Conference Program (PDF) - ISOQOL

Saturday
Symposium 1685: ADAPTING PROMS FOR USE WITH DIVERSE POPULATIONS: EXPERIENCES WITH AMERI-
CAN SIGN LANGUAGE
Chair: Steven Barnett, MD
Sovereign Suite
Individual Abstract 1748
DEAF CONSUMERS’ HEALTHCARE EXPERIENCES: THE NEED FOR ACCESSIBLE PROM
Steven Barnett, Family Medicine, University of Rochester, Rochester, NY
Individual Abstract 1751
SIGN LANGUAGE HEALTH SURVEYS: DESIGNING & EVALUATING A COMPUTER-BASED INTERFACE
Erika Sutter, Community and Preventive Medicine, University of Rochester, Rochester, NY
Individual Abstract 1752
SIGN LANGUAGE HEALTH MEASURES: TRANSLATION & ADAPTATION
Poorna Kushalnagar, Community and Preventive Medicine, University of Rochester, Rochester, NY
8:00 am – 3:30 pm
Poster Session 3 on display
Viscount Suite and Foyer
Poster numbers 209 through 312 are on display today (see page 48 through 53)
9:15 – 9:30 am
Break
West Wing Lobby
9:30 – 9:45 am
President’s Award
Chair: Diane Fairclough, DrPH
Speaker: David Feeny, PhD
Sandringham Suite
9:45 – 11:15 am
Plenary Session
Dissemination and Integration of PRO Data into Clinical Care
Chair: ??
Speakers:
Snadringham Suite
“How can the quality of life research community best support clinicians and patients who seek meaningful PRO data for shared
medical decision-making and patient advocacy?” is the question that will be considered in the final plenary of the meeting. Each
year masses of data are reported about treatments, but often the information is difficult for clinicians and patients to understand
and use for decision-making. The session will consider challenges to improving understanding of information needs of patients
and clinicians and how these needs might be better met. A patient advocate, a clinician, and a clinician-QOL researcher will
consider how to help clinicians and patients can gain more from PRO data for treatment planning. Andrea Pusic will serve as
moderator for the panel discussion. Invited speakers include
• Professor Dale Vidal (Director, Center for Informed Choice at Dartmouth Medical Center) who will discuss shared medical
decision-making and evidence-based practice.
• Dr. Michael Brundage (radiation oncologist and PRO researcher) who will share his projects for improving clinician and patient
understanding of QOL outcomes from clinical trials.
• Mr. Richard Stephens, (patient advocate and patient representative to the Macmillian Cancer Support clinical advisory board)
who will provide the patient perspective drawn from his own experience as a cancer and heart patient and that of other
patients regarding information available to patients and what information patients need and want about their treatments.
11:15 – 11:30 am
Break
West Wing Lobby
32