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9/7/2013<br />

Andy’s Story<br />

I first met Andy more than ten years<br />

ago, when he walked into my office<br />

along with his father. He explained<br />

that he was now running a successful<br />

landscaping business with three<br />

employees. Andy’s father shook his<br />

head and said, “I don’t know if I’ll ever<br />

forgive those doctors for being so<br />

negative.”<br />

Andy’s Story<br />

His father explained, “When Andy was<br />

first hurt, the doctors told us he<br />

probably would not live through the<br />

night. He was in the hospital for<br />

almost two months. A few days before<br />

discharge, the doctors told us he<br />

probably would never be able to walk.<br />

They were even more certain he would<br />

never hold a job.”<br />

Andy’s Story<br />

Andy recently stopped by my<br />

office again, <strong>this</strong> time with<br />

his wife. I talked with them<br />

both for a long time, listening<br />

carefully as they filled me in<br />

on the last ten years.<br />

Andy’s Story<br />

They met in church and were<br />

married after dating for more<br />

than a year. Soon after their<br />

third anniversary the first of<br />

their two children was born.<br />

Three years later their son<br />

was born.<br />

Andy’s Story<br />

Andy’s wife smiled and held his hand as she<br />

talked. She described him as a wonderful<br />

husband, a good provider, and a loving and<br />

patient father. His wife said, “His memory is<br />

not the best so he writes everything down.”<br />

She looked at him and said, “He’s never<br />

forgotten a birthday or anniversary.<br />

Not even once.”<br />

1


9/7/2013<br />

The Case of Bill<br />

Three years ago, 28 year old Bill sustained a severe<br />

brain injury in a high speed motor vehicle collision. On<br />

admission to the emergency room, GCS was 7. Head CT<br />

revealed a right temporal contusion and a large left<br />

parietal intracranial hemorrhage with a depressed skull<br />

fracture. He underwent a left craniectomy with skull<br />

fracture debridement and ICH removal. Hospitalized for<br />

more than a month, Bill was discharged home in the<br />

care of his wife.<br />

The Case of Tom<br />

Three years ago, 28 year old Tom sustained a severe<br />

brain injury in a high speed motor vehicle collision. On<br />

admission to the emergency room, GCS was 7. Head CT<br />

revealed a right temporal contusion and a large left<br />

parietal intracranial hemorrhage with a depressed skull<br />

fracture. He underwent a left craniectomy with skull<br />

fracture debridement and ICH removal. Hospitalized for<br />

more than a month, Tom was discharged home in the<br />

care of his wife.<br />

The Case of Bill<br />

Unemployed and Living with His Parents<br />

Three years after his injury, Bill now lives with his parents and they<br />

now have a turbulent relationship. His wife and two young children<br />

are living without him in the home they once shared. After<br />

repeatedly cursing and yelling at them and punching holes in the<br />

wall, Bill’s wife obtained a court order forcing him out of their home.<br />

Despite numerous requests <strong>from</strong> his wife and parents, Bill had<br />

declined to see a doctor or counselor and denied having problems he<br />

couldn’t handle himself. Bill is now unemployed. He went back to<br />

his old job as a landscaper and three weeks later was fired for<br />

repeatedly arguing with customers. Bill found several other jobs, but<br />

wasn’t able to hold any of them for more than a short time. Angry, he<br />

told his parents, “my life has been ruined forever by <strong>this</strong> accident.”<br />

The Case of Tom<br />

Working and Living with His Wife and Children<br />

Three years after his injury, Tom was living with his wife and two<br />

young children. Soon after returning home, he began to have bouts<br />

of depression. With encouragement <strong>from</strong> his wife, he saw his family<br />

doctor who provided medication and referred him to a counselor for<br />

weekly sessions. Tom also began to attend a monthly brain injury<br />

support group. He learned that sharing his thoughts and feelings with<br />

others helped him adjust and function. Tom tried going back to work<br />

full‐time as a landscaper and initially had problems with fatigue and<br />

headaches. With support <strong>from</strong> his supervisor and colleagues, Tom<br />

