thank you! - Reflex Sympathetic Dystrophy Association of America

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RSDSANEWSRSDSANEWSRSDSANEWS Minneapolis Walk for a Cure On October 29th, approximately 50 people met at 7:00 am in the Macy’s Court at the famous Mall of America in Minneapolis for the 2007 RSD Awareness Walk for a Cure. Linda Loudermill, Barbara Van Keuren, and Bonnie Scherer organized the walk, which raised more than $10,000. Brian Hicks with his wife Teresa and his sons Joel (on the left), and Justin during the New York Marathon in November. RSDer Member of the New York Marathon Freedom Team Brian Hicks, who has suffered with CRPS for nearly 10 years, was invited to be a member of the Freedom Team of Wounded Veterans and participate using a hand cycle in the New York Marathon on November 4th. Veterans were flown to New York from all over the country to participate in the marathon with the Freedom Team. Brian finished the marathon in 2 hours and 26 minutes. The Freedom Team is a part of Achilles, an organization that supports athletes with disabilities. Brian learned about the Freedom Team through the RSDSA website’s information on the Achilles Walks. In fact, he was a medalist at the Achilles Walk in Atlanta last June. The Freedom Team consists of veterans who range from those who were injured in Iraq just a few months ago to those wounded in Vietnam. Brian was diagnosed with CRPS several years ago, but it had gone into remission. It returned with a vengeance after he was involved in a HumVee accident in Iraq. He was ultimately discharged and is currently on disability. Brian said the New York event was wonderful and as an added bonus, Achilles gave him the hand cycle he used for “as long as he wants it.” He plans to participate in the Miami Marathon at the end of January and will surely be taking part in the Atlanta Achilles Run in 2008. Dr. Peter Moskovitz presents Chan Kim, MD, PhD, President of the Korean Pain Society with a copy of “Living With RSDS”, which he co-authored with Linda Lang. People who participated in the Minneapolis Walk for a Cure and Awareness raised more than $10,000 for research. RSDSA Honored by Korean CRPS Patients Association In late November, Jim Broatch, RSDSA executive director and Peter Moskovitz, MD, a member of the RSDSA Board of Directors, were the guests of the Korean CRPS Patients Association at the annual meeting of the Korean Pain Society in Seoul. Both gentlemen gave presentations to the Pain Society. In addition, they met with a group of pain practitioners and principal organizers of the Pain Society as well as representatives of various pharmaceutical and medical device companies. 4 RSDSA Review: Vol. 20, Issue 3
RSDSANEWSRSDSANEWSRSDSANEWS Rock Out To Knock Out RSD “Imagine a day, an hour, or even a minute without pain; that is what we are fighting so hard for...” This statement is true for CRPS sufferers everywhere, but Ashley Goodall has taken her fight into another direction. In 2006, Ashley founded ‘Rock Out To Knock Out RSDS, Inc.,’ a non-profit organization meant to raise awareness and money for CRPS research through concerts with local bands, drawings, and donations. Dr. Joshua Prager receives the Clinical Excellence Award from Jim Broatch. 2007 Bounty of Hope On November 14th, a little more than 200 people gathered at the Union League Club in New York City for the 9th Annual Bounty of Hope Silent Auction and Fundraising Dinner. Joshua Prager, MD, MS, the director of the Center for Rehabilitation of Pain Syndromes (CRPS) at UCLA Medical Plaza, was the keynote speaker and recipient of a Clinical Excellence Award. Next year’s dinner is scheduled for November 12, 2008. Guests at the 2007 Bounty of Hope check out the silent auction items. Daria and Paul Charlesworth chat with Barbara Schaffer during the auction. The 16-year-old high school student from Bakersfield, California was diagnosed with CRPS when she was 8. Before Ashley was diagnosed, she spent 7 years visiting over 10 doctors, and almost had her arm amputated due to a misdiagnosis. At one point, the pain was so excruciating that she stopped going to school. Some people even started to think she was making up her syndrome, increasing the frustration of Ashley’s loved ones. Although the idea had been several years in the making, Ashley raised $5000 at the first Rock Out concert last October. This year she raised $3000 even before the concert in San Luis Obispo, from people who just wanted to help Ashley and her cause. Half of the proceeds go towards future concerts, such as the next one in Los Angeles. Money raised by Rock Out in the past has gone towards a RSDSA walk, medical equipment for a CRPS patient, research for the Pediatric Pain Program at the University of California Los Angeles Mattel Children’s Hospital, and raising awareness. For more information on Rock Out To Knock Out RSDS, Inc., visit www.tkorsds.org. n 5
Page 1 and 2: Volume 20, Issue 3 R e f l e x S y
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Page 7 and 8: fere with any further treatments. N
Page 9 and 10: My relationship with RSD has change
Page 11 and 12: less distress. A patient may habitu
Page 13 and 14: Conclusions These data suggest that
Page 15 and 16: Since hyperalgesia is an important
Page 17 and 18: call them “after thinkers.” Aft
Page 19 and 20: $1,500 and Above Ronald P. Goldfade

thank you! - Reflex Sympathetic Dystrophy Association of America

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