Help for Today, Hope for Tomorrow. Annual Report FY 07-08
Help for Today, Hope for Tomorrow. Annual Report FY 07-08
Help for Today, Hope for Tomorrow. Annual Report FY 07-08
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<strong>Annual</strong> <strong>Report</strong> <strong>FY</strong> <strong>07</strong>-<strong>08</strong><br />
<strong>Help</strong> <strong>for</strong> <strong>Today</strong>, <strong>Hope</strong> <strong>for</strong> <strong>Tomorrow</strong>.
HDSA <strong>Annual</strong> <strong>Report</strong> 20<strong>08</strong><br />
Message From the Chair of the Board of Trustees and CEO 3<br />
HDSA Research 4<br />
HDSA Programs of Care 5<br />
HDSA Advocacy and Education 5<br />
Chapters and Affiliates 6<br />
Statement of Activities October 1 20<strong>07</strong> - September 30 20<strong>08</strong> 7<br />
How to Get Involved 8<br />
HDSA Board of Trustees 9<br />
Our Contributors 10<br />
HDSA Mission<br />
The Society is a National, voluntary health organization dedicated to<br />
improving the lives of people with Huntington's Disease and their families.<br />
Our purpose is:<br />
• To promote and support research and medical ef<strong>for</strong>ts to eradicate<br />
Huntington's Disease.<br />
• To assist people and families affected by Huntington's Disease to cope<br />
with the problems presented by the disease; and<br />
• To educate the public and health professionals about Huntington's<br />
Disease.<br />
Huntington’s Disease Society of America<br />
505 Eighth Avenue Suite 902 New York, NY 10018 (212) 242-1968 www.hdsa.org
Huntington’s Disease<br />
Society of America<br />
505 Eighth Avenue Suite 902, New York, NY 10018<br />
•<br />
www.hdsa.org<br />
•<br />
voice 212 242-1968<br />
•<br />
voice 800 345-HDSA<br />
•<br />
fax 212 239-3430<br />
Dear HDSA Supporters:<br />
This has been a special year <strong>for</strong> HDSA. We’ve seen the FDA approve the first therapy<br />
specifically <strong>for</strong> people with Huntington’s Disease and several new potential therapeutic targets<br />
identified; a bill was introduced on floor of Congress to give well-deserved special status to<br />
people with Huntington’s Disease by the Social Security Administration; we have seen greatly<br />
increased coverage of HD and related subjects on TV shows and newspapers; and the Society<br />
has expanded into new geographic areas and expanded its outreach with more than 130<br />
support groups.<br />
Thanks to the generosity and dedication of our donors, the Society was able to continue to<br />
expand its services to our families, and HDSA was able to complete this past fiscal year with<br />
a positive impact on our ledger.<br />
As you read this, we are certain that you are aware of the financial pressures we all<br />
face in the current economic climate. There<strong>for</strong>e, we hope that you will see the strength and<br />
importance of the HDSA programs of Research, Care and Education, and provide whatever<br />
support you may to keep them moving <strong>for</strong>ward during these difficult times. With the recent<br />
research breakthroughs and promising substances working their way through the Drug<br />
Discovery Pipeline, we feel an urgency to expand our programs and can only do so with your<br />
support.<br />
The Board and the staff of HDSA are dedicated to maintaining the Society’s ability to<br />
deliver the programs our families need. Please help us to provide <strong>Help</strong> <strong>for</strong> <strong>Today</strong> and <strong>Hope</strong><br />
<strong>for</strong> <strong>Tomorrow</strong> to those who wake up every day to face the the daunting challenges of<br />
Huntington’s Disease.<br />
Sincerely,<br />
C. Walt Johnston Louise Vetter<br />
Chair Board of Trustees<br />
Chief Executive Officer<br />
HDSA meets all Standards of Excellence of the<br />
Better Business Bureau Wise Giving Alliance,<br />
National Health Council and the American<br />
Institute of Philanthropy<br />
Federal employee?<br />
Support HDSA through the<br />
Combined Federal Campaign<br />
Designate #11238
HDSA In Action<br />
Research<br />
This past year was an exciting period in the<br />
history of HD research, with many drugs,<br />
supplements, and genetic approaches moving<br />
through the drug discovery pipeline, bringing<br />
treatments closer to HD families. The progress<br />
we have seen, as well as the confidence drawn<br />
from the progress of the comprehensive strategic<br />
plan <strong>for</strong> research point to many potentially positive<br />
findings on the horizon.<br />
HDSA wants to ensure that our families<br />
always have access to the most current research<br />
news and developments. There<strong>for</strong>e, we have<br />
updated the national website,<br />
www. HDSA.org, with an extensive<br />
research section that presents and<br />
explains the latest findings from the<br />
HDSA Coalition <strong>for</strong> the Cure and other<br />
leading HD researchers. A research<br />
pipeline graph available on the site<br />
shows how far promising compounds<br />
and genetic approaches have advanced<br />
