Huntington's Disease Golf Tournament
Huntington's Disease Golf Tournament Huntington's Disease Golf Tournament
Special Thanks to our Golf Committee & Board of Directors Rick Schuler Amy Schuler Bob Howard Wayne Hunn Paula Hunn Jack Wisor John Schultz Bob Casanova Terry Hunn Emily Dirker Mark Davis Michael Brown Lisa Jose Corey Ryan John Ryan Wendy Chromoga Amy Roberts Gary Chippendale Jane Davis Dorothy Weston Tom Brinkmann Hole in One Car Giveaway Donated by Fred McClary & Suntrup Hyundai Crescent Farms Golf Club 745 Lewis Road, Eureka, MO 63025 (636) 938-6202 www.crescentfarms.com About the Huntington’s Disease Society of America The Huntington’s Disease Society of America is the largest 501(c) (3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States. Notably, HDSA founded the HDSA Coalition for the Cure, a collaboration of 16 international researchers, as part of the HD Drug Research Pipeline, and supports research which develops potential therapies to treat and eventually cure HD; and HDSA also supports 21 Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling. The Society is comprised of 51 local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 170 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington’s Disease for medical professionals and the general public. To learn more about Huntington’s disease and to get involved in HDSA, please visit www.hdsa.org or call 1-800-345-HDSA. What is Huntington’s Disease? Huntington’s Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure and only one FDA-approved treatment for a symptom of HD. HD slowly diminishes the affected individual’s ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Cases of Juvenile HD has been diagnosed in children as young as two years of age. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD. Each of their siblings and children has a 50 percent risk of developing the disease, therefore 250,000 are at risk. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD. How do proceeds benefit HDSA? All proceeds support HDSA’s fight to improve the lives of people affected by HD and their families. St. Louis CHAPTER 26th ANNUAL Huntington’s Disease Golf Tournament Sunday, September 15, 2013 Crescent Farms Golf Club 745 Lewis Road, Eureka, MO 63025 (636) 938-6202 www.crescentfarms.com
- Page 2: 26th Annual Huntington’s Disease
Special Thanks to our<br />
<strong>Golf</strong> Committee & Board of Directors<br />
Rick Schuler<br />
Amy Schuler<br />
Bob Howard<br />
Wayne Hunn<br />
Paula Hunn<br />
Jack Wisor<br />
John Schultz<br />
Bob Casanova<br />
Terry Hunn<br />
Emily Dirker<br />
Mark Davis<br />
Michael Brown<br />
Lisa Jose<br />
Corey Ryan<br />
John Ryan<br />
Wendy Chromoga<br />
Amy Roberts<br />
Gary Chippendale<br />
Jane Davis<br />
Dorothy Weston<br />
Tom Brinkmann<br />
Hole in One Car Giveaway<br />
Donated by Fred McClary & Suntrup Hyundai<br />
Crescent Farms <strong>Golf</strong> Club<br />
745 Lewis Road, Eureka, MO 63025<br />
(636) 938-6202<br />
www.crescentfarms.com<br />
About the Huntington’s <strong>Disease</strong> Society of America<br />
The Huntington’s <strong>Disease</strong> Society of America is the largest 501(c)<br />
(3) non-profit volunteer organization dedicated to improving the lives<br />
of everyone affected by Huntington’s <strong>Disease</strong>. Founded in 1968<br />
by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his<br />
battle with HD, the Society works tirelessly to provide the family<br />
services, education, advocacy and research to provide help for today,<br />
hope for tomorrow to the more than 30,000 people diagnosed with<br />
HD and the 250,000 at-risk in the United States. Notably, HDSA<br />
founded the HDSA Coalition for the Cure, a collaboration of 16<br />
international researchers, as part of the HD Drug Research Pipeline,<br />
and supports research which develops potential therapies to treat<br />
and eventually cure HD; and HDSA also supports 21 Centers of<br />
Excellence at major medical facilities throughout the U.S., where<br />
people with HD and their families receive comprehensive medical,<br />
psychological and social services, in addition to physical and occupational<br />
therapy and genetic testing and counseling. The Society is<br />
comprised of 51 local chapters and affiliates across the country with<br />
its headquarters in New York City. Additionally, HDSA hosts more<br />
than 170 support groups for people with HD, their families, caregivers<br />
and people at-risk, and is the premiere resource on Huntington’s<br />
<strong>Disease</strong> for medical professionals and the general public. To learn<br />
more about Huntington’s disease and to get involved in HDSA,<br />
please visit www.hdsa.org or call 1-800-345-HDSA.<br />
What is Huntington’s <strong>Disease</strong>?<br />
