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PEPA Summer 2012-13 Newsletter - Queensland Health

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Program of<br />

Experience in the<br />

Palliative Approach<br />

Funded by the Australian Government Department of <strong>Health</strong> and Ageing<br />

NEWSLETTER SUMMER <strong>2012</strong>-<strong>13</strong><br />

Inside this issue:<br />

National News:<br />

• Update<br />

• Tracking<br />

Achievements<br />

• Making a<br />

Difference<br />

• Staffing News<br />

Educational<br />

Component:<br />

• Issues in Pain<br />

Management<br />

The Program of Experience in the Palliative Approach (<strong>PEPA</strong>) provides an opportunity for<br />

health, aged and community care professionals working in primary care or non-specialist<br />

palliative care settings to improve confidence and develop skills in working with people<br />

with palliative care needs. <strong>PEPA</strong> offers funded workforce placements in palliative care<br />

specialist services (host sites). These have three components:<br />

• A supervised clinical placement in a metropolitan or larger service (inpatient,<br />

community and/or hospital based consultancy)<br />

• Integration of learning into the participant’s practice<br />

• Post-placement support<br />

<strong>PEPA</strong> also offers tailored workshops. Please access the <strong>PEPA</strong> webpage for further<br />

details: http://www.pepaeducation.com<br />

The Program of Experience in the Palliative Approach is an initiative of the Australian<br />

Government Department of <strong>Health</strong> and Ageing.<br />

Spotlight on<br />

a Host site:<br />

• J.W. Whittle<br />

Palliative Care<br />

Unit, Hobart<br />

Participant<br />

Reflection<br />

Sector Links<br />

State News<br />

• NT<br />

• ACT<br />

• QLD<br />

• TAS<br />

• VIC<br />

• NSW<br />

• WA<br />

• SA<br />

Update from the National Team:<br />

As we enter into the new year it is great to<br />

reflect on the achievements that have been<br />

made over the past 12 months. Following<br />

the appointment of our national clinical<br />

educator and senior research officers<br />

we released a number of new<br />

resources (including our nursing<br />

and allied health learning guide and<br />

online module), we started<br />

implementing a range of<br />

quality improvement initiatives<br />

(developing the capacity<br />

of mentors, amplifying<br />

our work integrated<br />

learning component<br />

and refining our<br />

Reverse <strong>PEPA</strong> model),<br />

we renewed our focus<br />

on Aged Care and have been working on<br />

publishing more of our program outcomes.<br />

Our Indigenous Reference Group has<br />

expanded to include a greater representation<br />

from across the spectrum of Indigenous health,<br />

policy and workforce sectors and we have engaged<br />

Aboriginal Project Officers and/or consultants in<br />

all states and territories. Participants who have<br />

undertaken <strong>PEPA</strong> placements continue to report<br />

improved confidence, increased knowledge<br />

and expanded skills to deliver a palliative<br />

approach to care.<br />

I would also like to take this opportunity<br />

to thank all of our wonderful supporters,<br />

participants and host site mentors for<br />

your continuing efforts, you each<br />

make a significant contribution<br />

to the success of the program.<br />

It was great catching up with<br />

some of you at the PCNA<br />

conference and at our<br />

post-conference workshop,<br />

‘Facilitating Learning and<br />

Change Management in<br />

Palliative Care Settings’ which was<br />

held on the 12 th December.<br />

Finally, we hope you all had a fabulous<br />

Christmas and wish you all the best for a happy<br />

and fulfilling New Year!!


Tracking Achievements<br />

Table 1: Placements completed<br />

(1 July–30 November <strong>2012</strong>)<br />

Registered Nirse (n=71)<br />

Allied <strong>Health</strong> (n=12)<br />

Aboriginal and Torres Strait<br />

Islander <strong>Health</strong> and Community<br />

Workers (n=22)<br />

GPs and Medical<br />

Practitioners (n=20)<br />

Assistants in Nursing/<br />

Care workers (n=16)<br />

14%<br />

16%<br />

11%<br />

9%<br />

50%<br />

Table 2: Workshops completed<br />

(1 July–30 November <strong>2012</strong>)<br />

25<br />

20<br />

15<br />

10<br />

5<br />

0<br />

Palliative approach Indigenous COP Culture and diversity<br />

2<br />

Making a Difference<br />

Evaluation responses from the 1 July <strong>2012</strong> to 30 November<br />

<strong>2012</strong> indicate that <strong>PEPA</strong> keeps supporting participants to<br />