from preclinical work with animal models<br />
to clinical trials with HD patients.<br />
The chart is updated each time a<br />
potential new treatment is identified or<br />
developed and each time a new clinical<br />
trial begins.<br />
During this past year, the first<br />
drug to successfully emerge from the<br />
pipeline, Tetrabenazine, was finally approved <strong>for</strong><br />
the treatment of chorea. This is the first drug<br />
specifically approved <strong>for</strong> people with Huntington’s<br />
Disease by the FDA.<br />
As more potential therapies worked their<br />
way towards Clinical Trials, HDSA led a community<br />
wide initiative designed to increase awareness of<br />
the importance of clinical trials and to help recruit<br />
potential participants. HDTrials.org is a special<br />
website, where people can anonymously register to<br />
learn about clinical studies and trials that take<br />
place in their locale. When a new study or trial is<br />
announced, members of HDTrials.org will receive<br />
an email notification, describing the objective of<br />
the trial, the basic qualifications to participate and<br />
contact in<strong>for</strong>mation <strong>for</strong> those interested in learning<br />
more and volunteering to participate.<br />
Basic research conducted by HDSA<br />
Coalition <strong>for</strong> the Cure scientists continues to<br />
identify new targets <strong>for</strong> the development of<br />
treatments as well as biomarkers which can be<br />
used to more precisely measure disease onset and<br />
progression, thereby shortening clinical trials and<br />
providing guidance as to when treatments<br />
should be given to people with the mutated gene.<br />
In addition, as key questions are being<br />
answered about what goes wrong in Huntington’s<br />
Disease, we are seeing new interest from<br />
pharmaceutical companies in developing<br />
treatments. This has resulted in the development<br />
of high throughput assays to screen <strong>for</strong><br />
compounds that rescue the dysregulation of gene<br />
transcription and <strong>for</strong> compounds that enhance<br />
protein degradation and clearance.<br />
With several compounds now in final,<br />
Phase III trials, there is a strong possibility that<br />
Huntington’s Disease will have its first disease<br />
modifying treatment within the next few years. In<br />
addition, we expect new and more efficient drugs<br />
to be entering the research pipeline as a result of<br />
the identification of new targets based on critical<br />
basic research by HDSA Coalition <strong>for</strong> the Cure<br />
scientists and other leading researchers, and<br />
through our partnership with CHDI.<br />
4
Care<br />
The HDSA Center of Excellence Program<br />
celebrated its 10th Anniversary this year. From<br />
the initial Center at Emory University in Atlanta<br />
Georgia, the program has expanded to 21 facilities<br />
at top medical centers throughout the United<br />
States. The Centers offer a unique range of services<br />
to the person with Huntington’s Disease and his or<br />
her family, including medical care, psychiatric care,<br />
social services, physical and occupational therapy,<br />
speech and swallowing therapy, nutritional counseling,<br />
as well as genetic counseling and testing.<br />
In the past year, the HDSA Centers of<br />
Excellence saw more than 4,300 patients and their<br />
family members. In addition to the testing,<br />
counseling and medical management, the Centers<br />
provide referrals to community-based services and<br />
staff training at long term care facilities and other<br />
institutions serving the HD community in their<br />
locale. Each Center adapts its programs to fit the<br />
needs of their local population. In some cases this<br />
includes satellite medical support made necessary<br />
by the distance between a patient and a facility, or<br />
concern <strong>for</strong> a patient’s com<strong>for</strong>t during a longdistance<br />
transport.<br />
The Centers are also a spoke in the HDSA<br />
resource wheel, distributing brochures and<br />
in<strong>for</strong>mation packets, hosting educational events<br />
with Chapter and Affiliates and participating in<br />
initiatives with other HD organizations.<br />
The advancement of our knowledge<br />
of HD and how to care <strong>for</strong> the patient were<br />
among the prime reasons that the Center<br />
Program was created. The Centers work in<br />
tandem with HDSA chapters, affiliates, support<br />
groups and regional offices to provide a seamless<br />
national network of medical and social services to<br />
the HD community, as part of the HDSA Care<br />
Continuum.<br />
HDSA remains committed to the Centers<br />
of Excellence Program, and the extension of their<br />
services beyond the Center walls, and current<br />
patient coverage.<br />
Education and Advocacy<br />
One of the most important ways in which<br />
HDSA provides support to the HD<br />
community, is by providing access to the most<br />
current and most beneficial in<strong>for</strong>mation about<br />
