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Conference Program (PDF) - ISOQOL

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Poster Session 2 - Friday<br />

163/1306/Quantifying our Progress: Calibration and Validation Testing of the Neuro-QOL Tool<br />

Cindy Nowinski, David Cella, Jin Shei Lai, Medical Social Sciences, Northwestern University Feinberg School of Medicine<br />

164/1326/Clinical Validation of Neuro-QOL Measurement Tools in Parkinson’s Disease<br />

Cindy Nowinski, Medical Social Sciences, Northwestern University Feinberg School of Medicine, Andrew Siderowf, Neurology,<br />

University of Pennsylvania Health System, David Victorson, David Cella, Katy Wortman, Medical Social Sciences, Northwestern<br />

University Feinberg School of Medicine, Claudia Moy, Extramural Research, NIH/NINDS<br />

165/1693/Extending the Neuro-QOL to Huntington’s Disease (HD): The development of the HD-HRQOL<br />

Noelle E. Carlozzi, Heather McGowan, David S. Tulsky, Outcomes & Assessment Laboratory, Kessler Foundation Research<br />

Center, West Orange, NJ<br />

166/1170/Progress on the PROMIS® Sexual Function Measure<br />

Kathryn E. Flynn, Psychiatry and Behavioral Sciences, Duke University School of Medicine, Durham, NC, Diana D. Jeffery, Center<br />

for Health Care Management Studies, Health Pr, US Department of Defense, Bryce B. Reeve, Division of Cancer Control and<br />

Population Sciences, National Cancer Institute, Rockville, MD, L Lin, Duke Clinical Research Institute, Durham, NC, Ashley Wilder<br />

Smith, Division of Cancer Control and Population Sciences, National Cancer Institiute, Bethesda, MD, A Abernethy, Duke Clinical<br />

Research Institute, Durham, NC, J Reese, Johns Hopkins University, Baltimore, MD, Kevin Weinfurt, Dept. of Psychology &<br />

Neuroscience, Duke University<br />

167/1768/The NIH Patient-Reported Outcomes Measurement Information System Cancer Fatigue Item Bank<br />

(PROMIS Ca-FIB): Validation with Cancer Population<br />

Jin-Shei Lai, Sofia F. Garcia, David Cella, Medical Social Sciences, Northwestern University, Chicago, IL<br />

168/1328/Development of Targeted Patient Reported Outcome Item banks for Spinal Cord Injury: The SCI-CAT/<br />

SCI-QOL Measurement System<br />

David Tulsky, Spinal Cord Injury Research Laboratory, Kessler Foundation Research Center, Summit, NJ, Alan M. Jette, Health &<br />

Disability Research Institute, Boston University School of Public Health, Allen W. Heinemann, Center for Rehabilitation Outcomes<br />

Research, Rehabilitation Institute of Chicago, Denise G. Tate, Department of Physical Medicine and Rehabilitation, University of<br />

Michigan Medical School, David Cella, Deaprtment of Medical Social Sciences, Northwestern University Feinberg School of Medicine<br />

169/1717/Development of a Vision-Targeted HRQOL Item Bank<br />

Sylvia H. Paz, Health Services, UCLA, La Canada, CA, Jerry Slotkin, Medical Social Sciences, Northwestern University Feinberg<br />

School of Medicine, Chicago, IL, Roberta McKean-Cowdin, Preventive Medicine, Rohit Varma, Ophthalmology, University of<br />

Southern California, Los Angeles, CA, Ron D. Hays, Medicine, UCLA, Los Angeles, CA<br />

170/1788/Comparing health status profiles administered to common samples when their range, variability and<br />

available norms vary<br />

Seung W. Choi, Jennifer L. Beaumont, Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL,<br />

Zhimei Liu, US Oncology Health Economics & Outcomes Research, Novartis Pharmaceuticals Corporation, East Hanover, NJ,<br />

James C. Yao, Gastrointestinal Medical Oncology, University of Texas M. D. Anderson Cancer Center, Houson, TX, David Cella,<br />

Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL<br />

171/1429/Acceptance and Usability of Assessment Center<br />

Nan Rothrock, Rachel Hanrahan, Richard Gershon, Medical Social Sciences, Northwestern University, Chicago, IL<br />

172/1742/Agreement Between PROMIS Global Health Scale and SF-36 Scores Among Surgical Patients<br />

David R. Nerenz, Center for Health Services Research, Lisa Pietrantoni, Neuroscience Institute, Lonni Schultz, Biostatistics and<br />

Research Epidemiology, Leila Obeid, Andrew Swartz, Surgery, Ilan Rubinfeld, Trauma Surgery, Vic Velanovich, Surgery, Henry<br />

Ford Hospital, Detroit, MI<br />

Population & Policy<br />

173/1664/Assessment of quality of life of family and their willingness to trade off pay and time for symptom<br />

free patients with skin disease<br />

Mohammad Basra, Rhiannon McKnight, Dermatology, Sam Salek, Pharmacy, Cardiff University, Cardiff, UK<br />

174/1114/Quality of Life and Burden in Caregivers of Elderly in Outpatient Treatment<br />

Déborah C. Oliveira, Gisele S. F. Carvalho, Faculty of Medical Sciences - Nursing Department, Florindo Stella, Celina M. H. Higa,<br />

Ambulatory of Mental Health, Maria J. D’Elboux, Faculty of Medical Sciences - Nursing Department, State University of Campinas,<br />

Campinas, São Paulo, Brazil<br />

175/1627/Age and Ethnic Variations in Caregiver Burden, Self-Efficacy, and Quality of Life among Working<br />

Caregivers<br />

Joan J. Branin, Center for Health & Aging, University of La Verne, La Verne, CA<br />

176/1601/The secondary impact of skin disease on the Greater Patient<br />

Andrew Y. Finlay, Dermatology, Cardiff University, UK<br />

48

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