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Mental health care system - Role of voluntary organizations

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MENTAL HEALTH CARE SYSTEM·<br />

ROLE OF VOLUNTARY ORGANIZATIONS<br />

Thesis Submitted for the Degree <strong>of</strong><br />

Doctor <strong>of</strong> Philosophy<br />

in Sociology<br />

by<br />

K.Asha<br />

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DECLARA nON<br />

I declare that this thesis entitled "<strong>Mental</strong> Health Care-<strong>Role</strong> <strong>of</strong> Voluntary<br />

Organizations" is the result <strong>of</strong> my own work and that it has not been submitted previously<br />

either wholly or in part, to this or any other University for any degree. Due<br />

acknowledgements have been made wherever anything has been borrowed from any<br />

other sources.<br />

Date: '1 / 0 -:. ' (K.ASHA)


CERTFICATE<br />

I hereby certify that the present thesis entitled "<strong>Mental</strong> Health Care System - <strong>Role</strong><br />

<strong>of</strong> Voluntary Organizations" incorporates the results <strong>of</strong> the independent research <strong>of</strong> Ms.<br />

K.Asha, carried out under my guidance and supervision.<br />

I also certify that it has not previously formed the basis for the award <strong>of</strong> any<br />

Degree, Diploma or Associate Fellowship <strong>of</strong> the Osmania University or any other<br />

University.<br />

Date:


Acknowledgements<br />

Firstly I am indebted to my Supervisor and guide, Pr<strong>of</strong> G S Aurora who has<br />

shown great patience in seeing this work through. These nine years <strong>of</strong> association with<br />

him has been a very memorable one. It has been a great learning experience for me. He<br />

has been a very inspiring force, encouraging me at every stage <strong>of</strong> my work. I am very<br />

grateful to him for his valuable gUidance. My thanks are due to Pr<strong>of</strong> G K Karanth, Head<br />

<strong>of</strong> the Sociology Unit, ISEC, for <strong>of</strong>fering valuable suggestions and comments and for<br />

being an encouraging force to complete thIs study. I am also thankful to the staff <strong>of</strong><br />

Sociology Unit at ISEC and the other staff for helping me at different stages <strong>of</strong> my study.<br />

Many <strong>of</strong> them have <strong>of</strong>fered valuable suggestIOns and I am very thankful to them.<br />

Many pr<strong>of</strong>essionals <strong>of</strong>NIMHANS and other InstitutIOns have been very helpful 10<br />

. me during the study. My thanks are due to these pr<strong>of</strong>essionals, Pr<strong>of</strong> Srinivasa Murthy,<br />

Pr<strong>of</strong> G. G. Prabhu, Dr. Kalyana Sundaram, Mohan Issac, Dr. Sarada Menon, Dr.<br />

Urmila, Dr. Suss ie, Dr. Juvva Srilatha and many more. 1 am very thankful to the staff <strong>of</strong><br />

the Voluntary organi::ations, who helped me a great deal <strong>of</strong>fering all the information 1<br />

needed for the study. I am very grateful to Mr. V. S. Parthasarathy for having kindly gone<br />

through the manuscripts and <strong>of</strong>fering me very valuable suggestions.<br />

I am very grateful to Mr. Satishchandran, the then Director <strong>of</strong> ISEC, for giving<br />

me the opportunity to work for my Ph.D. at the Institute <strong>of</strong> Social and Economic Change .<br />

. My thanks are also due to Dr. P V Shenoi the ex. DIrector <strong>of</strong> ISFC and Dr. Govinda Rao,<br />

the present Director <strong>of</strong> ISEC for all the help and encouragement. I thank all the ISEC<br />

staff who have helped me during the course <strong>of</strong> my study.<br />

1 am very grateful to Pr<strong>of</strong> and Head, Department <strong>of</strong> SOCiology, Pr<strong>of</strong> Narasimha<br />

Reddy and Pr<strong>of</strong> Raghavendra Rao, Osmania University, for all their encouragement and<br />

help. 1 am also grateful to the Dean, Social Sciences for giving me suffiCient time to<br />

complete the study.


1 am very grateful to my family members, especially my mother for her love and<br />

affection and encouraging words that helped me to jight against many odds to complete<br />

this work. My husband Nagaraju, has been a powerful and inspiring force throughout,<br />

being with me during all the good and bad times to see this work through. 1 am very<br />

much indebted to my two sons, Suhas and Vikas, jar patiently waiting to see my work<br />

through. 1 am very grateful to my friend, S. Manasi jar encouraging me and helping me<br />

through hard times. ThiS work could not have been possible if not for the kind ho,lpitality<br />

rendered to me by Smt. Lalitha and her family members. She not only mothered my<br />

children but also showed so much <strong>of</strong> kindness and affection that helped me to compete my<br />

work. 1 am very grateful to her and her familly members, Sri Subbanna Manja, Mural!,<br />

Sunitha and Sudha for all their help during the final stage <strong>of</strong> my work.<br />

Lastly, 1 am very grateful to the subjects <strong>of</strong> my study the mentally ill, who have<br />

been very kind and co-operative to me sharing their JOYs and sorrows, helping me to<br />

understand the problem <strong>of</strong> mental illness. 1 am very grateful to them for giving me thiS<br />

umque experience.


There is something in you that is important,<br />

Deeper than your psychosis,<br />

Your violence and your hatred<br />

Above and beyond that,<br />

There is something in you that is<br />

Wholesome and beautiful and<br />

Capable <strong>of</strong> doing beautiful things.


CONTENTS<br />

Chapter No. Title 'ap<br />

1 Introduction<br />

2 <strong>Mental</strong> Health- A Historical Perspective 39<br />

3 Voluntary Sector in <strong>Mental</strong> Health Care 72<br />

4 The Three Cases 94<br />

5 Voluntary Organisations and Patient Care 135<br />

6 Voluntary Organisations and Patients' Families 199<br />

7 Summary and Conclusion 235<br />

Appendix 1<br />

Bibliography


Chapter One<br />

INTRODUCTION<br />

<strong>Mental</strong> <strong>health</strong> is an integral part <strong>of</strong> total <strong>health</strong>. India is a signatory state to the Alma<br />

Ata Declaration, which envisaged <strong>health</strong> for all by the year 2000 as the goal. Efforts to<br />

ensure the achievements <strong>of</strong> this goal included approaches and strategies for the improvement<br />

<strong>of</strong> all aspects <strong>of</strong> <strong>health</strong> - physical, mental and sociaL<br />

Till recently, the importance <strong>of</strong> mental <strong>health</strong> in the national <strong>health</strong> planning was not<br />

adequately emphasised. The scope <strong>of</strong> mental <strong>health</strong> was confined only to the treatment <strong>of</strong><br />

some seriously ill persons admitted to the mental hospitals. <strong>Mental</strong> <strong>health</strong> has not yet found<br />

its appropriate place in the national and state <strong>health</strong> planning, perhaps due to a<br />

misconception that incidence <strong>of</strong> mental illness is low in India particularly as compared to the<br />

Western countries. According to various epidemiological surveys, the magnitude <strong>of</strong> major<br />

psychiatric disorders in India is to the tune <strong>of</strong> 10 to 20 per thousand <strong>of</strong> population. This<br />

constitutes at least 8 million people suffering from severe mental disorders in India. If the<br />

figure <strong>of</strong> neurotic and psychosomatic disorders were included, the number would increase<br />

at least three folds. About 15 to 20 per cent <strong>of</strong> all patients who seek help in general <strong>health</strong><br />

services do so for emotional and psychological problems.<br />

Dr. Taylor in his report to the Bhore Committee (1946) has observed:<br />

even if the proportion <strong>of</strong> mental patients in India be taken as 2 per 1000 <strong>of</strong><br />

the population, hospital accommodation should be available for at least 800,000<br />

mental patients. On the other hand, there are only a little over 10,000 beds for such<br />

patients ... In India, the existing number <strong>of</strong> mental hospital beds is in the ratio <strong>of</strong> one<br />

bed to about 40,000 <strong>of</strong> the population (taking the present population <strong>of</strong> the country<br />

as 400 millions) while, in England, the corresponding ratio is approximately one bed<br />

to 300 <strong>of</strong> the population ...<br />

After 54 years <strong>of</strong> independence, the number <strong>of</strong> total beds has doubled to a little over<br />

twenty- two thousand. The number <strong>of</strong> mental hospitals has increased from 17 to 61 but the<br />

1


ed ratio has remained the same. The mental <strong>health</strong> problem by the year 2010, it is<br />

estimated, will emerge as the major <strong>health</strong> problem in India. According to WHO, in any<br />

country including India I per cent <strong>of</strong> the population suffer from severe incapacitating mental<br />

disorders and 10 per cent from mild mental disorders. If these figures are projected for India,<br />

there would be 8 million mentally ill and ten times <strong>of</strong> that number <strong>of</strong> mildly ill persons<br />

(WHO, 1975).<br />

While there are millions <strong>of</strong> people suffering from various types <strong>of</strong> mental disorders,<br />

the mental <strong>health</strong> manpower and mental <strong>health</strong> <strong>care</strong> facilities are very meagre. Total <strong>health</strong><br />

bed in India are less than 0.7 per 1000 population, out <strong>of</strong> which psychiatric beds constitute<br />

only 0.033 which comes to one psychiatric bed per 32,000 population. Out <strong>of</strong> about 20,000<br />

beds available, more than 50 per cent beds are occupied by chronic patients (GO I Report,<br />

1990).<br />

To overcome this paucity <strong>of</strong> manpower, there have been various attempts to improve<br />

the mental <strong>health</strong> services in India. In 1960, in the first conference <strong>of</strong> Medical<br />

Superintendents <strong>of</strong> <strong>Mental</strong> hospitals, a call was given for short period <strong>of</strong> training in<br />

Psychiatry to medical auxiliaries. In 1971, another workshop on "priorities in mental <strong>health</strong><br />

<strong>care</strong>" called for all <strong>health</strong> workers to be provided with instruction in mental <strong>health</strong> and<br />

mental illness suited to their level <strong>of</strong> Pr<strong>of</strong>essional training. The most recent attempt in this<br />

direction has been through the National <strong>Mental</strong> Health Programme (NMHP) (1982)<br />

developed by the Director General <strong>of</strong> Health Services (DGHS), New Delhi.<br />

The NMHP had for its aims the following:<br />

(i) Prevention and treatment <strong>of</strong> mental and neurological disorders and their<br />

associated disabilities.<br />

(ii) Use <strong>of</strong> mental <strong>health</strong> technology to improve general <strong>health</strong> services.<br />

(iii) The application <strong>of</strong> mental <strong>health</strong> principles in total national<br />

improve the quality <strong>of</strong>life.<br />

development to<br />

2


Tht;: first opportunity to develop a plan <strong>of</strong> action fo\lQwil1& th.e fonn~l~ti09


another, at least 2-3 per cent <strong>of</strong> the population are suffering from minor forms <strong>of</strong> emotional<br />

disorders which are responsible for an individual giving much less than his best to the<br />

society. In fact a total count <strong>of</strong> man-days lost to the nation attributable to mental disorders<br />

would be staggering (WHO, 1975).<br />

The physical and mental <strong>health</strong> <strong>of</strong> an individual is inter-related and no <strong>health</strong><br />

programme can be considered complete without adequate provision for the treatment <strong>of</strong><br />

mental ill-<strong>health</strong> and for the promotion <strong>of</strong> positive mental <strong>health</strong>.<br />

Positive mental <strong>health</strong> is characterised by discriminative self-restraint associated with<br />

consideration for others. A man in such positive <strong>health</strong> uses effectively his intelligence and<br />

talents to obtain the maximum satisfaction from life with minimum discomfort to others.<br />

Such a person will not allow himself to be overwhelmed by the stresses and strains<br />

inseparable from ordinary existence. He not only pr<strong>of</strong>its from experience but under<br />

favourable circumstance, can transcend such experience (Davis, 1938 cited in Kamo and<br />

Schwartz, 1974).<br />

Davis (1938) observes that the ultimate in mental hygiene means mental poise, calm<br />

judgment and an understanding <strong>of</strong> leadership and fellowship, in other words, cooperation<br />

with an attitude that tempers justice with mercy and humility (Kamo and Schwartz, 1974).<br />

Beirer et.al .. point out the importance <strong>of</strong> good mental <strong>health</strong> and the role it plays<br />

throughout man's life. He observes that the most important aspects <strong>of</strong> mental <strong>health</strong> is the<br />

state <strong>of</strong> the ego, what has been assessed as the quality <strong>of</strong> the ego structure and the stage <strong>of</strong><br />

its development, or what is called the maturity <strong>of</strong> the ego. Personalities develop, even before<br />

birth, but certainly during life and they continue to develop throughout life. To assess a<br />

person's personality, one <strong>of</strong> the criteria is the stage <strong>of</strong> his development (Beirer et.al., 1970)<br />

<strong>of</strong>a person:<br />

According to Beirer et .. al., there are three main areas to assess the state <strong>of</strong> the ego<br />

4


(1) Reaction to stress: The capacity <strong>of</strong> the person to wi thstand frustration and to<br />

tolerate anxiety and depression. What is being assessed is the degree <strong>of</strong> control <strong>of</strong><br />

the ego in maintaining its equilibrium in the face <strong>of</strong> different pressures.<br />

(2) Problem solving: The capacIty <strong>of</strong> the ego to solve the problems that seem to<br />

threaten the equilibrium state <strong>of</strong> mind.<br />

(3) Adjustment to reality: To assess how far the person has achieved a happy oillarice---'<br />

between, on the one hand gratification <strong>of</strong> his needs and instincts and impulses and<br />

on the other hand, sacrifice <strong>of</strong> the gratification <strong>of</strong> these needs to the demands <strong>of</strong><br />

reality.(Beirer el.al, 1970).<br />

A <strong>health</strong>y person has a sound body and leads a happy and contented life, has the<br />

ability to face difficulties, losses and frustrations. He is capable <strong>of</strong> living in harmony with<br />

others, not only is he happy but is able to do his best to keep others happy. He has certain<br />

moral and spiritual values and sees that others are not put into trouble because <strong>of</strong> him. Such<br />

a person who is physically, mentally, socially and spiritually well can be considered to be<br />

<strong>health</strong>y (NTMHANS, 1985) Thus, mental <strong>health</strong> plays a very vital role in the lives <strong>of</strong> all<br />

human beings and good mental <strong>health</strong> leads towards the progress <strong>of</strong> the society.<br />

Statement <strong>of</strong> the problem<br />

Like the body, the 'mind' too can become ill. The mentally ill person's sense <strong>of</strong> wellbeing<br />

and equihbrium is disturbed. The various mental functions like thinking, emotions,<br />

memory, intelligence, decision-making, etc., get disturbed. Speech and behaviour become<br />

abnormal. The ability to work satisfactorily IS impaired.<br />

There are certain disorders <strong>of</strong> thought processes and emotional states that seem to<br />

occur in all societles that lead to problematic behaviours which are disruptive <strong>of</strong> normal<br />

social relationships that usually cause torment to the individual afflicted by the disorder and<br />

that tend to fluctuate in intensity depending on the 'individual's physical condition and<br />

features in his life history.<br />

5


Whether such conditions are regarded as diseases or not, it is relevant to ask how<br />

cultural themes, social roles or sequences <strong>of</strong>life experience may influence the incidence <strong>of</strong><br />

various forms <strong>of</strong> disorder, the ages at which such forms occur most frequently, the course<br />

<strong>of</strong> disorder and its consequences for the social participation and subsequent functioning <strong>of</strong><br />

the individual. Thus, it is relevant to study the processes by means <strong>of</strong> which the problematic<br />

behaviour problems can be defined and dealt with or treated within a given culture and social<br />

milieu.<br />

<strong>Mental</strong> disorders occur in all societies. Social conception <strong>of</strong> mental disorder varies<br />

greatly. The examination <strong>of</strong> societal responses to mental disorder affords an opportunity for<br />

the study <strong>of</strong> a number <strong>of</strong> sociological problems.<br />

They are, -<br />

(I) the nature <strong>of</strong> behaviour that leads to a person to be seen as 'mentally ill;<br />

(2) the consequence <strong>of</strong> calling a person 'mentally ill' or <strong>of</strong> confining persons so<br />

diagnosed in mental hospitals;<br />

(3) the social identity <strong>of</strong> the individual afflicted; and<br />

(4) the characteristics <strong>of</strong> the institution that influences the behaviour <strong>of</strong> inmates.<br />

Whether or not the socio-cultural factors are implicated in mental disorder, being a<br />

mental patient has important consequences for the life course and social roles <strong>of</strong> patient and<br />

his family. Care for the mentally ill is very crucial and it involves social and economic<br />

resources. Allover the world different strategies have been adapted to tackle the problem<br />

<strong>of</strong> <strong>care</strong> for the mentally ill. Attitudes <strong>of</strong> the people have also been changing since the days<br />

when mentally ill were tortured. Care for the mentally ill is very important but yet due to<br />

financial constraints especially in a developing country like India, facilities turn out to be<br />

meagre and alternative institutions <strong>of</strong> <strong>care</strong> have to be evolved to tackle the problem, In this<br />

study, an attempt has been made to assess the facilities available in India and highlight the<br />

role played by <strong>voluntary</strong> <strong>organizations</strong>.<br />

6


How do <strong>voluntary</strong> <strong>organizations</strong> (VOs) function, what is their structure and how do<br />

they mobilise resources <strong>of</strong> the societal institutions to help the mentally ill IS the central theme<br />

<strong>of</strong> the study. The study attempts to understand the various societal perceptions WIth regard<br />

to the definition <strong>of</strong> mental illness, identification <strong>of</strong> those afflicted by mental Illness,<br />

definition <strong>of</strong> symptoms <strong>of</strong> mental illness, society's response to those afflIcted by Illness and<br />

those working towards their betterment. The study tnes to understand the <strong>voluntary</strong><br />

<strong>organizations</strong> as one <strong>of</strong> the means by which society seeks to solve the problems <strong>of</strong> those<br />

afflicted by mental illness and the families <strong>of</strong> the mentally ill.<br />

Objectives <strong>of</strong> the study<br />

I. To place the problem <strong>of</strong> mental <strong>health</strong> in lndia in a historical perspective.<br />

2. To describe the role played by the <strong>voluntary</strong> <strong>organizations</strong> in the identification,<br />

treatment, rehabilitation and prevention <strong>of</strong> the mentally ill.<br />

3. To study the structure and functions <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong> as related<br />

to the <strong>care</strong> and cure <strong>of</strong> mentally disturbed patients.<br />

4. To examine the linkage <strong>of</strong> <strong>voluntary</strong> <strong>organizations</strong> with the Governmental<br />

organization and with each other.<br />

5. To understand the role played by the families towards the <strong>care</strong> <strong>of</strong> the mentally<br />

ill.<br />

Operational definition <strong>of</strong> the concepts used<br />

<strong>Mental</strong> Health: This refers to the integrated state <strong>of</strong> mind and body possessing<br />

characteristics that help a person to adjust satisfactorily with hislher personal and social life.<br />

Voluntary Organization(VO): This refers to those <strong>organizations</strong> working towards<br />

social welfare, which are non-government, non-pr<strong>of</strong>it making in character and not fully<br />

funded whether directly or indirectly only by the government.<br />

7


Theoretical framework<br />

The study has for its basis the theories <strong>of</strong> Parsons on structural-functionalism, his<br />

theory on open <strong>system</strong>s and his contribution to the sociological approach to the society.<br />

Parsons's structural-functionalism<br />

According to Parsons, "A social <strong>system</strong> consists <strong>of</strong> a plurality <strong>of</strong> individual actors<br />

interacting with each other in- a situation which has at least a physioalorenvironmental<br />

impact, actors who are motivated in terms <strong>of</strong> a tendency to the 'optimisation <strong>of</strong> gratification'<br />

and whose relation to their situations, including each other is defined and mediated in terms<br />

<strong>of</strong> a <strong>system</strong> <strong>of</strong> culturally structured and shared symbols" (Parsons, 1951).<br />

Parsons believes that there are four functional imperatives that are necessary for or<br />

characteristic <strong>of</strong> all <strong>system</strong>s-<br />

(A)-Adaptation, (G)-Goal attainment, (I)-Integration, (L)-Latency or Pattern Maintenance<br />

(AGIL). In order to survive, the <strong>system</strong> must perform these four functions.<br />

1. Adaptation: A <strong>system</strong> must cope with external situational exigencies. It must adapt to its<br />

environment and adapt to its needs.<br />

2. Goal attainment: A <strong>system</strong> must define and achieve its primary goals.<br />

3. Integration: A <strong>system</strong> must regulate the inter-relationships <strong>of</strong> its component parts. It must<br />

also manage the relationship among other three functional imperatives (A,G,L).<br />

4. Latency (Pattern Maintenance): A <strong>system</strong> must furnish, maintain and renew both the<br />

motivations <strong>of</strong> individuals and cultural patterns that create and sustain motivation.<br />

With the above theoretical assumptions in mind, this study looks at the role <strong>of</strong><br />

<strong>voluntary</strong> <strong>organizations</strong> treating them as social <strong>system</strong>s. The role <strong>of</strong> these social <strong>system</strong>s will<br />

be assessed by assessing the functions they are expected to perform, viz., Adaptation, Goal<br />

attainment, Integration and Pattern maintenance (Parsons' A,G,I,L). The research questions<br />

that can be posed are: how do these <strong>organizations</strong> adapt themselves to the external<br />

8


environment? What are the steps taken by these <strong>voluntary</strong> <strong>organizations</strong> to achieve their<br />

goals? How do these <strong>organizations</strong> integrate the staff, duties and other sub-<strong>organizations</strong> in<br />

their course <strong>of</strong> achieving their goals? How do these <strong>organizations</strong> maintain a particular<br />

pattern in order to sustain motivations <strong>of</strong> individuals and also to maintain a cultural pattern?<br />

Apartfromtheabove, the <strong>organizations</strong>-will atso be analysed from the view point <strong>of</strong> .. -............ ..<br />

Parsons assumptions <strong>of</strong> order, inter-dependence <strong>of</strong> parts, impact on the other sub-<strong>system</strong>s,<br />

and self-maintenance <strong>of</strong> a <strong>system</strong>.<br />

Parsons's Open-System Theory<br />

Parsons's open-<strong>system</strong> theory is based on the entropy assumption and the emphasis<br />

on the necessary dependence <strong>of</strong> any organization upon its environment According to him,<br />

L There is a close relationship between a structure and its surrounding environment and<br />

without continued inputs the structure would soon run down. One critical basis for<br />

identifying a social <strong>system</strong> is through its relationship with energic sources for its<br />

maintenance. Human effort and motivation are the major maintenance source for<br />

almost all social structures.<br />

2. Another major relationship is the processing <strong>of</strong> production inputs to yield some outcome<br />

to be utilised by some outside group or <strong>system</strong>.<br />

INPUT • THROUGH-PUT • OUT -PUT<br />

3. The open-<strong>system</strong> approach permits the integration <strong>of</strong> macro-approach <strong>of</strong> the sociologists<br />

and micro-approach <strong>of</strong> the Psychologists to the study <strong>of</strong> social phenomena.<br />

Parsons <strong>of</strong>fers certain criteria for understanding <strong>organizations</strong>, which are as follows.<br />

I. An organization is a social device for efficiently accomplishing through group means<br />

some stated purpose; it is the equivalent <strong>of</strong> the blue-print created for some practical<br />

objective.<br />

2. Rather than starting with concepts which call for identifying the purposes <strong>of</strong> the designers<br />

and then correcting for them when they do not seem to be fulfilled, the theoretical<br />

concepts should begin with the input, output and functioning <strong>of</strong> the organization as a<br />

<strong>system</strong> and not with the rational purposes <strong>of</strong> its leaders.<br />

9


3. The theoretical model for the understanding <strong>of</strong> an organization is that <strong>of</strong> an energic inputoutput<br />

<strong>system</strong> in which the energic return from the output re-activates the <strong>system</strong>. Social<br />

<strong>organizations</strong> are flagrantly open <strong>system</strong>s in that the input <strong>of</strong> energies and the conversion<br />

<strong>of</strong> output into further energic input consist <strong>of</strong> transactions between the organization and<br />

the environment<br />

4. All social <strong>system</strong>s, including <strong>organizations</strong> consist <strong>of</strong> the patterned activities <strong>of</strong> a number<br />

<strong>of</strong> individuals. These patterned activities are complimentary or inter-dependent with into<br />

some common output or outcome; they are repeated, relatively enduring and bounded in<br />

space and time. The stability or recurrence <strong>of</strong> activities can be examined in relation to the<br />

energic input into the <strong>system</strong> and the resulting product or energic output. To maintain<br />

these patterned activities requires renewal <strong>of</strong>the inflow <strong>of</strong> energy. This is guaranteed in<br />

social <strong>system</strong>s by the energic return from the product <strong>of</strong> outcome. Thus the outcome <strong>of</strong><br />

the cycle <strong>of</strong> activities furnishes new energy for the initiation <strong>of</strong> a renewed cycle.<br />

Two basic criteria for identifYing social <strong>system</strong>s and determining their functions are<br />

1. tracing the pattern <strong>of</strong> energy exchange <strong>of</strong> activity <strong>of</strong> people as it results in some output;<br />

and<br />

2. ascertaining how the output is translated into energy, which re-activates the pattern.<br />

Therefore, we shall refer to organizational functions or objectives not as the conscious<br />

purposes <strong>of</strong> group leaders or group members but as the outcomes, which are energic<br />

source for the maintenance <strong>of</strong> the same type <strong>of</strong> outputs.<br />

Reflections<br />

The theoretical assumptions made for the analysis are as follows: There is a close<br />

relationship between any social <strong>system</strong> (in the present case, <strong>voluntary</strong> <strong>organizations</strong>) and its<br />

surrounding environment. It depends on continued inputs and it requires energic resources<br />

for its maintenance. Human effort and motivation are the major maintenance source. The<br />

<strong>system</strong> yields certain outcome to be utilised by another <strong>system</strong>.<br />

10


Fig 1.1 Social System And The External Environment<br />

Vos working for the<br />

mental <strong>health</strong> <strong>of</strong> the<br />

patients<br />

INPUT<br />

(TIIROUGH PUT)<br />

EXTERNAL ENVIRONMENT<br />

Organization is a social device for efficiently accomplishing through group means<br />

some stated purpose. The energic return from the output activates the <strong>system</strong>. The input <strong>of</strong><br />

energies and the conversion <strong>of</strong> output into further energic input consists <strong>of</strong> transactions<br />

between organization and the environment in the form <strong>of</strong> patterned activities, interdependent<br />

or complimentary involving a cycle <strong>of</strong> events. To maintain the patterned activity,<br />

the <strong>system</strong> requires renewed energy which is resulted from the energic return <strong>of</strong> the product<br />

<strong>of</strong> outcome. To survive, open <strong>system</strong>s must move to arrest the entropic process; they must<br />

acquire negative entropy.<br />

The figure 1.2. given below briefly describes, the input, through-put and output <strong>of</strong><br />

the <strong>voluntary</strong> <strong>organizations</strong> working in the area <strong>of</strong> mental <strong>health</strong>.<br />

11


Fig 1.2. Voluntary Organizations as Open Systems<br />

EXTERNAL ENVIRONMENT<br />

INPUT<br />

1. State mental <strong>health</strong> <strong>care</strong><br />

facilities<br />

2. State legislation for<br />

the mentally ill<br />

3. Societal attitudes toward<br />

mental illness<br />

4. Cultural practices<br />

L<br />

A<br />

I. Treated clients<br />

2. Trained family members<br />

3. Educated families<br />

4. Educated masses<br />

5. Self-help groups<br />

6. Rehabilitated clients<br />

7. Family networks<br />

8. Linkage <strong>of</strong> different Organizations<br />

VOLUNTARY<br />

ORGANIZATIONS<br />

1. Funding<br />

2. Human effort<br />

3. Altruistic motives<br />

4. Empathy towards the mentally ill<br />

5. Infra-structure<br />

6. Efficient staff<br />

7. Good Team Work<br />

I<br />

G<br />

I. Mass education on mental illness<br />

2. Care for the mentally ill<br />

3. Training the mentally ill in<br />

social and vocational skills<br />

4. Training the family members <strong>of</strong><br />

the mentally ill in coping skills<br />

5. Therapies for the mentally ill<br />

6. Formation <strong>of</strong> self-help groups<br />

OUTPUT<br />

THROUGH-PUT<br />

Parsons' Sociological Approacb to tbeTbeory <strong>of</strong> Organizations<br />

According to Parsons, an organization is a <strong>system</strong> which, as the attainment <strong>of</strong> its<br />

goal, "produces" an identifiable something which can be utilised in some way by another<br />

<strong>system</strong>; that is, the output <strong>of</strong> the organization is for some other <strong>system</strong>, an input. There must<br />

be a set <strong>of</strong> consequences <strong>of</strong> the processes, which go on within the organization which makes<br />

difference to the functioning <strong>of</strong> some other sub<strong>system</strong> <strong>of</strong> the society, that is. without this the<br />

receiving <strong>system</strong> suffers a "deprivation" (cited in Etzioni, 1961).<br />

12


In analysing an organization, firstly, it is treated as a <strong>system</strong>, which is charecterised,<br />

by all the properties, which are essential to any social <strong>system</strong>. Secondly, it is treated as a<br />

functionally differentiated sub<strong>system</strong> <strong>of</strong> a larger social <strong>system</strong>. Thirdly, it will be the other<br />

sub<strong>system</strong> <strong>of</strong> the larger one, which will constitute the situation or environment in which the<br />

organization operates. Further, it has to be analysed as the special type <strong>of</strong> social <strong>system</strong><br />

organised about the primacy <strong>of</strong> interest in the attainment <strong>of</strong> a particular type <strong>of</strong> <strong>system</strong> goal.<br />

Certain <strong>of</strong> its special features will derive from goal primacy, in general and others, from the<br />

goal primacy <strong>of</strong> the particular type <strong>of</strong> goal. The characteristics <strong>of</strong> the organization will be<br />

defined by the kind <strong>of</strong> situation in which it has to operate, which will consist <strong>of</strong> the relations<br />

obtaining between it and the other specialised sub<strong>system</strong>s <strong>of</strong> the larger <strong>system</strong> <strong>of</strong> which it<br />

is a part. The latter for most purposes is assumed to be a society.<br />

According to Parsons, the structure <strong>of</strong> the organization can be described and analysed<br />

from two points <strong>of</strong> view. First is the cultural-institutional point <strong>of</strong> view, which uses the<br />

values <strong>of</strong>the <strong>system</strong> and their institutionalisation in different functional contexts as its point<br />

<strong>of</strong> departure; the second is the 'group' or 'role' point <strong>of</strong> view which takes sub-<strong>organizations</strong><br />

and the roles <strong>of</strong> individuals participating in the functioning <strong>of</strong> the organization as its point<br />

<strong>of</strong> departure.<br />

According to Parsons, a minimal description <strong>of</strong>an organization will have to include<br />

1. the value <strong>system</strong>-which implies basic acceptance <strong>of</strong> the more generalised values <strong>of</strong> the<br />

super-ordinate <strong>system</strong> (unless it is a deviant organization not integerated. and 2. at the<br />

requisite level <strong>of</strong> generality the most essential feature <strong>of</strong> the value <strong>system</strong> <strong>of</strong> an organization<br />

is the evaluative legitimisation <strong>of</strong> its place or 'role' in the super-ordinate <strong>system</strong>.<br />

organization.<br />

The analysis <strong>of</strong> the organization should look into the following aspects <strong>of</strong> the<br />

I. Procurement <strong>of</strong> the resources necessary to carry out its functions.<br />

2. Institutional procedures which these resources are brought to bear in the concrete<br />

processes <strong>of</strong> goal attainment.<br />

13


3. Institutional patterns defining and regulating the limits <strong>of</strong> commitments to the<br />

organization.<br />

Apart from the above, the analysis <strong>of</strong> organization should also include mechanisms<br />

<strong>of</strong> implementation, which involves two sets <strong>of</strong> relations. First, is the set <strong>of</strong> relations with the<br />

external situation centering around the problem <strong>of</strong> 'disposal' <strong>of</strong> the 'product <strong>of</strong> the<br />

organization's activities. Second is the process concerned With the internal mechanisms <strong>of</strong><br />

the mobilisation <strong>of</strong>resources for the implementation <strong>of</strong> the goaL Both <strong>of</strong> these involve the<br />

following functions:<br />

1. Policy decisions which are a set <strong>of</strong> decisions to take steps to attain the goaL<br />

2. Allocative decisions which involves allocations <strong>of</strong> responsibilities among personnel,<br />

i.e., sub <strong>organizations</strong> and individuals, and the allocation <strong>of</strong> resources, i.e., manpower<br />

and monetary and physical facilities in accord with these responsibilities.<br />

3. Co-ordination decisions which maintains the integeration <strong>of</strong> the organization through<br />

facilitating co-operation and dealing with the motivational problems which arise within<br />

the organization in relations to the maintenance <strong>of</strong> co-operation. According to Bernard<br />

(1938), the first two decisions determine the effectiveness <strong>of</strong> the organization and the<br />

third determines the efficiency <strong>of</strong> the organization (cited in Etzioni, 1961).<br />

Selection <strong>of</strong> the sa m pie<br />

A preliminary survey <strong>of</strong> <strong>voluntary</strong> <strong>organizations</strong> working in the area <strong>of</strong> mental <strong>health</strong><br />

with special reference to promotive curative and preventive services found that about 19<br />

<strong>organizations</strong> were working in the area <strong>of</strong> mental <strong>health</strong>. For the purpose <strong>of</strong> the study, it was<br />

decided to select three <strong>organizations</strong> for a complete case study. The selection <strong>of</strong> the three<br />

<strong>organizations</strong> depended on: 1) service rendered by the organization; 2) location <strong>of</strong> the<br />

organization; 3) size <strong>of</strong> the organization; and 4) age <strong>of</strong> the organization.<br />

A preliminary survey was made to collect information on all these <strong>organizations</strong> and<br />

it was found that four <strong>organizations</strong> were doing pioneering work in this field in Bangalore,<br />

Delhi and Madras. Due to time and monetary constraints, the locations were restricted to<br />

14


only Bangalore and Madras. Out <strong>of</strong> the 19 <strong>organizations</strong> originally considered, some had<br />

started recently and they were yet to make good contributions, some were only crisis intervention<br />

centres which would not fulfil all the needs <strong>of</strong> the study, some were for the families<br />

<strong>of</strong> the mentally disturbed and some others were working exclusively for drug and alcohol<br />

addicts. Therefore, it was decided to choose the <strong>organizations</strong>, which rendered services to<br />

all the categories <strong>of</strong> mentally ill. Services provided by the <strong>organizations</strong> ranged from<br />

identification, treatment, day <strong>care</strong>, custodial <strong>care</strong>, rehabilitation and education. It is relevant<br />

to pit out that there has been a tremendous growth in the <strong>voluntary</strong> sector in recent years and<br />

the number <strong>of</strong> <strong>organizations</strong> working in the area <strong>of</strong> mental <strong>health</strong> <strong>care</strong> has more than<br />

doubled. At present, the total number <strong>of</strong> <strong>voluntary</strong> <strong>organizations</strong> working on mental <strong>health</strong><br />

<strong>care</strong> is around thirty eight. This does not include those working on mental retardation.<br />

The <strong>organizations</strong> that were chosen for the case studies were<br />

1) <strong>Mental</strong> Research Foundation, Madras (MRF).<br />

2) Manasa Rehabilitation Centre, Bangalore (MRC).<br />

3) Royal Medical Society, Bangalore (RMS).<br />

Table 1.1. Organizations Selected for Case study<br />

Name <strong>of</strong> Year <strong>of</strong> Coverage Benefi- Funds<br />

Vol. Org Registration Clarles sources Staff<br />

MRF 1983 Urban <strong>Mental</strong>ly ill Local Pr<strong>of</strong>: 14<br />

and rural National Admn: 6<br />

International Suppl :12<br />

Vol: 10<br />

MRC 1972 Urban <strong>Mental</strong>ly ill Local Pr<strong>of</strong>: 10<br />

Admn: 4<br />

Suppl:1O<br />

Vol: 15<br />

RMS 1980 Urban <strong>Mental</strong>ly ill Local Pr<strong>of</strong>: 4<br />

National Admn: 8<br />

International Suppl: 5<br />

Vol: 10<br />

15


All these three <strong>organizations</strong> have rendered more than a decade <strong>of</strong> service. This<br />

study would also give a peripheral view <strong>of</strong> all other <strong>voluntary</strong> <strong>organizations</strong> working in this<br />

field apart from those selected for the case study.<br />

Methodology<br />

Case study method has been employed in this study to understand the role <strong>of</strong> the<br />

<strong>voluntary</strong> mganizations. With the help <strong>of</strong> case studies, an attempt has been made to describe<br />

the efforts made by the <strong>voluntary</strong> <strong>organizations</strong> towards the <strong>care</strong> for the mentally ilL<br />

At the initial stage, the key persons <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong> were contacted to<br />

discuss the objectives <strong>of</strong> the study in order to get their help and cooperation. The<br />

organization kindly accepted our request to include them for the study and also suggested<br />

that the researcher be a part <strong>of</strong> them as a volunteer to become familiar with their activities.<br />

An interview guide was prepared to conduct informal interviews with the staff<br />

members, family members and the clients <strong>of</strong> the organization. Apart from them, the funding<br />

agencies, honorary members, committee members and the volunteers were also interviewed.<br />

In-depth interviews were made with the clients <strong>of</strong> the <strong>organizations</strong> to elicit their opinions<br />

on the <strong>voluntary</strong> organization and also to understand their problem <strong>of</strong> mental illness. The<br />

method <strong>of</strong> participant observation was made use <strong>of</strong> whenever necessary without sacrificing<br />

the objective to the extent possible.<br />

The questions posed to different respondents can be classified in the following<br />

manner.<br />

I) Questions posed to the staff <strong>of</strong> the <strong>organizations</strong>.<br />

The information that was expected to be obtained from these interviews were those<br />

about the personal information regarding age, sex, educational status, marital status, the<br />

nature <strong>of</strong> work <strong>of</strong> the personnel interviewed, his/her responsibilities in the <strong>organizations</strong>,<br />

16


0<br />

their experiences with the clients and their families, their personal feelings about working<br />

in a <strong>voluntary</strong> organization, their attitudes on stigma on mental illness, opinions about the<br />

<strong>voluntary</strong> organization that he/she is working in, merits and demerits <strong>of</strong> the organization,<br />

attitudes on staff turnover in the organization, attitudes on <strong>voluntary</strong> efforts in the field <strong>of</strong><br />

mental <strong>health</strong> Cate andllther details. "- - n<br />

2) Questions posed to the administrative staff to get the following details on funding,<br />

expenditure, resource allocation and expenditure prioritisation were:<br />

a) the pr<strong>of</strong>ile <strong>of</strong> the staff members <strong>of</strong> the organization;<br />

b) the funds received by the organization;<br />

c) allocation <strong>of</strong> resources;<br />

d) plan outlay;<br />

e) details about the patients treated over a period <strong>of</strong> 10 years; and<br />

f) Expenditure details on the followingresearch,<br />

infra-structure, medicines, vocational training, payments to staff,<br />

books, transport, maintenance charges, education/awareness material.<br />

3) Questions posed to the clinical staff were<br />

a) selection <strong>of</strong> the patients;<br />

b) follow-up;<br />

c) allotment to the personnel;<br />

d) duration and intensity <strong>of</strong> treatment;<br />

e) therapy <strong>of</strong>fered;<br />

f) rehabilitation services: and<br />

g) custodial <strong>care</strong><br />

4) Questions posed to the public education <strong>of</strong>ficer were the following:<br />

a) pamphlets to educate the masses;<br />

b) audio-video cassettes!;<br />

c) public meetings;<br />

d) camps;<br />

e) rural education programs;<br />

f) target group for education; and<br />

g) Success and failure <strong>of</strong> various programs conducted by the organization<br />

Apart from those stated above the other information on the following were also<br />

collected.<br />

1) origin <strong>of</strong> the organization;<br />

2) growth <strong>of</strong> the organization;<br />

3) objectives <strong>of</strong>the organization;<br />

17


4) persons responsible for starting the organization;<br />

5) different centres <strong>of</strong> the organization if any;<br />

6) details about linkage with other <strong>organizations</strong>;<br />

7) ilnfrastructure facilities;<br />

8) fees collected if any from the clients for service <strong>of</strong>fered; and<br />

9) conditions under which funding agencies granted funds.<br />

Informal interviews were conducted with the family members to assess their attitudes<br />

on the services rendered by the <strong>organizations</strong>.<br />

Review <strong>of</strong> literature<br />

Research in this field could be classified according to the major focus <strong>of</strong> the study<br />

VIZ.,<br />

1. Studies on the general conception <strong>of</strong> mental illness.<br />

2. Studies on the role <strong>of</strong>families.<br />

3. Studies on the institutions <strong>of</strong> mental <strong>health</strong> <strong>care</strong> and the trends.<br />

4. Studies on economic resources and mental <strong>health</strong>.<br />

5. Studies on social factors and mental illness.<br />

6. Studies on the pr<strong>of</strong>iles <strong>of</strong> the mentally ill.<br />

Public conception <strong>of</strong> mental illness plays an important role in identifying mentally<br />

ill persons. It also influences the perception <strong>of</strong> the patient about his illness. Societal<br />

conception by itself has been related to the cause <strong>of</strong> mental illness [Scheff (1966), Neki<br />

(1966), Gove (1970), Dube (1978), G.G. Prabhu et.al., (1984)].<br />

The role <strong>of</strong>the family assumes importance in maintaining the mental <strong>health</strong> <strong>of</strong> the<br />

family members. Healthy inter-personal relationships, cohesion and integrity among family<br />

members and good social network contribute to a <strong>health</strong>y and sound mind <strong>of</strong> the family<br />

members. Further, it has been found that a good perception <strong>of</strong> the problems <strong>of</strong> the mentally<br />

amicted member by other members help in the treatment <strong>of</strong> the mentally ill persons. Thus,<br />

family therapy has been advocated by many researchers such as Freeman and Simmons<br />

(1958), Kanti Prakash et.al., (1973), Caplan (1974), Somen (1985), Seamen, et.al., (\985),<br />

Cohen (1988), Barget (\989), and IlIango (1992).<br />

18


Research findings on the cultural beliefs and practices on the cause and cure <strong>of</strong><br />

mental <strong>health</strong> has led to some re-thinking on fOIlIlulating mental <strong>health</strong> <strong>care</strong>. Culture-specific<br />

<strong>health</strong> <strong>care</strong>, a active involvement <strong>of</strong> the community in <strong>health</strong> <strong>care</strong> programmes have been<br />

found to yield good results [Brajsa (1985), Vijayalakshmi and Ramana (1987), Narayanan<br />

(1990), Kyung (1990), Reyes (1990), Nagasami (1990)]: . .... .~..~ .<br />

There seems to exist a relationship between economy and mental <strong>health</strong>. Social class<br />

IS found to have an inverse relationship with mental hospitalisation. Perception <strong>of</strong><br />

psychological problems differ in different social classes. The lower class groups seem to<br />

have more tolerance towards deviance. [Hardt and Dherwin (1959), Hollingshead and<br />

Redlick (1958), Freeman (1961), Dohrenwend and Chi-Shong (1967)].<br />

Studies on the socio-economic background and bio-social characteristics <strong>of</strong> mentally<br />

-ill reveal that broken homes, step relation, child neglect situations, economic and social<br />

stress, heredity, unemployment, marital status and living environment have all played<br />

different parts in affecting the mental <strong>health</strong> <strong>of</strong> the ill [Prakash et.al (1973), Godbole (1974),<br />

Nandi et.al., (1975)].<br />

Lastly, studies have been conducted on the institutions <strong>of</strong> mental <strong>health</strong> <strong>care</strong><br />

questioning the medical model <strong>of</strong> mental disorder. They have critically examined the<br />

existing concepts <strong>of</strong> mental disorder and institutional structures for dealing with mental<br />

disorder and have recommended a change in handling mental disorder (G<strong>of</strong>fman, 1961).<br />

Further studies focussing on the importance <strong>of</strong> the active participation <strong>of</strong> the<br />

community, <strong>voluntary</strong> agencies and community mental <strong>health</strong> centres have been carried out<br />

in other parts <strong>of</strong> the world [(Robins 1982, Brajsa 1985, Eisenberg 1980)]. This area is yet to<br />

be explored in the Indian context. The following section deals with detailed review <strong>of</strong> the<br />

various studies conducted in the area <strong>of</strong> mental <strong>health</strong>.<br />

19


Studies on the public conception <strong>of</strong> mental Health<br />

These studies may be grouped under two categories, viz., the western and the eastern.<br />

First, we take the mach larger body <strong>of</strong> studies by western scholars. In the west, public<br />

conception regarding mental illness plays a major role in the definition <strong>of</strong> symptoms <strong>of</strong><br />

mental illness and treatment. Whitt and Meile describe three processes in the defmition <strong>of</strong> .<br />

symptoms <strong>of</strong> mental illness, viz., alignment,-in which explanations are formulated,<br />

snowballing,-in which symptoms build on one another until they can no longer be ignored<br />

and magnification, in which there is a tendency for the perceived disruptiveness <strong>of</strong> symptoms<br />

to increase with the decreasing social distance. In the Blackfoot restudy conducted by Whitt<br />

and Meile the respondents were asked to identify if something was wrong with a group <strong>of</strong><br />

mentally ill persons and if so whether they perceived them as mentally ill. By aligning<br />

actions <strong>of</strong> the persons, respondents were asked if their behaviour was problematic if they<br />

were mentally ill. The results indicated that the behaviour described was not always<br />

regarded as problematic. For instance, the respondents considered nothing wrong with the<br />

behaviour <strong>of</strong> the anxiety neurotic and the compulsive phobic. However, most <strong>of</strong> the<br />

Paranoid Schizophrenic and Simple Schizophrenic were considered mentally ill.<br />

Another process identified was that <strong>of</strong> the cumulation <strong>of</strong> symptoms, namely, the<br />

process <strong>of</strong> snowballing, the effect <strong>of</strong> different problematic behaviour. The other process<br />

referred to as magnification refers to the tendency to exaggerate problematic qualities, the<br />

likelihood that the symptoms <strong>of</strong> mental illness would be perceived as a problem as and when<br />

there is an increase in the social distance from the afflicted person. Whitt and Meile<br />

concluded that the ways in which problematic behaviours are understood are not necessarily<br />

derived from shared cultural definition <strong>of</strong> mental illness but the manner in which people<br />

consider behaviour as problematic and the situation under which the symptoms are<br />

problematic (Whitt and Meile, 1985).<br />

Louisville's study on the attitudes <strong>of</strong> western people regarding mental illness and<br />

treatment brought out very siETIificant findings. Firstly, it was found that the public had<br />

come a long way in giving up old beliefs and superstitions about mental illness and in<br />

20


adopting more modem and scientific conception. Secondly there was still a gross failure to<br />

recognise severe mental illness symptoms. Thirdly there was a loss <strong>of</strong> faith in the repressive<br />

and punitive technique especially in dealing with juveniles. Fourthly there was no strong<br />

opposition to the consultation <strong>of</strong> Psychiatrist and he was regarded as the logical person to<br />

handle clearly identifiable-cases <strong>of</strong> mental disorders although there was a stigma. Finally<br />

there seemed to be an opposition from the lawyers against Psychiatry and the modern<br />

methods <strong>of</strong> treatment <strong>of</strong> juvenile delinquency (Woodwards, 1967).<br />

Among the educated there seemed to be more consistent, stable and crystallised<br />

information and lack <strong>of</strong> information existed only in some areas and gross misinformation did<br />

not seem to exist (Nunnally, 1961, Rahmathullah and Satyavathy, 1977).<br />

Attitudes among educated laymen and mental <strong>health</strong> pr<strong>of</strong>essionals showed that the<br />

mental <strong>health</strong> information held by educated laymen were not well crystallised yet there<br />

seemed to be no marked difference from the experts as both had neutral rather than firm<br />

opinions. The less educated as well as older respondents seemed to be misinformed<br />

(Basumallik and Bhattacharya, 1983).<br />

Another study reported similar findings. The educated lay public showed no sign <strong>of</strong><br />

misinformation but some lack <strong>of</strong> information on certain areas. The older people above the<br />

age <strong>of</strong> fifty years looked upon mental illness as a hopeless condition and preferred to<br />

maintain greater social distance from the mentally ilL Women showed better awareness <strong>of</strong><br />

mental illness than men. Higher education and contact with the mentally ill did not seem to<br />

mfluence the respondents' orientation towards mental illness. The educated lay persons<br />

viewed the mentally ill as aggressive, violent and dangerous. Optimism about the outcome<br />

<strong>of</strong> treatment was not high. There was lack <strong>of</strong> awareness about available facilities to treat the<br />

mentally ilL Pervasive defeatism and a tendency to reject the mentally ill existed in the<br />

sample studied (Prabhu el.ai., 1984).<br />

To some extent, the English educated and westernised segment <strong>of</strong> the Indian people<br />

would display considerable similarity with the western "public". Dube's study deals with<br />

21


the Indian respondents. It points out that a great deal <strong>of</strong> misconception, superstition and<br />

ignorance exist in respect <strong>of</strong> mental disease. Stigma is <strong>of</strong>ten attached and mental illness is<br />

viewed as a visitation <strong>of</strong> evil spirits <strong>of</strong> a Goddess <strong>of</strong> curse. There is exaggerated belief in<br />

mystic influences, excessive faith in the powers <strong>of</strong> saints, priests and medicants. Public opt<br />

to go to sorcerers,-faith'heatcrs, -priests and-to places <strong>of</strong> worship for cure. -Many return<br />

disillusioned and resort to mental hospitals (Dube, 1978).<br />

In the Northeastern parts <strong>of</strong> India, all mental illnesses are believed to be the same.<br />

The cause is attributed to shock, sexual starvation, heat and possession. <strong>Mental</strong>ly ill are<br />

viewed as people with no capacity for understanding. The public are highly pessimistic<br />

towards cure and treatment <strong>of</strong> the mentally ill (Verma, 1975).<br />

Malhotra and Wig (1975) investigated the ways in which the public managed an<br />

individual with a deviant behaviour and concluded that psychological possession, social<br />

manipulation, medical intervention, dietary regulation and mental <strong>health</strong> consultation,<br />

mystical and religious modes along with the tendency <strong>of</strong> not seeking any type <strong>of</strong> intervention<br />

constituted ways <strong>of</strong> handling deviant behaviour and this was largely influenced by the socioeconomic<br />

strata <strong>of</strong> the individual with the deviant behaviour and those managing them.<br />

Murthy used vignettes to study the attitudes towards mental disorders in a village in<br />

Punjab and concluded that more serious forms <strong>of</strong> psychiatric disorders (Psychoses) were<br />

correctly recognised and were considered as serious enough and to be taken for medical<br />

intervention. The respondents showed lack <strong>of</strong> sensitivity to recognise the problems <strong>of</strong> the<br />

alcoholic addict and the child with behavioural disorder. They seemed to be aware <strong>of</strong><br />

services available at mental hospital but lacked information about psychiatric facility in a<br />

general hospital setting (Murthy et.a/., 1978).<br />

A study conducted, on the perception <strong>of</strong> mental disorders and reaction to them, the<br />

help seeking behaviour and the perception <strong>of</strong> the role <strong>of</strong> traditional medicine and healers in<br />

caring for the mentally ill, showed that they preferred modem <strong>health</strong> services rather than<br />

traditional healers in the case <strong>of</strong> mental disorders and the three conditions identified by<br />

22


them were epilepsy, acute psychoses and mental retardation. The study suggested that there<br />

were strikingly pessimistic comrnWlity attitudes towards the social consequences <strong>of</strong> mental<br />

disorders (Wig et. aI., 1981).<br />

A study conducted on an Indian pr<strong>of</strong>essional group, on the conceptualisation <strong>of</strong> a<br />

mentally ill person, revealed that there was a high degree <strong>of</strong> simplification andformation <strong>of</strong><br />

rigid notions about the mentally disturbed person. He was either a highly intelligent person<br />

or ignorant. The neurotic person was either a yOWlg woman or an ignorant person who was<br />

Wlloved and lonesome in childhood. Childhood experience and security were stressed as<br />

important aspects to maintain good mental <strong>health</strong>. Awareness regarding centres <strong>of</strong>treatrnent<br />

existed and the mental hospital represented a place <strong>of</strong> hope for them. The respondent group<br />

did not have negative attitudes towards mental illness and also showed willingness to interact<br />

with the mentally ill. Losing interest in the surroWlding and losing self-control were<br />

attributed as the most common symptoms <strong>of</strong> mental illness. The respondent group expressed<br />

optimism regarding the outcome if the patient was treated by a pr<strong>of</strong>essional for a long time<br />

(Satyavathi et. aI.,1971)<br />

The study conducted on the public conception <strong>of</strong> mental <strong>health</strong> foresaw two possible<br />

results that the public was either misinformed in the sense that the average man holds<br />

numerous misconceptions about mental illness or the public was uninformed, i.e., the<br />

average man has little information, correct or incorrect, about many <strong>of</strong> the problems and it<br />

was inconceivable for the researcher that the average man could be well-informed. The<br />

results clearly showed that the average man was not grossly misinformed. They fOWld that<br />

because <strong>of</strong> the anxiety associated with the mental <strong>health</strong> topics and partially because <strong>of</strong> the<br />

lack <strong>of</strong> semantic referents for his terms, the average man did not <strong>system</strong>atically learn about<br />

mental <strong>health</strong> phenomena from daily experience (Scheff, 1974).<br />

Some <strong>of</strong> the causes <strong>of</strong> mental illness mentioned were emotional factors, God's<br />

punishment for sin, excessive thinking and organic factors. Very few attributed mental<br />

illness to poverty, heredity and evil spirits and many felt that there was a relationship<br />

between moon and mental illness (Verghese and Baif, 1974).<br />

23


The study on attitudes <strong>of</strong> the people towards the mentally ill showed that a stigma<br />

clearly existed. There was a strong negative halo associated with the mentally ill. They were<br />

perceived as 'bad', mostly unpredictable and dangerous, dirty and intelligent, insincere,<br />

worthless. Public interest regarding mental <strong>health</strong> topics seemed to be more towards<br />

knowing the solution for the problem and not those that raised anxiety (Scheff; 1974).<br />

<strong>Mental</strong> <strong>health</strong> information did not seem to be influenced by sex nor contact with a<br />

mentally ill person in the family. There seemed to be limited information on mental <strong>health</strong><br />

issues among the public which was not crystallised and to a large extent they were<br />

uninformed and not misinformed (Satyavathi and Dwarke,1972).<br />

Studies on economic resources and mental illness<br />

Attitudes <strong>of</strong> the Indian people regarding mental illness seemed to vary with education<br />

and income. The study by Verghese and Beig revealed that most <strong>of</strong> their respondents <strong>of</strong> all<br />

classes had experience with mental patients, and a few were also aware <strong>of</strong> varying types <strong>of</strong><br />

mental disorders. Causes for mental illness seemed to be understood in varying ways.<br />

Majority showed sympathy towards mental patients and accepted modem methods <strong>of</strong><br />

treatment available in the hospital. Yet some people preferred to seek recourse to witchcraft,<br />

religious centres and ayurvedic <strong>system</strong>s. Some believed marriage would bring improvement<br />

in the condition <strong>of</strong> the mentally ill. Optimism regarding treatment if given early was<br />

expressed by some people and a few were pessimistic they believed that mental illness was<br />

incurable. There seemed to be a positive trend regarding mental illness with higher<br />

education and income. But most were against marital alliance with a family which had a<br />

positive history <strong>of</strong> mental illness (Verghese and Beig, 1974).<br />

24


Studies touching upon 'stigma'<br />

An investigation on the type <strong>of</strong> infonnation that reduced stigmatisation <strong>of</strong><br />

Schizophrenia found that those who had no prior contact with a mentally ill person perceived<br />

mentally ill as dangerous and preferred to be away. With regard to stigma, a knowledge <strong>of</strong><br />

the symptoms associated with the acute phase <strong>of</strong> Schizophrenia created more stigma than the<br />

label <strong>of</strong> Schizophrenia alone. On the other hand, knowledge about the condition <strong>of</strong> after <strong>care</strong><br />

reduced negative judgements. Thus, the findings suggested that stigmatisation might be<br />

reduced by promoting direct contact between the public and individuals afflicted by mental<br />

illness (Penn el. ai., 1994).<br />

One <strong>of</strong> the Western studies on the relationship between social status and attitudes<br />

towards psychological diseases revealed that the Psychiatrist's point <strong>of</strong> view coincided Vvith<br />

the view <strong>of</strong> high status groups. Tolerance <strong>of</strong> deviance seemed to be more among the low<br />

status groups. As for the seriousness about mental illness, paranoid schizophrenia was<br />

considered to be the most dangerous in congruence with the Psychiatrist's point <strong>of</strong> view. The<br />

study concluded that there had been a growing acceptance <strong>of</strong> mental <strong>health</strong> orientation<br />

towards problems <strong>of</strong> deviant behaviour especially in the high status groups. Second, that<br />

there was an apparently greater tolerance <strong>of</strong> deviance in low status groups. The lower status<br />

groups were pre-disposed to greater tolerance <strong>of</strong>the kinds <strong>of</strong> deviance that both they and the<br />

higher status defined as serious mental illness. The appearance <strong>of</strong> greater tolerance <strong>of</strong><br />

deviant behaviour in low status groups was an artefact <strong>of</strong> viewing their attitudes within a<br />

high frame <strong>of</strong> reference. When both lower and upper status groups defined a pattern <strong>of</strong><br />

behaviour as seriously deviant, lower status groups were less tolerant. The relatively tolerant<br />

policy <strong>of</strong> upper status groups appears to be a consequence <strong>of</strong> their generally more liberal<br />

orientation rather than that <strong>of</strong> comprehension <strong>of</strong> the nature <strong>of</strong> psychopathology in psychiatric<br />

tenns (Dohrenwend and Sung, 1987).<br />

Another study on social resources and economic resources and their effect on mental<br />

hospitalisation suggests that lower the economic strata <strong>of</strong>the mentally ill member,-greater<br />

the negative attitude towards psychiatric treatment and delay in seeking psychiatric <strong>care</strong>.<br />

25


When they did get treatment, the disorder was quite severe. Similarly, the unmarncd illd<br />

not revive treatment and the married received prompt treatment and <strong>care</strong>. Thus It was found<br />

that economic resources and social resources in terms <strong>of</strong> being married gave the individual<br />

afflicted by mental illness more scope for treatment and <strong>care</strong> (Gove and Howell, 1974)<br />

Studies on tbe role <strong>of</strong> families<br />

In the West, a high level <strong>of</strong> performance was seen among those with instrumental<br />

role that too in the conjugal families; it was found that the tolerance <strong>of</strong> deviance by<br />

"significant others" in the families determined the success rate <strong>of</strong> the recovery and<br />

rehabilitation <strong>of</strong> the patients. Familial network in which the patient resided and his status<br />

within the network played a very important role and it determined the recovery rate <strong>of</strong> the<br />

patient. The study warns the medical practitioners regarding the release <strong>of</strong>the patient to a<br />

tolerant commwlity setting, where the patient had no instrumental role, thus giving him less<br />

chances <strong>of</strong> recovery leading to regression rather than better functioning. There seems to be<br />

some association between the structure <strong>of</strong> the family and the performance levels <strong>of</strong> the<br />

patients. It was found that the low level <strong>of</strong> performance was present in parental families and<br />

these patients played a role <strong>of</strong>a child in the family and their non-instrumental performance<br />

was well accepted (Freeman and Simmons, 1958).<br />

Family plays a very important role in every aspect <strong>of</strong> life. This is true <strong>of</strong> western<br />

studies and even more so <strong>of</strong> the Indian ones. Family has an obvious significance at the time<br />

<strong>of</strong> identification to rehabilitation stages. A case study <strong>of</strong> a patient experiencing the presence<br />

<strong>of</strong> a mentally ill member revealed a very pathetic picture <strong>of</strong> the trauma undergone by the<br />

family. The family experienced a lot <strong>of</strong> difficulty in finding a residential <strong>care</strong> centre to take<br />

<strong>care</strong> <strong>of</strong> the ward and to help him lead a normal life. Another major difficulty faced by the<br />

family was during the violent phase <strong>of</strong> the member when they were forced to take the help<br />

<strong>of</strong> the police to control their own childlbrother, any other family member afflicted by illness.<br />

The most humiliating act was that the police expected the family to press charges against<br />

the member in order to take action. Very meek parents who could not cope up with this<br />

situation were trapped for long until they found a good place <strong>of</strong> stay for the ward. In the<br />

26


hospitals once again, lhey were left in suspense as the patients were kept behind locked<br />

doors.<br />

Parents sometimes felt a sense <strong>of</strong> guilt that the illness was caused by them. The<br />

presence <strong>of</strong> the ill member at home drove away many relatives and friends because <strong>of</strong> the<br />

strong stigma attached. The biggest worry <strong>of</strong> the parents was the future <strong>of</strong> the ill member<br />

and who would <strong>care</strong> for him after their death (Mittleman, 1985).<br />

Another case study focussed on a family that successfully played a social role in<br />

rehabilitating a schizophrenic member to a normal living. The family under study underwent<br />

all the stress and burden in a brave way and brought the afflicted individual to nonnalliving.<br />

The family members took <strong>care</strong> <strong>of</strong> all the needs <strong>of</strong> their member and <strong>of</strong>ten gave feedback and<br />

guidance to the member. The family gave the member a sense <strong>of</strong> identity and also mastered<br />

effective management <strong>of</strong> emotions and saw to it that the member maintained emotional<br />

stability. The family members gave first priority to love and affection <strong>of</strong> the family members<br />

and indicated status in society to be their last priority. Thus, the family with its close-knit<br />

character helped in a great way to rehabilitate the afflicted member. The author emphasises<br />

the potential that exists within a family unit that needed to be relied upon to restore and<br />

strengthen the individual. The study also points out the need for creating the family<br />

boundaries (Balachandran, 1985).<br />

The study on coping structures <strong>of</strong> families with a mentally ill member was studied<br />

after their first visit to the Psychiatrists to find out the different sources <strong>of</strong> help the families<br />

sought before they met the psychiatrist. A majority <strong>of</strong> them perceived the illness as<br />

possession by evil spirits. Some perceived as some other illness.<br />

Families usually resorted to traditional forms <strong>of</strong> treatments, viz., Talisman, Raksha<br />

Reku, Bhutha Vaidyam. The study revealed the fact that the families experienced difficulty<br />

III the management <strong>of</strong> the illness resulting in the delay in the detection <strong>of</strong> the illness. This<br />

further led to chronicity due to lack <strong>of</strong> medical attention and a delay in recovery and<br />

rehabilitation <strong>of</strong> the patient. The study also showed that the chances <strong>of</strong>the patients being<br />

27


successfully treated and rchabihtated were minimal. The people suffered from lack <strong>of</strong> clarity<br />

in reaching help source and remedy. This prompts for proper mental <strong>health</strong> planning to<br />

facilitate families in early detection and treatment (Vijayalakashmi and Ramanna, 1987).<br />

A study <strong>of</strong> conditions in India suggested that knowledge levels: expectations and<br />

perception <strong>of</strong> parents towards the child with mental handicap were important variables.<br />

There were generally three types <strong>of</strong> families with varying levels <strong>of</strong> knowledge, families with<br />

adequate disposition, those with inadequate disposition and those with near adequate<br />

disposition. The famihes <strong>of</strong> the first type needed courage, support and upgradation <strong>of</strong> skills<br />

and involvement at higher level <strong>of</strong> policy making and the second type required intensive<br />

counselling to remove negative attitude and therapy for emotional adjustment, intensive<br />

training for knowledge building, and the third type required strengthening <strong>of</strong> knowledge and<br />

more guidance. With the intervention <strong>of</strong> a social worker, the knowledge, attitude and<br />

perception <strong>of</strong> the famihes cou~d be changed towards a positive direction resulting in their<br />

better participation in rehabilitation <strong>of</strong> the afflicted member (Narayanan, 1990).<br />

The Indian famihes have a greal potential <strong>of</strong> <strong>care</strong>-giving for the afflicted member.<br />

A study by Dalal notes that warm relationship in the family helped in deahng with a disease<br />

whereas vulnerable families instead <strong>of</strong> <strong>of</strong>fering support needed support for themselves in<br />

crisis situation. He suggests the need to identify families and involve pr<strong>of</strong>essionals to build<br />

realistic expectations about the disease and its ramifications. For any meaningful<br />

intervention, it is important to identify families, which have the resilience and resources to<br />

provide support to sick members and the families, which are vulnerable and need support.<br />

The mode <strong>of</strong> intervention needs to be different for different families. An early identification<br />

<strong>of</strong> vulnerable families would help in planning treatment procedures, secondary prevention<br />

and rehabilitation <strong>of</strong> people with chronic diseases. The study suggests that family<br />

intervention along with the cultural disposition in mind would go a long way in developing<br />

coping skills <strong>of</strong> the families (Dalal, 1985).<br />

In India, family plays a crucial role in <strong>health</strong> <strong>care</strong> and medical intervention. Gore<br />

