Understanding Behavior in HD.final.8-18-05 - Huntington's Disease ...

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45 Appendix II Brain Tissue Banks/DNA Bank and HD Research Roster Brain Tissue Banks The greatest gift to research and future generations is the donation of the HD patient's brain. For information on brain tissue donation, write or call: University of California at San Diego Alzheimer's Disease Research Center (also performs HD research) Phone: 858-622-5800 Email: jlgoldstein@ucsd.edu Harvard Brain Tissue Resource Center McLean Hospital, Belmont, MA Phone: 1-800-Brainbank Email: btrc@mclean.org Website: www.brainbank.mclean.org The New York Brain Bank at Columbia University New York, NY Phone: 212-305-5779 Beeper: 917-889-2045 (emergency donations) University of Rochester Department of Neurology, Movement Disorders Center Rochester, NY Phone: 585-341-7500 (if clinic closed ask for movement disorders physician on call) University of Washington Laboratory of Neuropathology Phone: 206-731-6315 Email: cfederha@u.washington.edu Massachusetts General Hospital Department of Neurology Charlestown (Boston), MA Phone: 617-726-1254 Email: hersch@helix.mgh.harvard.edu Buckeye Brain Bank Ohio State University Department of Neurology Phone: 614-293-8531 Note: Due to storage limitations, the Buckeye Brain Bank is restricted to OSU patients only. Sun Health Research Institute Sun City, AZ Email: lucia.sue@sunhealth.org Phone: 623-876 5328 Website: www.sunhealth.org/shri National Neurological Research Specimen Bank VA Medical Center, Neurology Research, Los Angeles, CA Phone: 310-268 3536 Email: brainbnk@ucla.edu Website: http://www.loni.ucla.edu/~nnrsb/nnrsb Loyola University Medical Center/ Hines VA Brain Bank Department of Pathology Maywood, IL Phone: 708-216 8270 E-mail: dmagnus@lumc.edu
46 DNA Bank and HD Research Roster The roster is a vital link between scientists and HD families to facilitate research. All information is strictly confidential. The DNA Bank was established for the purpose of storing genetic material for possible future use. Cost to store a sample is $70.00. For information contact: Indiana University Medical Center 975 West Walnut Street Indianapolis, IN 46202 HD Roster: 317-274-5744 Email: sfox@medgen.iupui.edu DNA Bank: 317-274-5745 Email: scraig@medgen.iupui.edu
Page 2 and 3: Understanding Behavior in Huntingto
Page 4 and 5: iii Acknowledgements Most of what I
Page 6 and 7: vii Table of Contents DIFFICULT BEH
Page 8 and 9: Difficult Behaviors in Huntington
Page 10 and 11: 3 at the caudate and its importance
Page 12 and 13: 5 A brain circuit is made of neuron
Page 14 and 15: 7 HOW CAN THE ENVIRONMENT CONTRIBUT
Page 16 and 17: 9 Stage I: (0-8 years from illness
Page 18 and 19: 11 In general, maintenance of an in
Page 20 and 21: Approaches to Solving Behavior Prob
Page 22 and 23: 15 LISTENING SKILLS • Listen acti
Page 24 and 25: 17 A RECIPE FOR CAREGIVER SURVIVAL
Page 26 and 27: Common Behavior Concerns in HD COMM
Page 28 and 29: 21 As HD causes the neurons in the
Page 30 and 31: 23 SUGGESTIONS FOR COMMUNICATION
Page 32 and 33: 25 COMPARISONS BETWEEN HD AND ALZHE
Page 34 and 35: 27 A common, and normal, response t
Page 36 and 37: 29 • Medications may be helpful f
Page 38 and 39: 31 • The environment should be as
Page 40 and 41: 33 Mary notes that her speech and c
Page 42 and 43: 35 tell whether a person’s sympto
Page 44 and 45: 37 STRATEGIES TO MANAGE ANXIETY •
Page 46 and 47: 39 time in bed to get adequate rest
Page 48 and 49: Appendices
Page 52 and 53: 47 Appendix III HDSA Chapters HDSA
Page 54 and 55: 49 MASSACHUSETTS Massachusetts Chap
Page 56 and 57: 51 Appendix IV HDSA Centers of Exce
Page 58: 53 NEW YORK HDSA Center of Excellen
Page 61 and 62: 56 PDG, MedBloc 700 Ensminger Road,
Page 63: Huntington’s Disease Society of A

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