Conference Program (PDF) - ISOQOL
Conference Program (PDF) - ISOQOL
Conference Program (PDF) - ISOQOL
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Qualitative Methods<br />
Chair: Linda Abetz-Webb, MA<br />
Hilton Meeting Rooms 1-6<br />
Thursday<br />
1375/Voice Outcomes in Head and Neck Cancer - What Matters to Patients?<br />
Elaine McColl, Newcastle Clinical Trials Unit, Newcastle University, Newcastle upon Tyne, UK, Jo Patterson, Speech and Language<br />
Therapy, City Hospitals Sunderland NHS Foundation Trust, Sunderland, United Kingdom, Vinidh Paleri, Otolaryngology-Head and<br />
Neck Surgery, The Newcastle upon Tyne Hospitals NHS Trust, Newcastle upon Tyne, United Kingdom<br />
1666/Understanding Perspectives of Adults with Sickle Cell Disease in Developing a Disease Specific Quality of<br />
Life Measurement System<br />
Marsha J. Treadwell, Hematology/Oncology, Children’s Hospital & Research Center Oakland, Oakland, CA, Roger Levine, American<br />
Institutes for Research, San Mateo, CA, San Keller, American Institutes for Research, Chapel Hill, NC, Kathryn Hassell, Sickle<br />
Cell Treatment and Research Center, University of Colorado, Denver, CO, Ellen Werner, Blood Diseases and Resources, National<br />
Heart, Lung and Blood Institute, Bethesda, MD<br />
1368/Evidence-based management of uncertainty in rheumatic conditions: Comparing views of health care<br />
professionals and patients<br />
Sophie Cleanthous, Unit of Behavioural Medicine, University College London, London, UK, Michael Shipley, David Isenberg,<br />
Centre for Rheumatology, Stanton Newman, Unit of Behavioural Medicine, University College London Hospital, London, UK,<br />
Stefan Cano, Clinical Neurology Research Group, Peninsula Medical School, Plymouth, UK<br />
1612/Exploring needs-based quality of life (QoL) from the perspective of the individual with Post Polio Syndrome<br />
(PPS): A thematic analysis<br />
Anne-Marie C. Quincey, Clinical Trials Unit, Walton Centre for Neurology and Neurosurgery, Fazakerley, Liverpool, UK, Samantha<br />
M. Wong, Clinical Trials Unit, Carolyn A. Young, Neurology, Walton Centre for Neurology and Neurosurgery, Fazakerley, Liverpool,<br />
England<br />
1:00 – 2:00 pm<br />
Lunch on Your Own | SIG Meetings | Committee Meetings<br />
IRT SIG<br />
York Room<br />
QoL in Clinical Practice SIG<br />
Lancaster Room<br />
Industry Advisory Committee Hilton Meeting Room 7<br />
Governance Committee<br />
4th Floor Presentation Room<br />
2:00 – 3:30 pm<br />
Concurrent Symposia<br />
Invited Symposium: RATING SCALE VALIDITY: ITS CRITICAL IMPORTANCE AND HOW WE ACHEIVE IT<br />
Chair: ???<br />
Sandrigham Suite<br />
NEED TALK TITLES<br />
Symposium 1430: DEVELOPMENT AND COMPARISONS OF ALTERNATIVE PREFERENCE-BASED MEA-<br />
SURES OF HEALTH<br />
Chair: Stephen B. Clauser, PhD<br />
Sovereign Suite<br />
Individual Abstract 1433<br />
DEVELOPING PREFERENCE-BASED MEASURES FROM EXISTING QUALITY OF LIFE MEASURES: WHY, HOW AND SHOULD<br />
WE?<br />
John Brazier, School of Health and Related Research, Sheffield, Sheffield, South Yorkshire, UK<br />
Individual Abstract 1434<br />
FLOORS, CEILINGS, AND FOUNDATIONS: COMPARISONS AMONG GENERIC PREFERENCE-BASED MEASURES<br />
David Feeny, Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA<br />
Individual Abstract 1702<br />
HEALTH PREFERENCE ASSESSMENT IN THE PROMIS PROJECT: ESTIMATION AND VARIATION IN PREFERENCE SCORES<br />
BY DEMOGRPHIC AND DISEASE GROUPS<br />
18
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