Huntington’s Disease. There<strong>for</strong>e the Society<br />
has become the primary source of medical<br />
in<strong>for</strong>mation; care and support resources; the<br />
latest research news; event listings and other key<br />
resources <strong>for</strong> the HD community.<br />
Last year the HDSA website was<br />
redesigned and to include enhanced sections on<br />
research, clinical research, advocacy and available<br />
resources, much attention was paid to make it an<br />
easily navigable site which our families can<br />
access easily, and intuitively find the in<strong>for</strong>mation<br />
they require.<br />
HDSA creates print and multi-media<br />
resources that cover all aspects of Huntington’s<br />
Disease: including caregivers guides, in<strong>for</strong>mation<br />
on juvenile HD, best practices in areas such as<br />
5
Education and Advocacy (continued)<br />
nutrition <strong>for</strong> a person with HD, guides on finding<br />
long-term care facilities, and publications directed<br />
to medical professionals. All publications are<br />
available via download through the national<br />
website, as well as in print.<br />
In addition to these resources, the Society<br />
holds holds an annual National Convention, and<br />
each chapter and affiliate holds local or state<br />
educational events. At these events symposia and<br />
workshops are held, and people affected by HD<br />
may network and learn more about local resources.<br />
The HDSA National Convention, held in<br />
Pittsburgh, PA was a major success, with over 600<br />
attendees participating in the 7 educational<br />
workshop tracks. For the first time, a special NYA<br />
education day was added to the pre-Convention<br />
Thursday schedule which included leadership<br />
training <strong>for</strong> chapter and affiliate officers, and<br />
professional training <strong>for</strong> chapter and Center of<br />
Excellence social workers.<br />
HDSA’s advocacy programs reached new<br />
levels of success during the past fiscal year. After<br />
many years of ef<strong>for</strong>t with other genetic-disease<br />
focus non-profits, HDSA advocates were able to<br />
celebrate the passage of the Genetic In<strong>for</strong>mation<br />
Nondiscrimination Act (GINA), which creates<br />
new protections against the misuse of genetic<br />
in<strong>for</strong>mation by health insurance companies and<br />
employers.<br />
Following upon the success with GINA,<br />
the HDSA Advocacy program focused on<br />
convincing the Social Security Administration to<br />
update their their disability listings <strong>for</strong> HD, and<br />
to obtain a waiver <strong>for</strong> the 2-year Medicare<br />
waiting period <strong>for</strong> people disabled by HD. After<br />
meeting with official of the Social Security<br />
administration, HDSA embarked upon an ef<strong>for</strong>t<br />
to enact legislation to enact these changes. and<br />
in June, 20<strong>08</strong>, Rep. Bob Filner (D-CA) from San<br />
Diego, Cali<strong>for</strong>nia, introduced H.R. 6259, The<br />
Huntington’s Disease Parity Act on the floor<br />
of the House of Representatives. Thanks to<br />
lobbying by HDSA advocates throughout the<br />
U.S. other sponsors signed on, and while the<br />
Bill did not reach the floor <strong>for</strong> a vote, it was<br />
scheduled <strong>for</strong> and reintroduced to Congress by a<br />
number of new co-sponsors as the Huntington’s<br />
Disease Act of 2009.<br />
Chapters and Affiliates<br />
Your support of HDSA’s 39 Chapters and Affiliates is critical to their ability to provide local<br />
programming and support all phases of the HDSA Mission<br />
Arizona:<br />
Arkansas:<br />
Cali<strong>for</strong>nia:<br />
Colorado:<br />
Connecticut:<br />
Delaware:<br />
Florida:<br />
Georgia:<br />
Illinois:<br />
Indiana:<br />
Iowa:<br />
Kentucky:<br />
Maine:<br />
Massachusetts:<br />
Michigan:<br />
Minnesota:<br />
Arizona Affiliate<br />
Arkansas Affiliate<br />
Northern Cali<strong>for</strong>nia Chapter<br />
Greater Los Angeles Chapter<br />
Orange County Affiliate<br />
San Diego Chapter<br />
Rocky Mountain Chapter<br />
Connecticut Affiliate<br />
Delaware Chapter<br />
South Florida Chapter<br />
Central Florida Affiliate<br />
Georgia Chapter<br />
Illinois Chapter<br />
Indiana Chapter<br />
Iowa Chapter<br />
Kentucky Chapter<br />
Maine Affiliate<br />
Massachusetts Chapter<br />
Michigan Chapter<br />
Minnesota Chapter<br />
Missouri: St. Louis Chapter<br />
New Hampshire: New Hampshire Affiliate<br />
New Jersey: New Jersey Chapter<br />
New York: Greater New York Affiliate<br />
Upstate New York Chapter<br />
North Carolina: North Carolina Chapter<br />
North Dakota: Northern Plains Affiliate<br />
Ohio:<br />
Northeast Ohio Chapter<br />
Ohio Valley Chapter<br />
Central Ohio Chapter<br />
Oklahoma: Oklahoma Chapter<br />
Pennsylvania: Delaware Valley Chapter<br />
Western Penn. Chapter<br />
Rhode Island: Rhode Island Affiliate<br />
South Dakota: Sioux Valley Chapter<br />
Texas:<br />
Texas Affiliate<br />
Washington: Northwest Chapter<br />
