Fall 2007 - International Waldenstrom's Macroglobulinemia ...

PAGE 16
Support Group News, cont from page 15
The group is fortunate to have a good joke teller (not the
dog) and good snack providers, Jim and Betty Orteleva.
The next meeting will be the second Sunday of November
(instead of October): 2 pm Sunday, November 11.
SOUTH CAROLINA
The South Carolina WM support group will join with
the Georgia support group on Saturday, October 20, for a
joint meeting in Atlanta, where we are fortunate to have
Dr. Stephen Treon of Dana-Farber joining us to provide an
update on the latest advancements in WM treatment. Please
contact the SC support group coordinators, John and Paula
Austin, if you would like to attend.
TEXAS
Dallas & Northern Texas
The North Texas support group is enjoying a new relationship
with several other organizations. In May we co-sponsored a
meeting with the Leukemia & Lymphoma Society hosting
Marvin Stone, MD, Chief of Oncology at Baylor University
Medical Center in Dallas and Steven P. Treon, MD, Program
Director, the Bing Center for Waldenstrom’s Research, Dana-
Farber Cancer Institute. In September the group participated
in the Lone Star Blood Cancer Conference sponsored by the
LLS at the University of Texas Southwestern Medical Center
in Dallas. During the break-out session time, the group had
its September meeting. On Saturday, November 17 at 10:30
am the group will host Dr. Ghobrial, Instructor of Medicine,
Dana-Farber Cancer Institute. She will speak on “Novel
Therapeutic Options for Waldenstrom’s Macroglobulinemia”
at the Baylor University Medical Center. The meeting will
be co-sponsored by the LLS of North Texas and the Baylor
Charles A. Sammons Cancer Center at Dallas, Baylor
University Medical Center.
Houston
Drawing on local expertise, the Houston support group had
a wonderful program with M.D. Anderson’s Dr. Sheeba
Thomas on a Sunday in August. Dr. Thomas gave a very
informative overview on the molecular basis of WM. The
group proclaims her a most welcome addition to the cadre
of caring WM expert doctors. On Sunday, November 11,
at 3 pm Houston will have their meeting with guest speaker
Dr. Ghobrial. This program will again be coordinated with
the LLS. The location will be at the home of group leaders,
Barbara and John Manousso. RSVP by November 9.
VIRGINIA
Central Virginia
Bob Zehner hosted a cookout in August for the Central
Virginia support group at his home in Chesterfield. Attendees
arrived from Virginia Beach, Middlesex, Portsmouth, and
the Richmond area. Three members of the group are, or
have been in, clinical trials, and the rest were eager to hear
about personal experiences in the trials. Member Arno
Muller shared some of the things he learned at the IWMF
Atlanta forum.
THE LIFELINE
If you can’t get to a local support meeting, use our IWMF
Telephone Lifeline to call a WM veteran.
The lifeline is seeking volunteers who speak a language
other than English. If you would like to volunteer, please
contact the IWMF business office at 941-927-4963 or
info@iwmf.com.
2-CdA
Norm Spector 858-454-6313
2-CdA WITH RITUXAN
Bernard Swichkow 305-670-1984
CAREGIVING
Lynn Bickle 805-492-4927
Brad Alexander 972-529-2002
CHLORAMBUCIL
Dave Lively 608-783-4552
Ronald Romeis 610-724-3481
Jerry Berman 416-925-6715
CLINICAL TRIALS
Tom Hoffmann 501-868-8305
Guy Sherwood 765-282-4377
CRYOGLOBULINEMIA
Fay Langer 973-464-6696
FLUDARABINE
Peg Horton 253-874-8820
Dave Lively 608-783-4552
FLUDARABINE with Rituxan
Marty Kopin 310-390-1546
Jerry Block 301-460-9799
LATEST RESEARCH
Bert Visheau 905-528-1789
NEWLY DIAGNOSED
Guy Sherwood 765-282-4377
Norm Spector 858-454-6313
Sallie Moore 516-795-3746
ORAL CYTOXAN
Lou Birenbaum 314-961-5591
PLASMAPHERESIS
Fred Bickle 805-492-4927
Arlou Brahm 203-264-7995
RITUXAN
Charles Vassallo 201-947-6977
James Townsend 352-376-3664
Allen Weinert 603-863-5347
760-568-2918