increase their knowledge and expand their skills. Participants<br />

have reported undertaking the following activities after their<br />

placements:<br />

Knowledge Sharing<br />

• Being able to share knowledge with the co-workers each<br />

day and implement the new goals of care.<br />

• Discussing in-service with staff about <strong>PEPA</strong> program.<br />

Staff Training<br />

• In-service education and assessing the palliative care<br />

material.<br />

• Providing informal symptom management education.<br />

• Organising palliative care medication education session.<br />

Changes in Facility<br />

• Providing better bowel management.<br />

• Implementing appropriate mouth care for the residents.<br />

• Early referral to the palliative care services.<br />

• Adopting a new care plan with details for all staff.<br />

Recent feedback from participants include:<br />

• [My] <strong>PEPA</strong> experience broadened my way of working with<br />

palliative patients. I have grown as a person and [as] a<br />

professional.<br />

• I had a fantastic experience at [X host site]. I learnt so much<br />

on the role of dentition in palliative care and my confidence<br />

has increased a lot.<br />

• <strong>PEPA</strong> made me look at the small things we do, the basic<br />

care provided must always be of a high standard, different<br />

ways of doing things.<br />

• I was warmly welcomed by all. All host sites conveyed<br />

a sense of professionalism that focused all efforts and<br />

resources on positive client outcomes. I left inspired and<br />

motivated.<br />

Staffing News<br />

We would like to welcome the two newest members to our<br />

<strong>PEPA</strong> team, Sally Fitzgerald & Carol Muthunesan. Sally is the<br />

new consultant for the Aboriginal and Torres Strait Islander<br />

component of <strong>PEPA</strong> in the ACT. She currently works at Calvary<br />

<strong>Health</strong> Care ACT in the role of Aboriginal and Torres Strait<br />

Islander Liaison Officer and is looking forward to working with<br />

<strong>PEPA</strong> to strengthen the delivery of palliative care to Aboriginal<br />

and Torres Strait Islander communities in ACT. Carol joined<br />

the NSW <strong>PEPA</strong> team on Monday 10th December <strong>2012</strong>.<br />

Carol is an RN (graduated 2010) and has previously worked<br />

as an Aboriginal Hep C Service Access Coordinator, an<br />

undergraduate nursing cadet (AIN) and in a number of roles<br />

with the Department of Ageing Disabilities and Homecare<br />

Service of NSW (DADHC).<br />

EDUCATIONAL COMPONENT:<br />

Living well until the end<br />

Excerpt taken from the CareSearch Residential Aged<br />

Care Hub (www.caresearch.com.au)<br />

People living in Residential Aged Care today have higher levels<br />

of disability and more complex care needs than in the past.<br />

Many residents are living with dementia, organ failure or general<br />

frailty. Their dying may be a slow process extending over<br />

months or even years.<br />

Quality care for these residents is more than good symptom<br />

control and emotional support. It is about assisting residents<br />

to live well and to maintain self-determination, relationships<br />

and social connections as their dependence on others<br />

increases. It is also about supporting the families of residents.<br />

The World <strong>Health</strong> Organization has acknowledged the needs<br />

of a rapidly ageing population. Their Active Ageing policy<br />

Framework recognises the rights of all people as they age to<br />

“independence, participation, dignity, care and self-fulfilment”.<br />

The active refers to “continuing participation in social, economic,<br />

cultural, spiritual and civic affairs”. [1]


Researchers have used the active ageing framework to describe<br />

determinants of quality of life for people living in RAC. In addition<br />

to the WHO criteria, they found that meaningful leisure, having<br />

control over their own life and care and participating in the<br />

organisation and function were important to residents’ quality of<br />

life. [2]<br />

Providing an environment where people with Huntington’s<br />

disease can maintain maximum independence and control over<br />

their lives is especially challenging. Dellafield and Ferrini report on<br />

how one nursing home supported residents with Huntington’s<br />

disease to live to their potential and to die with dignity. [3]<br />

A systematic review of qualitative research on quality of life in<br />

RAC identified factors residents say are important to their quality<br />

of life. They are:<br />

• Being able to accept and adapt to living in RAC<br />

• Having and maintaining relationships with other residents, staff<br />

and with their family and friends<br />

• A home-like environment, privacy and a sense of their own<br />

space<br />

• Competent carer’s who provided individualised care without<br />

rushing. [4]<br />

References<br />

1. World <strong>Health</strong> Organisation (WHO). Ageing and life course - Active ageing: A policy<br />

framework. WHO; 2002 April [cited <strong>2012</strong> Sep 12].<br />

2. Van Malderen L, Mets T, De Vriendt P, Gorus E. The Active Ageing-concept translated to the<br />

residential long-term care. Qual Life Res. <strong>2012</strong> Jun 8. [Epub ahead of print].<br />

3. Dellefield ME, Ferrini R. Promoting Excellence in End-of-Life Care: lessons learned from<br />

a cohort of nursing home residents with advanced Huntington disease. J Neurosci Nurs.<br />