(1968) and Sinha (1996) note that India has a long history <strong>of</strong> stable family life and structure<br />

28


and has survived the test <strong>of</strong> times. Even during social upheavals the family structure and a<br />

sense <strong>of</strong> collective responsibility have been the sustaining influences. As an institution, the<br />

Indian family has shown remarkable adaptability in meeting the demands <strong>of</strong> a changing<br />

world. Many studies have found that Indian traditional family <strong>system</strong> has a crucial role by<br />

being the primary <strong>care</strong> giver.<br />

Sinha (1996) argues that many <strong>of</strong> the traditional features <strong>of</strong> the Indian family helped<br />

it to support the deviant individuals. He argues that though the joint family <strong>system</strong> is<br />

weakened in most <strong>of</strong> the big cities, it had not yet acquired the typical structure <strong>of</strong> a nuclear<br />

family. Gupta (1978) observed that a new nuclear family did not exist as a separate entity<br />

but existed as a sector <strong>of</strong> the continuous extended family arrangement. According to Gore<br />

(1968), structurally, the extended family was tending to become nuclear, but functionally it<br />

IS maintaining the joint family structure. Many researches have found that joint families<br />

provided a larger support base, which acted as a buffer against the stress <strong>of</strong> disease or<br />

disability (Kakar, 1982, Sethi and Sharma, 1982). Another study pointed out that due to lack<br />

<strong>of</strong> medical facilities in India and inflated cost <strong>of</strong> treatment, most <strong>of</strong> the medical <strong>care</strong> <strong>of</strong>the<br />

chronic patients were taken up by the family members ( Banerjee, 1993).<br />

Family support can be defined as a feeling that a person is <strong>care</strong>d for and valued by<br />

other family members and that he can always fall back upon the family network in difficult<br />

times. According to Dalal (1995), in behavioural terms, family support refers to emotional,<br />

instrumental and financial assistance obtained from one's own family. House and Kahn<br />

(1985) distinguish emotional support from appraisal support such as affirmation and<br />

feedback, infonnational support and instrumental support such as money and effort. Factors<br />

that relate to family support are family size, living arrangement, frequency <strong>of</strong> contact,<br />

closeness <strong>of</strong>relationship, sharing responsibilities communication pattern and so on.<br />

It has been found that the relationship with the family members, particularly with the<br />

spouse accounted for the association between social support and adaptation outcomes.<br />

Support from other sources was inadequate to compensate for the support lost in close<br />

relationships. Family being an important component <strong>of</strong> social support, it directly improved<br />

29


<strong>health</strong> and acted as a buffer against the effects <strong>of</strong> stress (Coyne and Delong (1986), Caplan<br />

(1974). Many studies found that the nuclear type <strong>of</strong> families were prone to psychiatric<br />

disorders more <strong>of</strong>ten than joint families (Bharat, 1991). This has been attributed to<br />

insufficient supportive network in a nuclear family in comparison to ajoint family (Sharma<br />

and Sri vatsava, 1991)<br />

Family support has been found to influence <strong>health</strong> by enhancing coping effectivenes<br />

in India and in the West, by changing the people to appraise the situation under stress.<br />

Emotional and social support protects people from the deleterious effect <strong>of</strong> prolonged<br />

distress. Those who have adequate support can engage in <strong>health</strong> promoting activities for the<br />

family and seek medical help earlier than those with lower support. Support increases one's<br />

feeling <strong>of</strong> security and lowers hislher counter-productive coping strategies, enhanced access<br />

to information through the support group, which motivates the individual to engage in<br />

adaptive behaviour. Feeling <strong>of</strong> obligation to those whom the afflicted individual loves<br />

enhances motivation to adhere to difficult treatment regimen (Gore, (1985), Caplan (1968,<br />

Caplan, Naidu and Tripathi (1986). Support gives an opportunity to the patients to ventilate<br />

anxieties freely, to arrive at a shared understanding <strong>of</strong> the disease and to think <strong>of</strong> alternative<br />

ways <strong>of</strong> coping. Lack <strong>of</strong> social support is found to make one susceptible to<br />

psychopathology. Family support is found to be beneficial only if people have social skills<br />

to mobilise help from those in the network (Dalal (1995), Hirsch (1981)).<br />

Family support also fails in many situations due to various reasons. The family<br />

members may be too involved and over-enthusiastic and optimistic and expect good results<br />

to follow soon. When the expected improvement is not seen in the ill member, the family<br />

members in their anxiety tend to blame the ill member for hislher non-cooperation. This<br />

leads to increased anxiety and stress in the ill member leading to deterioration <strong>of</strong> <strong>health</strong>.<br />

Thus, the family support instead <strong>of</strong> helping the patient results in negative effects. Researches<br />

have also pointed out that family support fails in the case <strong>of</strong> disturbed families. Studies on<br />

women and clinical work revealed that occasionally an outwardly united and stable family<br />

might in reality be disturbed from within. Minuchin (1978) mentions about psychosomatogenic<br />

families that were prone to physical illness due to environmental and<br />

30


psychological stresses. These families show the sign <strong>of</strong> acute stress, anger, depression, and<br />

apathy and bum out while managing chronic family illness. Prolonged stress not only<br />

destroys the role <strong>of</strong> the family as a buffer but also destroys the family itself Vulnerable<br />

families are increasing in number now-a days due to various social and economic factors.<br />

These families instead <strong>of</strong> being support providers are themselves in need <strong>of</strong> support.<br />

According to Dalal (1995) vulnerable families are those that are socially isolated, with no<br />

family network, social stigma on disease and with the feeling <strong>of</strong> shame and guilt. There is<br />

repression rather than expression <strong>of</strong> feelings, no sharing <strong>of</strong> worries and anxieties, conflicting<br />

perception <strong>of</strong> the disease and its causation. They are characterized by a tendency to find a<br />

scapegoat for the crisis, physical and verbal abuse and lack <strong>of</strong> trust, displaced anger,<br />

negativism, over-indulgence or total indifference. They are less adaptable to life changes,<br />

insulated to new information, over protectiveness and exaggerated anxiety. They are mostly<br />

unable to resolve family conflicts, dominated by inaction, no sense <strong>of</strong> personal control, bum<br />

out, high morbidity, family disintegration and withdrawal.<br />

Therefore, there is the need to strengthen the family's role as a <strong>care</strong>giver. Family's<br />

positive involvement is vital in the treatment and rehabilitation <strong>of</strong> the mentally ill. It has<br />

been found that patient rejection, negative attitudes and feelings towards the patient<br />

condition are directly associated with relapse in the patients (Jonhson el. al., 1995).<br />

Many studies have been conducted on the pr<strong>of</strong>iles <strong>of</strong> the mentally ill to understand<br />

the pattern whIch may help III dealing with their illness. The study by Godbole on socioeconomic<br />

backb>Tound <strong>of</strong> neurotic and psychotic patients revealed that most <strong>of</strong> the patients<br />

who belonged to poorer, less educated classes, (class three and class four <strong>of</strong> a five point scale<br />

<strong>of</strong> social class) revealed that heredity was a significant factor in mental illness. The<br />

differences in types and multiplicity <strong>of</strong> stresses corresponded to the severity <strong>of</strong> mental<br />

illness. Broken homes, step relations, prolonged puberty stress, birth order and absence <strong>of</strong><br />

male child were some factors in the family background <strong>of</strong> most <strong>of</strong> the mental patients.<br />

31


The study found that adjustment to social surrounding was good in the primary as<br />

compared to secondary groups, Females showed better adjustment than the males. All the<br />

parents <strong>of</strong> the patients seemed to point to the existence <strong>of</strong> at least one type <strong>of</strong> ress such as<br />

sexual, jobs or relational frustration, childhood calamities, physical, marital problems,<br />

deprivation due to death, confiictsiTrpliIlIaty anduther groups and heredity problems in theiI~<br />

life. Referral for the patients was mostly families followed by self-referral. Most poorer<br />

classes had tried magical cures, quacks and very few, - psychiatric treatment for the illness<br />

(Godbole,1974).<br />

Prakasi et.al., conducted a study on biosocial characteristics <strong>of</strong> the mental patients.<br />

It revealed that mostly the females suffered from schizophrenia or depression and males<br />

from obsession. The age range <strong>of</strong> the patients were 20-39 and most <strong>of</strong> them had been<br />

married. Their educational level was up to pre-school level. Among the males most were<br />

in service and the females housewives. A majority hailed from the urban areas. The period<br />

<strong>of</strong> illness was less that twelve months in most cases. Most <strong>of</strong> them had both or one parent<br />

alive. The study found that the mother role <strong>of</strong> the women demanded time and energy from<br />

her leading to weakening <strong>of</strong> functional relationships especially so for a mentally impaired<br />

woman. Family played a major role in socialising the members. The study suggests a probe<br />

into the biosocial factors <strong>of</strong> the mentally ill to get more inSights (Prakasi et. al., 1973).<br />

A study on case identification and management found that serious psychoses was<br />

about Ipercent in the community and that the psychotic patients were known to the general<br />

public by and large and identification was easy by enquiring the key informants with the use<br />

<strong>of</strong> vib'Tlettes.<br />

It was found that 12 per cent <strong>of</strong> them suffered from illness for more than one year<br />

and 98 per cent <strong>of</strong>them were having disability <strong>of</strong> a moderate to severe degree stressing the<br />

need for public <strong>health</strong> importance. A majority <strong>of</strong>them had had no treatment and the rest had<br />

undergone treatment without psychotropic drugs. Some had undergone crude indigenous<br />

methods <strong>of</strong> treatment. Reasons for seeking help were related to occupational disability. The<br />

treatment was resorted to only after many home visits by the research team. Those engaged<br />

32


in agricultural work dropped out <strong>of</strong> treatment. Only after assurance from the pr<strong>of</strong>essionals,<br />

<strong>of</strong> encumbered support that the treatment was accepted.. Failure to seek treatment was<br />

mostly because they felt the patient was alright or because the doctor was not available or<br />

there was no money.<br />

The authors concluded that there were many with mental illness in the rural areas and<br />

they sutfered silently. They did not take treatment even if it was available due to the social,<br />

cultural and physical limitations. Transportation problems and reluctance <strong>of</strong> villagers to<br />

leave their surroundings demanded that the services be decentralised and there be<br />

involvement <strong>of</strong> basic <strong>health</strong> worker in mental <strong>health</strong> <strong>care</strong>. Since the basic <strong>health</strong> worker<br />

lived in the same place and spoke the same language, he had greater contact with the<br />

villagers and his involvement was highly rewarding for the families and society (Murthy et.<br />

aI., 1986)<br />

A door to door survey conducted showed that the lower socia-economic classes had<br />

a Significantly higher rate <strong>of</strong> mental disorder. The study found that an uprooted community,<br />

which was striving hard to improve its socio-economic status, was more prone to suffer from<br />

stress dependent mental disorders than a native born community <strong>of</strong>the same socio-economic<br />

class. The women in the uprooted community suffered from hysteria and psychosomatic<br />

illnesses, which was not the case with the native-born community women. High levels <strong>of</strong><br />

aspirations <strong>of</strong> the unsettled community placed the people under anxiety and stress resulting<br />

in mental morbidity (Nandi et.al., 1978).<br />

Studies on the institutions <strong>of</strong> mental <strong>health</strong> <strong>care</strong> and the trends<br />

The changes in the social environment are <strong>of</strong>ten related to the changed patterns <strong>of</strong><br />

mental <strong>health</strong>. In the West (UK), a study reveals that there has been a decrease in the<br />

number <strong>of</strong> patients treated in the hospital since the second world war and increase in the<br />

number <strong>of</strong> cases visiting the general hospitals and in the out-patient <strong>care</strong> units. There was<br />

increase in the cases going for community mental <strong>health</strong> <strong>care</strong>. But there was also an increase<br />

in the admission to hospitals for treatment among the aged group. People going to hospital<br />

33


for treatment for minor disorders like depression, neurotic disorders, paranoid acts and<br />

anxiety states had also increased. The authors conclude that psychiatry had become a widely<br />

accepted discipline and complementary services had grown in the name <strong>of</strong> nursery and<br />

outpatient <strong>care</strong>. The author points out the contrasting picture in Japan where there was an<br />

increase in hospitalisation (Hafner, 1982).<br />

Community <strong>care</strong> which gained significantlyin the 70s and 80s in the West is now<br />

gaining importance especially in the case <strong>of</strong> mental illness in the developing countries as<br />

well. The community <strong>care</strong> model proves to be more effective in dealing with the problem.<br />

A study on the working principles <strong>of</strong> a community <strong>care</strong> model conducted in Croatia<br />

included an extended therapeutic community <strong>of</strong> not only the family, but also fellow workers,<br />

friends and neighbours <strong>of</strong> the mentally ill. There was an attempt at co-operation and<br />

participation <strong>of</strong> the community and removal <strong>of</strong> stigma on mental illness. Understanding<br />

mental illness as a problem resulting from mal-adjustments was stressed and focussed on<br />

improving relationships <strong>of</strong> patients with their environment, encouraging harmonious and<br />

congruent communication in the therapeutic community stressing the distribution <strong>of</strong> duties,<br />

rights, sacrifices and limits. This model was successful in removing the stigmatisation <strong>of</strong><br />

mental illness. It was found that due to involvement <strong>of</strong> family and friends there was a<br />

reduction in the absence <strong>of</strong> the patients from work and reduction <strong>of</strong> patients retiring from<br />

work. Resistance did come from families because <strong>of</strong> fear that the patient might be sent back<br />

to them and felt threatened by the illness <strong>of</strong> the patients. In spite <strong>of</strong> these fears, the study<br />

concluded that this type <strong>of</strong> mental <strong>health</strong> <strong>care</strong> proved to be inexpensive, efficient and<br />

effective (Brajsa, 1985).<br />

Community based rehabilitation is a very effective method <strong>of</strong> dealing with the mental<br />

patients especially in a country like India, where there is general Ia.ck <strong>of</strong> expert resources.<br />

A study was conducted on the introduction <strong>of</strong> mental <strong>health</strong> component in an ongoing<br />

Community based rehabilitation (CBR) programme for physical illness. In order to see the<br />

feasibility, a study was conducted in the community regarding the perception and response<br />

<strong>of</strong> the society to mental illness. It found that the community tolerated the erratic behaviour<br />

<strong>of</strong> its mentally ill citizens remarkably well as long as the individual was not aggressive and<br />

34


assaultive. The society seemed to give high premium to the individual's capacity to work<br />

and earn a living. As long as the disabled person was able to provide for his family, any<br />

behaviour abnormality was tolerated. In the case <strong>of</strong> acutely ill member, the community first<br />

called upon the traditional healers and resorted to psychiatric help only if the member did<br />

not respond to natural healing. The study suggests that the role <strong>of</strong> traditional healer must be<br />

recognised and also found that the community rehabilitation worker could very well take on<br />

the load <strong>of</strong>the component <strong>of</strong> mental <strong>health</strong>, given proper training (Nagasami, 1990).<br />

A study conducted on the usefulness <strong>of</strong> self-help groups in LIonduras, a Central<br />

American village, characterised by poverty, unemployment, overcrowding, very poor <strong>health</strong><br />

<strong>care</strong>, where mental <strong>health</strong> awareness programme was implemented revealed that self help<br />

groups formed there brought people together and seemed to improve the mental <strong>health</strong> <strong>of</strong> the<br />

population. The researchers stressed that in a country where very few mental <strong>health</strong><br />

personnel are present, the only possibility <strong>of</strong> change lies in the multiplier effect achieved by<br />

spearheading self-help groups and training local leaders to carry on the work as grass-oot<br />

mental <strong>health</strong> specialists who initiate the project and move on to try and replicate it<br />

elsewhere (Eisenberg, 1980)<br />

The inter-personal relationship among the hospital staff plays an important role in the<br />

treatment <strong>of</strong> the patients. Decision-making in a hospital setting was studied. The study<br />

revealed that decision-making was mostly done by the medical personnel and rarely by the<br />

non-medical staff and the bureaucratic <strong>system</strong> as such proved to be dysfunctional to the<br />

hospital <strong>system</strong>. The incorporation <strong>of</strong> certain bureaucratic features forced hierarchy <strong>of</strong><br />

authonty and prestige into the clinical milieu. This was found to cause intra-personal<br />

stresses and tensions that were undesirable for what was regarded as the optimum condition<br />

for effective psychotherapy. Bureaucratic rigidities brought about dissatisfaction among the<br />

low-echelon personnel. The findings suggest that the influence and participation in the<br />

decision-making process in terms <strong>of</strong> the pr<strong>of</strong>essional group membership improved the<br />

effectiveness <strong>of</strong> the doctors. Ward policy and especially therapeutic practices were crucial<br />

in modifying and accentuating the involvement and effectiveness <strong>of</strong> these pr<strong>of</strong>essional<br />

groups (Lefton et. aI., 1982).<br />

35


The study conducted in 1983 in a South Indian city on mental hospitals shows that<br />

all the beds in hospitals were occupied and the available bed strength was not sufficient. The<br />

variation in bed occupancy in different hospitals was attributed to the variation in weather<br />

and vacation in schools and other institutions stabilising the census level by avoiding undue<br />

bed wastage and undue bed shortage. This seems to be a very difficult and complex task.<br />

The discharged patients were <strong>voluntary</strong> and the criminals accounted for less than 1 per cent.<br />

Most <strong>of</strong> the patients suffered from psychotic problems. Mortality rate among the psychiatric<br />

population was higher than in the given population and there was relatively higher risk <strong>of</strong><br />

death among the institutionalised patients than in the general population. Follow-up patients<br />

were live times more than the ones admitted from amongst the out-patients (Reddy et.al.,<br />

1988).<br />

Other findings were that more than hal f <strong>of</strong> the total expenditure was spent on salaries<br />

and only 7per cent on medicines. Amount spent on development was nil or negligible. The<br />

study concluded that there was encouraging improvement in the treatment procedures. Good<br />

treatment outcome was positively correlated with the higher unit cost, higher rate <strong>of</strong><br />

treatment and more out-patient attendance. Thus the data reveals that the performance <strong>of</strong><br />

mental <strong>health</strong> <strong>care</strong> in India had improved during 1977-1983 (Reddy et. al., 1988).<br />

Studies on social factors and mental illness<br />

Social factors play an important role in acceptance and rejection <strong>of</strong> the mentally ill<br />

person. The study on the social factors regarding rejection <strong>of</strong> the mentally ill by the<br />

members <strong>of</strong> the society reveals that the visibility in the behaviour <strong>of</strong> the mentally ill did not<br />

correspond to the societal expected behaviour rather to the pathology <strong>of</strong> the behaviour from<br />

the mental hygiene point <strong>of</strong> view. Men were least tolerated for deviant behaviour than<br />

women. Women were basically seen as sensitive and emotional and as such behavioural<br />

symptoms were not recognised. Men were expected to cope with illness better than women<br />

and so mental illness in men was more <strong>of</strong>ten rejected than among women.<br />

36


The results <strong>of</strong> the study, emphasises the difficulties inherent in designating the<br />

mentally ill and predicting others reaction to them and stresses that distinction must be made<br />

between those defined as mentally ill by the public and those defined by the psychiatrists.<br />

Prediction <strong>of</strong> others' reaction to the mentally ill should take into account the age, sex, race<br />

and his or her particular circumstances and situation. (Phillips, 1980).<br />

There seems to be a strong relationship between social isolation and mental illness<br />

in old age. The study that probed into this relationship found that there were three groups<br />

among the isolated, alienated, - those belonging to the same socio-economic status, the<br />

defeated, - who attempted social adjustment in early adulthood and returned rather quickly.<br />

Their tendency was to blame themselves for their failure and to feel sorry for themselves.<br />

Another group was the semi-isolated who did not withdraw quite so completely from interpersonal<br />

relationships and who blamed others for their isolation.<br />

The authors summarized, that lifelong extreme isolation was not necessarily<br />

conducive to the development <strong>of</strong> the kinds <strong>of</strong> mental disorder that bring persons to the<br />

psychiatric wards in their old age; lifelong marginal social adjustment might be conducive<br />

to the development <strong>of</strong> such disorders, late developing isolation was linked with mental<br />

disorder. Isolation was found to be <strong>of</strong> greater consequence than a cause <strong>of</strong> mental illness<br />

among the elderly. Physical illness could be the critical antecedent to both isolation and<br />

mental illness (Lowenthal, 198?).<br />

The study on societal reaction as a cause to hospitalisation describes the deviant as<br />

someone who through a set <strong>of</strong> circumstances becomes publicly labelled as a deviant and who<br />

is forced by the societal reaction into a deviant role and rules out that he is suffering from<br />

a intra-personal disorder but instead as someone who through a set <strong>of</strong> circumstances,<br />

becomes publicly labelled a deviant and who is forced by the societal reaction into a deviant<br />

role. The societal reaction perspective viewed the deviant as someone who was victimised.<br />

The evidence shown by Gove indicated that a majority <strong>of</strong> the persons who were victimised<br />

had a serious psychiatric disturbance quite apart from any secondary deviance that might be<br />

associated with the mentally ill role. He adds that the persons in the community did not<br />

37


view someone as mentally ill if he happened to act in a bizarre fashion. On the contrary,<br />

they persisted in denying mental il\ness until the situation became intolerable. Once these<br />

patients came into contact with public <strong>of</strong>ficials, they were screened out, sorted and the less<br />

disturbed persons were not victimised. He suggests that a person's behaviour determined the<br />

expectation <strong>of</strong> others to a much greater degree than the inverse. He suggests that it was only<br />

the patient's behaviour that leads to the mentally ill role. In the long run, the expectation <strong>of</strong><br />

others might play an important role in determining the behaviour <strong>of</strong> important persons and<br />

such expectations should be taken into account in a general theory <strong>of</strong> mental illness. The<br />

societal response theory has been criticised for under-emphasizing the importance <strong>of</strong> the<br />

forces promoting secondary deviance (Gove, 1975).<br />

Thus, the field <strong>of</strong> mental illness has been studied from various perspectives. In spite<br />

<strong>of</strong> this fact much more needs to be explored and understood regarding the aspect <strong>of</strong> mental<br />

illness, the societal response to mental illness, the problem faced by the families <strong>of</strong> the<br />

mentally ill members, the avenues open for the <strong>care</strong> <strong>of</strong> the mentally ill and the trends taking<br />

place in the field <strong>of</strong> the mental <strong>health</strong> <strong>care</strong> <strong>system</strong>. The field <strong>of</strong> mental <strong>health</strong> is a<br />

combination <strong>of</strong> various fields <strong>of</strong> studies, Psychiatry, Psychology, Sociology, Social work,<br />

Social Psychology and so forth. It IS a complex subject matter and needs to be approached<br />

from an inter-disciplinary point <strong>of</strong> view for a better understanding.<br />

38


Chapter Two<br />

MENTAL HEALTH CARE: A HISTORICAL PERSPECTIVE<br />

"The great confinement <strong>of</strong> the insane" as Michael Foucault aptly calls it, began in the<br />

17th century. "A date can serve as a landmark, the decree that founded in Paris, the Hospital<br />

General"(Foucault, 1967).<br />

Foucault describes the birth <strong>of</strong> the mental hospital, thus: 'The classical experience<br />

<strong>of</strong> madness is born. The great threat that clawed on the horizon <strong>of</strong> the 15th century subsides.<br />

The disturbing power that inhabit Bosch's painting have lost their violence. Forms remain,<br />

now transparent and docile, forming a cortege, the inevitable procession <strong>of</strong> reason. Madness<br />

has ceased to be -at the limits <strong>of</strong> the world <strong>of</strong> man and death-an eschatological figure; the<br />

darkness has dlspersed on which the eyes <strong>of</strong> madness were fixed and out <strong>of</strong> which the forms<br />

<strong>of</strong> the impossible were bom Oblivious falls upon the world to a point beyond, on its strange<br />

voyage; it will never again be that fugitive and absolute limit. Behold it moored now, made<br />

fast among things and men. Retained and maintained. No longer a ship but a<br />

hospital'.(Foucault, 1967).<br />

In the 17th century, to be considered mad, it was enough to be abandoned, destitute,<br />

poor, unwanted by parents or society. The individual was committed to the hospital not<br />

primarily to receive <strong>care</strong> but rather to ptotect society and to prevent the disintegration <strong>of</strong> its<br />

institutions. All abnormal behaviour was seen as an act <strong>of</strong> devil and 'against God'.<br />

Hallucmations were seen as communications with the Satan and Christianity approved<br />

specific sanctions to kill them. The descriptions <strong>of</strong> 'witches' were mentally ill<br />

persons.(Alexander and Salanick, 1967, Deutsch,1937).<br />

In the next phase, all abnormal behaviour was considered criminal'. Those with<br />

socially unacceptable behaviour were put in jails along with criminals. There were no<br />

attempts made to view their behaviour from a different perspective.<br />

39


Until the 17th century, the method <strong>of</strong> dealing with lunatics was to isolate them from<br />

the community as had been done in the case <strong>of</strong> lepers and treat them as not quite human<br />

since they were thought to be subject to forces outside human control. Lunatics were<br />

considered as criminals. Wootton points out that a complete reversal has taken place as now<br />

the criminals are regarded as lunatics or at least mentally disturbed (cited in Bastide, 1972).<br />

Lunacy was attributed to supernatural causes such as the Gods, the devil and the<br />

moon. The word lunatic (from Luna, the moon) came into usage in the 15th century and<br />

referred to persons whose bizarre behaviour was thought to be influenced by changes in the<br />

moon. Lunacy was seen as a critical societal phenomenon because <strong>of</strong> its potential for<br />

disrupting the social order and the responsibility for lunatics belonged to both religious<br />

persons and royalty. Bizarre behaviour was thought to be evil and disobedient, and lunatics<br />

were thought to be wrong doers in league with the devil. The public attitude was one <strong>of</strong>fear<br />

and disgust.<br />

Foucault (1967) traces the history <strong>of</strong> insanity thus: In the medieval ages, if a person<br />

in this state were considered to be possessed in some holy or demonic way, he or she was<br />

put on the ship <strong>of</strong> fools and sent down river for some other community to put on their <strong>health</strong><br />

and <strong>care</strong> budget. Such was the intolerance and extrusion that was in practice. In the 18th<br />

century, there was a theory that the insane have to be regressed, not as child but a beast and<br />

therefore left in cages with straw on the floor and also use them for public entertainment.<br />

Later, the insane were regarded as perverse and were manacled<br />

During the 17th and 18th centuries, most patients were treated and housed in an<br />

inhuman way and this changed. Known as the moral treatment, this change consisted <strong>of</strong><br />

social and rhetorical refonns rather than innovation in medical treatment or alterations <strong>of</strong> the<br />

basic social dynamics and functions <strong>of</strong> the asylum.<br />

The demonological conception <strong>of</strong> the causes <strong>of</strong> human behaviour gave way to more<br />

rational ones. In the 'age <strong>of</strong> reason', disputes revolved around whether man's behaviour was<br />

to be understood on the basis <strong>of</strong> biology or environmental experience. Foucault observes<br />

40


that in the renaissance, madness was present everywhere and mingled with every experience<br />

by its images or its dangers. During the classical period, madness was shown, but on the<br />

other side <strong>of</strong> the bars; if present, it was at a distance, under the eyes <strong>of</strong> reason that no longer<br />

felt any relation to it and that would not compromise itself by too close a resemblance.<br />

Madness had become a thing to look at,-no longer a monster inside oneself, but an animal<br />

with strange mechanisms, a bestiality from whIch man had long since been suppressed.<br />

(Foucault, 1967)<br />

The word insane (in=not, sane=<strong>health</strong>) came into use and accompanied the<br />

assumption that insanity was an illness or disease <strong>of</strong> the mind. With the rise <strong>of</strong> the medical<br />

pr<strong>of</strong>ession, insanity became part <strong>of</strong> the medical domain. The demonological model was<br />

under challenge; the medical (disease) model prevailed as the preferred <strong>system</strong> for<br />

explaining and clarifying the behaviour <strong>of</strong> lunatics.<br />

In the 19th century, the focus shifted from' evil'-' ill, in a way people are not 'bad' but<br />

. mad' or 'insane'. The healing hand <strong>of</strong> humanism replaced the rigours <strong>of</strong> religious<br />

punishment. The ill were looked after in more humane surroundings at that time called<br />

'asylums,. A statement in the early 19th century reflects this humane approach .<br />

. Moral treatment consists in removmg patients from their residence to some proper<br />

asylums and for this purpose a calm retreat in the country is preferred, for it is found that<br />

continuance at home aggravates the di~ease as the improper association <strong>of</strong> ideas cannot be<br />

destroyed ... hospitals are the only places where insane persons can be at once humanely and<br />

properly controlled (Deutsch, 1937).<br />

These institutions, though a significant advancement, were also known to be place<br />

<strong>of</strong> human exploitation and abuse. Clifford Beers (1921), an inmate <strong>of</strong> asylums for many<br />

years, through his work 'The mind that found itself raised the consciousness <strong>of</strong> the<br />

community and helped to promote better <strong>care</strong> for the mentally ill. As a reaction to this, the<br />

mental-hygiene movement was started, a major progression from illness to wellness. This<br />

public awareness also started the preventive psychiatry movement.<br />

41


G<strong>of</strong>fman treats asylums as total institutions and describes thus: 'Total institutions<br />

are social hybrids, part residential community, part formal organization and therein lies the<br />

special sociological interest. These establishments are the forcing houses for changing<br />

persons in our society. Each is a natural experiment typically harsh, on what can be done<br />

to the self' (G<strong>of</strong>fman; 1961).<br />

Sigmund Freud's Psychoanalysis marked a great tum in the field <strong>of</strong> mental <strong>health</strong> in<br />

the 20th century. He presented behaviour and mental functions as understandable and gave<br />

new conceptions <strong>of</strong> infancy, adolescence and characterology, thus evolving a <strong>system</strong> <strong>of</strong><br />

treatment where the origins <strong>of</strong> the disease could be traced. This brought a shift in the focus<br />

from 'illness' to 'wellness' (Murthy, 1993).<br />

Psychoanalysis as theory and treatment method witnessed the shift <strong>of</strong> mental illness<br />

from institutions to outpatients and homes. Later half <strong>of</strong> the 20th century, witnessed growing<br />

concerns about' individualism' as a goal for individuals and communities. The mental <strong>health</strong><br />

pr<strong>of</strong>ession had to overcome the handicaps <strong>of</strong> 'odium theologicum' and 'odIUm sexicum'. The<br />

study <strong>of</strong> factors affecting the human brain from' above' was replaced by those from' within!<br />

and later' without'. The highly subjective and internalised approach <strong>of</strong> psychoanalysis was<br />

replaced by the behaviouristic school <strong>of</strong>thought <strong>of</strong> Skinner (1953) and Watson (1920) which<br />

stresses the role <strong>of</strong> environment as a detenninant <strong>of</strong> behaviour and maintains that observable<br />

behaviour was the essential basis for psychological investigation (Watson and Rayner, 1920,<br />

Skinner, 1953).<br />

The intrapsychic theories <strong>of</strong> psychoanalysis were replaced by the learning theories<br />

<strong>of</strong> Skinner and Watson, a mixture <strong>of</strong> biological and social theories. The outcome was<br />

'behavioural therapy' as a method <strong>of</strong> treatment with specific applicability to a variety <strong>of</strong><br />

human emotional problems (Skinner, 1953).<br />

Along with these developments in the field <strong>of</strong> mental <strong>health</strong> anti-psychiatry<br />

movement started in the west. Clare traces it as follows:<br />

42


'The anti-psychiatry movement has sprung up, the main principle <strong>of</strong> which appears<br />

to be that mental illness is a reductive smear that observes and defiles the despairing cries<br />

<strong>of</strong> the downtrodden and exploited against an alienating and dehumanised society.<br />

Psychiatric intervention is portrayed as a violent assault perpetuated under the guise <strong>of</strong><br />

treatmentam:!-the-psychiatristis-deemed1:o be an agent<strong>of</strong> the dominant politicat order and<br />

an agent <strong>of</strong> repression and <strong>of</strong> power. Anti-psychiatrists demand the abolition <strong>of</strong> existing<br />

psychiatric institutions and insist that psychiatrists either acknowledge their true role as<br />

society's police or become agents <strong>of</strong> personal and social change' (Clare, 1976).<br />

In the last twenty years, there has been a shift to the social origins <strong>of</strong> mental <strong>health</strong><br />

and mental illness. The dominant theories are <strong>of</strong> life stress, social support, social network<br />

and family life. Murthy (1993) remarks that it is interesting to note that there is much<br />

discomfort to view the social roots <strong>of</strong> mental <strong>health</strong> and mental illness, probably due to the<br />

high premium placed by western thought on individual independence as the only desired<br />

goal for all ..<br />

The association <strong>of</strong> life stress, events and illness onset has been a part <strong>of</strong> folklore.<br />

Recent studies indicate that these observations may be another indication <strong>of</strong> folklore<br />

becoming folk wisdom (Holmes and Rahe, 1967). Many studies have shown that<br />

bereavement causes life stress resulting in onset <strong>of</strong> diseases. There is accumulating evidence<br />

about charged endocrinological and immunological functions during bereavement pointing<br />

to the possible mechanisms involved in the vulnerable status (Hall, 1990).<br />

A related aspect to the theory <strong>of</strong> life stress is the social support and social network.<br />

Durkheim, more than a century ago, recognised the importance in understanding the risk <strong>of</strong><br />

suicide. He maintained that, 'There is a preservation <strong>of</strong> individuals both men and women<br />

by marriage, but after a certain age, it is less due to marriage than to children. Childless<br />

women do not enjoy the co-efficient <strong>of</strong> preservation but on the contrary suffer from coefficient<br />

<strong>of</strong> aggravation' (Aron, 1980). The recognition <strong>of</strong>the importance <strong>of</strong> social support<br />

and social network by Durkheim led to many studies on the role <strong>of</strong> social networks.<br />

43


Many studies have been made on social ties, family interactions and social supports<br />

(Mechanic and Aiken, 1986, Brown and Birley, 1972). Results <strong>of</strong> these studies have shown<br />

that high mortality occurs among those with fewer social ties and recurrence and chronicity<br />

<strong>of</strong> illness occurred due to non-availability <strong>of</strong> social support.<br />

The trend is also towards biological explanation <strong>of</strong> altered states Qfmind in the case<br />

<strong>of</strong> trance and possession and also the psychological states following disaster experience.<br />

Trance and possessions are believed to be culturally defined expectations and learned<br />

techlllques for narrowing and focussing attention as in hypnosis .... this special state <strong>of</strong><br />

organization <strong>of</strong> brain may underlie a wide spectrum <strong>of</strong> trance states. It is believed that if<br />

mdividuals are trained under special circumstances, they can function at different levels <strong>of</strong><br />

the brain organization as in the case <strong>of</strong> those individuals in trance. The field <strong>of</strong> mental <strong>health</strong><br />

has thus travelled a long way and is exploring into new fields <strong>of</strong> thought in order to<br />

understand the human behaviour.<br />

Evolution <strong>of</strong> the Indian concept <strong>of</strong> <strong>Mental</strong> Health<br />

In India, mental illness has been viewed popularly as an inherited idiosyncrasy or a<br />

family· curse', or a life-long affiliation with near supernatural origins and consequently, in<br />

this view the treatment falls beyond the realm <strong>of</strong> severe rationality. In such a context, the<br />

path from mental illness to mental <strong>health</strong> has been long, arduous and conflict ridden. (Mane<br />

and Gandevia, 1993).<br />

In India, the approach to <strong>health</strong> encompasses mental hannony, which is <strong>of</strong>ten equated<br />

with spiritual hannony. This view is used to advantage in the promotion <strong>of</strong> mental <strong>health</strong><br />

in India. This is relatively free from the western obsession <strong>of</strong> institutionalisation and<br />

therefore, more in line with the current global thinking on deinstitutionalisation and positive<br />

<strong>health</strong> promotion. The view is more psycho-social than bio- medical which is a positive sign<br />

<strong>of</strong> being more holistic.<br />

44


Wig summarises the Indian concept <strong>of</strong> mental <strong>health</strong> as follows: 'Indian culture has<br />

always attached great significance to spiritual life, The tenn spintual IS <strong>of</strong> course not<br />

identical with the tenn mental, but both recognise the value <strong>of</strong> inner mental life and<br />

experiences. In India, the tenn <strong>health</strong> is usually not confined to physical state. In any Indian<br />

definition <strong>of</strong> <strong>health</strong>, there is always reference to mental hannony and potential for spiritual<br />

growth. The present day tenn mental <strong>health</strong> is European in concept and origin. There is no<br />

exact equivalent <strong>of</strong> the tenn mind in Indian languages because the differentiation <strong>of</strong> 'body'<br />

and 'mind' has never been important in Indian philosophy and it has been in modem<br />

European thought. Thus, when we speak <strong>of</strong>' mental <strong>health</strong>' especially positive mental <strong>health</strong>,<br />

not merely the absence <strong>of</strong> mental disorder, the average Indian will always perceive in it an<br />

underlying reference to spiritual development. Understood in this way, mental <strong>health</strong> is very<br />

important for him, is something to which he attaches great value; he is willing to spend time<br />

and resources in pursuit <strong>of</strong> it' (Wig, \990).<br />

Indian philosophy attaches great importance to spiritual dimensions <strong>of</strong> life. There<br />

are repeated references in our religious texts on self-realisation, detachment <strong>of</strong> material<br />

things and search for spiritual meaning <strong>of</strong> life. Four themes can be identified in the area <strong>of</strong><br />

Indian philosophy. Firstly, there is a rich knowledge available in the classical texts <strong>of</strong>India.<br />

The ancient sages categorically stated that in the ultimate analysis, selfishness on the<br />

psychological side and starvation on the physical side are responsible for disorganization in<br />

the individual and society alike. This fact stands true till today and fonns the pivot around<br />

which psychiatry revolves. Conception <strong>of</strong> levels in the nervous <strong>system</strong>, their integration in<br />

<strong>health</strong> and disorganization in disease was in a very general manner, anticipated in the<br />

SANKYA <strong>system</strong>. Problem <strong>of</strong> consciousness is dealt with in a penetratingly analytical<br />

manner in Mandukya, Chandodya and Prasna upanishads. The Yoga Vaishastha, Sankara's<br />

Vivekachudamani, the commentaries on various Darsanas by Kumarila Bhatta and Appayya<br />

Dikshathar's and Buddhists' works are rich store houses <strong>of</strong> learning about psychological<br />

medicine (Murthy, 1993).<br />

Secondly, there has been a focus on the cross-cultural considerations <strong>of</strong> dynamics in<br />

tenns <strong>of</strong> personality functioning. Neki (1977) refers to the limitations <strong>of</strong> using dependence-<br />

45


independence as developmental bipolarity and suggests the value <strong>of</strong> dependence as a<br />

concept. He points out that though independence may be prized as a socio-political ideal,<br />

as goal <strong>of</strong> individual development, it is not much cherished. He rightly remarks that the<br />

Indian culture tends to foster dependence right from birth. He also refers to the implication<br />

for therapy, especially, psychotherapy (Neki, 1977). Others have also examined the<br />

prevalence <strong>of</strong> mental disorders among different social groups with focus on the role <strong>of</strong> social<br />

stress and effects <strong>of</strong> modernisation (Chakraborthy 1990).<br />

Thirdly, there has been a stress on the use <strong>of</strong> traditional concepts for therapy. The<br />

most significant contribution has been the work <strong>of</strong> Vahia and others using psychophysiological<br />

therapy based on the concept <strong>of</strong> Patanjali for the treatment <strong>of</strong> neurotic and<br />

psychosomatic disorders. The results have indicated that Patanjali <strong>system</strong> is useful in<br />

treating psychoneurosis and bronchial asthma. Similarly, concepts <strong>of</strong> the Gila are also used<br />

in psychotherapy. Yoga and meditation have also been used successfully in therapy<br />

(Vahia,et.al.. 1973).<br />

Fourthly, there has been a focus on the role <strong>of</strong>the family in therapy (Murthy, 1993).<br />

In international literature, the initial phase saw the family as the causative factor for the<br />

illness. The second phase focussed on the interaction <strong>of</strong> the patients and family. The current<br />

phase takes into consideration the 'trauma' <strong>of</strong>living with a chronically mentally ill member.<br />

In the Indian context, family has always been treated as the primary <strong>care</strong> giver for the<br />

mentally ill. But with the changing role in the structure and function <strong>of</strong> the family, there has<br />

been a stress on the need for active consideration <strong>of</strong> mechanisms and measures <strong>of</strong> keeping<br />

the family as an important source in mental <strong>health</strong> <strong>care</strong> (Bhatti, 1980 and Murthy, 1991)<br />

Kakar brings out a corollary between Yoga and Freud's psychoanalysis. Freud in<br />

1897 suggested an intrinsic antagonism between man's individual demands and the social<br />

restrictions <strong>of</strong> the culture. Kakar describes yoga as consisting <strong>of</strong> three phases, preparation,<br />

integration and meditation. First step is ethical and physiological phase, the second phase<br />

IS the first step in transformation <strong>of</strong> the chitta and third phase is called the samyama. These<br />

three phases involve eight steps, viz., yama. niyama. asana. pranayama, pratyahara.<br />

46


dharana. dhyana and samadhi. The ethical preparation consists <strong>of</strong> the first two steps yama<br />

and niyama, rules for every day living without which one cannot become a yogi: nonviolence,<br />

truthfulness, non-stealing, continence (control <strong>of</strong> one's feelings, especially in sexual<br />

matters), cleanliness, austerity, study and so forth. The Hindu mythology prescribes "Each<br />

man must begin where he stands, must learn how to control the things that are neart:~1 to him<br />

The body is very near to us, nearer than anything In the external world" (cited in Kakar,<br />

1982).<br />

He further makes a comparison between the Hindu and psycho-analytic view <strong>of</strong><br />

mental life. He observes that the fundamental concept <strong>of</strong> the Hindu psyche is the' chitta',<br />

'even nearer than the body'. 'Chitta is very similar to the id <strong>of</strong> the psycho-analytic model,<br />

the part <strong>of</strong>the psychic organization which represents the elemental, instinctual drives <strong>of</strong> the<br />

organism. Chitta is used in the Hindu mythology in a dynamic sense to charecterise all<br />

unconscious mental processes. Thus, if Freud described the Id as chaos, cauldron full <strong>of</strong><br />

seething excitation, the concept <strong>of</strong> the chitta can be evoked through similar imagery. Some<br />

Hindu texts draw the metaphor <strong>of</strong> a monkey, restless by nature, who drinks wine and<br />

becomes even more restless. As if this were not enough, he is stung by a scorpion and (to<br />

complete the image <strong>of</strong> restlessness) a demon enters him. Chitta, in its nonnal state is<br />

compared to this monkey, drunk with wine, smarting under the scorpion bite and possessed<br />

by a demon. In the course <strong>of</strong> everyday life, chitta is bound up with the bodily organs; it<br />

exists in the scattered fonn <strong>of</strong> outwardly directed activity and manifests itself in the<br />

individual's experiences <strong>of</strong> pleasure and pain as well as in the' darkening' fonn manifested<br />

in human aggression (Kakar, 1982).<br />

According to Freud, 'The power <strong>of</strong> the id expresses the true purpose <strong>of</strong> the individual<br />

organism's life and the development <strong>of</strong> the individual seems to us to be a product <strong>of</strong> the<br />

interaction between two urges, the urge towards happiness which Me usually called 'egoistic'<br />

and the urge towards union with others in the community which we call' altruistic" (cited<br />

in Kakar, 1982).<br />

47


In the Hindu relIgion, the chitta is also compared to a lake <strong>of</strong> muddy water, which<br />

sends up waves, thus hides the bottom, the']' which is visible only ifthe water is calm and<br />

the ripples have subsided. These ripples or waves are the mental functions,- perceptions,<br />

inierence, delusions, dream, sleep and memory- all <strong>of</strong> which have their ultimate source in<br />

the chitta.<br />

Vivekananda describes thus: 'For instance, you hear a word. A word is like a stone<br />

thrown into the lake <strong>of</strong> chitta. It causes a ripple and that ripple rouses a series <strong>of</strong> ripples.<br />

This is memory. So it is in sleep when the peculiar kind <strong>of</strong> ripple called sleep causes a ripple<br />

and that ripple rouses a series <strong>of</strong> ripples, - this is memory. So it is in sleep when the peculiar<br />

kind <strong>of</strong> ripple called sleep throws the chitta into a ripple <strong>of</strong> memory, it is called a dream.<br />

Dreaming is another form <strong>of</strong> the ripple which in the working state is called the memory'<br />

(cited in Kakar, 1982).<br />

Research has been done by many scholars to trace the evidence <strong>of</strong> mental illness and<br />

its treatment in the ancient Indian <strong>system</strong>s <strong>of</strong> medicine. Varma found that symptoms <strong>of</strong><br />

'vatonmada' was roughly corresponding to those <strong>of</strong> Schizophrenia and Pitonmada and<br />

Kaphonmada corresponded to Mania and depression respectively (Varma, \965). Dube<br />

believed that valonmada, pithonmada and kaphonmada corresponded to Mania, catatonia<br />

and Hebephrenia respectively (Dube, 1975).<br />

The term 'unmada', denoting insanity first appears in the metrical passages <strong>of</strong><br />

Atharva veda believed to be written around 1500 B.C. By the period <strong>of</strong> the Samhitas, a<br />

thousand years later, the word unmada underwent a change and came to be used as Unmada<br />

(Ramu et.a!., 1988). Differentiation <strong>of</strong> Unmada into clinical sub varieties occurred at the<br />

same time. No texts are known to have been written exclusively devoted to mental illnesses<br />

and their treatment. Psychiatry, considered as one <strong>of</strong> the eight appendages <strong>of</strong> Ayurveda is<br />

covered under Unmada and Bhootha Vijnaneeyam in most <strong>of</strong> the general works where a<br />

portion <strong>of</strong> the text deals with specialty.<br />

48


In the vedic age ranging from 1500 B.C. to about 800 B.C, symptoms <strong>of</strong> many<br />

diseases were described and insanity, unmada was distinguished as an ailment affecting the<br />

mind. Unmadas, according to them were <strong>of</strong> two kinds- one produced as a result <strong>of</strong><br />

consuming unwholesome food and the other as a result <strong>of</strong> one's wrong doings. Medicines<br />

were indicated for the former and atharvas (incantations for the latter (Namboodiri,1989). -<br />

Atharva veda deals with Bhootha vidya in great detail and prescribes remedies in the form<br />

<strong>of</strong> drugs, magical spells and charms. Four different types <strong>of</strong> treatment are mentioned.<br />

Atharvas (spells and incantations, Angirasah (herbs and diet), Daivika (invocations) and<br />

oshadhis (compound medical preparations). These have been compared to present day's<br />

psychotherapy, naturotherapy and drug therapy. Curse as a cause <strong>of</strong> insanity is described in<br />

Aithavya Brahmana. Invocations to God to cure insanity are seen in Thaitreya Samhitha.<br />

The vedic period foresaw two doctrines which were later to be cardinal theories <strong>of</strong><br />

Ayurveda. These are the Pancha Bhutha doctrine and the Tridosha theory. The hymns say<br />

that the body is made <strong>of</strong> five elements constituting the universe at large; to which they<br />

ultimately return after the body perishes. The tridosha theory postulated that <strong>health</strong> is the<br />

result <strong>of</strong> an equilibrium state <strong>of</strong> the three Doshas (humors). The specific relevance <strong>of</strong> these<br />

two theories in Psychiatry is that the Panchabhutha theory is also a theory <strong>of</strong> personality<br />

explaining its origin and nature and also accounting for the individual differences. The<br />

Tridosha theory attributes a physical basis for mental illness, which maintains that, the three<br />

humors, vatha, pitha and kapha, translated generally as the wind, bile and phlegm are<br />

responsible for both <strong>health</strong> and disease in man (Namboodiri, 1986).<br />

In the Upanishadic period which followed the vedic age, the spiritual self became the<br />

center <strong>of</strong> study. During this period ranging from 800 B.C to 600 B.C. the seers <strong>of</strong> the<br />

upanishads dug up further deep into the inner consciousness <strong>of</strong> man, mind and its faculties,<br />

the different states <strong>of</strong> consciousness and the nature <strong>of</strong> self (Namboodiri, 1986).<br />

Ayurveda was divided into eight specialties and Psychiatry rose to the status <strong>of</strong> a<br />

specialised discipline in the Samhitha period. Charaka suggested that only an expert in the<br />

field <strong>of</strong> mental illnesses (Manasa Roga Bheshaja Vetti) should treat the mentally afflicted<br />

49


(Ramu, et.al., 1985). Rao (1978) observed that there was no Sanskrit equivalent for the<br />

terms 'Psychology' and 'Psychiatry' in Ayurveda Bhootha vidya and Grahabadha (the study<br />

<strong>of</strong> supernatural influence in the causation <strong>of</strong> illness) were merged with psychiatry as<br />

possession by these supernatural elements were considered as one etiological factor. The<br />

terms Grahaand Bhutha (literally meaning the demons and spirits which by possession<br />

causes disease) which indicate that the man is "somehow or other" afflicted with an illness<br />

and that "something or other" has happened to the individual and need not predict a<br />

supernatural event (Rao, 1978).<br />

Ayurveda recognises personality types and correlates them with predisposition to<br />

specific psychiatric syndromes. Depending on the dominance <strong>of</strong> three 'Gunas', three main<br />

types <strong>of</strong> personality are distinguished with several sub types under each: The sattwika type<br />

characterised by high moral standards, truthfulness and lack <strong>of</strong> conceit, the Rajasa type with<br />

five sub types, who are passionate, impulsive and ambitious and the Tamasa type with four<br />

sub types who are ignorant, lazy and fickle minded. Based on the preponderance <strong>of</strong> one <strong>of</strong><br />

the three congenital factors in the body (humors) there was another way <strong>of</strong> classifitation <strong>of</strong><br />

personality which anticipated the Kretschmer's body types-the 'Vatic Prakrifhi'<br />

(preponderance to vata) resembling the aesthetic constitution. The 'Paithic' and 'Sleshmik<br />

Prakrithis' resemble the athletic and pyknic types (Varma, 1953).<br />

Namboodiri (1986) observes that in Ayurveda, illnesses were divided into two kindsphysical<br />

and mental. Psychoses were called unmadas and were described as<br />

llbhayadhishtidha Vyadhi (originating from both body and mind). They occur as a result<br />

<strong>of</strong> vitiation <strong>of</strong> Tridoshas but are present with prominent mental disturbances. They are<br />

relieved only when the Tridosha balance is restored. Equivalent to the three "Physical"<br />

humors, Charaka postulated two mental humors (manasadosha: Rajas and Tamas).<br />

Exogenous factors affect the manasa doshas initially and provoke them which in tum upsets<br />

the Tridoshas and cause symptoms (Namboodri, 1986).<br />

Charaka defmed unmada as an unsettled state <strong>of</strong> mind, understanding, consciousness,<br />

perception, memory, desire, character, behaviour and conduct (Ramu el.al., 1988). Unmada<br />

so


is divided into Nija (endogenous) and Agathuka (exogenous) varieties depending on whether<br />

the etiological factors are intrinsic (the three humors) or extrinsic (exogenous factors). Thus<br />

the Nija Unmadas are Vathonmada, Pithonmada and Kaphonmada and a fourth where all<br />

humours are simultaneously provoked.<br />

Thirty seven etiological factors were listed as endogenous and fourteen as exogenous<br />

in one study (Mahal et.al., 1976). They vary from consumption <strong>of</strong> unwholesome food to<br />

volitional transgression (Prajnapradha) and from physical traumata to supernatural<br />

possession. It was believed that people who wereare more prone to illness were those who<br />

were cowardly and faint-hearted; who violate the principles <strong>of</strong> diet and general code <strong>of</strong><br />

ethics, etc. It was believed that the vitiated humours ascend up and obstruct the conveyors<br />

<strong>of</strong> manas (manovaha srothas) affecting the brain and disrupting its functions.<br />

The symptoms identified are multiform and include emptiness <strong>of</strong> head, fluttering <strong>of</strong><br />

eyelids, ringing in the ears, hurried breathing, siallorhoea, diminished appetite, indigestion,<br />

heart-bum and lassitude. The affected person IS anxiety stricken, bewildered and dejected,<br />

becomes preoccupied with in-auspicious thoughts. He has frightening dreams and visions<br />

<strong>of</strong> being crushed under the wheels <strong>of</strong> an oil press, <strong>of</strong> being suffocated by windstorms or <strong>of</strong><br />

being sucked into whirlpools <strong>of</strong> filthy water. Poor prognosis resulted in vitiation <strong>of</strong> all<br />

humours in causing the illness (sanmpatha), regression to the stage <strong>of</strong> a wandering lunatic<br />

when the patient is chased by urchins, discarding <strong>of</strong> clothes and chronicity <strong>of</strong> illness<br />

(Namboodri,I986)<br />

Ayurveda also <strong>of</strong>fers various therapies for the cure <strong>of</strong> illnesses. Therapies are<br />

directed to bring a state <strong>of</strong> equilibrium, 'doshasamyam' as it is believed that humoral<br />

disequilibrium, 'doshavG/shamyam'is the cause <strong>of</strong> the illness. Medicaments, therapeutic<br />

procedures, drugless method <strong>of</strong> treatment, (AdrG/vyachikitsa) like psychotherapy<br />

(.~twavaJaya), counselling, recreational therapy, prayers to propitiate a God etc. are used<br />

singularly or in judicious combination. Other therapies for radical correction <strong>of</strong> an upset<br />

humor are vasthi (medicated retention enemas), virecluma (purgation), Vamana (purification<br />

by giving emetics), Nmya (instillation <strong>of</strong> medicated drops deep into the nasal cavities) and<br />

51


Raktha Moksha (vene suction) These five are together cal\ed as the Panchakarmas in<br />

Ayurveda.<br />

Mahal and others report that Ayurveda prescribes about 60 different therapies along<br />

with their indications. Prajnapradha (misuse <strong>of</strong> intellect, wilful wrong doing, vocational<br />

transgression, either by omission or commission) is considered as an important cause for<br />

mental il\ness. Psychotherapy directed to restore Judgement and confidence and to remove<br />

guilt feelings, imparting proper knowledge, etc. are indicated in such instances.<br />

Intimidation, terrorisation, coaxing, exhilaration, pacification etc. are to be considered as<br />

attempts to modify behaviour to be compared to the modem techniques <strong>of</strong> behaviour therapy,<br />

even though some methods suggested would appear cruel and inhuman (Mahal et.al., 1976).<br />

The treatment methods are dealt under three categories,- Daivavyapashraya chikitsa,<br />

Yukthivyapashraya and satwavajaya. The first consists <strong>of</strong> propitiating Gods through<br />

prayers, incantations, wearing herbs and gems on the body, performance <strong>of</strong> sacrifices,<br />

oblations and <strong>of</strong>ferings, undertaking vows, fasts and pilgrimages, etc. The<br />

Yukthivyapashraya chikitsa is the drug-diet therapy and Satwavajaya corresponds to<br />

occupational and recreational forms <strong>of</strong> treatment.<br />

Around Samhitha period there emerged another <strong>system</strong> <strong>of</strong> treatment known as<br />

Siddha Vaidya. The dravidians were in the forefront and were chiefly responsible for the<br />

development <strong>of</strong> this branch <strong>of</strong> medicine. Siddha Vaidhya follows the tridosha theory and<br />

maintains that an imbalance <strong>of</strong> humours precipitates illness. There are clinical syndromes<br />

corresponding to Schizophrenia, mania and depression. "Kirukku" recognised by the<br />

practitioners <strong>of</strong> Siddha vaidya in Tamilnadu resembles Schizophrenia and is <strong>of</strong> 18 types<br />

(namboodiri, 1986).<br />

The treatment methods in Siddha Vaidya are feeling the pulse (Nadijana) and<br />

examination <strong>of</strong> urine (Moothra pariksha). The treatment methods mainly consist <strong>of</strong> variety<br />

<strong>of</strong> metals and their salts, along with herbal medicines. The earliest text book <strong>of</strong> Siddha<br />

52


Vaidya. Rasahridayathantra by Govinda Bhagavatha Padacharya dates back to 8th century<br />

A.D.<br />

The unani method <strong>of</strong> treatment became popular in India following the advent <strong>of</strong> the<br />

Muslims. <strong>Mental</strong> illness was divided into seven varieties by Najabuddin Unharnmed among<br />

which Sauda-a-tabee resembled Schizophrenia. When Sauda became chronic. it was called<br />

lanoor. Treatment measures consisted in placing the patient in placid and restful<br />

environment, kind and sympathetic nursing, nutritious food and medicines including<br />

stimulants. Bleeding and purging were prescribed in the early stages (Varma, 1953).<br />

Belief in magico religious methods <strong>of</strong> treatment, which is prevalent even today, dates<br />

back to the ancient period. Use <strong>of</strong> charms, incantations and talisman are believed to be more<br />

ancient than religious practices. The earliest texts dealing with this aspect <strong>of</strong> magical<br />

treatment is the atharvanaveda which contains the texts <strong>of</strong> various hymns and formulae.<br />

Drugs are <strong>of</strong>ten used along with formulae during incantations. They are believed to have a<br />

complementary action in affecting cure. There are differences observed between the Aryan<br />

and Dravidian <strong>system</strong>s <strong>of</strong> incantations. Hymns from Sanskrit texts are used in the former<br />

and in the latter, formulae in vernacular language are used along with sacrificial killing <strong>of</strong><br />

animals (Namboodiri, 1986).<br />

Namboodri notes religious methods <strong>of</strong> treatment dating back beyond recorded<br />

history. Paying obeisance to God for material benefits and for repelling catastrophes still<br />

continue in the Indian culture. The sick and <strong>health</strong>y visit temples. For the sick, the priests<br />

<strong>of</strong>fer prayers and prescribe vows and penances which the patient have to undertake. Rice<br />

and pudding are given to the patients after they are first <strong>of</strong>fered to God. Smearing the body<br />

with sandalwood paste and sacred ashes, sprinkling holy water on the head and body and<br />

anointing patient's eyes with holy oil are other things prescribed by the priest. Medicinal<br />

preparations are occasionally used. One temple in Kerala routinely administers to the<br />

patients a medicated oil with strong emetic properties. Ghee medicated with Ayurvedic<br />

drugs are <strong>of</strong>ten given in many temples. Oblations are <strong>of</strong>fered in some temples by the<br />

patients, in the form <strong>of</strong> "Kuru/hi" which is a red liquid mixture <strong>of</strong> turmeric and slaked lime<br />

53


symbolically representing blood. Gods chiefly propitiated for the cure <strong>of</strong> mental illness are<br />

Lord Siva (who is described as Bhoolhesa, the Lord having control over Demons and Kali<br />

or the Mother Goddess (Namboodri, 1986).<br />

The recognition <strong>of</strong> mental illness, classification and treatment dates back to 1500 B.C<br />

in India. These methods are being practised even today and some <strong>of</strong> them have also been<br />

integrated into the western methods <strong>of</strong> treatment to suit the Indian set up. On the whole, one<br />

can confidently say that the concepts <strong>of</strong> mental illness has been well defmed by Our ancestors<br />

even before the subject <strong>of</strong> Psychiatry came into existence. Magico-religious forms <strong>of</strong><br />

treatment dominates the rural scenario and these methods <strong>of</strong> treatment are sought for initially<br />

for cure before they seek the help <strong>of</strong> a Psychiatrist (Namboodiri, 1986).<br />

<strong>Mental</strong> Health Services in India<br />

The history <strong>of</strong> modem psychiatry in India originated with the establishment <strong>of</strong><br />

mental hospitals. The mental asylums were entirely a British conception though there is a<br />

reference to some asylums in the period <strong>of</strong> Mohammed Khilji (1436-1469). The early<br />

institutions in the Indian sub-continent were greatly influenced by the ideas and concepts as<br />

prevalent in England and Europe during those days. Primarily, the mental asylums were<br />

built to protect the community and to treat the insane. These asylums were initially meant<br />

to treat European soldiers employed with the East India Company (Sharma, 1992).<br />

Reference to the first mental hospital was recorded in the proceedings <strong>of</strong> the Calcutta<br />

Medical Board <strong>of</strong> April 3,1787. This asylum could not be recognised by the Medical Board,<br />

since the person responsible for its establishment, Surgeon Dr. George M.Kenderline was<br />

dismissed from service because <strong>of</strong> neglect <strong>of</strong> duty. Later a private lunatic asylum was<br />

constructed, recognised by the Medical Board and rented out to the East India Company for<br />

Rs. 400 per month. At the same time, another lunatic asylum was opened in 1795 at<br />

Monghyr in Bihar about 400 miles north <strong>of</strong> Calcutta which was specially meant for insane<br />

soldiers. The remnants <strong>of</strong> this building are still there at Shyamal Das Chakravarthy Road<br />

and is known as "Paghla ghar building" (Varma, 1953).<br />

54


During the same period in 1794, the first mental hospital was opened in South India<br />

at Kil pauk, Madras. In 1817, an attempt was made to improve the conditions <strong>of</strong> the hospital<br />

at Calcutta, which had between 50-60 European patients with clean surroundings and a<br />

garden. During this period, excited patients were treated with morphia and opium, and were<br />

given hot baths and sometimes leeches were applied to suck their blood. It was then<br />

believed that blisters were useful for chronic patients and also helpful for controlling their<br />

periodic excitement. During the same period, another lunatic asylum was opened in Dacca,<br />

which is now part <strong>of</strong> Bangladesh. Music as a form <strong>of</strong> treatment to calm down excited<br />

patients was first tried during that period in this hospital (Varma, 1953). Hospitals were also<br />

opened at Patna and expansion <strong>of</strong> the Madras Hospital was undertaken. The first hospital<br />

in the western coast was started at Colaba in 1806.<br />

After Lord Cornwallis's rule in 1793 till 1857, there was no growth in the mental<br />

hospitals in India except in Bombay, Madras and Calcutta. In 1858, the most significant<br />

development was the enactment <strong>of</strong> the first Lunacy Act known as Act. no.26. It gave<br />

guidelines for the establishment <strong>of</strong> mental asylums and also set the procedure for admitting<br />

mental patients. The Act was later modified by a committee appointed in Bengal in 1888<br />

which gave elaborate instructions and guidelines for admission and treatment <strong>of</strong> criminal<br />

lunatics (Sharma, 1992). According to Sharma asylums for the insane were originally built<br />

in India as in other countries, when it was considered advisable to segregate those who by<br />

reasons <strong>of</strong> insanity were troublesome and dangerous to their neighbours. The asylums were<br />

thus places <strong>of</strong> detention. As medical supervision was considered necessary, these were given<br />

over to medical management in the event <strong>of</strong> an illness to inmates. Segregation <strong>of</strong> buildings<br />

and supervision were entirely British conception (Sharma, 1992).<br />

After 1858, many changes in administration and <strong>health</strong> <strong>care</strong> resulted in opening more<br />

lunatic asylums in the eastern parts <strong>of</strong> India in Orissa, Bengal and Bihar. There were six<br />

asylums opened at Bhowanipore in Calcutta, Patna, and Dacca, now in Bangladesh,<br />

Berhampur, Dulanda and Cuttack. In the same year, Assam was separated from Bengal and<br />

a new asylum was opened in Tezpur.<br />

55


In the south, in Madras Presidency, new hospitals were opened at Waltair and<br />

Trichhirapally and a new hospital was also opened for 145 European and Indian patients in<br />

Madras city in 1871. In the western part <strong>of</strong> India, in Bombay Presidency, a similar expansion<br />

was noted and six such institutions were opened by 1865 at Colaba, Poona, Dharwar,<br />

Ahmedabad, Ratnagiri and Hyderabad (Sind). Colaba was mainly meant for the Europeans<br />

with over 285 beds and Ahmedabad had 180 beds in 1872. Similar expansion was visible<br />

in the central provinces where asylums were established in 1872 at Jabalpur and Elichpur in<br />

Bihar. A hospital in Benaras was started in 1854 and at Agra in 1858 and later, at Bareilly<br />

in 1862 (Varma, 1953).<br />

In the northern province, the first hospital was started in 1840 by John Martin<br />

Honigberger, one <strong>of</strong> the physicians <strong>of</strong> Maharaja Ranjit Singh who is reported to have treated<br />

mental patients in an annex to his hospital within the grounds <strong>of</strong> Raja Suchet Singh's palace.<br />

When Punjab was taken over by the Briti,h, Hoinberger handed over his twelve epileptic<br />

and idiots to the first civil surgeon <strong>of</strong> Lahore who was considered to have humanitarian<br />

approach to such patients. When the number <strong>of</strong> patients increased from 12 to 85 and then<br />

to 285 in 1863, the conditions in the hospital deteriorated and was renovated only in 1900,<br />

a clear evidence <strong>of</strong> apathy and indifference on the part <strong>of</strong> the authorities to the needs <strong>of</strong> the<br />

people (Sharma, 1992).<br />

The early part <strong>of</strong> the 20th century witnessed very significant changes in the field <strong>of</strong><br />

mental <strong>health</strong>. The first significant change was the decision <strong>of</strong>the government to give the<br />

charge <strong>of</strong> the mental hospitals to the civil surgeons, which were previously under the charge<br />