Huntington’s <strong>Disease</strong> (HD) is a devastating, hereditary, degenerative<br />
brain disorder that results in a loss of cognitive, behavioral<br />
and physical control, and for which, presently, there is no cure and<br />
only one FDA-approved treatment for a symptom of HD. HD slowly<br />
diminishes the affected individual’s ability to walk, think, talk and<br />
reason. Symptoms usually appear in an individual between 30 and<br />
50 years of age and progress over a 10 to 25 year period. Cases of<br />
Juvenile HD has been diagnosed in children as young as two years of<br />
age. Eventually, a person with HD becomes totally dependent upon<br />
others for his or her care. More than 30,000 people in the United<br />
States are currently diagnosed with HD. Each of their siblings and<br />
children has a 50 percent risk of developing the disease, therefore<br />
250,000 are at risk. Although medications can relieve some<br />
symptoms in certain individuals, research has yet to find a means of<br />
conquering or even slowing the deadly progression of HD.<br />
How do proceeds benefit HDSA?<br />
All proceeds support HDSA’s fight to improve the lives of people<br />
affected by HD and their families.<br />
St. Louis CHAPTER<br />
26th ANNUAL<br />
Huntington’s <strong>Disease</strong><br />
<strong>Golf</strong> <strong>Tournament</strong><br />
Sunday,<br />
September 15, 2013<br />
Crescent Farms <strong>Golf</strong> Club<br />
745 Lewis Road, Eureka, MO 63025<br />
(636) 938-6202<br />
www.crescentfarms.com
26th Annual<br />
Huntington’s <strong>Disease</strong><br />
<strong>Golf</strong> <strong>Tournament</strong><br />
We are proud to announce the 26th Annual 4-Person Scramble<br />
<strong>Golf</strong> <strong>Tournament</strong> to benefit the St. Louis Chapter of the<br />
Huntington’s <strong>Disease</strong> Society of America (HDSA).<br />
Event Schedule<br />
*NOTE: Upon arrival, please proceed to the bag drop<br />
in the main parking lot.<br />
7:00am<br />
7:30 am TEE-OFF<br />
11:00 am-1:00 pm<br />
Morning Registration<br />
• Continental breakfast available<br />
• Sign-up for skins, mulligans, purchase<br />
raffle tickets & participate in silent auction<br />
BBQ LUNCH FOR ALL GOLFERS<br />
12:00 pm Afternoon Registration<br />
• Sign-up for skins, mulligans, purchase<br />
raffle tickets & participate in silent auction<br />
12:45 pm TEE-OFF<br />
6:00 pm Prizes Awarded<br />
• Light appetizers served<br />
Partnership Opportunities<br />
Patron Sponsorship $600<br />
• Four golfers with two mulligans and skins<br />
• Sign prominently displayed on course<br />
• Listing in tournament program<br />
Beverage Cart Sponsorship $300<br />
• Sign prominently displayed on beverage cart<br />
• Listing in tournament program<br />
Corporate/Personal /Tribute Sponsorship $100<br />
• Sign prominently displayed on course<br />
• Listing in tournament program<br />
Program Sponsorship $50<br />
• Listing in tournament program<br />
Foursome Registration $500<br />
• <strong>Golf</strong>, lunch, snacks and beverages included<br />
Individual <strong>Golf</strong>er Registration $125<br />
• <strong>Golf</strong>, lunch, snacks and beverages included<br />
Skins Game<br />
$20/team<br />
• Participation optional, but entire team must participate<br />
Mulligan<br />
$20/team<br />
• Two mulligans per team to be used anywhere on course<br />
Do you have a<br />
Silent Auction Item<br />
to donate?<br />
Please contact the chapter office<br />
at (314) 647-4372.<br />
<strong>Golf</strong>er Registration<br />
Participation Level QTY Price<br />
Patron Sponsorship $600<br />
Beverage Cart Sponsorship $300<br />
Corporate/Personal /Tribute Sponsorship $100<br />
Program Sponsorship $50<br />
Foursome Registration $500<br />
Individual <strong>Golf</strong>er Registration $125<br />
Skins Game (per team) $20<br />
Mulligan (per team) $20<br />
Please indicate how you prefer your 2013 Sign to read:<br />
REGISTRATION DEADLINE: SEPTEMBER 6, 2013<br />
Individual golfer or foursome captain:<br />
Sponsor company name:<br />
Contact:<br />
Address:<br />
City: St: Zip:<br />
Email:<br />
Phone:<br />
Select tee time: 7:30 am 12:45 pm<br />
<strong>Golf</strong>er 2:<br />
<strong>Golf</strong>er 3:<br />
<strong>Golf</strong>er 4:<br />
Fax:<br />
Payment options<br />
Check enclosed (Payable to HDSA-St. Louis Chapter)<br />
Charge my credit card: Visa | MasterCard | AMEX<br />
Card number:<br />
Exp. date:<br />
CVV number:<br />
Signature:<br />
(last three digits on the signature strip)<br />
I cannot attend, but please accept my tax-deductible<br />
donation of $<br />
Please return completed form to:<br />
HDSA - St. Louis Chapter<br />
3286 Ivanhoe Ave. • St. Louis, MO 63139<br />
Phone: (314) 647-4372 or (866) 707-4372<br />
pcribbin@hdsa.org • www.hdsa.org/stl
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