2011 Aug;43(4):186-92.<br />

4. Bradshaw SA, Playford ED, Riazi A. Living well in care homes: a systematic review of<br />

qualitative studies. Age Ageing. <strong>2012</strong> Jul;41(4):429-40. Epub <strong>2012</strong> Jun 7.<br />

Page created 10 October <strong>2012</strong><br />

This article has been reproduced with permission from the<br />

CareSearch Palliative Care Knowledge Network. The full text is<br />

available at: http://www.caresearch.com.au/caresearch/<br />

tabid/2516/Default.aspx. Information is for education use only<br />

and is provided in good faith without any express or implied<br />

warranty. All practitioners need to use sound clinical judgement<br />

in individual situations.<br />

Spotlight on a Host site<br />

J.W. Whittle Palliative Care Unit, Hobart<br />

The J W Whittle Palliative Care Unit (Whittle Unit) is a 10-bed<br />

Hospice in Hobart, Tasmania which provides a comfortable<br />

environment for patients, family and friends who need to be<br />

cared for in a specialist Palliative Care Setting. The service is<br />

able to provide respite, symptom management and terminal<br />

care. Most people are admitted to the Unit with cancer as their<br />

principle diagnosis, but care is also provided for people with nonmalignant,<br />

terminal conditions such as end stage heart or lung<br />

failure and neurodegenerative illnesses.<br />

Whittle Unit is made up of a strong multidisciplinary team who<br />

meet weekly to review clients care and are also available at any<br />

time to provide specialist palliative care advice. The team includes<br />

nursing and medical staff, a Social Worker, a Music Therapist,<br />

a Pastoral Care Worker and a dedicated band of Hospice<br />

Volunteers. The nursing staff work closely together and are<br />

SECTOR LINKS:<br />

The National Palliative Care Program: The Australian<br />

Government provides support for people with a life-limiting<br />

illness through the National Palliative Care Program -<br />

http://www.health.gov.au/palliativecare.<br />

CareSearch: The CareSearch palliative care knowledge<br />

network is an online resource consolidating evidencebased<br />

and quality information for various groups within<br />

the palliative care community - http://www.caresearch.<br />

com.au.<br />

Palliative Care Australia: PCA works to address national<br />

palliative care issues, represent the area to the Federal<br />

Government and national media, and acts for the sector<br />

when dealing with other national peak bodies and<br />

professional organisations - http://www.palliativecare.<br />

org.au/.<br />

constantly reviewing patient needs and formalise this process<br />

with the use of a newly devised clinical assessment form. Part of<br />

the review process is discharge planning which will assist in for<br />

providing comprehensive referrals to Primary <strong>Health</strong> Providers<br />

who will be providing ongoing care to the patient when they go<br />

home. Staff resilience and satisfaction is maintained through<br />

ensuring the best possible care to those who are dying and<br />

to see that family and friends are well prepared and have felt<br />

included in their loved one’s journey.<br />

Whittle Unit takes pride in having a continuous quality review<br />

process to ensure that the unit is able to provide specialist care<br />

in comfortable surroundings. One quality improvement approach<br />

found the Unit engaging with the community and working with<br />

some local quilting groups. The response was overwhelming<br />

and we now have over 50 quilts which are used for patients’<br />

beds and to keep warm when sitting in armchairs and outside<br />

in the courtyard. This has enhanced the feeling of warmth and<br />

wellbeing for patients, family, friends and staff.<br />

Another project which has been implemented on the Unit is a<br />

bereavement support group called “Hearts and Hands”. This<br />

group was formed to provide comfort and support for bereaved<br />

family members who have been a part of the Unit and involves<br />

weekly craft sessions and companionship facilitated by the<br />

Social Worker and Hospice Volunteers. Craft items are then<br />

placed about the Unit for everyone to enjoy and in the lead up<br />

to Christmas the group are busily producing beautiful Christmas<br />

decorations.<br />

3


STATENEWS<br />

4<br />

<strong>PEPA</strong> SA: Janine Brett<br />

In the few months since the Spring <strong>Newsletter</strong>, South Australia<br />

has successfully completed placements, post placement<br />

workshops and forums. Successful placements have included<br />

General Practitioners, RNs, ENs, Aboriginal <strong>Health</strong> Workers,<br />