<strong>of</strong> the Inspector <strong>of</strong> Prisons. The second change was in the recognition <strong>of</strong> specialists in<br />

Psychiatry to be appointed full-time <strong>of</strong>ficers in these hospitals. The third significant addition<br />

was the intent <strong>of</strong> government to have a central supervision <strong>of</strong> all lunatic asylums which was<br />

contemplated in 1906 and was brought out in the form <strong>of</strong>Indian Lunacy Act, 1912. The<br />

other associated change noticed was the growing concern among the public about the<br />

conditions <strong>of</strong> mental hospitals which resulted not only in the improvement <strong>of</strong> existing<br />

56


hospital conditions at that time but also in the opening <strong>of</strong> many more hospitals (Sharma,<br />

1992)<br />

Under the new legislation <strong>of</strong> Indian Lunacy Act <strong>of</strong> 1912, a Central Lunatic Asylum<br />

was started in Berhampur for European patients and was later closed after the establishment<br />

<strong>of</strong> the Central European Hospital at Ranchi in 1918. Col. Berkeley Hill the then<br />

Superintendent <strong>of</strong> the hospital made the Ranchi institution the foremost in India at that time.<br />

Dr. Hill was deeply concerned about the mental hospitals and wrote in 1924,"There<br />

is a Persian saying that there is no greater anguish known among mankind than to have many<br />

thoughts at heart and no power <strong>of</strong> deed. This particular form <strong>of</strong> anguish must be well known<br />

to most <strong>of</strong> the medical superintendents <strong>of</strong> mental hospitals. For how many <strong>of</strong> them longed<br />

to raise the standard <strong>of</strong> the work at hospitals whose welfare they have at heart but for some<br />

reason or another the power <strong>of</strong> deed is denied to them. Nevertheless in spite <strong>of</strong> many a heart<br />

made sick by deferred hopes, every medical superintendent is probably in a position to raise<br />

the efficiency <strong>of</strong> the hospital in hIS charge provided he can get plenty <strong>of</strong> good ideas to work<br />

with" (Berkeley, 1924).<br />

Due to the sincere efforts <strong>of</strong> Hill, the standard <strong>of</strong> <strong>care</strong> and treatment in the Ranchi<br />

Hospital improved and due to his persuasion, the government changed all the names <strong>of</strong> the<br />

mental asylums to mental hospitals in 1920. Sharma notes that there was recognition <strong>of</strong><br />

occupational therapy and other measures during the period after 1920. The need for<br />

associating social scientists in the diagnosis and management <strong>of</strong> psychiatric patients were<br />

generally realised. The first efforts to train psychiatrists and psychiatric nursing personnel<br />

were made during this period. As a part <strong>of</strong> social awareness, initial attempts to establish<br />

direct links with the patients' families were made in the form <strong>of</strong>family units (Sharma, 1992).<br />

In 1946, CoI.M. Taylor, the then Superintendent <strong>of</strong> the European <strong>Mental</strong> Hospital, Ranchi,<br />

as a member <strong>of</strong> Health survey and Development Committee known as "Bhore Committee"<br />

gave his report based on his survey on mental hospitals. According to his report, there were<br />

at least 19 hospitals with bed strength <strong>of</strong> 10,381. His concluding observations were as<br />

follows:<br />

57


'The majority <strong>of</strong> the mental hospitals in India are quite out <strong>of</strong> date, and are designed<br />

for detention and safe custody without regard for curative treatment... saviour <strong>of</strong> the<br />

Workhouse and the prison and should be rebuilt. The remainder should be improved<br />

and modernised. Bombay and Calcutta urgently require modem mental hospitals to<br />

meet both the needs <strong>of</strong> the community and the Medical Colleges, and these should<br />

form part <strong>of</strong> any schemes for reconstruction or expansion. There is a gross<br />

inadequacy in the medical personnel in all mental hospitals both numerically and in<br />

specialised qualifications. Most <strong>of</strong> the Medical Officers employed as<br />

Superintendents and deputy Superintendents possess neither the status nor the<br />

experience, which would justify the description <strong>of</strong> Consultant or Specialist in the<br />

ordinary usage <strong>of</strong> that word. A mental <strong>health</strong> service is necessary with improvement<br />

in the status, pay and conditions <strong>of</strong> service <strong>of</strong> the medical staff, with increased<br />

opportunities for purely pr<strong>of</strong>essional work' (Taylor, 1946).<br />

Similarly, he also pointed out that 'the numerical and pr<strong>of</strong>essional adequacy <strong>of</strong><br />

Nursing Staff and Attendants requires urgent attention'. It was observed by the committee<br />

that the Indian Lunacy Act <strong>of</strong> 1912 had outlived its usefulness. It also suggested a need for<br />

a Directorate <strong>of</strong> <strong>Mental</strong> Health at the Central level as well as in the Provinces.<br />

After independence, over the years the number <strong>of</strong> mental hospitals, their bed strength<br />

and utilization <strong>of</strong> their services, increased. An over-view <strong>of</strong> the pattern <strong>of</strong> total bed<br />

availability and the patient turnover in the mental hospitals in this period indicates that<br />

though the number <strong>of</strong> beds increased only marginally, the number <strong>of</strong> patients utilising the<br />

hospital service increased manifold.<br />

S.D.Sharma (1992) in his research study on mental hospitals in India found that there<br />

was a steady increase in the number <strong>of</strong> people utilizing the services <strong>of</strong> mental hospitals and<br />

this he attributed to the changing value <strong>system</strong>, urbanisation, industrilisation and family<br />

pattern in the society.<br />

58


Table 2.1 Number Of <strong>Mental</strong> Hospitals, Their Bed Strength, Admission, Discharge<br />

Cases And Deaths Of <strong>Mental</strong> Patients During The Year 1951-1986<br />

Year No.<strong>of</strong> mental Bed Strength Admission Discharge Deaths<br />

hospitals<br />

1951 30 10,148 5,837 5,831 471<br />

1961 35 12,533 21,641 6,292 1,266<br />

1971 38 18,507 32,064 31,975 1,113<br />

1981 45 20,559 49,195 48,353 931<br />

1986 45 20,674 54,759 53,169 922<br />

Sources: S D Sharma (1992). <strong>Mental</strong> Hospitals In India: A NatIOnal Perspective.<br />

After independence, there have been very few additions made to the number <strong>of</strong><br />

mental hospitals and no mental hospital has been closed in spite <strong>of</strong>lack <strong>of</strong> financial support.<br />

Though the number <strong>of</strong> mental hospitals has increased from 31 in 1947 to 45 in 1987, the<br />

number <strong>of</strong> patients treated in these institutions having increased mani fold.<br />

Sharma observes that 'The mental hospitals in the country have curiously remained<br />

unchanged. They remain till today a motley assortment <strong>of</strong> institutions- some <strong>of</strong>fer<br />

comprehensive <strong>care</strong> and rehabilitation, whereas most others remain the restrictive and<br />

confirming 'asylums' in which custodial <strong>care</strong> takes precedence over therapeutic <strong>care</strong>'<br />

(Sharma, 1992).<br />

The post-independence era witnessed the introduction <strong>of</strong> General Health Psychiatric<br />

Units (GHPU) in all the hospitals. These units resulted from various considerations with<br />

mental hospitals like:<br />

1. Inability to deal with all the mentally ill individuals.<br />

2. Lack <strong>of</strong> desired therapeutic environment.<br />

3. Non-availability <strong>of</strong> facilities for the comprehensive medical <strong>care</strong>.<br />

4. Isolation <strong>of</strong> mental hospitals from general medical services.<br />

S. Pr<strong>of</strong>essional isolation for the psychiatrists.<br />

59


By 1970, about 90 psychiatric clinics in general hospitals were operative in India.<br />

It was observed that the treatment in general hospital psychiatric clinics, reduced stigma,<br />

increases accessibility and <strong>of</strong>fered thorough follow-up service and treatment <strong>of</strong> associated<br />

physical problems (Murthy, 1982).<br />

GHPUs were followed by the District Psychiatric Units, OPUs, as a consequence <strong>of</strong><br />

the Mudaliar Committee. According to the Government <strong>of</strong> India report only Kerala,<br />

Tamilnadu and Karnataka had OPUs and the situation in other states was not satisfactory.<br />

Only 10 per cent <strong>of</strong> those requiring urgent mental <strong>health</strong> <strong>care</strong> were receiving the needed help<br />

with the existing services. The situation was worse in the rural areas due to the heavy<br />

concentration <strong>of</strong> the services and facilities in the urban areas (GOI, 1990).<br />

Public education on mental <strong>health</strong> was started in 1964 by the Indian Psychiatric<br />

Society. The group suggested preventive mental <strong>health</strong> programme as an answer to the<br />

impasse in the field <strong>of</strong> psychiatry. The major goals that were suggested for mental <strong>health</strong><br />

were defined as follows:<br />

1. to disseminate knowledge and develop understanding <strong>of</strong> the underlying principles <strong>of</strong><br />

mental <strong>health</strong>;<br />

2. to dispel ignorance, faulty beliefs and superstitions in the general public with regard to<br />

matters <strong>of</strong> mental <strong>health</strong> and diseases and to create informed public interest in such matters;<br />

3. to promote good mental <strong>health</strong> in children;<br />

4. to develop the community aspect <strong>of</strong> mental <strong>health</strong> programme; and<br />

5. to promote research and training <strong>of</strong> the personnel for mental <strong>health</strong> activity.<br />

The group also suggested 1. Incorporation <strong>of</strong> mental <strong>health</strong> into public <strong>health</strong>; 2.<br />

<strong>Mental</strong> <strong>health</strong> services in district hospitals; 3. Extramural activities for psychiatric hospitals<br />

and their staff; and 4. Setting up <strong>of</strong> new <strong>voluntary</strong> <strong>organizations</strong> as further avenues for<br />

extension <strong>of</strong> public education.<br />

Over the years, the central points <strong>of</strong> developments have been the utilization <strong>of</strong><br />

community resources for mental <strong>health</strong> <strong>care</strong>. The last 100 years have witnessed a shift from<br />

60


mental illness to mental <strong>health</strong>, from purely medical to biosocial model. The interventions<br />

range from policies at the society level, specific drug treatment, support in crisis, utilization<br />

<strong>of</strong> different community resources and psycho-social interventions in the form <strong>of</strong> social<br />

support. There is also a shift from the institutions to the community, from pr<strong>of</strong>essional to<br />

nOll-pr<strong>of</strong>essionals, flOm-verticat- programmes to ilftegration; public involvement and<br />

education to destigmatise mental <strong>health</strong> <strong>care</strong>. In the last few years, there has been a focus<br />

on educational infrastructure and welfare infrastructure to develop promotive and preventive<br />

mental <strong>health</strong> programmes. The last 15 years <strong>of</strong> policy making in India has been on<br />

decentralisation and depr<strong>of</strong>essionalisation (GO!, 1990).<br />

Goldberg and Huxley rightly describe the situation <strong>of</strong> mental <strong>health</strong> <strong>care</strong> in most <strong>of</strong><br />

the countries thus: 'There is now an explosion <strong>of</strong> knowledge about mental disorder and it has<br />

become possible to discern the outlines <strong>of</strong> the model for mental disorder which takes account<br />

<strong>of</strong> findings in both social psychiatry and molecular biology. However, we have not made<br />

corresponding progress in defining administrative and architectural requirements for meeting<br />

the needs <strong>of</strong> the mentally ill and in most countries <strong>of</strong>the world services for the mentally ill,<br />

survive on the crumbs left from the banquet <strong>of</strong> general <strong>health</strong> <strong>care</strong>. At times <strong>of</strong> scarce<br />

resources, our services are very easy to prune. The liberation <strong>of</strong> others-clinical<br />

psychologists, nurses and social workers from domination <strong>of</strong> the medical pr<strong>of</strong>ession has<br />

occurred in many countries and has been the enemy <strong>of</strong> a united service which <strong>of</strong>fers the best<br />

to patients and which commands adequate resources from society' (Goldberg and Huxley,<br />

1992).<br />

In India, many innovative approaches have been used to compensate for the<br />

inadequate facilities available and socio-economic constraints. Vidyasagar (!971), in<br />

Amritsar, involved families in treatment which was imitated at Vellore and at Bangalore<br />

(Verghese, 1971, Chennabasavanna and Sheriff, 1977). Ayurvedic methods for treatment<br />

<strong>of</strong> mental illness was tested by Mahal et. al.,and others in 1976. Treatment to rural disabled<br />

people were initiated at Raipur Rani in 1976 (Wig el. al., 1982) and at Sakalwara in<br />

8angalore (Kapur 1992, Chandrasekar et.al., 1991, Issac et.al., 1981). Training to teachers<br />

to deal with mental <strong>health</strong> problems among students was implemented. Kapur (1975) and<br />

61


Sethi et. al. , (1977) studied about traditional healers and their involvement in modem<br />

treatment methods <strong>of</strong> mental <strong>health</strong>. Home <strong>care</strong> treatment programme was initiated in<br />

8angalore by Kapur and Pai in 1983. Another breakthrough was the starting <strong>of</strong> satellite<br />

clinics by NIMHANS, 8angalore, in 1981 under the control <strong>of</strong> Psychiatrists and social work<br />

pr<strong>of</strong>essional in fOUT districts <strong>of</strong> Kamataka (Reddy, 1982).<br />

Other approaches were also initiated like mobile mental <strong>health</strong> clinics, volunteers<br />

participation in mental <strong>health</strong> <strong>care</strong>, student volunteers in mental hospital programmes, school<br />

teachers and students in mental <strong>health</strong> programmes, anganwadl workers in mental <strong>health</strong><br />

<strong>care</strong>, periodic involvement <strong>of</strong> family in the treatment <strong>of</strong> the mentally ill in hospital settings<br />

and using social work measures in the treatment <strong>of</strong> neurotics and involvement <strong>of</strong> village<br />

leaders in mental <strong>health</strong> <strong>care</strong>.<br />

Murthy (1993) pomts out that the mental <strong>health</strong> pr<strong>of</strong>essionals in India are in an<br />

advantageous positIOn to develop programmes to match both the dictates <strong>of</strong> society as well<br />

as the individual. According to him, the development <strong>of</strong> the concept <strong>of</strong> mental <strong>health</strong> from<br />

mental Illness has some features, namely, a steady evolutIOn <strong>of</strong> the concepts <strong>of</strong> causatIOn and<br />

a broaderung in the scope <strong>of</strong> mental <strong>health</strong> and mental illness-a moving away from a highly<br />

mdlvldual orientation to a larger SOCial <strong>system</strong> onentation.<br />

Sociology <strong>of</strong> <strong>Mental</strong> Disorder<br />

The sociology <strong>of</strong> mental disorder is as old as SOCIOlogy itself, as Auguste Comte<br />

was the founder <strong>of</strong> both He was as critical <strong>of</strong> doctors as he was <strong>of</strong> lawyers. He said <strong>of</strong><br />

doctors that 'they study the animal in us'. In other words, he said they deserve the title <strong>of</strong><br />

'veterinarians', rather than <strong>of</strong> 'doctors'. He was the forerunner <strong>of</strong> psychosomatic medicine<br />

m two senses. First, in the emphasis he placed on the interaction <strong>of</strong> mental and physical<br />

phenomena. He stressed that as man is the most indivisible <strong>of</strong> beings, his body and soul<br />

should be studied simultaneously, so that ideas fonned about him are not mistaken or<br />

superficial. Second, in his linking <strong>of</strong> medicine WIth the' Religion <strong>of</strong> Humanity'. He pointed<br />

62


out that the doctor who sees in man a body is a veterinarian; the one who wishes to see both<br />

body and soul must necessarily tum to Sociology (Bastide, 1972)<br />

Audiffrend, Comte's disciple, <strong>system</strong>atised Comte's theories. He produced a<br />

coherent positivist picture <strong>of</strong> mental disorder. He says that insanity is characterised by a<br />

two- fold' subjectivity' both logical and social. From the point <strong>of</strong> view <strong>of</strong>logic, insanity like<br />

the dream is a process without object whereas the scientific or positive approach is<br />

dependent on the object. From the social viewpoint, insanity, again like the dream and the<br />

day dream, represents the mind which has broken away from collective control, which is<br />

given over to itself to the amorality <strong>of</strong> its inner world and the unleashing <strong>of</strong> the desires<br />

(Bastide, 1972). In Comte's words, Insanity is the mind in a state <strong>of</strong>' selfishness', the revolt<br />

<strong>of</strong> the individual against the humanity. The revolt against objective reality and the revolt<br />

against altruism are not basically different, but represent the same process, the surrender <strong>of</strong><br />

the individual to subjectivity.<br />

This surrender, he adds, characterises certain periods in history. Insanity has always<br />

existed, but its incidence varies according to that period. Thus, Comte's work is not only<br />

sociological definition <strong>of</strong> insanity but also a study <strong>of</strong> the sociological conditions associated<br />

with its appearance. Positivism distinguishes between organic periods and periods <strong>of</strong> crisis,<br />

according to whether solidarity between individuals is organised or whether it is in the<br />

process <strong>of</strong> disintegration.<br />

For instance, he explains that the Middle ages are an organic period and the age <strong>of</strong><br />

positivism is another. But between these there must have been a transition period when one<br />

social structure has disintegrated because, it no longer corresponds to man's needs and a new<br />

structure has not yet emerged. In crisis periods, such as the Reformation or the French<br />

Revolution, the individual rebels with the aim <strong>of</strong> asserting his personal identity. This is<br />

when subjectivity which until then was under the control, both <strong>of</strong> reality and society makes<br />

its appearance. The increase in the incidence <strong>of</strong> insanity is related to the passing from<br />

organic into a crisis period and develops alongside for the same reasons as 'individualism'<br />

(Bastide, 1972).<br />

63


Bastide (1972) observes that the curse <strong>of</strong> insanity can be said to lie, not in<br />

individualism, which necessarily brings about solidarity, but in the lack <strong>of</strong> organization <strong>of</strong><br />

this new type <strong>of</strong> solidarity. From Durkheim onwards, the problem <strong>of</strong> the sociological origins<br />

<strong>of</strong> insanity is formulated in terms <strong>of</strong> a new concept' social anomie'.<br />

According to Bastide (1972), Morel stands in opposition with Comte and Audiffrend.<br />

He relates the rise in crime, a phenomenon <strong>of</strong> social pathology to the rise in mental disorder,<br />

a phenomenon <strong>of</strong> mental pathology. He is <strong>of</strong> the view that there is a connection between the<br />

two. He adds that man's nervous <strong>system</strong> is the weakest part <strong>of</strong>this organism and can easily<br />

be intoxicated by malaria, lead poisoning, alcohol, etc. thus producing insanity. According<br />

to him, society is composed <strong>of</strong> individuals, the intoxication <strong>of</strong> whose nervous <strong>system</strong> can<br />

lead to feeble rnindedness, sterility or criminality. He is <strong>of</strong> the view that the degeneration<br />

<strong>of</strong> individual leads to the degeneration <strong>of</strong> the race and eventually to the end <strong>of</strong> civilisation<br />

itself. He observes that people known as 'primitive' are merely people whose progress has<br />

been halted or who have regressed owing to their un<strong>health</strong>y environment and the illness<br />

caused by it (8astide, 1972).<br />

Comte (1849) was interested in the influence <strong>of</strong> social factors on mental illness,<br />

thereby founding-sociogenetic theory. On the other hand, Morel was interested to show the<br />

effects <strong>of</strong> mental illness on the society and thus established a biogenetic theory <strong>of</strong> social<br />

pathology. He wrote his theory based on the dogma <strong>of</strong> immutability <strong>of</strong> the species and the<br />

beliefthatthere existed a normal type <strong>of</strong> man, but this type could be affected by disease and<br />

corrupted. He was <strong>of</strong> the view that the disintegration <strong>of</strong> the nervous <strong>system</strong> was the cause<br />

<strong>of</strong> the disintegration <strong>of</strong> social ties (Cited in Bastide, 1972).<br />

The concept <strong>of</strong> degeneration was replaced by the concept <strong>of</strong> regression. According<br />

to Jackson in Psychiatry and Ribot in psychopathology, the disintegration <strong>of</strong> mental<br />

functions follows the opposite direction to evolution- that is, the most highly evolved levels<br />

are the first to be impaired and the most automatic the last. Richard drew sociological<br />

conclusions from this theory and pointed out that the sickness <strong>of</strong> society is the consequences<br />

64


<strong>of</strong> regression or disturbances <strong>of</strong> the will and the personality. Ribot describes that the<br />

increase in the number <strong>of</strong> 'amorphous' and' unstable' people is incompatible with a social<br />

<strong>system</strong> which requires increasing determination from the individuals (Bastide,1972).<br />

Thus, sociology was split into two schools, one that looks for the social factors in<br />

mental disorder and can be traced back to Comte: the second school rejects social factors and<br />

tries to define the social effects <strong>of</strong> the increase in mental illness and can be traced back to<br />

Morel.<br />

Levy-Bruhl distinguishes between two states <strong>of</strong> mentality, the pre-logical mentality<br />

and the logical mentality. He was <strong>of</strong> the opinion that it was impossible to form an idea <strong>of</strong><br />

the perception, judgement and actions <strong>of</strong> primitive man through the intermediary <strong>of</strong> our own<br />

ways <strong>of</strong> thinking and feeling. He suggests that strictly objective studies should take the place<br />

<strong>of</strong> interpretations based on western thinking. He suggests the same solution to psychiatrists<br />

to study the 'morbid consciousness' 'as a psychological reality in its own right which is<br />

irreducible to our own experience and therefore cannot be reconstructed on the basis <strong>of</strong><br />

normal states and processes <strong>of</strong> consciousness' (cited in Bastide, 1972).<br />

Blondel's approach was similar and he was in contradiction with Ribot in his view<br />

<strong>of</strong> the difference between normal and pathological. He was <strong>of</strong> the opinion that 'the<br />

difference is not quantitative but qualitative; morbid consciousness is not a distortion <strong>of</strong><br />

normal consciousness, but something quite different. Normal consciousness is capable <strong>of</strong><br />

conceptualisation and is, therefore socialised, whereas pathological consciousness is<br />

incapable <strong>of</strong> organising itself according to our' normal' logical frameworks, <strong>of</strong> fitting<br />

coenesthetic disturbances into the mould <strong>of</strong> current language. It is desocialised<br />

consciousness' (Blondel 1914, cited in Bastide, 1972).<br />

Blondel and Comte have much in common in saying that insanity is the triumph <strong>of</strong><br />

pure subjectivity in its dual departure from reality and from social life. Blondel goes a little<br />

further to give a methodological rule: it is impossible to interpret the pathological through<br />

the normal.<br />

65


The most significant contribution to the field <strong>of</strong> sociology <strong>of</strong> mental disorder came<br />

from Durkheim's functional approach. He discovered 'useful' functions for something as<br />

apparently as crime and consequently introduced the abnormal into the basic structure <strong>of</strong><br />

society. He was not in favour <strong>of</strong> sociogenetic theory <strong>of</strong> psychic disturbance and attributed<br />

mental disorder to the psycho-organic causes. He gave the sociology <strong>of</strong> mental disorder a<br />

new concept that is widely used, anomie.<br />

He gives two different definitions <strong>of</strong> anomie, one that is objective that is found in<br />

'The Division <strong>of</strong> Labour in Society': anomie is characterised by the absence <strong>of</strong> control and<br />

therefore <strong>of</strong> stability and regularity in the relations between different social' functions', this<br />

results in conflicts between organisms which are theoretically inter-dependent and the other<br />

subjective that is found in 'Suicide': anomie is characterised by a lack <strong>of</strong> control over<br />

passions, unfettered desires, impatience with rules and regulations, irritation and disgust,<br />

according to whether the period is one <strong>of</strong> prosperity or depression. Durkheim did not apply<br />

this concept <strong>of</strong> anomie to the study <strong>of</strong> mental disorder as he thought they were a result <strong>of</strong><br />

physiological and psychological situations. The concept occupied a central position in the<br />

study <strong>of</strong> social origins <strong>of</strong> psychic disturbance only when it was taken up by American social<br />

scientists (Durkheim, 1897)<br />

Around the same period as Durkheirn, Pierre Janet put forward the idea <strong>of</strong> psychic<br />

tension that took him from psychiatry to sociology. At the end <strong>of</strong> the nineteenth century,<br />

there were two movements; one starting from Sociology and moving towards Psychiatry and<br />

the other starting from Psychiatry and moving towards Sociology but nevertheless reaching<br />

the same conclusion that there is a social dimension to mental illness.<br />

Janet put forward his idea <strong>of</strong> psychic tension in two ways: Quantitatively by the<br />

amount <strong>of</strong> psychic resources and qualitatively by the hierarchical position <strong>of</strong> the activities<br />

<strong>of</strong> which a person is capable. According to him, our civilisation is an exhausting one, things<br />

change rapidly and a heightened tension is required to adjust our behaviour to the elements<br />

in our situation that is new to us. He adds that the mentally ill person, lacking in psychic<br />

66


esources either takes refuge in solitude or, like 'Mandeline', creates a fantasy world where<br />

imaginary people behave exactly according to his wishes (Janet, 1926, cited in Bastide,<br />

1972).<br />

The most important thing that Janet's theory explains is that the increase in neurosis<br />

and psychasthenia by the growing complexity <strong>of</strong> social life. He points out that so long as the<br />

society does not create problems which are too difficult and does not demand too much <strong>of</strong><br />

the individual, subjects who are disposed to psychic disorders can succeed in adapting and<br />

leading a normal existence, that is what happens in homogenous and traditional communities<br />

such as rural communities. But in the progressive and heterogeneous modem city,<br />

competition and the struggle for higher economic and social status lead us rapidly to bum<br />

up our last resources (Janet, 1926 cited in Bastide, 1972)<br />

Sociology <strong>of</strong> mental illness also witnessed debates from the Marxists. There were<br />

basically two tendencies, one used the concept <strong>of</strong> class struggle and alienation to bring to<br />

light the pathogenic effect <strong>of</strong> economic conditions and the other represented by orthodox<br />

Soviet psychiatry based on Pavlov's theory <strong>of</strong> conditioned responses. Le Guillant is <strong>of</strong> the<br />

view that phenomenon <strong>of</strong> abnormality must necessarily be observed, in their environmental<br />

context. He is <strong>of</strong> the view that one must take into account the total real situation and the<br />

divisions and contradictions in the society. According to him, the first task <strong>of</strong> psychotherapy<br />

is to change the social environment and improve the conditions <strong>of</strong> living (Guillant,1954,<br />

cited in Bastide, 1972)<br />

According to Bastide ( 1972), Gabel, who belongs to the second tendency <strong>of</strong> Marxist<br />

thought based on Pavlovian theory is <strong>of</strong> the view that man's normal consciousness is<br />

determined by his social existence, whereas morbid consciousness is extra-social and<br />

depends on the influence <strong>of</strong> essentially biological factors. Pavlov is <strong>of</strong> the view that if two<br />

reflexes are conditioned in a particular way, a conflict can result which inhibits them both.<br />

He recognises the importance <strong>of</strong> conditioning and the influence <strong>of</strong> the society. He points<br />

out that conditioning becomes complex as one progresses from animals to man because <strong>of</strong><br />

the appearance <strong>of</strong> speech, culture and ethical values. Thus, Pavlov is also finally led to<br />

67


sociology; mental illness is caused by congenital deficiency or by the impact <strong>of</strong> an<br />

environment, which is threatening to the individual, exhausts his energy, inhibits the<br />

functioning <strong>of</strong> the central nervous <strong>system</strong> and thus liberates the subcortical or neurovegetative<br />

functions. Thus, one can see that the Pavlovian approach and the sociological<br />

approach are not contradictory but complementary (Bastide, 1972).<br />

Psychoanalysis has also contributed to sociology <strong>of</strong> mental disorder in recognising<br />

the value <strong>of</strong> sociology. Psychoanalysis was concerned with the early experience <strong>of</strong> the<br />

patient, his childhood, relationship with his mother, father and siblings and thus threw the<br />

attention <strong>of</strong> psychiatrists, sociologists and social psychiatrists to the importance <strong>of</strong> family<br />

influences in the genesis <strong>of</strong> psychic disorders. It also recognised that these disorders were<br />

caused by traumas in early childhood not only within the family but also outside and thus<br />

leading to sociological research. Psychoanalysis, which is a dialogue between the analyst<br />

and the patient, awakened an interest in a particular problem, the problem <strong>of</strong> communication.<br />

Horney (1937) notes that . A prevailing sociological orientation ... takes the place <strong>of</strong> a<br />

prevailing anatomical-physiological one' Thus, by insisting more on the defence<br />

mechanisms than on the libido, contemporary psychoanalysis gives more importance to<br />

sociology than the older school (Homey, 1937).<br />

American theories <strong>of</strong> disorder could be traced back to the work <strong>of</strong>Znaniecki's 'Polish<br />

peasant'. Sociologists were only providing suggestions for research until the contribution<br />

<strong>of</strong>Znaniecki, in his study on the Polish Immigrants in the U.S.A In this study, he showed<br />

how lack <strong>of</strong> social integration could cause delinquency and produce higher rate <strong>of</strong> mental<br />

illness among the immigrants than that <strong>of</strong> their native country. After Znaniecki, a series <strong>of</strong><br />

studies followed by Burrow, Kimball Young, Miller and Mayo. This led to an integration<br />

<strong>of</strong> the psychiatrists and sociologists who were all along working independently.<br />

The work carried out by these two pr<strong>of</strong>essionals can be identified in three areas: the<br />

first, relating to the social and cultural dimensions <strong>of</strong> mental illness, the second, to social<br />

relations in therapy and the third, to prevention as a social policy in so far as mental-hygiene<br />

practices are regarded, not as normative practices but as experiments for the testing <strong>of</strong><br />

68


theoretical hypotheses. Sociology <strong>of</strong> mental disorder uses a 'reference <strong>system</strong>' <strong>of</strong> four terms:<br />

role, norm, value and communication, which formed the basis <strong>of</strong> various empirical studies.<br />

Apart from the use <strong>of</strong> this reference <strong>system</strong>, general theories were also developed.<br />

Leighton (1959) states that there is more mental disorder in disintegrated sectors <strong>of</strong><br />

society than- in integrated sectors, thus restating Comte.- But he was more precise by<br />

proposing a dual index <strong>of</strong> phenomena defining social disintegration and by distinguishing<br />

three processes <strong>of</strong> disintegration: on the technical level rapid changes in technology, on the<br />

social level mobility and on the level <strong>of</strong> ideology or value-<strong>system</strong>s the conflict between these<br />

<strong>system</strong>s (Leighton, 1959 cited in Bastide, 1972).<br />

Sullivan and Parsons made significant contribution to the American Sociology <strong>of</strong><br />

mental disorder. According to Sullivan, the individual is not an isolated being equipped with<br />

given instincts and drives, but as a social being to whom society continually presents<br />

problems. He stressed that psychiatrists must study not individuals but interpersonal<br />

situations. The most important thing for a psychiatrist is not the study <strong>of</strong> society as a whole,<br />

its organization into classes or castes, but the study <strong>of</strong> formative relationships <strong>of</strong> the way in<br />

which socialisation takes place in the formative years. Therapy will therefore consist in reestablishing<br />

the severed communication and restructuring relationships. Another point he<br />

stresses is that psychiatric observation is not a purely objective observation where the doctor<br />

steps outside himself to describe a foreign being; it is like any other interactive situation, it<br />

embraces both the patient's behaviour and the experience <strong>of</strong> the observer (Sullivan, 1937)<br />

Parsons (1953), in his theory <strong>of</strong>' deviance', provided a framework for the study <strong>of</strong><br />

mental disorder. In the theory <strong>of</strong> deviance, he described that all behaviour deviating from<br />

that prescribed by the society as opposed to conformist behaviour, which makes social life<br />

possible. Parsons classifies phenomena <strong>of</strong> deviance along two axes. The first axis is<br />

conformity-alienation, with at one extreme escape from the society and at the other over<br />

conformist behaviour and rigidity in the application and norms. The second is passivityactivity,<br />

with at one end insensitivity to social sanctions, which places the individual on the<br />

margin <strong>of</strong> society and at the other end,- acts <strong>of</strong> open rebellion.<br />

69


He is <strong>of</strong> the view that in mental disorder, there is divergence between the behaviour<br />

<strong>of</strong> the individual and the expectations <strong>of</strong> others, between actual behaviour and social norms.<br />

Although the psychiatrist studies individual cases <strong>of</strong> divergence, the conflict he is concerned<br />

with is an internalised one. It comes from outside thus directing the psychiatrists back to<br />

sociologist. The structure <strong>of</strong> personality is only a reflection <strong>of</strong> the social structure in the<br />

individual (Parsons, 1953).<br />

Parsons distinguishes three types <strong>of</strong> individual personality. 1. The personality<br />

<strong>system</strong> is idiosyncratic in relation to the social <strong>system</strong>. 2. The individual is so engulfed by<br />

society that his own personality is destroyed (compulsive, phobic, anxious states). 3. The<br />

social <strong>system</strong> is disorganised and the sick person internalised this disorganization.<br />

According to Parsons', the unifying and integrating forces in social <strong>system</strong>s are their 'valueorientations'.<br />

Parsons observes that mental disorder is caused by the frustrations resulting<br />

from role conflicts that lead to the individuals' alienation from the accepted norms (Parsons,<br />

1953).<br />

Merton (1975) observes that social structure exerts pressure upon the individuals<br />

which engages them in different types <strong>of</strong> adaptation. He explains five types <strong>of</strong> adaptations,<br />

viz., Conformity, Innovation, Ritualism, Retreatism and Rebellion, based on the acceptance<br />

or rejection <strong>of</strong> cultural goals and institutional means. He classifies Psychotics as those who<br />

adapt themselves to retreatism, i.e., rejection <strong>of</strong> cultural goals and institutional means.<br />

Scheff (1966) observes mental illness as the reSidual deviance and he is <strong>of</strong> the view that<br />

symptoms <strong>of</strong> mental illness persists when they are labelled by the society as mental illness.<br />

With the emergence <strong>of</strong> Psychoanalysis, Sociology gained greater importance in this<br />

field and the emergence <strong>of</strong> Social Psychiatry led to the recognition <strong>of</strong> the importance <strong>of</strong><br />

social factors related to mental <strong>health</strong>. According to Bastide in his historical review <strong>of</strong><br />

sociology <strong>of</strong> mental disorder, 'These theories are struggling with a double difficulty<br />

represented by their extreme generality on the one hand and their specificity on the other.<br />

They are too specific on the one hand in the sense they highlight only one factor, such as<br />

70


disorganization, anomie, communication difficulties, conflicts <strong>of</strong> values or <strong>of</strong> roles. Parsons<br />

is perhaps the only author who tried to take into account the multiplicity <strong>of</strong> factors by<br />

reducing them to a series <strong>of</strong> miscellaneous examples. These different theories ultimately<br />

tend towards a sociogenetic approach even if they are interested in the physical aspect <strong>of</strong><br />

illness' (Bastide, 1972).<br />

Bastide (1972) also observes that they are excessively general and that they have not<br />

differentiated between psychosis and neurosis. Speaking <strong>of</strong> social factors in mental disorder<br />

in general does not mean very much. Thus, one must critically view these theories and<br />

choose between a single factor interpretation or a multiplicity <strong>of</strong> factors, between a<br />

sociogenetic or a structuralist approach.<br />

71


Chapter Three<br />

VOLUNTARY SECTOR IN MENTAL HEALTH CARE<br />

In order to understand the mental <strong>health</strong> <strong>care</strong> <strong>system</strong> <strong>of</strong> our country, an attempt has<br />

been made in this study to analyse the role <strong>of</strong> <strong>voluntary</strong> <strong>organizations</strong> in this field. The<br />

estimates <strong>of</strong> World Health Organization reveal that at least 10 per cent <strong>of</strong> the Indian<br />

population suffer from different kinds <strong>of</strong> Psychiatric Disorders (GO!, 1990). According to<br />

the WHO Expert Committee Report on <strong>Mental</strong> Health Services in developing countries,<br />

"The functional Psychoses occur ubiquitously, and serious mental disorder with an organic<br />

basis occur more frequently than elsewhere. Non-psychotic mental illness forms a<br />

significant part <strong>of</strong> the caseload in all curative <strong>health</strong> services. In addition, mental illness may<br />

present itself under various guises such as physical complaints, criminal <strong>of</strong>fences, suicide,<br />

frequent or prolonged absenteeism from work, dropping out from school, etc .. " (WHO,<br />

1975).<br />

In the developing countries, the major functional psychoses, schizophrenia and<br />

affective disorders constitute a large part <strong>of</strong> serious psychiatric disorders. Prevalent rates <strong>of</strong><br />

epilepsy are also higher in the developing countries rather than in the developed countries,<br />

ranging from 0.9 to 2.1 per cent (WHO, 1974). It has been found that out <strong>of</strong> those suffering<br />

from mental illness, over 60 per cent suffer from schizophrenia and bipolar disorders (manic-<br />

: depressive) and 20 per cent from alcoholism. In a recent study, it has been projected that the<br />

burden <strong>of</strong> mental illness is twice as much as the load from diabetes, Blood Pressure and<br />

Cancer put together (NIMHANS, 1997).<br />

The extent <strong>of</strong> other forms <strong>of</strong> mental disorders (psychoses, emotional disorders,<br />

personality problems) is not defined accurately but there is no evidence to prove that such<br />

disorders are significantly less common in developing countries than elsewhere.<br />

In developing countries, though the population is predominantly rural, there are also<br />

many rapidly growing cities. In the rural areas, the mentally ill are remote from psychiatric<br />

72


facilities and their illnesses lead to a lot <strong>of</strong> problems, viz., loss <strong>of</strong> efficiency in farming, child<br />

<strong>care</strong> and other important functions, leading to the increase in malnourished children and lack<br />

<strong>of</strong> recovery <strong>of</strong> social efficiency by the patient. In urban areas the very process <strong>of</strong><br />

development produces problems <strong>of</strong> adjustment and adaptations which have important<br />

implications for mental <strong>health</strong>.<br />

In India, there are 61 mental hospitals, <strong>of</strong> which 34 are Government controlled, 22<br />

are private sponsored by religious sects and one is an autonomous organization namely the<br />

National Institute <strong>of</strong> <strong>Mental</strong> Health and Neuro Sciences. The following picture gives the<br />

distribution <strong>of</strong> these hospitals in various states.<br />

Table 3.1. <strong>Mental</strong> Hospitals in India<br />

Total No. <strong>of</strong> Controlling Authority<br />

State Psych. Govt. Private Vol. Bed strength<br />

Hospitals<br />

Kerala 20 3 14 3 1706<br />

West Bengal 7 4 3 - 1555<br />

Maharashtra 6 4 2 - 5755<br />

Gujarat 6 4 1 I 658<br />

Uttar Pradesh 3 3 - - 1557<br />

Bihar 3 2 1 - 2483<br />

Andhra Pradesh 2 2 - - 900<br />

Karnataka 2 1 + I' - - 1260<br />

Rajasthan 2 2 - - 365<br />

Madhya Pradesh 2 2 - - 307<br />

Jammu and Kash. I 1 - - 100<br />

Delhi 1 1 - - 578<br />

Tamilnadu 1 1 - - 800<br />

Punjab 1 1 - - 811<br />

Orissa I 1 - - 60<br />

Nagaland 1 I - - 60<br />

Assam 1 1 - - 1000<br />

Goa 1 1 - - 272<br />

TOTAL 61 35+1 21 4 20227<br />

* Autonomous Orgaruzatlon: Nattonal Instttute <strong>of</strong> <strong>Mental</strong> Health and Neuro SCiences<br />

(N1MHANS).<br />

Source: Modified from Directory <strong>of</strong> Hospitals in India (1988) Central Bureau <strong>of</strong> Health<br />

and Family welfare, Government <strong>of</strong> India, New Delhi.<br />

73


Of the 61 hospitals, it is interesting to note that only nine hospitals are placed in rural<br />

areas out <strong>of</strong> which eight are in Kerala and one in Gujarat. Apart from these hospitals, there<br />

are about 33 hospitals in India, which <strong>of</strong>fer further studies in Psychiatry, and 86 hospitals<br />

have Psychiatric Units. This list excludes those units under the command <strong>of</strong> defence forces,<br />

Railway, Public sector enterprises and many private nursing homes.<br />

Not only are the psychiatric units and hospitals few in the context <strong>of</strong> the vast<br />

population afflicted by mental morbidity but the proportion <strong>of</strong> psychiatric beds per 1,000<br />

population is a mere 0.033, (GOl, 1990) which shows a deplorable state <strong>of</strong> mental <strong>health</strong><br />

service <strong>system</strong>.<br />

The fact is that in spite <strong>of</strong> an increase in the number <strong>of</strong> hospitals from 17 in 1946 to<br />

61 in 1980, the bed population ratio has remained the same. How do we expect to contribute<br />

in any significant way to bring about "<strong>health</strong> for all by 2000 AD". In order to achieve the<br />

goals <strong>of</strong> 'Health for all' by 2000 AD, it is necessary to seek the support <strong>of</strong> <strong>voluntary</strong><br />

<strong>organizations</strong> to supplement the Government services. The failure <strong>of</strong> the Government to<br />

bring about a balance in the bed population ratio proves that work in this field cannot be<br />

carried out exclusively by Government agencies. What India requires is a co-ordinated effort<br />

<strong>of</strong> optimum utilisation <strong>of</strong> all available resources men, money and materials for the nation.<br />

It is in this context that an attempt has been made by us to understand the role the<br />

<strong>voluntary</strong> <strong>organizations</strong> can play in complementing the Government services to the mentallv<br />

ill. Voluntary action originated as an alternative to the existing <strong>system</strong>. The inspiration to<br />

<strong>voluntary</strong> action is attributable to many factors - altruistic motives, self-interest motives,<br />

work-centred motives and other personal factors. The aspiration <strong>of</strong> our people during the<br />

freedom struggle to build up a progressive nation led to various movements, which later got<br />

converted, into <strong>voluntary</strong> agencies. The standing examples <strong>of</strong> early <strong>voluntary</strong> <strong>organizations</strong><br />

are Ramakrishna Mission and various church missionaries, which engaged themselves in<br />

various <strong>voluntary</strong> actions.<br />

74


The first mental hospital was built in Calcutta in 1787 and the last mental hospital<br />

was built in 1966 in Delhi. Twenty-eight years have lapsed since then but no attempt has<br />

been made to add more hospitals, in spite <strong>of</strong> the fact that psychiatric problems increased due<br />

to increase in population and many other factors. Many states in India like Haryana, Sikkim,<br />

Mizoram, Aruilli:chal Pradesh, Tripura, Manipur have no mental hospitals. Some hospitals<br />

like Ranchi Manasika ArogyashaJa, Jaipur Hospital, Assam have to cater to the patients from<br />

5 to 7 states (Chandrasekhar, 1991).<br />

According to Sharma's report overcrowding, poor living conditions, lack <strong>of</strong> or poor<br />

,killed manpower, inadequate treatment facilities and stigma have made mental hospitals<br />

LIDpopular in the community (Sharma, 1992). The various epidemiological surveys<br />

~onducted in different parts <strong>of</strong> our country show that for every 1,000 population at least 5<br />

persons suffer from severe mental disorders (psychoses) like Schizophrenia, manicdepressive<br />

psychosis, acute psychosis and organic brain syndromes. Twenty to thirty<br />

persons (mainly children) suffer from minor mental retardation and its associated problems<br />

like epilepsy, behavioural abnormalities. About 100 persons suffer from minor mental<br />

disorders like anxiety, depression, hysteria and other forms <strong>of</strong> stress related syndromes<br />

(Chandresekhar, 1991). The following table gives detailed information on the various<br />

psychiatric surveys conducted in India.<br />

75


• Ame J.iI nYCDlllfIC f1lel d .<br />

I d<br />

~uney~ In n III<br />

Investigator Year Centre Population<br />

Rate Per 1,000 Population<br />

Urban<br />

Rural Total Psychosis Neurosis Epilepsy <strong>Mental</strong>ly<br />

Retarded<br />

I<br />

Surya 1964 Pondicherry 2731 Urban 9.5 3.7 5 2.2 --<br />

Sethi et.al., 1967 Lucknow 1733 Urban 72.7 4.0 24.2 -- 22.5<br />

Ganguli 1968 Delhi 327 Urban 140 3.06 125.4 -- 9.17<br />

Gopinath 1968 Bangalore 423 Rural 16.4 7 -- 2.36 4.72<br />

Dube 1970 Agra 29468 Mixed 17.99 2.64 10.4 2.24 3.7<br />

Elnagar et.al., 1971 Hoogly 1383 Rural 27 7.2 1.4 4.3 1.4<br />

Sethi et.al., 1972 Lucknow 2691 Rural 39.4 1.1 5.2 2.2 25.3<br />

Kapur 1973 Kota 1233 Rural 369 8.1 200 -- 5.7<br />

K'taka<br />

Verghese 1973 Veil ore 1887 Urban 66.5 5.7 47.6 -- 3.2<br />

et.al.,<br />

Sethi et. al., 1974 Lucknow 4481 Urban 67 10.3 27.1 3.6 10.5<br />

76


Tabl~ 3.2 Psychiatric Field Survey. ID india ((;ontd)<br />

Investigator Year Centre Population<br />

Rate Per 1,000 Population<br />

Urban<br />

Rural Total Psychosis Neurosis Epilepsy <strong>Mental</strong>ly<br />

Retarded<br />

Thacore 1975 Lucknow 2696 Urban 82 4 20 14<br />

et.al.,<br />

Nandhi et.al., 1980 West Bengal 647 Urban 207. I 34 165.3 6.2<br />

1225 Rural 88.8 13.2 24.5 1.8<br />

Shah et.a!., 1980 Ahmedabad 2712 Urban 47 16.3 21.4 I.8<br />

Issac & 1980 Bangalore 1209 Rural 81.8 10.5 10.4 5.7<br />

Kapur<br />

Bhide 1982 Ootacamand 1658 Rural 184 17.2 147.1 9.1 2.4<br />

Source: S. Sheshadri. Community <strong>Mental</strong> <strong>health</strong> News, Issue No: 2, 1986, cited from Mane and Gandevia (1993).<br />

77


As can be seen from thl;; above table, there is a great variation in the prevalent rates<br />

<strong>of</strong> mental illness ranging from 9.5 per thousand population (Surya, 1964) to 207.1 per<br />

thousand population (Nandi et.al., 1980). All these studies pertain to different time periods,<br />

locations and population size. Across the different types <strong>of</strong> mental illness, it can be observed<br />

that the prevalent rates <strong>of</strong> neurosis has been found to be more than that <strong>of</strong> other types <strong>of</strong><br />

mental illnesses. But in all the types <strong>of</strong> mental illnesses, there is a variation in the prevalent<br />

rates across various locations. The reason for the variation seems to be the difference in the<br />

methodologies followed by different researchers (Seshadri, 1986).<br />

Voluntary Activity in <strong>Mental</strong> <strong>health</strong><br />

The need for organised <strong>voluntary</strong> activity led to the formation <strong>of</strong> <strong>voluntary</strong> agencies,<br />

registered under the Societies Registration Act and that are not expected to make any pr<strong>of</strong>it<br />

on their activities and are considered non-governmental and non-political but still coming<br />

within the purview <strong>of</strong> the rules and regulations formulated by the Government.<br />

Since independence, the Government <strong>of</strong> India has stressed the importance <strong>of</strong><br />

community participation and the need for participation by the <strong>voluntary</strong> agencies in <strong>health</strong><br />

and development programmes. The <strong>voluntary</strong> sector tends to be responsive to meet the<br />

pressing needs or perceived urgent needs <strong>of</strong> the community. The presence <strong>of</strong> <strong>voluntary</strong><br />

sector has so far been most strongly felt in the area <strong>of</strong> curative <strong>health</strong> services. Large<br />

number <strong>of</strong> <strong>voluntary</strong> agencies have taken up various tasks <strong>of</strong> mental <strong>health</strong> <strong>care</strong> services, as<br />

a result <strong>of</strong> the publicity and awareness created to bring about better <strong>health</strong> services to the<br />

society and the national commitment to the Alma Ata declaration.<br />

In the context <strong>of</strong> widespread misconceptions in the community about mental illness,<br />

the immense potential <strong>of</strong> timely treatment and substantive evidence <strong>of</strong> the superiority <strong>of</strong><br />

mental <strong>health</strong> <strong>care</strong> in the community family setting vis-a-vis institutional setting, the<br />

committed involvement <strong>of</strong> <strong>voluntary</strong> agencies can make a tremendous difference to the<br />

success <strong>of</strong> the National <strong>Mental</strong> Health Planning (NMHP).<br />

78


Voluntary <strong>organizations</strong> (VOs) have brought about novel approaches in the<br />

implementation <strong>of</strong> the NMHP. One <strong>of</strong> the prominent <strong>voluntary</strong> agencies providing<br />

comprehensive mental <strong>health</strong> services is the Schizophrenia Research Foundation (SCARF)<br />

in Madras founded in 1983. SCARF and NIMHANS JOIntly conducted a seminar on<br />

<strong>voluntary</strong> agencies and-mental <strong>health</strong> <strong>care</strong> in January 1988 in Madras. The seminar<br />

highlighted the importance <strong>of</strong> the involvement <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong> in bringing<br />

about public awareness on mental <strong>health</strong>, evolving community based treatment and<br />

rehabilitation programmes for the mentally ill and co-ordination <strong>of</strong> <strong>voluntary</strong> <strong>organizations</strong><br />

with government <strong>organizations</strong> in promoting mental <strong>health</strong> <strong>care</strong> (Govt. <strong>of</strong> India Report,<br />

1990).<br />

Voluntary Organizations (VOs) involved in mental <strong>health</strong> can be classified into two<br />

broad groups:<br />

1. VOs devoted primarily to mental <strong>health</strong> <strong>care</strong>.<br />

2. VOs, which have general <strong>health</strong>/community development objectives and also <strong>of</strong>fer<br />

counselling and guidance services to the vulnerable sections <strong>of</strong> the community served.<br />

The focus <strong>of</strong> the <strong>voluntary</strong> agencies working on mental <strong>health</strong> <strong>care</strong> on services for<br />

the mentally retarded and after-<strong>care</strong> and rehabIlitation services for the mentally ill.<br />

Some <strong>of</strong> the mental <strong>health</strong> services being attempted by a few agencies are:<br />

1. Suicide prevention services: Offering emotional support to persons in crises, <strong>of</strong>fering<br />

24-hours crisis services; public awareness and support programmes.<br />

2. Day <strong>care</strong> centres for the mentally ill, towards occupational therapy and socioeconomic<br />

rehabilitation <strong>of</strong> treated patients.<br />

3. Organising mental <strong>health</strong> awareness camps, training courses in counselling, and<br />

<strong>voluntary</strong> work in mental <strong>health</strong> <strong>care</strong> for students, industrial workers, employed women<br />

and others.<br />

4. Half-way homes for the mentally ill.<br />

5. Drug and alcohol de-addiction services.<br />

79


6. For the <strong>care</strong> <strong>of</strong> the mentally retarded-special schools and hostels, training for special<br />

teaching skills to mentally retarded and slow learners.<br />

7. Behavioural counselling and guidance to high risk group children and youth from<br />

broken homes, delinquent children, school dropouts, children <strong>of</strong> alcoholics etc.<br />

8. Counselling and family guidance clinics to emotionally disturbed or socially deviant<br />

children.<br />

SCARF, in Madras, provides day-<strong>care</strong> services to Schizophrenia patients who are<br />

discharged from hospitals, individual counselling for patients who can handle their problems,<br />

group therapy, occupational therapy, vocational training, family counselling, social skills<br />

training, dramatics to help patients to gain insight into their problems and overcome these<br />

deficits, frnancial assistance to patients' children by way <strong>of</strong> school fees, academic assistance<br />

to facilitate school children's education, recreational activities, etc.<br />

Voluntary agencies such as Asha Niketan, Udavurn Karangal in Madras provide<br />

monthly services towards preventing mental <strong>health</strong> problem, or promoting mental <strong>health</strong> to<br />

vulnerable groups such as slum children, street children, school dropouts, unemployed,<br />

adolescents, etc, through counselling and other assistance to these groups.<br />

Throughout the history <strong>of</strong> mental <strong>health</strong> <strong>care</strong>, public opinion has played a greater role<br />

than pr<strong>of</strong>essional views. Notable contributions to the movement are by Ms Dorothea Lynde<br />

Dix, a schoolteacher, who started a hospital, and Mr Clifford Beers, who introduced the<br />

involvement <strong>of</strong> parents in the mental handicap <strong>care</strong> programmes. Due to various reasons,<br />

it is less likely that mentally ill cannot themselves become a pressure group. Support and<br />

guidance is vital in a number <strong>of</strong> ways. This can be seen by the role played by the National<br />

Alliance for <strong>Mental</strong>ly ill (NAM) in USA and Schizophrenia fellowship in England. They<br />

have in the last decade, mobilised support for greater funding for research in mental<br />

disorders and legal provisions for the mentally ill, in addition to other actions (Murthy,<br />

I 992). In India, public and <strong>voluntary</strong> agencies have taken up activities in the following areas:<br />

80


l. Mobilising public support and demand for services [(ex) SCARF, Madras; Sanjeevini,<br />

New Delhi; Abhaya, Trivandrum].<br />

2. Provision <strong>of</strong>' crises intervention help' [(ex). Sanjeevini, New Delhi; SNEHA, Madras;<br />

MP A (Medico-Pastoral Association), Bangalore;;Sahaya, Hyderabad; Help, Bombay;<br />

Helping hands; Crest, Vishwas, Tripti, 8angalore]. _.<br />

3. Catalysing and supporting the families <strong>of</strong> the mentally ill and mentally retarded persons<br />

[(ex) Samadhan, New Delhi; Shelter for mentally ill, AMEND, 8angalore; AASHA,<br />

Madras].<br />

4. Mobilising funds for research into mental disorders and their <strong>care</strong>. [(ex. SCARF, Madras;<br />

Asha,8angalore].<br />

Apart from these, Lions Club, Rotary Club, Charity Organizations have taken the<br />

area <strong>of</strong> psychiatric morbidity for their intensive work. They have established half-way<br />

homes and also periodically organise mental <strong>health</strong> <strong>care</strong> services. Thus, the newly unfolding<br />

National <strong>Mental</strong> Health Programme hopes to be able to rely a great deal on the committed<br />

involvement <strong>of</strong> the <strong>voluntary</strong> sector to tackle the problem <strong>of</strong> mental illness in the<br />

community.<br />

In the field <strong>of</strong> mental <strong>health</strong> <strong>care</strong>, there are about 37 <strong>organizations</strong> working<br />

exclusively on mental <strong>health</strong>, and many more working in the areas <strong>of</strong> child and women,<br />

family welfare, Rural Development, community Development, Health education and youth<br />

welfare also have the mental <strong>health</strong> component in their work agenda. These latter<br />

<strong>organizations</strong> do work in the areas <strong>of</strong> mental <strong>health</strong> but not to a significant extent as their<br />

primary objectives are different.<br />

Apart from these 38 <strong>organizations</strong> working exclusively on mental illness, there are<br />

some more <strong>organizations</strong> working specifically on mental retardation. In order to fulfil the<br />

objectives <strong>of</strong> our study which attempts to dwell into the areas <strong>of</strong> curative, preventive,<br />

promotive, rehabilitative services, <strong>organizations</strong> dealing with mental retardation have been<br />

kept out <strong>of</strong> the purview <strong>of</strong> our study.<br />

81


elow.<br />

The details <strong>of</strong> the thirty eight <strong>organizations</strong> working for the mentally ill are furnished<br />

Table 3.3 Voluntary Organizations Working On <strong>Mental</strong> Illness In India<br />

Place Name Services rendered<br />

Madras SCARF Day <strong>care</strong>, rehab, custodial <strong>care</strong><br />

TTK<br />

Excl. for drug and alcohol addicts<br />

Sneha<br />

Suicide prevention<br />

Dr Bose Half way home (newly started)<br />

AASHA Forum for the families <strong>of</strong> mentally ill<br />

Asha<br />

Day <strong>care</strong>, Counselling and residential <strong>care</strong><br />

YWCA For destitute women<br />

Bangalore MPA Half way home<br />

Asha<br />

Half way home<br />

Vikas<br />

Halfway home<br />

Chetana Day <strong>care</strong> Centre<br />

Friends <strong>of</strong> Community based rehabilitation<br />

NIMHANS<br />

CADABAMS Custodial <strong>care</strong><br />

Nava Chetana Counselling and Day <strong>care</strong><br />

Atma Shakthi Halfway home<br />

Vidyalaya<br />

Pushkara Day <strong>care</strong>, residential and rehabilitation<br />

CREST Family counselling<br />

AMEND Association for the mentally ill<br />

Prasanna Counselling<br />

Vishwas Counselling<br />

Helping hands Counselling for emotional distress<br />

Dlpti<br />

Counselling for marital discord<br />

Apsara<br />

Counselling<br />

Family<br />

fellowship<br />

Society for Half way home<br />

Psychosocial<br />

Rehab. Service<br />

Sanjivani Out patient clinic and rehabilitation<br />

Abhaya Drug and alcohol addiction<br />

Manasa Rehabilitation <strong>of</strong> Destitute women<br />

Kerala Somana Half way home<br />

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Table 3.3. Voluntary <strong>organizations</strong> working on mental illness in India (Contd)<br />

Place Name Services rendered<br />

Dharwad Sowmansya Rehabilitation and research<br />

Antara<br />

Day <strong>care</strong>, counselling and residential centre<br />

Samaritans Day <strong>care</strong>, counselling and residential centre<br />

West Reach Day <strong>care</strong> counselling and residential centre<br />

Bengal Pari- Day <strong>care</strong> counselling and residential centre<br />

purnatha<br />

Hyderabad Sahaya Suicide Prevention<br />

Madurai Shristi Rehabilitation <strong>of</strong> the mentally ill<br />

Trichy Sowmanasya Treatment for all psycho disorders<br />

Delhi Sanjeevini Day <strong>care</strong><br />

Agra Manasik Shakti Counselling and after <strong>care</strong><br />

Kendra<br />

Voluntarism- a Historical Perspective<br />

Voluntarism is seen as typically oriented to the service <strong>of</strong> the victims <strong>of</strong> the state and<br />

civil society, the principle goal being existential amelioration <strong>of</strong> victim groups. Its ideology<br />

does not question why the victim groups become and remain so; its ideology if it may be so<br />

called is based on the perception that every society would have victims who need to be <strong>care</strong>d<br />

for (Baxi, 1986).<br />

According to Baxi, 'Voluntarism is marked by its well bred horror <strong>of</strong> politics and<br />

power, which are regarded as genuinely apolitical. Voluntarism is either revivalistic or<br />

millenarian in its character. Concrete bonds <strong>of</strong> compassion and caring, fellowship <strong>of</strong><br />

suffering, hark back to communitarian ethos, stressing the good in self and society and<br />

shunning the potential for evil avarice and domination in human beings. Creation <strong>of</strong><br />

community solidarity, not achievement <strong>of</strong> political emancipation is a hallmark <strong>of</strong><br />

voluntarism, At its best, it promises a millennium where we shall all recover our hwnanity<br />

83


through the conununity which will marginalise the state' (Baxi, 1986). Baxi discusses about<br />

voluntarism and activism thus. According to him, activism seeks to empower the victims.<br />

It is based on some manifest or latent critique <strong>of</strong> the organization, <strong>of</strong> the distribution <strong>of</strong><br />

power in the society. The critique is based and finds its raw material in the pathology <strong>of</strong><br />

power. It unmasks the negative repressive power and is characterised by militant and radial<br />

interrogation <strong>of</strong> power in the title <strong>of</strong> 'justice'. Activists are mostly in talking terms with state<br />

power. They confront it, ambush it, overbear it when they can and also employ it if it serves<br />

their ends (Baxi, 1986)<br />

Voluntarism is seen as a phenomenon <strong>of</strong> capitalist society in which the public is<br />

required to <strong>of</strong>fer correction to vested interests, either prevalent in the Government or in<br />

business. It is expected to give necessary correction, otTer experimentation, innovation and<br />

research besides being its 'watchdog' (Nanavathy, 1996). In India, after independence,<br />

Nehru's leadership provided a liberal policy <strong>of</strong> sponsoring the <strong>voluntary</strong> sector, especially<br />

in the planning <strong>of</strong> developmental activities for social welfare. Many <strong>organizations</strong> sprang<br />

up during this period.<br />

Since independence, <strong>voluntary</strong> <strong>organizations</strong> have been recognised as servers <strong>of</strong><br />

humanity and honoured publicly with national awards. The required infra-structure for<br />

<strong>of</strong>fering financial aid to <strong>voluntary</strong> agencies was established to support <strong>voluntary</strong> efforts.<br />

Initially, there was little difference between political leaders and <strong>voluntary</strong> workers. But<br />

During the emergency period, a clear distinction was seen between them. Since <strong>of</strong>ten the<br />

financial resources could only be mobilised by the social activists through permission <strong>of</strong> the<br />

state rules and regulations, a new group <strong>of</strong>' Power brokers' have come into existence.<br />

Roy describes the power brokers as selfish bureaucrats who make lot <strong>of</strong> forei!;,'Tl<br />

money, take huge salaries on the pretext <strong>of</strong> helping the rural poor. According to him, these<br />

<strong>voluntary</strong> <strong>organizations</strong> possess a lot <strong>of</strong> foreign funds and pretend to speak up for the rural<br />

masses (Roy, 1986).<br />

84


Emergence <strong>of</strong> VOs<br />

VOs emerged due to various reasons, either because <strong>of</strong> discontentment with<br />

Government services or because <strong>of</strong> Government initiation and support. Some <strong>organizations</strong><br />

emerge due to local needs or in response to a natural calamity, some others due to an<br />

established plan to promote large scale development efforts. They may also be the result <strong>of</strong><br />

a direct <strong>of</strong>tshOolOf organised efforts by locally recognised or unrecognised political or<br />

religious elements.<br />

NGOs have a crucial role to play in the development <strong>of</strong> any country. They take up<br />

social work under challenging circumstances and develop innovative approaches to<br />

problems. Educating the masses about their environment, <strong>of</strong>ten referred as<br />

. conscientisation',- by Paulo Fraire, is generally accepted by the VOs as the basic aim. The<br />

approach combines political education, social organization and grassroots development. It<br />

helps the people to perceive their exploitation and to realise the opportunities they have for<br />

overcoming such exploitations through mass organization. Conscientisation it is claimed<br />

will also liberate the oppressors.<br />

Their internal structure and linkages have given them the advantage <strong>of</strong> forming<br />

global networks <strong>of</strong> citizen pressure. Clarke comments thus, 'Because <strong>of</strong> their size and<br />

flexibility, they are able to experiment with new approaches to the crises and through<br />

demonstration serve as pioneers or catalysts for government action. Because <strong>of</strong> their access<br />

to media, they reach out to public and because <strong>of</strong> their non-interest in making pr<strong>of</strong>it they are<br />

trusted by the public' (Clarke, 1990).<br />

NGOs have frequently demonstrated their ability to help those in need especially<br />

those missed out from the <strong>of</strong>ficial aid prgrammes. They have been pioneers in new<br />

approaches and keep challenging the development orthodoxy. Smallness among the NGOs<br />

have always been advantageous to them in comparison to the giant programmes <strong>of</strong> the<br />

Governments which are so <strong>of</strong>ten criticised. But sometimes small also means insignificant<br />

85


and therefore these NGOs aim at maximizing their impact and maximizing the value <strong>of</strong> the<br />

lessons drawn from their experience without sacrificing the quality <strong>of</strong> their programmes.<br />

Clarke observes that usually 'it is the governments that we the public love to hate;<br />

NGOs can't be suspect. It is large bureaucracies we mistrust; small, <strong>voluntary</strong> <strong>organizations</strong><br />

are our friends. It is the- pr<strong>of</strong>it-motive that·we find vulgar; altruism is noble' (Clarke, 1990).<br />

All Non-Governmental <strong>organizations</strong> (NGOs) undergo evolutionary cycles. Jeffery<br />

refers to four stages which, according to him, all <strong>organizations</strong> pass through, viz., 1. start-up,<br />

2. expansion 3. consolidation and 4. close-out. (Jeffery, 1992).<br />

Organizational evolution is neither static nor unidirectional. Each organization has<br />

its own stages <strong>of</strong> evolution. Some follow all these stages mechanically. Most <strong>of</strong> them are<br />

found to follow less predictable course. Some do not follow all the stages and some reverse<br />

the direction only to re-reverse later on. When start-ups fail, close-out takes place. Some<br />

c1ose-out on one area <strong>of</strong> work and spin out new programmes and thus close-out and start-up<br />

simultaneously.<br />

Jeffery observes that start-ups may be <strong>of</strong> two kinds, one which is organic or self<br />

generating in its origin and internally financed, at least initially, and those established with<br />

external financing, conceptual and technical support. Internally financed NGOs are smaller<br />

in size, pursue moderate goals related to the immediate needs and resource capacity <strong>of</strong> the<br />

surrounding country.<br />

An externally initiated NGO may build around locally perceived needs or may<br />

promote an externally designed development approach. It may build on existing local<br />

institutions and capacity or import a new organizational model. Some <strong>organizations</strong> are<br />

more likely to be large, expand greatly and have broader goals (Jeffery, 1992).<br />

