Fall 2007 - International Waldenstrom's Macroglobulinemia ...
Fall 2007 - International Waldenstrom's Macroglobulinemia ...
Fall 2007 - International Waldenstrom's Macroglobulinemia ...
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President's Corner, cont from page 2<br />
In the past the IWMF has always participated in the bi-annual<br />
<strong>International</strong> Multiple Myeloma Workshop by having a booth<br />
at the conference to answer questions and distribute our<br />
literature. This has proven to be a successful way to interest<br />
new researchers in applying for grants, and it is also a good<br />
way to add doctors and researchers to our mailing list and to<br />
provide them with information on our disease. Often doctors<br />
are willing to have IWMF publications sent to their offices<br />
and clinics for patient use. At previous multiple myeloma<br />
workshops we met doctors and scientists from Greece, China,<br />
India, and France who were interested and willing to work<br />
with us to develop new support groups in these countries.<br />
The booth provided a great opportunity to meet many medical<br />
professionals who often told us how impressed they were with<br />
our booklets and leaflets, many of which have been translated<br />
into other languages. (Currently publications are available in<br />
Spanish, French and German, and we are looking into further<br />
translations into Greek and Chinese)<br />
* * *<br />
A separate conference is being planned with our National<br />
Cancer Institute contact, Dr. Richard Little. This would be a<br />
one- or two-day think tank meeting of researchers to sort out<br />
the future direction for WM research and to specify where the<br />
IWMF Research Funds could have the most impact. Planning<br />
for this conference is yet in the developmental stage, and more<br />
will be announced when we have the details confirmed.<br />
* * *<br />
For all those with peripheral neuropathy, there will be a<br />
free telephone education workshop for people living with<br />
cancer, their families, friends, and health care professionals.<br />
CancerCare is the sponsor of this workshop, which will be held<br />
on Tuesday, October 30, from 1:30 – 2:30 p.m. Eastern Time.<br />
You must register in advance and can do so by calling 1-800-<br />
813-HOPE [4673], or register online at www.cancercare.org.<br />
* * *<br />
The National Cancer Institute reports two newsworthy<br />
items from the Centers for Medicare and Medicaid Services<br />
concerning premiums for Medicare Part D and a tip sheet for<br />
Medicare drug coverage.<br />
Due in large part to strong competitive bidding by health<br />
and prescription drug plans and beneficiaries’ choices, the<br />
Centers for Medicare & Medicaid Services (CMS) anticipates<br />
that the actual average premium paid by beneficiaries for<br />
standard Part D coverage in 2008 will be roughly $25. This<br />
is nearly 40 percent lower than originally projected when the<br />
benefit was established in 2003 and also lower than projected<br />
earlier this year.<br />
A new partner tip sheet, Information Partners can Use:<br />
Medicare Drug Coverage under Medicare Part A, Part B<br />
and Part D, has been developed to provide an overview on<br />
the drugs covered within each of the Medicare program<br />
components. This tip sheet helps clarify drug coverage for<br />
providers and partners assisting beneficiaries with chronic<br />
diseases and drug coverage enrollment.<br />
For more information on the above items, go to<br />
www.cms.hhs.gov.<br />
* * *<br />
The IWMF has a new Vice President for Administration.<br />
IWMF Trustee Roy Parker will be taking on the job, relieving<br />
Jim Bunton, our current V.P. for Administration and also<br />
IWMF Treasurer, of this responsibility to focus solely on his<br />
duties as Treasurer. The Vice President for Administration<br />
has an internal role as overseer of the functions and staff at<br />
our headquarters in Sarasota, Florida. We are fortunate to<br />
have Roy in this position, and certainly his background in<br />
business will be helpful. Roy will also continue as Chair of<br />
the <strong>International</strong> Committee.<br />
In closing, I would like to remind you of our ever-constant need<br />
for your support through IWMF membership dues assuring<br />
continued member services and through contributions to<br />
the IWMF Research Fund to underwrite research studies on<br />
our disease.<br />
Stay Well,<br />
Judith<br />
WHAT IS FLOW CYTOMETRY?<br />
by Sue Herms<br />
One of the most frequent uses of flow cytometry in medical<br />
diagnosis is to distinguish among the various types of<br />
leukemias and lymphomas. Flow cytometry may be<br />
particularly helpful in cases where analysis of cancer cells<br />
under the microscope is not adequate to determine the<br />
specific type of tumor present.<br />
The modern flow cytometer consists of a light source,<br />
collection optics, electronics, and a computer to translate<br />
signals to data. In most modern flow cytometers, the light<br />
source of choice is a laser that emits light at a specified<br />
wavelength. Scattered and emitted light is collected by two<br />
detector lenses (one set in front of the light source and one<br />
set at right angles).<br />
In the diagnosis of leukemias and lymphomas, usually a<br />
portion of the bone marrow or other tissue, such as a lymph<br />
node, is broken up into single cells and placed in a liquid—<br />
the cells in the liquid then flow through a chamber, one at a<br />
time very quickly, up to several thousand cells per second.<br />
At this point, the laser beam hits the cells as they pass. The<br />
way the laser beam light bounces (scatters) off each cell is<br />
What is, cont on page 20<br />
PAGE 3