Aged Care Workers and Allied <strong>Health</strong> Professionals.<br />

Culturally and Linguistically Diverse (CaLD) Aged Care<br />

workshops have been held in Mt Gambier in October and the<br />

Adelaide metro in November. Attendees at the Mt Gambier<br />

workshop included a Pharmacist, GP, Social Worker, RNs, ENs<br />

and Aged Care Professionals reinforcing the need for palliative<br />

care education across this spectrum (see photo below).<br />

A <strong>PEPA</strong> multidisciplinary Aged Care workshop<br />

The following workshops have also been held:<br />

• Port Pirie at the beginning of November for Speech<br />

Pathologists with Megan Hanley from Tasmania presenting<br />

via Video Link<br />

• Nunkawarrin Yunti in Adelaide Metro area on Palliative Care<br />

– An Aboriginal perspective. Our thanks go to Auntie Irene<br />

for doing the smoking ceremony and her involvement with<br />

the workshop (see photo below).<br />

Auntie Irene conducting a smoking ceremony<br />

at a <strong>PEPA</strong> workshop<br />

We are currently working<br />

on our program for the<br />

January – June 20<strong>13</strong> period<br />

which is looking to be very<br />

busy. Planning is underway<br />

for workshops to be held<br />

in Victor Harbor, Ceduna,<br />

Whyalla and Port Augusta.<br />

<strong>PEPA</strong> South Australia would<br />

like to extend to all of our readers best wishes for 20<strong>13</strong>.<br />

For further enquiries regarding <strong>PEPA</strong> in South Australia please<br />

contact jbrett@pallcare.asn.au or 08 82914156.<br />

<strong>PEPA</strong> NT: Cindy Paardekooper<br />

Northern Territory- Cindy Paardekooper<br />

We are almost half way through this round of <strong>PEPA</strong> 2011-2014<br />

and are showing great results from clinical placements and the<br />

Community Outreach Program activities.<br />

We have embraced the new relationships gained with<br />

stakeholders of the Northern Territory and continue to meet<br />

specific educational demand of the staff of those organisations.<br />

Interactive workshops have been delivered to Alice Springs<br />

and Darwin in this period resulting in support and increased<br />

confidence to the various agencies that continue to assist in<br />

the delivery of quality end of life care to many Territorians.<br />

Recently the NT <strong>PEPA</strong> manager and Aboriginal Educator<br />

co-presented at two Indigenous-focused interstate<br />

conferences speaking about the importance of ‘Returning to<br />

Country’ for many Aboriginal patients at end of life to finish up.<br />

Firstly, we presented to delegates that attended the Rural<br />

<strong>Health</strong> West Aboriginal <strong>Health</strong> Conference in Perth. In closing<br />

of the conference a highlight was the inspirational Deborah<br />

Cheetam the first indigenous soprano opera singer, her voice<br />

was so powerful and continues to linger in our minds.<br />

Secondly was the International Network of<br />

<strong>Health</strong> and Development (INIHKD) Conference<br />

in Brisbane. Along with Darryl and Natasha<br />

presentation on <strong>PEPA</strong> We presented<br />

“Returning to Country – The direct result of<br />

Deborah Cheetam the Program of Experience in the Palliative<br />

Approach in the Northern Territory. Our<br />

presentations saw much delegate interest in the topic and<br />

the importance reflected by other Indigenous peoples such<br />

as the Maoris of New Zealand and the First Nation peoples of<br />

American Countries. It was interesting to hear of the diversities,<br />

similarities, challenges and plans for ways forward in the<br />

Indigenous Palliative Care International Arena. We found it<br />

most valuable and exhilarating in the cultural exchange and<br />

sharing of dances and songs that were held at the delegate’s<br />

conference dinner.<br />

Community Outreach Program<br />

– Beverley Derschow<br />

Thankyou for the warm welcome to my position of <strong>PEPA</strong><br />

Aboriginal Education Officer from Cindy Paardekooper NT <strong>PEPA</strong><br />

Manager and the National <strong>PEPA</strong> team. I am a descendant<br />

of the Martu Western Desert people. I come from a Western<br />

Australia Enrolled Nurse background and I have lived in Darwin


Presenters from the INIHDK<br />

conference, Brisbane<br />

Congress Group<br />

for 28 years. My experience working as an Aboriginal <strong>Health</strong><br />

Worker with the Northern Territory Palliative Care Service for <strong>13</strong><br />

years has made for a much smoother transition to the <strong>PEPA</strong><br />

Aboriginal <strong>Health</strong> Worker Education Officer’s role.<br />

In August, as part of my orientation and with support of Cindy,<br />

due to cancellation of planned Mutitjulu workshop I was able<br />

to capitalise on Central Australia visit through networking<br />

and consultations with stakeholders of government and non<br />

government Service Providers.<br />

In October I was able to facilitate two workshops for the two<br />

main Aboriginal Community Services, one for Tangentyere<br />

Aboriginal Council, which targeted their Aged Care Community<br />

service. At the request of the service and in keeping with cultural<br />

protocol, we were able to include two concurrent gender<br />

sessions which proved to be well received by participants.<br />

Second workshop held was for Central Australian Aboriginal<br />

Congress and their Aboriginal <strong>Health</strong> Professional Trainees. This<br />

