dias, Greater Toronto Area (GTA) Diana Ermel, Past President, Saskatchewan Dianne Hartling, Treasurer, Ottawa-Gatineau Suzanne LeBlanc, New Brunswick Lorna Marshall, British Columbia Meeka Mearns, Nunavut Dianne Moore, Ontario Janis Murray, Secretary, British Columbia Pam Patten, Northwest Territories Mercedes Sellars, Newfoundland Pam Smith, Prince Edward Island Diane Spencer, Vice-President, Nova Scotia Sharon Young, Manitoba 10 Network News Winter 2009-10

NEW SURVEY FINDS RECURRENCE IS THE #1 CONCERN FOR WOMEN WITH BREAST CANCER Practical tips on how survivors can help reduce their risk A recent survey of breast cancer survivors conducted on behalf of The Canadian Breast Cancer Network (CBCN) found that four out of five say that having their cancer return is their number one concern. 1 While most survivors surveyed believe that exercise and diet can help reduce the risk, less than half (45 per cent) noted adherence to therapy as something they do to reduce their risk of breast cancer returning. 1 In reality, it can have a great impact on reducing the risk of breast cancer recurrence. 2 One of the first things they should do is speak with their physician about their chance of recurrence and factors that can reduce it. “Unfortunately, what women don’t realize is that there are a number of options within their control that can help,” says Linda Dias, CBCN Board member and breast cancer survivor. “While it is no guarantee, the more risk factors you can limit, the better. Also, accessing resources in your community can help you to stay informed and allow you to be an empowered participant in your overall care.” Some effective ways to help reduce the risk of breast cancer include: o Limiting alcohol to no more than one drink per day 3 o Avoiding smoking 3 o Exercising, maintaining a low fat diet and healthy weight 4 In addition to lifestyle changes, commencing treatment with the most appropriate therapy from the outset and taking medications as directed can help reduce the chance of breast cancer recurrence. 5,2 “Preventing recurrence is extremely important among breast cancer survivors, as it can help women live cancer-free, for longer. Women need to understand their risk and take the necessary steps to help prevent it,” says Dr. Dominique Synnott, General Surgeon and Surgery in Oncology 1 Leger Marketing Survey: Breast Cancer Recurrence Study, June 2009. Sponsored by CBCN. 2 Partridge, A.H., et al. «Adherence to Initial Adjuvant Anastrozole Therapy Among Women with Early-Stage Breast Cancer.» Journal of Clinical Oncology. 2008. 26(4): p. 1-7. 3 The Canadian Cancer Society. Canadian Cancer Encyclopedia: Risk factors for breast cancer. Accessed July 2009 at http://info.cancer.ca/E/CCE/CCEDetails.asp?redirect=1&id =185&site=Breast%20Cancer&lang=E&name=/CIS/E/CCE/HTML/10_185.html 4 Chlebowski RT, Blackburn GL, Thomson CA, Nixon DW, Shapiro A, Hoy MK, et al. Dietary fat reduction and breast cancer outcome: interim efficacy results from the Women’s Intervention Nutrition Study (WINS). J Natl Cancer Inst 2006; Vol. 98, No. 24, pp 1767-1776. 5 The ATAC Trialist Group - Effect of anastrozole and tamoxifen as adjuvant treatment for early-stage breast cancer: 100 month analysis of the ATAC trial. Lancet Oncol 2008; 9 : pp 45-53. and Head of Breast Clinic in Sacred- Heart Hospital. “Studies show that treatment options are available that can significantly reduce the risk of the cancer returning, even after therapy is completed. Continuing to take medication as directed is essential because skipping treatments or stopping early reduces its effectiveness in preventing recurrence.” To learn more about the recurrence of breast cancer and how to reduce the risk, speak to your doctor or visit www.cbcn.ca. • Recently diagnosed with breast cancer? Remember these four key questions to ask your doctor: o What is my risk of breast cancer recurrence? o How can I reduce the risk of recurrence? o What kind of side effects can I expect from medications in the short and long term? o Are there any lifestyle changes that will help? Network News Winter 2009-10 11

