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Understanding Behavior in HD.final.8-18-05 - Huntington's Disease ...

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Preface<br />

This book was written for the caregivers and people affected by Hunt<strong>in</strong>gton’s <strong>Disease</strong> (<strong>HD</strong>). Caregivers<br />

may <strong>in</strong>clude family members (partners, children, parents, and sibl<strong>in</strong>gs), friends, and direct care staff (nurses,<br />

nurs<strong>in</strong>g assistants, physical and occupational therapists, speech therapists, and social workers). The materials<br />

will also be useful to other professionals, such as neurologists, general practitioners, psychologists and<br />

psychiatrists, who provide advice to persons with <strong>HD</strong> and their caregivers. This book was <strong>in</strong>tended to help<br />

better understand the various causes of behaviors <strong>in</strong> <strong>HD</strong> and to provide strategies to cope with difficult<br />

behaviors.<br />

People used to argue about whether behavior was “caused” by genes, diet, weather, politics, child-rear<strong>in</strong>g<br />

practices, or a variety of other potential <strong>in</strong>fluences. Today we f<strong>in</strong>d it more useful to th<strong>in</strong>k of multiple causes of<br />

behavior, <strong>in</strong>clud<strong>in</strong>g past experiences, current health, and expectations for the future. Over the past several<br />

years, scientists have discovered many ways <strong>in</strong> which the bra<strong>in</strong> contributes to behavior. Many of the behavior<br />

patterns observed <strong>in</strong> persons with <strong>HD</strong> are similar because the same part of the bra<strong>in</strong> is affected <strong>in</strong> everyone<br />

with <strong>HD</strong>. Throughout this book I have addressed some of the major behavior patterns that we see <strong>in</strong> persons<br />

with <strong>HD</strong>.

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