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SURVIVORSHIP IN CANCER - International Waldenstrom's ...

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Mission Statement:<br />

To offer mutual support and encouragement to the <strong>Waldenstrom's</strong><br />

macroglobulinemia community and others with an interest in the disease.<br />

To provide information and educational programs that address patients' concerns.<br />

To promote and support research leading to better treatments and, ultimately, a cure.<br />

Survivorship in Cancer, cont. from page 24<br />

In patients suffering from chemo brain, newer studies using<br />

objective memory tests commonly reveal a decreased ability<br />

to learn new things, a marked increase in time required to<br />

recall prior information (executive function), as well as<br />

attention and concentration difficulties.<br />

Treatment and coping with chemo brain<br />

There are no known effective ways to prevent chemo brain<br />

at this time. For many cancer patients, chemotherapy<br />

treatments will result in cognitive difficulties. Researchers<br />

are actively evaluating treatment options that may protect<br />

the brain during and after chemotherapy. The newer targeted<br />

therapies that selectively focus on the cancer cells and spare<br />

normal brain and nerve cells may hold promise. Some<br />

researchers have speculated that genetic susceptibility for<br />

chemo brain may exist. Certain genes linked to Alzheimer’s<br />

disease may predispose the cancer patient to increased risk<br />

of chemo brain. Medications now used for the treatment of<br />

depression, attention-deficit hyperactivity disorder (ADHD),<br />

Alzheimer’s disease, and dementia may one day be used as<br />

potential treatments for chronic long-term chemo brain.<br />

In the interim, what can be done if a patient is experiencing<br />

chemo brain? Researchers who have studied memory suggest<br />

techniques such as avoiding distraction, using a daily planner,<br />

keeping a journal, posting reminders, setting up and following<br />

routines and keeping the same daily schedule, exercising<br />

your memory by doing crosswords or playing a musical<br />

instrument for example, managing stress with meditation and<br />

other techniques, getting enough rest and sleep, exercising on<br />

a regular basis, eating healthy, and finally trying not to obsess<br />

on how chemo brain symptoms are interfering with normal<br />

daily activity.<br />

Chemo brain is but one of the many survivorship issues<br />

facing cancer patients. Accepting the problem and being able<br />

to laugh about things one cannot control may sometimes be<br />

the most successful coping mechanism of all.

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