The externally assisted <strong>organizations</strong> <strong>of</strong>ten undertake programmes pretested<br />

elsewhere and ideally pilot test before they extend their organization. The approaches<br />

86


followed by these <strong>organizations</strong> differ. Some follow' welfare' approach wherein the NGO<br />

provides all the services without any charges. Some others may opt for a 'contributory<br />

approach' which requires material input and individual responsibility from the beneficiaries.<br />

The purpose <strong>of</strong> this approach is to encourage local participation and community<br />

involvement.<br />

. Externally assisted <strong>organizations</strong> are characterised by formalised leadership,<br />

administration and managerial approach than the unassisted grassroots <strong>organizations</strong>. Higher<br />

level <strong>of</strong> institutional accountability is witnessed since external financial support will be<br />

stopped otherwise.<br />

Externally assisted NGOs have some advantages over the self-financed NGO. They<br />

get outside technical assistance, field experience <strong>of</strong> the funding Organization, political and<br />

economic leverage that the funding organization gives and above all they can take risks and<br />

recover from past mistakes.<br />

Organizational Expansion<br />

Organizations expand due to various reasons either because <strong>of</strong> the increase in<br />

beneficiary coverage, in the number <strong>of</strong> services provided, or enlargement <strong>of</strong> the current<br />

project area. Planned expansion is an outcome <strong>of</strong> an increase in the available resources.<br />

When the expansion is spontaneous it brings about financial crises as it is unplanned and<br />

brings stress to the organization and its members as the expansion was unexpected.<br />

Problems <strong>of</strong> accounting and monitoring also increase due to additional funding either from<br />

the same donor or from different donors.<br />

Successful expansion happens when the Organization has evolved constitutionally<br />

to the point where it can manage the augmented level <strong>of</strong> activities effectively, and can<br />

finance itself into the foreseeable future. Most <strong>organizations</strong> wish to retain necessary level<br />

<strong>of</strong> programme autonomy from external actors, and provide desired and sustainable services<br />

to their target beneficiaries (Jeffery, 1992). Roy comments, 'Expansion means complexity<br />

87


and complexity means decay. Regrettably this also applies to <strong>voluntary</strong> <strong>organizations</strong>!' (Roy,<br />

1988).<br />

Organizational consolidation is another process that some <strong>of</strong> the <strong>organizations</strong><br />

undergo. This occurs when the project taken up by the expanded section <strong>of</strong>the organization<br />

is completed or when there is a financial crisis leading to retrenchment <strong>of</strong> staff and related<br />

managerial problems. Planned consolidations are the result <strong>of</strong> <strong>system</strong>atic evaluation, timely<br />

incorporation <strong>of</strong> lessons learnt and strengthening <strong>of</strong> administrative, monitoring and<br />

evaluation capacity as required.<br />

Internally induced consolidation depends on various factors, eg., -early recognition<br />

<strong>of</strong> the problem, dynamic leadership, institutional will, willingness to make unpopular<br />

decisions, access to necessary resources, luck, relative autonomy from donors. Externally<br />

induced consolidation depends on:- financial security, external allies, well-established<br />

Organization, committed membership, clear definition <strong>of</strong> programme niche, etc.<br />

Organizational Close-outs<br />

A close-out can be defined as either a full scale termination or a partial reduction <strong>of</strong><br />

project activities. An NGO closing out in one area may expand elsewhere; that net effect<br />

may be an aggregate growth in the program size. In some areas the NGOs may replace one<br />

particular activity with a new array <strong>of</strong> follow-up programmes <strong>of</strong> greater immediate<br />

relevance.<br />

Close-outs may be planned, either internally induced or externally induced. Some<br />

close-outs occur in phases and diminish gradually. In some cases, close-outs are 'damage<br />

contro\' devices to reduce the losses <strong>of</strong> badly designed projects or failed consolidation<br />

attempts. Close-outs occur for various reasons, for instance, if the objectives are met and the<br />

programmes successfully completed or in case if the projects is are unsuccessful and cannot<br />

be retrieved. In some cases the beneficiaries have to be prepared to undertake the projects<br />

on their own.<br />

AA


Other reasons for close-outs could be faulty start-ups, foolhardy expansions, badly<br />

managed or belated consolidations. Many <strong>organizations</strong> depend on charismatic leaders<br />

whose disappearance might cause close-outs. Internal corruption, managerial incompetence,<br />

a change in the political climate may also bring about such a situation. Dependence on<br />

external technical assistance, pressures from donors;controversiai anti~authority stance <strong>of</strong><br />

the NGO in support <strong>of</strong> their beneficiaries may also sometimes bring about the downfall.<br />

As the Organization weakens, its monitoring also weakens. The level <strong>of</strong> institutional<br />

maturity <strong>of</strong> the organization determines whether the close-out is <strong>voluntary</strong> or in<strong>voluntary</strong>,<br />

complete or incomplete. Those undergoing in<strong>voluntary</strong> close-outs are <strong>of</strong>ten associated with<br />

administrative lapses. Their performance may at best be sporadic. Those who are fully and<br />

voluntarily closing out do so in a formal and procedural manner (Jefferey, 1992).<br />

Unintended close-outs have a detrimental effect on project beneficiaries. They may<br />

produce significant financial losses, unmanageable debts or political disfavour which may<br />

make ex-beneficiaries worry about future participation.<br />

Strengths and weaknesses <strong>of</strong> NGOs<br />

People' participation, - one <strong>of</strong> the main pre-requisites <strong>of</strong> sustainability is to secure<br />

effective citizen's participation in decision-making. It is one <strong>of</strong> the main ingredients <strong>of</strong> any<br />

non-governmental <strong>organizations</strong>' programmes. Beneficiaries participation has been<br />

recognised as a major reason for the continuation <strong>of</strong> the programmes. Good programmes<br />

tend to evolve holistic and integrated approaches.<br />

Innovation has been another positive trait <strong>of</strong> the NGOs. The staff have greater<br />

flexibility to attempt, experiment, and adapt new approaches. Flexibility is mainly due to<br />

the smallness in size. Those involved in decision-making are few. Generally the local<br />

<strong>of</strong>ficials do not participate in the NGO decision-making programmes. Since the scrutiny<br />

from outside agencies is limited, the individual leaders are free to develop their own ideas.<br />

89


Sometimes the individuals may be led by untested approaches and the programmes may<br />

then suffer from 'amateurism'. Since the investment - financial and <strong>of</strong> effort - are small, a<br />

failure can also be a lesson learnt at lower cost.<br />

Smallness <strong>of</strong> the NGOs helps them to formulate their programmes. Large<br />

<strong>organizations</strong> face many complex problems. There may be omplexities arising from internal.<br />

tensions due to personality, control over resources or just difficulties inherent in organising<br />

the nitty gritties <strong>of</strong> functioning. Commitment <strong>of</strong> staff is another strength <strong>of</strong> the NGOs. The<br />

staff <strong>of</strong> a good NGO, share common values and beliefs and are prepared to work for long<br />

hours for low or even no pay. The staff imbibe commitment towards the <strong>organizations</strong>'<br />

goals and dedicate themselves to its stability and growth.<br />

Leadership is another important aspect that determines the strength <strong>of</strong> the<br />

organization. There are two types <strong>of</strong>leadership viz., charismatic which is characteristic <strong>of</strong><br />

people with a vision. They lead the organization by inspiration and personal qualities. Some<br />

<strong>of</strong> them maintain an ill-defined structure, which tends to encourage dictatorial decisionmaking.<br />

In such cases, <strong>organizations</strong> stagnate when the leaders are away. They are also<br />

prone to decay and die when the leaders move on. These leaders cannot be easily replaced<br />

and are likely to be so dogmatic in their approach that their adverse may bring about an<br />

absence <strong>of</strong> a motivator (Tendler, 1987). In some kinds <strong>of</strong> <strong>organizations</strong>, the decision-making<br />

becomes committee bound and staffs have no say in the matter. The committee members<br />

who are usually the decision-makers are so distant from the staff that are involved in the<br />

programmes that decisions may not address the problem properly or adequately. The<br />

committee members are usually honorary members and receive no remuneration. Though<br />

this is part <strong>of</strong> the <strong>voluntary</strong> ethose, it also distances the higher-level decision-making from<br />

direct experience <strong>of</strong> the organization's work.<br />

In some <strong>organizations</strong>, the leaders are committed to participation. They share the life<br />

<strong>of</strong> the staff in the field even when it is not intensively done. They like decision-making to<br />

be a collegial process within a tight management structure (Brown, 1988). In such <strong>system</strong>s<br />

also problems can arise. The involvement <strong>of</strong> all the staff in decision-making may sometimes<br />

90


ecome very cumbersome for arriving at decisions. Under such circumstances, conflicts get<br />

highlighted and give rise to factions among the staff. Different staff members perceive the<br />

freedom to act and perception <strong>of</strong> their own role without reference to a strongly defined<br />

overall mission. Thus, according to Brown, achieving the right balance between strong<br />

leadership which ensures the resolute pursuit <strong>of</strong> strong ideas and openness <strong>of</strong> style which<br />

ensures all staff feeling properly valued is the greatest management challenge for NGOs,<br />

particularly as they grow in size. It is a problem that a few have cracked (Brown, 1988).<br />

Many problems are also foreseen by the NGOs. Among the many problems are<br />

learning disabilities and unclear concept <strong>of</strong> accountability. In the words <strong>of</strong>Biswajit Sen, the<br />

survival <strong>of</strong> NGOS has become delinked from their performance. He argues that close<br />

relationship between articulate NGO leaders and funding agencies and the resource rich<br />

environment in which NGOs work leads to an 'absence <strong>of</strong> pressures for performance for the<br />

NGOS which makes self-evaluation <strong>of</strong> their own work a non-priority' (Sen, 1986).<br />

One aspect <strong>of</strong> the NGO functioning that needs clarity confers around their<br />

accountability. To whom are they accountable? Is it to the trustees, donors, staff,<br />

government or the project partners. In some instances they may be seen variously<br />

accountable to all <strong>of</strong> them. Yet in other instances, some NGOs may escape accountability<br />

to all the elements. The "funding" individual can manipulate the small number <strong>of</strong> trustees.<br />

The donors cannot monitor their NGO partners well enough because <strong>of</strong> their distance from<br />

the field conditions. Staff is dependent on the leaders for their livelihood and unable to<br />

challenge their decisions. The Government bureaucracy can be manipulated by powerful<br />

political patrons. In the ultimate analysis, it is aware citizenry alone can 'control' the<br />

leadership <strong>of</strong> corrupt and autocratic NGO leaders.<br />

NGO salaries should be lower than average but when they fall too low the<br />

pr<strong>of</strong>essionalism slides. Clarke observes that the reduced salary should reflect the<br />

'psychological pay' ,-the opportunity staff have <strong>of</strong> making a meaningful contribution<br />

personally. According to him, 'It is the performance <strong>of</strong> the staff and the appropriateness <strong>of</strong><br />

their judgement for which the NGO must be accountable' (Clarke, 1988).<br />

91


Relationships between Government and NGOs<br />

Friendly co-existence is present between the Govenunent and NGOs when the NGO<br />

requires less from the Government to perform its functions, does not seek to influence wide<br />

areas <strong>of</strong> development planning and where its tasks are not hampered by development<br />

activities. Government agencies also feel happy when they feel neither threatened nor··<br />

challenged and when the NGO tasks are not incompatible with its own objectives.<br />

In contrast, if the NGO subscribes to a development theory different from that <strong>of</strong>the<br />

Government, especially those NGOs that stress on people's participation, empowerment and<br />

democracy, Government agencies recognise their economic value but they see these<br />

elements as trouble-making. Tension tends to get generated between the two. NGOs can<br />

afford to oppose, complement or reform the state but cannot ignore it. During the past, the<br />

guiding asswnption was that development belonged to Government and Government alone.<br />

NGOs have attempted to influence state policies and services to improve the efficiency and<br />

equity <strong>of</strong> government services and to democratise state functions.<br />

The five L's <strong>of</strong> scaling up strategies <strong>of</strong> the NGOs has been,­<br />

Listening- listening to allies and critics.<br />

Learning- improving research and evaluation<br />

Linking- building networks and broad coalitions for effecting change<br />

Leadership- fostering leadership among the poor<br />

Lobbying- to influence those with access to much greater clout and resources (Korten,<br />

1986).<br />

Of all the problems, one <strong>of</strong> the most serious barriers to expanding the development<br />

roles <strong>of</strong> the NGOs has been the difficulty that they face in working with one another.<br />

Jealousies among them are very intense which break all collaborative efforts to work towards<br />

common goal. Breakdown <strong>of</strong> the networks take place under such circwnstances. Ironically,<br />

92


at times it is felt that it is easier for the NGOs to work with the Government than among<br />

themselves.<br />

In spite <strong>of</strong> many odds against them, the NGOs have paved their way through many<br />

development activities and have been successful in most <strong>of</strong> the areas, be it, educating the<br />

masses, uplifting the down trodden, empowering women, eradication <strong>of</strong> social evils,<br />

improving the <strong>health</strong> <strong>of</strong> the masses, creating social awareness on vanous problems, etc.<br />

Indeed, they have been, they are and they will be a strong force in bringing about change and<br />

development in the society.<br />

93


Chapter Four<br />

THE THREE CASES<br />

In order to understand the functioning <strong>of</strong> the <strong>organizations</strong>, an attempt has been<br />

made in this chapter to identify the different components that make these <strong>organizations</strong><br />

The three <strong>organizations</strong> covered in the study are also assessed from the point <strong>of</strong> view <strong>of</strong><br />

their origin, objectives, size, staff, leadership, philosophy, services.<br />

The three <strong>organizations</strong> selected as cases are: I) Medical Research Foundation, -<br />

MRF 2. Manasa Rehabilitation Centre, -MRC and 3. Royal Medical Society, -RMS.<br />

Origin <strong>of</strong> the Organizations<br />

MRF, - Medical Research Foundation, was founded in Madras in 1983 by three<br />

eminent psychiatrists. They started with a minimum amount <strong>of</strong> Rs. 3000/- by setting up a<br />

small centre in Madras City. In the words <strong>of</strong> one <strong>of</strong> the founding members, "In the<br />

beginning <strong>of</strong> MRF, whether Psychiatrist, Psychologist, or whatever, every person took<br />

part in all the jobs starting from opening the <strong>of</strong>fice, cleaning, filing, counselling, etc. It<br />

was like few people getting together to make a happy home." '<strong>Mental</strong> Research<br />

Foundation' is a consequence <strong>of</strong> the humble attempt made by a few to understand the<br />

mystery <strong>of</strong> Schizophrenia and to help those affected by this complex problem.<br />

MRC, - Manasa Rehabilitation Centre was started in 1973 in Bangalore. In the<br />

beginning it operated from the premises <strong>of</strong> YMCA, Young Mens' Christian Association.<br />

In 1975, MRC got its own building. The major donations to start with came from various<br />

Christian Missionaries. The Organization grew by the combined efforts <strong>of</strong> the medical<br />

personnel and Pastors with the objective <strong>of</strong> healing the physical body and shepherding<br />

the soul to wholeness.<br />

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RMS, - Royal Medical Society, began as a pilot project to house the mentally ill.<br />

This was set up in a farmland made available by some philanthropists RMS is located in<br />

the city <strong>of</strong> Ban galore in one <strong>of</strong> the calm residential areas. This is one <strong>of</strong> the 28 centres <strong>of</strong><br />

an International Society, whose other centres are in the different parts <strong>of</strong> the world. It is<br />

the only one <strong>of</strong> its kind functioning in India apart from the newly started association for<br />

the parents <strong>of</strong> the mentally ill at Bombay. The Bangalore house was to provide<br />

residential <strong>care</strong> facilities for \0 male residents. To support this endeavour, the parent<br />

organization, registered in London provided the services <strong>of</strong> a Co-ordinator to run the<br />

house. Encouraged by the success <strong>of</strong> the home, two years later, in 1988, the RMS<br />

headquarters secured financial assistance from the Overseas Development Administration<br />

(ODA) and European Commission to make it into a model house <strong>of</strong> the residential areas<br />

<strong>of</strong> the city with additional accommodation for II women.<br />

This house was deliberately placed in a residential area, the aim being to provide<br />

it in proximity to the larger community. The funding for the 'Model House' project<br />

ended in the year 1991. From then on it has been sustaining on its own.<br />

Objectives <strong>of</strong> the Organizations<br />

The objectives <strong>of</strong> the MRF are the following:<br />

1. Rehabilitation <strong>of</strong> patients suffering from schizophrenia<br />

2. Undertaking research in the field <strong>of</strong> schizophrenia<br />

3. Undertaking efforts to educate the public about schizophrenia to increase awareness<br />

and reduce stigma.<br />

MRC has the following objectives:<br />

1. To serve the needs <strong>of</strong> the whole person by the collaboration <strong>of</strong> the medical, pastora<br />

and other pr<strong>of</strong>essionals on a non- pr<strong>of</strong>it and charitable basis.<br />

2. To study and implement ways in which practitioners <strong>of</strong> the medical and pastoral<br />

pr<strong>of</strong>essions (Doctors, Nurses, Pastors, Psychologists, Teachers and Social<br />

workers)<br />

95


may co-operate in helping mentally disturbed persons in need <strong>of</strong> their services.<br />

3. To discover and understand more about psychosomatic problems.<br />

4. To provide counselling for those who need it.<br />

5. To give basic training to would be counsellors and workers <strong>of</strong> the Association.<br />

The objectives <strong>of</strong> the RMS are as follows.<br />

1. To <strong>of</strong>fer help to those who are chronically mentally and emotionally disturbed and<br />

need support to be rehabilitated and integrated with society.<br />

2. To create public awareness and to enhance people's understanding <strong>of</strong> themselves<br />

and the disabled.<br />

3. To promote mental <strong>health</strong> in the community, particularly by providing courses in<br />

personality development and humanism.<br />

4. To collaborate with all the activities <strong>of</strong> similar <strong>organizations</strong>.<br />

The organization proposes to achieve this by:<br />

Providing<br />

Training<br />

Conducting<br />

Organising<br />

Starting<br />

Promoting<br />

Taking<br />

Helping<br />

Utilising<br />

training to the staff in personal Development<br />

others in the same area<br />

courses in human relations and grollP_ work for interested persons<br />

seminars/workshops/symposia for the (lublic<br />

the therapeutic community movement<br />

similar half-way homes at other centres<br />

part in courses or related activities sponsored by others<br />

families <strong>of</strong> the disturbed to restructure behaviour patterns as a move<br />

towards <strong>health</strong>ier and more creative relationships<br />

community resources and helping those disturbed lead constructive lives<br />

with their own cultural milieu<br />

Organization Structures:<br />

MRF has been functioning for more than 17 years now. It has many centres,<br />

namely, a) Day <strong>care</strong> centre located in the city <strong>of</strong> Madras; b) Residential centre for<br />

women; and c) Residential centre for men; and d). two hostels, one for men and another<br />

for women.<br />

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MRF has its head <strong>of</strong>fice in the centre <strong>of</strong> the city <strong>of</strong> Madras The Day Care Centre<br />

is in the same building. It is a two-storied rented house situated in one <strong>of</strong> the posh<br />

localities <strong>of</strong> the city. It has a huge portico: in the portico, staff members conduct games,<br />

like volleyball and badminton for the patients during the evenings. There is an annexe<br />

with two small rooms-housingihe psychotherapy unit, which is used for psychotherapy<br />

sessions. The ground floor has vocational training unit for the men. It has a printing unit,<br />

a big hall, an extra room and a bathroom. The male patients occupy this floor. The first<br />

floor consists <strong>of</strong> the Director's chamber and the staff rooms. It has two big halls, one for<br />

the women patients to do their vocational jobs and the other where the staff give them<br />

therapies and exercises. There is a small kitchen where they prepare snacks, tea and<br />

juice. The second floor consists <strong>of</strong> the administration unit, library and computer rooms.<br />

In addition to the day <strong>care</strong> centre (DCC), the organization runs two residential<br />

centres (RC) in the outskirts <strong>of</strong> the city. At the time <strong>of</strong> our visit there was provision for<br />

the placement <strong>of</strong> 55 patients. Forty-five <strong>of</strong> them were women and the rest were men.<br />

There were some elderly men aged more than 60 years. The male residential centre was<br />

being built with a capacity for 50 men patients. This centre was started in 1995. The<br />

elderly male patients have now been shifted to the male RC. Apart from these, there are<br />

two hostels one for men and another for women, whose inmates attend the day <strong>care</strong><br />

programme in the day <strong>care</strong> centre.<br />

The hostels for men and women are situated near the DCC, in two separate houses<br />

with separate rooms for each patient. Food is provided for the patients. The patients are<br />

charged according to their economic status. The residential centres are situated in the<br />

outskirts <strong>of</strong> the city.<br />

These centres are built on a large open space. There are two main blocks. One is<br />

a two storied building. It has the <strong>of</strong>fice, Kitchen, storeroom and a dining hall in the<br />

ground floor. The occupational therapy unit and the stock room are in the second floor.<br />

The other block houses the patients. There is a long corridor and the rooms are located<br />

on either side <strong>of</strong> the corridor. There is no privacy for the patients as the rooms are<br />

97


separated from each other only by a wall. There are no doors for the rooms. They<br />

resemble <strong>of</strong>fice cubicle. The rooms are very small just enough to fit a cot, cupboard,<br />

table and a chair. There are a few independent cottages with all facilities for those<br />

patients. This has a veranda, a hall, a bedroom, a kitchen and a bathroom. The patients<br />

who can manage by themselves and are willing to pay the fairly high deposit required are<br />

accommodated here.<br />

MRC is situated in a very calm and peaceful area on the fringes <strong>of</strong> the Bangalore<br />

City. It is housed in one <strong>of</strong> the ancient colonial Bungalows with a huge garden. There is<br />

a lot <strong>of</strong> open space around the home. The residential quarters for the inmates are situated<br />

in the middle. On one side is the administrative block which houses the staff room and<br />

the therapy room. On the other side is an indoor auditorium, which is also used for<br />

games, Yoga therapy and recreational activities. Adjacent to this is the hostel building<br />

for those inmates who are either studying or working. Behind the main building, which<br />

houses the inmates, there is a line <strong>of</strong> houses for the servants and the cooks. The main<br />

building consists <strong>of</strong> the residents' rooms, occupational therapy room, classroom, dining<br />

hall, kitchen, storeroom and accommodation for the house parents. The half-way home<br />

has a capacity to take in 24 inmates with 3 inmates sharing one room. To take <strong>care</strong> <strong>of</strong> the<br />

inmates, a couple work as house-parents who live in the same campus and create a homelike<br />

atmosphere for the inmates.<br />

Initially, RMS had two residential therapeutic community half-way homes. One<br />

<strong>of</strong> the residential centres is located in the city along with the head <strong>of</strong>fice and the other in a<br />

sub-urban residential area. This sub-urban centre is now under modification. Recently, it<br />

has started a day <strong>care</strong> centre and a group home on the lines <strong>of</strong> long term rehabilitation.<br />

The half-way home has a very serene and homely atmosphere. It looks like any<br />

other beautiful house with a nice garden. It has many rooms with good light and<br />

ventilation. The house has two floors and an outhouse. The inmates reside in the main<br />

house, which is equipped with a huge hall, bedrooms, dining space and a kitchen. The<br />

women inmates live in the ground floor and the men in the first floor. The house has lot<br />

98


<strong>of</strong> space for moving around. The first floor has a large terrace where the inmates spend<br />

their evenings. Some inmates also use this space for doing exercises. Both the floors<br />

have a small annexe. The ground floor annexe accommodates the administrative <strong>of</strong>fice<br />

and the first floor annexe is occupied by the house manager's family. The outhouse is<br />

used by the staff members for storing medicines, conducting staff meetings and<br />

counselling sessions for the individual patients and their families. On the whole, the<br />

house is very cosy, comfortable and homely.<br />

Another centre is situated about three kms. away from the above centre, in a very<br />

calm sub-urban area that has a few houses and lot <strong>of</strong> greenery. The centre occupies two<br />

separate buildings. One is for counselling and staff desks, has a large hall, a sitting room<br />

for staff. The rooms are spacious. The other adjacent building houses the inmates. It has<br />

a hall, two bedrooms filled with bunk beds, a kitchen and a dining space. The<br />

architectural style <strong>of</strong> the house is that <strong>of</strong> <strong>of</strong> a typical home. The house is spacious and<br />

has a big garden outside, which is used by the inmates to play games and for relaxation.<br />

A social worker and a cook reside on the campus and volunteers keep visiting to organise<br />

activities for the inmates. This Centre is also being modified at present.<br />

The unit <strong>of</strong> the Royal Medical Society was started two years back exclusively for<br />

the parents <strong>of</strong> the mentally ill. Another unit was established in Tumkur near Bangalore,<br />

in association with a charitable trust. Another half-way home for the rehabilitation <strong>of</strong> the<br />

Alcoholics and Drug Addicts has been registered. RMS has also set up a Group home<br />

Facility at the request <strong>of</strong> many families. This institution can accommodate about 12<br />

residents. The facility is taken <strong>care</strong> by one <strong>of</strong> the volunteers who was trained by the<br />

organization as a therapeutic community worker. She had been working at the half-way<br />

home for more than five years before she took the responsibility for running the group<br />

home. The group home facility is near the half-way home. It is situated in a big house<br />

built specially for this purpose. The <strong>care</strong>taker is given free food and accommodation to<br />

take <strong>care</strong> <strong>of</strong> the patients. Many <strong>of</strong> the patients go out for jobs. Most <strong>of</strong> them are<br />

independent and take <strong>care</strong> <strong>of</strong> themselves. This is a long stay home for Schizophrenic<br />

99


patients. Those who seek admission to this home are expected to pay a deposit <strong>of</strong> around<br />

5 lakhs, a part <strong>of</strong> which is returned when the patient wishes to leave the home.<br />

One <strong>of</strong> the latest institutional facilities added by the organization IS a centre<br />

<strong>of</strong>fering day <strong>care</strong> and vocational training for the mentally ill. This is situated in one <strong>of</strong><br />

the busy residential areas <strong>of</strong> the city. Though it is located in a crowded area, the centre<br />

itself has been built on a piece <strong>of</strong> land more than one acre. This centre was inaugurated<br />

in 1997 and started functioning from January 1998. Its built-in area consists <strong>of</strong> two<br />

storied building with a basement having a huge auditorium, which is used for functions<br />

and for playing games. The first floot consists <strong>of</strong> the reception, <strong>of</strong>fice, vocational<br />

training, dining and wash rooms. The staff members have been provided with <strong>of</strong>fice<br />

cabins. The centre has recently started a postgraduate course in Psycho-social<br />

Rehabilitation (August, 1999). The second floor occupies the classrooms for the<br />

students and dining rooms for students and faculty.<br />

Organization Leadership<br />

All the three <strong>organizations</strong> are headed by psychiatrists. Whether they are present<br />

In the organization or not, all the events <strong>of</strong> the organization are reported to the<br />

psychiatrists now and then. At MRF, a psychiatrist who is one <strong>of</strong> the founder members is<br />

the Director and Co-ordinator. She is a very experienced psychiatrist retired from the<br />

Government mental hospital. She is a charismatic leader and the staff are faithful and<br />

loyal to her. Because <strong>of</strong> her sincere efforts towards <strong>care</strong> and rehabilitation <strong>of</strong> the<br />

mentally ill, she has gained the respect <strong>of</strong> everyone. Her efficient leadership has resulted<br />

in a good team <strong>of</strong> staff working towards the goals <strong>of</strong> the organization. However, the<br />

future expansion <strong>of</strong> the organization is perceived by one <strong>of</strong> the members as being<br />

problematic since the second line <strong>of</strong> leadership has not yet emerged. According to him,<br />

the most crucial element in a big organization is the quality <strong>of</strong> leadership at all levels.<br />

100


When the organization is small, decision-making is informal and spontaneous.<br />

But when the organization grows big, its leadership has to be formalised. Sometimes the<br />

culture <strong>of</strong> the smaller organization persists which tends to burden the top and delays the<br />

emergence <strong>of</strong> leadership at lower levels.. The delay in transfer <strong>of</strong> leadership leads to a<br />

lag in the activities. In small <strong>organizations</strong>, a second line <strong>of</strong> leadership can be trained at<br />

lower risk to the leader. Bigger <strong>organizations</strong> would also function better if it is conceived<br />

as a combination <strong>of</strong> modules <strong>of</strong> smaller unit with largely self-sufficient and autonomous<br />

leadership all don the line. Inter-personal relationships in such modules are <strong>health</strong>y and<br />

there is greater b'TOUP dynamics among the members <strong>of</strong> the organization. When an<br />

organization grows big, there is heterogeneity and the staff are specialised in their own<br />

activities. Small <strong>organizations</strong> have better group dynamics. Their teamwork is <strong>health</strong>y<br />

as the members share responsibilities. Leadership in smaller <strong>organizations</strong> can be<br />

equalitarian in nature and not authoritarian. Our informant perceived that when the top<br />

charismatic leader goes, there could be some problems in the organization in terms <strong>of</strong> cooperation<br />

among the staff. He feels that the new leader may not be as efficient as the<br />

present one. However, the staff at MRF feel that good teamwork would continue in spite<br />

<strong>of</strong> change in leadership.<br />

One <strong>of</strong> the founding members commented that when MRF was small, it had all<br />

the advantages <strong>of</strong> being small. As it is growing bigger it is experiencing the pains <strong>of</strong><br />

growing big. He remarked, 'Small is beautiful. Rather small was beautiful. Though, <strong>of</strong><br />

course, one cannot deny the successful growth <strong>of</strong> the organization'.<br />

At MRC, a psychiatrist <strong>of</strong> the Government hospital heads the organization.<br />

However, he is not present in the organization throughout. A Psychiatric social worker<br />

supervises the functioning <strong>of</strong> the organization. In this organization, there is no second<br />

line <strong>of</strong> leadership as the other staff members are very young and they keep changing<br />

<strong>of</strong>ten. The leadership in this organization is not so charismatic or effective compared to<br />

that <strong>of</strong> MRF. Leadership is unable to enthuse the staff and supervision tends to be lax.<br />

Unlike MRF, there is a feeling that the staff do not function as a team.<br />

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At RMS, the leadership is similar to that <strong>of</strong> the MRC as the day to day<br />

supervision rests with a Psychiatric Social worker and the psychiatrists are not always<br />

present in the organization. Even though there has been much turnover <strong>of</strong> staff at RMS,<br />

there is always a second person to take over the responsibilities <strong>of</strong> the leader during<br />

hislher absence. The staff members are trained to take up responsibilities and change over<br />

<strong>of</strong> leadership occurs smoothly resulting at efficient teamwork. This is not the case with<br />

that <strong>of</strong> MRC. Most <strong>of</strong> the days the organization is run by the lower level staff without<br />

much monitoring<br />

At MRF, one can find a very powerful and effective leadership binding the staff<br />

together. Whereas at MRC, in spite <strong>of</strong> the organization being small, the leadership is not<br />

so strong, and the stafflack the drive to work efficiently because <strong>of</strong> weak monitoring. At<br />

RMS, the staff are trained to take up responsibilities and change over <strong>of</strong> leadership occurs<br />

smoothly resulting in efficient teamwork. Thus, the organization requires an efficient<br />

leadership and a trained staff who can takeover responsibilities in the absence <strong>of</strong> the<br />

leader<br />

Organization staff<br />

The staff at MRF are highly pr<strong>of</strong>essional and have learnt a lot through experience.<br />

The quality <strong>of</strong> service provided is also very good. Staff are predominantly women. Male<br />

staff tend to leave due to the following reasons, - insufficient job security, lower<br />

remuneration than in other commercial and governmental organization. Successful and<br />

<strong>care</strong>er minded workers opting for more remuneration hardly stay in the organization.<br />

They opt for better avenues <strong>of</strong> job where pay packets are higher.<br />

One <strong>of</strong> the members <strong>of</strong> the organization commented, 'commitment can get<br />

exhausted if the remunerations are inadequate. More efficient staff can also get lured<br />

away by high salary <strong>of</strong>fers. Some may get enslaved by the organization, since they do<br />

not have inclination to risk change <strong>of</strong> jobs. Some get dejected by low pay and do not<br />

believe in the cause anymore, resulting in lacklustre performance. Those who are young<br />

102


keep looking for better options and gradually do not stay in the organization for long.<br />

Those who have the inner drive to do work committedly stick on to the organization'<br />

(April, 1994).<br />

To avoid the problem <strong>of</strong> staff turnover, a member suggested that, the salary<br />

structure should be changed. But this is a Herculean task according to one <strong>of</strong> the decision<br />

makers <strong>of</strong> the organization, since the organization provides free service to patients and<br />

receives no payments. It, therefore, cannot pay salaries on the same basis as the<br />

organised sector. The remuneration <strong>of</strong> the staff depends on the availability <strong>of</strong> funds.<br />

Acquiring funds has always been a difficult problem for the organization.<br />

The Day Care Centre (DCC) <strong>of</strong> MRF has 15 pr<strong>of</strong>essional staff including five<br />

Psychiatrists, two Social workers, two Psychologists, six administrative staff, 12<br />

supporting staff which includes two instructors, one public education <strong>of</strong>ficer, one<br />

statistical assistant, two cooks, three drivers, two watchmen and one maid.<br />

Each one <strong>of</strong> the residential centres is staffed with an occupational therapist, a<br />

social worker, superintendent, cooks and servants who live on the campus. Apart from<br />

this, the IDRC project staff at the rural centre consists <strong>of</strong> three social workers.<br />

MRC has, in its team, four psychiatrists who work for NIMHANS. These<br />

psychiatrists are not always present in the organization but the patients go and visit them<br />

in the hospitals for consultation and review. They have a counsellor, who is a<br />

psychologist and three social workers out <strong>of</strong> whom two live in the campus, one in charge<br />

<strong>of</strong> the hostel and the other in charge <strong>of</strong> the half-way home. A couple stays in the<br />

organization campus to take <strong>care</strong> <strong>of</strong> the residents and running <strong>of</strong> the organization. They<br />

are called the house parents and they are trained counsellors who can take <strong>care</strong> <strong>of</strong> the<br />

problems <strong>of</strong> the residents. They create a homely atmosphere for the statIo<br />

The administrative staff consists <strong>of</strong> an administrative <strong>of</strong>ficer, an accountant, a<br />

clerk and a secretary. Apart from these, there are about 15 volunteers, mostly women<br />

103


who organise various programmes for the inmates. Strikingly, one <strong>of</strong> their staff is also a<br />

patient <strong>of</strong> the organization and has been <strong>of</strong>fered job as a rehabilitation placement.<br />

The <strong>of</strong>fice is managed by an Administrative Officer, retired from the Ministry <strong>of</strong><br />

Commerce, Government <strong>of</strong> India. His responsibilities are taking <strong>care</strong> <strong>of</strong> the overall<br />

supervision <strong>of</strong> the organization and in charge <strong>of</strong> correspondence and most <strong>of</strong> all fund<br />

ralSlng.<br />

At RMS, great importance is gIVen to recruitment and training <strong>of</strong> the staff.<br />

According to one <strong>of</strong> the senior members, "Staff being the crucial ingredient by which the<br />

therapeutic community stands or falls, a staff member <strong>of</strong> the Therapeutic Community<br />

house has to be a jack <strong>of</strong> all trades. The staff member is somebody who can be<br />

therapeutic not only in his personality and his pr<strong>of</strong>essional discipline but also in his daily<br />

living. Hence, the staff <strong>of</strong> RMS are trained to deal with multifaceted problems".<br />

Each staff member is assigned to at least 3-4 residents. Their role is to encourage<br />

positive interaction between them, to give support to the residents and to carry out the<br />

duties and responsibilities towards the welfare <strong>of</strong> the whole household. They keep in<br />

touch with the residents' families and the Psychiatrist as and when necessary. The staff is<br />

also responsible for the day to day administration <strong>of</strong> the home. The staff come with a<br />

background qualification <strong>of</strong> Clinical Psychology or Psychiatric Social Work and also<br />

receive training under the training programme <strong>of</strong> the Fellowship.<br />

The organization staff consists <strong>of</strong> Psychologists and Social workers. There is a<br />

predominance <strong>of</strong> social workers among the staff. Though there is no psychiatrist<br />

available in the organization round the clock, the staff take the patients to their respective<br />

Psychiatrists in the hospitals whenever there is a need. The house manager is a social<br />

worker. She is very well qualified and has undergone lot <strong>of</strong> training in counselling and in<br />

the philosophy <strong>of</strong> the organization. She heads the clinical staff, and is assisted by a<br />

sociologist, trained in rehabilitation, psychotherapy and counselling. He has wide<br />

experience <strong>of</strong> working with the mentally ill and problem children. He has worked in the<br />

104


area <strong>of</strong> rural rehabilitation, administration and special education. His major jobs are to<br />

supervise and conduct various programmes, therapies for patients and families,<br />

management <strong>of</strong> clinical records, maintenance and documentation <strong>of</strong> records, supervision<br />

<strong>of</strong> staff, allocation <strong>of</strong> duties to staff members and co-ordinating their activities.<br />

According to him, the i"equirements <strong>of</strong> staff working-ina-therapeutic community<br />

are as follows: a) willingness to work; b) minimum insight and perception; c) personal<br />

commitment; and d) service to others. Other therapeutic staff are a Psychologist and<br />

three social workers, <strong>of</strong> whom one resides in the home. These staff are responsible for<br />

the day to day running <strong>of</strong> the home and are guided by the house managers. The<br />

administration section consists <strong>of</strong> an Officer and a Secretary who take <strong>care</strong> <strong>of</strong> all the<br />

administrative work. The other helping staff members are a cook, a helper and a servant.<br />

All are well acquainted with the activities <strong>of</strong> the organization and are very much involved<br />

in creating a congenial atmosphere for the patients.<br />

The staff teams in the three <strong>organizations</strong> differ a great deal, though basically they<br />

have similar qualifications. At one end there is the pr<strong>of</strong>essional team <strong>of</strong> experts at MRF,<br />

but the atmosphere there is very formal. At MRC, generalists predominate and<br />

atmosphere is informal. They work under the guidance <strong>of</strong> experts. At RMS there is a<br />

good balance <strong>of</strong> pr<strong>of</strong>essionalism and at the same time an infom1al community set up.<br />

Services and Functions<br />

MRF has its head <strong>of</strong>fice in the centre <strong>of</strong> the City, which caters to Day <strong>care</strong><br />

service, Counselling and Occupational therapy for the patients. All these services are<br />

<strong>of</strong>fered free <strong>of</strong> charge. Day <strong>care</strong> services are <strong>of</strong>fered from 9:30 AM to 4:30 PM. on all<br />

working days. Individual counselling, group therapy, vocational counselling and job<br />

placement are the other services provided. Most <strong>of</strong> the patients fall in the age group<br />

between 18-75 years.<br />

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The following table illustrates community projects <strong>of</strong> MRF<br />

Table 4.1. Community projects <strong>of</strong> MRF<br />

Project MRFOXFAM MRF IDRC<br />

(Rural)<br />

Period 1987 onwards 1988 onwards<br />

Service Area 88 villages . 202 villages<br />

Outpatient Monthly Fortnightly<br />

Clinic<br />

Training group Health workers <strong>Mental</strong> Health workers<br />

and Volunteers<br />

Community Film shows, talks, Film shows, talks,<br />

awareness pamphlets villupattu,(F olk sonf!)<br />

Rehabilitation Home based Job placement, tapping<br />

programme, financial sources for<br />

fami ly interaction loan, starting small busireferral<br />

to other ness like sauce shop,<br />

centres<br />

agricultural activities,<br />

etc.<br />

Subject Identification <strong>of</strong> Identification <strong>of</strong> mentally<br />

mentally ill<br />

ill,<br />

Survey <strong>of</strong> area,<br />

Rehabilitation,<br />

Domiciliary delivery <strong>of</strong><br />

medicine<br />

IDRC - InternatIOnal Development Research Centre<br />

Oxfarn - a funding agency (England)<br />

Source: MRF Report, 1994.<br />

MRF Slum Project<br />

1992 onwards<br />

5 slums<br />

Weekly<br />

Health Aids from the<br />

local VO working on<br />

<strong>health</strong><br />

film shows talks<br />

Assistance to agencies<br />

undertaking rehabilitation<br />

like centres for<br />

mentally retarded,<br />

addiction etc.<br />

Identification <strong>of</strong> mentally<br />

ill,<br />

survey <strong>of</strong> the area<br />

The organization <strong>of</strong>fers rural services in one <strong>of</strong> the Taluks <strong>of</strong> the state. The staff<br />

visit the place once a month and also train <strong>health</strong> workers and volunteers who stay on the<br />

Job throughout the month. Similar service is <strong>of</strong>fered in another rural area near the city<br />

once in a fortnightly basis. In collaboration with another <strong>voluntary</strong> organization, it holds<br />

weekly mental <strong>health</strong> clinic in five slums in the city.<br />

A tearn <strong>of</strong> four pr<strong>of</strong>essionals viz., two psychiatrists, one psychologist and one<br />

social worker visit the rural centre in the taluk every first Saturday <strong>of</strong> the month. A team<br />

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<strong>of</strong> one psychiatrist and two social workers visit the rural centre near the city fortnightly.<br />

MRF runs a project funded by the International Development Research Centre, IDRC, on<br />

"Community-Based Rehabilitation". This project has an <strong>of</strong>fice staffed with three social<br />

workers and trained <strong>health</strong> workers selected from the local village people. Another team<br />

composed <strong>of</strong> one psychiatrist and one public education <strong>of</strong>ficer visit the slums in the city<br />

weekly. The following table gives the approximate figures <strong>of</strong> the beneficiaries as told by<br />

one <strong>of</strong> the senior psychiatrists <strong>of</strong>MRF.<br />

Place<br />

Number<br />

Patients seen at MRF out-patient Department 3,500<br />

Patients registered in the vocational training centre 750<br />

Children receiving support from the Childrens' fund 300<br />

No. <strong>of</strong> patients seen in community services at<br />

a) taluk 2300<br />

b) rural centre near the city 500<br />

C)slum 75<br />

No. <strong>of</strong> patients at the residential centre 150<br />

The programmes and activities <strong>of</strong> the <strong>organizations</strong> can be classified as<br />

1) Research activities;<br />

2) Clinical services; and<br />

3) Educational services<br />

The psychiatrists in the organization are involved in vigorous research. The<br />

organization has been recognised by NN1HP (National <strong>Mental</strong> Health Programme). The<br />

research undertaken by it is recommended and recognised by the NN1HP. Its services<br />

have been found to serve as a model for replication at the national level. Many<br />

researches have been conducted by its team <strong>of</strong> psychiatrists in collaboration with WHO<br />

and ICMR. There are many ongoing research projects, apart from the various symposia<br />

and seminars that are organised at the national and international levels. Some <strong>of</strong> the<br />

projects <strong>of</strong>MRF are, -'Dementia', 'Quality <strong>of</strong> life' in colIaboration with the Government<br />

Psychiatric department and 'subjective well-being', in collaboration with the WHO.<br />

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As part <strong>of</strong> clinical services, MRF <strong>of</strong>fers services at various levels, identification <strong>of</strong><br />

illness, counselling, treatment and rehabilitation. The selection <strong>of</strong> the patients is<br />

restricted only to schizophrenia. Every patient who enters the organization is first<br />

screened by the psychiatrist who identifies the illness and later the patient is allotted to a<br />

team <strong>of</strong> one psychiatrist, one social worker and one psychologist. The social workers<br />

perfonn the jobs <strong>of</strong> tracing the illness <strong>of</strong> the patients, history <strong>of</strong> illness, onset <strong>of</strong><br />

symptoms, and establish a thorough case history <strong>of</strong> the patient. The psychologists<br />

examine the cognitive skills and social skills <strong>of</strong> the patient and also undertake behaviour<br />

analysis. Once the details about the patients are established, the team has meetings with<br />

the patient and the family members to draw a plan <strong>of</strong> action for hislher treatment. This is<br />

followed by further weekly meetings with the patients and the team, as well as individual<br />

sessions with each expert. During the day, the patients are engaged in occupational<br />

activities such as candle making, agarbathi making, screen printing for men and various<br />

handicraft works for women, like bag making, embroidery, etc. In the residential centres,<br />

two psychiatrists and one psychologist are available for consultation. These experts<br />

usually come from the DCC. The day-to-day functioning and management <strong>of</strong> the<br />

Residential centres is under the <strong>care</strong> <strong>of</strong> social workers.<br />

As part <strong>of</strong> public education service, MRF organises video shows, and meetings in<br />

schools, colleges, slums and villages. The organization has brought out a video cassette<br />

which is frequently telecast by the state and the national television network. Frequent<br />

talks on mental illness prepared by the organization are relayed on the All India Radio.<br />

Poster painting competitions on mental illness are organised every year during the mental<br />

<strong>health</strong> week. Pamphlets in both English and Tamil are circulated widely. An attempt is<br />

made to update them frequently. MRF has, among its staff, a public education <strong>of</strong>ficer, a<br />

sociologist who is entrusted solely with the responsibility <strong>of</strong> preparing education<br />

materials and various educational programmes<br />

Initially, MRC began with the objectives <strong>of</strong> counselling and awareness generation<br />

regarding mental illness. The first programme which caught the attention <strong>of</strong> the public<br />

mainly focused on suicide prevention programmes. Under this programme, the<br />

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organization trained about 63 volunteers in suicide prevention enabling them to give<br />

counselling to those who had attempted suicide. These volunteers visited hospitals in the<br />

City and talked to the concerned persons. They conducted a survey on this population.<br />

In this manner they could cover 159 persons, <strong>of</strong> which 112 records were completed and<br />

47 uncompleted. The data collected revealed that out <strong>of</strong> the 112 cases, most <strong>of</strong> them<br />

were men (76). The age group <strong>of</strong> these patients were mostly in the 15-25 years age group<br />

(79) and the next highest number was in the more than 25 years age group and the least<br />

among them were less than 15 years <strong>of</strong> age. Most <strong>of</strong> them were married (78) in number.<br />

The reasons for attempting suicide among the below 14 group were a) failure in the<br />

examination; and b) rejection and frustration. Among the adults, marital disharmony,<br />

frustration and fear were the main reasons for attempting suicide. Most <strong>of</strong> them took an<br />

overdose <strong>of</strong> sleeping pills or poison. A follow-up study was conducted by MRC with the<br />

help <strong>of</strong> volunteers. The organization planned to put up a play titled 'I want to live'. It<br />

took efforts in giving regular counselling to those prone to suicide. The significant<br />

achievement made during the first year <strong>of</strong> establishment was that nine potential suicide<br />

cases contacted the organIzation for help due to the publicity given to the programme.<br />

Though MRC did much in the field <strong>of</strong> "suicide prevention", at the moment not<br />

much is done in this area, except attending to the help-line calls from suicidal and<br />

depressed cases. Many who are depressed call up the organization and receive immediate<br />

suggestions to improve their mental status.<br />

In the initial days, study meetings had been held for the counsellors on 'Human<br />

encounter' and· Care <strong>of</strong> the sufferer from depression <strong>of</strong> spirit'. Another programme was<br />

implemented for an Institution <strong>of</strong> unwed mothers for three months. It was basically a<br />

counselling session for the unwed mothers. About twenty girls received counselling from<br />

the staff members trained in counselling.. The girls sought help from the staff for the<br />

following:<br />

I. To help them have confidence in themselves and be trusted and loved as before.<br />

2. To help them have courage to face the world either with or without the child.<br />

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3. To help them not to live a 'masked life'.<br />

4. To help them to be accepted by their family and society.<br />

One <strong>of</strong> the staff members reported, 'There was overall improvement in those who<br />

took counselling. Apart from the destitute, about 20 individuals also sought help and<br />

were given individual counselling. A majority <strong>of</strong> them showed total recovery and others<br />

showed improvement'. The organization also conducted training programme for priests<br />

and nuns on Marriage Counselling. As part <strong>of</strong> rehabilitation programme 16 alcoholics<br />

were admitted in the AIMH (presently NIMHANS) and out <strong>of</strong> those 6 were placed in<br />

jobs. Only one <strong>of</strong> them did well in the job, two did not take up the job and others left the<br />

job.<br />

Generation <strong>of</strong> awareness on mental <strong>health</strong> was taken up through "training" and<br />

communication media projects. As part <strong>of</strong> public education, the organization conducted<br />

symposia on 'Marriage and Suicide Prevention' and also made films on mental illness<br />

which were shown to the public. The films had very interesting themes. One <strong>of</strong> them<br />

was about the city and its growth and the problems arising with specific focus on mental<br />

<strong>health</strong>. The film was titled, 'Are the City and its Structures Planned to SatisfY Human<br />

Needs?' The film illustrated the problems faced in crowded cities and ended with the<br />

hope that a truly human city would arise out <strong>of</strong> the cold structure <strong>of</strong> stone. Another film<br />

had for its title, 'Between the Man in the Crowd and the Solitary Man, is there Anything<br />

in Common?' These films were shown to the masses to make them realise the importance<br />

<strong>of</strong> mental <strong>health</strong> and the problems <strong>of</strong> the mentally ill. Training courses in counselling<br />

were conducted for different groups <strong>of</strong> people, School Teachers, Nurses, Policemen,<br />

Priests and Nuns.<br />

During the seventies there was further progress in the direction <strong>of</strong> "service". A<br />

half-way home planned in the first year <strong>of</strong> the 70s was realised only in 1975. During the<br />

year 1974, the organization made an assessment <strong>of</strong> the previous year's achievements.<br />

According to the same, it was felt that the work carried out so far had been in harmony<br />

with the objectives set out. However, service to non-English speakers and children below<br />

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12 years needed to be stressed. The organization also had, as one <strong>of</strong> its objectives,<br />

increase in its membership.<br />

The year 1975 was a great mark for the organization for it was during that year<br />

the organization got its own building. In the words <strong>of</strong> one <strong>of</strong> the staff members, the<br />

Association 'has come on its own, building came up on the land granted by the Kamataka<br />

Government with co-operation from the Municipal Corporation Office. The phase <strong>of</strong><br />

. community involvement' started with the creation <strong>of</strong> a half-way home to rehabilitate the<br />

mentally ill'.<br />

During this year, the organization collaborated with other <strong>organizations</strong> such as<br />

YMCA to start a Counselling Centre and the Association <strong>of</strong> Social and Moral Hygiene<br />

and Karnataka State Productivity Council in conducting programmes to sensitise the<br />

public. It also associated with the Victoria Hospital and NIMHANS in organising study<br />

groups and programmes on suicide prevention. It became a Centre for training the<br />

students qualirying for Master's in Social Work in Suicide Prevention work and practical<br />

ways to make a study <strong>of</strong> the problem <strong>of</strong> suicide in Bangalore. The United Theological<br />

College requested the organization to give practical training for the students <strong>of</strong> Theology<br />

and Counselling on exposure to the problem <strong>of</strong> the wider society and problem solving<br />

with an inter-disciplinary approach. The organization also trained the staff <strong>of</strong> the Police<br />

Department on rehabilitation for those who attempted suicide.<br />

The various programmes carried out by the Organization can be summarised as<br />

follows:<br />

Programmes to sensitise Public<br />

- Organising public symposia<br />

- Relaying educational programmes on mental illness on All India Radio<br />

- Organising dramas in various places <strong>of</strong>the city<br />

- Publishing pamphlets and news-paper articles on mental illness.<br />

Training Programmes<br />

- Training on suicide prevention<br />

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- Training <strong>of</strong> counsellors on various aspects<br />

- Practical training on counselling to various groups.<br />

Services Rendered<br />

- To those who attempt suicide<br />

- Half-way home<br />

- Counselling centre in association with YMCA<br />

In 1975, MRC organised symposia on various themes, viz., 1. Prostitution, 2.<br />

Alcoholism, 3. Prevention <strong>of</strong> Suicide and 4. Play on . I want to live'. The training<br />

programmes during the year included programmes for volunteers on prevention <strong>of</strong><br />

suicide, nurses from the Government Victoria Hospital and students <strong>of</strong> the Bangalore<br />

University. The beneficiaries <strong>of</strong> the services included alcoholics and those who<br />

attempted suicide, admitted in two Government Hospitals. Twelve people from the<br />

Alcoholic Anonymous were helped by way <strong>of</strong> counselling during the year 1975. The<br />

staff <strong>of</strong> the organization once in every week viSited the suiCide cases admitted in the<br />

hospital and follow up was done in the YMCA counselling centre. Some <strong>of</strong> those were<br />

encouraged to start small enterprises and bank loans were provided for the same. During<br />

this year, MRC organised itself into various committees to manage different activities <strong>of</strong><br />

the organization. These committees are namely, -<br />

I. Managing committee<br />

2. Suicide Prevention Advisory committee<br />

3. Half-way home sub-committee<br />

4. Suicide Prevention Volunteers committee<br />

5. Counselling committee<br />

6. Public Relations and Education sub committee<br />

7. Building sub-committee<br />

8. Admissions committee<br />

9. Alcohol Education sub-committee<br />

10. Local Fund Raising committee<br />

11. Staff committee.<br />

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These committees take <strong>care</strong> <strong>of</strong> their respective responsibilities and thus share the<br />

overall functions <strong>of</strong> the organization. Each committee consists <strong>of</strong> the members <strong>of</strong> the<br />

organization, life members and the individual members, the staff <strong>of</strong> the organization and<br />

the volunteers <strong>of</strong> the organization.<br />

The special activity <strong>of</strong> the organization dlJrj ng the year 1980 has heen the Teachy<br />

Project which was funded by Oxfam to prepare educational kits for children and mentally<br />

retarded children. in particular. In the year 1981, one more Counselling Centre was<br />

started in one <strong>of</strong> the areas in the city. The membership <strong>of</strong> the organization steadily<br />

increased with ordinary members increasing to 78, life members increasing to 46. In the<br />

year 1982, a new turn took place in the Organization as women volunteers joined the<br />

association for the first time and the ordinary membership <strong>of</strong> the Organization rose to 100<br />

and life members increased to 51. In 1983, the two Counselling Centres one in a<br />

residential area in the city and the other at YMCA were closed due to lack <strong>of</strong> funds and<br />

dedicated staff.<br />

After five years, i.e., in 1987, the organization saw an increase in activities and<br />

an increase in membership, which totalled to 104. The activities <strong>of</strong> the organization<br />

included Counselling Training, Navajeevan hostel for those rehabilitated patients holding<br />

jobs, regular meetings <strong>of</strong> the parents or the guardians <strong>of</strong> the patients every month,<br />

improved occupational therapy programmes, preparing work manual for the staff. The<br />

organization also conducted a review study on the admissions and discharges <strong>of</strong> the first<br />

100 residents <strong>of</strong> the half-way home under the headship <strong>of</strong> one <strong>of</strong> the leading Psychiatrists<br />

in the city who is also a member <strong>of</strong> the organization. A workshop on transactional<br />

analysis was also held to re-orient the staff on the philosophy <strong>of</strong> the organization. Two<br />

more committees were added to the already existing 11 committees <strong>of</strong> the organization,<br />

viz., - half-way home Committee and Work Rehabilitation Committee.<br />

Services <strong>of</strong> the half-way home at MRC focus on the responsibility <strong>of</strong> the<br />

community towards the <strong>care</strong> <strong>of</strong> the individual once he returns to the society from the <strong>care</strong><br />

<strong>of</strong> the pr<strong>of</strong>essionals in the mental <strong>health</strong> field. One <strong>of</strong> the members <strong>of</strong> the organization<br />

113


commented, "The society and the family and the community should awaken to the fact<br />

that in their race for material gains, they have forgotten their obligations to the<br />

individuals who is lonely, lost, sick and deeply hurt. The individual when he returns after<br />

treatment will view them with suspicion. He may ruminate thus;<br />

"If you stop. in the street and look at me,<br />

If you give me your hand and take it,<br />

AIld if you then desert me,<br />

Do not be surprised<br />

When another comes to give me his hand<br />

If I hit him in the face"<br />

One <strong>of</strong> the parents <strong>of</strong> the residents while appreciating the role played by MRC in<br />

dealing with the residents, commented, 'some people have to see and touch love to know<br />

if it is there; others have a blind understanding <strong>of</strong> it'. The patients who are affected by<br />

mental illness have to be <strong>of</strong>ten told that they are being loved and the organization has<br />

been successfully imparting service, <strong>care</strong> and attention to the residents.<br />

In the first year <strong>of</strong> starting the half-way home, 24 persons were given admission,<br />

out <strong>of</strong> which 12 were alcohol addicts, 4 were drug addicts and 8 were suicide-prone.<br />

When the half-way home was first started one <strong>of</strong> the members <strong>of</strong> the Organization<br />

described thus; 'Half-way home is an artificial community where one can help an<br />

individual to remain a social being by taking more responsibility for himself and helping<br />

others share his feelings keeping in communication all the time. The tasks <strong>of</strong> the<br />

community is to be a therapeutic community, meaning that when mental illness cuts-<strong>of</strong>f<br />

an individual from his natural place in the community, the community itself can be a<br />

therapist in helping him find his own place back in the community'.<br />

After seven years <strong>of</strong> starting the half-way home a hostel was started for those<br />

patients who had reached a stage <strong>of</strong> taking up studies or work but still had not reached the<br />

stage <strong>of</strong> getting back home. AIld for those patients who were not accepted back home by<br />

the family. In the words <strong>of</strong> the house parents, " the individuals who come to us for <strong>care</strong><br />

114


and treatment are but pausing on a long and tiresome journey homeward ... Do we after<br />

having cherished and loved these individuals return them to society to be salvaged,<br />

ravaged and rendered insane again?" The starting up <strong>of</strong> the hostel was thus to extend<br />

<strong>care</strong> to the recovering persons so as to help them to help themselves.<br />

With the completion <strong>of</strong> the hostel building and quarteft> for the staff, viz .., house<br />

parents, cooks and gardener and an auditorium, Jv1RC attained the basic infra-structural<br />

facilities. The organization has a vast open space with lot <strong>of</strong> greenery and garden and the<br />

most striking feature <strong>of</strong> the organization is the discipline and cleanliness that is<br />

maintained.<br />

The hostel is meant for some <strong>of</strong> the patients who go out for jobs or for some<br />

educational course. They stay in the hostel rooms during the nights and have food in the<br />

mess <strong>of</strong> the half-way home. According to Sameer, the social worker who takes <strong>care</strong> <strong>of</strong><br />

the patients in the hostel, the patients have to be constantly supervised for cleanliness and<br />

maintenance <strong>of</strong> their rooms and personal cleanliness. They try to avoid him many times<br />

as they know that he would make them work. But, according to him, those staying at the<br />

hostel are much aware <strong>of</strong> their responsibilities and can manage by themselves. They<br />

have been residents <strong>of</strong> the half-way home in the past and are taught to take <strong>care</strong> <strong>of</strong><br />

themselves. During the time <strong>of</strong> the field visit about nine patients were staying in the<br />

hostel and all <strong>of</strong> them were young boys.<br />

The style <strong>of</strong> functioning in the two houses <strong>of</strong> RMS is basically informal although<br />

its day to day life is organised by a structured programme. Therapeutic community<br />

principles are followed in this programme. This reflects the ordinary pattern <strong>of</strong> a<br />

household. Rehabilitative activities form the core programmes. Regular habits are<br />

inculcated by setting times for getting up, personal <strong>care</strong>, meals and other activities<br />

because many residents have been incapacitated so far as normal routines are concerned.<br />

Throughout the week, the morning sessions have many work activities. Occupational<br />

therapy activities are set to individual needs, which help residents develop a number <strong>of</strong><br />

skills and the habit <strong>of</strong> work. Throughout, the emphasis is on group life. Residents also<br />

115


have individual counselling sessions with the staff. Families are involved from the very<br />

inception <strong>of</strong> placing their wards in the rehabilitation process, in the family therapy<br />

sessions and in the three monthly progress review meetings. Referrals to these homes are<br />

made by psychiatrists. The family and the applicant are invited to stay for a trial period<br />

ranging from 3-7 days. This gives him or her a chance to experience what the house is<br />

like and then to make the decision to live in the community. Since the establishment <strong>of</strong><br />

the society, more than 300 residents have received rehabilitation programme and are<br />

drawn from all over the country and even from neighbouring countries.<br />

To prevent the staff from undergoing burnout due to work stress and pressure,<br />

they organise retreat camps that cool their minds and make them introspect and build up<br />

more energy to deal with crisis situations.<br />

Such retreat camps are organised on holidays in a farmhouse belonging to one <strong>of</strong><br />

the staff. On that day the volunteers take <strong>care</strong> <strong>of</strong> the patients. It is a day that staff<br />

members wait as it gives them a great break. This break <strong>of</strong> routine is very much required<br />

to avoid monotony and frustration <strong>of</strong> following the same routine. This is very important<br />

for mental workers who undergo much fatigue.<br />

While giving counselling or treatment to the patients, it is very important to be in<br />

a good frame <strong>of</strong> mind or else they may not be able to convey what they want to and the<br />

patients too would not respect them and <strong>care</strong> for their advice. During the retreat day, all<br />

the staff members relax from their everyday routine. They discuss the problems faced by<br />

them in their work in the organization. They discuss each patient's case, their progress,<br />

problems and the future plans for the patient. Many <strong>of</strong> these discussions are not possible<br />

in the organization, as they demand privacy and uninterrupted thinking without any<br />

disturbance. Each staff member, therefore, also explains the individual cases that are<br />

being dealt by him or her to a senior staff member. Discussions within the group meeting<br />

<strong>of</strong> the staff do help them in sharing the problems faced by them and also to get a feedback<br />

from the other staff members. These exercises help them to learn through their mistakes.<br />

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Each one makes a critical assessment <strong>of</strong> oneself and the others, which helps them in<br />

improving their understanding.<br />

Training Programmes<br />

The parent society <strong>of</strong> RMS placed a Training Officer for a period <strong>of</strong> two years to<br />

start a training programme at Bangalore. In 1989, an In-service Training programme was<br />

organised by the RMS for the staff. This was a ten months course with two hours session<br />

twice a week. Based on this experience, The RMS India, modified the duration <strong>of</strong> this<br />

course <strong>of</strong> ten months to four months duration. After running the training programme <strong>of</strong><br />

four months duration, the Fellowship organised a National Workshop in the year 1992 on<br />

'Rehabilitation <strong>of</strong> the Chronically <strong>Mental</strong>ly Ill-Training and Research Needs'. The<br />

fellowship received support from the European Commission for this purpose and also<br />

from the Department <strong>of</strong> Science and Technology and the Indian Council <strong>of</strong> Medical<br />

Research. Based on the recommendations arrived at this workshop, the duration <strong>of</strong> the<br />

training programme was revised to six months and at present training programmes are<br />

held once in six months. From 1989-95, the RMS has trained about 39 parapr<strong>of</strong>essionals.<br />

The trainees have come from different parts <strong>of</strong> India. The organization<br />

has made a video on the approach to therapeutic community with suitable modifications<br />

to suit the Indian lifestyle, social and cultural milieu. This has been shown in different<br />

forums to get feedback on the same.<br />

As part <strong>of</strong> the activities <strong>of</strong> the organization, training programmes are conducted<br />

for various pr<strong>of</strong>essional groups and students. These training programmes are organised<br />

by the staff <strong>of</strong> RMS organization and this is only one <strong>of</strong> its kind in India with an<br />

emphasis on therapeutic community approach. These programmes cover the following<br />

aspects during the course.<br />

1. Therapeutic community management<br />

2. Residential management<br />

3. Experiential group work<br />

4. Creative group work<br />

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5. Counselling in the therapeutic community<br />

6. <strong>Mental</strong> <strong>health</strong> and mental illness, - current concepts and practices.<br />

The organization also <strong>of</strong>fers placement servIces for students from different<br />

universities and Departments and provides orientation courses to them. Apart from<br />

training the outsiders, the organization also gives training to the staff <strong>of</strong> the organization<br />

on the functioning <strong>of</strong> the organization and orients them in the management <strong>of</strong> the home<br />

and its various activities. Training programme for the newly inducted staff is also<br />

organised. This training takes place in a span <strong>of</strong> 25 days. They are trained on various<br />

aspects. They are given orientation to the organization structure and function, philosophy<br />

and policy. The new staff is oriented towards the race, colour, culture course, which<br />

raises awareness <strong>of</strong> one's own and other's prejudices and discriminatory practices and<br />

their impact. Other areas covered are therapeutic environment, Group dynamics and<br />

effective therapy.<br />

Philosophy and Approach<br />

All the three <strong>organizations</strong> aIm at rehabilitation <strong>of</strong> the mentally ill. Their<br />

approaches differ because <strong>of</strong> the different philosophies followed by them. The three<br />