Profile of a Director<br />

I<br />

became a Director on the National<br />

Board of CBCN, representing<br />

Labrador, in 2006. Looking back, am<br />

I glad I did! It has been one of the best<br />

experiences of my life. I did not know<br />

much about CBCN or its mandate.<br />

Having joined it, I had a lot to learn<br />

and learn fast I did. What helped me<br />

the most were the very caring friendly<br />

Board members. The Executive Director,<br />

the President, the past President and<br />

every other Member representing a<br />

province or a territory had so much to<br />

offer. At the very first AGM I felt like I<br />

was part of a group of dedicated friends.<br />

Our regular monthly teleconferences<br />

have been a place for me to learn<br />

about what was going on in the breast<br />

cancer world and how I could be of<br />

help. CBCN’s October online yearly<br />

auction has taken me to various<br />

organizations in my area to request<br />

them to donate items for the auction.<br />

These organizations, through my<br />

approach, learned what CBCN has<br />

been doing for the breast cancer world<br />

in every province and territory. When<br />

they understood CBCN’s mission, they<br />

gladly supported the on-line auction.<br />

On my part, I got a lot of pleasure<br />

spreading the word.<br />

I had the opportunity to go to San<br />

Diego, California and graduate<br />

from the Project LEAD Program in<br />

2007. This program taught me about<br />

leadership, education, advocacy and<br />

development. There were fifty students<br />

in the session I attended. Forty-seven<br />

came from all parts of the US, one from<br />

the UK, one from Australia and I was<br />

the only <strong>Canadian</strong>. Everyone in that<br />

group worked very hard for almost 12<br />

hours a day for a complete week that<br />

we spent together. We were taught by<br />

excellent scientists who imparted the<br />

science of breast cancer to us. We were<br />

also fortunate to be able to go to the<br />

lab and see firsthand how breast cancer<br />

cells were dissected and tested.<br />

After my return home to Canada,<br />

I had the privilege of working as a<br />

Scientific Peer Review Community<br />

Representative on two of our national<br />

research organizations, where I<br />

have been able to learn more and<br />

to share my views on behalf of the<br />

breast cancer community. As you can<br />

imagine, this involves a lot of reading,<br />

studying and research in order to be<br />

able to participate on a panel with<br />

Research Scientists.<br />

Last June I was a peer reviewer with<br />

the <strong>Breast</strong> Cancer Research Project of<br />

the US Department of Defence Reston,<br />

Virginia. That in itself was a very<br />

positive learning experience where I<br />

was able to play an important role in<br />

decision making. Even though it was<br />

a very demanding task, I learned how<br />

to prepare comments on the impact of<br />

the research on issues such as disease,<br />

prevention, screening, diagnosis,<br />

treatment and quality of life after<br />

treatment.<br />

I was also a volunteer with the World<br />

Conference on <strong>Breast</strong> Cancer that was<br />

held in Winnipeg, MB in June 2008.<br />

I have committed to work with the<br />

Executive of the World Conference<br />

on <strong>Breast</strong> Cancer 2011, which is being<br />

held in Hamilton, ON.<br />

Being a Director on the CBCN Board<br />

has taught me a lot, and I strongly<br />

advise breast cancer survivors to get<br />

involved in one way or another. It<br />

is a real enrichment therapy. If not<br />

for CBCN, I would not have done<br />

or learned all that I have, and I can<br />

proudly say has given me a lot of<br />

pleasure to be a part of. •<br />

Nina Burford is passionate in learning all<br />

she can about breast cancer. Soon after<br />

her retirement as a school teacher came<br />

her diagnosis in 1997. It was a total shock<br />

and a blow as she had never smoked in<br />

her life and eaten healthily. Born in Goa,<br />

Nina Burford<br />

Member of CBCN’s Board of Directors<br />

representing Labrador<br />

she migrated to Manitoba 39 years ago.<br />

Her major is English but she also speaks<br />

Portuguese and some French. She is<br />

well travelled on every continent. Her<br />

second marriage in 1981 brought her to<br />

Labrador City, NL where she now lives.<br />

She can be contacted at nina.burford@<br />

nf.sympatico.ca<br />

Board of Directors<br />

Cathy Ammendolea, President, Quebec<br />

Alwyn Anderson, Alberta<br />

Nina Burford, Labrador,<br />

Member-at-Large<br />

Linda Dias, Greater Toronto Area (GTA)<br />

Diana Ermel, Past President,<br />

Saskatchewan<br />

Dianne Hartling, Treasurer,<br />

Ottawa-Gatineau<br />

Suzanne LeBlanc, New Brunswick<br />

Lorna Marshall, British Columbia<br />

Meeka Mearns, Nunavut<br />

Dianne Moore, Ontario<br />

Janis Murray, Secretary,<br />

British Columbia<br />

Pam Patten, Northwest Territories<br />

Mercedes Sellars, Newfoundland<br />

Pam Smith, Prince Edward Island<br />

Diane Spencer, Vice-President,<br />

Nova Scotia<br />

Sharon Young, Manitoba<br />

10 <strong>Network</strong> <strong>News</strong> <strong>Winter</strong> <strong>2009</strong>-10

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