Understanding Behavior in HD.final.8-18-05 - Huntington's Disease ...

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47 Appendix III HDSA Chapters HDSA chapters provide sources and referrals for local and community resources. Information may change over time. Please visit the HDSA national web site at www.hdsa.org for updated chapter information or call 800-345-HDSA to locate the HDSA chapter closest to you. ALABAMA Alabama Support Group 5750 Picketts Lane Pinson, AL 35126 Phone: 205-325-3877 ARIZONA Arizona Affiliate P.O. Box 7666 Phoenix, AZ 85282 Phone: 888-267-3411 Fax: 480-394-0511 HDSA_AZ@hotmail.com www.hdsa-az.com ARKANSAS Arkansas Affiliate c/o Sandra Boll HDSA Midwest 466 Fox Trail Drive St Louis, MO, 63367 Phone: 800-558-3370 800-536-1728 (Pin no. 5935) hdsa-arkansas@comcast.net CALIFORNIA Greater Los Angeles Chapter 9903 Santa Monica Blvd. Suite 106 Beverly Hills, CA 90212 Phone: 888-4-HDSA LA 888-443-7252 800-686-9868 Northern California Chapter 3940 Industrial Blvd, Suite 100 D West Sacramento, CA 95691 Phone: 916-372-1895 Fax: 916-371-2468 Helpline: 888-828-7344 www.hdsanortherncalifornia.org Orange County Affiliate c/o Dennis Mesnick HDSA Regional Development Director 1017 F Street San Diego, CA, 92101 Phone: 619-544-1792 hdsamesnick@cox.net San Diego Chapter P.O. Box 19524 San Diego, CA 92519-0524 Phone: 760-752-1844 800-473-4014 www.hdsasandiego.org COLORADO Rocky Mountain Chapter 6545 West 44th Ave., Unit 1 Wheat Ridge, CO 80033 Phone: 303-321-5503 877-740-HDSA 303-837-9937 www.hdsarockymountain.org
48 CONNECTICUT Connecticut Affiliate P.O. Box 719 Southington, CT 06489 Phone: 508-872-8102 Fax: 508-872-8103 FLORIDA South Florida Chapter 12555 Biscayne Blvd. North Miami, FL 33181 Phone: 305-274-7411 Fax: 305-665-3038 GEORGIA Georgia Chapter P.O. Box 15298 Atlanta, Georgia 30333 Phone: 770-729-9207 Fax: 678-461-3518 www.hdsaga.org ILLINOIS Illinois Chapter PO Box 8383 Rolling Meadows, IL 60008 Phone: 630-443-9876 INDIANA Indiana Chapter P.O. Box 2101 Indianapolis, IN 46206 Phone: 317-271-0624 Fax: 317-722-7614 www.hdsaindiana.org IOWA Iowa Chapter 600 N. 21st Street Clarinda, IA 51632 Phone: 866-248-IAHD (4243) 712-542-4976 Fax: 712-379-3317 hdsaiowachapter@hotmail.com KANSAS Kansas Affiliate c/o Sandra Boll HDSA Midwest Regional Development Director 466 Fox Trail Drive St Louis, MO, 63367 Phone: 314-313-3644 KENTUCKY Kentucky Chapter c/o Kosair Charities 982 Eastern Parkway Louisville, KY 40217 Phone: 502-637-4372 800-784-3721 Fax: 502-637-4310 HDSAKyChapter@aol.com MARYLAND Maryland Chapter The Rotunda 711 West 40th St Baltimore, MD 21211 Phone: 630-443-9876 410-467-5388 Fax: 410-467-4143
Page 2 and 3: Understanding Behavior in Huntingto
Page 4 and 5: iii Acknowledgements Most of what I
Page 6 and 7: vii Table of Contents DIFFICULT BEH
Page 8 and 9: Difficult Behaviors in Huntington
Page 10 and 11: 3 at the caudate and its importance
Page 12 and 13: 5 A brain circuit is made of neuron
Page 14 and 15: 7 HOW CAN THE ENVIRONMENT CONTRIBUT
Page 16 and 17: 9 Stage I: (0-8 years from illness
Page 18 and 19: 11 In general, maintenance of an in
Page 20 and 21: Approaches to Solving Behavior Prob
Page 22 and 23: 15 LISTENING SKILLS • Listen acti
Page 24 and 25: 17 A RECIPE FOR CAREGIVER SURVIVAL
Page 26 and 27: Common Behavior Concerns in HD COMM
Page 28 and 29: 21 As HD causes the neurons in the
Page 30 and 31: 23 SUGGESTIONS FOR COMMUNICATION
Page 32 and 33: 25 COMPARISONS BETWEEN HD AND ALZHE
Page 34 and 35: 27 A common, and normal, response t
Page 36 and 37: 29 • Medications may be helpful f
Page 38 and 39: 31 • The environment should be as
Page 40 and 41: 33 Mary notes that her speech and c
Page 42 and 43: 35 tell whether a person’s sympto
Page 44 and 45: 37 STRATEGIES TO MANAGE ANXIETY •
Page 46 and 47: 39 time in bed to get adequate rest
Page 48 and 49: Appendices
Page 50 and 51: 45 Appendix II Brain Tissue Banks/D
Page 54 and 55: 49 MASSACHUSETTS Massachusetts Chap
Page 56 and 57: 51 Appendix IV HDSA Centers of Exce
Page 58: 53 NEW YORK HDSA Center of Excellen
Page 61 and 62: 56 PDG, MedBloc 700 Ensminger Road,
Page 63: Huntington’s Disease Society of A

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