<strong>organizations</strong> work on different philosophies with different approaches. MRF works on<br />

the principle <strong>of</strong> behaviour modification. This approach attempts to change the behaviour<br />

component <strong>of</strong> psychiatric disorders. In order to do this, the patient is encouraged to carry<br />

out a behaviour that he dislikes but which the society approves. This is combined with<br />

that <strong>of</strong> cognitive training that involves a change in their disordered ways <strong>of</strong> thinking.<br />

Cognitive training and behaviour therapy go hand in hand. The therapists follow what is<br />

called habit formation chart listing down the activities for each patient that enables them<br />

to modify their behaviour.<br />

MRC works on the approach <strong>of</strong> transactional analysis. In this approach the<br />

patients are encouraged to relate to one another in a group. The half-way home is an<br />

artificial community where one helps the individual to remain a social being by taking<br />

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more responsibility for himself and helping others share feelings while remaIrung In<br />

communication all the time. The community acts as a therapist in helping to find one's<br />

own place back in the community. Contingency management is followed to bring<br />

changes in the patients' undesired behaviour. It is based on the principle that if behaviour<br />

persists, it is being reinforced by certain <strong>of</strong> its consequences and if these consequences<br />

can be altered the behaviour should change. Similarly, a desired behaviour is further<br />

reinforced by way <strong>of</strong> approval and praise. These reinforcements are brought about<br />

through token economy for desirable behaviours. Token economy method gives scores<br />

for the individual on their various activities, like waking up early in the mornings,<br />

exercising, hygiene, communication, alertness, etc. They are assessed on these activities<br />

and then given cash incentives on the credits achieved. The cash incentive acts as an<br />

inspiration to behave well.<br />

RMS works on the philosophy <strong>of</strong> therapeutic community model. A stress is<br />

placed on understanding the human personality in <strong>health</strong> and illness from the context <strong>of</strong><br />

cultural and social factors in addition to individual variables. The trans-cultural<br />

differences in phenomenology, course, outcome and treatment <strong>of</strong> mentally ill are<br />

synthesised with the dynamic interaction with cultural factors. Inter-dependence is used<br />

therapeutically to a large extent. The cultural forms <strong>of</strong> dependency and dependability<br />

are made use <strong>of</strong>to achieve growth towards autonomy.<br />

MRF's objectives are towards day <strong>care</strong> and long term rehabilitation. It has a team<br />

<strong>of</strong> psychiatrists working throughout which is lacking in the other two <strong>organizations</strong>.<br />

Their day-to-day activities are hinged predominantly around vocational training and<br />

occupational therapy. The products made by them are sold outside. This is one <strong>of</strong> the<br />

sources <strong>of</strong> funds for the organization.<br />

In MRC, the patients are engaged more on day to day routine activities. Social<br />

skills training and various therapies aim at rehabilitating the patients back into their<br />

communities within relatively short span <strong>of</strong> say, 9 to 12 months. The patients are<br />

engaged in various activities that equip them to get back to their families to lead a normal<br />

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life. The approach in MRC and RMS is to help patients to develop or regain social skills<br />

training, which are more useful in their every day life. MRC depends more on volunteers<br />

to run the programmes for the patients. The regular staff members who are present in the<br />

organization number only three and every afternoon is filled with sessions conducted by<br />

volunteers. These volunteers are not pr<strong>of</strong>essionals in the field <strong>of</strong> mental <strong>health</strong> <strong>care</strong> but<br />

experts in their own field, viz., drawing, pottery making, yoga, games etc. The<br />

psychologist and the social workers handle the therapy sessions. RMS on the other hand<br />

has a very well equipped team <strong>of</strong> psychologist and social workers. This group is trained<br />

in the philosophy <strong>of</strong> therapeutic community. They show real expertise in handling the<br />

patients. Volunteers are also involved but are given responsibilities related to handling<br />

accounts and medicines. The experts handle the therapies. Every day the staff involve<br />

the patients in innovative programmes that brighten up the patients. Each day is different<br />

and one feels no monotony in their work schedules. Whereas in the other two<br />

<strong>organizations</strong>, viz., - MRF and MRC, there is a routine and monotonous pattern <strong>of</strong><br />

activity that takes place every day.<br />

The RMS philosophy works on the therapeutic community model. A great stress<br />

is given on understanding the human personality in <strong>health</strong> and illness in the context <strong>of</strong><br />

cultural and social factors in addition to individual variables. One <strong>of</strong> the organization<br />

staff describes their philosophy thus: 'The trans-cultural differences in phenomenology,<br />

course, outcome and treatment <strong>of</strong> mentally ill must be synthesised with the dynamic<br />

interaction with the cultural factors. Just like the individual personality that develops in<br />

an attempt to resolve the basic needs, the society develops in trying to find a common<br />

solution to individual needs, biological, social, cosmic, religious and others. The <strong>health</strong><br />

sustaining aspects <strong>of</strong> culture are illustrated by customs, rituals as well as by sanctions and<br />

institutions. Cultural differences in beliefs about mental illness influences the course and<br />

outcome <strong>of</strong> recovery from illness. Individuals vary within and across cultures in<br />

personality structure and psychological mechanisms. Understanding intercultural<br />

differences <strong>of</strong> the individuals, is essential to facilitate recovery <strong>of</strong> mental equilibrium <strong>of</strong><br />

an individual and his/her reintegration in the society.<br />

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In the therapeutic community model, RMS has successfully used some <strong>of</strong> the<br />

cultural attitudes in treating and caring for the patients. They are:<br />

1. Dependability vs. autonomy.<br />

2. Cultural patterns in communication.<br />

3. Tradition and change.<br />

Dependability is a key attribute <strong>of</strong> the Indian mind and culture. As children, there<br />

is a strong dependence on parents and during the old age the parents depend on the<br />

children. Thus, there is a continuous inter-dependence in the <strong>system</strong><br />

At RMS, this inter-dependence is used therapeutically. A good support <strong>system</strong> is<br />

built up wherein the sick person's feeling <strong>of</strong> security is taken <strong>care</strong> <strong>of</strong>. The family is<br />

involved from the day <strong>of</strong> admission <strong>of</strong> a resident in the whole rehabilitation process. In<br />

the process, the family IS also helped in many different ways, i.e., emotionally, they feel<br />

better equipped to cope with the sick person. The understanding <strong>of</strong> the sick person<br />

becomes better. The culture at RMS makes them look at themselves as part and parcel <strong>of</strong><br />

the social <strong>system</strong> and have an ongoing close relationship with the society. This aspect is<br />

made use <strong>of</strong> therapeutically in a number ways. The whole purpose <strong>of</strong> rehabilitation is to<br />

send the individual back to his family and into society. In order to achieve this, the<br />

mdividuals must be trained to make him function normally. The methods used are:<br />

1. Family therapy<br />

2. Integrating the individual back into the family<br />

3. Public/social awareness <strong>of</strong> the mentally ill<br />

4. Tapping all outside resources for placing the residents, i.e., jobs training, schooling,<br />

skills training, etc.<br />

Total dependence or total autonomy is not possible. During individual therapy<br />

where a person learns to be inter-dependent, while enjoying the support <strong>of</strong> the family, he<br />

also learns that he has to be responsible for himself. So, he learns that he has to have a<br />

job, he has to look after himself, his family is there and will support hislher in all ways<br />

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ut he too has a role in looking after himself.<br />

In this manner, the cultural form <strong>of</strong><br />

dependency and dependability is made use <strong>of</strong> in an ongoing h'Towth towards autonomy.<br />

Cultural patterns itl communication<br />

Communication is a major factor and a problem in the area <strong>of</strong> mental <strong>health</strong>. In<br />

schizophrenia, the experts have shown that symptoms are exacerbated when patients are<br />

confronted with complex tasks but not so when tasks are simple and clearly explained<br />

and attainable. Also, if a good role model is provided, the mentally ill finds it easier to<br />

adapt to the normal way <strong>of</strong> functioning. In the therapeutic community, the staff role<br />

models play an important role. The close proximity with which the interaction takes<br />

place goes a long way in rehabilitating an individual resident. Thus, the culture within<br />

the culture, i.e. the Indian culture and the RMS Houses co-exist.<br />

Residents <strong>of</strong> RMS homes come from all over the country and have their own<br />

family culture and background. The staff <strong>of</strong> the RMS homes also come from different<br />

backgrounds and so attaining a consensus among all is a continuous and a difficult task.<br />

Cultural differences among the staff are worked through staff dynamics and personal<br />

growth sessions, especially where the attitudes are deep rooted and problem oriented.<br />

For example, a female staff member coming from a very conservative family finds it very<br />

hard to relate to male residents. This inhibition causes some disturbance for establishing<br />

a <strong>health</strong>y community life. Hence helping a person with this problem becomes vital;<br />

however, this attitude helps in certain ways.<br />

In India where the girls and boys are actually not allowed to mingle freely, where<br />

many families have their own doubts <strong>of</strong> leaving a female resident here with other male<br />

residents, find it very comforting when they find a conservative female staff. Thus there<br />

is an advantage too. The whole communication pattern <strong>of</strong> the family is worked out<br />

during the intensive family therapy sessions. During the stay in the RMS homes the<br />

families participate in all the programmes, family sessions and actually experience the<br />

importance <strong>of</strong> straightforward and direct communication. This helps them not to give<br />

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dual messages, which lead to manipulation, but to be direct and expect open and honest<br />

responses.<br />

Tradition<br />

Indian families are mostly very traditional and have a great deal <strong>of</strong> faith in<br />

religion. This provides an anchor to hold on to. When their ward is sick the families do<br />

not give up hope and try different means to ,get the.sick..child back 10 .normaL ,..This<br />

perseverance and the optimistic hope in the families have to be positively utilised in<br />

helping the patients by involving them in every possible way. Each time the home<br />

receives a new resident from a different cultural background, it is a challenge to the<br />

home, to all the residents and the staff to understand and adapt to the different individuals<br />

and help him or her to get back to the family. Each resident thus provides a new lesson to<br />

the organization. This constant challenge to adapt and learn helps the staff and the<br />

residents to be flexible which is the password for peaceful co-existence in life.<br />

Linkages with Government and Other Organizations<br />

The founders <strong>of</strong> MRF are retired psychiatrists from the Government mental<br />

hospital. The organization has as its members many <strong>of</strong> those working in the government<br />

psychiatric departments. As such there is a very good rapport between the government<br />

<strong>organizations</strong> and the <strong>voluntary</strong> organization. Many cases are referred by the government<br />

departments to the <strong>voluntary</strong> <strong>organizations</strong> for follow up. Many families who are in need<br />

<strong>of</strong> pr<strong>of</strong>essional support for taking <strong>care</strong> <strong>of</strong> their wards are referred to these <strong>organizations</strong>.<br />

Even after their admission in the <strong>voluntary</strong> <strong>organizations</strong> their respective psychiatrists in<br />

the Governmental hospitals do the psychiatric follow-up, except in the case <strong>of</strong> those<br />

patients in MRF, where psychiatrists are available throughout.<br />

MRF is strongly linked with the Government Psychiatry Department and also the<br />

Institute <strong>of</strong> <strong>Mental</strong> Health, and other psychiatry units all over India. The organization<br />

accepts patients sent through referral from these <strong>organizations</strong>. The <strong>voluntary</strong><br />

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<strong>organizations</strong> send many <strong>of</strong> those who require psychiatric help to MRF. The network <strong>of</strong><br />

MRF with other <strong>voluntary</strong> <strong>organizations</strong> is also strong; it, therefore receives many<br />

referred cases.<br />

MRC's forte is counselling and training. It is also affiliated with other centres like<br />

family welfare centres, Cosmopolitan club, the Government <strong>Mental</strong> Hospital<br />

(NIMHANS) and has organised many joint programmes in the area that require<br />

counselling, training, dissemination and advocacy.<br />

However, since MRC also has programmes <strong>of</strong> rehabilitation, NIMHANS and also<br />

Psychiatry units <strong>of</strong> other hospitals in Bangalore refer their patients to MRC. It also has<br />

linkages with other half-way homes in the country which enables to exchange services.<br />

This has been made possible by way <strong>of</strong> forming a 'C<strong>of</strong>fee Club', which meets on a<br />

Saturday <strong>of</strong> every month. Representatives from other <strong>voluntary</strong> <strong>organizations</strong> are invited<br />

and lessons are learnt from each other. This also facilitates critical assessment <strong>of</strong> the<br />

work <strong>of</strong> the <strong>organizations</strong> and exchange <strong>of</strong> valuable suggestions.<br />

RMS is constantly in contact with the Government <strong>Mental</strong> Hospital, NlMHANS,<br />

as its founder is an ex-employee <strong>of</strong> the hospital and many <strong>of</strong> the psychiatrists are board<br />

members <strong>of</strong> the organization. This organization has been recognised as a placement<br />

centre for training the students <strong>of</strong> social work and psychology. There is a constant flow <strong>of</strong><br />

students from these departments to the organization. Most <strong>of</strong> the patients are referred to<br />

it by the Psychiatrists for post hospital <strong>care</strong> and rehabilitation. The students <strong>of</strong><br />

NIMHANS also get postings in one <strong>of</strong> the centres after they successfully complete the<br />

training courses. As there are no psychiatrists involved on a day to day basis in the<br />

organization, the patients are taken to their respective psychiatrist at NIMHANS for<br />

follow-up and regular check-ups.<br />

On the whole, there is a good complementary network between the Government<br />

and the <strong>voluntary</strong> <strong>organizations</strong> (VOs). The patients are mostly referred by the<br />

government <strong>organizations</strong>. There is a continuous dialogue between the <strong>voluntary</strong><br />

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Organizations and the government Organizations, and the <strong>voluntary</strong> <strong>organizations</strong> act as a<br />

bridge between the hospital, the half-way homes and the patients' families. They have<br />

the advantage <strong>of</strong> getting services <strong>of</strong> a pr<strong>of</strong>essional group <strong>of</strong> psychiatrists, from a premier<br />

government mental hospital. There is a continuous flow <strong>of</strong> patients from the hospitals to<br />

these <strong>organizations</strong> making them almost an extension <strong>of</strong> the Government hospitals.<br />

Organization Resources and Funds<br />

Funds for VO playa crucial role in determining their working strategies. They<br />

have to struggle hard to acquire funds. The Government b'fants to them are minimal and<br />

according to one <strong>of</strong> the members, 'Vol untary <strong>organizations</strong> depending on the<br />

Government face many problems related to red tapeism and corruption. First <strong>of</strong> all there<br />

is always a delay in receiving the instalments. If an organization wishes to be<br />

independent and innovative, it is always better not to depend on the Government funds'.<br />

Good leadership and good contacts have enabled MRF to obtain funds. Effective<br />

leadership, teamwork and good contacts are a pre-requisite for mobilising resources for<br />

an organization. Funding is a crucial factor also because it determines adequate<br />

remuneration for the staff and infra-structural facilities for the patients'.<br />

The main source <strong>of</strong> income for the organization are: public donations, interest<br />

from corpus funds kept as fixed deposits invested by the organization, grants from<br />

Government <strong>of</strong> Tamilnadu, advances on loan from Small Scale Industries Development<br />

Bank <strong>of</strong> India (SIDBI) which helps in giving loans for various vocational training<br />

activities, for instance, candle making, agarbathi making, chalk making, etc., Lion's club<br />

and pr<strong>of</strong>its made through the sale <strong>of</strong> the products made by the patients.<br />

Apart from the above, grants are also received from WHO, Johns Hopkins,<br />

German Consulate, Helpage India. Searle India, Oxfam, IDRC, Bhasian Foundation,<br />

M.K.Raju Fellowship and Jindal Aluminium. The families <strong>of</strong> the patients pay deposits<br />

to get their wards accommodated in special residential centres, which are self-sustaining.<br />

Part <strong>of</strong> the money thus generated also helps towards running the organization.<br />

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Recently (1995), the Government <strong>of</strong> India has recognised mental illness as a<br />

priority area to be administered under the Ministry <strong>of</strong> Social Welfare. This has been the<br />

result <strong>of</strong> considerable amount <strong>of</strong> lobbying efforts by the MRF and the pr<strong>of</strong>ession <strong>of</strong><br />

Psychiatry. Through these efforts more grants are expected from the Welfare Ministry.<br />

The All India Women's' Association has agreed to bear the total costs <strong>of</strong> rehabilitation<br />

for female patients from low-income groups.<br />

The residential centres have been built on the lands donated by religious<br />

<strong>organizations</strong>. The female residential centre has been donated by a Temple Trust and the<br />

male residential centre by a Hindu religious Trust. Both the lands have been donated on<br />

lease. SIDBI also <strong>of</strong>fers help for setting up various vocational training units. A canteen is<br />

run by the rehabilitated patients numbering eighteen at a leading educational institute at<br />

Madras. Three vehicles have been donated by the public, the Lion's Club and the helpage<br />

India.<br />

Main expenditures identified are, 1. Medicines; 2. salaries for the staff; 3. infrastructure;<br />

4. maintenance; 5. research and public education; 6. Transport; and 7.<br />

others. According to the Administrative Officer, 'acquiring funds and planning the<br />

expenditure pattern to set a smooth functioning for the organization has been a difficult<br />

task. The state Government funds are usually delayed. Donor <strong>organizations</strong> expect<br />

prompt and clear responses to their queries which requires an administrative <strong>system</strong> with<br />

a high level <strong>of</strong> efficiency. Waiting for funds is inevitable especially from Government<br />

sources'.<br />

Voluntary <strong>organizations</strong> face many problems in obtaining funds, According to<br />

the Administrative <strong>of</strong>ficer, 'Aids, Leprosy, Cancer receive higher priority in funding as<br />

compared to mental illness. MRF faces many problems in recruiting staff, as salaries are<br />

determined by funds and it is very difficult to get good pr<strong>of</strong>essionals at low salaries,<br />

Fortunately, many volunteers <strong>of</strong>fer their services to the organization'. One such volunteer<br />

who helps the organization in accounting observed, 'many <strong>of</strong> the organization's problems<br />

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are due to inadequate funds to cover the running costs. In the general environment <strong>of</strong><br />

rising prices and increasing rents, the organization may have to dip into its reserves'. He<br />

expressed great satisfaction in doing <strong>voluntary</strong> service for the organization.<br />

The major sponsors <strong>of</strong> MRC are Church missionaries <strong>of</strong> different countries, the<br />

most -significant· being the-Bnited--Ehurch <strong>of</strong> Canada, Bread for the World, GTZ, West<br />

Germany, Kom Over de Burg, Holland, Jindal Aluminium, Bangalore and a Swiss<br />

philanthropist who every year donates a large amount. They receive no funds from the<br />

Government. Among the international funding agencies, Action Aid has sponsored a<br />

<strong>Mental</strong> Health Information Centre. In the year 1980, Oxfam sponsored the development<br />

<strong>of</strong> a teaching kit for the mentally retarded children. According to one <strong>of</strong> the staff, "Funds<br />

from abroad have lessened to a great extent and at present the organization relies more on<br />

individual donations." Many industrialists and Philanthropists donate funds to the<br />

organization. The annual fete conducted by the organization is another source <strong>of</strong> income.<br />

The sponsors <strong>of</strong> the organization especially the international funding agencies and<br />

Christian missionaries send representatives to the organization to check on the<br />

organization's activities on a regular basis. This is a normal procedure for the sponsors.<br />

These representatives stay in the organization itself and make their assessment. They<br />

have been stressing for more fund-raising activities. This organization has been<br />

managing itself with the available funds. But in order to expand its services it needs to<br />

focus more on fund-raising.<br />

A major fund raising programme <strong>of</strong> MRC is organising fete twice a year during<br />

which sales are held and the pr<strong>of</strong>it made goes as donation to the Organization. During<br />

this fete, the organization receives all kinds <strong>of</strong> used household materials, furniture,<br />

vessels, clothes, etc., from those who do not require them and put them on sale along with<br />

other new articles, articles made by the residents, like pots, greeting cards, plants etc.<br />

Public are also encouraged to put up food stalls during the fete and whatever the pr<strong>of</strong>it<br />

made is used up as revenue by the organization. This fete is conducted every year and<br />

attracts large crowds. This innovative method is not only a way <strong>of</strong> collecting funds for<br />

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the organization but also a JOYous day for the residents, staff and the public. The<br />

residents wait for this day each year to have some fun. The staff members are also very<br />

enthusiastic and involve the residents in all the activities <strong>of</strong> the day.<br />

The major source <strong>of</strong> income for RMS is from the parent organization, a society.<br />

The other major source <strong>of</strong> income is from donations, interest from corpus funds kept as<br />

fixed deposits and Manpower Grant from London. The running costs <strong>of</strong> the homes are<br />

borne by the families <strong>of</strong> the residents. For Instance, the families <strong>of</strong> the residents <strong>of</strong> the<br />

group homes have contributed deposits, which facilitates running the homes. Those<br />

staying in the half-way homes pay resident fee which also helps in running the<br />

organization. Apart from these, the recently started day <strong>care</strong> centre <strong>of</strong>fers vocational<br />

training to the inmates, whose products are kept for sale. The sale receipts contribute to<br />

the revenue. The organization has recently <strong>of</strong>fered a post-graduate course on<br />

rehabilitation. The fee obtained from the students might also be a good source <strong>of</strong> income.<br />

Major expenditure has been: a) salaries, b) travel, c) vehicle, d) food e) maintenance and<br />

development expenses.<br />

There is a remarkable expansion <strong>of</strong> MRF and RMS in terms <strong>of</strong> opening new<br />

centres and extension <strong>of</strong> services. They have been exceptionally successful in sustaining<br />

themselves and <strong>of</strong>fering effective service. MRC, on the other hand, is sustaining itself<br />

but one can see a slow down in the overall services. Some <strong>of</strong> their activities like<br />

programmes on social prevention, training programmes for students, teachers, etc., have<br />

lessened and there has been very little expansIOn in terms <strong>of</strong> size or centres unlike the<br />

other two VOs. One significant difference between MRC and the other two <strong>organizations</strong><br />

is that while MRF and RMS <strong>of</strong>fer long-term rehabilitation to patients, MRC <strong>of</strong>fers only<br />

short-term rehabilitation. Since MRF and RMS take large deposits for long-term<br />

rehabilitation from the families <strong>of</strong> the wards, this major source <strong>of</strong> income is not available<br />

to MRC to expand and extend its activities. MRC is sustaining itself and its present<br />

activities mainly because it has its own building.<br />

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Conclusion<br />

The three <strong>organizations</strong> have similarities and differences in many <strong>of</strong> their<br />

characteristics. In some aspects one scores better than the other. With the given infrastructure<br />

and the facilities, the <strong>organizations</strong> have adapted their own approaches towards<br />

the <strong>care</strong> <strong>of</strong> the patients and that <strong>of</strong> their families. Even though some <strong>of</strong> the objectives <strong>of</strong><br />

the three <strong>organizations</strong> are similar, each organization also has its unique characteristics.<br />

The three <strong>organizations</strong> have specific objectives and their services are much focussed.<br />

They are all placed in advantageous locations, Madras and Bangalore, where the<br />

psychiatric activity is considerable. The Government mental hospitals in both Madras<br />

and Bangalore provide very good services to the mentally ill. The linkage between these<br />

hospitals and the three <strong>organizations</strong> are close and complementary. As far as leadership is<br />

concerned, MRF and RMS have an advantage over MRC. The staff is highly<br />

pr<strong>of</strong>essional in MRF and the organization has the advantage <strong>of</strong> close supervision <strong>of</strong><br />

psychiatrists. The staff at MRC lack training and there are no psychiatrists involved in its<br />

daily activities. At the same time, monitoring by the senior psychiatrist is very minimal.<br />

At RMS, the staff is well-trained and the activities are closely monitored. As far as<br />

sustainability is concerned, MRF and RMS have succeeded in managing their funds well<br />

enough for them to expand through internal funding.. MRC still depends on external<br />

funding. It is maintaining the original services but has not expanded due to lack <strong>of</strong> funds.<br />

The <strong>organizations</strong> differ in their philosophy and approach and this influences them in the<br />

way they function. Each organization has its own merits and demerits.<br />

The positive traits <strong>of</strong> MRF are its efficient leadership, pr<strong>of</strong>essional staff, their<br />

success m mobilising funds. They also have some demerits arising out <strong>of</strong> their<br />

expansIOn. In the words <strong>of</strong> a Psychologist <strong>of</strong> MRF ,'There is lot <strong>of</strong> freedom to do what<br />

we want. Monotony is not there as we are free to introduce innovation. Inter-personal<br />

relations are very good and planned team work is possible. The objectives <strong>of</strong> the<br />

organization are clear, job satisfaction is high. Though the staff are under-paid, they are<br />

well-trained and experienced. There is a humane touch in the <strong>care</strong> and treatment<br />

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provided. The organization IS highly successful In training the staff In g1Vmg<br />

pr<strong>of</strong>essional services'.<br />

In RMS and MRC too leadership has been a crucial factor. RMS has expanded<br />

because <strong>of</strong> the 'entrepreneunal approach'. However, MRC has tended to be less<br />

entrepreneurial but more humane. [t has tended to de-emphasise the technological<br />

approach seen present in MRF and placed greater emphasis on the humane spiritual<br />

dimension <strong>of</strong> creating conducive atmosphere for the patients. In fact, rapid expansion <strong>of</strong><br />

MRF has its critics.<br />

At MRC, the organization is blessed with its own building and a lot <strong>of</strong> open space<br />

which is one <strong>of</strong> the pOSitive traits <strong>of</strong> the organization. Many other <strong>voluntary</strong><br />

<strong>organizations</strong> lack this facility which leads to a very cramped up accommodation. It has<br />

a beautiful garden which gives a very serene look. It has a very homely atmosphere that<br />

keeps the patient and staff very relaxed. The patients and staff have good privacy. The<br />

staff rooms and the patient rooms are far apart.<br />

The "humane approach" <strong>of</strong> MRC has attracted many volunteers which has helped<br />

the organization a great deal in sharing the burden <strong>of</strong> organising activities for the patients.<br />

The volunteers come up with very innovative programmes. They are constantly engaged<br />

with some activity or the other that keeps them very busy throughout. There is a very<br />

good sense <strong>of</strong> discipline, punctuality and cleanliness in the organization. This is very<br />

important as it reflects on the patients' behaviour. Programmes are very well structured<br />

and the religious backing <strong>of</strong> the organization has a great impact on the organization's<br />

activities in the form <strong>of</strong> prayers and strict discipline. It is a unique organization wherein<br />

the Pastors and the Medical pr<strong>of</strong>essionals have come together to achieve a common goal.<br />

It has been successful in blending both the philosophies <strong>of</strong> religion and medicine In<br />

bringing mental <strong>health</strong> to those who come to them for help.<br />

Another important asset <strong>of</strong> MRC is the indoor auditorium, which is used for all<br />

recreational activities.<br />

This accommodation is lacking in many other <strong>organizations</strong>.<br />

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Leisure, recreation and games are crucial factors in determining the <strong>health</strong> <strong>of</strong> people<br />

especially so for the mentally ill. The organization has planned well in providing this<br />

facility to the patients. The staff turnover is less and the staff members continue for long.<br />

The main reason could be the housing accommodation provided by the organization. The<br />

staff are indeed very happy to work in the organization and very few complain <strong>of</strong> low<br />

salaries. The staff feel that one <strong>of</strong> the best traits <strong>of</strong> the organization is that it does not<br />

insist on hierarchy and is free from the nausea <strong>of</strong> Government bureaucracy.<br />

At RMS, the positive traits are the trained staff, efficient teamwork and successful<br />

fund raising. The house manager <strong>of</strong> the organization summarises the positive traits <strong>of</strong> the<br />

organization as follows: i. Flattened hierarchy, ii. Liberal atmosphere, and iii. Freedom.<br />

Due to these traits, there is no power struggle among the staff. Each staff member is<br />

dedicated and does his work with full satisfaction. Between the different pr<strong>of</strong>essionals<br />

there is no hierarchy and irrespective <strong>of</strong> the number <strong>of</strong> years <strong>of</strong> experience in the<br />

organization, the staff feel free to express their views. Hierarchy, which blocks action and<br />

progress, is not present in the organization and this is the major cause for the success <strong>of</strong><br />

the organization.<br />

Due to these positive traits, there is a congenial atmosphere and dealings between<br />

patients and staff, and they are free from tension. Interaction among the staff is very<br />

good and <strong>health</strong>y inter-personal relationships exist. According to the house manager, the<br />

merits <strong>of</strong> the organization are: i. maintenance <strong>of</strong> pr<strong>of</strong>essional quality in the <strong>care</strong> and<br />

treatment <strong>of</strong> the patients, and ii. freedom at work level and <strong>health</strong>y inter-personal<br />

relationships.<br />

There are a few drawbacks too, which are inevitable for any organization.<br />

According to one <strong>of</strong> the founder members who is a Psychiatrist, 'the organization has<br />

grown big in the last few years leading to compartmentalisation. Once the organization<br />

becomes large, it is forced to bureaucratise its staff structure and compartmentalise its<br />

activities. It gets into problems <strong>of</strong> red tapeism, which is typical <strong>of</strong> Government<br />

organization, thus losing its charm <strong>of</strong> being small'. In his view, <strong>voluntary</strong> organization<br />

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should be small so that its activities remain focussed on the objectives and it does not get<br />

bogged down with bureaucratic <strong>system</strong>s that are inevitable with large <strong>organizations</strong>.<br />

One <strong>of</strong> the founder members <strong>of</strong> the organization comments thus, 'it is not good to<br />

diversify. It is like a jellyfish taking different shapes. The result <strong>of</strong> this diversification<br />

<strong>of</strong>ten leads to the project not meeting the objectives as the people who conceive 1he<br />

project are different from those who actually deliver. In large <strong>organizations</strong>, the<br />

expertise <strong>of</strong> the higher level <strong>of</strong> pr<strong>of</strong>essionals does not reach the grass root levels. At the<br />

same time, the pr<strong>of</strong>essionals tend to get bogged down with bureaucratic work. The<br />

problems are less when the organization is small'.<br />

Remuneration to the stafT is low in all the three <strong>organizations</strong>, in MRC due to lack<br />

<strong>of</strong> funds and in the other two VOs because <strong>of</strong> the higher priority placed on expansion.<br />

Those presently working In the <strong>organizations</strong> are generally dedicated and service minded,<br />

since they get satisfaction out <strong>of</strong> the Job. However, in MRF and RMS, there is<br />

considerable turnover among men because <strong>of</strong> the opportunity to earn higher salaries<br />

elsewhere. There is no male Psychiatrist in MRF at present because <strong>of</strong> the problem <strong>of</strong>low<br />

remuneration.<br />

Occupational Therapist <strong>of</strong> the organization feels that a great deal <strong>of</strong> improvement<br />

could be made in this area. According to him, 'Involvement in vocational activities<br />

would help the patients learn some skills and help him to earn some money which is very<br />

Important for them. It makes the patients busy, active and productive. It also boosts their<br />

morale'.<br />

Staff turnover has been a problem particularly in MRF but also in RMS to a lesser<br />

degree. One psychologist attributed the same to work pressure and low remuneration.<br />

She commented, 'it is very difficult to work with chronic mentally ill. Treatment is a<br />

long process, which ultimately gives few positive results. But the struggle to get a<br />

positive result should go on and one should not get disillusioned'. The occupational<br />

therapist <strong>of</strong> the organization expressed that though job satisfaction is there, it is<br />

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frustrating especially when the patients undergo relapse, as all the efforts put on their<br />

bettennent become fruitless. He added, "this also affects the personal life <strong>of</strong> the involved<br />

staff and brings about disappointment and depression. Career-wise it does not help much<br />

as the salary paid is low. There is no job security, which forces one to keep looking for<br />

-----options and such a situation affects the male staff particularly. Women, however, tend to<br />

stay on despite low salaries. Therefore, MRF and RMS are dominated by women. This<br />

poses special disadvantage in dealing with the male patients'"<br />

Salaries for the staff have been a problem for long. Due to low salaries many staff<br />

members quit the organization. A Psychiatrist observed, 'Every time there is a change in<br />

the staff structure, the organization undergoes a menopause stage and things settle down<br />

only when the new team picks up on what was left by the previous team. This is a very<br />

big disadvantage especially for an organization working for the mentally ilL Team work<br />

and continuity <strong>of</strong> the team plays a vital role in the treatment and rehabilitation'.<br />

One <strong>of</strong> the senior members <strong>of</strong> the orgamzation summarised the drawbacks <strong>of</strong> MRF<br />

thus. 'There are many problems that have to be overcome by the organization. These<br />

problems are: I. predominance <strong>of</strong> female staff; 2. overcrowding in the day <strong>care</strong> centre<br />

and rehabilitation centres; 3. the hostels becoming like lodges; 4. day <strong>care</strong> centre<br />

resembling a baby sitting centre; 5. dependence <strong>of</strong> the patients on the staff members 6,<br />

less coverage <strong>of</strong> the lower sections <strong>of</strong> the population; and 7. money becoming the<br />

criteria for treatment and not mental illness. These have to be taken serious note and<br />

checked'. The answer seems to be to have smaller organization structures or smaller<br />

autonomous modules that function as separate activity and cost centres. One <strong>of</strong> the<br />

senior psychiatrist <strong>of</strong> the organization commented that there has been a conflict in<br />

ideology regarding the objectives <strong>of</strong> the organization, namely, research versus<br />

rehabilitation in the lines <strong>of</strong> custodial <strong>care</strong>. It has been felt by some that the organization<br />

was concentrating more on rehabilitation than on research.<br />

MRC fortunately does not suffer from the problems inherent in large size. The<br />

major demerits <strong>of</strong> MRC are the following: It lacks a psychiatrist who can be present in<br />

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the organization all the time. The programmes for the inmates depend more on the<br />

availability <strong>of</strong> volunteers and alternatives are not being sought for. Though the<br />

involvement <strong>of</strong> volunteers is a very good aspect, the organization staff should attempt at<br />

conducting therapy sessions independently. The mmates can be engaged in useful<br />

activities like candle making or screen printing which would help the patients learn a<br />

vocational activity. This might help them earn a living when they leave the organization.<br />

RMS has its own drawbacks. In spite <strong>of</strong> the wonderful services rendered by the<br />

organization, some improvements are yet to be made. A major problem for the<br />

organization has been· the lack <strong>of</strong> space for both patients and staff. At present, the<br />

patients share rooms about 5-6 per room. This has to be improved. The organization is<br />

expanding. When more sub-centres <strong>of</strong> the organization come up it is always better that<br />

they are made independent units in managing their money and accounts.<br />

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Chapter Five<br />

VOLUNTARY ORGANIZATIONS AND PATIENT CARE<br />

Each organization has a <strong>system</strong> <strong>of</strong> its own, which in tum, is a part <strong>of</strong> a super<br />

<strong>system</strong>. Voluntary <strong>organizations</strong> working in the area <strong>of</strong> mental <strong>health</strong> are looked from<br />

the viewpoint <strong>of</strong> a sub-<strong>system</strong> <strong>of</strong> a super <strong>system</strong>, which includes, psychiatric hospitals<br />

both government and private, and private psychiatric clinics where the mentally ill are<br />

treated. Voluntary <strong>organizations</strong> working in the field <strong>of</strong> mental <strong>health</strong> <strong>care</strong> derive from<br />

the properties <strong>of</strong> the parent <strong>system</strong>, its objectives, roles, functions and structure. They are<br />

then modified according to the sub-<strong>system</strong>'s needs. As such, it tends to imitate the<br />

pr<strong>of</strong>essionalism that characterises the mental <strong>health</strong> <strong>care</strong> set up. Every pr<strong>of</strong>essional has a<br />

fixed role to play and is expected to fulfil this role without deviating. <strong>Mental</strong> illness has<br />

been the domain <strong>of</strong> the psychiatrist for a very long time. His or her role is to focus all the<br />

attention on the patient who suffers from a problem, which is perceived as more <strong>of</strong><br />

physiological and neurological in nature. This focus on physiological aspects alone<br />

proceeded further into probing into the person as an individual being, trying to<br />

understand the psyche <strong>of</strong> the person and his personality characteristics.<br />

As an attempt to understand the problem <strong>of</strong> the affected individual, the individual<br />

is looked at from the viewpoint <strong>of</strong> the individual as a social being. In this, the attempt is<br />

towards understanding him against the background <strong>of</strong> his social set up. Thus, these<br />

pr<strong>of</strong>essionals have evolved into the area <strong>of</strong> mental <strong>health</strong> <strong>care</strong>.<br />

<strong>Mental</strong> <strong>health</strong> <strong>care</strong>, originally the domain <strong>of</strong> the psychiatrists, gradually witnessed<br />

the entry <strong>of</strong> psychologists with their tools <strong>of</strong> structured questionnaires through which an<br />

attempt was made to understand the human 'psyche'. These tools have a fixed fonnat<br />

and most <strong>of</strong> them run into many pages, involving exercises for the patients and various<br />

questions to test the patient's abilities. This ordeal is a routine one for the psychologists<br />

and the patient. It involves lot <strong>of</strong> time and requires patience from both the expert and the<br />

patient. To an observer, it seems to be a very monotonous and boring procedure, the<br />

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patient exhibiting lot <strong>of</strong> restrain over the exercise. The social worker, the later entrant to<br />

the mental <strong>health</strong> <strong>care</strong> <strong>system</strong>, focussed the patient as a social being, to a certain extent<br />

s<strong>of</strong>tening the rather mechanical hardcore approach <strong>of</strong> the psychologist.<br />

Voluntary <strong>organizations</strong> attempt to dilute the strict hierarchical order <strong>of</strong> formal<br />

<strong>organizations</strong>, so that each individual might contribute towards the fulfilment <strong>of</strong> the<br />

objectives <strong>of</strong> the organization. When the hierarchy is strict and uncompromising, it is<br />

difficult for those in the lower rungs <strong>of</strong> the ladder to participate fully and effectively in<br />

the programmes. Thus, it is very essential to keep the organization flexible so that one<br />

might expect freedom, creativeness and innovativeness in action and more intimate interrelationship<br />

between the staff irrespective <strong>of</strong> the hierarchical order. Otherwise,<br />

frustration sets in among the pr<strong>of</strong>essionals, who are relatively lower in the <strong>system</strong> so that<br />

they feel themselves personally involved. However, one can observe dissatisfaction<br />

among the social workers, vocational instructors and the occupational therapists since<br />

they work, invariably, under the pr<strong>of</strong>essional guidance <strong>of</strong> the psychiatrists.<br />

This routinisation <strong>of</strong> the pr<strong>of</strong>ession in some ways creates feelings <strong>of</strong> alienation<br />

among the pr<strong>of</strong>essionals. The social workers feel like dummies when it comes to<br />

implementation <strong>of</strong> some <strong>of</strong> the curative measures. Any creative thinking or innovation<br />

seems to be impossible and unreachable for them. The technicians, who play the role <strong>of</strong><br />

vocational instructors, have similar complaints regarding their roles to improve the<br />

patient's condition.<br />

Gender seems to play an important role in the formation <strong>of</strong> the <strong>voluntary</strong><br />

organization staff The <strong>voluntary</strong> <strong>organizations</strong> apparently seem to be dominated by<br />

female staff. Men who get recruited to the organization hardly stay for long. The main<br />

reason, being that <strong>of</strong> salaries. As such, there is predominance <strong>of</strong> female staff and the men<br />

are mostly employed in the posts <strong>of</strong> drivers, clerks, vocational instructors, the latter<br />

already looking for alternative job placement. As such, there is a marked difference in<br />

the job preferences <strong>of</strong> the sexes. Those who stick to the organization are mostly those<br />

women who are from high economic class for whom the salary is not the only source <strong>of</strong><br />

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livelihood and men who are unable to get a better placement. The ratio between male<br />

and female staff favours women<br />

In spite <strong>of</strong> some drawbacks, the <strong>voluntary</strong> <strong>organizations</strong> are successful in serving<br />

both urban and rural people <strong>of</strong> all classes. They are efficient in dealing with the families<br />

and community imparting knowledge on mental illness and training them in coping skills<br />

to deal with the patients.<br />

Schizophrenia, the most severe form <strong>of</strong> mental disorder, is like the proverbial<br />

sphinx that asks more questions than can be answered. Han Selyle paraphrased the<br />

present state <strong>of</strong> our knowledge <strong>of</strong> schizophrenia: "Psychiatrists seem to know what<br />

schizophrenia is but they don't know what is schizophrenia" (MRF Report, 1994). Patient<br />

<strong>care</strong> goes through various phases. Each <strong>voluntary</strong> organization tackles each phase <strong>of</strong> the<br />

patients according to the <strong>organizations</strong>' respective philosophies. Patient <strong>care</strong> phases are -<br />

a) identification <strong>of</strong> the patients, b) programmes and activities for the patients, c)<br />

therapies, d) vocational training and e) rehabilitation.<br />

Phase I<br />

Phase II<br />

Phase III<br />

Phase IV<br />

Identification<br />

Disciplining<br />

-.. activities<br />

Vocational<br />

-.. training<br />

Rehabilitation<br />

This chapter will deal in detail with the different phases involved in patient <strong>care</strong><br />

and the way in which the <strong>organizations</strong> approach the same.<br />

Patients <strong>of</strong>the Organization<br />

After discharge from the <strong>Mental</strong> hospital all the patients return to their families.<br />

The family members undergo great strain in taking <strong>care</strong> <strong>of</strong> their wards. They look for a<br />

place to retrain their ill family members to get back to the normal routine. These patients<br />

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who can neither be put into the hospital nor be taken <strong>care</strong> by the families enter the half<br />

way homes.<br />

At MRF, most those patients who come for help suffer from schizophrenia. The<br />

patients hail from different socio-economic backgrounds and also from both rural and<br />

urban areas. The poor and the rich find a place here for their mentally ill wards. In all the<br />

three <strong>organizations</strong> the patients are referred by the psychiatry units <strong>of</strong> the Government<br />

and private hospitals and also by different <strong>voluntary</strong> <strong>organizations</strong>. At MRC, the<br />

patients are also referred by Christian missionaries and churches to the organization<br />

which has good networking with them. The patients who come here for help suffer from<br />

various mental illnesses and they are from all economic classes. At RMS, a majority <strong>of</strong><br />

the patients who seek help from the organization suffer from schizophrenia. The centre<br />

also admits patients suffering from manic-depressive psychosis and personality disorders.<br />

The admission procedures vary in the three <strong>organizations</strong>. At MRF and MRC,<br />

those patients who are willing to go through their programmes <strong>of</strong> rehabilitation are taken<br />

in with the families' acceptance. At RMS, however, the procedure is different. The<br />

patients enter the organization to learn through the therapeutic procedures, their<br />

respective ways <strong>of</strong> living. All the clients are amicted by one or another mental disease<br />

and have been treated by the psychiatrists in the hospitals. Most <strong>of</strong> them are not<br />

symptomatic when they enter the home. They come here for retraining into the every day<br />

routine and to return back to their families.<br />

The admission <strong>of</strong> the clients is made after the approval <strong>of</strong> the families. The<br />

patients are given admission only after a trial <strong>of</strong> three days. During this period their<br />

behaviour is observed to see how best they adapt to the new environment. Only if this is<br />

satisfactory, they are given admission. The patients are reviewed every three months by<br />

the staff. During these review meetings, the patients' parents or guardians are also invited<br />

to give their opilllons. After six months, the client is sent home for a holiday to get<br />

feedback from the family members regarding the performance <strong>of</strong> the patients and to see<br />

their improvement. After their return, a feedback is received from the patients regarding<br />

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their stay at home to assess how best they could accommodate them in their families. In<br />

the subsequent three months, the clients are retrained by the therapeutic community to be<br />

independent and fit to go back to their families.<br />

In all the three <strong>organizations</strong> there is a predominance <strong>of</strong> patients hailing from the<br />

middle class and upper class economic groups. There are a few from the lower income<br />

group. The patients are charged an amount according to their economic capacity but in<br />

spite <strong>of</strong> that one can observe that there are few from the poorer sections <strong>of</strong> the society.<br />

This is probably due to the fact that the families <strong>of</strong> the patients are not in a position to<br />

shell out more money for the <strong>care</strong> <strong>of</strong> the patients. The <strong>organizations</strong> too are not able to<br />

subsidise beyond a certain point. Thus, the <strong>voluntary</strong> sector in mental <strong>health</strong> <strong>care</strong> is<br />

unable to attract patients from the poorer sections <strong>of</strong> the society.<br />

Identification <strong>of</strong> the Patients<br />

Among the three <strong>organizations</strong> only MRF is engaged in identifying the patients.<br />

This is probably due to the fact that identification has to be done primarily by a<br />

psychiatrist. As we have seen earlier, only MRF has psychiatrists on its staff team. The<br />

MRF team identifies patients in the selected rural districts and in the adopted slum.<br />

These identified patients are referred to the day <strong>care</strong> centre <strong>of</strong> MRF or residential centres<br />

wherever needed. MRF conducts many camps in the rural areas and slums to identify<br />

those who are in need <strong>of</strong> help. MRF has done a very remarkable exercise in one <strong>of</strong> the<br />

rural areas with the help <strong>of</strong> social workers, sociologists and trained villagers to identify<br />

those in need <strong>of</strong> psychiatric help and rehabilitation. This has been dealt in detail in the<br />

section dealing with community based rehabilitation (see page no. ). Apart form the<br />

identified patients, MRF gets referrals from Government hospitals and non-governmental<br />

<strong>organizations</strong> and clinics from different parts <strong>of</strong> the country. The various activities during<br />

the rural visits an; -<br />

1. door to door survey for identifying the mentally ill;<br />

2. public education on definition <strong>of</strong> mental illness and the symptoms <strong>of</strong> mental illness;<br />

3. advising medication to the affected individuals;<br />

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4. educating the families <strong>of</strong> the mentally ill;<br />

5. follow-up services for the already identified individuals; and<br />

6. training <strong>of</strong> the local people as <strong>health</strong> workers;<br />

In the rural areas there is no residential rehabilitation facility at present<br />

MRC and RMS are not involved in identification <strong>of</strong> patients. Their patients are<br />

the ones referred by the psychiatrists <strong>of</strong> government hospitals; private hospitals and thosereferred<br />

by other <strong>voluntary</strong> <strong>organizations</strong>.<br />

In all the three <strong>organizations</strong>, complete case histories <strong>of</strong> the patients are recorded<br />

and the psychiatrists' remarks are also thoroughly referred in order to understand the<br />

patients' condition. The parents or guardians are briefly explained about the objectives <strong>of</strong><br />

the <strong>organizations</strong>. With the acceptance <strong>of</strong> the patients and the parents they are inducted<br />

into the programmes<br />

Programmes for the Residents<br />

The programmes for the residents not only differ in the three <strong>organizations</strong> but<br />

also are focused on different themes. Some aim at training them on every routine duty,<br />

some on social skills, communication, confidence building, decision-making and<br />

socialising in a group. This training is very important, as these patients have to return<br />

back to their families well equipped to lead a better life. Each organization focuses on<br />

specific aspects.<br />

At MRF, there is great stress on vocational training and occupational therapy. The<br />

patients are trained in different skills that engage them the whole day. This training helps<br />

them in getting jobs in the future thus helping them in their successful rehabilitation. At<br />

MRC there is a structured programme throughout the week. Mostly volunteers run these<br />

programmes. The major objective is to keep the patients busy and develop in them the<br />

art <strong>of</strong> communication within a group, which is expected to help them in their process <strong>of</strong><br />

rehabilitation. At RMS, the programmes are aimed at therapeutic training for the patients<br />

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to get back to normalcy. The programmes are based on day to day routines. Therefore,<br />

the programmes <strong>of</strong> the three <strong>organizations</strong> are based on their philosophies. Some<br />

therapies are common to all the three <strong>organizations</strong> and some therapies are specific to<br />

some <strong>organizations</strong>.<br />

Daily Routine<br />

All the three <strong>organizations</strong>-llim aLtrainiDg-the. patients .intaking.<strong>care</strong>..<strong>of</strong>iheir daily ........<br />

routine. The focus is to make them independent and discipline them regarding their day<br />

to day activities. In all the residential centres they are monitored throughout. Their<br />

activities begin with walks, exercises, cleaning up, etc. At MRF, the residential centres<br />

start the day with walks and exercises and most part <strong>of</strong> their day is filled with vocational<br />

activities. They are not involved much in cleanliness and maintenance <strong>of</strong> the premises.<br />

But in the other two <strong>organizations</strong> they are engaged in most <strong>of</strong> the activities <strong>of</strong> the<br />

<strong>organizations</strong>, more so at the RMS. At MRC, the mornings begin with an early morning<br />

walk <strong>of</strong> 15 minutes outside the home. This serves as a good exercise to the patients.<br />

Many <strong>of</strong> them feel lazy to get up but the social worker shows no mercy on them and all<br />

<strong>of</strong> them are made to go for the morning walk. Every beginning and end <strong>of</strong> the day is<br />

marked by a staff meeting, which goes on for an hour during which all the staff is<br />

present. The residents are given responsibilities like supervision <strong>of</strong> other residents in<br />

turns, helping the cooks in the kitchen, maintaining cleanliness and order, etc. A<br />

committee meeting is held once a week. During this, the responsibilities are allocated to<br />

the residents and they are expected to perform their duties throughout the week till the<br />

next change is announced. Their performance is assessed and they are given points for<br />

the same. This ensures good performance <strong>of</strong> the residents and also imbibes in them a<br />

sense <strong>of</strong> responsibility.<br />

As training towards conducting themselves well at home after they return back to<br />

their families, the patients are instructed and trained to maintain themselves, their rooms<br />

and premises clean. The staff members keep a constant watch on the residents. Some <strong>of</strong><br />

them tend to waste food some eat very slowly. This has to be checked constantly. But on<br />

141


the whole, the lunch hour is very well organised and the residents are relaxed and happy.<br />

All <strong>of</strong> them wash their plates and glasses. No one grumbles about the same. They seem<br />

to have been habituated by the staff. Discipline and decorum are expected to be<br />

maintained by every individual during the dining time and they are given ranks by the<br />

staff. All the residents are given duties in turns to take <strong>care</strong> <strong>of</strong> the dining hall to supervise<br />

the hall and to see to it that everything is in order.<br />

The volunteers visit the Organization every day and conduct different<br />

programme. The morning sessions are from 9.30 to 12.30 a.m. They concentrate on<br />

current affairs during which the patients are made to share the news <strong>of</strong> the day. Each one<br />

is made to read a news item and share it with others in the group. This helps them to be<br />

alert on the current affairs and also inculcate in them the habit <strong>of</strong> reading a newspaper.<br />

This exercise makes the patients get used to the normal routine <strong>of</strong> the day-to-day life. It<br />

also keeps them busy and aware <strong>of</strong> the happenings around them so that they do not feel<br />

cut-<strong>of</strong>f from normal life. It helps in preparing them to get used to the normal routine<br />

once they return home.<br />

The counsellors consisting <strong>of</strong> one psychologist and three social workers arrive at<br />

MRC early by 8.30. A.M. Their first job is to hold a meeting with the house parents and<br />

the resident social worker who stays in the organization itself. They sit together and<br />

discuss the incidence <strong>of</strong> the previous night to see if all the patients are fine or if anyone <strong>of</strong><br />

them is upset, moody, violent, etc. This helps them to take special <strong>care</strong> <strong>of</strong> these<br />

symptomatic patients during the daytime. For instance, the house parents reported that<br />

one <strong>of</strong> the patients complained <strong>of</strong> sleeplessness during the night and she seemed very<br />

depressed and wanted to see her psychiatrist the next day. She felt very unhappy and<br />

mentioned that she wanted to end her life. These mood fluctuations and depressed<br />

feelings need to be given special attention. Though they are common among these<br />

patients they need to be taken <strong>care</strong> <strong>of</strong> to avoid untoward incidents. These are made note<br />

<strong>of</strong> by the counsellors and necessary follow-up is taken. This continuity <strong>of</strong> <strong>care</strong> is very<br />

important and at no time these patients should be overlooked or else it may end in a<br />

complex situation<br />

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The other programmes during the morning sessions are teaching English, peer<br />

group training encouraging the patients to communicate to each other and participate in<br />

group discussions. The sessions attempt to build confidence in the patients to actively<br />

involve themselves in the group. In the afternoons the patients are involved in painting,<br />

doll making, yoga, games and gardening. The organization-has a big auditorium that is<br />

used for all the recreational activities like games, dance, music, Yoga and others. It is<br />

away from their living rooms and is very well ventilated. The patients feel very relaxed<br />

in this hall and engage themselves in different activities. Volunteers conduct most <strong>of</strong><br />

these programmes. Social work students from the city colleges co-ordinate these<br />

activities in the evening! as part <strong>of</strong> their curriculum. Yoga is taught by a pr<strong>of</strong>essional<br />

who has volunteered to do the same. The inmates are also engaged in gardening. The<br />

objective <strong>of</strong> these programmes is to engage the inmates in some activity or the other and<br />

to prevent them from being lazy and idle.<br />

The core philosophy <strong>of</strong> the MRC is centred on . transactional analysis' and<br />

behaviour modification. The various therapeutic activities <strong>of</strong>fered in the organization<br />

are, English speaking which enables the patients to have a common language to<br />

communicate and to improve their interpersonal relationships. A volunteer from the<br />

Theological College holds English speaking classes once a week. A person from the<br />

Indian Cottage industry visits the organization once a week to teach the patients making<br />

toys, pots out <strong>of</strong> clay and painting the same. He is a very talented person and is very<br />

popular among the patients <strong>of</strong> the organization and the patients look forward to see him<br />

and attend his classes. He teaches them the technique <strong>of</strong> how to make different kinds <strong>of</strong><br />

pots and allows the patients to try on their own. The patients initially rejected the idea <strong>of</strong><br />

doll making. But after encouragement was given to them, they got very involved. Few<br />

<strong>of</strong> the patients are very good at their work and sincere. These dolls and pots that are<br />

made in the therapy classes are later exhibited and put for sale in the Annual Fete<br />

organised every year. The occupational therapist also teaches them how to make many<br />

useful things out <strong>of</strong> waste that can be recycled.<br />

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Women volunteers from the Theological College teach the patients drawing and<br />

painting. They bring all the materials from outside, paper, pencils, colours, etc., and<br />

encourage the patients to try out their talents. Most <strong>of</strong> the patients feel shy initially and<br />

feel that they cannot do a good job in painting. With much encouragement from the<br />

volunteers and the staff members, the patients get themselves involved-in the activities.<br />

At the end <strong>of</strong> the session all their paintings are displayed on the notice board. This gives<br />

the patients a feeling <strong>of</strong> self worth to see their work put up on the notice board.<br />

Painting sessions have helped to bring about a transition in a patient from a hostile<br />

to a co-operative state <strong>of</strong> mind. These sessions are thus aimed at bringing a transition in<br />

the patients by way <strong>of</strong> simple techniques. These also help in making the patients active<br />

and engaging them in creative work.<br />

These sessions are therapeutic in nature as once the paintings are done the group<br />

is involved in a discussion that demands them to be appreciative, imaginative, critical and<br />

also to participate in a group. After the painting session is over, all their pictures are<br />

displayed neatly on a board by the residents themselves, titled, dated and signed. After<br />

this the group sits for a discussion about these drawings. Each one is asked to comment<br />

about his picture and the picture he liked the most and the reason for the same. It is very<br />

interesting to see how they rate these pictures. Sometimes they rate the pictures<br />

according to their relationship with the person who drew the same. This helps the<br />

therapist to understand the patients' relationships with others in the group.<br />

The objective <strong>of</strong> this session is to make them imagine and create something <strong>of</strong><br />

their own and also learn to appreciate the good work done by others. This trains them to<br />

get involved in a group. Some paintings also instigate deeper thinking in them. Beautiful<br />

scenery drawn by a girl is very well appreciated and some say that it reminds them <strong>of</strong><br />

their childhood garden and every one agrees that it makes them feel so happy and<br />

cheerful. There are also a few pictures depressing, for instance, with a huge face<br />

tongue sticking put, coloured in thick black and red. These pictures also bring out the<br />

thoughts that are set deep in the patients' minds as the following illustration suggests.<br />

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Case 1<br />

The resident who coloured the picture <strong>of</strong> a huge face expressed that he<br />

was the man who kept threatening him that he would kill him. So he has painted<br />

him and put a big cross over the painting in his anger. The resident is always<br />

suspicious and worried and fears that one man is waiting in the corner to kill him<br />

with a knife. His hallucinations <strong>of</strong>ten haunt him. This gets reflected even in his<br />

drawings. Some in the group laughed at him saying there is no one like that<br />

existing and he should not get s<strong>care</strong>d. Some others believed his story. Through<br />

this discussion the staff came to know the mental state <strong>of</strong> mind <strong>of</strong> the residents<br />

and identified some who needed help in recognising their fears. Some others<br />

could imagine the good and beautiful things so that they can be happy in life. The<br />

residents were given ranking according to their performance and given a lot <strong>of</strong><br />

appreciation. The charts were kept in the dining hall till the next day.<br />

During every programme, the inmates are encouraged to the maximum extent to<br />

be at their best The staff maintain a friendly and homely atmosphere with the inmates<br />

and a striking feature <strong>of</strong> the organization is that every staff member is addressed by name<br />

and the house parents are called Uncle and Aunt This is expected to bring a feeling <strong>of</strong><br />

belonging amongst the inmates. The inmates are given maximum freedom within the<br />

limits <strong>of</strong> discipline set by the organization Inmates are given individual attention and the<br />

counsellors <strong>of</strong>fer counselling to them frequently with lot <strong>of</strong> patience and <strong>care</strong>.<br />

Habit formation chart and a <strong>system</strong> <strong>of</strong> recognising economy is followed to<br />

encourage the inmates in CUltivating good habits. Points are given for every activity the<br />

inmates engage themselves, viz., room cleaning, personal cleaning, games, Yoga, Art,<br />

etc. The incentive in the form <strong>of</strong> cash is <strong>of</strong>fered to the inmates by the counsellors on the<br />

outing day. On this day, they are all taken for a movie or a picnic.<br />

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Between the morning and the noon session there is a break for about an hour and<br />

a half when lunch is served. During this break period, they all sit around and chat, some<br />

<strong>of</strong> them spend their time sitting alone. Some <strong>of</strong> them keep pacing up and down. But a1l<br />

<strong>of</strong> them are quite relaxed as there is no serious work to be done and the staff members are<br />

not there to monitor them.<br />

Newspapers and some magazines are kept in the centre lounge for the patients to<br />

keep track <strong>of</strong> the current events. They do not desire to do serious reading but prefer to<br />

chat with the other patients. This is the best time to have a talk with them, as they feel<br />

really relaxed. They are at ease and conversation is easy with them. Some <strong>of</strong> the patients<br />

come forward to talk out their problems. Most <strong>of</strong> the patients feel free to talk except for a<br />

few who are suspicious. Some <strong>of</strong> them retrospect over their problem and share their<br />

problems. Sometimes, it seems that they have no mental problem as they behave so<br />

normally. They seem to be innocent victims <strong>of</strong> the dreadful disease as the following<br />

illustration <strong>of</strong> one <strong>of</strong>the patient's illness indicates.<br />

Case 2<br />

Kumar is a young boy from Andhra Pradesh, aged 16 years. He comes from a<br />

very educated and sophisticated family. His father is a leading doctor and they<br />

have lot <strong>of</strong> agricultural lands in their native place where they live. Kumar is the<br />

eldest child in the family and he has always been a very playful child and his<br />

problems did not precipitate until he was 14 years old when he showed lot <strong>of</strong><br />

disinterest in studies. He <strong>of</strong>ten used to run away from school and his parents<br />

<strong>of</strong>ten received complaints from his teachers. He was mistaken f(lf being playful<br />

and undisciplined and his parents never realised that he suffered from some<br />

mental problem. But as days passed by he became more restless frequently and<br />

the family members witnessed bouts <strong>of</strong> anger from Kumar without any reason.<br />

They were very patient with him and helped him cool down his tempers. He<br />

proved to be more adamant and wanted things to be the way he liked and hated to<br />

work. Most <strong>of</strong> the time he spent lazily lying around doing nothing. The suspicion<br />

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<strong>of</strong> him suffering some problem related to mental illness flashed to his father only<br />

when he abstained totally from school and studies and started physical violence<br />

on himself and others.<br />

A visit to the psychiatrist confirmed that he was suffering from schizophrenia.<br />

Kumar is by nature a very loveable boy, very jovial but with varying moods.<br />

When he is not normal, he becomes very restless, uses abusive language and<br />

violence that makes living with him so difficult. This is one example <strong>of</strong> a case<br />

wherein the affected person seems so normal but in reality carries a very dreadful<br />

disease bringing the whole family into distress.<br />

In the evenings, the patients are sent for a walk outside the campus. Most <strong>of</strong> them<br />

are sincere and return home promptly. But some <strong>of</strong> them tend to stay out for longer time<br />

and return later than the specified time. According to the staff, walking is not only a<br />

physical exercise but also for building up self-confidence. When the patients are left<br />

alone to go for a walk they return back happily that they are trusted and believed. But<br />

sometimes, a few patients also exploit this opportunity.<br />

During such times, strict action is taken against them and a consequence is<br />

decided for them on the following day by the staff and the other patients. They are made<br />

to understand that their behaviour is not approved by the group and deserves to be<br />

punished. The consequences are decided collectively by the staff and the patients as the<br />

following illustration from the case notes suggests.<br />

Case 3<br />

The next morning the staff members who were on duty the previous night<br />

handed over the charge to the morning staff. While doing so, the information <strong>of</strong><br />

the late coming <strong>of</strong> some <strong>of</strong> the residents was informed and they decided to discuss<br />

the same with the residents. During the discussion, all the residents were asked to<br />

react to the evening's episode. Those <strong>of</strong> whom who came back early felt that<br />

those who returned late from walk deserved a punishment and each one suggested<br />

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many punishments and the most popular one was to cut their evening walk for the<br />

next three days. The affected people became very upset but they were made to<br />

realise their mistake (MRC, 1994).<br />

The consequences <strong>of</strong> the misbehaviours are well thought <strong>of</strong> by the staff. They are<br />

such that they make the patients realise their mistake and imbibe in them a sense <strong>of</strong><br />

responsibility. They also learn from the consequence that it is wrong to exploit the<br />

freedom given. The residents are also told that If there is a repeat <strong>of</strong> the evidence, they<br />

will be forced to supervise them during the walks. Thus, the walking exercise not only<br />

serves as a physical exercise but also helps them to be more responsible and confident in<br />

managing themselves.<br />

At RMS the day starts very early by 6 a.m. All <strong>of</strong> them get into their jogging<br />

costumes. They all leave the home and go for a jog for about 15 minutes. All <strong>of</strong> them<br />

come back by 6.15 a.m., and are asked to do some exercises. The house <strong>of</strong>ficer teaches<br />

some exercise to the patients. Except for a few who go as a group, all others go<br />

independently. Some are lazy and do not wish to go for the jog. They try to give<br />

different excuse like cold, stomachache, headache, etc. Invariably, they all like to escape<br />

from the morning ordeal. The house <strong>of</strong>ficer, Charles gets up by 5.30 a.m. every day and<br />

his first job is to wake up all the residents. According to him, it is important for the staff<br />

to be prompt and be punctual before expecting the patients to be so. Most <strong>of</strong> them tend to<br />

be lazy, unless pushed through some activity. It is a difficult job to wake them all up and<br />

put them to work early in the morning. The other major work is to keep a check on them<br />

to see that they all get back home in time. Some <strong>of</strong> them run away sometimes-causing<br />

anxiety to all. In these kinds <strong>of</strong> instances, Lhe residenLs are warned. They are made Lo<br />

understand the problems the staff members undergo as they wait for them to return. Most<br />

<strong>of</strong> them realise their mistake and apologise. But few remain indifferent and repeat the<br />

mistakes <strong>of</strong>ten. So to prevent future problems, strict vigil is kept on these patients. The<br />

other patients are asked to keep an eye on these problematic ones and they are asked to<br />

repOlt on the same after reaching the home. Sometimes, if a patient is found to be too<br />

difficult, the house <strong>of</strong>ficer takes the decision not to send him out for jogging and make<br />

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him do exercises inside the home itself According to the house <strong>of</strong>ficer, it is a very big<br />

responsibility to supervise these patients and it is very stressful when these patients create<br />

problems early in the morning<br />

After the jog and exercise they get back to their rooms to get ready soon. They<br />

are asked to be ready by 8 a.m. after finishing their morning chores and cleaning up the<br />

rooms. Each room accommodates about 3 to 4 patients. They are made responsible for<br />

maintaining their rooms. A person is made leader for each room and he or she maintains<br />

discipline and cleanliness in the room. The leader <strong>of</strong> the room is questioned by the house<br />

<strong>of</strong>ficer ifit is not maintained well. From morning 7 to 8 a.m., they are all busy doing the<br />

cleaning work and getting ready for the breakfast and morning sessions.<br />

The resident group <strong>of</strong> 20 members is split into many groups by the staff. Each group<br />

is assigned with duties. They are expected to do these duties in the mornings. These<br />

duties are 1. gardening, 2. cutting vegetables, 3. washing the plates and tumblers, 4.<br />

maintenance <strong>of</strong> the living room, and 5. maintenance <strong>of</strong> the dining room. These activities<br />

are expected to be performed by the groups after the morning chores <strong>of</strong> washing, bathing<br />

and breakfast. This <strong>system</strong> <strong>of</strong> assigning different activities instils in them a sense <strong>of</strong><br />

responsibility. This helps them in the long run to maintain their own home once they get<br />

back.<br />

They are engaged in cleaning up the living space and the dining space. This is<br />

monitored by the chairman <strong>of</strong> the group who is elected from amongst the residents <strong>of</strong> the<br />

horne. The responsibility <strong>of</strong> chairmanship comes to each one <strong>of</strong> the patients in rotation.<br />