workshop also was well received with good interaction between<br />

presenters and participants which is important with establishing<br />

good communication, building of relationships, understanding<br />

of services available, accessing Palliative Care Service and<br />

talking about Palliative Care which impacts on good outcomes<br />

for clients who use their service.<br />

Members of Central Palliative Care Team Jo Rhodes Clinical<br />

Nurse Manager presented on their service. A highlight was<br />

the guest speakers Fiona Haddon and Gerard Waterford from<br />

Congress Social & Emotional Wellbeing who presented on<br />

their service, what is counselling and practical exercises which<br />

could be done at home to manage own triggers. David Burgess<br />

Palliative Care Pastoral Care Worker presented on Self Care and<br />

Mindfulness.<br />

Consultations were held in September with Katherine regional<br />

government and non government services has resulted in<br />

further interest and requests for Community Outreach Program<br />

Workshops which we plan to facilitate in beginning of 20<strong>13</strong>.<br />

International Network of Indigenous <strong>Health</strong> Knowledge<br />

and Development (INIHKD) Conference held in Brisbane in<br />

September was a great opportunity for me to meet some<br />

members of the <strong>PEPA</strong> team.<br />

I have thoroughly enjoyed my time to date and look forward to<br />

the rest of the 22 months supporting the high standard of the<br />

NT <strong>PEPA</strong> Program as maintained by Cindy Paardekooper <strong>PEPA</strong><br />

Manager.<br />

Finally and most importantly on behalf of the NT <strong>PEPA</strong> Program<br />

we hope everyone had a wonderful Christmas and we wish you<br />

all a Happy and Safe New Year.<br />

<strong>PEPA</strong> ACT: Sue Turner<br />

It is with pleasure that I introduce Sally Fitzgerald. Sally has<br />

graciously accepted the position of Aboriginal and Torres Strait<br />

Islander Consultant for ACT <strong>PEPA</strong>. Together we look forward to<br />

increasing promotion of <strong>PEPA</strong> to the indigenous health workers<br />

within the region.<br />

<strong>2012</strong> has resulted in fabulous outcomes for palliative care<br />

education across the ACT with over 550 participants<br />

attending a variety of educational opportunities, in the form of<br />

placements, workshops and post placement support activities.<br />

Twenty-nine health professionals have completed placements<br />

in <strong>2012</strong>. Prospective participants interested in a placement<br />

