Understanding Behavior in HD.final.8-18-05 - Huntington's Disease ...

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Understanding Behavior in Huntington’s Disease A practical guide for individuals, families, and professionals coping with HD Second Edition by Jane S. Paulsen, Ph.D. Associate Professor of Psychiatry and Neurology The University of Iowa College of Medicine Huntington’s Disease Society of America 505 Eighth Avenue, Ninth Floor New York, New York 10018 212-242-1968 • 1-800-345-HDSA • www.hdsa.org Published with funding from a generous Educational Grant from The Bess Spiva Timmons Foundation, Inc.
ii DISCLAIMER Statements and opinions expressed in this book are not necessarily those of the Huntington’s Disease Society of America, Inc., nor does HDSA promote, endorse or recommend any treatment, therapy or product mentioned herein. The lay reader should consult a physician or other appropriate health care professional concerning any advice, product, treatment or therapy set forth in this book. © 1999 Huntington’s Disease Society of America All rights reserved. Second edition, newly revised. Printed in the United States of America. ISBN 0-9637730-4-6
Page 4 and 5: iii Acknowledgements Most of what I
Page 6 and 7: vii Table of Contents DIFFICULT BEH
Page 8 and 9: Difficult Behaviors in Huntington
Page 10 and 11: 3 at the caudate and its importance
Page 12 and 13: 5 A brain circuit is made of neuron
Page 14 and 15: 7 HOW CAN THE ENVIRONMENT CONTRIBUT
Page 16 and 17: 9 Stage I: (0-8 years from illness
Page 18 and 19: 11 In general, maintenance of an in
Page 20 and 21: Approaches to Solving Behavior Prob
Page 22 and 23: 15 LISTENING SKILLS • Listen acti
Page 24 and 25: 17 A RECIPE FOR CAREGIVER SURVIVAL
Page 26 and 27: Common Behavior Concerns in HD COMM
Page 28 and 29: 21 As HD causes the neurons in the
Page 30 and 31: 23 SUGGESTIONS FOR COMMUNICATION
Page 32 and 33: 25 COMPARISONS BETWEEN HD AND ALZHE
Page 34 and 35: 27 A common, and normal, response t
Page 36 and 37: 29 • Medications may be helpful f
Page 38 and 39: 31 • The environment should be as
Page 40 and 41: 33 Mary notes that her speech and c
Page 42 and 43: 35 tell whether a person’s sympto
Page 44 and 45: 37 STRATEGIES TO MANAGE ANXIETY •
Page 46 and 47: 39 time in bed to get adequate rest
Page 48 and 49: Appendices
Page 50 and 51: 45 Appendix II Brain Tissue Banks/D
Page 52 and 53:
47 Appendix III HDSA Chapters HDSA
Page 54 and 55:
49 MASSACHUSETTS Massachusetts Chap
Page 56 and 57:
51 Appendix IV HDSA Centers of Exce
Page 58:
53 NEW YORK HDSA Center of Excellen
Page 61 and 62:
56 PDG, MedBloc 700 Ensminger Road,
Page 63:
Huntington’s Disease Society of A
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