The chairman checks on every job done by the patients and the house <strong>of</strong>ficer is relieved<br />

<strong>of</strong> the supervision work. He/she has to mobilise the inmates to write a poem, a short story<br />

or any thing that is creative by the inmates and put it up on the notice board. The role <strong>of</strong><br />

the chairman is a very responsible one. The staff members keep assessing his/her<br />

abilities and the way he manages the affair. Some <strong>of</strong> the patients are afraid to take up<br />

chairmanship as it involves a lot <strong>of</strong> work, alertness and responsibility.<br />

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The house activities during the day are mostly paper cover making, coconut shell<br />

carving, wire baskets making, greeting cards, wood works and other works like<br />

embroidery, bead work, blouse stitching, rope work etc. The inmates have a schedule to<br />

follow every day. Each day marks one activity for the inmates. During the afternoon<br />

session, each day is filled with very interesting sessions.<br />

Cognitive Re-training and Behaviour Modification<br />

As part <strong>of</strong> therapy, the MRF team attempts 'cognitive re-training and behaviour<br />

modification'. The patients are engaged every day in different cognitive training skills.<br />

The techniques used are:(a) games; and (2) habit formation charts. Games are chosen to<br />

suit the interests <strong>of</strong> the patients. The themes <strong>of</strong> the games are many viz., current affairs,­<br />

to improve the knowledge and awareness <strong>of</strong> the patients on current events, sports, films,<br />

music etc. In all these games, the patients are asked to identify a personality giving some<br />

clues regarding that person. This helps the patients to recollect whatever is there in thememory.<br />

Scores are given on the basis <strong>of</strong> their answers. The games are mostly organised<br />

as team events so that the patients develop amongst themselves a competitive spirit and<br />

also be helpful to others in their group. Habit formation charts attempt to modify the<br />

behaviour <strong>of</strong> the patients by way <strong>of</strong> various kinds <strong>of</strong> incentives. Habit formation chart is<br />

an innovative method, which gives points to the patients on the basis <strong>of</strong> their cleanliness,<br />

punctuality, discipline, etc. The incentives include giving scores on the basis <strong>of</strong> which the<br />

patients receive money as well as gifts to motivate alterations in their behaviour. The<br />

patients are supervised by and instructed by two men and a woman.<br />

Every patient who enters MRF is assessed on various parameters, such as I.Q.,<br />

cognitive skills, memory functions, memory retention capacity, disability, personality,<br />

thought disorders etc. Various tools are used to understand hislher present status. He/she<br />

is then assigned to a team <strong>of</strong> three consisting <strong>of</strong> a psychiatrist, psychologist and a social<br />

worker. The psychologist performs the disability assessment tests, which include<br />

assessment <strong>of</strong> the level <strong>of</strong> functioning, self-<strong>care</strong>, occupational role etc. The social worker<br />

writes up the case history. Tools that are used to assess the patients are questionnaires,<br />

150


exercises, Rosarch's Test and object sorting test. Once the assessment is done, the<br />

experts decide on the course <strong>of</strong> action. The morning sessions, at MRF involve intensive<br />

therapies, which are administered only in the mornings when the patients are fresh and<br />

alert. During the afternoons, most <strong>of</strong> the patients are tired and therefore, made to relax<br />

for a while. Staff members are involved in writing reports. Staff meetings take place in<br />

the afternoons. During these meetings, the performance <strong>of</strong> the patients is discussed and<br />

further programmes planned. Special attention is paid to those who are restless, or<br />

exhibit other symptoms <strong>of</strong> illness. In the evenings around 3 p.m., the patients are<br />

involved in various kinds <strong>of</strong> games. During these sessions they are divided into two<br />

groups. Various games are organised which focus on improving the ability <strong>of</strong><br />

association, memory and encouragement to participate in group activity.<br />

Family is involved at every stage <strong>of</strong> the treatment. Separate sessions are arranged<br />

for them. Behaviour <strong>of</strong> the patients is monitored constantly. This helps to prevent<br />

relapse. The relationships between the patients fluctuate. Sometimes they are friendly<br />

and some other times they quarrel. Group dynamics among them is very interesting and<br />

sometimes strange. Observation <strong>of</strong> their behaviour helps the staff to understand each<br />

client's problems, attitudes towards each other, their capacity to tolerate, accommodate<br />

and adjust in the group etc. The interactive behaviour <strong>of</strong> the patients with the family<br />

members is also keenly observed which helps in behavioural re-training and<br />

modification. The staff ensure that the patients are involved in vocational activities.<br />

Therapies are designed according to the client's conditions. The patients are put under<br />

observation. Their habits, areas <strong>of</strong> fluctuation, relationships with others are observed.<br />

Their functional levels are also assessed using interview techniques.<br />

Behavioural therapy is attempted wherein relaxation is given to the patients. This<br />

is attempted to improve self-<strong>care</strong>. Therapies aim at streamlining their behaviour so that<br />

they can lead a normal life and perform everyday activities without dependence and<br />

tension. Once a week, group therapy is conducted which helps the patients to bring out<br />

their inner feelings and emotions. The staff members observe each <strong>of</strong> their activity is<br />

during the therapies and during the training exercises, which help them to a great deal to<br />

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understand their emotional problems. These sessions give them a floor to speak out what<br />

is in their minds. They also help them to open up and share their problems with others.<br />

During the group therapies, all the staff are involved. The staff members motivate and<br />

encourage the patients to get involved in the sessions. Personal adjustments and<br />

accommodative behaviour are observed during the sessions. Psychotherapy is<br />

administered in the normal course, to the patients in order to understand their problems<br />

and help in solving them.<br />

<strong>Role</strong> <strong>of</strong> the Psychologist<br />

The role <strong>of</strong> the psychologist is very crucial as he/she determines the level <strong>of</strong><br />

disability <strong>of</strong> the patients. The assessment <strong>of</strong> the disability is done using the WHO<br />

prescribed schedule on 'Disability Assessment'.<br />

Once the diagnosis is done, the experts plan the suitable therapy for the patients.<br />

Cognitive re-training is given to the patients by means <strong>of</strong> various exercises. Volunteers<br />

also carry out these exercises. The followmg case illustrates one <strong>of</strong> these sessions.<br />

Case 4<br />

A volunteer was training a client aged around 20 years on English<br />

alphabets and numerals. The client had lost her memory and she had to be retaught<br />

all the basics from the start. The volunteer trained the patient by giving<br />

different types <strong>of</strong> exercises like writing alphabets, showing pictures <strong>of</strong> the<br />

alphabets and asking the patient to identifY, giving mathematical exercises like<br />

addition, subtraction, etc., to make the patient recollect those lost in the memory.<br />

One volunteer remarked, "working with the patients is very strenuous, as they<br />

have very little concentration and memory. But yet it gives immense satisfaction<br />

when they make efforts and re-Iearn what they have lost in their memory. To see<br />

their improvement gives great happiness and encouragement to work with them".<br />

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The Psychologist working at MRF at the time <strong>of</strong> our field visit was one <strong>of</strong><br />

the fresh enthusiastic graduates from University with a degree in M.Phil. Clinical<br />

Psychology. This was her first employment and she felt very happy about the<br />

same. When she first joined the organization she was involved in a project on<br />

'Risk factors in the children <strong>of</strong> Schizophrenia patients', The project intended to<br />

keep track <strong>of</strong> the lives <strong>of</strong> the children <strong>of</strong> schizophrenic patients to see if any<br />

pattern <strong>of</strong> abnormality was present in them. She was given the job <strong>of</strong> sending<br />

letters to the patients who had been treated by MRF. The study concluded that<br />

there was psychopathology in the families and the effect <strong>of</strong> this on the children<br />

was suggested as a follow up. Her room is well equipped though crammed up due<br />

to lack <strong>of</strong> space as the following quotation from the field diary suggests.<br />

"Her room was a low ceiling narrow room which had a cot to the right<br />

comer. On the left side were a table and a chair where she sat to interview the<br />

patients. There were some racks filled with books and instruments used in the<br />

therapies. The room was located in the ground floor whereas the rooms <strong>of</strong> the<br />

psychiatrists and social workers are there in the first floor. This was a little away<br />

from the main activity <strong>of</strong> the organization and was not so comfortable as it lacked<br />

space. The mterviews and therapies were mostly performed during the mornings<br />

when the patients were fresh".<br />

The therapies given to the patients are many. They are, namely, behaviour<br />

modification or behavioural re-training. In thiS, there is an attempt to modify the<br />

behaviour <strong>of</strong> the patients, which would help them in their routine activity and also help<br />

them to perform better socially. To attempt at this, the problems <strong>of</strong> the patients are first<br />

identified. This is done through various methods as the following quotation from the<br />

field diary suggests.<br />

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Case 5<br />

One morning there were about three new patients in the organization. The<br />

psychiatrist took the history <strong>of</strong> the patients' illness and the social worker took their<br />

family histories. Later, they were sent to the psychologist one by one. The<br />

psychologist got ready with her various tools to test their ability. Many tests were<br />

performed on them. To mention a few, Memory and learning test. In this the<br />

patient was tested for verbal reproduction. For instance, the psychologist gave the<br />

patient a piece <strong>of</strong> paper that contained a story split in parts. The patient was asked<br />

to read through the passage and then asked to reproduce it to test how much <strong>of</strong> it<br />

was retained by his/her memory.<br />

After making the patient read the story, the psychologist asked the patient<br />

to reproduce the same. She was asked to read over and over again and to<br />

reproduce the same after reading. This was repeated four times and the number <strong>of</strong><br />

memories <strong>of</strong> the patients was recorded each time. These four trials helped the<br />

psychologist to understand the memory retention power <strong>of</strong> the patient. Then, the<br />

psychologist performed the neuro-psychological test that consisted <strong>of</strong> many<br />

questions. Against each question the psychologist noted down the time taken to<br />

answer the question, the answer given and, whether the answers were right or<br />

wrong.<br />

Case 6<br />

The patient under study by the psychologist at the time <strong>of</strong> visit was a person<br />

in his late thirties who had difficulties in grasping and remembering. In the first<br />

stage <strong>of</strong> the test he was able to fill up the blanks correctly in a reasonable period<br />

<strong>of</strong> time. But as it became a little complicated he started mixing up the figures.<br />

These results were recorded by the psychologist for writing up her assessment<br />

report <strong>of</strong> the patient.<br />

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These tests make the patients very tired as it involves lot <strong>of</strong> attention and<br />

concentration from them. So, these are performed in two to three sessions<br />

depending on the ability <strong>of</strong> the patient. The patients exhibit lot <strong>of</strong> fatigue and<br />

tiredness and their concentration gets very much reduced as the session<br />

progresses. The psychologist thus has to time her sessions in such a way her<br />

assessment would yield proper results for the psychiatrist to follow -up. She<br />

commented, "It is very stressful to work with the patients and it is good for both<br />

the patient and me to take a break and then continue after a while. It is always<br />

preferred to conduct these sessions during the mornings when both <strong>of</strong> us are fresh.<br />

Invariably, the afternoons are meant for relaxation and the patients are asked to<br />

rest for a while. During these hours we complete our assessment reports and<br />

discussions with other experts.<br />

The other tests performed by the psychologist are that <strong>of</strong> ideational fluency which<br />

assesses the ability <strong>of</strong> the patients to form ideas logically. For instance, they are asked to<br />

list out things made <strong>of</strong> wood, round shaped things, which make them think logically.<br />

They are also asked to identify similarities and differences between objects. These tests<br />

<strong>of</strong> mental status examination pose great problems to the experts as explained by the<br />

Psychologist.<br />

Case 7<br />

Usha, a psychologist, seemed very tired after a hectic morning session with<br />

the patients. During an interview with her she expressed the difficulties faced by<br />

her. "One main problem faced in these tests is the problem <strong>of</strong> language. These<br />

tests are mostly standardised in English. The patients who come for treatment<br />

come from all over India and we have to be clear enough to explain the tests to<br />

the patients in a common language so that we achieve good results. The other<br />

problem faced by us is the difficulty in making the patients respond to the various<br />

questions posed. Some patients are very unresponsive. They do not react to any<br />

questions. In these cases we take note <strong>of</strong> the behaviour <strong>of</strong> the patients, give them<br />

155


adequate time to respond and also see if the patients can communicate by writing.<br />

Some patients are over-active, restless and cannot be put to <strong>system</strong>atic<br />

interviewing. In dealing with these kinds <strong>of</strong> patients we have to make a quiet but<br />

confident approach that calms the patient and makes him co-operate. Some<br />

patients are very confused and give very muddled answers and during these times<br />

it is best to take the help <strong>of</strong> the attendant <strong>of</strong> the patient".<br />

A Day with the Social Worker<br />

The social workers at MRF have a busy day from morning till evening with various<br />

kinds <strong>of</strong> chores to attend to. They have a separate room next to the psychiatrists' room<br />

and close to the vocational training unit for women. This location helps them in coordinating<br />

their work<br />

The social worker plays a crucial role in bridging up the diagnosis <strong>of</strong> the<br />

psychiatrists and the assessment <strong>of</strong> the psychologist The follow-up <strong>of</strong> the patients'<br />

background plays a crucial role in the treatment. The role <strong>of</strong> the social worker could be<br />

described as that <strong>of</strong> continuous supervision role, which involves constant touch with the<br />

patients. The role <strong>of</strong> the psychiatrist and psychologists are more specific and focussed<br />

and for a particular duration <strong>of</strong> time. The social workers are always on their toes keeping<br />

track <strong>of</strong> whatever is happening to the patients and their families. The following quotation<br />

from the field notes describes the role played by the social worker.<br />

Case 8<br />

Maria is an M.Phil. in Psychiatric Social work from a reputed institution.<br />

She seemed very happy with her job. She expressed that she was thoroughly<br />

satisfied with the work atmosphere. She felt her role as a provider <strong>of</strong> feed-back to<br />

the psychiatrist and the psychologist was vital. She divided her duties at MRF into<br />

two categories, viz., primary duties and secondary duties. The former consisted<br />

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<strong>of</strong> registration <strong>of</strong> patients, follow-up, client <strong>care</strong> and making rehabilitation plan<br />

for the patients. Secondary duties were to take <strong>care</strong> <strong>of</strong> the vocational unit <strong>of</strong> the<br />

female patients, supervising their activities, budgetary duties regarding purchase<br />

<strong>of</strong> raw materials and sale <strong>of</strong> products made in the vocational centre.<br />

Of all the duties assigned to her Maria feels that the client registration and<br />

follow-up are the most important ones. Every patient who enters the organization<br />

is first registered by the social worker. All the particulars regarding the patient are<br />

recorded, viz., - the identification data related to name, age, sex, religion, address,<br />

language spoken, source <strong>of</strong> referral etc. The social worker then proceeds to the<br />

history <strong>of</strong> illness, duration, details regarding the relapse, history <strong>of</strong> treatment<br />

undertaken by the patient, etc.<br />

Once the illness history is recorded, the personal history, viz., the date <strong>of</strong><br />

birth, order <strong>of</strong> birth, complications during birth, childhood psychiatric history,<br />

emotional disturbances experienced during childhood, educational history and<br />

academiC performance are taken note <strong>of</strong><br />

The patient and the attendant who accompanies are interviewed on various<br />

aspects <strong>of</strong> the patient's life, viz., menstrual histOry, sexual history, history <strong>of</strong><br />

alcohol. drug abuse, occupational history, marital history, obstetric history,<br />

physical illness and family history.<br />

Family history plays an important role in understanding the patient's mental status.<br />

The following quotatIOn from a social worker illustrates the importance <strong>of</strong> the family<br />

history.<br />

"Sociology that we had learnt during our course is put to practical use when we are<br />

engaged in taking the family history <strong>of</strong> the patients. We take a detailed history <strong>of</strong> the<br />

structure <strong>of</strong> the family, parental consanguinity. family history <strong>of</strong> illness, family finances,<br />

family inter-relationship, etc.,. After taking down the history, we visit the families <strong>of</strong> the<br />

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patients to do the follow-up. Wherever we find gaps in the information, we clarify them<br />

during our family visits. Understanding the family milieu <strong>of</strong> the patients helps us in a<br />

great way to understand the patients' illnesses and also to plan a suitable rehabilitation<br />

programme for them".<br />

After writing the case histOry, the social worker-takes notes on the mentaLstatus,<br />

which is followed by the psychiatrist's clinical diagnosis. Another important role the<br />

social worker performs is <strong>of</strong> behavioural analysis. According to the social worker, "This<br />

is yet another area that needs to be probed deeply in order to understand the status <strong>of</strong> the<br />

patient. Firstly, the problem situation <strong>of</strong> the patient is understood. His or her behavioural<br />

excesses, behavioural defects and strong points are assessed. The frequency, duration and<br />

intensity <strong>of</strong> the occurrences <strong>of</strong> behavioural excesses are tested. The behaviour analysis is<br />

made keeping in milld the standard <strong>of</strong> socially acceptable behaviour".<br />

The other areas that are probed are the motivating factors that instigate acceptable<br />

behaVIOur in the patients, the key persons who have an influencing effect on the patients,<br />

the incentive that the patients get attracted to and the major aversive stimuli for the<br />

pallents. In the course <strong>of</strong> the analYSIS, the expert learns all about the behavioural<br />

problems <strong>of</strong> the pallent and gets relevant information to plan for behaviour modification.<br />

The following ill ustration from the case diary would make the exercise clear.<br />

Case 9<br />

Once during the interview with a patient, the social worker probed into the<br />

patient's mind by asking what she liked the most. The patient replied that she<br />

liked listening to music. This was confirmed from the attendant accompanying<br />

the patients. The social worker asked her if she could change herself a little<br />

towards the positive direction, then she would get a reward, may be a good music<br />

cassette. The patient agreed to this and was very eager to change her odd<br />

behaviour. The patient also expressed that she liked her father more than her<br />

mother and would listen to whatever he says. But the patient seemed to hate her<br />

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mother and was very violent towards her. In order to check the behaviour <strong>of</strong> the<br />

patient, the social worker assured the patient that she would receive a reward <strong>of</strong><br />

her favourite cassette if she would listen to the good words <strong>of</strong> her father and also<br />

be good to her mother. The patient gave a very happy nod for the same.<br />

In these kind <strong>of</strong> problem situations, the patient's likes and dislikes are studied· to .<br />

understand the patient's behaviour and help them correct and modify their behaviour<br />

according to the socially acceptable norms. The discussion with the patient helps the<br />

social worker to understand his/her relationship with the other members <strong>of</strong> the family.<br />

This helps in planning programmes for the patients and their family.<br />

The other areas <strong>of</strong> interest to the social worker are to do the developmental analysis<br />

in terms <strong>of</strong> the biological changes that the patient underwent and whether they caused any<br />

limitations in her behaviour, affecting her course <strong>of</strong> life. It is also important for the social<br />

worker to know whether the patient underwent treatment for the same. The following<br />

case illustrates a similar problem faced by a patient.<br />

Case 10<br />

Kala is a schizophrenic patient aged 30 years. During her adolescent ages<br />

<strong>of</strong> 15-17 years, she exhibited many behavioural excesses due to biological<br />

changes. For instance, she would go out <strong>of</strong> her house, sit on the pavement and<br />

keep calling to young boys. She would ask them to sit next to her. She used to<br />

long for physical proximity with boys. She would ask all the boys who passed by<br />

if any <strong>of</strong> them would marry her. The parents took her for treatment but it did not<br />

help her much. They received lot <strong>of</strong> complaints and humiliation from neighbours<br />

and they were forced to shift their residence. The family members decided to<br />

marry her <strong>of</strong>f so that this problem would get solved. The doctor attending on her<br />

advised them not to get her married as this was not the solution for her problem<br />

and it would only complicate her situation. Only then the family members came<br />

to know that she had a psychiatric problem. A probe into the developmental<br />

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aI:}alysis tracing through the biological changes helps the experts in understanding<br />

the problems <strong>of</strong> the patient. In spite <strong>of</strong> the doctor's advise she was married <strong>of</strong>f<br />

which caused severe problems to her. This is one <strong>of</strong> the cases wherein MRF has<br />

done a family intervention programme to make them accept her disease and take<br />

appropriate action.<br />

The other area <strong>of</strong> importance to the experts is that <strong>of</strong> sociological changes. The<br />

experts try to understand the features <strong>of</strong> the present socio-cultural milieu <strong>of</strong> the patient.<br />

They look for changes in the milieu that are pertinent to his current behaviour and see<br />

whether he experienced any role conflicts due to the change. Then they identify the<br />

sociological factors that determine the patient's behaviour and use them in the treatment<br />

programme. The following illustration shows how sociological changes in the patient's<br />

family brought about behavioural changes in the patient.<br />

Case 11<br />

Mallika is a schizophrenic patient aged 30 years. She had a very happy<br />

childhood. She lost her parents at a very early age and was taken <strong>care</strong> by her<br />

relatives. When they grew older, she lived with her brother separately and her<br />

brother was very good to her and took <strong>care</strong> <strong>of</strong> her very well. During her college<br />

days, she used to have many friends. She fell in love with one <strong>of</strong> her college<br />

mates and married him. But they had a very unhappy married life and it ended in<br />

a divorce. After her divorce, she came back to live with her brother. She was<br />

very depressed after her divorce and attempted suicide many times. Meanwhile<br />

her brother's marriage was fixed. The news <strong>of</strong> her brother's wedding disturbed<br />

her a lot. She was so possessive <strong>of</strong> her brother that she could not accept the fact<br />

that he will soon be married. After the wedding, she was very angry with her<br />

brother and started getting violent. She hated her sister-in-law and did not want to<br />

160


live in the same house. Her brother could not tackle the situation and decided that<br />

he would leave the house along with her wife so that her sister would not have<br />

mental upsets. But the situation became worse as she could not cope up with the<br />

new situation and felt everyone had deserted her. The brother <strong>of</strong> the patient<br />

sought MRF for help. This is a typical instance <strong>of</strong> how sociological factors, in<br />

this case a marriage <strong>of</strong> a very close kith brought about disruptive changes in the<br />

behaviour <strong>of</strong> a patient. These situations help the team to learn more about the<br />

patient's family experience. It also helps them plan an action to make the patient<br />

accept the new role and tackle the situation.<br />

The experts analyse the behavioural changes in the patient that occurred as a result<br />

<strong>of</strong> changes in the social, cultural and physical environment. They try to assess the selfcontrol<br />

ability <strong>of</strong> the patients and how best thIS can be used in the treatment programme.<br />

The other area <strong>of</strong> interest to the experts is that <strong>of</strong> analysis <strong>of</strong> social relationships.<br />

They try to learn from the patient the most significant person in his current environment<br />

and those whom he thinks creates problems for him and those who reinforce the<br />

behaviour in him. Once they learn who the significant person is in the patient's life, they<br />

call himlher over and involve him in the treatment procedure. They learn what the<br />

patient expects from the significant other and what the latter expects form the patient.<br />

The involvement <strong>of</strong> the significant others in the treatment helps in influencing the<br />

expected behaviour in the patient. The social workers also try to understand the<br />

normative milieu <strong>of</strong> the patient and the behaviour <strong>of</strong> the patient. They look for the<br />

lImitations in the patient's environment that exacerbate abnormal behaviour. Ifthere is a<br />

support in the social milieu for changes in attitudes and values, they make use <strong>of</strong> them in<br />

psychotherapy.<br />

The social worker thus helps, to a b'Teat extent, to fill up the diagnostic gaps. The<br />

notes <strong>of</strong> the social worker are <strong>of</strong> vital importance to the psychiatrist to understand the<br />

patient's illness from the point <strong>of</strong> view <strong>of</strong> his social setting. Whatever be the cause <strong>of</strong><br />

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illness, understanding the social milieu is very important in planning for the treatment <strong>of</strong><br />

the individuals.<br />

<strong>Role</strong> <strong>of</strong> the Psychiatrists<br />

The Psychiatrists <strong>of</strong> MRF playa crucial role in the diagnosis and treatment <strong>of</strong> the<br />

patients. They take very special interest in dealing with the patients' problems. This is<br />

usually a private affair involving the patient and the psychiatrist though sometimes the<br />

attendant <strong>of</strong> the patient is also included. The case is then discussed with the other experts<br />

<strong>of</strong> the team for follow-up and rehabilitation.<br />

Case 12<br />

Meera is a 45 years old psychiatrist, who has done her MBBS, DPM and<br />

PhD. She is married and is employed at MRF for more than a decade. She was<br />

previously working in the Government Psychiatry department on a project. She is<br />

the Joint Secretary at MRF and second in line for leadership. In the absence <strong>of</strong><br />

the Director she will have to take up all the responsibilities and as such according<br />

to her, her work is more administrative in nature. She is also involved in research.<br />

She contributes to the out-patient consultation, in the rehabilitation meetings<br />

where discussions on plans for each patient are conducted. She also joins in the<br />

planning <strong>of</strong> public education programmes. She feels that the most important <strong>of</strong> all<br />

her duties is mobilisation <strong>of</strong> funds to run the organization.<br />

According to her, when MRF was just two years old, it was very easy to<br />

acquire funds because it did not require much money. But. at present, since it has<br />

grown very big, even if funds come in lakhs, it never seems to be sufficient. Very<br />

few foreign agencies fund the organization. She hoped that the Central<br />

Government would help the organization with some funds as the dispute<br />

regarding funds for the mentally ill has been settled. This was settled after much<br />

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lobbying by the MRF representatives with the Ministry <strong>of</strong> Health and Ministry <strong>of</strong><br />

Welfare and the responsibility has been given to the Ministry <strong>of</strong> Welfare.<br />

Regarding the families <strong>of</strong> the patients, she feels, "some co-operate and<br />

some don't. So it gets very difficult to convince the families first and then the<br />

patients. She strongly feels social stigma against the mentally ill still prevails<br />

strongly and this would take a very long time to get diminished. Some parents<br />

agree to co-operate and listen to the psychiatrist's plan <strong>of</strong> action. But once they<br />

get back home they create problems to the patients. It is very difficult to get the<br />

family members to understand the illness <strong>of</strong> the patients and make them cooperate".<br />

She is very disappointed with the way things are gomg on m the<br />

organization. According to her, "the interpersonal relations are not so good. The<br />

higher personnel treat the lower grade staff very badly. Though they are actively<br />

involved in treatment, they are very business like and do not show much love for<br />

the patients. This is a recent trend and it was not so before. The staff who have<br />

joined recently are more self oriented and not interested in servicing the patiettts.<br />

Patient <strong>care</strong> quality has come down. There are no outings for the patients". She<br />

seemed very worried that the organization was deviating from its objectives and<br />

becoming a moneymaking set up. She personally felt that the organization should<br />

not be used for individual benefits. The cause should always be remembered and<br />

the motive should always be 'social service'.<br />

Committee Meeting<br />

At RMS, during Monday afternoons, there is a committee meeting, where the<br />

review <strong>of</strong> the activities <strong>of</strong> the previous week is done. All the inmates are made to react to<br />

the previous week's happenings. The staff members tactfully pose questions to the<br />

inmates about their performance during the previous week. The inmates are asked to<br />

respond to the chairmanship <strong>of</strong> the previous week and it is an interesting session which<br />

163


helps the staff to understand the capabilities <strong>of</strong> the inmates, their capacity to maintain the<br />

group, their leadership qualities and also their interpersonal relationships with the other<br />

patients. At the end <strong>of</strong> the session the group is asked to elect a new chainnan for the next<br />

week. This exercise gives the inmates an opportunity to take up responsibility in running<br />

the home and also instils confidence in them and removes fear.<br />

Monday afternoon is spent in reviewing the perfonnance <strong>of</strong> the chainnan <strong>of</strong> the<br />

previous week. The chairperson <strong>of</strong> the previous week is asked to speak out the problems<br />

faced by him in the ,last one week. The other staff are also asked to comment on the<br />

chainnanship, hislher positives and negatives and the ways to rectify the same. The<br />

following case illustrates one <strong>of</strong> these sessions that assessed the old chainnan and which<br />

elected the new one.<br />

Case 13<br />

It was a Monday afternoon. Everybody had finished their lunch, relaxed<br />

for some time and assembled in the living room by 2 p.m. All the staff<br />

assembled too. The chainnan <strong>of</strong> the previous week was very smartly dressed and<br />

eagerly waiting for the responses <strong>of</strong> the other patients and the staff regarding his<br />

role perfonnance. All <strong>of</strong> them sat around in a circle and each one <strong>of</strong> them reacted<br />

to his chainnanship. Vijay was the chainnan for the previous week. He is one <strong>of</strong><br />

the playful and jovial patients around and a very popular one too. But he is too<br />

casual with all the work and the reactions <strong>of</strong> the others were very interesting. All<br />

the residents appreciated Vijay for his good chainnanship. All felt that he had<br />

been very good with his work as a chainnan, which was very surprising. They all<br />

appreciated him and asked him to continue to be efficient even though his<br />

chainnanship had ended. He was beaming with joy by all their appreciation.<br />

Some others did point out to some <strong>of</strong> the problems they faced during his<br />

chainnanship. Their main complaint was that he seemed to have patience with<br />

some boys just because they were his friends and gave them less work and never<br />

164


checked on them. Surprisingly, he agreed with the same and said he did not know<br />

how to be stem with them as they were his friends and said he would try to avoid<br />

this during his next opportunity. One <strong>of</strong> the staff members pointed out to him that<br />

he failed to wake up early in the morning to start his chores and this was very<br />

incorrect, he being the chairman <strong>of</strong> the group. He added that the chairman should<br />

act as a model to be followed by the group and not be a bad role model for the<br />

group to excuse themselves from doing things.<br />

The session was very balanced with the members making both positive<br />

and negative comments. They appreciated all his good work and pointed out his<br />

mistakes for future improvement. V felt fine. He expressed his satisfaction over<br />

his chairmanship and thanked all the patients for their co-operation during his<br />

chairmanship. All the patients were feeling very happy about the same. One <strong>of</strong><br />

them remarked, "It is nice to see Vijay so responsible and serious as we have<br />

always seen him joking and so playful. None <strong>of</strong> us ever thought he could be such<br />

a good leader. Throughout the session, one could observe that each one in the<br />

group was expressing their feelings very freely and frankly and no one was<br />

getting angry with the other. They took all the comments in a very <strong>health</strong>y spirit.<br />

Then it was decided to elect the new chairman for the next week. The staff had<br />

already decided on the new chairman. This selection is based on the fact that the<br />

person who is selected needs to be exposed to some responsibilities. Also, they<br />

choose the person in such a way that the selected person overcomes the<br />

complexes and mixes with the crowd freely. The idea behind the exercise is to<br />

build confidence in the patients and also develop a leadership quality in them. It<br />

also helps the patient to socialise well in the group. They take <strong>care</strong> not to<br />

overburden patients with responsibilities which might disturb their mental status.<br />

Vocational Training<br />

At MRF, Vocational training is given to the patients <strong>of</strong> day <strong>care</strong> and rehabilitation<br />

centre on various skills. The various activities run by the centre are screen-printing,<br />

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paper printing, baking, stitching, etc. The products obtained from their work are sold to<br />

outsiders and also used for <strong>of</strong>fice requirements. These jobs are done for outsiders on<br />

order. Pr<strong>of</strong>its from the sale are used by the organization. The patients are given an<br />

incentive in the form <strong>of</strong> cash according to the labour done. The MRF team is constantly<br />

engaged in developing contacts. The instructor in charge <strong>of</strong> the vocational training"<br />

observed, ' 'The patients are mostly very slow in understanding and their self-confidence<br />

is very low and getting their co-operation is the most difficult task. We at MRF are<br />

trying our best to improve contacts to attract more demand for the products made at MRF<br />

which would help the patients to keep themselves busy and also help the organization<br />

gain some revenue'.<br />

The patients are trained to make purchases, maintain accounts and also deliver the<br />

products. This involvement develops lot <strong>of</strong> confidence in them. They also learn to<br />

maintain their own accoWlts regarding their earnings and expenses. Incentives are paid to<br />

them to make them feel self-reliant. One <strong>of</strong> the patients remarked, 'The incentives that<br />

are given makes me feel that I too have a status in this society like a normal person and<br />

can make money out <strong>of</strong> my work. I hope to work hard and make more money'.<br />

The instructor, who involves them in activities, is a very efficient and enterprising<br />

person who involves all the patients in activities. He facilitates interaction among the<br />

patients and prevents them from getting into boredom and sulking. The chief activities<br />

Wldertaken by the male patients at the MRF Day <strong>care</strong> centre are printing <strong>of</strong> pamphlets,<br />

visiting cards and invitations.<br />

Printing is one <strong>of</strong> the main vocational activities for the male patients at MRF. The<br />

centre takes orders for making invitations, visiting cards, candles, agarbathis, envelopes<br />

and phenol. The patients keep themselves very busy and the room is full <strong>of</strong> activity. The<br />

following quotation from the field notes illustrates the activities in the centre.<br />

"It was a hot summer afternoon, all the patients were busy with some work or<br />

other. Three patients were making incense sticks. Five <strong>of</strong> them were near the printer<br />

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arranging the printing blocks. The instructor was having a tough time getting some<br />

silence in the room. All <strong>of</strong> them had something or other to talk. Some <strong>of</strong> them teased the<br />

others saying that they do not have any brains and they cannot do any work. This<br />

accusation brought about lot <strong>of</strong> commotion in the room. Raghu, the instructor brought<br />

peace amongthem-with lot <strong>of</strong> efforts: Though there seemed to be commotion always in<br />

the vocational training rooms, as far as their work is concerned, they performed them<br />

very meticulously". The following case illustration suggests their efficiency at work".<br />

Case 15<br />

One <strong>of</strong> the male patients Ramu is known for his seriousness and liking for<br />

being alone. He does not mix well with the group but when given a job he is<br />

serious about carrying out the duties. He has been a schizophrenic for about ten<br />

years and his family sought the help <strong>of</strong> this organization after being referred by<br />

the psychiatrist treating him. The main problems the family faced from him, were<br />

his closeness and solitude, refusal to mingle in a group, his inability to socialise.<br />

He is very violent if addressed to. His family members really get s<strong>care</strong>d in his<br />

presence. What he required was pr<strong>of</strong>essional help to modifY his behaviour.<br />

Therefore the family chose to get him to the day <strong>care</strong> centre where he could be<br />

spending his time usefully. According to the vocational instructor, he was a very<br />

talented person and very hard working. A small tease or fun making from anyone<br />

would make him lose his mind. He got very moody, silent and depressed and<br />

went into bouts <strong>of</strong> anger.<br />

At MRF, the statT gave him the responsibility <strong>of</strong> managing the printing<br />

work, which would mean taking orders and delivering the goods in time. Since<br />

Ramu was a meticulous person, the orders were done to perfection. The patrons<br />

who had initially refused to place orders since they would be made by mentally<br />

ill, were too glad to get them done here as Ramu managed to complete their work<br />

promptly and perfectly. Throughout the day, Ramu was and still is busy with his<br />

work, which kept him preoccupied. He was forced to take assistance for the<br />

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various tasks involved, this has given rise to a peer group <strong>of</strong> helpers. His violent<br />

behaviour is now much under control as he is the boss in the group. Sometimes<br />

he does show his anger but soon gets over it. According to his family members,<br />

after attending MRF, he is more accommodative at home and they feel so relieved<br />

about the same.<br />

Female patients are involved in basket making, embrOidery work on tablecloth,<br />

handkerchiefs and other ornamental items like dolls and handicraft products. Their room<br />

is quieter as the following quotation from the field diary suggests.<br />

"The girls are very busy doing either stitching or embroidery work. All <strong>of</strong> them are<br />

sitting on the floor. Two <strong>of</strong> them are busy in the sewing machine stitching up the sides <strong>of</strong><br />

a beautifully embroidered tablecloth also done by a patient. In contrast to the men's<br />

room, this room is very quiet, rather dull but the patients are all very involved in some<br />

handwork or other. Some <strong>of</strong> them are weaving baskets with plastic wires. Some are busy<br />

embroidering white handkerchiefs. The embroidery being made on these handkerchiefs<br />

looks so delicate and makes one wonder the amount <strong>of</strong> concentration the patients have to<br />

put in to produce such an intricate handwork".<br />

The instructor <strong>of</strong> the female vocational unit is a very talented and a dedicated<br />

person as the following case illustration suggests.<br />

Case 16<br />

Mary is the supervisor <strong>of</strong> the female vocational training centre. She has<br />

been working at MRF for more than ten years. She discontinued her studies after<br />

her eighth standard and underwent training in a Sister's Convent in Tirunelveli<br />

and taught in a Christian Missionary School for sometime. She is very pious and<br />

god fearing. She owes her patience and tolerance to the God's wisdom as she puts<br />

it. She works from morning 9.30 a.m. to 4.30.in the evening, spends all her time<br />

with the patients, eats with them and rests with them. She commented that it was<br />

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only because <strong>of</strong> God's wisdom, she was able to take <strong>care</strong> <strong>of</strong> the patients. All the<br />

patients loved her. She said, 'My service to them should be such that, they do not<br />

hate me'. Basically, her work is to make the patients work. She has been trained<br />

in many skills by MRF. She is an expert in handwork. She teaches the patients<br />

embroidery, cross-stitch, knitting, tailoring and· basket weaving,·· Many years'<br />

back MRF ran a canteen in the same premises and she was managing the same.<br />

On an average about 15, female patients are taken <strong>care</strong> by her each day.<br />

Patients who attend MRF are <strong>of</strong> various natures. According to Mary,<br />

"Some are really interested in work, learn it meticulously. Some are very lazy and<br />

simply doze <strong>of</strong>f Bust most <strong>of</strong> them are very moody and to manage them requires<br />

lot <strong>of</strong> patience. Whenever they are upset, they tend to become very violent".<br />

Mary is always known to be very patient and tactful with the patients. She can<br />

manage all crisis situations without any fear as the following episode indicates.<br />

Another case <strong>of</strong> exchange in the behaviour pattern <strong>of</strong> the patients, who participate<br />

in vocational therapy, is given below,<br />

Case 17<br />

One female patient Mala, aged about 18 years, has been suffering from<br />

schizophrenia for about 4 years. One day she was in a very nasty mood.<br />

According to her family members, she is always very paranoid about the people<br />

around her. She is very troublesome at home as she always complains that<br />

somebody is going to kill her. She disbelieves all her family members. She<br />

spends all day long anticipating that all around her would harm her. She seemed<br />

very angry with her family members for leaving her at the day <strong>care</strong> centre. She<br />

was murmuring that everyone was making her mad by putting her along with mad<br />

people. She was very upset. Mary, the instructor tried to pacify her. She told her<br />

that she must be very tired because <strong>of</strong> the hot day and <strong>of</strong>fered her juice. But Mala<br />

got very cross with her and said she was trying to kill her by mixing poison and<br />

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hit her on the head with one <strong>of</strong> those embroidery kits. Maria coolly took the juice<br />

back and sat in her place. All the staff became a bit worried. But she told them<br />

not to worry about her. After ten minutes, the patient came to her and started<br />

justifying why she hit her. She said she was very suspicious with her mother for<br />

sending her to MRF that day and she thought she has been sent only to be killed<br />

by mixing poison in the juice. The instructor keeps her busy with some<br />

handwork or other so that she would not engage in violence. Thus, the violent<br />

patient is kept busy to avoid violent outpours. An event like this is very common<br />

in these centres as the patients are very suspicious in nature and according to them<br />

nobody is trustworthy and good. Whenever they experienced these mood swings<br />

they get very upset and violent. The staff members are usually prepared for the<br />

same. Mary has been with the patients for many years and has learnt by<br />

experience to put up with their mood variations and violence.<br />

She is very free with the patients, attends to them patiently and teaches<br />

them good work. The patients too talk out their problems freely to her. They take<br />

her as a very friendly person. Mary is very religious and takes her work really<br />

seriously and never wants to leave the organization. She has got job <strong>of</strong>fers from<br />

many places for teaching handwork for school children and she has put down<br />

these <strong>of</strong>fers. She feels it is god's will that she should help these patients and so it<br />

shall be. Though her remuneration is quite low, she feels it can keep her through<br />

as she is unmarried and has no family commitment. She has lot <strong>of</strong> reverence for<br />

the Director <strong>of</strong> the organization who works so hard for the patients and feels she<br />

should also work like her selflessly.<br />

The other programmes conducted for the wards include games that aim towards<br />

making the patients aware <strong>of</strong> the current happenings. These games are conducted during<br />

the evenings. Badminton and volleyball are other games to keep them physically active.<br />

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Art Therapy<br />

Another thing that involves the patient and the staff in a group is the art therapy.<br />

This is conducted once a week at RMS. This is an interesting session, filled with a lot <strong>of</strong><br />

joy. At the beginning <strong>of</strong> the session, it looks like it is going to be like any other art class.<br />

But at the end <strong>of</strong> it, one realises the therapeutic effect it has on the patients .. Raju who<br />

organises the group therapies also conducts these sessions. He has undergone training in<br />

various therapies and he has mastered in all these skills. He plans for the sessions very<br />

<strong>system</strong>atically and has in mind the outcome that he hopes to get out <strong>of</strong> the sessions.<br />

Excepting for one or two among the staff who help him organise the sessions, others are<br />

not detailed about the session. So each session <strong>of</strong> his holds lot <strong>of</strong> surprise for the patients<br />

and the staff. This is clearly seen in his session. The following quotation from the case<br />

diary illustrates one <strong>of</strong> the art therapy sessions.<br />

It was afternoon and all the patients and the staff had finished with their lunch,<br />

patients relaxed for a while. During that time the staff members were busy sorting out<br />

their chores, discussing the day's programme, sharing their experiences <strong>of</strong> the morning<br />

sessions. Since it was Tuesday, R got ready with his art kits, briefed the social workers<br />

about what he intended to do and everyone got ready for the art therapy. All the patients<br />

assembled in the downstairs hall. Some were eager to know what was new for the day's<br />

session. All <strong>of</strong> them sat down for a while. Raju started the session with a casual talk on<br />

art and painting. He asked the patients whether they all liked colouring! painting. Some<br />

gave positive nods and some said that they were very bad at art. Raju went on to say, "art<br />

is a powerful weapon that can bring out what is in the mind. A person performs an art<br />

activity for the sake <strong>of</strong> his or her own self. It should not be mistaken as done for others, -<br />

as a piece to be exhibited to others. It is a piece <strong>of</strong> work done by the artist to fulfil his<br />

desire". Thus, Raju created an impression in the minds <strong>of</strong> the patients that everyone in<br />

this world are artists and each one can bring out his piece <strong>of</strong> work for his satisfaction and<br />

happiness. So aU the patients were very much inspired. The following quotation from<br />

the case diary illustrates how the therapist conducted the session and brought out positive<br />

outcomes.<br />

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Raju showed them a bowl filled with Indian ink and a tray filled with paintbrushes<br />

<strong>of</strong> various sizes and chart papers. He told the patients to use the ink on the paper either<br />

by brush or by hand and do whatever they felt like. Initially, the patients were a bit<br />

puzzled, as they were not sure if they liked to use black ink but they had no other chOIce<br />

and they started doing what they liked.1taju told them to feel free doing what they liked.<br />

He put his hand in the bowl and with the ink that stuck to his hand he spread it on the<br />

piece <strong>of</strong> paper. He did his own designs on the paper using his hand. This took the<br />

patients by surprise but they felt very encouraged. They got busy with their chart paper.<br />

As an onlooker and a participant, it puzzled me as to what therapeutic etTect this black<br />

ink could probably have. This query was answered after an hour at the end <strong>of</strong> the<br />

sessIOn.<br />

Raju let them all free for a while making them play and experiment with the<br />

colour. When everybody was exhausted, he began the discussion <strong>of</strong> how each one in the<br />

group felt. The patients came out with ditTerent comments like, - initially, they were not<br />

happy to use the black colour, somehow it did not attract them but slowly they got used to<br />

it and made some art work out <strong>of</strong> it. One patient commented, "I felt happy to use the<br />

colour the way I liked as I felt that no one is going to question me because you said that I<br />

have to do this just for my sake". He had made lot <strong>of</strong> handprints on the chart paper and it<br />

indeed looked very nice like a textile design and many appreciated it. The patients were<br />

questioned if they had anything in mind when they started with the colour. Most <strong>of</strong> them<br />

replied that fear <strong>of</strong> starting was there but soon they got over it. When they were asked if<br />

they had anything in mind to initiate in the chart paper, some felt that they imagined<br />

something but ended up doing something else. Some said, they just kept doing whatever<br />

came to their minds. Some patients had drawn some nice cartoon figures and said they<br />

felt happy. Some had drawn angry, devilish faces. They accepted later on that their state<br />

<strong>of</strong> mind was not so peaceful and they felt frustrated. Some had created abstract figures<br />

and they had no explanation for the same except to say that they were confused as to<br />

what to do. Some said they felt very dirty to use the ink by hand and so used the brush.<br />

There was lot <strong>of</strong> variety in the work produced and every one was happy to communicate<br />

the same. They were asked individually to explain what they did and how they felt while<br />

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painting the same. It was interesting to observe that all were involved In the activity and<br />

no one felt left out, lonely or Isolated. It was a nice group and each one worked on his<br />

own imagination with lot <strong>of</strong> confidence<br />

The patients were asked to comment on each other's work. RaJu made the point<br />

very clear to them that living in a group expectLthaL comments.H<strong>of</strong> others, be it<br />

encouraging or discouraging, have to be taken up in the right spirit and this is the essence<br />

<strong>of</strong> community living. He analysed the whole session thus, "Perception <strong>of</strong> people are all<br />

different. Each one perceives in his own way. For instance, the colour black has mostly a<br />

negative connotation but it is up to the perceiver to decide whether it is good or bad". He<br />

showed some charts that looked so beautiful on the white sheet <strong>of</strong> paper and explained to<br />

the patient how black can look beautiful. There are people, who love black, prefer black<br />

dresses, back bags, etc. Therefore, it all depends on the perception <strong>of</strong> the individuals.<br />

Similarly, he highlighted and compared different perceptions <strong>of</strong> individuals. He gave<br />

them examples from the organization itself as to how each one thinks <strong>of</strong> the other. He<br />

drove the point that every one is good in this world and if one thinks that the other is bad,<br />

it is only because <strong>of</strong> his perception. So, it is always better to think <strong>of</strong> the other person as<br />

good and not harm him.<br />

He explained to them on what is art and how important it is for people to express<br />

their feelings freely. It gives great joy to be what one wants to be. Expressing what is in<br />

ones minds on a piece <strong>of</strong> paper through art is very easy. That is why he told them he<br />

wanted them to do what they liked on the paper. The patients agreed that It did make<br />

them fearless as they felt that they were free to do what they liked. In real life, R<br />

explained that in real life ones activities are commented upon as it is so with the piece <strong>of</strong><br />

art. So, it is best for the patients to take note <strong>of</strong> what others say. Any mistake pointed<br />

out or advices given have to be well taken in a good spirit. Thus, the therapist brought<br />

the art and life <strong>of</strong> the individual as a simile and capitalised on the therapeutic factors <strong>of</strong><br />

group therapy and made it an introspective session for the staff and the patients. The<br />

highlight <strong>of</strong> these therapies at RMS is the active involvement <strong>of</strong> the staff and the patients<br />

in all the sessions.<br />

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One Tuesday afternoon, the therapist specialised in art therapy, distributed papers<br />

to the inmates and asked them to imagine masks and make them on the paper. Some<br />

were very moody and reluctant to start first but slowly joined the group and the inmates<br />

were happy and were involved in cutting, pasting and colouring. Each one had his own<br />

imaginatiorr.··&mre made masks in black, some did it colourfully; some madc:-the-lnasks- . _ ..<br />

look angry, etc. Later on, the inmates were asked to describe their masks and comment<br />

on them. The inmates responded very welL Some said they were happy to make them.<br />

Some others said that they wanted to make an angry face and admitted that they were<br />

unhappy inside and that could be the reason for them to have done the same. The<br />

therapist made each <strong>of</strong> the patient think about each one <strong>of</strong> their masks and introspect why<br />

they made such a mask. It is very interesting to observe the way the session transcends<br />

from an art session to that <strong>of</strong> introspective analysis <strong>of</strong> each one <strong>of</strong> the group member.<br />

Everything is discussed in a group and each one in the group is encouraged to talk and<br />

comment freely on each individual's work.<br />

Thus, the therapy makes the inmates reflect and introspect and express their<br />

present state <strong>of</strong> mind. This session gives the staff much information on the inmates'<br />

behaviour and also helps inmates express their feelings in a media associated with fun<br />

and joy.<br />

Cultural Show<br />

During Wednesday afternoons, the inmates <strong>of</strong> RMS are engaged in planning for<br />

the monthly get-together <strong>of</strong> the two homes. They plan for the cultural show, decide on<br />

songs, dance, and dramas and practice the same. The staff members encourage the<br />

inmates to get involved in the activities. These get-togethers are planned to bring out the<br />

talents in the patients and make them feel important on that day. It boosts their morale<br />

when they are appreciated. It is also a change from the normal routine as they meet the<br />

patients from the other home and have an enjoyable day. The patients from both the<br />

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homes give cultural programmes and entertain all. The staff members take great <strong>care</strong> in<br />

training the patients and the volunteers help them in many ways. Some <strong>of</strong> the volunteers<br />

sponsor for a special food item on this day. The inmates <strong>of</strong> the home where the event is<br />

held choose the menu. The two homes take turns in being host to the get together party.<br />

It is a joyous day for all as the following quotation from the case diary suggests.<br />

'It was a Saturday and all the inmates <strong>of</strong> the city centre <strong>of</strong>RMS were very excited<br />

as they were getting ready to go to the party at the suburban centre <strong>of</strong> RMS. They had<br />

planned many cultural activities and they had been practising very hard the whole month<br />

to give a good performance. One <strong>of</strong> the patients who is known for his sense <strong>of</strong> humour<br />

was dressed up as a joker and all the staff and the patients were so happy to see him<br />

perform some acrobatics. One <strong>of</strong> the female patients had prepared for a vocal recital.<br />

She had a beautiful voice but she was very conscious <strong>of</strong> her performance. She was tense<br />

and anxious to finish her performance. She is one <strong>of</strong> the patients suffering from manic<br />

depression and the staff had to <strong>of</strong>ten remind her not to get anxious and tense. There were<br />

also some dance programmes organised and trained by the dance therapist. The patients<br />

from the suburban centre had prepared a skit and one <strong>of</strong> their inmates gave a dance<br />

performance. The programme was very enjoyable and the patients were all beaming with<br />

great joy. The staff members also joined in various cultural activities and it all looked<br />

like a great family get-together. The cultural programme went on throughout the<br />

morning. Lunch was served and all the patients and the staff shared all the chores. They<br />

relaxed for sometime in the afternoon. Later, in the evening, all <strong>of</strong> them joined to play<br />

some games and by evening, all <strong>of</strong> them were exhausted and the guests left for their<br />

homes.<br />

As the house manager remarked, "These parties have a therapeutic effect on both<br />

the staff and the patients. It narrows down the distance between them and within the staff<br />

it dilutes the hierarchy as every one is involved in all the activities. The patients feel very<br />

happy on this day, as they are free from serious work. The day is a motivation to all to<br />

exhibit their talents. By way <strong>of</strong> performing they get rid <strong>of</strong> fear and build up confidence to<br />

175


face audience. This helps the patients a lot to face a crowd and also to mix in a group and<br />

socialise well".<br />

Group Therapy<br />

Thursday afternoons at RMS are filled with another interesting session, - the<br />

group therapy. During this session, all the inmates <strong>of</strong> the group assemble and the<br />

therapist along with the other staff joins them. They sit together in a circle so that all the<br />

members <strong>of</strong> the group can see each other. The group therapy aims at making the<br />

members <strong>of</strong> the group share their problems in the group and get suggestions from the<br />

group to solve their problems. It is based on the philosophy that once the members meet<br />

in a group, they feel a sense <strong>of</strong> belonging with the /:,'TOUp and also show a preparedness to<br />

share their problems and to seek solutions from others. They also feel better when they<br />

come to know that every one in the group has similar problems. They learn from the<br />

successes and mistakes <strong>of</strong> others in the group. They feel happy to be listened to and<br />

helped by others. It gives them an opportunity to let out their strong emotions and<br />

feelings to others. In the group therapy, the members take cues from the experience <strong>of</strong><br />

others to solve their own problems. This has been one <strong>of</strong> the successful therapies for the<br />

mentally ill facilitating them to solve many <strong>of</strong> thm problems and also to develop trust<br />

and confidence in the group.<br />

Participation in group therapies brings in cohesiveness among the members <strong>of</strong> the<br />

group. It also helps them in interpersonal learning, as they tend to share their problems<br />

with each other. They all feel at ease when they come to know that each one in the group<br />

has problems to face in hislher life. They come out <strong>of</strong> their solitude and express<br />

themselves freely. On many occasions, the staff members share their grief/problems with<br />

the group to make them realise that nobody in this world is devoid <strong>of</strong> problems. The<br />

following quotation from the case diary suggests how the staff members share their<br />

problems with the group.<br />

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Case 18<br />

It was one <strong>of</strong> those Thursday afternoons when all the patients waited<br />

eagerly for the group therapy session. But that day the patients were very sad and<br />

depressed as their staff member who conducts the sessions normally was<br />

undergoing a traumatic life event as he lost his mother a few days back. He was in<br />

immense sorrow as he was now left with no close family member since he lost his<br />

father and his only sister earlier. The therapist did make it for work as he felt<br />

working with the patients would help him heal from the wound sooner. The<br />

patients were in a way happy that he would be conducting that afternoon group<br />

therapy session.<br />

The session started with a silent prayer for Raju's deceased mother. One<br />

could notice that there were many tensed up faces among the patients. They all<br />

seemed to be anxious to know what Raju would talk to them. Raju started the<br />

session with a small note <strong>of</strong> thanks for all those who sent him condolence<br />

messages. He spoke to them about how life events had a great impact on<br />

individuals and he expressed an the feelings and emotions he underwent when his<br />

mother passed away. He was so natural and spontaneous in his narration that an<br />

the patients were completely absorbed. He shared with the group all the fears and<br />

anxieties he underwent and how he was now trying hard to get over the same to<br />

get back to the normal routine. He sent a clear message to the group that he was<br />

undergoing a great trauma in life and it is common for all human beings to<br />

experience these life events. It was very important to get over these and return<br />

back to normal life. Another staff member intervened and asked the group<br />

members to suggest ways to Raju so that he can get over the problem.<br />

Each patient came out with his suggestions <strong>of</strong> how to get over the blues. It<br />

was interesting to see how the patients visualised the situation and <strong>of</strong>fered<br />

suggestions, which any counsellor would have given to a patient under trauma.<br />

These group therapies effective in influencing the patients' mind in realising that<br />

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problems are universal and the members <strong>of</strong> the group have to be altruistic and<br />

objective in <strong>of</strong>fering solution to the problems <strong>of</strong> other group members.<br />

One <strong>of</strong> the patients who is known for her mood swings suggested that R<br />

should involve himself in some kind <strong>of</strong> musical activity, may be listening to<br />

music or learning music which. might distract him from the depression. She<br />

kindly <strong>of</strong>fered him to teach veena, a musical instrument, which she was very good<br />

at. Some patients shared their own experiences. One remarked that he was so<br />

upset when his mother died at a very young age and suspected that his father had<br />

killed her in anger as they were always fighting with each other. He was very<br />

depressed and for a long time he felt like taking his own life. But he consoled R<br />

that time will heal his wound as it did to his own.<br />

Another patient who is very religious <strong>of</strong>fered to chant a sloka that would<br />

bring him peace <strong>of</strong> mind. She felt that uttering these mantras helped her<br />

overcome many <strong>of</strong> her problems and she was sure that it would help R also. All<br />

<strong>of</strong> them in the group seemed very concerned and the incident seemed to have<br />

affected all <strong>of</strong> them. Each one <strong>of</strong>fered their suggestions and also shared all their<br />

emotions R was totally moved by the group. The staff came to know many <strong>of</strong><br />

the underlying sorrows and emotions <strong>of</strong> the group members as each one narrated<br />

at least one <strong>of</strong> their life events that affected them most. The following quotation<br />

from the case diary suggests how the patients come out with details about their<br />

personal life experience.<br />

'One patient Elisa, came out with very strong emotions about her personal<br />

life. Elisa hails from a very rich family from one <strong>of</strong> the neighbouring states. She<br />

was a very pampered daughter till the age <strong>of</strong> 8 years, after which her mother gave<br />

birth to a son. The birth <strong>of</strong> the brother drew away all the attention from her to her<br />

brother, which upset her a lot. When her brother was just two years old, her<br />

mother passed away due to illness. She lost her father also when she was just 15<br />

years old. All these events were so traumatic in life. She expressed to the group<br />

178


that she fought her way through all these hurdles only with the hope that her<br />

future will hold something bright. She was so kind to M and told him to get over<br />

his sorrows and think that 'the best is yet to be"'.<br />

In some patients, the reminders <strong>of</strong> the past life events may make them more<br />

depressed and the staff members have to take <strong>care</strong> to balance the session in such a way<br />

that it ends well with a positive note, rather than making it worse for the vulnerable<br />

patients. Raju, the therapist conducts the lessons in such a way that no one has any hard<br />

feelings and they all end up finding solutions for each other's problems. Thus, these<br />

sessions are introspective, as well as therapeutic.<br />

Raju expressed great satisfaction after the session. He remarked, "1 felt so glad to<br />

get counselled by our patients and this is the effect the therapeutic community is expected<br />

to show. Sometimes, 1 was a bit anxious when some patients became very emotional<br />

about their own life events and I hoped that it should not end up in a negative fashion. I<br />

feel so happy that all ended well". He commented that each therapy session was a great<br />

challenge to him to drive the group in a particular line <strong>of</strong> thought and it involved a lot <strong>of</strong><br />

planning. Though he knows the course <strong>of</strong> action, he conducts the session in such a way<br />

that the others in the group feel that the session evolved out <strong>of</strong> a current problem. Each<br />

session begins with the illustration <strong>of</strong> a problem and goes on towards evolving a problem<br />

solving technique. The process is all in the hands <strong>of</strong> the therapist who runs the show. On<br />

many occasions, the group takes him as a role model and he is approached for many <strong>of</strong><br />

their personal problems. Most <strong>of</strong> the times, it helps both the staff member and the patient<br />

but sometimes it leads to problems <strong>of</strong> transference. Female patients get so much attracted<br />

by R's way <strong>of</strong> handling problems that they <strong>of</strong>ten come to him with problems which need<br />

to be checked by the staff to avoid complicated situations.<br />

Yoga Therapy<br />

A very trained and qualified person, a doctor who hails form one <strong>of</strong> the<br />

neighbouring states, Kerala, gives yoga therapy to the patients. She and her husband work<br />

179


for the Theological College and volunteer service to MRC. She is a believer in ayurvedic<br />

medicine and advocates yoga for all kinds <strong>of</strong> illness. She is a very popular doctor and in a<br />

discussion with her she expressed, "I have immense pleasure in working for the mentally<br />

ill. Though it is very difficult to put them in action, it is very important for them to do<br />

yoga exercises as it helps them in the movement <strong>of</strong> limbs and muscular flexibility. Most<br />

<strong>of</strong> the mentally ill, especially the schizophrenics are prone to be inactive, they tend to put<br />

on weight and idleness increases in them. As such yoga exercises help them a great deal<br />

to keep fit. Yoga is very simple to learn, requires no machines or equipments and helps<br />

them to maintain both physical and mental <strong>health</strong>. While doing yoga, they also learn to<br />

meditate, which has a calming effect on the mind and the body, a basic pre-requisite for<br />

mental <strong>health</strong>. Yoga therapy has also given significant results among the patients.<br />

Included in it are exercises that which is much wanted for all human beings especially for<br />

the mentally disturbed. Yoga breathing exercises are synchronised with mental and<br />

bodily awareness, which produces 'bursts' <strong>of</strong> relaxation. The yogic physical postures or<br />

asanas are taught with instructions to be aware <strong>of</strong> body movements. Finally, there is a<br />

session on relaxation in supine position with eyes closed. These sessions have been<br />

found to have an enormous positive effect on the individuals affected by mental illness<br />

especially the schizophrenics. The disease produces thought disorders and confusions.<br />

Their mind needs rest and relaxation. During yoga, the disoriented thoughts <strong>of</strong> the<br />

patients are brought to a point <strong>of</strong> total relaxation.<br />

Thematic Apperception Tests:<br />

Patients are very friendly and most <strong>of</strong> them speak out their personal problems<br />

without any fear <strong>of</strong> letting themselves out. Some are very reserved and one can hardly<br />

get any information from them. The Thematic Apperception Test (TAT) demands some<br />

attention from the patients. The value <strong>of</strong> the TAT exercise is that it helps the introvert<br />

patients to communicate. The case below describes its effect and value.<br />

Case 19<br />

Madan is a very quiet and serious person. He hardly talks. He attracts<br />

attention <strong>of</strong> the people by one <strong>of</strong> his acts, which is to stand up frequently from his<br />

180


chair and pray. He does it so <strong>of</strong>ten that it makes others laugh. But he does not<br />

bother. After his prayers he starts murmuring something which no one can<br />

understand. He does not explain his actions. The staff members keep on<br />

checking him but he never bothers. One day while one staff was sitting with the<br />

ut:lIt:vt:u III ~.Il(1yt:I~. Dt:Wlt: W(111111g lUI (111 (1ll~Wt:1 lit: gUl U~ e1llU 1t:~t:(1Lt:U Lilt:<br />

praying posture and he said he prayed very <strong>of</strong>ten as he kept getting prayer calls.<br />

He told him that he hears the temple bell ringing which prompts him to pray. He<br />

<strong>of</strong>ten hears voices asking him to pray for peaceful existence. Even during the<br />

sessions, he always gets up and walks out so many times, which creates a lot <strong>of</strong><br />

confusion during the sessions. Most <strong>of</strong> the time he is followed by 3 or 4 patients<br />

and a patient is always sent to bring all <strong>of</strong> them back. He <strong>of</strong>ten gets annoyed if<br />

anyone disturbs him and threatens to beat him up He tends to be very paranoid<br />

and suspects every one. He feels that talkmg to others may be dangerous. During<br />

the sessions, he hardly responds to the counsellors and is always in his own world.<br />

During the TAT exercises, he is forced to respond and that is the only time that<br />

one hears him speak. These sessions help the isolated ones to communicate to<br />

others and be in a group. When the patients communicate the counsellors and<br />

volunteers check their disoriented thoughts.<br />

This test is usually adminIstered to individuals in order to understand their inner<br />

drive and feelings so as to understand the mental status <strong>of</strong> the individual. During one <strong>of</strong><br />

these sessions, the therapist, before starting the therapy briefed them about the test. The<br />

therapist distributed two picture cards to all the patients and asked them to write a story<br />

about anyone <strong>of</strong> those pictures. Some <strong>of</strong> the patients were not at all interested; one <strong>of</strong><br />

them stood up and left the room. Many more followed. They all had to be brought back<br />

to the room with great difficulty. This is a very common feature during all the sessions.<br />

Based on the picture cards, each one wrote their stories according to their own<br />

imagination. One <strong>of</strong> them described one <strong>of</strong> the pictures as that <strong>of</strong> an earthquake with<br />

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very tragic consequences. Another picture showed a young girl sitting alone. One client<br />

described this as a daughter feeling very sad because her father had passed away.<br />

Another client described this as a daughter feeling very sad and waiting for her father to<br />

have her dinner. These sessions are <strong>of</strong> value for both the client and the therapist. The<br />

patients feel happy during these sessions and express freely their inner feelings by way <strong>of</strong><br />

the story narration. Most <strong>of</strong> their stories resemble their life events. They narrate their<br />

relationships with family members in the form <strong>of</strong> these stories. This helps the therapist<br />

and the counsellors to understand the frame <strong>of</strong> mind <strong>of</strong> the patients.<br />

During another TAT session, two different pictures are distributed among the<br />

patients. They are given some time to write up a story based on anyone <strong>of</strong> the pictures<br />

and are later asked to read out the same. Invariably, the two pictures have different<br />

connotation, -one, a happy child playing with the family members and another, a lonely<br />

person sulking. It is interesting to see the choice <strong>of</strong> picture selected by these patients.<br />

The pictures they select clearly shows the frame <strong>of</strong> mind they are in. Those who picked<br />

up the card with the happy child, write stories about the happiness <strong>of</strong> the child, the love<br />

he receives from parents and the joy in the family life. This group <strong>of</strong> patients obviously<br />

seems more positive towards life and is more cheerful. But those who pick up the other<br />

card write out some depressing stories about loneliness, feelings <strong>of</strong> being neglected, left<br />

out, life being very cruel to the person because <strong>of</strong> his unloving mother or father, selfish<br />

brothers etc. These stories strongly link the individuals' inner feelings and it helps in a<br />

great way to understand their frame <strong>of</strong> mind.<br />

<strong>Role</strong> <strong>of</strong>tbe Tberapist<br />

Raju works as the assistant house manager at RMS. He is a middle-aged man.<br />

He is a postgraduate in Sociology, which he completed from France. He has a Diploma<br />

in Special Education and has undergone training in rehabilitation and counselling from<br />