Washington D.C.: Washington Metro Chapter<br />
Wisconsin: Wisconsin Chapter<br />
6
Fundraising<br />
12%<br />
Research<br />
28%<br />
Management<br />
13%<br />
Chapter Development<br />
17%<br />
Education<br />
7%<br />
Family Services<br />
23%
Ways to Support HDSA Programs<br />
Volunteer: HDSA depends on the participation of volunteers to make its programs possible. Serve on a<br />
committee that is organizing an event, such as a walk-a-thon or hoop-a-thon or offer your services on<br />
the day of the event; ask your employer or local retailer to sponsor an event; recruit your friends and<br />
colleagues to create a team <strong>for</strong> an event; or solicit local businesses to donate their services or products<br />
to offset the costs of holding a fundraising, educational or public outreach event.<br />
Offer your skills and services: Your knowledge and experience can make a difference to your local<br />
HDSA Chapter or Affiliate. In the past year, volunteers have helped upgrade chapter websites, videotaped<br />
presentations, and provided other support services. Visit “Find HDSA in your Community” on<br />
the national website and contact your local leaders to learn what types of assistance they need.<br />
Become an HDSA Advocate: Become an active member of the HDSA Advocacy Team. Register in the<br />
Advocacy Section of the HDSA website and help us move our advocacy initiatives <strong>for</strong>ward.<br />
Make a Direct Contribution: Visit the HDSA national website, www.hdsa.org and click on “Donate” on<br />
the home page. This will take you to a secure page where you may make a general donation, or one <strong>for</strong><br />
research, care or education. If you prefer, you may print out the donation <strong>for</strong>m and mail it to HDSA,<br />
505 Eighth Avenue, Suite 902, New York, NY 10018, or call 1-800-345-HDSA.<br />
Create a Family Fund: Establish a Family Fund to honor your family or to remember a loved one. Join<br />
with friends and relatives, and pool your resources, to make your donated dollars work harder than you<br />
could individually.<br />
HDSA Tribute or Memorial Gift: Honor a friend or loved one with an HDSA Tribute Gift, or honor the<br />
memory of a loved one with an HDSA Memorial Gift.<br />
Matching Gifts: Your employer or organization may be part of the HDSA Matching Gifts Program,<br />
which doubles your donation. A list of participants is available on the HDSA website. If your employer<br />
is not part of this program, please request that they join us.<br />
HDSA Heritage Club: There are many ways to participate in HDSA’s Planned Giving Program; You<br />
may remember HDSA in your will or life income Charitable Remainder and Annuity Trusts. Other financial<br />
instruments may also be utilized including an IRA, Appreciated Stocks and/or Mutual Funds, Life<br />
Insurance and Real Estate.<br />
Visit the HDSA Marketplace: Please visit our website regularly and browse the HDSA Marketplace. Purchasing<br />
our HDSA-logoed merchandise, seasonal items (Amaryllis, Holiday Cards) and other items<br />
makes a difference and helps us build awareness at the same time.<br />
8
HDSA National Board of Trustees<br />
Officers and Committee Chairs<br />
C. Walt Johnston<br />
Chair<br />
Ridgefield, CT<br />
Cheryl Kendrick<br />
Vice-Chair<br />
San Diego, CA<br />
Roger A. Vaughan<br />
Treasurer<br />
Columbus, OH<br />
Jamie Greene, Esq.<br />
Secretary<br />
Atlanta, GA<br />
Jang-Ho Cha, MD, PhD<br />
Chair of Center Programs and Education<br />
Advisory Committee<br />
Charlestown, MA<br />
Marcy MacDonald, PhD<br />
Medical/Scientific Advisory Committee Chair<br />
Boston, MA<br />
Leon D. Tibben<br />
National Field Committee Chair<br />
Andover, MN<br />
Members<br />
Donald L. Barr<br />
Chesterland, OH<br />
Diane Carlson<br />
Summit, NJ<br />
Gerald A. Francese, Esq.<br />
New York, NY<br />
Susan S. Huang<br />
Greenwich, CT<br />
Steve Ireland<br />
Wilmington, DE<br />
Barry Kahn<br />
Lake Zurich, IL<br />
Michael Roth<br />
Irvington, NY<br />
Steve Seekins<br />
Burbank, CA<br />
Kimberly Silva<br />
Lincoln, RI<br />
Daniel S. Vandivort<br />
Riverside, CT<br />
HDSA Senior Staff<br />
Louise Vetter<br />
Chief Executive Officer<br />
Joseph DiSibio<br />
Director of Finance & Operations<br />
Deborah Lovecky<br />
Director of Programs & Services<br />
Scotti Hutton<br />
Director of National Field Development<br />
& Operations<br />
Fred Taubman<br />
Director of Marketing Development &<br />
Communications<br />
9
Our Contributors<br />
We would like to thank the following donors <strong>for</strong> their generous financial support of the<br />
Huntington’s Disease Society of America during the 20<strong>07</strong>-20<strong>08</strong> fiscal year.<br />
$25,000 and over<br />
Mr. & Mrs. Donald L. Barr<br />
Mr. Bruce J. Bergman<br />
Ms. Janet Bergman<br />
Colyer Family & Friends Fund<br />
Mrs. Phyllis E. Dake<br />
Mr. Melvin L. Douglass<br />
Mr. & Mrs. Michael S. Fiore<br />
Fiore Family Fund<br />
Knapp Family Fund<br />
Koss Family Fund<br />
Mr. & Mrs. Harry Lieberman<br />
10,000 - 24,999<br />
Mr. & Mrs. Guy Anderson<br />