are strongly encouraged to submit an application to avoid any<br />

disappointment. ACT is particularly looking for GPs, Aboriginal<br />

or Torres Strait Islander health workers, and Enrolled nurses for<br />

placements in 20<strong>13</strong>.<br />

In the ACT demand for palliative approach workshops outstrips<br />

availability.<br />

Upcoming workshops:<br />

Workshop Target Group Location<br />

General Palliative Approach<br />

5th February 20<strong>13</strong><br />

Culturally Diversity<br />

Workshop<br />

21st March 20<strong>13</strong><br />

General Palliative Approach<br />

Workshop<br />

16th April 20<strong>13</strong><br />

Nurses, Allied <strong>Health</strong><br />

and AINs<br />

All <strong>Health</strong> professionals<br />

Nurses, Allied <strong>Health</strong><br />

and AINs<br />

Clare Holland<br />

House<br />

Clare Holland<br />

House<br />

Clare Holland<br />

House<br />

<strong>Health</strong> professionals from the ACT region interested in<br />

attending a workshop are encouraged to apply. Please contact<br />

Sue Turner, ACT <strong>PEPA</strong> Manager, on 02 62647338 or susan.<br />

turner@calvary-act.com.au .<br />

This year’s post placement activities culminated in the event<br />

“How are you going to die?” held at the National Film and<br />

Sound Archive. The screening of the movie of the same<br />

name was the prelude to a panel discussion with Kate Maher,<br />

Palliative Care Nurse Practitioner, Dr Andrew Skeels and Dr<br />

Frank Brennan, both Palliative Medicine Physicians. The event<br />

encouraged a range of health practitioners from a diverse<br />

spectrum of health care, including industry heavy weights such<br />

as Dr Yvonne Luxford, to discuss the ways health professionals<br />

in the ACT region approach end of life issues.<br />

Kate Maher at the “How are you going to die?’ film night and forum<br />

5


6<br />

<strong>PEPA</strong> QLD: Aurora Hodges<br />

Participant Reflection:<br />

AJ, Personal Care Worker in Aged Care, QLD<br />

AJ is an Aboriginal woman who works as a Personal Care<br />

Worker in aged care in remote western <strong>Queensland</strong>.<br />

She undertook a split placement spending time with two<br />

host sites.<br />

“Palliative care is very valuable, we only get one chance to<br />

get it right. Whether people choose to die at home or in a<br />

hospital or RACF the emphasis is on providing good quality<br />

end of life care and having the knowledge and confidence<br />

to carry it out effectively. These placements provided me<br />

with a greater insight into all aspects of palliative care in<br />

different settings and social situations, the care of the client,<br />

the family and the carers. I was very much out of my zone<br />

in Brisbane however the support I received the entire time<br />

of my placement from the <strong>PEPA</strong> team and in particular the<br />

<strong>PEPA</strong> Indigenous Project Officer Darryl was invaluable. I<br />

was welcomed to Karuna with genuine warmth and was<br />

on the road with RNs doing home visits. I was encouraged<br />

to ask questions and I sat in on case conferencing learning<br />

the benefits and positive outcomes of this as a way for the<br />

multidisciplinary team to touch base and problem solve.<br />

I feel privileged to have been placed with Kris the Nurse<br />

Practitioner at Metro South. She was more than happy to<br />

share with me what she knows and ignited in me the desire<br />

to learn. With her I visited aged care facilities and [learned<br />

more] about family conferences. I strongly recommend <strong>PEPA</strong><br />

for managers, nurses AINs/PCAs as it provides professional<br />

skill development on all levels.<br />

”<strong>PEPA</strong> <strong>Queensland</strong> held a successful GP Update in Palliative<br />

Care workshop on Saturday 24 November with <strong>13</strong> local<br />

GP’s attending. Sessions presented included: ANZSPM 5<br />

domains for evidence to practice gaps for End-of-Life care,<br />

new developments and latest evidence in drug management<br />

of common symptoms and conditions at End-of-Life and<br />

Dr Greg Parker, Senior Medical Officer, QEII Palliative Care Unit, A/Prof Rohan Vora and Lorna<br />

Chess-Williams, Pharmacist, Gold Coast Palliative Care Unit.<br />

pain management in palliative care. Dr Jones Chen, recent<br />

<strong>PEPA</strong> placement participant also gave a presentation on his<br />

placement.<br />

<strong>PEPA</strong> <strong>Queensland</strong> also held a palliative approach workshop<br />

for allied health professionals on 27 November 20<strong>13</strong>. The<br />

aim of the workshop was to develop health professionals’<br />

understanding of the palliative approach and how this<br />

approach can be applied in practice. Presenters included:<br />

Allison Lovel, CNC, Palliative Care Liaison, RBWH; Leonie<br />

Naumann, Physiotherapy Team Leader, Cancer Care, RBWH;<br />

Dr James Stevenson, Director Palliative Care, The Prince<br />

Charles Hospital; Rev Linda McWilliam, Coordinating Chaplain,<br />

Anglicare, Dr Elisa Agostinelli PhD, Counsellor Coordinator, St<br />

Vincent’s Hospital; Kym Griffin, Research Officer, Centre for<br />

Palliative Care Research and Education, Christie Barrett, Social<br />

Worker, Mater <strong>Health</strong> Services Brisbane. Excellent feedback<br />

was received from the 35 allied health professionals attending.<br />

20<strong>13</strong> <strong>PEPA</strong> <strong>Queensland</strong> Workshops:<br />

• 8 February – Community Outreach workshop for Indigenous<br />

<strong>Health</strong> Workers (Mackay)<br />

• 27 February – Cultural Diversity in Palliative Care: an<br />

Indigenous Perspective (RBWH)<br />

• 30 April – Palliative Approach for Allied <strong>Health</strong> Professionals<br />

(RBWH)<br />

• May – 2 Proposed workshops in Mackay – GP and Allied<br />

<strong>Health</strong><br />

Would you like to update your skills in the palliative approach<br />

by undertaking a subsidised workforce placement with a<br />

palliative care specialist service? <strong>PEPA</strong> <strong>Queensland</strong> has<br />

placements starting in 20<strong>13</strong> for:<br />

• GPs<br />

• Allied <strong>Health</strong> Professionals<br />

• RNs<br />

• ENs<br />

• Indigenous <strong>Health</strong> Workers<br />

Please contact Aurora Hodges, <strong>PEPA</strong> Qld Manager on:<br />

Ph: 3646 6216 E: pepaqld@health.qld.gov.au<br />

<strong>PEPA</strong> VIC: Carol Pyke<br />

As the new <strong>PEPA</strong> manager in Victoria, I have found the last<br />

four months to be a challenging but very rewarding time.<br />

The challenge has been to improve my understanding of the<br />

palliative care sector but it has been rewarding to work with<br />

such wonderfully dedicated health professionals.<br />

The focus of these past months has been on increasing the<br />

uptake of <strong>PEPA</strong> placements particularly by registered nurses.<br />

<strong>PEPA</strong> has been promoted to small rural hospitals, bush nursing<br />

hospitals and bush nursing centres. We have also been<br />

promoting <strong>PEPA</strong> to the aged care sector through Leading Aged<br />