RMS. He has worked for more than five years on problem children. He has been<br />

working for <strong>voluntary</strong> <strong>organizations</strong> for the past 12 years on different assignments, e.g.<br />

on physically handicapped children; as a programme manager in rural rehabilitation and<br />

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also worked as administrator-cum-Principal and Counsellor in a leading Institute <strong>of</strong><br />

special education for cerebral palsy children. He has a wide experience in working for<br />

the mentally handicapped and the mentally ill. He has been working in RMS for more<br />

than seven years now. He has worked in many places and is well versed in many Indian<br />

and International languages.<br />

Raju was initially working as a Trainee House <strong>of</strong>ficer in the organization. During<br />

the time <strong>of</strong> field visit, he was employed as Ass!. House Manager. During a discussion<br />

with him, he summarised the nature <strong>of</strong> the patients coming to RMS. He said, "The age<br />

limit <strong>of</strong> the patients coming for treatment are mostly in the age group <strong>of</strong> 18-45 years. The<br />

positive symptom exhibited commonly among them is 'recession <strong>of</strong> illness' and the<br />

negative symptoms are the residual symptoms. It is, therefore, a big challenge and a<br />

serious responsibility for the staff to handle these negative symptoms that playa crucial<br />

role in their bettermenUrelapse. Those who enter the <strong>voluntary</strong> <strong>organizations</strong> especially<br />

those working for the mentally ill have to, therefore, be willing to work with dedication.<br />

They must possess minimum insight and perception about the illness in order to work<br />

with the patients".<br />

Raju is an asset to RMS as one can see from his therapeutic sessions, He has a<br />

talent for making the therapies interesting and meaningful to the patients. The patients<br />

are very fond <strong>of</strong> his sessions and they are totally immersed in these without distraction or<br />

frustration. They are therapeutic in nature and all the patients agree to the fact that his<br />

therapies are very relaxing. One <strong>of</strong> the patients remarked, "We wait for Raju's sessions as<br />

they always seem to produce a miracle effect in us which nothing else does. After the<br />

therapies, I feel so relaxed, cool and happy, as though the entire burden in my heart has<br />

come down. I also feel free to convey my feelings during the sessions".<br />

According to Raju, these sessions are very important to the staff for many<br />

reasons. He remarked, "Through these sessions, we the staff members come to know<br />

each <strong>of</strong> the patient's problems, hislher anxieties, apprehensions and ability to cope with<br />

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problems and much more <strong>of</strong> their personalities. Group therapies help us the most in<br />

understanding them".<br />

Dance Therapy<br />

At RMS, the last day <strong>of</strong> the week <strong>of</strong> regular therapy sessions is Friday; it closes<br />

with, the dance therapy. The organization has a very good team <strong>of</strong> pr<strong>of</strong>essionals and<br />

volunteers, who are highly talented and capable <strong>of</strong> producing miraculous results among<br />

the patients as the following description suggests.<br />

Case 20<br />

The dance therapist, Vandhana, is a pr<strong>of</strong>essional dancer trained in the<br />

classical dance, bharathanatyam. She has done her Masters degree in arts in one<br />

<strong>of</strong> the American Universities where she has been trained in using arts for<br />

therapeutic purpose. She was very fascinated by the application <strong>of</strong> dance therapy<br />

among patients. After her return from US, she approached the RMS and<br />

explained to the staff the therapeutic effect <strong>of</strong> dance on patients with illness and<br />

volunteered to work on the patients. The staff members were very happy and<br />

welcomed her idea.<br />

She involves all the inmates in her well-planned dance movements. These<br />

movements help the inmates in co-ordinating their limb movements. This also<br />

serves as an exercise to the body and a great relaxation to their minds. According<br />

to the therapist, 'dance therapy is a synthesis <strong>of</strong> physiotherapy and psychotherapy<br />

in which the therapist uses movement interaction as the primary means for<br />

accomplishing therapeutic goals. The dance is accompanied by melodious music<br />

in the background, which is very soothing to the mind. These exercises bring in<br />

them a group spirit, to work with a group and maintain uniformity in the group. It<br />

also removes the fear from the patients as they involve themselves in dancing. It<br />

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gives them great joy to know that each one <strong>of</strong> them could dance. This therapy is<br />

very effective with individuals who are hospitalised, psychiatric patients and with<br />

emotionally disturbed children'.<br />

Vandhana is a very enthusiastic person and encourages the patients a lot.<br />

Dance therapy does not just aim at teaching the patients dance but it successfully<br />

builds up confidence in them to do something in a group in front <strong>of</strong> the crowd.<br />

The patients, who are normally shy, come out <strong>of</strong> their introvert behaviour to<br />

participate in the dance. The dance movements that are made by the therapist are<br />

to be imitated by the patients. This itself is a very good exercise for their brains<br />

and limbs. The effort is to shake <strong>of</strong>f laziness in them and make them do some<br />

activity. Dance movements involve many patterns and following these<br />

movements help in improving their cognitive skills and also improves their<br />

concentration and memory. Once the steps are taught to them they are divided<br />

into groups and made to practice the steps on their own and after sometime the<br />

groups are called to redo what was taught. This is a test for their memory and<br />

retention capacity. The patients have to exert their wills to exhibit their maximum<br />

capacity. After this is over the therapist supports their self-esteem and appreciates<br />

them for their efforts. This brings in them a lot <strong>of</strong> self-confidence.<br />

After the one hour session, she teaches them the final relaxation technique that<br />

relaxes their minds and their body. Throughout the session she keeps talking to<br />

them in a low and soothing voice to make them get more involved in what they<br />

are doing, correcting those who are having difficulties all against a background <strong>of</strong><br />

melodious music. This session is a mind absorbing session and all the patients feel<br />

relaxed and confident after the session.<br />

These therapies have an inherent quality <strong>of</strong> making the patients get rid <strong>of</strong> their<br />

complexes and weaknesses, lets them out <strong>of</strong> their introvert masks and gives relaxation to<br />

their minds which is the most important <strong>of</strong> all. The angry, the moody, the restless, the<br />

lazy, the shy, the violent all have relaxed minds on the dance floor. This is one <strong>of</strong> the<br />

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silent therapies that yields so much positive effect on the patients.<br />

successful therapy and they all wait for the session.<br />

It has been a<br />

Outing<br />

Outing for the residents is an event that is awaited by all. It is a day <strong>of</strong> joy and<br />

fun. At MRC the patients are taken for outings once a month and at RMS once a week.<br />

At MRF, there is no outing for the patients. When the organization was started, there<br />

were regular outings for the patients but now they have stopped the same.<br />

During one <strong>of</strong> the outing sessions at RMS, they were all dressed in one <strong>of</strong> their<br />

best dresses. They had been told to come in bright colours. It was explained to them that<br />

bright colours make one feel happy and cheerful. One <strong>of</strong> the patients was very good at<br />

singing and one <strong>of</strong> the assistant house managers too was a very good singer and a good<br />

guitarist. Both <strong>of</strong> them were ready with their songs to cheer all <strong>of</strong> them. The following<br />

quotation from the case diary illustrates the excitement among the patients on the day <strong>of</strong><br />

outing.<br />

Case 21<br />

On the day <strong>of</strong> outing, the house manager got ready with his guitar and<br />

started a Boney M song, 'Hooray, Hooray, it's a holi holiday'!' All the residents<br />

were overjoyed and each one <strong>of</strong> them Wi:\l; ill iht:il Ut:~i UH;~S. Tht:y pialUlt:u auuui<br />

what to do for the day excitedly. They had a vehicle that could acconunodate<br />

about 10. So, it was decided that two trips would be taken to transport all the<br />

residents and the staff. The place decided for the outing by the residents was a<br />

lake close to the half-way home. They preferred it because <strong>of</strong> its quietness and<br />

the greenery. They packed some sandwiches and some c<strong>of</strong>fee and took some<br />

items for playing like bat, ball etc.,. and started <strong>of</strong>f happily. All <strong>of</strong> them were<br />

186


asked to sing. The resident house <strong>of</strong>ficer was really enthusiastic and encouraged<br />

all the residents to play or dance and be cheerful. They were happily singing<br />

throughout the journey. After reaching the place, initially they were all curious to<br />

look around the place and they just wandered <strong>of</strong>f. Since the place had a water<br />

body nearby, they had to be watched so as not to get into it and get drowned.<br />

Especially because in some cases the excitable ones would get impulsive and<br />

engage in dangerous action.<br />

During the day in the lake, some <strong>of</strong> them were discussing about the depth<br />

<strong>of</strong> the lake and what could happen if one falls. These kinds <strong>of</strong> discussion<br />

sometimes instigate the others to do an impulsive act. Therefore, as far as<br />

possible they were made to involve in some games or some nice discussions about<br />

nature. In spite <strong>of</strong> all the joyous discussions around some <strong>of</strong> them were still,<br />

sitting quietly under some tree, one <strong>of</strong> them staring at the sky. They seemed very<br />

sad and enclosed within themselves, as compared to others who were happily<br />

talking and laughing around.<br />

After sometime, all <strong>of</strong> them were asked to sit around in a circle and to<br />

suggest some games. The social workers had planned out a nice game <strong>of</strong> passing<br />

the ball. They had taken a music set and the ball was passed around the circle<br />

while the music was on and once the music stopped, the person who had the ball,<br />

received a small piece <strong>of</strong> paper on which a request was written, may be to sing a<br />

song or dance or share a joke or any act. The person who got the request slip was<br />

expected to perform the act. One <strong>of</strong> them got the request to sing a song. But he<br />

was just not prepared to do and the others tried their best to make him respond.<br />

He kept mumbling that he had a bad voice and just could not manage it. He was<br />

somehow made to respond and with a lot <strong>of</strong> shyness and hesitation he sang quite<br />

well and received a great applause. This boosted the spirit <strong>of</strong> the other patients<br />

and they also joined in the game. From then on, there was more <strong>of</strong> happy<br />

involvement by the patients and each one enjoyed thoroughly. Some <strong>of</strong> them<br />

danced around happily putting on their favourite music shared jokes and played<br />

187


around. On the whole th~ir moods became much better. They were served a<br />

snack <strong>of</strong> c<strong>of</strong>fee and delicious sandwiches, which they enjoyed. It was a good<br />

break for them away from their usual dining hall and all were happy about the<br />

same. While returning back, they decided to stop in a small sitting place to have a<br />

cup <strong>of</strong> tea.<br />

The day after the outing they were asked to reflect and speak on the previous<br />

day's outing. Everyone seemed to be happy and gave some suggestions for the next<br />

outing. Some suggested a nice movie, lunch, etc. Some <strong>of</strong> them teased over each other's<br />

song and dance. All took it sporting except a few who felt hurt and angry because <strong>of</strong> the<br />

teasing. The staff members cooled their egos. Everyone agreed that it was a different<br />

day and very enjoyable indeed.<br />

Rehabilitation<br />

The major problem that the staff faces is at the stage <strong>of</strong> rehabilitating the patients.<br />

It is a Herculean task to get employment for the patients, as there is no guarantee that<br />

there will not be a relapse. Even known people who can afford to help simply discard the<br />

ideas <strong>of</strong> employing them because <strong>of</strong> their illness. The following case illustration<br />

describes the problems faced by the staff in rehabilitating the patients.<br />

Case 22<br />

A male patient aged 30 years old was taking treatment from MRF. He got<br />

better and showed his willingness to do some work. One <strong>of</strong> their family members<br />

was running a small candle making unit and the staff requested the family<br />

member to give him an opportunity to do some work. He initially agreed and the<br />

patient went for work. But within a few days he returned to MRF due to<br />

difficulties faced by him in the work place. It was later learnt from the employer<br />

that they could not have him in their unit as he seemed to be a disturbance for<br />

others and work <strong>of</strong> the unit suffered due to his presence. Though the employer<br />

188


was his relative, he got su~pended from his work place. These kinds <strong>of</strong> incidents<br />

do a lot <strong>of</strong> harm to the patients rather than helping them. Therefore, rehabilitation<br />

is a very tricky task.<br />

Meera, the Psychiatrist, was very upset with the fact that evaluators <strong>of</strong> the<br />

organization were more interested to know how many <strong>of</strong> the patients are rehabilitated by<br />

the organization. She felt that rehabilitation rate <strong>of</strong> the patients shou1d not be a yardstick<br />

to evaluate the service rendered by the organization. The sponsors also pose this difficult<br />

question whenever they are approached for funds. According to her rehabilitation <strong>of</strong><br />

mental patients is so difficult compared to those suffering from other illnesses.<br />

The following illustration narrates what it means for a patient to be rehabilitated<br />

into a normal group.<br />

Case 23<br />

Miss Maria aged 32 years has been suffering from schizophrenia for the<br />

past 15 years and has been under psychiatric treatment. She joined MRC as a<br />

resident two years back. According to the staff members, she was a very quiet<br />

and disciplined girl. She was always kind to other patients and also helpful to the<br />

staff. As a devout Christian, she showed kindness to others. After her stay in the<br />

half-way home, the staff decided to employ her in the organization itself on an<br />

experimental basis. She was good at the secretarial job and was given the job to<br />

assist the administrative <strong>of</strong>fice. According to the administrative <strong>of</strong>ficer, initially<br />

she showed some fear in dealing with <strong>of</strong>ficial work probably due to fear <strong>of</strong><br />

rejection. But, as time passed by, she showed very good interest at work and<br />

maintained the <strong>of</strong>fice in order. But due to her illness and medication, she used to<br />

get tired soon and the staff allowed her to rest during the afternoons. She and her<br />

family members felt very happy that she was settled in some job which would<br />

help her to get over her complexes. Rehabilitation is so important for the patients<br />

as it helps them to regain normalcy. It is very important for the patients and the<br />

189


family as it sets a better future for the patient. Maria was very happy that she was<br />

one among the nonnal crowd. She commented, "1 feel so happy to be in the midst<br />

<strong>of</strong> nonnal people and relieved that I will not be subjected to public teasing and<br />

ridicule" .<br />

Some <strong>of</strong> the patients, who complete the training programme <strong>of</strong> MRC, get into<br />

some educational course orjobs. These patients are given accommodation in the hostel.<br />

They are successfully rehabilitated by the organization staff. The following illustration is<br />

a case <strong>of</strong> one <strong>of</strong> those who got himself enrolled in a computer course.<br />

Case 24<br />

Mr. Suresh, aged about 19 years old., is one <strong>of</strong> the hostalites. He goes for a<br />

computer-training course at one <strong>of</strong> the leading computer educational institutions.<br />

He had fonnal education till twelfth standard. His family lives in the neighbouring<br />

state <strong>of</strong> Kerala. He has been normal during his childhood. His parents noticed his<br />

illness only when he was in high school. He seemed to behave strangely at school,<br />

picked up fights with his classmates, teachers, etc., and on a few occasions he<br />

attempted to run away from school. His parents received many complaints from<br />

his teachers. At home also he was very restless and <strong>of</strong>ten mentioned that he wanted<br />

to run away somewhere, look for a job and live elsewhere. He hated to study. But<br />

in spite <strong>of</strong> mental problems, he always said he wanted to work and earn money.<br />

His parents initially mistook his behaviour as dismterest in studies. Later on they<br />

took him to a doctor who diagnosed him as schizophrenic. Then he was treated<br />

under a psychiatrist. Once his symptoms were controlled they sought the help <strong>of</strong><br />

MRC where he was taken as a resident. From then on the MRC staff took the<br />

responsibility <strong>of</strong> modifying his behaviour. In a matter <strong>of</strong> nine months, he became<br />

so much better and less symptomatic that his parents deCided that it was better for<br />

him if he stayed at MRC and therefore, put him in the hostel. From then on he has<br />

been improving a lot under the <strong>care</strong> and guidance <strong>of</strong> the MRC staff. He is very<br />

happy with his stay and very eager to earn money after his computer course. He<br />

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expressed his desire to earn


discussions whether they considered these symptoms as those <strong>of</strong> the mentally ill and if<br />

not what according to them were the symptoms <strong>of</strong> mental illness.<br />

At the end <strong>of</strong> a long debated discussion the registers <strong>of</strong> psychopathology were<br />

listed out by the pr<strong>of</strong>essionals, namely, -<br />

1. Violence to others<br />

2. Self-destructive behaviour<br />

3. Hallucinations<br />

4. Possessions<br />

5. Isolation<br />

6. Sadness<br />

7. Insomnia<br />

8. Altered talk<br />

9. Bizarre behaviour<br />

10. Fears<br />

11. Feeling <strong>of</strong> persecution<br />

12. Self neglect<br />

13. <strong>Mental</strong> deficiency<br />

14. Seizure<br />

15. Alcohol abuse<br />

These were considered to be the most common manifestations <strong>of</strong> mental disorders<br />

as perceived by the community. During the discussion period one could observe a great<br />

deal <strong>of</strong> controversy between the pr<strong>of</strong>essionals on the various indicators <strong>of</strong> mental illness.<br />

For instance, one <strong>of</strong> the registers <strong>of</strong> psychopathology was termed 'bizarre behaviour'.<br />

The debate went on as to what bizarre behaviour would consist <strong>of</strong>. This was when the<br />

anthropologist and the sociologist carne with very strong points that what is bizarre is<br />

decided by the community and this bizarre behaviour varies from community to<br />

community. Therefore, one should take great <strong>care</strong> in knowing from the community as to<br />

what actions they consider bizarre and whether they consider these actions as those <strong>of</strong> the<br />

mentally ill.<br />

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It was also pointed out by the sociologist that many <strong>of</strong> the symptoms are mainly<br />

related to poverty, for instance, in villages where there was no scope for employment,<br />

most <strong>of</strong> the people are sad, isolated, suffer from lack <strong>of</strong> sleep and the men folk somehow<br />

manage to borrow some money and get themselves drunk. Therefore it was pointed out<br />

that many <strong>of</strong> the symptoms <strong>of</strong> mental- illness wereare so prominent in many communities<br />

arising out <strong>of</strong> poverty which should not be mistaken for mental illness. The persons<br />

engaged in identifying the mentally ill through the registers <strong>of</strong> psychopathology should<br />

be warned to differentiate between those resulting out <strong>of</strong> poverty and those out <strong>of</strong> mental<br />

disorder. The team then decided to engage sociologists in the project to bring about<br />

correct information from the community.<br />

The maIn methodology followed In the study was group discussions. The<br />

sociologists made several visits to the villages and conducted group discussions on<br />

mental illness, the problems that those affected by mental illness faced. The villagers<br />

were asked to identify those with mental problems and what they thought about their<br />

behaviour, cause <strong>of</strong> their problems, remedies, etc. These discussions were all recorded.<br />

Initially, the group was hesitant to talk about the mentally ill. The researcher started the<br />

discussions tactfully illustrating different kinds <strong>of</strong> problems in the society, asked<br />

questions on evil spirits, ghosts, etc. Then on, the group got interested and started<br />

contributing much information on mental illness. The research group also tried to get<br />

information on the various terms and names used by the community members to describe<br />

the mentally ill. It was very interesting to note that there were many names given to<br />

those who were considered as having mental problems and the names given depended<br />

upon the intensity <strong>of</strong> their illness. Those individuals with fewer symptoms were<br />

considered very harmless. However, many individuals were identified to be possessed by<br />

evil spirits, ghosts, etc. The reasons for the same were attributed to the occurrence <strong>of</strong><br />

unnatural deaths in the village. It was very interesting to observe that many <strong>of</strong> the<br />

registers <strong>of</strong> psychopathology as listed out by the pr<strong>of</strong>essionals were rejected by the<br />

common people. They considered those individuals who refused to go for work and<br />

those who exhibited much laziness and lethargy in activities as affected by mental illness.<br />

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Many symptoms like hallucinations, possessions, altered talk, feeling <strong>of</strong> persecution,<br />

fears were all attributed to the influence <strong>of</strong> evil spirits and ghosts.<br />

The behavioural descriptions were presented to the individuals <strong>of</strong> the community<br />

and then asked to identify whether they were aware <strong>of</strong> anyone in the community with<br />

these problems.-Dne <strong>of</strong> the members in the group identified a person in the community<br />

and a discussion took place among the group as to what exactly the problem the<br />

individual faced. The researcher then prompted the group to decide on what the intensity<br />

<strong>of</strong> his illness was. It was very interesting to observe how the group gave the affected<br />

person a label along the scale <strong>of</strong> different kinds <strong>of</strong> mental illness.<br />

As for as remedy to the problems <strong>of</strong> the affected individual the groups opted to go<br />

to the 'Pujari' who invariably identified it as an ill effect <strong>of</strong> a spirit, 'dosha'. The family<br />

<strong>of</strong> the affected individual was asked to perform certain rituals to nullify the evil effect.<br />

The next visit was to the Sorcerer who was considered as an expert to drive away the evil<br />

spirit. If there was no improvement, then they would go to the mosques. When all these<br />

attempts failed they approached the Doctor. In most cases it would be a General<br />

Physician who then referred the case to the Psychiatric Department in the Government<br />

Hospital.<br />

Staff Experience with the Patients<br />

Violence erupts among the patients especially when they experience too much<br />

stress. Once the instructor at Dee experienced violence from a female patient. The<br />

instructor was shocked to get such a response. Later on, she understood the problem and<br />

learned to accommodate to the patients' behaviour. She remarked, 'once an individual<br />

takes up a job as a <strong>care</strong>taker for the mentally ill, he/she has to anticipate different kinds <strong>of</strong><br />

behaviour. Whenever the patients are restless and frustrated, they are prone to be violent.<br />

Often they are highly suspicious and think that people are harming them'.<br />

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One <strong>of</strong> the social workers commented that working with the patients is a big<br />

challenge. He observed, 'Violence is not an every day affair. The patients are constantly<br />

observed and if any client is found to be symptomatic, appropriate <strong>care</strong> and counselling is<br />

given. Every day is filled with anxieties, stress and tension. These problems are part <strong>of</strong><br />

the pr<strong>of</strong>ession and these crises situations help us to learn and understand them more'.<br />

The instructor who monitors the male patients explained that he was very frustrated<br />

with his work. He observed, 'I see the patients improving day by day and also see them<br />

get back home but to see them back with a relapse is so frustrating. That is when I get so<br />

disappointed with the pr<strong>of</strong>ession. I feel so helpless that whatever efforts were made had<br />

gone to waste. Everything had to be started all over again to get the patient back to<br />

normalcy. This cycle goes on. Though the pr<strong>of</strong>ession gives much <strong>of</strong> satisfaction, it is<br />

also equally disturbing and frustrating'.<br />

A Psychiatrist commented 'the area <strong>of</strong> mental <strong>health</strong> has so many uncertainties to<br />

work with. Unexpected events occur. In most <strong>of</strong> the occasions, the patients co-operate.<br />

They desperately need our <strong>care</strong> and attention. Crisis situation helps us to learn a lot'.<br />

Another social worker felt that work with the patients become easier, when they<br />

co-operate. An instructor observed that each day is a struggle to get the work done by the<br />

patients. It is very difficult to understand their moods and to teach them.<br />

At RMS, the staff members face certain specific problems working with the<br />

patients. Whenever the patients are in a violent mood the staff have a tough task in<br />

getting them back to normalcy. Sometimes this violence is directed only at a particular<br />

staff member and the entire team has to efficiently handle the situation to get the<br />

relationship <strong>of</strong> the client with the staff member back to the normal. Sometimes when the<br />

patients like the therapist they end up sharing personal problems with the staff member<br />

and as a therapist he cannot go too far in handling the problems. The therapy staff can<br />

thus help the client handle his problem but cannot take full responsibility for solving the<br />

problems in themselves.<br />

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Yet another problem faced by the staff is that <strong>of</strong> transference. One <strong>of</strong> the staff<br />

members narrated an instance <strong>of</strong> transference wherein a female patient got attracted to<br />

one <strong>of</strong> the male staff. The client frequently had sessions with the staff member. She<br />

liked attending his therapy sessions and this made her attend frequent sessions. This had<br />

to be tactfully handled by the staff so as not to rekindlellny'-episode'- in-the client.<br />

However, this was a very stressful experience for the staff member and also a very<br />

disturbing effect on the client. These kinds <strong>of</strong> situations are very sensitive for both the<br />

patients and the staff. This has a lot <strong>of</strong> repercussions on the mental status <strong>of</strong> the patients<br />

and therefore, requires very effective management from the staff.<br />

Another problem that arises in the organization is that <strong>of</strong> managing the male and<br />

the female patients. [n one instance, two patients <strong>of</strong> the opposite sex got attracted to each<br />

other and decided to marry. This is a very tricky problem. Marriage as such is a stressful<br />

event for those affected by mental illness. It is doubly so when both the people involved<br />

are affected by illness. In this case, the staff had a tough time in convincing the two<br />

patients that they cannot marry. The patients underwent lot <strong>of</strong> mental disturbances and<br />

ultimately the male patient left the organization. This solved the problem to a certain<br />

extent. These kinds <strong>of</strong> problems <strong>of</strong>ten rise in a mental <strong>health</strong> set up and the staff<br />

members have to be very tactful in dealing with them. The RMS staff members have<br />

been generally successful in solving these problems.<br />

The field <strong>of</strong> mental <strong>health</strong> reqUires very skilled persons to treat the patients.<br />

Trained Psychiatrists have to be attached to the organization and this requires a great<br />

amount <strong>of</strong> money as salary for skilled persons, - so that they may stick to the job.<br />

According to Meera, "Income is not so crucial for me as my husband's income is enough<br />

to run the family. So I can afford to take a low salary. But it is very difficult to get<br />

experienced Psychiatrists since everyone wants to make lot <strong>of</strong> money and very few are<br />

service minded. She criticises those <strong>organizations</strong> that run without skilled persons. The<br />

field <strong>of</strong> mental <strong>health</strong> requires a resource intensive approach and needs to have qualified<br />

pr<strong>of</strong>essional staff and has to do away with unskilled workers".<br />

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Conclusion<br />

The three <strong>organizations</strong> are unique in their patient <strong>care</strong>. They do have similarities<br />

in their strategies <strong>of</strong> <strong>care</strong> and rehabilitation <strong>of</strong> patients. However, their foci differ. MRF<br />

runs more on a long-term basis in both the areas <strong>of</strong> day <strong>care</strong> and rehabilitation. MRC<br />

focuses on a short-term <strong>care</strong> and rehabilitation. RMS has a combination <strong>of</strong> both shortterm<br />

and long-term <strong>care</strong> and the patients have more options. All the three <strong>organizations</strong><br />

cater mostly to higher and middle-income groups. Few from the lower sections <strong>of</strong> the<br />

society do avail their services at a subsidised cost.<br />

The programmes for the patients differ a great deal from one organization to the<br />

other. MRF has a pr<strong>of</strong>essional staff giving patients psychiatric <strong>care</strong> and vocational<br />

training by experts in the fields in order for them to be rehabilitated. Every patient is<br />

trained in some working skill that is expected to help him or her in the long run. On the<br />

other hand, MRC concentrates on group therapies to strengthen the survival<br />

communication within the group and living in a group. They believe that communication<br />

therapies can help a great deal to get the sufferers back to their families and lead a normal<br />

routine. RMS focuses more on socIal skills and training that enables the patients in<br />

leading an independent life. The patients learn to be on their own which would help them<br />

to get back to their families and lead an independent life. The therapies at MRF are more<br />

pr<strong>of</strong>essionally based and their dependence on the volunteers is less. In Contrast, at MRC,<br />

volunteers handle all the sessions. At RMS, the experts in each field handle the therapies<br />

and there is less involvement <strong>of</strong> psychiatrists and psychologists. Daily routine for the<br />

patients also differs. At MRF, there is less involvement <strong>of</strong> the patients in the<br />

maintenance <strong>of</strong> the organization. There is partial involvement <strong>of</strong> the patients in the<br />

activities <strong>of</strong> the organization. At RMS;there is total involvement <strong>of</strong> the patients in all the<br />

activities <strong>of</strong> the organization. Each one <strong>of</strong> the <strong>organizations</strong> has been successful in<br />

achieving their objectives with their different approaches. Families <strong>of</strong> the patients are<br />

involved in all stages <strong>of</strong> <strong>care</strong> and treatment.<br />

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Patient <strong>care</strong> in the three <strong>organizations</strong> follows unique patterns, which end in<br />

dIfferent results according to their philosophies. IMRF has been very successful in tenns<br />

<strong>of</strong> vocational training and long-term rehabilitation. The positive traits <strong>of</strong> the organization<br />

are the presence <strong>of</strong> the psychiatrists and pr<strong>of</strong>essional vocational training instructors<br />

throughout MRC has been very successful in providing short-tenn rehabilitation with its<br />

team <strong>of</strong> volunteers and a few pr<strong>of</strong>essionals. RMS has been very successful with its<br />

effective therapies working on the principles <strong>of</strong> therapeutic community on the lines <strong>of</strong><br />

both short-term and long-tenn rehabilitation.<br />

198


Appendix.<br />

Voluntary Organisation as an Open System<br />

Input Int. Environment Target Group Output<br />

Psychiatrists Patients Care<br />

Motivation Psychologists Family Treatment<br />

Incentives Social Workers Community - Support<br />

Dedication Sociologists Society Awareness<br />

Technical- Instructors<br />

Education<br />

Administration Staff<br />

Rehabilitation<br />

Supporting Staff<br />

Process <strong>of</strong> Transformation <strong>of</strong> the Pr<strong>of</strong>essionals<br />

Recruitment Output Conflict or Routinous<br />

Individual Orientation Related to the Congruence <strong>of</strong> Monotonous<br />

Actors<br />

Training<br />

Expectations<br />

Pr<strong>of</strong>essional<br />

~<br />

~<br />

~ .. Unsatisfied<br />

Set <strong>of</strong> ideas Modification <strong>of</strong> <strong>of</strong> the Ideas Vs. <strong>Role</strong><br />

Pr<strong>of</strong>essional their ideas and Employer<br />

Modified Ideas<br />

Expertise Pr<strong>of</strong>essions as per Innovative<br />

Expectations<br />

Creative<br />

"Mid,pr! R nip<br />

Appendix<br />

I


Pr<strong>of</strong>essionalisation <strong>of</strong> the <strong>Mental</strong> Health Care Pr<strong>of</strong>essionals<br />

The psychiatry pr<strong>of</strong>ession originally dominated mental <strong>health</strong> <strong>care</strong>. The approach<br />

was purely uni-disciplinary and gradually it saw the entry <strong>of</strong> the other pr<strong>of</strong>essionals.<br />

The psychologists were the earl,)' additions assisting the psychiatrists in psychotherapy<br />

and in application <strong>of</strong> psychological tools. The later entrant were the social workers who<br />

played a major role in taking case histories, giving more emphasis ion the social<br />

background <strong>of</strong> the ill individuals. The hospitals have been dealing with the mental illness<br />

problem with this team <strong>of</strong> pr<strong>of</strong>essionals. Voluntary organisations have gone some more<br />

forward in recognising the need to incorporate the expertise other pr<strong>of</strong>essionals such as<br />

sociologists, anthropologists and other therapy experts like those <strong>of</strong> dance, drama, yoga<br />

etc. This multi-disciplinary approach has proved to be very useful in tackling the<br />

problem <strong>of</strong> mental illness.<br />

It can be seen that the transition from uni-disciplinary to multi disciplinary<br />

approach has not been a very smooth one. There have been clashes all along. Inn the<br />

three vas selected in the study, it can be seen that one <strong>of</strong> them has been very successful<br />

in the multi faceted approach and the pr<strong>of</strong>essionals have been discharging their duties<br />

satisfactorily (RMS). On the other hand there are still problems <strong>of</strong> pr<strong>of</strong>essional<br />

supremacy <strong>of</strong> the psychiatrists in MRF. At RMS, sincere attempts have been made to<br />

integerate the expertise <strong>of</strong> different pr<strong>of</strong>essionals. As such one can see that some staff are<br />

unhappy that they are forced to play submissive roles, leading sometimes to frustration.<br />

Definitely, multi disciplinary approach is proving to be very effective in the <strong>care</strong> <strong>of</strong> the<br />

mentally ill.


ehal'tl'l" Six<br />

VOLUNTARY ORGANIZATIONS AND PATIENTS' FAMILIES<br />

The mcntal illness is essentially expressed in terms oCthc inuiviuual's inability tl)<br />

objectively assess the interactional situations and respond to it in a socially<br />

understandable manner. This inability affects firstly the individuals' relations with<br />

hislher family members and, in the long nm, the society, in general. The problem <strong>of</strong><br />

"stigma" which has been mentioned by most students <strong>of</strong> the phenomenon, is not only<br />

suffered by the individual but to a considerable extent by the family members as well.<br />

Because <strong>of</strong> the enormity <strong>of</strong> the problem (see pages 1,2, Chapter One), the<br />

Government in India is not able to handle many <strong>of</strong> the crucial aspects <strong>of</strong> the problem.<br />

Invariably, the <strong>voluntary</strong> <strong>organizations</strong> and private clinics have had to step into the<br />

vacuum. The following strategies have been adopted by the <strong>voluntary</strong> <strong>organizations</strong> in<br />

involving the family towards the <strong>care</strong> <strong>of</strong> the patients.<br />

I. Contact the fami Iy members <strong>of</strong> the patients and make them aware <strong>of</strong> the facilities<br />

available for counselling and <strong>care</strong>.<br />

2. Counsel them on the right approach to deal with the ill member <strong>of</strong> the family.<br />

3. Supplementing and complementing the facilities provided by the government<br />

<strong>organizations</strong>.<br />

In India, the mentally ill and their families face lot <strong>of</strong> problems because <strong>of</strong> the<br />

social stigma attached to mental illness. The problem <strong>of</strong> mental illness is understood in<br />

very mysterious and strange terms and most fear about mental illness. Beliefs, myths and<br />

attitudes are so much impinged in the cultural practices <strong>of</strong> the Indian society. Invariably<br />

most <strong>of</strong> the families especially the rural families approach astrologers, faith healers,<br />

temple priests to find solution to their wards' problems. Only when they do not see many<br />

results, they approach the pr<strong>of</strong>essionals. These have a direct impact on identification and<br />

treatment <strong>of</strong> mental illness. Against this background <strong>of</strong> ignorance, stigma attached to this<br />

disease and the various magi co-religious beliefs and practices, the Indian society is facing<br />

199


even more a serious problem namely the transition <strong>of</strong> family structure, which is posing<br />

threats for the <strong>care</strong> <strong>of</strong> the mentally ill.<br />

Family has always been the nurturer and <strong>care</strong>taker <strong>of</strong> the individual member in<br />

the Indian society. Linkages between family <strong>system</strong> and <strong>health</strong> <strong>care</strong> are many and there<br />

is empirical evidence to show that at every stage <strong>of</strong> illness, family plays a crucial role in<br />

understanding the illness, deciding on medical help, coping with the sick member and<br />

caring for them in chronic stages. In a country like India, where there is a shortage <strong>of</strong><br />

mental <strong>health</strong> <strong>care</strong> facilities, families represent a tremendous resource for the <strong>care</strong> <strong>of</strong> the<br />

mentally ill. According to Menon and Shankar (1993), the need for family intervention is<br />

not only to optimise the recovery and functioning <strong>of</strong> the patients, but also to alleviate the<br />

tremendous burden faced by the families. Many innovative approaches have been<br />

developed by the <strong>voluntary</strong> <strong>organizations</strong> in this direction.<br />

Falling sick involves the whole family. It affects the well being <strong>of</strong> not only <strong>of</strong> the<br />

patient but also <strong>of</strong> the whole family by disrupting the normal routine. Depending on the<br />

nature and severity <strong>of</strong> the sickness, the family is required to mobilise its internal and<br />

external resources to cope with the crisis. Family members can provide physical and<br />

emotional support to facilitate the patient's recovery or perpetuate the illness by their<br />

inability to deal with the illness. Family treatment and <strong>care</strong> are important factors for<br />

successful coping with many diseases. Kleinman (1981) reports on the basis <strong>of</strong> a study<br />

conducted in India and China that more than 80 per cent <strong>of</strong> all sicknesses were managed<br />

within the family and its extended network without resorting to pr<strong>of</strong>essional help from<br />

outside.<br />

With the change in the family structure and functions, the families <strong>of</strong> the mentally<br />

ill are seeking for alternatives in providing <strong>care</strong> for their afflicted family members. Pious<br />

statements about the wonderful Indian family are questioned against the background <strong>of</strong><br />

social change in the society.<br />

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<strong>Mental</strong> illnesses have existed for a very long period and the families and the<br />

communities have coped up with the same. The families do cope up with the burden but<br />

in a country like ours with the prevalence <strong>of</strong> so many socio-economic problems, taking<br />

<strong>care</strong> <strong>of</strong> a sick member poses a strain on the families. Many studies have reported that<br />

there is a heavy burden on the families in taking <strong>care</strong> <strong>of</strong> the mentally ill member. Studies<br />

have shown that living in a family environment has a favourable effect on the<br />

improvement <strong>of</strong> the mentally ill member and also a negative effect if the family<br />

environment is hostile and critical, which lead to relapse in the patient's condition (Brown<br />

and Birley et aI., 1972).<br />

The staff <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong> stress on the empowerment <strong>of</strong> the family.<br />

They work towards the re-integration <strong>of</strong> the mentally ill member. According to them, the<br />

primary goal <strong>of</strong> psychosocial rehabilitation in mental <strong>health</strong> service is the re-integration<br />

<strong>of</strong> the mentally ill in the community. Therapeutic community approach facilitates by<br />

treating them in a community atmosphere thus helping the mentally ill rebuild their skill<br />

in living in a community (RMS).<br />

The experience <strong>of</strong> the staff in the mental <strong>health</strong> field has shown that multiple<br />

therapy that includes drugs, individual therapy, family therapy and occupational therapy.<br />

seemed to bring about more improvement among the mentally ill.<br />

This chapter deals with the changing family <strong>system</strong> and its impact on the mental<br />

<strong>health</strong> <strong>of</strong> its members. It also analyses the role <strong>of</strong> the families in mental <strong>health</strong> <strong>care</strong> and<br />

the ways by which fami lies could be involved in treating the mentally ill persons. In this<br />

regard, the role played by the <strong>voluntary</strong> <strong>organizations</strong> in involving the families in<br />

treatment and <strong>care</strong> <strong>of</strong> the mentally ill is described.<br />

Changing Family System<br />

"Our society has created the myth <strong>of</strong> the broken home which is the source <strong>of</strong> so<br />

many ills and yet the unbroken home which ought to havc broken is an even greater<br />

201


source <strong>of</strong> tension" (McGregor and Griseld Rowntree-The Family, 1968, cited in Kapur,<br />

1992)<br />

Family life is undergoing periodic changes with the advent <strong>of</strong> industrialisation,<br />

urbanisation, changing values and norms in the society. The lraditional peasant family<br />

has given way to a modem family style, which, in tum, is paving the way for post modem<br />

family style. This transition <strong>of</strong> the family <strong>system</strong> poses new challenges in the field <strong>of</strong><br />

Medicine and Sociology.<br />

Shorter (1975) observes, "In contrast with the modem family which emphasised<br />

close affective ties between mother and adolescent children and lifelong companionship<br />

between spouses, the post- modem family is characterised by a diminished parental role<br />

in child <strong>care</strong>, by the highly eroticised nature (and consequent fragility) <strong>of</strong> the ties between<br />

the spouses and by the withdrawal <strong>of</strong> the family unit from generational and community<br />

ties". In contrast with the modem couple, which tended to see the family unit as a larger<br />

social building block, the post-modem couple see marriage as a means for extending their<br />

own self-actualisation.<br />

In India, family has always played a very important role in nurturing its members,<br />

by maintaining intl!r-pl!rsonal rdation between the ml!mbers, facilitating for adequate<br />

interaction among its members, always trying to understand the needs <strong>of</strong> its members and<br />

helping each member to protect, nurture and rebuild the individual ego. Indian families<br />

are looked upon as units which have role definition, - flexible and compassionate.<br />

The traditIOnal family <strong>system</strong> with its own norms, ethics, and role definitions<br />

acted as network between members <strong>of</strong> the society and the needs and urges <strong>of</strong> the family<br />

members were taken <strong>care</strong> <strong>of</strong>. The family <strong>system</strong> thus knit the society as a whole. Family<br />

has always been relied upon as a therapeutic resource.<br />

In the Indian scenario, there have been tremendous changes in the family <strong>system</strong>.<br />

The changes started occurring when urbanisation became rampant, giving rise to shifting<br />

202


<strong>of</strong> families. Many joint families broke up because <strong>of</strong> jobs available in the cities, leading<br />

to nuclear families. Education had its impact on the families, especially women's<br />

education, which led to many changes in the role <strong>of</strong> women in the families.<br />

Women, who always played the major role in nurturing the children, are taking up<br />

new roles now, by going out <strong>of</strong> home for education and jobs. Women have too many<br />

roles to perform, which has led to role conflicts. The effect is on the family, more on the<br />

children, for now these children lack <strong>care</strong> and love from mothers because <strong>of</strong> the changing<br />

roles. There is much tension and turmoil in the families <strong>of</strong> working couples. To ease the<br />

tension, the work previously done by women in the traditional family <strong>system</strong>, is being<br />

done by others who are paid for jobs like cooking, caring for young ones, etc.<br />

There is now an increase in the number <strong>of</strong> women gomg out for jobs and increase<br />

in the number <strong>of</strong> nuclear families which have, in tum, led to the increase in the number <strong>of</strong><br />

day <strong>care</strong> centres for children, hostels, etc. This has led to an increase in marital problems,<br />

youth problems, crime, suicide, and depression among women due to over stress and<br />

among youth due to frustration because <strong>of</strong> lack <strong>of</strong> <strong>care</strong>. Psychiatric problems are on the<br />

increase day by day as the family is gradually losing its grip over the individual member.<br />

The inter-personal relationships between members are gradually changing from<br />

intimate, personal, informal to indifferent, impersonal and formal relations. The marital<br />

harmony is being replaced by marital discords. Happy childhood is being replaced by<br />

unhappy and unmemorable childhood. There IS a lot <strong>of</strong> frustration among children and<br />

youth because <strong>of</strong> pent up feelings and emotions unexpressed due to lack <strong>of</strong> parental <strong>care</strong><br />

which is a result <strong>of</strong> the busy urban way <strong>of</strong> life, leading to psychiatric problems.<br />

Impact on <strong>Mental</strong> Health - Evidence from Other Studies<br />

Socially isolated individuals are more likely to become symptomatic or to<br />

somatise. (Shorter 1992). Lipsonki (1987) defines somatisation as "tendency to<br />

experience and communicate psychological distress in the form <strong>of</strong> somatic symptoms and<br />

203


to seek medical help for them". West (1986) observes that loneliness is linked with<br />

reported feelings <strong>of</strong> ill <strong>health</strong>, somatic distress and visits to physicians as well as physical<br />

disease." Patients with interpersonal problems were found to have a significantly great<br />

number <strong>of</strong> hospital admissions, high rates <strong>of</strong> surgery and greater rates <strong>of</strong> visits to the<br />

family physician when compared to controls (Brennan 1981). Stress <strong>of</strong> coping with<br />

isolation is suspected to produce medical symptoms. The jarred expectations in an<br />

individual's intimate life produces depression, which explains for those couples suffering<br />

from depression because <strong>of</strong> marital discords. It is also found that wives whose husbands<br />

do not participate in household activities suffered from depression, which explains the<br />

psychiatric problems faced by the present day working women. (Cited in Sawa 1992)<br />

The cause for mental illness is still a debatable topic in psychiatry and it is always<br />

found to be a combination <strong>of</strong> various causes. The various social causes that lead to<br />

psychiatric problems are unhappy childhood, improper socialization, no proper parental<br />

<strong>care</strong>, marital discords, separation, divorce, death <strong>of</strong> an intimate person, trivial life events,<br />

family stress, lack <strong>of</strong> love and affection, etc.<br />

Thus, apart from other causes the situation in the family acts as a cause to<br />

problems like depression, suicidal tendencies and relapse in patients aillicted from<br />

schizophrenia the most severe form <strong>of</strong> mental disorders. Hence, it is found very essential<br />

to take the social unit <strong>of</strong> family seriously and involve them in different phases <strong>of</strong> mental<br />

<strong>health</strong> <strong>care</strong> <strong>system</strong>.<br />

Family System Theories and Health Care<br />

Various family <strong>system</strong> theories have treated family as a social unit and addressed<br />

family factors that influence <strong>health</strong> <strong>care</strong> from four different perspectives, viz.,<br />

1. Family as a resource for the individual coping with medical illness by serving as the<br />

primary referent and support group for family members <strong>of</strong> the ill member.<br />

2. <strong>Role</strong> <strong>of</strong>family pathology as a contributing factor in the development <strong>of</strong> the illness, -<br />

204


the 'psychosomatic family' model proposed by Minuchin et. af., (1978) suggests<br />

that characteristics like enmeshment, rigidity, parental over-protection and lack <strong>of</strong><br />

conflict resolution in the family produce sickness conditions to the vulnerable sick<br />

member.<br />

3. Family characteristics influence relationship with <strong>health</strong> <strong>care</strong> delivery <strong>system</strong>. The<br />

assumption is that <strong>health</strong> <strong>care</strong> <strong>system</strong>s are themselves fixed entities and variability in<br />

utilization <strong>of</strong> <strong>health</strong> <strong>care</strong> <strong>system</strong> can be understood as attributable to either individual<br />

or family level characteristics.<br />

4. Family factors as determinants <strong>of</strong> differential clinical courses and specific illness.<br />

This perspective looks at the role <strong>of</strong> the differential response patterns <strong>of</strong> families to<br />

the challenges <strong>of</strong> acute and chronic illnesses as they influence the subsequent courses<br />

<strong>of</strong> the illness.<br />

These theoretical perspectives have thus addressed themselves to various issues<br />

like how inclusion <strong>of</strong> the family unit permits implementation <strong>of</strong> more effective preventive<br />

measures, issues <strong>of</strong> diagnosis in the patterns <strong>of</strong> morbidity and role <strong>of</strong> the family In<br />

treatment and rehabilitation in chronic cases.<br />

<strong>Role</strong> <strong>of</strong> Families in <strong>Mental</strong> Health Care<br />

A lesson learnt from all family theories is the notion that the isolated individual<br />

devoid <strong>of</strong> social context, the proto-typical patient in medical training does not exist in<br />

nature. Individuals in all cultures are born into families and most spend their lives<br />

interacting with family members. Even a socially isolated individual can be defined in<br />

terms <strong>of</strong> lack <strong>of</strong> supportive family. "We derive from our families <strong>of</strong> procreation our adult<br />

identities and our primary social support. Every person then is both a unique self and<br />

representative <strong>of</strong> an intimate social group" (Mead, 1934).<br />

Families are inherent and inevitable participants in the prevention and treatment<br />

<strong>of</strong> diseases and <strong>health</strong> problems are commonly viewed as belonging to individuals.<br />

Doherty and Baird (1983) have referred to the therapeutic 'triangle' in all <strong>health</strong> <strong>care</strong>, the<br />

notion that family is always a third party to <strong>health</strong> <strong>care</strong> encounters between individual<br />

patients and <strong>health</strong> pr<strong>of</strong>essionals. Families have found to be the primary source <strong>of</strong><br />

205


<strong>health</strong>-related behaviour patterns, <strong>of</strong> the critical assessment <strong>of</strong> individual's <strong>health</strong><br />

problems, <strong>of</strong> the decision to seek medical <strong>care</strong>, <strong>of</strong> <strong>health</strong> beliefs and attitudes influencing<br />

compliance with medical regimes and <strong>of</strong> social support for chronic <strong>health</strong> problems.<br />

(Christerseely (1984); Doherty and Campbell (1988); Litman (1974) cited in Sawa, 1992)<br />

<strong>Role</strong> played by family is very crucial at every stage <strong>of</strong> the <strong>health</strong> <strong>care</strong> <strong>system</strong><br />

starting from maintaining the <strong>health</strong> <strong>of</strong> the individual members, where various beliefs and<br />

practices are followed to prevent the members from <strong>health</strong> problems. Its members within<br />

and outside make this possible, where interaction and encounter with the outside world<br />

play an important role.<br />

Family stress also plays a crucial role in the disease onset/relapse <strong>of</strong> its members.<br />

Many studies have shown that the family stressful events predict physician's visit and<br />

hospitalisation. Family stress precipitates relapse in persons aillicted by chronic disease<br />

such as Schizophrenia following hospitalisation.<br />

Yet another role <strong>of</strong> family is the role-played in verifying and legitimising an<br />

individual's sickness in explaining why the individual got sick and in deciding whether<br />

medical advice is needed or whether the matter should be handled within the family or by<br />

a family network.<br />

Once the illness is diagnosed, the family response to the illness is very important<br />

in terms <strong>of</strong> caring and helping the sick member. If the illness is chronic, it calls for<br />

adaptation and re-organization in the family to promote the continued recovery <strong>of</strong> the<br />

sick person and simultaneously maintain its ability to nurture other family members and<br />

maintain its place in the community. Families' capacity to adapt and re-organize to<br />

facilitate a chronic ill person determines the crucial factor in long term <strong>care</strong> <strong>of</strong> the<br />

mentally ill person.<br />

Family processes, relations and memberships influence individual <strong>health</strong> status in<br />

many ways by means <strong>of</strong> their Resources and support, <strong>health</strong> related habits, values and<br />

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eliefs, communication, information filtering, belonging and purpose, moods and<br />

emotions, internal environment, self-sacrifice and co-operation.<br />

Voluntary Organizations' Interrace with the Families<br />

The interaction between the family members and the <strong>voluntary</strong> <strong>organizations</strong><br />

begins from the time the family members approach the <strong>organizations</strong> for help. The<br />

families which approach the <strong>organizations</strong> are those, whose wards have been treated or<br />

still being treated in Government hospitals or private clinics. The hospitals and clinics<br />

provide treatment for the patients on short-term basis except in the case <strong>of</strong> chronic<br />

patients who are taken <strong>care</strong> on a long-term basis. Once the patients recover from<br />

symptomatic episodes, they are discharged and advised periodical check-ups. It is at this<br />

stage that the family members <strong>of</strong> the patients find it difficult to manage with their wards.<br />

Their problems are varied.<br />

1. Many find it difficult to understand the illness and its related symptoms.<br />

2. They take for granted that the family ward is totally cured once he has been<br />

discharged from the hospital or clinic as in the case <strong>of</strong> other illnesses.<br />

3. They get totally stressed out in managing their wards as they continue to face<br />

traumatic situations.<br />

4. They suffer from lack <strong>of</strong> social network and helplessness in coping with the ill<br />

member.<br />

5. Due to stigma attached to the presence <strong>of</strong> a mentally ill member in the family, the<br />

families feel let down.<br />

6. They suffer from emotional drain and in some cases economic drain.<br />

Therefore, they look for a pr<strong>of</strong>essional group that can understand their agony in<br />

coping with the ill member. Their expectations are to get some support in dealing with<br />

the ill member. Their motive is to get temporary relief in taking <strong>care</strong> <strong>of</strong> the ill member.<br />

At the same time, they would like to understand more about the problem suffered by the<br />

ill member in order for them to take <strong>care</strong> <strong>of</strong> the ill member after his! her short stay in the<br />

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<strong>voluntary</strong> <strong>organizations</strong>. Some families which can afford to spend more money do<br />

approach the <strong>voluntary</strong> <strong>organizations</strong> for long term <strong>care</strong>. This involves huge deposits and<br />

therefore, majority opts for short-term <strong>care</strong> or day <strong>care</strong> facilities.<br />

Steps Taken by the Voluntary Organizations<br />

L The staff <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong>. perfonTI.a.thomugh..study ..on. the patientUJ'--__ _<br />

gomg<br />

through all the medical reports.<br />

2. A meeting is held among the staff members to discuss the cases.<br />

3. Strategies are planned for the treatment <strong>of</strong> the patients and the families.<br />

5. The family members are first educated on the symptoms <strong>of</strong> the illness suffered by<br />

their family wards.<br />

5. Coping skills are taught to the families on the ways to deal with their particular wards.<br />

6. Families are involved in the therapies and treatment programmemes.<br />

7. Regular feedback is taken from the patients to assess progress <strong>of</strong> their wards.<br />

8. The various approaches handled by the <strong>organizations</strong> towards rehabilitation <strong>of</strong> the<br />

patients are oriented to the family members.<br />

The <strong>voluntary</strong> sector has come to the rescue <strong>of</strong> the families <strong>of</strong> the mentally ill by<br />

starting half-way homes, creating a therapeutic community where one can help an<br />

individual to remain a social being by taking more responsibility for himself, keeping in<br />

communication all the time. They help the mentally ill person who is cut <strong>of</strong>f from his<br />

natural place in the community, by acting as a therapist in helping him to find his own<br />

place back in the community. Some <strong>of</strong> the persons who had set out thus to travel from<br />

their home to enter mental hospital may find in the half-way home an opportunity to reconsider<br />

their family and with community's help, <strong>care</strong> and understanding find its possible<br />

to tum back to their home.<br />

The <strong>voluntary</strong> <strong>organizations</strong> are doing admirable work in this field by providing<br />

education about mental illness to the masses, providing <strong>care</strong> for those afflicted by<br />

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mentally ill at no-pr<strong>of</strong>it basis. providing counselling for those afflicted by the illness and<br />

their families, forming social networks <strong>of</strong> parent groups, self-help groups, following up<br />

the patients treated by them, helping the families to cope up with their wards, educating<br />

them and training them in coping skills, training the afflicted wards in social skills,<br />

vocational skills and in rehabilitating them back in their families, Many are settled in<br />

independent jobs, thanks to the efforts <strong>of</strong> the altruistic services rendered by these<br />

<strong>organizations</strong>, Apart from these <strong>organizations</strong> there are also a few who have tried to<br />

make fast bucks by deceiving the innocent victims <strong>of</strong> the mental illness<br />

Formal family therapy in India was first started in the three major hospitals in<br />

Amritsar, Vellore and Bangalore, The introduction <strong>of</strong> the family intervention techniques<br />

brought a positive effect on the attitudes <strong>of</strong> the families towards the mentally ill and also<br />

made them more informative on mental illness, However, there was a major limitation,<br />

namely, the programmeme could not be replicated in diverse settings and it required the<br />

families to stay in the hospitaL<br />

Family intervention programmemes <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong> focus on many<br />

two issues, viz.,<br />

L to Facilitate and optimise the family involvement in the rehabilitative process with the<br />

client and<br />

2, to alleviate the burden faced by the family while caring their ill relative,<br />

According to one <strong>of</strong> the organization staff, working with the families involves a<br />

three-stage approach and calls for close family-pr<strong>of</strong>essional interaction where both<br />

assume complementary roles, The first two stages involve planning and the third stage<br />

involves implementation, In the first stage, the resources <strong>of</strong> the families are understood<br />

viz" the financial resources, the social support enjoyed by the family and emotional<br />

support <strong>of</strong>fered by the family to the patient This helps the staff to understand the coping<br />

skills <strong>of</strong> the family and plan a programme me accordingly to improve their coping skills<br />

and strategies to cope up with the burden <strong>of</strong> taking <strong>care</strong> <strong>of</strong> the ill member. For instance,<br />

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if the family owns a busine~s<br />

or an enterprise, the staff attempt at rehabilitating the<br />

patient in the family business which would be less stressful to the patient.<br />

The second stage involves a hierarchy <strong>of</strong> interventions to be chosen for instance;<br />

there may be many factors involved, these could be a) patient, b) family or c) service<br />

delivery related. These factors playa great role in deciding the form <strong>of</strong> intervention to be<br />

given to the families. Patient-related factors pertain to the condition <strong>of</strong> the patient. The<br />

interventions planned for the families should clearly be specific to the patient's conditions<br />

and hence, the symptoms <strong>of</strong> the patients have to be understood. For instance, the<br />

intervention module for a family with a patient suffering from delusion or hallucination is<br />

different from one suffering from suicidal tendencies or one who is very inactive and<br />

dull. So, the patient's symptoms have to be understood.<br />

Similarly, families also differ in varying degrees in terms <strong>of</strong> education and<br />

economic status and the attitudes towards the patients. The module differs accordingly,<br />

for instance, a family with education could be dealt with written material whereas the<br />

family with no education has to be dealt with in an oral fashion and needs to be<br />

constantly educated informally whenever the family visits. A supportive family that<br />

understands the situation <strong>of</strong> the patient needs to be given psycho-education whereas a<br />

critical family needs in-depth intervention with more information about the illness and<br />

also needs to be involved in a relatives group or self help groups where the families meet<br />

and share their burden. Lastly any intervention programme needs two vital factors, viz.,<br />

time and personnel to implement the modules and to get good results out <strong>of</strong> the same.<br />

The stage three involves the implementation <strong>of</strong> the modules <strong>of</strong> intervention.<br />

These intervention modules used by the organization are innovative and exploratory in<br />

nature and modifications and improvements are taking place with more experience in this<br />

field The major stress by the organization is on giving information to the families about<br />

the illness <strong>of</strong> the family member, - psycho-education.<br />

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Psycho-education is the basic step to any intervention programme and this is done<br />

both in structured and unstructured manner. The structured family duration<br />

programmeme represents one modality in information dissemination and is <strong>of</strong>fered to<br />

families who have at least qualified secondary level <strong>of</strong> schooling. The organization<br />

conductsthisprogrammeme on one day involving about ten families. The programmeme<br />

is a multidisciplinary educational programmeme involving three aspects <strong>of</strong> the illness and<br />

is handled by a three-member team consisting <strong>of</strong> Psychologist, Psychiatrist and the Social<br />

Worker. The format <strong>of</strong> presentation is both didactic and interactive with extensive use <strong>of</strong><br />

audio visual aids. Families are encouraged to share their experiences in coping with the<br />

patients and successes and failures faced by them in dealing with their members.<br />

In the first module, the Psychologist deals with the signs and symptoms and to<br />

made to understand the case histories <strong>of</strong> the members <strong>of</strong> the families by discussing the<br />

meaning <strong>of</strong> the symptoms. This helps the families to empathise with the patient's<br />

conditions. The second module is taken up by the Psychiatrist, which involves the<br />

aetiology and an overview on management issues. The families are expected to share the<br />

problems faced by them by managing their wards. The importance <strong>of</strong> strictly following<br />

the medicinal regime is stressed, besides the need to control one's own behaviour<br />

responses to avoid aggravation <strong>of</strong> the patients' behaviour. The third module explains the<br />

concept <strong>of</strong> rehabilitation and is handled by the Social worker where the positive role <strong>of</strong><br />

the families is stressed.<br />

The staff <strong>of</strong> the organization reacted to the family education programme thus.<br />

According to them,<br />

1. the families have to be educated frequently and <strong>system</strong>atically, as the families do not<br />

retain the knowledge gained for a long time;<br />

2. families welcome these educational programmes and are enthusiastic in sharing<br />

their problems and experiences;<br />

3. pr<strong>of</strong>essional staff gains lot <strong>of</strong> input about the family coping skills during the course <strong>of</strong><br />

interaction;<br />

4. during these sessions families seek help from the pr<strong>of</strong>essional on various problem<br />

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areas; and 5. these programmes serve to sensitise the families to involve in depth<br />

intervention.<br />

All the staff agreed that this could be implemented only in those families with at<br />

least basic secondary school education. Those with no basic education had to be dealt<br />

only by non-structured family education programme which is imparted by the following<br />

ways VIZ:<br />

L non-fonnal discussions with families, single or in-group;<br />

2. use <strong>of</strong> audio-visual and electronic media to educate the family members; and<br />

3. use <strong>of</strong> charts, pamphlets and booklets as educational materials.<br />

These non-structured programmes are aimed at problem solving and enhancement<br />

<strong>of</strong> coping strategies. As problem-solving is based on the attitudes and attributes <strong>of</strong> the<br />

patient's behaviour held by the family, this is taken mto consideration in developing the<br />

module.<br />

Problem-solving approach involves handling in different stages. Initially the<br />

problem and the objective or goal is defined and then redefined and sub optimal goals are<br />

identified. Then the group identifies strategies for each sub-optimal goal and these<br />

strategies are reviewed and refonnulated. The families are explained in detail about<br />

solving their problems by illustrating life experiences. These help the families to deal<br />

with problems and crises situation.<br />

Another approach used by the <strong>organizations</strong> to solve the problems is through<br />

relatives' groups, wherein six to seven families are invited to share their problems with<br />

each other. The experiences <strong>of</strong> the families, successes and failures, are shared and<br />

discussed by which the families learn the pros and cons <strong>of</strong> different situations and how to<br />

handle the same. Yet another approach is through therapeutic dramatics or role playing<br />

wherein the staff and volunteers <strong>of</strong> the organization take up different roles <strong>of</strong> the family<br />

members and the role <strong>of</strong> the patient and enact day-to-day life situations projecting the<br />

problems and difficulties faced by the family members. They also depict the difficulties<br />

faced by the family members and <strong>of</strong>fer suggestions to solve problems. The message<br />

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delivered by these plays is that any kind <strong>of</strong> undesirable behaviour <strong>of</strong> the patients could be<br />

corrected with the right approach.<br />

Support activities are yet another form <strong>of</strong> intervention programme <strong>of</strong>fered to<br />

families. These support activities are <strong>of</strong> three kinds, viz.,<br />

l. child support, wherein the children <strong>of</strong> the mentally ill are given financial support<br />

in education by way <strong>of</strong> buying books, paying fees, etc;<br />

2. formation <strong>of</strong> self-help groups, which enables the families to get together, interact<br />

and share their problems with each other. This serves as learning experience for<br />

the families attending the session;<br />

3. referral to other social welfare agencies, The organization refers the mentally ill<br />

individual or one <strong>of</strong> the family members to other welfare agencies for seeking<br />

employment which would help the families to improve financially.<br />

The <strong>voluntary</strong> <strong>organizations</strong> have fully realized the importance <strong>of</strong> the<br />

involvements <strong>of</strong> the families in all stages <strong>of</strong> treatment and rehabilitation <strong>of</strong> the mentally<br />

ill. Family sessions and family therapy help in a long way to understand the problems <strong>of</strong><br />

the afflicted individual. Family therapy is found to have remarkable effects on relapse<br />

rates and rehabilitation among the schizophrenics. Family therapy involves psychoeducation,<br />

aiming at: I. providing adequate information to the family members;.2.<br />

improving the coping skills <strong>of</strong> the family; 3. expanding the social network <strong>of</strong> patient and<br />

hislher family; and 4. establishing empathic interaction with family members in dealing<br />

with the problems.<br />

Psycho-educational interventions play a great role in providing adequate<br />

information to the family, enhancing coping skills and increasing their social network and<br />

multiple family groups. Many therapies like family crisis therapy, individual support<br />

therapy, relatives group therapy, behavioural family management, family psychoeducation,<br />

psycho-educational multiple family group are now prominent therapies which<br />

have for their target the social unit <strong>of</strong> their families.<br />

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Family Interventions<br />

Families coping with patients afflicted by psychiatric disorders especially<br />

schizophrenia are faced with many problems. First <strong>of</strong> all there is lack <strong>of</strong> knowledge<br />

regarding mental illnesses, which delays the identification <strong>of</strong> the illness in the patients.<br />

There is a great delay in approaching for medical help. This. problem is applicable to all<br />

socio-economic classes irrespective <strong>of</strong> educational levels <strong>of</strong> the families. In the lower<br />

socio-economic classes, where there is lack <strong>of</strong> network, lack <strong>of</strong> correct information, the<br />

problem <strong>of</strong> identification <strong>of</strong> the problem is more severe.<br />

Family Counselling and Psycho-education<br />

Counselling and psycho-education help a great deal in solving many problems<br />

suffered by the mentally ill and their families. The following case illustration explains<br />

how the intervention <strong>of</strong> the organization staff through counselling and psycho-education<br />

helped the family members to accept their ward's condition, helped in providing social<br />

support for the patient and thus, prevented relapse.<br />

ease2S<br />

Malini belongs to a high-income group. She has been a very loved child<br />

during her childhood. The family members noted drastic changes in her after her<br />

mother gave birth to a baby son. The changes in her were taken more as a feeling<br />

<strong>of</strong> depression due to the presence <strong>of</strong> the new born. Seldom did the family<br />

members suspect any mental illness. They took her reaction to be very normal.<br />

But her condition during her childhood disturbed the parents. She had the<br />

tendency to go around young boys, get involved in love affairs. The family<br />

members did not take her behaviour to be anything serious or problematic. They<br />

did not approach any doctor or a Psychiatrist. According to the family members,<br />

the symptoms exhibited by Malini did not suggest that she could be suffering<br />