Mr. Russ Becker<br />
Helen Becker Memorial Research Fund<br />
Mr. Robi Blumenstein<br />
Ms. Cathy Brown<br />
Cancelmo Family Fund<br />
Mr. & Mrs. Ned Cancelmo<br />
Mr. & Mrs. Richard P. Cancelmo Jr.<br />
The Marion Dougherty Fund<br />
Mr. & Mrs. Scott Drellishak<br />
Dennis P. Fleming Memorial Family Fund<br />
James P. Georgia Research Fund<br />
Mr. C. Walt Johnston<br />
Joy of Life Family Research Fund<br />
Mr. Ted Kaplan & Ms. Roberta Woronow<br />
Kaplan Family Fund<br />
Mr. & Mrs. Gary Kelley<br />
1,000-9,999.00<br />
Ms. Greta K. Abbott<br />
Dr. & Mrs. Michael W. Abdalla<br />
Mr. David W. Aduddell<br />
Mr. Otto Aichinger<br />
Ms. Beth Anne Alcantar<br />
Ms. Marjorie S. Allen<br />
Mr. & Mrs. Robert H. Allen<br />
Mr. Bill Alverson<br />
Mr. Craig Anderson<br />
Mr. Thomas P. Anderson<br />
Ms. Katherine S. Anderson<br />
Mr. & Mrs. Guy Anderson<br />
Mr. Alexander Andres<br />
Dr. Edwin J. Andrews<br />
Mr. Paul Andriot<br />
Anonymous<br />
Ms. Michele Anthony<br />
Mr. & Mrs. Frank Argilagos<br />
Mr. Frank Auf Der Maur<br />
Kevin Baker Family Research<br />
Fund<br />
Mr. Bonner S. Ball<br />
Lillian Barham Memorial<br />
Research Fund<br />
Mr. & Mrs. Norman Barham<br />
Ms. Michelle Barish<br />
Mr. Terry Barnett<br />
Mr. & Mrs. Philip Bartley<br />
Mr. & Mrs. Brett Begemann<br />
Ms. Elizabeth S. Bellamy<br />
Ms. Katherine Benson<br />
Ms. LaFawn Biddle<br />
Mike Bisson Research Fund<br />
Mr. & Mrs. David Blake<br />
Mr. Thomas H. Lyon<br />
Mr. Les Pue<br />
Ms. Judy Roberson<br />
Mr. Glenn D. Smith<br />
Mr. Brian Swisher<br />
Mr. & Mrs. Wayne E. Swisher<br />
Swisher Family Research Fund<br />
Mr. & Mrs. Roger Vaughan Jr.<br />
Robert A. Vaughan Fund<br />
Mr. & Mrs. Walter Weber<br />
Wilcox Family Fund<br />
Kelley Family Fund<br />
Ms. Sherri Kole<br />
Ms. Anne E. Koons<br />
Mr. Michael P. Krasny<br />
Mr. & Mrs. Laurence Luebke<br />
Ms. Diane F. Lee<br />
Mr. & Mrs. Donald MacFarlane<br />
Steven Oades Memorial Research Fund<br />
Mr. & Mrs. Jack Rohrbach<br />
Mr. Bruce W. Scott<br />
Jerry & Shirley Setten Family Research Fund<br />
Mr. Jerry Setten<br />
Mr. & Mrs. George Timmons<br />
Ms. Diane Vaughan<br />
Mr. & Mrs. Paul Walker<br />
Mr. & Mrs. Earl Wheeler<br />
Ms. Ellen Blanchard<br />
Mr. & Mrs. James Bleyer<br />
Mr. Steve Blomeley<br />
Mr. Howard Booth<br />
Mr. Michael J. Born<br />
Mr. Mike Boston<br />
Mr. James M. Boyle<br />
Mrs. Barbara T. Boyle<br />
Ms. Geraldine T. Boyle<br />
Ms. Jacqueline Boyle<br />
Ms. Ellen Brady<br />
Mr. Earl Brewer<br />
Mr. & Mrs. Robert E. Briggs<br />
Mr. Richard Bruce<br />
Mrs. Judith Bruning<br />
Ms. Kristin Bryson<br />
Mr. & Mrs. Philip Burguieres<br />
10
Major Donors<br />
1,000-9,999.00 (continued)<br />
Mr. Patrick Burk<br />
Mr. & Mrs. Michael Burke<br />
Mr. Emil Busse<br />
Mr. & Mrs. John Butler<br />
Mr. Brian Buxton<br />
Ms. Michelle Byers<br />
Mr. Don Cain<br />
Mr. Matthew A. Cancelmo<br />
Mr. Thomas J. Canning<br />
Ms. Jackie Carroll<br />
Mr. & Mrs. Patrick Carville<br />
Mr. Enrico Cascone<br />
Mr. & Mrs. John Cater<br />
Ms. Jennifer Causey<br />
Dr. Jang-Ho Cha<br />
Mr. James Check<br />
Mr. & Mrs. Ken Chen<br />
Ms. Josepha Cheong<br />
Mr. R. Haynes Chidsey<br />
Mr. Michael D. Chrisman<br />
Jimmy Clarke Research Fund<br />
Mr. & Mrs. Frederick James<br />
Cofer<br />
Mr. Thomas Collins<br />
Mr. Michael Conley<br />
Mr. Philip Contino<br />
Ms. Linda Cornell Smythe<br />
Ms. Shirley Coskey<br />
Mr. & Mrs. Harold Covey<br />
Mr. & Mrs. Michael L. Cozine<br />
Mr. Peder J. Cross<br />
Mr. Jeffrey S. Cullman<br />
Mr. & Mrs. Donald Culp<br />
Mr. & Mrs. James Currans<br />
Mr. & Mrs. Michael Curry<br />
Mr. Jay Daignault<br />
Mr. Thomas W. Daly<br />
Mr. & Mrs. John Dawson<br />
Mr. & Mrs. Anthony DeChellis<br />
Mr. Thomas Digaetano<br />
Mr. Charles Dimmler<br />
Mr. Wayland A. Doggett<br />
Mr. Sion Douer<br />
Mr. & Mrs. David Joseph<br />
Downey<br />
Mr. Michael Drakeley<br />
Ms. Cathy Drexler<br />
Mr. & Mrs. Eugene Driker<br />
Ms. Ann Dudler<br />
Mr. & Mrs. John M. Duff<br />
Mr. & Mrs. Patrick Dunleavy<br />
Mr. John Durbin<br />
Mr. & Mrs. Craig Edwards<br />
Mr. & Mrs. Michael Eiselt<br />
Mr. Steven Eisenstadt<br />
Mr. Donald Ellingson<br />
Mr. Michael J. Engle<br />
Mr. Mark Epstein<br />
Mr. & Mrs. Phil Erickson<br />
Ms. Jessie Ewing<br />
Mr. & Mrs. Gregory Farque<br />
Mr. & Mrs. Edward Fecca<br />
Mr. Dennis Fenwick & Ms.<br />
Martie Lewis<br />
Mr. & Mrs. Mike Fernald<br />
Ms. Barbara Field<br />
Ms. Janice Findley<br />
Mr. C.J. Fiore<br />
Mr. & Mrs. Joel Paul Fishbein<br />
Ms. Adrienne Fitzgerald<br />
Mr. Robin Flood<br />
Mrs. Joan L. Foor<br />
Mr. John S. Foster<br />
Mr. Gerald A. Francese<br />
Ms. Connie Frankino<br />
Ms. Jo Ann Fucci<br />
Mr. Tom Galbraith<br />
Mr. Mark Garmus<br />
Ms. Karen Gannon<br />
Ms. Cynthia Gantz<br />
Mr. Louie J. Garnica<br />
Mr. & Mrs. LaRue Gibson<br />
Ms. Neila Gibson<br />
Mr. & Mrs. Paul Giles<br />
Giordano Family Research Fund<br />
Mr. & Mrs. Bruce Godfrey<br />
Mrs. Nancy Goldring<br />
Mrs. Beverly A. Gooch<br />
Mr. & Mrs. William C. Goodall<br />
Mr. & Mrs. James B. Goodman<br />