backed down to a part‐time schedule. After eight months, he was<br />

gradually able to resume a full‐time schedule. Tom recently received<br />

a sizable raise. Smiling, his supervisor told him, “I know I can trust<br />

you. You never complain and you’re the hardest working man here.”<br />

What Bill said….<br />

• To avoid disappointment, I<br />

imagine the worst thing<br />

that can happen.<br />

• I’ll get stronger if I trust<br />

no one and solve my<br />

problems by myself.<br />

• My future has been<br />

permanently destroyed by<br />

<strong>this</strong> trauma.<br />

• When something goes<br />

wrong, I fear that I’ll<br />

never recover.<br />

What Tom said…<br />

• I’m usually optimistic<br />

and see problems as<br />

temporary.<br />

• I have good friends I can<br />

talk to who help me<br />

out.<br />

• I’ve been made stronger<br />

and better by <strong>this</strong><br />

difficult experience.<br />

• When bad things<br />

happen, I’m not down<br />

for long<br />

2


9/7/2013<br />

What Bill said….<br />

• I’ve learned that most<br />

people have nothing good<br />

or helpful to say.<br />

• I don’t like who I am now.<br />

My self‐confidence has<br />

vanished.<br />

• Mistakes only lead to<br />

depression and more<br />

mistakes.<br />

• I choose to be around<br />

people who are just like me.<br />

• If my first solution to a<br />

problem fails, I usually<br />

panic.<br />

What Tom said…<br />

• I listen carefully and<br />

consider other people’s<br />

opinions.<br />

• I know my strengths and<br />

work to build my selfconfidence.<br />

• I do my best to learn <strong>from</strong><br />

mistakes and try to do<br />

better next time.<br />

• I enjoy being around<br />

different kinds of people.<br />

• If my first solution to a<br />

problem fails, I try to find<br />

another solution.<br />

What is Resilience?<br />

Definition: “… the ability to withstand<br />

and rebound <strong>from</strong> disruptive life<br />

challenges… involves dynamic<br />

processes fostering adaptation within<br />

the context of significant adversity.”<br />

From Walsh, F. (2003) Family Process, 42 (1).<br />

Defining<br />

Resilience, Resilient, and Resiliency<br />

o Cope well in the face of ongoing disruptive change<br />

o Maintain good health and energy in the face of<br />

constant pressure<br />

o Overcome adversities, bounce back <strong>from</strong> setbacks<br />

o Change to a new way of working or living when<br />

maintaining the old way is not possible<br />

o Do all <strong>this</strong> without behaving in harmful or<br />

dysfunctional ways<br />

Goals in Learning to be Resilient<br />

o Remain calm under pressure<br />

o Improve creative, analytical, and practical problem<br />

solving skills<br />

o Maintain optimism, humor, and positive feelings in the<br />

face of challenges<br />

o Avoid thinking of one’s self (and others) as a victim<br />

o Be self‐reliant and socially responsible<br />

o Understand that learning leads to a better life<br />

o Derive good fortune <strong>from</strong> misfortune<br />

From Siebert, A., The Resiliency Advantage, © 2005<br />

Al Siebert (2005)<br />

“When resilient people have their lives<br />

disrupted they handle their feelings in<br />

healthy ways. They allow themselves to feel<br />

grief, anger, loss, and confusion when hurt<br />

and distressed, but they don’t let it become a<br />

permanent feeling state… They are examples<br />

of Nietzsche’s statement, ‘That which does<br />

not kill me makes me stronger’.”<br />

The Resiliency Advantage<br />

Attack<br />

Al Siebert, 2003<br />

Disruptive<br />

Change<br />

Numb<br />

Upset<br />

Thrive<br />

Resile<br />

Cope<br />

Victim<br />

3


9/7/2013<br />

Laying the Groundwork for Resilience<br />

• Life change is possible<br />

• Thoughts and emotions are essential<br />

components of our humanity<br />

• Thinking accurately is essential<br />

• Focus on strengths while avoiding a<br />

tendency to focus on the negative<br />

Life Change is Possible<br />

“… people can change their lives. This is a powerful<br />

concept, a modern one. The notion that humans are not<br />

bound and gagged by the fallout of their early childhoods,<br />

that they can change their behavior at any time in their<br />

lives, seems such a truism to some people<br />