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from any kind <strong>of</strong> mental illness. The parents did not suspect the same. In most <strong>of</strong><br />

the cases, these kinds <strong>of</strong> mental and emotional disturbances are taken for granted<br />

by the family members and as such medical help is delayed. Thus, the delay in<br />

identification creates a delay in treatment and hence, a delay in recovery. The<br />

problem is recognized as a problem only when it attains severity, for instance, in<br />

the above case, Malini after an episode <strong>of</strong> being cheated by her lover, tried to<br />

harm herself by cutting with a blade and also tried to end her life by hanging.<br />

This was when the parents took her to a Psychiatrist. He diagnosed her to be<br />

schizophrenic and as suffering from the disease for many years.<br />

Schizophrenia is a very threatening, confusing and unpredictable illness. The<br />

family members are mostly unaware <strong>of</strong> symptoms <strong>of</strong> this illness and most <strong>of</strong>ten mistake<br />

certain symptoms to personality defects or character traits. They are unaware <strong>of</strong> the<br />

extent and causes <strong>of</strong> the mental disruption and aberrations that are besieging their ill<br />

relative. To the families, diagnosis and treatment <strong>of</strong>ten appear mysterious and sometimes<br />

arbitrary and erratic. They feel uninformed and unguided by clinicians. All these are a<br />

result <strong>of</strong>lack <strong>of</strong> knowledge and myths about the mental illness.<br />

In the above case, the family members have had a long struggle <strong>of</strong> admission and<br />

re-admission in hospital wards. In order to find a more practIcal solution to the problem,<br />

they approached RMS. Since the family belonged to a highly educated class, the<br />

therapeutic community staff at RMS found fewer problems in talking to the family<br />

members. But since the family had a highly sophisticated background, it had other<br />

typical problems <strong>of</strong> a very rich family. The patient's closest family members were her<br />

brother and a paternal aunt. She lost her parents at a very young age. The staff identified<br />

the problem faced by the family. They felt the family lacked a social network and the<br />

patient needed social support.<br />

The staff felt that the major problem the patient suffered was loneliness as she<br />

was forced to live alone in a house. Her brother was married and settled in a different<br />

place. He was in the navy and was on constant travel. The loneliness suffered by the<br />

215


patient led to depression, self-destruction and suicidal tendencies. Therefore, the patient<br />

suffered frequent relapses. The organization staff felt that the major strategy to be<br />

adopted in this case was to talk to the closest family members and build a social support<br />

base for the patient.<br />

The brother and aunt who was the 10caLguardian were called to theorganization....<br />

for discussion. The staff found that the brother was not in a position to take <strong>care</strong> <strong>of</strong> the<br />

patient, except that he was prepared to shell out money. The aunt categorically declared<br />

that she couldn't take <strong>care</strong> <strong>of</strong> her niece on a long-tenn basis as she felt she was under<br />

risk. The staff had to explain to the families that the patient was very vulnerable to their<br />

attitudes towards her.· She deserved more <strong>care</strong> and love in order to get rid <strong>of</strong> her<br />

depression and loneliness. The family members were made to understand that their<br />

attitudes towards the patient detennined to a great extent her recovery or relapse. They<br />

were made to realise that giving money and luxury were not enough for her to take <strong>care</strong><br />

<strong>of</strong> herself. What she wanted was a supportive family to reduce her problems <strong>of</strong><br />

depression and loneliness.<br />

The family members were invited frequently for counselling and education. They<br />

were made to sit through the therapy sessions in order to understand the patient's<br />

behaviour. After the sessions the family members' feedback was taken and the staff and<br />

the family members held discussions about the case. In the process, the family members<br />

felt clearer about the patient's condition and <strong>of</strong>fered support to her. Since they could<br />

afford the money they decided to put her on a long-tenn basis with the organization. The<br />

organization made it certain that the family members would <strong>of</strong>fer social and moral<br />

support to the patient apart from financial support.<br />

This is how the staff integrated the patient and the family members by educating<br />

and counselling the family members to accept the patient's condition and <strong>of</strong>fer support.<br />

The staff transformed the family members from a tendency <strong>of</strong> abandoning the patient to<br />

acceptance <strong>of</strong> the patient. This not only helped the family members but also the patient<br />

to find a permanent solution.<br />

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Involvement <strong>of</strong> the Families in Family Support Groups<br />

Family support groups help the afflicted families to bring out their problems in a<br />

group and find solutions for the same through the experiences <strong>of</strong> other families in the<br />

group. Family support groups are very effective in educating the family members on the<br />

symptoms <strong>of</strong> the illness suffered by their wards and coping skills-required to deal with<br />

the afflicted member.<br />

Case 26<br />

Kamala belonged to a middle class family and was always a very s<strong>of</strong>tnatured<br />

person and light-hearted, never took studies seriously. She was a very<br />

pampered child by her parents and brothers. They had lot <strong>of</strong> property and spent<br />

lot <strong>of</strong> money on her. She was very well <strong>care</strong>d for and she was a spoilt kid.<br />

During her adolescent age, her mother noticed some odd behaviours like being<br />

sexually perverted, reading books on sex. Her mother was a little ashamed and<br />

shocked to talk about this to the other family members or to doctors. In her early<br />

twenties, she was shown to a physician who referred her to a psychiatrist. The<br />

family members felt very s<strong>care</strong>d to go to a psychiatrist, as they feared about the<br />

consequences. So, they decided to marry her <strong>of</strong>f spending a lot <strong>of</strong> money, so that<br />

her problem would get solved. But unfortunately, they got worsened. Ultimately,<br />

the marriage got nullified as the court decided her unfit for married life as she was<br />

suffering from schizophrenia. The family members felt that the clinicians did not<br />

advise them and they felt so uninformed about the symptoms <strong>of</strong> the disease. They<br />

felt that if guided properly, they could have avoided marriage <strong>of</strong> their daughter.<br />

The marriage created more problems for Kamala and led her to many suicidal<br />

attempts, worsening her situation. The family members expressed that they felt so<br />

uninformed and their lack <strong>of</strong> knowledge about the disease delayed medical help<br />

and they felt guilty for bringing ruin to their own child.<br />

217


In this case, the family was asked to attend family support group consisting <strong>of</strong><br />

many families suffering from the problem <strong>of</strong> coping wit a mentally ill member. This<br />

group helps families in many ways to understand and accept the problem <strong>of</strong> mental<br />

illness.<br />

The problem in this case was that the family members did not understand the<br />

problem suffered by their ward. They were not uninformed about the symptoms suffered<br />

by the ward. Neither were they aware <strong>of</strong> the course <strong>of</strong> treatment and <strong>care</strong> to be adopted<br />

in order to cope with her illness.<br />

The staff <strong>of</strong> the MRe made the family members understand that their ward was<br />

suffering from mental illness. The family members found it really hard to accept the fact.<br />

They held that their daughter's failure in marriage was due to her husband and her inlaws.<br />

They could never accept the fact that their daughter suffered from an illness that<br />

did not enable her to be a success in the institution <strong>of</strong> marriage.<br />

Therefore, the family members were asked to attend family support groups,<br />

wherein some family members faced similar situation. An interaction with them made<br />

the family members realise the complexity <strong>of</strong> the problem faced by their ward. In these<br />

kinds <strong>of</strong> cases the staff explain to the family members different cases suffering from<br />

mental illness and the symptoms suffered by them. In many cases, the symptoms are<br />

hardly notices until a crisis occurs. Giving various instances, the staff make the family<br />

members understand the problem. Being in a group gives the family members a sense <strong>of</strong><br />

belonging to a group suffering from similar problems. Otherwise, they feel so lonely and<br />

left out and sulk within themselves.<br />

In the family groups, each family member expresses its views and problems.<br />

They discuss various methods and strategies to cope with the difficult situations. The<br />

staff encourage them to let out their feelings. They <strong>of</strong>fer various suggestions to<br />

overcome suffering. Discussion in a group gives lot <strong>of</strong> freedom and ventilation tot he<br />

family members to express freely their problems.<br />

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This strategy helps the stalT and the family members to tadle the probkm easIly<br />

The family members expressed the feelmgs better In a family group than among the stalT<br />

The family members expressed that they got lot <strong>of</strong> consolation bemg In the group. They<br />

felt easy to exchange then problems and found It useful when other members dIscussed<br />

various strategies <strong>of</strong> dealing with their ill wards.<br />

Since the staff members are also present in the group, they get instant suggestIons<br />

in coping with the problems. The family members leave the group sessions with a<br />

relieved feeling that they are not the lone sufferers <strong>of</strong> the problem but one In many. The\<br />

feel much better that there is help around them. These groups are a great success and<br />

they fulfil the need for a social network for the Isolated families m need <strong>of</strong> help<br />

Self-Help Groups to Build Social Network and Overcome Problems <strong>of</strong> Social Stigma<br />

Social stigma attached to mental illness poses a huge obstacle to the families to<br />

approach help from their kith and kin. They fear socIal rejection and hence cut down<br />

their social network, which hinders them in providing <strong>care</strong> for the III member. SocIal<br />

stigma on mental illness is so strong that support and empathy is lacking for those<br />

suffering from mental illness unlike those suffering from physical Illness<br />

groups help the families to build a supportive social network.<br />

Self-help<br />

Case 27<br />

Kannan was a middle-aged man hailing from a middle class family. He<br />

was qualified in Technical education and got a job as a factory worker. He had<br />

been doing very well at his job. He had lot <strong>of</strong> friends and has always been a<br />

sought after person by his fnends. At home front, he was never known to be<br />

problematic except that he used to talk a lot on various topics. He was married<br />

and had children. His problems suddenly started showing up at work. His boss<br />

complained that he was not working properly and he seemed to avoid work. He<br />

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just whiled away time The factory medical department gave him medical help<br />

and counselling. The family was called to discuss his problem. The family<br />

members were shocked to hear from the factory workers that he has not been<br />

behaving normally. When questioned by the doctors and family members about<br />

his change, he simply said he has been told by some voice not to work and to<br />

concentrate on worship especially to reptiles and birds. The medical team<br />

referred him to a Psychiatric hospital and he was diagnosed as schizophrenic and<br />

given medication and treatment. His condition got worsened. He refused to go to<br />

work. He fought with all his friends. He was very problematic to manage at<br />

home. His wife and mother were the worst afflicted as he was very violent<br />

towards them. He refused to cooperate with them, did not take regular<br />

medication, showed irregular food habits. He would always lock himself up in a<br />

room to worship. The family members could not manage him and they felt very<br />

stressed out and ashamed by his behaviour. They complained <strong>of</strong> emotional drain.<br />

They cut down on their social relationship as they felt that others were looking<br />

down upon them and they hardly asked for any help from their kith and kin.<br />

Their only help was from the doctors. But at home they faced dejection managing<br />

the ward. They complained that they hardly got any help from their neighbours<br />

and relatives. Everybody feared to come near Kannan. The family members<br />

expressed that it was a curse that their ward was suffering from a mental illness,<br />

which has strong social stigma, and people hardly come forward to help.<br />

In the above case, the family members suffered to a great extent because <strong>of</strong> the<br />

;tigma attached to mental illness. The respect and the prestige the family enjoyed<br />

;uffered rejection from their relatives, neighbours and friends. They got their ward<br />

treated in a Government hospital. An admission and discharge from the hospital made<br />

things worse for the family members. Their social network suffered. They had no one<br />

visiting them and the worst hit were the ward's wife and mother. The children <strong>of</strong> the<br />

ward also felt ashamed to mix with the other children.<br />

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Though they got medical supelVision in the hospital, they still felt un<strong>care</strong>d for and<br />

outcaste. They approached RMS for help. The RMS staff gave them psycho education<br />

and family counselling to start with. Since they were in a position to grasp written<br />

materials, they gave them some reading material on mental illness and symptoms. The<br />

atmosphere in the organization made them feel more comfortable. They were asked to sit<br />

through various therapy sessions, which attempt at improving the behaviour <strong>of</strong> their<br />

afflicted individual.<br />

The family members were counselled by the experts on the course <strong>of</strong> action to be<br />

taken to deal with the individual. Instead <strong>of</strong> sulking within four walls <strong>of</strong> their house, they<br />

were encouraged to participate in self-help groups to understand and tackle their<br />

problems better. The problem, which seemed so confusing and threatening to them<br />

looked much simpler and easier after attending family sessions at RMS.<br />

During these family sessions, the staff ensure that the families feel <strong>care</strong>d for. The<br />

staff spend lot <strong>of</strong> time with the members patiently and listen to their problems and<br />

complaints. In this case, the family was totally isolated from family network and as such<br />

most <strong>of</strong> their feelings were bottled up in them putting them in frustration. The staff<br />

rightly tackled this during their therapy session. The end result was a better-equipped<br />

family to heal with ups and down <strong>of</strong> their ward's illness. The staff's attempt in helping<br />

the family members and their patients during the course <strong>of</strong> stay helps in a long way in the<br />

<strong>care</strong> <strong>of</strong> he mentally ill patient.<br />

Family Counselling to Reduce tbe Burden and Improve Coping Skills<br />

Family members face a lot <strong>of</strong> burden taking <strong>care</strong> <strong>of</strong> the afflicted individual and<br />

some <strong>of</strong> them translate their complaints into outright rejection and abandonment. In the<br />

traditional families and peasant families, the family members take more responsibilities<br />

for their afflicted family member than those urban counterparts who are caught amidst<br />

the busy urban way <strong>of</strong>life where indifferent and formal relations exist between the family<br />

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members. Family counselling helps the families to reduce their burden and also <strong>of</strong>fer<br />

solutions to their problems.<br />

Case 28<br />

Raghu hails from a middle class family. From his childhood he has been<br />

exhibiting problematic behaviour like teasing girls, beating his sisters, quarrelling<br />

with his parents, .. etc.He nelleLshowed...interestin llisstudies .. His mother bad ..<br />

serious <strong>health</strong> problem when he was 14 years old and she expired. He was the<br />

eldest in his family and he had two sisters and a brother. His father was forced to<br />

marry again by his family members in order to take <strong>care</strong> <strong>of</strong> these children. Raghu<br />

was very upset by this marriage and always created problems for his stepmother.<br />

She gave birth to two children and Raghu always showed his hatred towards<br />

them. On his father's retirement from service, he was <strong>of</strong>fered a job in his father's<br />

Company. He was doing well in his job and suddenly he exhibited lot <strong>of</strong><br />

violence, irrelevant talk, suicidal behaviour that worried his employer and the<br />

family and he was advised to take rest. The family members took him to a<br />

psychiatrist who advised medication and hospitalisation. He was admitted in the<br />

hospital and returned home after a long stay. His return caused more problems to<br />

his brothers and sisters as he started beating them, which put everybody in<br />

trouble. The family members tried their level best to cope up with him. But the<br />

daughters-in-laws and sons-in-laws <strong>of</strong> the family totally rejected him as they felt<br />

he was harming the family prestige. The family members thus decided to leave<br />

him in a long term <strong>care</strong>s rehabilitation home. This is a typical case <strong>of</strong> rejection by<br />

the family after lot <strong>of</strong> humiliation from their social circle. They ultimately decide<br />

to abandon the ward in a home for long-term <strong>care</strong>.<br />

Most family members complain <strong>of</strong> economic drain, emotional drain, lack <strong>of</strong> sleep,<br />

depression, tension, interferences with daily life and fear <strong>of</strong> unpredictable behaviour and<br />

difficulties in communication and strained family and marital relationships. Some resent<br />

222


for having become captives <strong>of</strong> the situation and also are beset by feelings <strong>of</strong> guilt,<br />

inadequacy and anger.<br />

In this case, the aillicted family member has been under treatment in psychiatric<br />

hospital. He has been subjected to shock therapies, frequent admission and discharges<br />

from hospital. The family members tried their best to cope with his illness ..... But.he-was<br />

totally unmanageable as they suffered verbal abuse and violence from him. Since they<br />

lived in a joint family, the daughters-in-Iaws <strong>of</strong> the house <strong>of</strong>ten quarrelled with the<br />

afflicted member's mother, which created lot <strong>of</strong> problems.<br />

Finally, the parents approached MRF for help. They felt medical treatment in the<br />

hospitals alone did not solve their problems. They came to the organization to put an end<br />

to their trawna suffered because <strong>of</strong> the mentally ill member. The staff held discussions<br />

with the parents <strong>of</strong> the ill members. They expressed that they could not manage the ward.<br />

Since they were old and dependent on their other son, they were forced to seek<br />

alternatives for <strong>care</strong> <strong>of</strong> the ill members. The staff felt that the parents needed counselling<br />

as they were so broken down. They were emotionally drained.<br />

Counselling helped the parents a lot as they felt that there were some alternatives<br />

available in the <strong>voluntary</strong> <strong>organizations</strong> to take <strong>care</strong> <strong>of</strong> their son. They felt very ashamed<br />

that their own family members were rejecting their son. The staff helped the parents to<br />

reconcile themselves. They planned a suitable shot term programme for the ill member,<br />

so that the parents are temporarily relieved <strong>of</strong> the problem.<br />

This was a typical case <strong>of</strong> a rigid family where the acceptance <strong>of</strong> the afflicted<br />

family member found lot <strong>of</strong> difficulties. Though the parents were willing to take <strong>care</strong> <strong>of</strong><br />

the ill member, the other family members totally rejected the same. So, the staff<br />

suggested that the family members to let the patient attend day <strong>care</strong> and in future they can<br />

think <strong>of</strong> long-term rehabilitation. The family accepted the <strong>of</strong>fer and the member was<br />

ultimately given to the custody <strong>of</strong> the organization on a long-term basis after a few years.<br />

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The staff thus solved the trauma faced by the members by their intervention<br />

through counselling, day <strong>care</strong> and long-term rehabilitation.<br />

Community Based Rehabilitation<br />

In contrast to the urban areas, in the rural areas where the social network <strong>of</strong> family<br />

is still intact, the family members decide to take full responsibility <strong>of</strong> the wards in spite <strong>of</strong><br />

the consequences. They complain -<strong>of</strong> economic drain; spending"lot <strong>of</strong> money on doctors<br />

and medicines but not <strong>of</strong> emotional drain. The organization staff encourage the<br />

supportive families to take <strong>care</strong> <strong>of</strong> their aftlicted wards. The ultimate aim <strong>of</strong> <strong>care</strong> for the<br />

mentally ill is to find solace in their families and communities.<br />

Case 29<br />

Shankar belongs to a rural family. His parents are farmers with minimum<br />

landholdings. Shankar has always been a problematic child to them refusing to<br />

study and work. This annoyed his parents initially as he would not participate in<br />

any <strong>of</strong> the family affairs, keep a distance, hardly had any friends. He was always<br />

depressed. But he was very pious and used to spend all his time in the temple.<br />

Everybody in the village was sympathetic towards him. He was harmful to others<br />

only when they criticized him. If left to himself he was very well behaved. He<br />

showed violence to people who teased him. He would refuse to work and chose<br />

to be idle always. This annoyed his family members. During a medical camp in<br />

the village, the doctors advised the family members to take him to a psychiatric<br />

hospital. The family members were shocked initially to know that their ward<br />

could be suffering from a mental problem. They initially refused to treat him.<br />

But later with a hope <strong>of</strong> getting him to normalcy, they approached the<br />

psychiatrist, who advised medication and to be prepared for his condition to get<br />

worse. The family members were very upset but they took it as a challenge to<br />

take good <strong>care</strong> <strong>of</strong> him. The family members never took him as a burden and the<br />

villagers also cooperated a lot and they did their best for him. Though Shankar<br />

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continued to be the same, he received love and warmth from the villages and he<br />

was never ill treated or rejected by others. This is a typical instance <strong>of</strong> a family<br />

cushioning that is so important in the <strong>care</strong> <strong>of</strong> the mentally ill. Unlike, the urban<br />

set up where each individual is busy with his own priorities in life and hardly<br />

<strong>care</strong>s for the afflicted person. They treat the afflicted individual as burden and<br />

many pray that his end should come soon, as it would solve all their problems.<br />

But in a rural set up, where life is much simpler, the family members and the<br />

social circle take <strong>care</strong> to see that the individual is able to continue in the present<br />

state without any problems. This is the best contribution that a family and<br />

community can do towards <strong>care</strong> <strong>of</strong> the mentally ill, to put up with his adverse<br />

behaviours and <strong>care</strong> for him.<br />

This is a typical case <strong>of</strong> an ideal situation where the family and community bore<br />

the burden <strong>of</strong> taking <strong>care</strong> <strong>of</strong> the sick members. MRF ran community based rehabilitation<br />

in a rural area. The staff observed that the families <strong>of</strong> the mentally ill member were not<br />

so traumatised as their urban counterparts. In these cases, the staff <strong>of</strong> the organization<br />

held camps for the families, encouraging them in the effort in taking <strong>care</strong> <strong>of</strong> the<br />

individual. The families did come up with problems and the staff <strong>of</strong>fered them<br />

counselling in dealing with the problems.<br />

Rehabilitation <strong>of</strong> the mentally ill is the ultimate goal <strong>of</strong> all those working in the<br />

field <strong>of</strong> mental <strong>health</strong> <strong>care</strong>. The ideal solution to this problem by the MRF staff in the<br />

rural areas helps many patients find solace within their own community itself thus<br />

preventing neglect by their own family members.<br />

The rural families, most <strong>of</strong> them poor, find that <strong>care</strong> for the mentally ill member is<br />

cheaper and simpler at home than leaving them under long term <strong>care</strong> in the organization.<br />

The staff focus on psycho-education and counselling to the families in order to cope up<br />

with the family member. This has been highly successful as the rural families rarely<br />

approach the organization for long-term rehabilitation.<br />

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Involvement Of Families in Groups to Reduce Their Hostilities and Expressed<br />

Emotions<br />

In most cases, the stress <strong>of</strong> caring for the chronically mentally ill leads to<br />

depression and anxiety, which leads to diminished capacity to manage the illness<br />

successfully, especially when unsupported by pr<strong>of</strong>essional treatment <strong>system</strong>.<br />

Case 30<br />

Sowmya belongs to a very-pathological family. She was suffering from<br />

mental illness. She suffered from polio attack during her childhood that has<br />

paralysed her limbs. With her physical handicap she managed to study and was<br />

known to be brilliant in her classes. After school, her family members tried to get<br />

her a job <strong>of</strong> her grandfather's after his retirement by showing false papers that she<br />

was his youngest daughter. This annoyed her and she started behaving very<br />

hostile to her family members. Her father was always a problematic person as he<br />

was an alcoholic from his young age and Sowmya has been a victim for all his<br />

verbal and physical abuses. This always upset Sowmya and she tried to escape<br />

from the house many times. The family members were critical towards her and<br />

always showed resent to her actions. Her mother unable to tolerate the sufferings<br />

from her husband left the other two younger children under the <strong>care</strong> <strong>of</strong> Sowmya<br />

and let for abroad as domestic help. This brought more burdens to Sowmya and<br />

she started hating her parents and abused them <strong>of</strong>ten. She was left with her aunt<br />

who suffered many problems dealing with her. She ended up ultimately with<br />

depression and had to be treated by the doctor. Her aunt felt so victimized by the<br />

whole situation. She suffered from stress and could no more tackle the situation.<br />

She suffered criticism from her husband for bringing her mentally ill niece into<br />

the family. This led to more tensions in the family and the family members felt so<br />

helplessly caught in the situation.<br />

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Expressed emotion in the family namely the critical views <strong>of</strong> the patient<br />

by the family members and over-involvement, i.e. highly protective in nature has<br />

an impact on relapse <strong>of</strong> the illness. When the levels <strong>of</strong> expressed emotion is high,<br />

relapse would occur more frequently. The relapse is found to be more in isolated<br />

families. The reasons may be due to small social network, lack<strong>of</strong>help-andadvi~resulting<br />

in frustration <strong>of</strong> the family members leading to expressed emotions by<br />

way <strong>of</strong> criticizing the mentally ill member.<br />

This was a typical case <strong>of</strong> a critical family. They felt over-burdened and<br />

emotionally drained taking <strong>care</strong> <strong>of</strong> the ill member. In their frustration, they were very<br />

harsh and rude to the ill member, resulting in negative consequences.<br />

The staff identified that the family was hardly any supportive family. Therefore,<br />

they engaged them in a relatives' group, self help group to meet other families. This<br />

made them realise that their efforts in caring for the ill member was very minimal and<br />

also learnt that there were better ways <strong>of</strong> handling the problem. Intervention through a<br />

group is much smoother for the staff rather than attempting to change the attitudes <strong>of</strong> the<br />

family members by the staff themselves.<br />

Exchange <strong>of</strong> views is much easier in a group, a homogenous group <strong>of</strong> families<br />

suffering from a similar problem. The affiicted family felt trapped in a situation but once<br />

in a group they felt better to know that there were many more caught up in the trap like<br />

them. The staff helped the family members to gradually change their critical views about<br />

the patient towards more sympathetic and supportive views. The families felt happier in<br />

the organization as they realised that there were many who sere waiting to help them<br />

from day to day problems, in contrast to the Governmental <strong>organizations</strong> where beyond<br />

medical treatment permanent support group is lacking. Self help groups and relatives<br />

groups thus helped the family to get over their blues and continue their <strong>care</strong> for the ill<br />

member more supportively.<br />

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Counselling to Improve Coping Skills<br />

Counselling proves to be a simple solution to many problems. Th following case<br />

illustrates the efforts <strong>of</strong> the VO in bringing betterment to the patient through family<br />

counselling.<br />

Case 31<br />

Sukanya hails from a high-income family with lot <strong>of</strong> property. She lived<br />

in a village when she was young and after marriage settled in a town. She has· .....<br />

always been a pampered child and got what she wanted. Her parents were<br />

affectionate to her as she was the only daughter. She had four brothers, well<br />

educated and settled in United States.<br />

During her childhood she was an adamant child and always demanded that<br />

everything should be her way. Except for that the parents did not notice any<br />

behavioural problems in her. However, her mother complained that she was a<br />

very stubborn child, refused to go for studies, spent lavishly and when questioned<br />

reacted very violently. But her parents did not take these as behavioural<br />

problems. After marriage, she did not change her nature and she faced lot <strong>of</strong><br />

problems in her in-laws family. It was ajoint family and she was not at all happy<br />

there. She felt overstressed and could not manage herself. She was quarrelsome<br />

with everyone. She even beat her husband. She tried to commit suicide twice.<br />

Her husband decided to leave her in her mother's place. After that he filed a<br />

divorce. On mutual grounds, they got divorced.<br />

Marriage gave her lot <strong>of</strong> stress and her conditions worsened. Her mother<br />

expressed that Su went totally out <strong>of</strong> her mind; she abused all her family<br />

members. Her verbal abuses were very hurting to others. Her husband showed<br />

her to psychiatrist immediately after marriage and she was told that she had<br />

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mental illness. She was advised medication. Her brother helped her a lot by<br />

sending medicines from abroad.<br />

Her parents suffered a lot, as they had no pr<strong>of</strong>essional support in their<br />

hometown. They felt very depressed to manage her. They felt that all their<br />

potential <strong>of</strong> tolerance had gone and they were left with no strength to take <strong>care</strong> <strong>of</strong><br />

her. They longed for pr<strong>of</strong>essional help to get relieved -[mIll the stIess <strong>of</strong> l:"oping:m_ ... m.<br />

According to her parents, they felt very lucky for being one among the few who<br />

got accommodated in a pr<strong>of</strong>essional halfway home.<br />

The question <strong>of</strong> long-term <strong>care</strong> <strong>of</strong> these mentally ill is under jeopardy. In most <strong>of</strong><br />

the cases it is the parents <strong>of</strong> the mentally ill irrespective <strong>of</strong> their age who take <strong>care</strong> <strong>of</strong><br />

them. Once the parents reach old age, the plight <strong>of</strong> these mentally ill member is very<br />

pathetic. The siblings <strong>of</strong> the ill member invariably are in a very delicate situation to take<br />

the responsibility <strong>of</strong> caring because in most cases they are married and so it is dependent<br />

on the acceptance <strong>of</strong> the presence <strong>of</strong> the ill member by their wivesfhusbands and their<br />

families. It becomes a very difficult task <strong>of</strong> the family members to decide the future <strong>of</strong><br />

these mentally ill members. The modem urban family is so dominant with selfish<br />

motives, indifferent and informal relations that many are desperately looking for<br />

alternatives for their wards.<br />

This was another case <strong>of</strong> helpless old parents, who had enough money to take <strong>care</strong><br />

but much less emotional strength to face the problems associated with mental illness.<br />

These families approach these <strong>organizations</strong> seeking for long term <strong>care</strong> for their wards.<br />

But the organization staff are very cautious not to accept the family members' proposal<br />

unless they find it very genuine.<br />

First <strong>of</strong> all the staff assess their sources and abilities, try psycho education and<br />

counselling, explaining to them the various strategies for coping the mentally ill. In this<br />

case, the parents were very cooperative and agreed to try the short-term rehabilitation<br />

programme. The family was called frequently and involved in various sessions to make<br />

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them understand the strategies to be adopted in taking <strong>care</strong> <strong>of</strong> the ill member. The patient<br />

was sent home every three months home for assessing their behaviour at home to see if<br />

any progress is made. There was a definite progress at the end <strong>of</strong> the rehabilitation<br />

programme. However, the parents opted for long-term rehabilitation as they felt they<br />

were too old to take <strong>care</strong> <strong>of</strong> her in the right manner and requested for long-term<br />

rehabilitation. Henceforth, the staff took the ward in for long-term rehabilitation.<br />

In-depth Intervention to Change the Attitudes <strong>of</strong> the Family Members<br />

In some cases, the families require in- depth intervention especially so when they<br />

are very hostile to the patient's condition. The following case ia an illustration <strong>of</strong> how<br />

the VO dealt with a very critical family.<br />

Case 32<br />

Usha has always been a very depressed person right form her childhood.<br />

She hails from a lower middle class family. Her father is a drunkard and he <strong>of</strong>ten<br />

beats his wife and children. He has been in this state right from his adulthood.<br />

He is an alcoholic. His parents have suffered a lot because <strong>of</strong> his alcohol<br />

dependence. They married him <strong>of</strong>f thinking he would get better if given more<br />

responsibilities in life. But it all worked against their wishes. His daughter Usha<br />

was the worst affiicted. Her father abused her <strong>of</strong>ten. She was always depressed<br />

thinking <strong>of</strong> her situation. This led to suicidal feelings and she tried to kill herself<br />

many times. Her mother, unable to bear the torture <strong>of</strong> her husband went abroad<br />

for doing domestic labour and Usha was left alone to manage her alcoholic father<br />

and her younger brother and sister who was just two years old. Thus, the family<br />

responsibility frustrated her a lot and she <strong>of</strong>ten went out <strong>of</strong> the house and tried to<br />

end her life. She was admitted to the hospital many times, given medication and<br />

counselling.<br />

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Her family members especially, her aunt who took <strong>care</strong> <strong>of</strong> her and her<br />

siblings was very critical about her behaviour. She showed her disapproval very<br />

<strong>of</strong>ten. This aggravated Usha more and more. The family members in their<br />

inability to manage the ward, Showed their frustration openly. This expressed<br />

emotion <strong>of</strong> the family members acts in a negative manner towards treatment and<br />

<strong>care</strong> <strong>of</strong> the afflicted family members. Therefore the individual suffers relapse<br />

caused due to the criticisms made by the family members.<br />

Incidentally, their relatives isolated the family. Most <strong>of</strong> them were s<strong>care</strong>d<br />

to have any link with them as they suffered from too many problems, financial<br />

and emotional. They feared the presence <strong>of</strong> a drunkard father and a mentally ill<br />

daughter. They opted to keep away from them. As such their social network was<br />

almost niL The family members suffered emotionally due to the indifferent<br />

attitude <strong>of</strong> the kith and kin. They were very frustrated and were unable to cope up<br />

with the situation. The emotional drain combined with a fractured social network<br />

worsened the situation and the family instead <strong>of</strong> helping their aftlicted ward,<br />

brought more disturbances to the afflicted ward.<br />

This was again a case <strong>of</strong> a highly critical family They had to be dealt with indepth<br />

intervention. The family members were briefed with the symptoms <strong>of</strong> the illness.<br />

They were provided with reading materials to understand the seriousness <strong>of</strong> the illness<br />

suffered.<br />

The family members were initially very adamant to accept any advice as they felt<br />

they have done enough for the sick member. They denied that the sick member suffered<br />

relapse due to their wrong way <strong>of</strong> handling the situation. The staff members met the<br />

family members at home; involving them in long counselling sessions, making them<br />

understand the condition <strong>of</strong> the patients.<br />

The family needed counselling and involvement in groups. They were asked to<br />

attend the self-help groups. Initially, they showed reluctance but with more exposure to<br />

231


the groups, they became more interested and this helped them a lot. The therapeutic<br />

community staff at RMS, attempted at changing the attitudes <strong>of</strong> the family members<br />

towards the mentally ill. The hostile attitudes <strong>of</strong> the family members got transformed<br />

into more supportive views.<br />

The staff had great problems in dealing with the case as they had to counsel her<br />

drunken father who invariably did not attend any <strong>of</strong> the family sessions. The aunt<br />

refused to respond to any <strong>of</strong> their intervention strategies as she felt she was not<br />

responsible for the ward. She had lot <strong>of</strong> complaints over the ward's parents and felt that<br />

she was forced into taking <strong>care</strong> <strong>of</strong> the ill member. The toughest task for the staff was to<br />

convince the family members to get involved into self-help groups. In this case, the aunt<br />

who was the guardian was very adamant to get involved in groups. However after a long<br />

counselling she took part in the groups and benefited from the same. Her view regarding<br />

the patient changed altogether after participating in the group.<br />

Family Crisis Tberapy<br />

During crisis situations, families have to be counselled very effectively so that<br />

there is minimum impact <strong>of</strong> the situation on the patient's condition. The following case<br />

illustrates a similar situation.<br />

Case 33<br />

Radha was an emotionally vulnerable person. Right from her childhood<br />

she has had many affairs with men. They have all ended in failures. These<br />

episodes have had a very severe impact on her. In spite <strong>of</strong> this she fell in love<br />

again and this time he was another schizophrenic patient. This alerted the staff<br />

and she was given counselling which did not change her attitude. Since this could<br />

have a strong negative impact on her recovery and her treatment programme the<br />

staff decided to meet her family members and let them know. A family crisis<br />

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therapy was conducted for both the amicted families and sending one <strong>of</strong> them to<br />

another half-way home reduced intensity <strong>of</strong> the problem.<br />

This problem posed as a big challenge to the RMS staff as this involved the future<br />

<strong>of</strong> two patients at stake. This was a crisis and the parents <strong>of</strong> both patients were called to<br />

resolve this problem. Both the-families expressed-shock over the fact that their ward<br />

were involved in a love affair. These kinds <strong>of</strong> affairs tend to bring about emotional<br />

upsurge, which disturb the patients. These patients who are in the recovering stage run<br />

the risk <strong>of</strong> relapse if they face any disappointment in their affairs. Therefore, it is in the<br />

best interest <strong>of</strong> the patients and the families that these kinds <strong>of</strong> situations are checked.<br />

Therefore, the parents had to be briefed with the problems that come along with this kind<br />

<strong>of</strong> a situation.<br />

Both the families could not accept the fact that consequences may occur if the two<br />

patients marry. They felt that the problem <strong>of</strong> both their wards would be solved if they get<br />

married to each other. The staff had to educate them on the grounds <strong>of</strong> the severity <strong>of</strong> the<br />

situation if they allowed them to marry. To convince the two families the staff struggled<br />

a lot. Each family had to be counselled separately and then together to understand the<br />

situation. The patients were also counselled. Each stage was a very difficult process.<br />

The families had to be counselled in such a way that one <strong>of</strong> them agreed to place<br />

their ward in another organization. The staff felt that physical separation was the<br />

immediate step to be taken to solving this problem. The family members were not happy<br />

with the decision. Only when they were educated on the consequences that might occur<br />

because <strong>of</strong> them being together at one place, did they realise the magnitude <strong>of</strong> the<br />

problem.<br />

One <strong>of</strong> the families agreed to place their ward in another organization. The RMS<br />

staff arranged for the same. The families were also briefed about the effects that this can<br />

hold on their wards. The families were worried and very anxious. The staff repeatedly<br />

have sessions for the families to cope up with the situation. Ultimately, they succeeded<br />

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in dealing with the case. The families were happy at the end that the problem got solved<br />

without any complications. These kinds <strong>of</strong> cnsis intervention need to be handled very<br />

<strong>care</strong>fully and the RMS staff were relieved after the problem got solved.<br />

Thus, the family is considered to be very resourceful in giving <strong>care</strong> and treatment<br />

to the individuals and the <strong>voluntary</strong> <strong>organizations</strong> make maximum utilisation <strong>of</strong> the same<br />

in order to bring about positive change in the patient's condition and also help the family<br />

to maintain better mental <strong>health</strong>.<br />

Indian family, in spite <strong>of</strong> the influences <strong>of</strong> westernisation, modernisation and<br />

urbanisation, still possesses some positive traits that can pose as solution to problems in<br />

<strong>health</strong> <strong>care</strong> in general and the <strong>care</strong> for mentally ill, in particular. Long-term <strong>care</strong> <strong>of</strong> the<br />

mentally ill in halfway homes could be an exception but not the rule. The individual who<br />

comes to halfway home for <strong>care</strong> and treatment is but pausing on a long and tiresome<br />

journey homeward.... After having chen shed and loved should these individuals return to<br />

society, only to be ravaged, savaged and rendered insane again?<br />

The problem <strong>of</strong> <strong>care</strong> <strong>of</strong> the mentally ill poses a serious challenge to the society if<br />

families go in the direction <strong>of</strong> abandoning these unfortunate victims <strong>of</strong> mental illness.<br />

These halfway homes will llldeed become halfway homeless if society does not maintain<br />

its social fabric. It is III the best needs <strong>of</strong> the society that regulatory mechanisms in the<br />

society should be thought <strong>of</strong> before much harm is done. In this direction, the <strong>voluntary</strong><br />

<strong>organizations</strong> have been doing a commendable service to protect the charm <strong>of</strong> the Indian<br />

family and encourage them to take <strong>care</strong> <strong>of</strong>the ill members.<br />

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CHAPTER SEVEN<br />

Summary and Conclusions<br />

Being a mental patient has important consequences for the course <strong>of</strong> life and<br />

social roles <strong>of</strong> the patient and the family. Care for the mentally ill is crucial, it involves<br />

social and economic resources. Allover the world different strategies have been adopted<br />

to tackle the problem <strong>of</strong> <strong>care</strong> for the mentally ill. Attitudes <strong>of</strong> the people have bee!}<br />

changing since the days when mentally ill were tortured. Care for the mentally ill is very<br />

important but yet due to financial constramts especially in a developing country like<br />

India, facilities tum out to be meagre and alternative institutions <strong>of</strong> <strong>care</strong> have to be<br />

evolved to tackle the problem. In order to fill in the dearth <strong>of</strong> services, <strong>voluntary</strong><br />

<strong>organizations</strong> have sprung up to provide complementary services. In the field <strong>of</strong> mental<br />

<strong>health</strong> <strong>care</strong>, about 38 <strong>organizations</strong> are operating all over the country providing mental<br />

<strong>health</strong> <strong>care</strong> services. In this study, an attempt has been made to assess the facilities<br />

available in India and highlight the role played by <strong>voluntary</strong> <strong>organizations</strong>.<br />

The major objectives <strong>of</strong> the study were the following:<br />

1. To place the problem <strong>of</strong> mental <strong>health</strong> in India in a historical perspective.<br />

2. To describe the role played by the <strong>voluntary</strong> <strong>organizations</strong> in the identification,<br />

treatment, rehabilitation and prevention <strong>of</strong> the mentally ill.<br />

3. To study the structure and functions <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong> as related to the<br />

<strong>care</strong> and cure <strong>of</strong> mentally disturbed patIents.<br />

4. To examine the linkage <strong>of</strong> <strong>voluntary</strong> organization with the governmental organization<br />

and with each other.<br />

5. To understand the role played by the families towards the <strong>care</strong> <strong>of</strong> the mentally ill.<br />

The study has been dealt in six chapters. Chapter 1 gives a brief introduction to<br />

the problem, the theoretical framework used in the study and a survey <strong>of</strong> literature on<br />

various aspects <strong>of</strong> mental <strong>health</strong>, viz., studies on public conception <strong>of</strong> mental illness, on<br />

economic resources and mental illness and on families <strong>of</strong> the mentally ill, on the pr<strong>of</strong>ile<br />

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<strong>of</strong> the mentally ill, on the institution <strong>of</strong> mental <strong>health</strong> <strong>care</strong> and on social factors and<br />

mental illness. It has been found that in spite <strong>of</strong> the fact that there were a number <strong>of</strong><br />

studies on various aspects <strong>of</strong> mental <strong>health</strong>, much more is needed to be done on the<br />

aspect <strong>of</strong> avenues open for the <strong>care</strong> <strong>of</strong> the mentally ill, the problems faced by the families<br />

<strong>of</strong> the mentally ill in the process <strong>of</strong> rehabilitation <strong>of</strong> their family members, and 1he new<br />

trends in the field <strong>of</strong> mental <strong>health</strong> <strong>care</strong>.<br />

Chapter 2, places the problem <strong>of</strong> mental illness in a historical perspective, tracing<br />

back to the treatment <strong>of</strong> the mentally ill during the 17 th century to the present<br />

developments in the <strong>care</strong> <strong>of</strong> the mentally ill, evolution <strong>of</strong> the Indian concept <strong>of</strong> mental<br />

<strong>health</strong>, brief description <strong>of</strong> mental <strong>health</strong> services in India and Sociology <strong>of</strong> <strong>Mental</strong><br />

Disorder. Until the 17 th century, the mentally ill were treated like criminals and they<br />

were isolated from the community. Lunancy was attributed to Gods, the devil and the<br />

moon. In the 18 th century, they were treated as beasts caged. Later, insanity became a<br />

medical domain and the disease model was the preferred <strong>system</strong> for explaining the<br />

lunatic behaviour. In the 19 th century, they were treated in asylums in a more humane<br />

condition. Freud's psychoanalysis marked a great tum in the field <strong>of</strong> mental <strong>health</strong> as he<br />

presented behaVIOur and mental functions as understandable. From then on theories<br />

picked up on life stress, social support, network, etc.<br />

Chapter 3 deals with the <strong>voluntary</strong> sector in mental <strong>health</strong>. In this chapter, the<br />

importance <strong>of</strong> the role <strong>of</strong> <strong>voluntary</strong> <strong>organizations</strong> in the area <strong>of</strong> mental <strong>health</strong> is brought<br />

in giving a brief picture <strong>of</strong> the facilities available in our country and the magnitude <strong>of</strong><br />

mental illness. The aspect <strong>of</strong> voluntarism is traced historically and the various aspects <strong>of</strong><br />

voluntarism, emergence, expansion, close-outs, strengths, weaknesses and their<br />

relationship with the Governmental agencies are dealt with.<br />

Chapter 4, deals with the three cases, the three <strong>voluntary</strong> <strong>organizations</strong> selected as<br />

case studies. This chapter deals in detail the origin, location, objectives, structure,<br />

leadership, staff, services, philosophy, approach, linkages and resources <strong>of</strong> these three<br />

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<strong>organizations</strong>. They are compar~d on all the above aspects and the positive traits <strong>of</strong> each<br />

organization have been highlighted.<br />

Chapter 5 deals with the Patient <strong>care</strong> provided by the three <strong>organizations</strong>. The<br />

chapter deals in detail, the patients <strong>of</strong> the organization, identification <strong>of</strong> the problem <strong>of</strong><br />

the patients, services and therapies, vocational training and rehabilitation The<br />

programmes for the patients are described and the various therapies that are <strong>of</strong>fered by<br />

the three <strong>organizations</strong> are described with the help <strong>of</strong> case studies. The kind <strong>of</strong> patient<br />

<strong>care</strong> provided by the <strong>organizations</strong> depends on the philosophies and objectives <strong>of</strong> the<br />

three <strong>organizations</strong>. The three <strong>organizations</strong> follow a unique pattern <strong>of</strong> their own.<br />

Chapter 6 deals with the involvement <strong>of</strong> the families <strong>of</strong> the patients by the<br />

<strong>organizations</strong>. The chapter deals briefly on the role <strong>of</strong> family as <strong>care</strong> giver, the changing<br />

family <strong>system</strong> and the problems faced by the families <strong>of</strong> the mentally ill. With the help<br />

<strong>of</strong> case studies the chapter illustrates how the <strong>voluntary</strong> <strong>organizations</strong> involve the families<br />

in the process <strong>of</strong> <strong>care</strong> and treatment <strong>of</strong> the ill members.<br />

The <strong>organizations</strong> that were chosen for the case studies were:<br />

1) <strong>Mental</strong> Research Foundation (MRF), Madras<br />

2) Manasa Rehabilitation Centre (MRC), Bangalore<br />

3) Royal Medical Society (RMS), Bangalore<br />

A Brief Summary <strong>of</strong> the Findings<br />

Philosophy and Approach<br />

All the three <strong>organizations</strong> aim at the rehabilitation <strong>of</strong> the mentally ill. Their<br />

approaches differ because <strong>of</strong> the different phIlosophies followed by them. The three<br />

<strong>organizations</strong> work on different philosophies with different approaches. MRF works on<br />

the principle <strong>of</strong> behaviour modification. This approach attempts to change the behaviour<br />

component <strong>of</strong> psychiatric disorders. In order to do this, the patient is encouraged to carry<br />

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out a behaviour that he dislik'!s but which the society approves. This is combined with<br />

that <strong>of</strong> cognitive training that involves a change in their disordered ways <strong>of</strong> thinking.<br />

Cognitive training and behaviour therapy go hand in hand. The therapists follow what is<br />

called habit formation chart listing down the activities for each patient that enables them<br />

to modifyLheir behaviour.<br />

MRC works on the approach <strong>of</strong> transactional analysis. In this approach the<br />

patients are encouraged to relate to one another in a b'fOUP. The half-way home is an<br />

artificial community where one helps the individual to remain a social being by taking<br />

more responsibility for himself and helping others share his feelings keeping in<br />

communication all the time. The community acts as a therapist in helping him find his<br />

own place back in the community. Contingency management is followed to bring<br />

changes in the patients' undesired behaviour. It is based on the principle that if behaviour<br />

persists, it is being reinforced by certain <strong>of</strong> its consequences and if these consequences<br />

can be altered the behaviour should change. Similarly, a desired behaviour is brought<br />

about by way <strong>of</strong> approval and praise. These reinforcements are brought about by<br />

introducing token economy, (Incentives in cash) for desirable behaviours.<br />

RMS works on the phi losophy <strong>of</strong> therapeutic community model. A great stress is<br />

laid on understanding the human personality in <strong>health</strong> and illness from the context <strong>of</strong><br />

cultural and social factors in addition to individual variables. The trans-cultural<br />

differences in phenomenology, course, outcome and treatment <strong>of</strong> mentally ill are<br />

synthesised with the dynamic interaction with cultural factors. Inter-dependence is used<br />

therapeutically to a large extent. The cultural forms <strong>of</strong> dependency and dependability<br />

are made use <strong>of</strong> in an ongoing growth towards autonomy.<br />

MRF's objectives are towards day <strong>care</strong> and long-term rehabilitation. It has a team<br />

<strong>of</strong> psychiatrists working throughout which is lacking in the other two <strong>organizations</strong>.<br />

Their day-to-day activities is more on vocational training and occupational therapy. The<br />

patients are engaged in various activities and the products made by them are sold outside.<br />

This is one <strong>of</strong> the sources <strong>of</strong> funds to the organization.<br />

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In the other two <strong>organizations</strong>, viz., MRC and RMS, the patients are engaged<br />

more on day-to-day routine activities, social skills training and various therapies that aim<br />

at rehabilitating the patients in a short span <strong>of</strong> say, 9 to 12 months. The patients are<br />

engaged in various activities that equip them to get back to their families to lead a normal<br />

life. In both MRC andRMS, there is more stress on social skills training, which are more<br />

useful in their every day life.<br />

MRC depends more on volunteers to run the programmes for the patients. The<br />

regular staff who are present in the organization number only three and every afternoon is<br />

filled with sessions conducted by volunteers. These volunteers are not pr<strong>of</strong>essionals in<br />

the field <strong>of</strong> mental <strong>health</strong> <strong>care</strong> but experts in their own field, viz., drawing, pottery<br />

making, yoga, games, etc. The psychologist and the social workers handle the therapy<br />

sessIOns.<br />

RMS has a very well equipped team <strong>of</strong> psychologist and social workers. This<br />

group is trained in the philosophy <strong>of</strong> therapeutic community. They show real expertise in<br />

handling the patients. Volunteers are also involved in the activities. Mostly they are<br />

given responsibilities related to handling accounts and medicines. The experts handle the<br />

therapies. Every day the statT involve the patients in innovative programmes that<br />

brighten up the patients. Each day is different and one feels no monotony in their work<br />

schedules. Whereas in the other two <strong>organizations</strong>, MRF and MRC, a routine and<br />

monotonous activity takes place every day.<br />

Staff <strong>of</strong> the Organ;wt;ons<br />

The proportion <strong>of</strong> the staff to patients is a very important factor in delivering<br />

proper <strong>care</strong> and treatment to the patients. This proportion is very small in the two<br />

<strong>organizations</strong> namely, MRF and MRC. MRF has the great advantage <strong>of</strong> having five<br />

psychiatrists throughout among its staff. Trained occupational therapists manage the<br />

patients throughout the day. The psychiatrists, psychologists and the social workers<br />

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attend out-patients, register cases, follow-up cases and plan rehabilitation for the patients.<br />

There are no innovative therapies for the patients. Morning till evening they are busy<br />

with the occupational therapy. Interaction <strong>of</strong> the patients and the pr<strong>of</strong>essional is very<br />

minimal. In MRC, the situation is somewhat better, as each day is filled with different<br />

kinds <strong>of</strong> activities. Though the interaction <strong>of</strong> the patients and the staff is better, their<br />

proportion is very less and the staff cut-<strong>of</strong>f themselves from the patients once the<br />

volunteers take charge <strong>of</strong> the afternoon sessions. Participation <strong>of</strong> the staff during the<br />

afternoon sessions is very minimaL Their role is more supervisory than participatory.<br />

The proportion is very well maintained in RMS. There is involvement <strong>of</strong> the staff<br />

in all activities. The staff members share the responsibilities and there is lot <strong>of</strong> variety in<br />

the programmes given to the patients. The therapies are handled by experts. This makes<br />

the sessions very interesting and lively. The mental patients require lot <strong>of</strong> motivation to<br />

be lively participants and the staff members are very successful in bringing out the<br />

congenial atmosphere <strong>of</strong> the patients. There is lot <strong>of</strong> seriousness and sincerity involved<br />

in every programme they undertake. The stalT members meet frequently to assess their<br />

performances.<br />

Structure <strong>of</strong> the Organiuuions<br />

The structure <strong>of</strong> the <strong>organizations</strong> determines to a great extent the facilities<br />

available for the patients. The centres <strong>of</strong> MRF are highly crammed up. The rooms are<br />

very small and the number <strong>of</strong> patients is more. The residential centres are located in the<br />

suburbs in a large compound. However, the rooms allotted for the patients are very small<br />

and congested. They resemble hospital wards.<br />

MRC is housed in one <strong>of</strong> those colonial bungalows. There is a large open space<br />

and a well maintained garden. There are separate buildings for the staff, residents, hostel<br />

and an indoor auditonum. It has also provided living quarters for some staff members.<br />

The patients feel very relaxed and comfortable with the stay. Privacy for the patients is<br />

ensured. The rooms <strong>of</strong> the residents are also very comfortable and spacious.<br />

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All the centres <strong>of</strong>RMS are located in spacious buildings and are away from each<br />

other. In each centre <strong>care</strong> has been taken to provide privacy for both staff and the<br />

patients. The residential homes are very homely with lot <strong>of</strong> space and garden. The day<br />

<strong>care</strong> centre is located in a calm residential area and has lot <strong>of</strong> space and a well maintained<br />

garden. The occupational therapy rooms are very spacious unlike MRF. The staff are<br />

provided with individual rooms that provides lot <strong>of</strong> privacy for the patients and the staff<br />

during counselling sessions. RMS has been very successful in providing satisfactory<br />

accommodation for the patients. The patients feel most <strong>care</strong>d for in this organization.<br />

They are more relaxed and happy. Though MRC has maintained good facilities for the<br />

patients, it has not been very successful with the patients probably because <strong>of</strong> the pattern<br />

<strong>of</strong> therapies and activities followed in the organization.<br />

Patient Care and Family Care<br />

The therapies and approaches followed by the organization are the important<br />

criteria in bringing about positive change in the patients. The three <strong>organizations</strong> differ a<br />

great deal in this aspect. MRF follows a routine schedule. The psychologists work out<br />

on various exercises in the lines <strong>of</strong> behaviour modification. The methods followed are<br />

structured and formal. The social workers do not have a major role to play except for<br />

making family visits and taking case histories. The relationships between the patients<br />

and the pr<strong>of</strong>essionals are very formal. The exercises are those <strong>of</strong> serious psychological<br />

tests. Families are involved in some sessions. Crisis management and coping skills are<br />

taught to the families. The organization has formed a self-help group <strong>of</strong> the patients in<br />

order for them to solve the problems. The model followed is more towards a hospital<br />

kind <strong>of</strong> treatment with more sessions with psychologists and the psychiatrists. The<br />

patients are forced to engage in useful activity throughout the day in one <strong>of</strong> the vocational<br />

activities. Group sessions are very rare and interaction between the pr<strong>of</strong>essional staff and<br />

the patients are very minimal. Patient <strong>care</strong> is on long-term basis both at the day <strong>care</strong><br />

centre and at the residential centres.<br />

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MRC <strong>of</strong>fers a more informal atmosphere than MRF. The patients feel very free to<br />

communicate. The organization's stress is more on communication <strong>of</strong> the patients in a<br />

group. Most <strong>of</strong> the programmes conducted aim at achieving self-expression <strong>of</strong> the<br />

patients. In all their exercises, patients are encouraged to participate more in the group.<br />

The stay <strong>of</strong> the patients is for a short term <strong>of</strong> one year. The objective <strong>of</strong> the organization<br />

is to modify their behaviour in order for them to get back to the families. The interaction<br />

between the staff and the patients is somewhat better compared to MRF. The patients are<br />

involved in a learning process. Family sessions are conducted once a month. All the<br />

families meet and air out their problems with one another. This exercise helps the<br />

families to improve their coping skills. Since the organization's objectives are short-term<br />

<strong>care</strong>, it aims at successful rehabilitation <strong>of</strong> the patients back into their families. As such,<br />

there is regular review <strong>of</strong> the progress <strong>of</strong> the patients. Job placement is not attempted at<br />

by the organization and as such vocational training and occupational therapy do not find<br />

much importance in the activities <strong>of</strong> the organization. Patient <strong>care</strong> is limited to a short<br />

period.<br />

RMS otTers the most informal atmosphere for the patients that attract more<br />

families and patients from all over the country. Their approach to patient <strong>care</strong> is highly<br />

practical and natural. They emphasise on community living where the roles <strong>of</strong> the<br />

patients and the staff are one <strong>of</strong> sharing <strong>of</strong> responsibilities <strong>of</strong> running the community.<br />

Patient <strong>care</strong> is focused on training the patients on every day activities, which is expected<br />

to equip them in managing themselves independently once they get back home. The<br />

organization stresses on autonomy <strong>of</strong> the individuals, which is very essential for the<br />

patients. The families are made to participate in every programme, be it an ordinary<br />

household activity or a therapeutic session. The whole community <strong>of</strong> staff, patients and<br />

families participate in the activities. In this manner, the organization staff make the<br />

families understand the objectives <strong>of</strong> various therapies. The families are a very satisfied<br />

lot as far as the organization's attempts are concerned. Admissions to patients are<br />

restricted, as the staff are <strong>care</strong>ful about the number <strong>of</strong> patients to be treated. Since the<br />

programmes are focused on intensive training to the patients, they prefer a small number.<br />

This reflects on the quality <strong>of</strong> <strong>care</strong> provided by the organization. Patient <strong>care</strong> is limited to<br />

242


nine months in the half-way home. During these nine months, the patients are trained<br />

with the objective <strong>of</strong> returning back to the families. They are sent back home once in<br />

three months to see the changes and improvements. The families are involved at all the<br />

stages and a feedback is got from them frequently to assess their changes. The last three<br />

months <strong>of</strong> the stay <strong>of</strong> the patients is more focussed on independent management <strong>of</strong> the<br />

self. Every three months in the organization is like graduation for the patients. The staff<br />

orient the patients and the families on the philosophy <strong>of</strong> therapeutic community. The<br />

combined efforts <strong>of</strong> the staff, patients and families have ended in many success stories <strong>of</strong><br />

the patients.<br />

The three <strong>organizations</strong> have successfully utilised the resources <strong>of</strong> the family in<br />

the process <strong>of</strong> <strong>care</strong> and treatment to the mentally ill individuals. At MRF, community<br />

<strong>care</strong> programme has been introduced in the rural areas. Voluntary <strong>organizations</strong> have<br />

tapped on the societal resources <strong>of</strong> family and community in caring for the mentally ill.<br />

VOs have thus proved to be an extension service <strong>of</strong> the Government agencies. They<br />

begin their services where the governmental <strong>organizations</strong> end. The aim <strong>of</strong> these<br />

<strong>organizations</strong> in utilising the societal resources is not the end <strong>of</strong> cure but rather an<br />

ongoing and long-term management <strong>of</strong> the society towards the <strong>care</strong> <strong>of</strong> the mentally ill.<br />

These programmes provide the mentally ill with support <strong>system</strong>s to cope with daily life,<br />

which is cost effective to the traditional model <strong>of</strong> institutionalisation and after <strong>care</strong>. They<br />

facilitate the affected person to live in freedom in the community. Thus, therapeutic<br />

intervention <strong>of</strong> the <strong>voluntary</strong> <strong>organizations</strong> in the family milieu accompanied by<br />

community support goes a long way in preventing social deterioration that is so <strong>of</strong>ten<br />

concomitant <strong>of</strong> the chronically mentally ill.<br />

Problems and suggestions<br />

Voluntary <strong>organizations</strong> need to be very focussed in their objectives and not be<br />

too ambitious for it may dilute their objectives. More funding should not lead to<br />

widening <strong>of</strong> objectives, rather it should be used to focus the objectives sharply.<br />

Expansion should be made with caution in order to maintain quality <strong>of</strong> the services.<br />

Conflict <strong>of</strong> interests among staff is inevitable in any organization. Most <strong>of</strong> the time, this<br />

243


leads to mistakes, which warrants correction. Rehabilitating schizophrenic patients is a<br />

very complex task. To start with, rehabilitation should be attempted for a few patients<br />

Attempting with a large number is a very cumbersome task and leads to complex<br />

problems.<br />

VOs have a very unique problem <strong>of</strong> staff turnover. They cannot hold on to their<br />

staff for very long. Male staff discontinue their jobs to switch over to better remunerative<br />

jobs. Only those for whom earning from VOs is a secondary means <strong>of</strong> livelihood,<br />

continue to hold on to their jobs, as it is mostly secondary means <strong>of</strong> livelihood. More<br />

volunteers should be trained and involved in the programmes for the mentally ill under<br />

the supervision <strong>of</strong> the pr<strong>of</strong>essionals. Those who are willing to work committedly and<br />

sincerely and for whom income is not a necessity should be encouraged and trained by<br />

the VOs to overcome the problem <strong>of</strong> staff turnover. But pr<strong>of</strong>essionals have to be paid<br />

well so that they stay on with the organization. May be employing a few pr<strong>of</strong>essionals on<br />

high salaries and more <strong>of</strong> volunteers could help the organization to achieve a good<br />

balance <strong>of</strong> pr<strong>of</strong>essional expertise and community involvement.<br />

VOs have a good team <strong>of</strong> pr<strong>of</strong>essionals, dedicated and efficient in handling<br />

matters. This team could be more involved in educating the masses on mental illness<br />

with a focus on removing the stigma attached to the illness. Networking <strong>of</strong> all the<br />

<strong>voluntary</strong> <strong>organizations</strong> and forming more self-help groups consisting <strong>of</strong> family members<br />

and other community members would go a long way in helping the society deal with this<br />

problem. Job centres could be started wherein the patients could be rehabilitated. This<br />

would help the patients in being self-reliant and also ensure them <strong>of</strong> a pr<strong>of</strong>essional <strong>care</strong> in<br />

their future. The training programmes could include some programmes for the general<br />

mass and interested persons could be trained as volunteers on symptoms <strong>of</strong> mental illness<br />

and also coping skills. This would help in providing a social support <strong>system</strong> for the<br />

mentally ill. This programme could also be extended to the rural areas where there has<br />

been a lag in psychiatric services.<br />

244


Contribution <strong>of</strong>Tbis Study to <strong>Mental</strong> Healtb Care<br />

This study highlights the importance <strong>of</strong> a multi-disciplinary approach in the field<br />

<strong>of</strong> mental <strong>health</strong> <strong>care</strong>. Care, treatment and rehabilitation <strong>of</strong> the mentally ill rests not in<br />

the hands <strong>of</strong> the psychiatrists alone but depends on different pr<strong>of</strong>essionals, the family<br />

members and the community. Every individual in the society has a role to play in<br />

making life better for the mentally ill.<br />

Voluntary <strong>organizations</strong> have successfully tapped the various societal resources to<br />

cater to the needs <strong>of</strong> the mentally ill. Cure <strong>of</strong> the mentally ill depends not just on<br />

medicines but something beyond that. The active involvement <strong>of</strong> the social workers,<br />

sociologists, anthropologists in the field in trying to probe into the attitudes <strong>of</strong> the<br />

community towards the mentally ill and improving the coping skills <strong>of</strong> the families go a<br />

long way to help the mentally ill. The inclusion <strong>of</strong> experts in the fields <strong>of</strong> arts and crafts<br />

not only helps III engaging the patients in useful activities but also imbibes responsibility<br />

in the experts to share the burden <strong>of</strong> the society to take <strong>care</strong> <strong>of</strong> the mentally ill. The<br />

inclusion <strong>of</strong> the volunteers in the programmes is a positive sign towards more<br />

participation <strong>of</strong> the community members in the <strong>care</strong> <strong>of</strong> the mentally ill. Family based<br />

<strong>care</strong> and community based rehabilitation is the ultimate solution to the mentally ill which<br />

is cost-effective and on a long term basis.<br />

Limitations<br />

The study is confined only to the three <strong>voluntary</strong> <strong>organizations</strong>. The study could<br />

have included more <strong>voluntary</strong> <strong>organizations</strong>, but due to time and other constraint only<br />

three <strong>organizations</strong> have been studied. The subject <strong>of</strong> traditional methods <strong>of</strong> healing have<br />

not been covered in the study, though reference has been made m the chapters. This is a<br />

vast subject and can itself become an independent study. Similarly the<br />

pr<strong>of</strong>essionalisation <strong>of</strong> the mental <strong>health</strong> <strong>care</strong> staff has not been covered in detail as it does<br />

not fall under the objectives <strong>of</strong> the study. However, it is another interesting subject that<br />

requires special attention.<br />

245


Major findings<br />

1. In all the three cases one can see a slow shift from pure medical model <strong>of</strong> <strong>care</strong> to a<br />

social model <strong>of</strong> <strong>care</strong>. A good mixture <strong>of</strong> both determines the success <strong>of</strong> the<br />

organization.<br />

2. There is a significant paradigm shift from pure medical based techniques to<br />

community based and family based techniques.<br />

3: Among the three <strong>organizations</strong> MRF and RMS have successfully managed to sustain<br />

their activities and also expand with their own resources and partly by external<br />

funding. Whereas, MRC has not been able to expand much on its activities mainly<br />

due to its inability to mange its own resources.<br />

4. The <strong>organizations</strong> are predominated by female staff and female volunteers.<br />

5. The staff structure and the infrastructure facilities in the <strong>organizations</strong> determine to a<br />

great extent the quality <strong>of</strong> <strong>care</strong> delivered to the mentally ill.<br />

6. The benefiCiaries <strong>of</strong> the organization are <strong>of</strong> different economic classes and hail from<br />

both urban and rural areas.<br />

7. The three <strong>voluntary</strong> <strong>organizations</strong> playa great role in complementing the services <strong>of</strong><br />

the Government. Though their number <strong>of</strong> beneficiaries is small, their services are<br />

highly significant.<br />

8. The models followed by the three <strong>organizations</strong> differ. Each one has been successful<br />

in achieving their objectives.<br />

9. MRF with its highly pr<strong>of</strong>essional staff has been highly successful in long term<br />

rehabilitation <strong>of</strong> the patients and has also in a wide coverage <strong>of</strong> activities and<br />

beneficiaries.<br />

10. MRC has been successful in achieving short-term <strong>care</strong> for the patients and successful<br />

rehabilitation <strong>of</strong> the patients back into their families.<br />

II. RMS is the most successful <strong>of</strong> the three in all aspects <strong>of</strong> patient <strong>care</strong>. Due to its<br />

success in rehabilitation, it has now expanded its various activities by starting day<br />

<strong>care</strong> centre, group homes for rehabilitated patients who manage themselves alone in<br />

the lines <strong>of</strong> long term rehabilitation and a post graduate course on psychiatric<br />

rehabilitation.<br />

246


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