Understanding Behavior in HD.final.8-18-05 - Huntington's Disease ...

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vii Table of Contents DIFFICULT BEHAVIORS IN HUNTINGTON’S DISEASE Huntington’s Disease: An Overview Difficult Behaviors in Huntington’s Disease How Does the Brain Contribute to Behavior Changes in HD? Understanding Anatomy and Related Behaviors Understanding Brain Communication and Circuitry Understanding the Role of the Caudate in the Brain How Can the Environment Contribute to Behavior Difficulties in HD? Routine Distractions How Can Individual Factors Contribute to Behavior Difficulties in HD? Unique Personality Stage of Illness Loss Safety and Self-Esteem Other Health Factors Acute and Chronic Illness Food Reactions Dehydration Fatigue Physical Discomfort Undetected Visual or Hearing Impairments The Effects of Medications 1 1 1 2 2 4 5 7 7 7 8 8 8 9 10 11 11 11 11 11 12 12 12 APPROACHES TO SOLVING BEHAVIOR PROBLEMS IN HD Guidelines to Problem Solving Approaches to Good Communication Environmental Concerns Care for Caregivers 13 13 14 15 16
viii COMMON BEHAVIOR CONCERNS IN HD Communication Memory Executive Functions Apathy and Diminished Ability to Initiate Activities Organization Impulse Control Frustration, Irritability, Anger and Temper Outbursts Denial and Unawareness Repetition and Perseveration Depression Anxiety Psychosis: Hallucinations and Delusions Altered Sexuality Sleep Disturbances 19 19 23 25 26 27 28 29 31 33 34 36 37 37 38 AUTHOR’S NOTE 40 APPENDICES I. Voluntary Organizations and Other Sources of Help II. Brain Tissue Banks/DNA Bank and HD Research Roster III. HDSA Chapters IV. HDSA Centers of Excellence V. Rehabiliation/Adaptive Equipment and Product Information 41 43 45 47 51 55
Page 2 and 3: Understanding Behavior in Huntingto
Page 4 and 5: iii Acknowledgements Most of what I
Page 8 and 9: Difficult Behaviors in Huntington
Page 10 and 11: 3 at the caudate and its importance
Page 12 and 13: 5 A brain circuit is made of neuron
Page 14 and 15: 7 HOW CAN THE ENVIRONMENT CONTRIBUT
Page 16 and 17: 9 Stage I: (0-8 years from illness
Page 18 and 19: 11 In general, maintenance of an in
Page 20 and 21: Approaches to Solving Behavior Prob
Page 22 and 23: 15 LISTENING SKILLS • Listen acti
Page 24 and 25: 17 A RECIPE FOR CAREGIVER SURVIVAL
Page 26 and 27: Common Behavior Concerns in HD COMM
Page 28 and 29: 21 As HD causes the neurons in the
Page 30 and 31: 23 SUGGESTIONS FOR COMMUNICATION
Page 32 and 33: 25 COMPARISONS BETWEEN HD AND ALZHE
Page 34 and 35: 27 A common, and normal, response t
Page 36 and 37: 29 • Medications may be helpful f
Page 38 and 39: 31 • The environment should be as
Page 40 and 41: 33 Mary notes that her speech and c
Page 42 and 43: 35 tell whether a person’s sympto
Page 44 and 45: 37 STRATEGIES TO MANAGE ANXIETY •
Page 46 and 47: 39 time in bed to get adequate rest
Page 48 and 49: Appendices
Page 50 and 51: 45 Appendix II Brain Tissue Banks/D
Page 52 and 53: 47 Appendix III HDSA Chapters HDSA
Page 54 and 55: 49 MASSACHUSETTS Massachusetts Chap
Page 56 and 57:
51 Appendix IV HDSA Centers of Exce
Page 58:
53 NEW YORK HDSA Center of Excellen
Page 61 and 62:
56 PDG, MedBloc 700 Ensminger Road,
Page 63:
Huntington’s Disease Society of A
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Understanding Behavior in HD.final.8-18-05 - Huntington's Disease ...

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