today. Historically, people have believed<br />

that lasting change was not possible.<br />

Even now, many people cling to the<br />

notion that the first few years of life<br />

determine everything about a person<br />

and her future.”<br />

From Reivich & Shatte, The Resilience Factor, © 2002<br />

Thoughts and Emotions<br />

“.. Over the years he (Aaron Beck) came to<br />

recognize what an enormous body of research<br />

now confirms – cognitions cause emotions, and<br />

emotions matter in determining who remains<br />

resilient and who succumbs… The success of<br />

cognitive therapy highlights what many of us<br />

already suspect –that our thoughts and<br />

emotions are the very core of who we are; that<br />

they represent our essential humanity.”<br />

From Reivich & Shatte, The Resilience Factor, © 2002<br />

Thinking Accurately<br />

“.. Realistic optimism is the ability to maintain a positive<br />

outlook without denying reality, actively appreciating the<br />

positive aspects of a situation without ignoring the<br />

negative aspects. It means aspiring and hoping for<br />

positive outcomes, and working toward those outcomes<br />

without assuming that these outcomes are a forgone<br />

conclusion. Realistic optimism does not assume that good<br />

things will happen automatically. It is the belief that good<br />

things may happen and are worth pursuing, but that<br />

effort, problem solving, and planning are necessary to<br />

bring them about.”<br />

From Reivich & Shatte, The Resilience Factor, © 2002<br />

Positive Psychology<br />

“.. This new social science aims to create an<br />

empirical body of knowledge of optimal human<br />

functioning… Two basic goals: To increase<br />

understanding of the human strengths through<br />

the development of classification systems and<br />

methods to measure these strengths; To infuse<br />

<strong>this</strong> knowledge into effective programs and<br />

interventions design to build strengths rather<br />

than remediate weaknesses.”<br />

From Reivich & Shatte, The Resilience Factor, © 2002<br />

Strength‐Based Care Models<br />

o “Disciplines which have embraced a shift<br />

toward strength‐based models of care<br />

have done so for both practical and<br />

humanistic reasons<br />

o Researchers (e.g., Duncan, 2010) have<br />

established that a dominant factor in<br />

positive therapeutic outcomes is a therapy<br />

client’s orientation toward hope and<br />

change.<br />

Godwin & Kreutzer, Brain Injury, 2013<br />

4


9/7/2013<br />

Strength‐Based Care Models<br />

o In fact, empirical support demonstrates<br />

that 30% or more of therapy‐based<br />

growth can be attributed to a client’s<br />

ability to be optimistic and flexible.<br />

o Processes designed to facilitate the<br />

promotion of resilient traits are<br />

tied to successful outcomes.”<br />

Godwin & Kreutzer, Brain Injury, 2013<br />

Focus on Strengths<br />

“Resilience is the basic strength underpinning<br />

all the positive characteristics in a<br />

person’s emotional and psychological<br />

makeup. A lack of resilience is the major<br />

cause of negative functioning. Without<br />

resilience there is no courage, no<br />

rationality, no insight. It is the bedrock on<br />

which all else is built.”<br />

From Reivich & Shatte, The Resilience Factor, © 2002<br />

Rationale for Investigating Resilience<br />

• The profile of a resilient population after TBI has<br />

not been established<br />

• To date, the natural process of resilience<br />

development following TBI has not been<br />

investigated<br />

• Identification of correlating variables and the<br />

path to resilience can strengthen interventions<br />

designed to promote resilience after TBI<br />

Traits and Skills<br />

Researchers in the field of resilience have<br />

determined that:<br />

a. the skills that are associated with a resilient and<br />

adaptive response to trauma are neither<br />

“superhuman” nor extraordinary; and<br />

b. resilient skills can be initiated and/or<br />

strengthened in individuals who have<br />

previously demonstrated non‐resilient profiles.<br />

Common TBI Challenges and<br />

Skills Necessary for Resilience<br />

Research project partly funded by the U.S. Department<br />

of Education, National Institute on Disability and<br />

Rehabilitation Research (NIDRR) #H133A120031.<br />

