Conference Program (PDF) - ISOQOL

Poster Session 3 - Saturday
301/1708/What is the Health-related quality of life of caregivers of patients with Juvenile Idiopathic Arthritis
like?
Tania Maria S. Mendonça, Pediatrics, Universidade Federal de Uberlândia, Uberlândia, Minas Gerais, Brazil, Len A. Cláudio,
Hilario E. Maria Odete, Pediatrics, Universidade Federal de São Paulo, São Paulo, São Paulo, Brazil, Silva M. Carlos Henrique,
Paro S. Martins Helena, Pediatrics, Pinto M. Costa Pinto, Mathematics, Universidade Federal de Uberlândia, Uberlândia, Minas
Gerais, Brazil
302/1773/The impact of disease activity and damage on quality of life in systemic lupus erythematosus (SLE)
assessed by the LupusQoL questionnaire
Chi Chiu Mok, Medicine, Tuen Mun Hospital, Hong Kong, Hong Kong, Kathleen McElhone, Lee Suan Teh, Rheumatology, Royal
Blackburn Hospital, London, United Kingdom
303/1610/Children with chronic diseases quality of life and biomedical ethics principles
Estelle Boetti, Pascal Auquier, Public Health, Nord University Hospital, Marseille, France, Pierre Le Coz, Medical Philosophy, La
Timone University Hospital, Marseille, France, Marie-Claude Simeoni, Public Health, Nord University Hospital, Marseille, France
304/1728/Families Needs seeking quality of life in children with spinal muscular atrophy
Caroline S. Nobre, Fatima Luna Pinheiro Landim, NURSING, MIRNA A. FROTA, INGRID MARIA M. ALVES, VANESSA G. SILVEIRA,
PUBLIC HEALTH, UNIVERSITY OF FORTALEZA, FORTALEZA, CEARA, BRAZIL, LUIZA LUANA A. LIRA, NURSING, PUBLIC HEALTH,
FORTALEZA, CEARA, BRAZIL, CINTIA F. CASIMIRO, NURSING, UNIVERSITY OF FORTALEZA, FORTALEZA, CEARA, BRAZIL
305/1577/Development of a Pediatric Chronic Constipation Symptom Measures: Results of Qualitative Interviews
with Children and Their Parents
Linda Abetz, Rob Arbuckle, PRO, Mapi Values Ltd, Bollington, Cheshire, UK, Robyn Carson, Health Economics & Outcomes
Research, Forest Research Institute, Jersey City, NJ, Barbara Lewis, Health Economics and Outcomes Research, Iron Pharmaceuticals,
Cambridge, MA, Laura-Jayne Hunter, PRO, Mapi Values Ltd, Bollington, Cheshire, UK, Steven J. Shiff, Clinical Development,
Forest Research Institute, Jersey City, NJ, Jeffrey Johnston, Ironwood Pharmaceuticals, Cambridge, MA
306/1743/Quality of Life of Children with Cerebral Palsy
Caroline S. Nobre, NURSING, Ana Maria Fontenele Catrib, MIRNA A. FROTA, NURSING, UNIVERSITY OF FORTALEZA, FORTALEZA,
CEARA, BRAZIL, VIVIANE M. VASCONCELOS, NURSING, FEDERAL UNIVERSITY OF CEARA, FORTALEZA, CEARA, BRAZIL, ISABELLY
C. LIMA DE OLIVEIRA, NURSING, UNIVERSITY OF FORTALEZA, CAUCAIA, CEARA, BRAZIL, VANESSA G. SILVEIRA, NUTRICION,
LUIZA LUANA A. LIRA, CONCEIÇÃO M. ALBUQUERQUE, NURSING, UNIVERSITY OF FORTALEZA, FORTALEZA, CEARA, BRAZIL
307/1402/Undergoing external fixator treatment for lower limb deformities in children and teens: What about
quality of life?
Noémi Dahan-Oliel, Rehabilitation Science, McGill University, Montreal, Quebec, Canada, Kathleen Montpetit, Occupational Therapy,
Shriners Hospital for Children, Montreal, Quebec, Canada, Unni Narayanan, Pediatrics, Hospital for Sick Children, Toronto,
Ontario, Canada, Hamdy Reggie, Orthopedic surgery, Shriners Hospital for Children, Montreal, Quebec, Canada
308/1753/Comparative Study of Health-Related Quality of Life of Children and Adolescents with Disabling Neurological
Disease
Nívea M O. Morales, of Surgery, Neurologic Propedeuthic Division, Carlos H M. Silva, Pediatrics, Carlos H A. Rezende, Medical
Clinic, Anna Flávia O. Santana, Medicine, Rogério M C. Pinto, Mathematics, Rogério R. Morales, Neurology, Mariza M. Cuvero,
Eliane M. Santos, Luíz D. U. Rocha-Júnior, Danielle M. Morais, Myrciara M. Alcântara, Medicine, Universidade Federal de Uberlândia,
Uberlândia, Minas Gerais, Brazil
309/1747/Do disabling neurological diseases in childhood cause a different impact on the mothers quality of
life?
Carlos Henrique M. Silva, Medicine, Nívea de M. O. Morales M. Morales, Pediatric, Carlos Henrique A. Rezende, Ana Karine M.
Rodrigues, Priscilla S. Lima, Rogério M. Pinto, Mariza M. Cuvero, Eliane M. Santos, Luiz D. Junior, Danielle M. Morais, Medicine,
University of Uberlandia, Uberlandia, Minas Gerais, Brazil
310/1501/Cultural adaptation and validation of “Diabetes Quality of Life for Youths”
Tatiana S. Novato, Sonia A. Grossi, Miako Kimura, Medical Surgical Nursing, University of São Paulo, São Paulo, São Paulo, Brazil
311/1723/Cross-cultural adaptation and preliminary validation of the Cystic Fibrosis Questionnaire (CFQ) in
Spanish language (Child and Parent versions)
Macarena M. Anchóriz, Hospital Universitario Virgen del Rocío, Universidad de Sevilla, Sevilla, Spain, Montserrat M. Gómez de
Terreros, Facultad de Psicología, Universidad de Sevilla, Sevilla, España
312/1607/Sibling Support & Adjustment to Parental Neurological Illness
David Morley, Psychology, Thames Valley University, Brentford, Middlesex, UK, Caroline Selai, Alan Thompson, Institute of
Neurology, University College London, Queen Square, London, United Kingdom
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