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Understanding Behavior in HD.final.8-18-05 - Huntington's Disease ...

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43<br />

Appendix I<br />

Voluntary Organizations and Other Sources of Help<br />

National and International Lay Organizations<br />

The national <strong>HD</strong> lay organizations offer a range of services and care programs to benefit<br />

people with <strong>HD</strong> and their families. In addition, they operate research, education and<br />

advocacy programs, and are a useful source of <strong>in</strong>formation and referrals for both families<br />

and health care professionals.<br />

HUNTINGTON’S DISEASE SOCIETY OF AMERICA<br />

5<strong>05</strong> Eighth Avenue, N<strong>in</strong>th Floor<br />

New York, NY 100<strong>18</strong><br />

Phone: 800-345-<strong>HD</strong>SA<br />

Fax: 212-239-3430<br />

Email: hdsa<strong>in</strong>fo@hdsa.org<br />

Web site: www.hdsa.org<br />

HUNTINGTON SOCIETY OF CANADA<br />

151 Frederick Street, Suite 400<br />

Kitchener, Ontario N2H 2M2<br />

CANADA<br />

Phone: 519-749-7063<br />

Toll-free <strong>in</strong> Canada: 800-998-7398<br />

Fax: 519-749-8965<br />

Email: <strong>in</strong>fo@hsc-ca.org<br />

Web site: www.hsc-ca.org<br />

For <strong>in</strong>formation on, or referral to, lay organizations <strong>in</strong> other countries, contact:<br />

HUNTINGTON’S DISEASE SOCIETY OF AMERICA<br />

Go to the <strong>HD</strong>SA national website at www.hdsa.org and click on “About”, click “About<br />

<strong>HD</strong>SA” and then “Helpful <strong>HD</strong> L<strong>in</strong>ks” or contact”<br />

INTERNATIONAL HUNTINGTON ASSOCIATION<br />

www.hunt<strong>in</strong>gton-assoc.com

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