The Marker - 2004 - Huntington's Disease Society of America
The Marker - 2004 - Huntington's Disease Society of America
The Marker - 2004 - Huntington's Disease Society of America
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HDSA CENTERS OF EXCELLENCE<br />
NEW ENGLAND<br />
New England HDSA Center <strong>of</strong><br />
Excellence<br />
Charlestown, MA 02129<br />
Director: Steven Hersch, M.D., Ph.D.<br />
Center Contact: Yoshio Kaneko<br />
Phone: 617-724-2227<br />
Email: ykaneko@partners.org<br />
Social Worker: Judith Sinsheimer<br />
Phone: 617-726-2603<br />
Email: jsinsheimer@partners.org<br />
Current Research Opportunities<br />
Contact Yoshio Kaneko for PREDICT-HD;<br />
PHEND-HD; CREST; Longitudinal<br />
UHDRS database. HD MAPS (contact<br />
Ana Russ: 617-638-5483); PHAROS (contact<br />
Sona Gevorkian: 617-726-5892);<br />
Pre2Care (contact Kimberly Ferrante:<br />
617-724-4246)<br />
MIDDLE ATLANTIC<br />
HDSA Center <strong>of</strong> Excellence at the<br />
University <strong>of</strong> Rochester<br />
Rochester, NY 14620<br />
Directors: Ira Shoulson, M.D.; Peter<br />
Como, Ph.D.; Karl Kieburtz, M.D.<br />
Center Contact: Leslie Briner<br />
Phone: 585-273-4147<br />
Email: leslie.briner@ctcc.rochester.edu<br />
Social Worker: Amy Chesire, CSW-R,<br />
MSG<br />
Phone: 585-341-7519<br />
Email: amy.chesire@ctcc.rochester.edu<br />
Current Research Opportunities<br />
For PHAROS; CREST; and Pre2CARE<br />
(contact Carol Zimmerman:<br />
585-341-7500);<br />
For PREDICT-HD (contact Amy Chesire:<br />
585-341-7519); Neuropsychiatric<br />
Inventory in HD (contact Fredrick<br />
Marshall: 585-275-0557); PHEND-HD<br />
HDSA Center <strong>of</strong> Excellence at<br />
Columbia Health Sciences/NYS<br />
Psychiatric Institute<br />
New York, NY 10032<br />
Director: Karen Marder, M.D.<br />
Center Contact: Deborah Thorne, CSW<br />
Phone: 212-305-9172<br />
Social Worker: same as above<br />
Current Research Opportunities<br />
For PHAROS, PHAIMOS; and Brain Bank<br />
donor program (contact Carol<br />
Moskowitz: 212-305-5779); PREDICT–HD<br />
(contact Paula Leber: 212-305-4597 or<br />
Jennifer Williamson: 212-305-4655); for<br />
Interviews on Living with HD (contact Dr.<br />
Robert Klitzman: 212-740-7324);<br />
Changes in Walking Patterns (contact<br />
Deborah Thorne: 212-305-9172).<br />
George G. Powell HDSA Center <strong>of</strong><br />
Excellence at North Shore University<br />
Hospital<br />
Manhasset, NY 11030<br />
Director: Andrew Feigin, M.D.<br />
Center Contact: Mary Ellen Benisatto<br />
Phone: 516-869-9527<br />
Social Worker: Ellen Landau, CSW<br />
Phone: 516-869-9527<br />
Current Research Opportunities<br />
PHAROS; CREST; TETRA-HD; PET<br />
Imaging (contact Dennis Zgaljardic,<br />
Ph.D. for all research studies:<br />
516-562-2401)<br />
HDSA Center <strong>of</strong> Excellence<br />
at Johns Hopkins<br />
Baltimore, MD 21287<br />
Directors: Christopher Ross, M.D., Ph.D.<br />
Adam Rosenblatt, M.D.<br />
Center Contact: Debbie Pollard<br />
Phone: 410-955-2398<br />
Email: dpollard@jhmi.edu<br />
Social Worker: Catherine McFarlane<br />
Phone: 410-955-2497<br />
Email: cmcfarl1@jhmi.edu<br />
Current Research Opportunities<br />
For Longitudinal UHDRS database, PRE-<br />
DICT, Outreach Study, Brain Bank (donor<br />
program), Identification <strong>of</strong> Neurological<br />
and Psychiatric Disorders (contact Lisa<br />
Gourley: 410-955-1349); for PHAROS<br />
and presymptomatic testing (contact<br />
Debbie Pollard: 410- 955-2398); Genetic<br />
Factors that Influence HD, HD MAPS,<br />
fMRI Study<br />
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