Mrs. Bernice Gotlieb<br />
Ms. Jamie L. Greene<br />
Mr. Robert F. Greene<br />
Ms. Robin E. Grey<br />
Ms. Martha Grizzel<br />
Mr. Elliott Groffman<br />
Mr. Robert D. Grossman Family<br />
Fund<br />
Gudac Family Fund<br />
Mr. George E. Gudac<br />
Dr. James F. Gusella<br />
Hack/Kadera/Collins Family<br />
Fund<br />
Ms. Kathleen Hackett<br />
Mr. John Hagarty<br />
Mr. & Mrs. Joe A. Halbrook<br />
Larry & Debra Halperin<br />
Mr. & Mrs. Scott Hamilton<br />
Mr. & Mrs. Harold Harden<br />
Mr. Phil Hardt<br />
Ms. Joyce H. Harris<br />
Mr. Robert J. Hartig<br />
Ms. Courtney Haslett<br />
Mr. Gordon Hassenplug<br />
Ms. Joanne Hastings<br />
Mr. Keith Hatkevich<br />
Mr. & Mrs. James Heitzmann<br />
Mr. Marvin P. Helsel<br />
Mr. William Herzberg<br />
Ms. Joyce Hewell<br />
Mr. Elliott Hillback<br />
Mr. Christopher Hitchcock<br />
Mrs. Sharla Hodges<br />
Mr. Robert Hogg<br />
Mr. Brian Mrs. Deborah Holloway<br />
Mr. William Holmes<br />
Mr. John J. Horan<br />
Ms. Susan S. Huang<br />
Ms. Theresa L. Hughes<br />
Mr. Raymond Hughes<br />
Mr. Daniel Hugo<br />
Mr. Ralph Hull<br />
Mr. & Mrs. Jerry Hurd<br />
Mrs. Sheila Hutcherson<br />
Ms. Scotti Hutton<br />
Mr. Charles R. Huyink<br />
Mr. Steven M. Ireland<br />
Mr. Thomas Ivor<br />
Mr. Martin E. Jacobson<br />
Hon. & Mrs. Steven M. Jaeger<br />
Dr. & Mrs. Joseph Jankovic<br />
Mr. & Mrs. Charles W. Jennings<br />
Mr. Owen B. Johnson<br />
Ms. Patricia Johnson<br />
Mr. Eric S. Johnson<br />
Mr. & Mrs. Stan Johnston<br />
Mr. Wesley G. Johnston<br />
Ms. Ann Wier Jones<br />
Mr. Andrew Juhl<br />
Mr. Larry Jurica<br />
11
Major Donors<br />
1,000-9,999.00 (continued)<br />
Mr. & Mrs. Lawrence Justin<br />
Mr. Todd Kahle<br />
Ms. Elizabeth A. Kaplan<br />
Mrs. Ziona Kaplan-Weber<br />
Mr. Glenn W. Kaun<br />
Mr. & Mrs. Mortimer I. Kay<br />
Mr. & Mrs. John Kelchner<br />
Ms. Missy Kestel<br />
Ms. Angela Kilroy<br />
Ms. Anne Kimberly<br />
Ms. Karen A. Kimsey<br />
Ms. Jean D. Kinda<br />
Mr. Steve King<br />
Mrs. Donald King<br />
Don King Memorial Research<br />
Fund<br />
Mr. & Mrs. Joel Kingery<br />
Mr. & Mrs. John Alexander Kirk<br />
Mr. Gregory S. Kirkorsky<br />
Dr. & Mrs. Walter Koers<br />
Ms. Denice E. Korcal<br />
Mr. & Mrs. Mark Kucick<br />
Mrs. Madeline L. Kuhn<br />
Mr. & Mrs. Douglas N. La Belle<br />
Mr. Rob Lail<br />
Mr. & Mrs. David Lambdin<br />
Mr. & Mrs. Barry Landau<br />
Mr. & Mrs. Felix LaPonte<br />
Mr. Jeri Lardy<br />
Mr. Phil Larson<br />
AC Lederer Family<br />
Mr. Howard F. Lederer<br />
Mr. George Letchworth<br />
Mr. & Mrs. William Levy<br />
Mr. & Mrs. Mark Leyton<br />
Mr. Steven H. Lieber<br />
Mr. & Mrs. Walter Light<br />
Mr. Jack Little<br />
Mr. David Lockman<br />
Mr. Edward A. Long<br />
Mr. & Mrs. Richard A. Longo<br />
Mr. Michael Lotker<br />
Mr. Edward Lozick<br />
Mrs. Sandra L. Lozier<br />
Mr. Vincent Luber<br />
Luebke-Turek Family Fund<br />
Dr. & Mrs. John H. Lucy<br />
Ms. Donna Lutjens<br />
Mr. Robert E. Madden<br />
Ms. Candi Manning<br />
Mr. Constantine Maroulis<br />
Ms. Gertrude H. Marvin<br />
Mr. Duncan Matteson<br />
Dr. & Mrs. William M. Matre<br />
Mr. Charles Maulbetsch<br />
Mr. Martin J. McCarthy<br />
Mr. William G. McCullough<br />
Mr. Patrick J. McGinley<br />
Mr. James McKenna<br />
Mr. Chris McKenzie<br />
Ms. Pamela Meacham<br />
Ms. Elizabeth Meek<br />
Mrs. Harriet A. Meier<br />
Ms. Jane S. Melzer<br />
Mr. & Mrs. Raymond Miale<br />
Dr. David P. Michener<br />
Mr. & Mrs. Ronald Midyett<br />
Milek/Fecca/Baker Family Fund<br />
Ms. Jane Miller<br />
Mr. & Mrs. Scott Miller<br />
Mrs. Marion Miller<br />
Mr. Jonathan S. Miller<br />
Mr. & Mrs. James Mistler<br />
Mr. & Mrs. Robert A. Mogil<br />
Ms. Mary Louise Mongan<br />
Dr. & Mrs. Charles Montgomery<br />
Mr. & Mrs. Mark Morris<br />
Ms. Katharine Moser<br />
Ms. Lauren Muller<br />
Mrs. Elaine Mullins<br />
Mr. Dennis A. Murphy<br />
Mr. Russell D. Nading<br />
Mrs. Betty Neese<br />
Ms. Patti Neill<br />
Marie Nemec<br />
Mr. & Mrs. Joe Nemec<br />
Ms. Nancy Newbold<br />
Mr. Bill Nichols<br />
Ms. Nancy S. Nicholson<br />
Mr. & Mrs. Robert Nissen<br />
Mr. James M. O'Grady<br />
Mr. Barry O'Grady<br />
Mr. Thomas A. O'Grady<br />
Mr. Stephen R. O'Neil<br />
Mr. & Mrs. Timothy E. O'Neil<br />
Ms. Mariellen O'Neill<br />
Mr. Christopher O'Rourke<br />
Mr. & Mrs. David A. Oss<br />
Mr. Gerard Osterhout<br />
Mr. & Mrs. John O'Sullivan<br />
Ms. Jane B. Owen<br />
Mr. G.S. Pallegar<br />
Mr. James Pasman<br />
Mr. Ralph Pausig<br />
Mr. Leighton F. Peck<br />
Mr. Charles J. Philippin<br />
Ms. Cindy Pilskaln<br />
Mr. Michael Pimental & Ms.<br />
Linda Oades Pimental<br />
Mr. Victor J. Pisinski<br />
Ms. Katie Plunkett<br />
Mr. & Mrs. Kenneth E. Poland<br />
Mr. Michael Pool<br />
Mr. & Mrs. Gerald Porricelli<br />
Ms. Cathy Porter<br />
Ms. Jennifer Pratt<br />
Mr. Evans Pratt<br />
Mr. Christopher J. Prazeres<br />
Mr. & Mrs. William Price<br />
Mrs. Angela Priebe<br />
Ms. Dianne Priebe<br />
Mr. Steve Primeau<br />
Mr. & Mrs. Brian Pruitt<br />
Mr. Michael S. Quinn<br />
Ms. Joyce Quisenberry<br />
Mr. & Mrs. Arthur Rangel<br />
Mrs. D. Victoria Ratliff<br />
Mr. Edward Reardon<br />
Mr. & Mrs. Tommy Reckling<br />