Common TBI Deficits and Challenges<br />

Anxiety, depression<br />

Skills Necessary for Resilience<br />

Even temperament, emotional<br />

stability<br />

Survivor focus on deficits, frequent Positive outlook, optimism<br />

comparisons to pre‐injury functioning<br />

Irritability, aggressive behaviors Self‐regulatory skills and eventempered<br />

behaviors<br />

Discomfort with socialization Social perception, arousal of liking<br />

response in others<br />

Impaired self awareness<br />

Insightful modification of behavior<br />

Cognitive deficits, impaired executive Good problem solving skills<br />

functioning<br />

Diminished communication skills Effective communication<br />

5


9/7/2013<br />

1. Assumptions Underlying the Resilience<br />

and Adjustment Intervention<br />

• Successful survivorship is based in<br />

individual resilience.<br />

• Survivors who embody, or who learn to<br />

adopt traits identified as key to resilient<br />

living will find increasing success in<br />

their recovery and growing satisfaction<br />

with their postinjury lives.<br />

2. Assumptions Underlying the Resilience<br />

and Adjustment Intervention<br />

• Achieving postinjury emotional<br />

wellness requires a clear<br />

understanding of injury‐related<br />

symptoms, commonly encountered<br />

challenges, and recovery processes.<br />

3. Assumptions Underlying the Resilience<br />

and Adjustment Intervention<br />

• A key feature of resilience is<br />

developing insight into one’s own<br />

behavioral response to trauma.<br />

• Survivors who are more aware of<br />

their strengths and limitations are<br />

more likely to lead productive and<br />

meaningful lives.<br />

4. Assumptions Underlying the Resilience<br />

and Adjustment Intervention<br />

• Resilient individuals are skillful at<br />

problem solving, goal setting,<br />

communicating, and managing stress<br />

and intense emotions.<br />

• Helping survivors develop these skills<br />

benefits their ability to be productive<br />

and maintain quality relationships.<br />

5. Assumptions Underlying the Resilience<br />

and Adjustment Intervention<br />

• Survivors are more likely to improve<br />

when they develop resilient traits,<br />

such as being actively engaged in<br />

recovery, and are able to maintain a<br />

positive outlook.<br />

Goals of the RAI Program<br />

1. To provide survivors with fundamental<br />

information about common symptoms and<br />

challenges after TBI<br />

2. To help survivors develop core abilities, enabling<br />

them to more effectively problem solve and<br />

efficiently achieve personal goals<br />

3. To teach coping strategies that facilitate the<br />

process of emotional recovery, helping survivors<br />

to feel better about themselves, their lives, and<br />

their relationships<br />

6


9/7/2013<br />

Goals of the RAI Program<br />

4. To teach survivors effective communication<br />

skills, enabling them to develop effective longterm<br />

support systems<br />

5. To instill hope and a positive outlook by<br />

identifying progress and personal strengths,<br />

and helping survivors access community<br />

resources<br />

<br />

<br />

<br />

RAI Implementation<br />

Five week, seven session format with two or<br />

three topics covered during each sixty minute<br />

session<br />

Total of 16 topics covered via self‐assessment,<br />

discussion, and structured learning<br />

experiences<br />

Sessions implemented hierarchically; earlier<br />

topics provide foundation for later topics<br />

RAI Implementation<br />

Time span between sessions allows for<br />

homework completion, reflection, trying<br />

out strategies and solutions to problems<br />

Sessions conducted by single qualified<br />

therapist with single survivor<br />

Resilience and Adjustment Intervention<br />

Accommodations<br />

Written materials provided in large print<br />

to accommodate visual impairments.<br />

Materials written at a 5 th grade level for<br />

people with limited reading skills.<br />

Information is presented in writing,<br />

orally, and visually for people with<br />

different learning styles.<br />

No doubt, each<br />

patient, each family<br />

member, and each<br />

family is unique.<br />

Yet, research and clinical<br />

experience indicates that<br />

most survivors have<br />