Care Services (Victoria). The result has been a steady increase<br />

in <strong>PEPA</strong> applications from nurses working in these areas.<br />

A <strong>PEPA</strong> mentoring workshop was conducted in November<br />

and we had a good attendance from both inpatient and


Clockwise from above: Bathurst <strong>PEPA</strong> workshop; JHH Newcastle; Leeton <strong>PEPA</strong> workshop; Dapto <strong>PEPA</strong> workshop.<br />

7<br />

community-based palliative care services from metropolitan<br />

and rural areas. It was clear from their feedback that<br />

participants valued <strong>PEPA</strong> and the importance of their role<br />

as <strong>PEPA</strong> mentors. They also appreciated the opportunity to<br />

network with their peers. Some work will be done to identify<br />

more networking opportunities for <strong>PEPA</strong> mentors.<br />

<strong>PEPA</strong> was promoted to general practitioners at the Palliative<br />

Care Victoria stand at the General Practitioners Conference<br />

and Exhibition held in Melbourne in mid-November. More work<br />

will be done to promote <strong>PEPA</strong> to this group in the coming year.<br />

<strong>Health</strong> professionals who have recently completed a <strong>PEPA</strong><br />

supervised clinical placement continue to report the benefits<br />

this experience gives them:<br />

• I have been able to share some of the knowledge I gained<br />

with my colleagues which has helped us to be more aware<br />

of not only the needs of our patients but also their families.<br />

• It has given me more confidence in discussing PC (palliative<br />

care) with clients and given me more knowledge of how I<br />

can help them.<br />

Placements are currently available for all health professionals<br />

including general/medical practitioners, nurses, Aboriginal<br />

health workers, and allied health staff.<br />

Carol Pyke<br />

Victorian <strong>PEPA</strong> manager<br />

http://www.health.vic.gov.au/palliativecare/programs<br />

<strong>PEPA</strong> NSW: Janeen Foffani<br />

What a year we had in <strong>2012</strong>! While rewarding and fulfilling on<br />

a number of levels, I’ll remember <strong>2012</strong> as the year that just<br />

didn’t give us a minute’s rest and on reflection I can understand<br />

why. <strong>PEPA</strong> NSW has organised over 60 supervised clinical<br />

placements since February, the majority of these placements<br />

have been for nurses and Aboriginal <strong>Health</strong> Workers. We<br />

have also completed around 20 Basic Palliative Approach<br />

workshops, 2 Palliative Approach ‘yarn ups’ and 15 Palliative<br />

Care Forums across NSW.<br />

We also recently manned <strong>PEPA</strong> NSW display tables at the<br />

NSW Palliative Care Conference (Dubbo), Agency for Clinical<br />

Innovations Network2Network Conference (Sydney) and Rural<br />

NSW GP Conference (Coogee). We met a number of new<br />

people from a diverse group and it was great to see so many<br />

familiar faces and to put a face to a number of voices/names.<br />

I’m also pleased to announce that we had a new staff member<br />

join our team in December. Carol Muthunesan has taken on<br />

the role of <strong>PEPA</strong> NSW Aboriginal Education Officer. Carol is<br />

an RN and brings with her a range of experience and will be a<br />

valued addition to our team. Carol’s focus will be primarily on<br />

the Indigenous arm of <strong>PEPA</strong> NSW however we are all looking<br />

forward to playing an active role in all <strong>PEPA</strong> NSW activities.<br />

Planning for 20<strong>13</strong> is well underway and a number of<br />

placements and workshops have already been organised.<br />

Keep an eye on our webpage for more details especially if you<br />

are in the Newcastle, Quirindi, and Lismore area. It’s starting to<br />

look like 20<strong>13</strong> will be just as busy as last year!<br />

<strong>PEPA</strong> WA: Brooke Wilkinson<br />

<strong>2012</strong> has been a very successful and busy year for <strong>PEPA</strong> in<br />

Western Australia. We had an overwhelming response for<br />

placements from regional general practitioners and nursing<br />

staff.<br />

Clinical placements are still available for Aboriginal <strong>Health</strong><br />

Workers, Enrolled Nurses, Allied <strong>Health</strong> Professionals and<br />

Rural Aged Care Facilities (Reverse <strong>PEPA</strong>). We encourage<br />

participants who are interested in undertaking a <strong>PEPA</strong><br />

placement to submit their application.<br />

<strong>PEPA</strong> WA completed our first Rural Reverse <strong>PEPA</strong> placement<br />

in August. Robyn Ellis the Midwest Palliative Care Coordinator<br />

educated staff at services within the Midwest region. With<br />

some services setting up a palliative care multidisciplinary team<br />

and others joining the regional palliative care interest group.<br />

Each service has strengthened their relationship with the<br />

Midwest palliative care service.