Ms. Helen F. Reed<br />
Mr. & Mrs. Steven Reimers<br />
Mr. Steve Ridenhour<br />
Ms. Aleta E. Riewe<br />
Ms. Delia Riley<br />
Ms. Amanda Rinkel<br />
Mr. Abhay Risbud<br />
Mr. Robert Ritacca<br />
Mr. Matthew Roberson<br />
Dr. Robert Rodnitzky<br />
Mr. & Mrs. Curtis S. Rosendahl<br />
Mr. Richard A. Rosner<br />
Mr. Richard E. Rouse<br />
Ms. Diane Rubtchinsky<br />
Ms. Suzanne Rudich<br />
Mr. Craig Runcie<br />
Ms. V.A. Russell<br />
Mr. & Mrs. Mike Rydin<br />
12
Major Donors<br />
1,000-9,999.00 (continued)<br />
The Joe Sabedra Family<br />
Mr. Danny G. Sage<br />
Mrs. Rachel Sanborn<br />
Ms. Jennifer L Schiff<br />
Dr. & Mrs. Peter Schindler<br />
Mr. & Mrs. Lance Schlichter<br />
Mrs. Marianne R. Schneider<br />
Mr. & Mrs. Charles Schon<br />
Ms. Gerleine A. Schoonover<br />
Mr. & Mrs. Joseph C.<br />
Schwanebeck<br />
Dr. Gary Schwarz<br />
Mrs. Vera C. Scott<br />
Mr. Francis Seery<br />
Ms. Lorril M. Senefeld<br />
Mr. Virg Senescall<br />
Mr. & Mrs. Kenneth P. Serbin<br />
Ms. Kathleen Shannon<br />
Mr. & Mrs. Donald Shannon<br />
Mr. Robert Sharp<br />
Mr. & Mrs. Charles E. Shawhan<br />
Mr. Patrick Sheehan<br />
Mr. Earl N. Sheehy<br />
Mr. Roger A. Sheeks<br />
Ms. Heather Shemilt<br />
Mr. Michael A. Shemo<br />
Ms. Alice E. Sherman<br />
Mr. William H. Shireman<br />
Mrs. Florence Siegel-Lotker<br />
Ms. Kimberly Silva<br />
Mr. Shawn Simmons<br />
Mr. & Mrs. Walter Simon<br />
Mrs. Cynthia Smith<br />
Mr. Jason Smith<br />
Mrs. Lisa J. Smith<br />
Mr. & Mrs. Robert Smith<br />
Dr. & Mrs. John C. Smith<br />
Ms. Amy Smrtnik<br />
Mr. Michael L. Snow<br />
Mr. & Mrs. Michael R. Soland<br />
Dr. David Somerville<br />
Mr. & Mrs. Ralph Splittberger<br />
Mr. Kevin Starkey<br />
Mr. Frank A. Stasiowski<br />
Mr. & Mrs. Douglass Steiger<br />
Ms. Marjorie L. Stevenson<br />
Mr. & Mrs. Douglas Stimpson<br />
Ms. Cheryl A. Sullivan<br />
Ms. Irene C. Swanson<br />
Mr. Kenn M. Synek<br />
Mr. Robert P. Taishoff<br />
Ms. Judy Tate<br />
Mrs. Anne M. Teeple<br />
Mr. & Mrs. Mark N. Tennison<br />
Ms. Anne & George Thiel<br />
Mr. James P. Thilman<br />
Ms. Mary Barbara Thomas<br />
Mr. Kenny Thomas<br />
Ms. Melissa Lee Thompson<br />
Mr. Leon Tibben<br />
Ms. Kelley A. Torrey<br />
Ms. Barbara E. Tretheway<br />
Mr. Allan J. Treuer<br />
Mr. Mike Tupen<br />
Mr. Eric Ullerich<br />
Mr. David M. Underwood<br />
Mr. Jack Vander Stoep<br />
Mr. & Mrs. Daniel S. Vandivort<br />
Mr. Aaron Veselenak<br />
Mr. & Mrs. Bryan Viau<br />
Ms. Stacie M. Vik<br />
Mr. Anthoni Visconsi<br />
Mr. Dominic Visconsi<br />
Mrs. Nicole Visconsi-Mawby<br />
Mrs. Claudia Vitelli<br />
Dr. William Walsh & Ms. Karen<br />
Gannon<br />
Mr. David Waltermire<br />
Mr. C. Madison Warren<br />
Mr. & Mrs. Albert A. Wassberg<br />
Mr. David A. Watkin<br />
Mr. & Mrs. Tracey L. Watkin<br />
Ms. Avi Wazana<br />
Mr. Christopher Travis Webb<br />
Ms. Elizabeth A. Weber & Mr.<br />
Stone Gossard<br />
Ms. Charlene Weed<br />
Ellen Weis Research Fund<br />
Ms. Eva Weissman<br />
Mr. William A. Werning<br />
Dr. & Mrs. Kent C. Westbrook<br />
Ms. Ann C. Weston<br />
Mr. & Mrs. John Wheeler<br />
Dr. Vicki Wheelock<br />
Mr. & Mrs. Justin Whitley<br />
Ms. Jana Wilcox<br />
Mrs. Beverly J. Wiley<br />
Ms. Jennifer Wilkinson<br />
Mr. John Wilson<br />
Mr. & Mrs. Brian Wishneff<br />
Mr.& Mrs. Garry Wisniewski<br />
Ms. Pearl Wobbema<br />
Mrs. Mendelle Woodley<br />
Mr. Drake Woods<br />
Ms. Judith E. Worley<br />
Mr. & Mrs. Charles Wosaba<br />
Ms. Cora Dee Wright<br />
Mr. Donald Yenish<br />
Ms. Danille Young<br />
Ms. Suzanne Zetz<br />
Ms. Michelle M. Zschech<br />
Heritage Club<br />
Heritage Club<br />
Estate of Barbara L. Bell<br />
Estate of Charlotte F. Calhoun<br />
Estate of Earl H. Eaton<br />
Estate of Jerri Husby<br />
Estate of Caroline F. James<br />
Estate of Helen B. Rostetter<br />
Estate of Elma Fay Walter<br />
Estate of Avis Weaver<br />
Lillian Parnell<br />
Robert A. Roberts Family Trust<br />
Sidney Stern Memorial Trust<br />
13
Major Donors<br />
Corporate and Foundation<br />
Ace In The Hole Foundation, Inc.<br />
Addison Pools<br />
Aetna Foundation, Inc.<br />
Alberici<br />
Allen Construction<br />
Allstate Giving Campaign<br />
Alnylam US, Inc.<br />
Amarin Neuroscience LTD<br />
American Legion Child Welfare Foundation<br />
Amigos Del Museo Del Barrio, Inc.<br />
Anne Pratt Foundation<br />
AT&T United Way Employee Giving Campaign<br />
Athena Diagnostics Inc.<br />
Automatic Fire Sprinklers<br />
Baker & McKenzie<br />
Bank of America<br />
Bank of America - Northern Cali<strong>for</strong>nia<br />
BBA Aviation Shared Services, Inc.<br />
Beane Family Foundation<br />
Benjamin Moore & Co.<br />
Berryman & Henigar, Inc.<br />
Bess Spiva Timmons Foundation<br />
Bio Enhance Technologies, Inc.<br />
Biogen Idec<br />
Biotechnology Industry Organization<br />
BJ Services<br />
Bloomfield Vineyards<br />
Blue Cross Blue Shield of Illinois<br />
BP Fabric of America Fund<br />
Brett Family Foundation<br />
Bridgeway Capital Management<br />
Broda Enterprises Incorporated<br />
Bruns-Pak Enterprises, Inc.<br />
Capital Group Companies Charitable Foundation<br />
Care Realty LLC<br />