similar concerns and many<br />

face similar challenges.<br />

7


9/7/2013<br />

Curriculum Based Approach<br />

• Education regarding common<br />

challenges, issues, and concerns<br />

• Psychological support<br />

• Skill building abilities associated with<br />

improvement in the targeted domain<br />

• Components adapted <strong>from</strong> validated<br />

Brain Injury Family Intervention<br />

8


9/7/2013<br />

Resilience and Adjustment Intervention<br />

Session I<br />

Understanding the Effects of Brain Injury<br />

1. Understand the typical consequences of<br />

brain injury<br />

2. Appreciate the difference between<br />

emotional and physical recovery<br />

3. Cope effectively with loss and change<br />

Resilience and Adjustment Intervention<br />

Session II<br />

Active Engagement in Recovery<br />

4. Realize the important role you have in<br />

your own recovery<br />

5. Recognize what you can do to help<br />

yourself and feel better<br />

9


9/7/2013<br />

Resilience and Adjustment Intervention<br />

Session III<br />

Setting Reasonable Goals<br />

6. Appreciate that success is relative<br />

7. Improve your ability to be patient<br />

8. Understand and implement effective<br />

goal setting strategies<br />

Resilience and Adjustment Intervention<br />

Session IV<br />

Solve Problems Effectively<br />

9. Learn and use more effective<br />

problem solving strategies<br />

Resilience and Adjustment Intervention<br />

Session V<br />

Managing Stress, Anger, and Other Intense<br />

Emotions<br />

10. Monitor and manage stress more<br />

effectively<br />

11. Better manage intense emotions<br />

including frustration, anger, and fear<br />

10


9/7/2013<br />

Resilience and Adjustment Intervention<br />

Session VI<br />

Communicating Effectively and Rebuilding<br />

Relationships<br />

12. Rebuild relationships<br />

and overcome loneliness<br />

13. Learn and apply more effective<br />

communication strategies<br />

14. Develop strategies for comfortably<br />

discussing injury with others<br />

Resilience and Adjustment Intervention<br />

Session VII<br />

Communicating Effectively and Rebuilding<br />

Relationships<br />

15. Avoid a negative focus, feeling guilty, or<br />

blaming others<br />

16. Appreciate positive aspects of your new<br />

life and develop a positive attitude<br />

11


9/7/2013<br />

Investigating Resilience:<br />

The Connor‐Davidson Resilience Scale<br />

Review of existing resilience inventories<br />

suggests the CD‐RISC is the most<br />

effective measurement tool available<br />

Established excellent psychometric<br />

properties, e.g. reliability, internal<br />

consistency, and construct validity<br />

CD‐RISC<br />

• 25‐item and 10‐item versions, both<br />

empirically validated<br />

• Statements ranked on a 0–4 frequency scale:<br />

0 ‐Not true at all; 1 ‐Rarely true; 2 ‐Sometimes<br />

true; 3 ‐Often true; 4 ‐True nearly all of the<br />

time<br />

• Respondents evaluate the veracity of<br />

statements as they pertain to the last month<br />

www.connordavidson‐resiliencescale.com<br />

CD‐RISC Framework<br />

Assessment via a resilience model based<br />

on hardiness and persistence, specifically:<br />

o Not giving up o Tolerating pressure<br />

o Coping with o Overcoming negative<br />

unexpected events outcomes<br />

o Tolerating stress o Coping with<br />

o Overcoming illness & unpleasant feelings<br />

hardship<br />

www.connordavidson‐resiliencescale.com<br />

Connor‐Davidson Resilience Scale<br />

Mean Scores for Specific Populations<br />

PTSD<br />

Generalized Anxiety<br />

Psychiatric Patients<br />

Primary Care Patients<br />

US General Population<br />

Connor & Davidson, 2003<br />

0<br />

20<br />

40<br />

60<br />

80<br />

100<br />

12


9/7/2013<br />

Virginia Commonwealth University<br />

Medical Center<br />

Our work should be guided by the<br />

experiences of the people we serve, our<br />

perception of their needs, and our sense<br />

of the most important things we can do<br />

to meaningfully improve their lives.<br />

JSK<br />

Jeffrey S. Kreutzer, Ph.D., ABPP<br />

jskreutz@vcu.edu<br />

www.tbinrc.com<br />

Department of Physical Medicine and Rehabilitation<br />

VCU Box 980542, Richmond, VA 23298‐0542<br />

Ph. 804 828‐3704<br />

13

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