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How to Talk to Your Parent About HD

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<strong>How</strong> <strong>to</strong> talk <strong>to</strong> your parents about Hunting<strong>to</strong>n’s<br />

Disease.


Who do you talk <strong>to</strong>?<br />

Which parent? The one with <strong>HD</strong> the one without, or both<br />

parents <strong>to</strong>gether?<br />

The one that is most willing <strong>to</strong> talk?<br />

Have any of you talked <strong>to</strong> your parents about <strong>HD</strong>?


When do you talk <strong>to</strong> your parent/s?<br />

Timing-when open <strong>to</strong> talking(how do you know when<br />

that is); consider the stage of the parent with <strong>HD</strong> and the<br />

age of the child.


Where?<br />

What type of setting are you in when you bring up the<br />

subject of <strong>HD</strong><br />

Are you prepared <strong>to</strong> talk <strong>to</strong> your parents?


<strong>How</strong> <strong>to</strong> talk <strong>to</strong> parent/s?<br />

When you talk about other subjects, how does that<br />

happen?<br />

When is your parent most comfortable <strong>to</strong> approach?<br />

<strong>How</strong> do you approach?<br />

What questions do you have?<br />

What do you want <strong>to</strong> know from your parents?<br />

Why do you want <strong>to</strong> know it?<br />

Will it help <strong>to</strong> have questions written down?


To Summarize:<br />

Who <strong>to</strong> talk <strong>to</strong><br />

When <strong>to</strong> talk<br />

Where <strong>to</strong> talk<br />

What <strong>to</strong> say


Summary: Where do you get information that is accurate<br />

<strong>How</strong> do you help others <strong>to</strong> get accurate information


Thank You; Eileen Krueger LSW and thank you <strong>to</strong> BJ<br />

Viau for his assistance with this information.

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