8<br />

Employer’s comment - “We received clear indicators of<br />

when to refer patients to palliative care, and also feel more<br />

confident to contact <strong>PEPA</strong> or our regional coordinator if<br />

we need any help with palliative care issues”.<br />

<strong>PEPA</strong> WA ran a very successful weekend workshop that<br />

focused on the difficult conversations that may arise in<br />

palliative patients. We had a variety of guest presenters<br />

over the weekend. Dr Christina Pulchalski from George<br />

Washington Institute for Spirituality and <strong>Health</strong> (GWish)<br />

DC was in Western Australia for the Palliative Care WA<br />

Conference, she has developed many resources and<br />

tools for spirituality in palliative care and was a great guest<br />

speaker. We also had a panel of palliative care experts<br />

join us; Helena Green (Clinical Nurse/Sexologist), Karen<br />

Anderson (Counsellor), Dr David Thorne (Palliative Care<br />

Consultant) and John Robinson (Clinical Nurse).The was<br />

a fantastic opportunity for participants to network and<br />

share their palliative care stories and experiences with one<br />

another.<br />

Participants’ comments - “I learnt to develop a language<br />

that is non-invasive for inviting people to talk about<br />

personal issues” “Listening is an important tool”.<br />

For further information about any of the workshops or<br />

placement opportunities please contact Brooke Wilkinson<br />

on (08)9382 9372 or go to the Cancer Council website<br />

http://www.cancerwa.asn.au/professionals/palliativecare-profs/professionaldevelopment/<br />

<strong>PEPA</strong> TAS: Susan Rasmussen<br />

Our palliative care host sites have hosted a number of<br />

health professionals over the last few months; these<br />

include Allied <strong>Health</strong>, Registered Nurses, GP’s and<br />

Indigenous <strong>Health</strong> Workers. The positive feedback<br />

from all participants has been overwhelming and the<br />

enthusiasm they all go away with is enormous.<br />

We have held three (3) general <strong>PEPA</strong> workshops with a<br />

fourth to occur just before Christmas these workshops<br />

are always well received and continue to be in high<br />

demand. Planning is in full swing for workshops in 20<strong>13</strong><br />

with one of these being an Indigenous health workers’<br />

workshop which is proposed for the NW of the state.<br />

Post placement support has taken on a new approach<br />

in Tasmania with emails being sent out to all those past<br />

participants who have provided email addresses, if you<br />

are a past participant reading this segment and you have<br />

not receive an email from Susan and you would like to be<br />

included on the email circulation list please email Susan<br />

on susan.rasmussen@dhhs.tas.gov.au.<br />

New developments:<br />

<strong>PEPA</strong> Tasmania is delighted to welcome Melwood Unit<br />

at St Lukes Calvary hospital in Launceston as a new<br />

host site offering placement opportunities in a hospice<br />

environment to northern Tasmanian future participants.<br />

We hope to commence placement in the Melwood Unit<br />

early in 20<strong>13</strong>.<br />

For further information you can<br />

contact your local <strong>PEPA</strong> manager:<br />

Australian Capital Territory<br />

Sue Turner<br />

<strong>PEPA</strong>@calvary-act.com.au<br />

Ph: 02 6264 7338 • Fax: 02 6273 0338<br />

New South Wales<br />

Janeen Foffani<br />

pepansw@sswahs.nsw.gov.au<br />

Ph: 02 9515 6424 • Fax: 02 9515 6768<br />

Northern Territory<br />

Cindy Paardekooper<br />

Cindy.Paardekooper@nt.gov.au<br />

Ph: 08 8922 7679 • Fax: 08 8922 6775<br />

<strong>Queensland</strong><br />

Aurora Hodges<br />

pepa@health.qld.gov.au<br />

Ph: 07 3646 6216 • Fax: 07 3646 7942<br />

South Australia<br />

Tracey Watters<br />

twatters@pallcare.asn.au<br />

Ph: 08 8291 4379<br />

Victoria<br />

Carol Pyke<br />

Carol.Pyke@health.vic.gov.au<br />

Ph: 03 9096 0509 • Fax: 03 9096 9206<br />

Western Australia<br />

Brooke Wilkinson<br />

<strong>PEPA</strong>@cancerwa.asn.au<br />

Ph: 08 9382 9372 • Fax: 08 9381 8103<br />

Tasmania<br />

Susan Rasmussen<br />

Susan.Rasmussen@dhhs.tas.gov.au<br />

Ph: 03 6220 2431 • Fax: 03 6222 7679<br />

National Coordinator<br />

Natasha Myers<br />

pepa@qut.edu.au<br />

Ph: 07 3<strong>13</strong>8 6121 • Fax: 07 3<strong>13</strong>8 6030<br />

National Coordinator for Indigenous <strong>PEPA</strong>:<br />

Dr Mick Adams<br />

m2.adams@qut.edu.au<br />

Ph: 07 3<strong>13</strong>8 5807<br />

A copy of this newsletter is available online at:<br />

http://www.pepaeducation.com<br />

© QUT 2011 18051

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