Cary Construction<br />
CEMEX<br />
Central Concrete Supply Company<br />
Chamberlain & Hrdlicka,LLP<br />
Charitybuzz<br />
CHDI, Inc.<br />
ChevronTexaco<br />
Chrysopolae Foundation<br />
Cliff Swisher Custom Concrete<br />
Clovis Madera Equipment, Inc.<br />
CMS Mechanical Services, Inc.<br />
Colorado Neurological Institute<br />
CombinatoRx Inc.<br />
Community Health Charities<br />
Conco Pumping<br />
County of Los Angeles<br />
Dell Direct Giving Campaign<br />
Deltona Middle School<br />
Desert Schools Credit Union<br />
Dollar Bank Foundation<br />
Dorla J. Mayer Foundation<br />
Douglas E. Barnhart, Inc.<br />
DynaFlex<br />
Dynamic Plumbing Holding Company<br />
E-3<br />
Edge Development, Inc.<br />
Edison International<br />
Edison Pharmaceuticals Inc.<br />
Eight Ball Nutrition<br />
El Paso Corporation<br />
EnVivo<br />
Etix<br />
ExxonMobil Foundation<br />
Fidelity Investments<br />
First Northern Bank<br />
Florence S. Patton Foundation<br />
Frontier Bank of Texas<br />
Frost Bank<br />
GE Foundation<br />
Goldman, Sachs & Co.<br />
HCSS<br />
H-E-B<br />
Highmark<br />
Hill Contracting- Isabell Compton<br />
Horseshoe <strong>for</strong> Huntington's<br />
Houghton Mifflin Matching Gifts Program<br />
Howard Union Church Ladies Aid<br />
Huntington Society of Canada<br />
I.B.E.W. Local Union No. 99<br />
IBM Corporation<br />
Icon Mechanical<br />
IGive.com<br />
Ikon Office Solutions<br />
Illinois Tool Works Foundation<br />
Isis Pharmaceuticals, Inc.<br />
J&M Inc.<br />
JD2, Inc.<br />
Jerry & Nanette Finger Foundation<br />
John Hancock Financial Services<br />
Johnson & Johnson Family of Companies<br />
Joseph P. Roberson Foundation<br />
Kaiser Permanente<br />
Kappa Sigma Nu Chapter<br />
Kelley's Irish Pub<br />
Kilpatrick Stockton LLP<br />
14
Major Donors<br />
Corporate and Foundation (continued)<br />
Kindred Healthcare Operating, Inc.<br />
Lam Research Corporation<br />
Laurel Lake Center <strong>for</strong> Health & Rehab<br />
Lazard Freres & Co. LLC<br />
Lemonade Pi, Inc.<br />
Louis K. Brandt Foundation<br />
Lowell Health Care Center<br />
Lyondell<br />
Mark & Jeri Shapiro Family Foundation<br />
Martha Washington Straus & Harry H. Straus<br />
Foundation<br />
Mason-McDuffie Mortgage<br />
Mastercraft Iron Company<br />
MD Anderson Foundation<br />
Medivation<br />
Merck Employee Giving Campaign<br />
MetLife Metropolitan Life Insurance Co.<br />
Microsoft Giving Campaign<br />
Milwaukee Athletic Club<br />
Mission City Rebar<br />
Monsanto Fund<br />
Morning Foundation<br />
MuniFinancial<br />
Network For Good<br />
Neurobiological Technologies, Inc.<br />
NeuroSearch<br />
NFL Alumni<br />
Oklahoma City University<br />
Opus West Construction Corp.<br />
Orange County Employees Asso.<br />
Ovation Pharmaceuticals<br />
Ox<strong>for</strong>d Bank & Trust<br />
Pacific Management<br />
PennySaver Publication<br />
PepsiCo Foundation<br />
Pfizer United Way Campaign<br />
Prestwick Pharmaceuticals, Inc.<br />
Prism Marketing, Inc.<br />
Progress Capital Partners, LLC.<br />
Prudential Foundation<br />
Quest Software<br />
Quinnco Companies, LLC<br />
Rice Epicurean<br />
Ripon College<br />
Ronald Nunn Farms<br />
Roofing Sales Associates<br />
Rotary Club<br />
Sam's Club<br />
Sam's Club Foundation<br />
San Joaquin Valley Mopars<br />
San<strong>for</strong>d C. Bernstein & Co., LLC<br />
Schellinger Construction Co., Inc.<br />
Scurlock Foundation<br />
Scynexis, Inc.<br />
Service League of HCMC<br />
Silicon Valley Community Foundation<br />
Silver Phoenix Entertainment<br />
Spectex, LLC<br />
Spectra Energy<br />
Spectra Energy Foundation<br />
SSM Health Care of Oklahoma<br />
St. Charles Sand Co.<br />
Stan<strong>for</strong>d University<br />
State of New York Department of Taxation and<br />
Finance<br />
Stone Connection L.A.<br />
Strake Foundation<br />
Sundt Foundation<br />
Sunrise Development Company<br />
Taishoff Family Foundation<br />
Taormina Industries, LLC<br />
TAP Connected to Community Giving Campaign<br />
Technicoat<br />
Terence Cardinal Cooke Center<br />
The Baupost Group, LLC<br />
The Bowery Presents, LLC<br />
The Gies Foundation<br />
The Jason Hilton Foundation<br />
The Lozier Foundation<br />
The New York Mets Foundation, Inc.<br />
The Vineyards at Marsh Creek<br />
Toyota Motor Sales, USA. Inc.<br />
Transwestern<br />
Trinity Emergency & Healthcare<br />
UBS Matching Gift Program<br />
United Way Kennebec Valley<br />
United Way of Central MD<br />
United Way of Mil<strong>for</strong>d<br />
United Way of Rhode Island<br />
United Way of Tri-County<br />
Vaalco Energy<br />
Valero<br />
Vandenberg Communications, LLC<br />
Vanguard Charitable Endowment Program<br />
Verge Technologies Group, Inc.<br />
Vertex Pharmaceuticals Inc.<br />
Volvo Cars of North America, LLC<br />
Wachovia Foundation<br />
Wal-Mart Foundation<br />
Western Engineering Contractors<br />
William McCullogh Company<br />
15
505 Eighth Avenue Suite 902 New York, NY 10018<br />
(212) 242-1968 www.hdsa.org<br />
<strong>Help</strong> <strong>for</strong> <strong>Today</strong>, <strong>Hope</strong> <strong>for</strong> <strong>Tomorrow</strong>.