Winter, 2013 - Alzheimer's Association

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Newsletter of the Hudson Valley/Rockland/Westchester, NY Chapter
Published quarterly for our donors, volunteers, advocates, and friends in the Alzheimer’s community
Winter, 2013
Inside this issue:
Chapter News 2
Research 3
Winter Programs 4
Support Groups 5
Walk to End
Alzheimer’s 6
Walk &
Caregiving 8
Research &
Advocacy 9
Upcoming &
Recent Events 10
Memorials &
Tributes 11
How Our Funds
Are Used 12
~ Our Mission ~
To eliminate
Alzheimer’s disease
through the
advancement of
research; to
provide and
enhance care and
support for all
affected; and to
reduce the risk of
dementia through
the promotion of
brain health.
Hurricane Sandy Poses Special Challenges for
Caregivers and Persons with Dementia
Living through Hurricane Sandy and the
Nor’easter that followed was difficult for
many in our Chapter territory. Some were
without power for as much as two weeks, and
others suffered damage to their property
from flooding and downed trees.
During this time caregivers and individuals
with Alzheimer’s faced special challenges.
People with dementia are especially vulnerable
to chaos and emotional trauma. They have a
limited ability to understand what is happening,
and they may forget what they have been told
about a disaster. Moreover, changes in routine,
traveling and new environments can cause
agitation, wandering, and an increase in
behavioral symptoms, including hallucinations,
delusions and sleep disturbance.
As always, the Alzheimer’s Association’s 24/7
Contact Center was available to help.
Though our Rockland office itself suffered a
week-long power outage, due to a downed
pole on Main Street just north of the office,
calls were routed to Care Consultants in our
Chapter’s other offices until the phones and
electricity came back on.
Calls our Chapter staff received included
requests for help finding suitable emergency
placement, questions about how to handle
increased behaviors and confusion due to
being displaced, and requests for education
about Alzheimer’s and information about
respite from “accidental caregivers” who
were caring for a family member with
Alzheimer’s as a result of the storms. We also
received a call from the family of a man who
wandered away during this period, who
fortunately was found safe the next day.
What can you do to prepare for a disaster?
•If your loved one lives in a residential facility,
Main Street, New City, just north of the
Alzheimer’s Association’s office
find out about its disaster and evacuation plans.
•Whether your loved one lives with you or
you are a long-distance caregiver, make sure
evacuation plans include his/her specific needs.
•Consider preparing an emergency kit. (Call
the Alzheimer’s Association at 1.800.272.3900
to find out what such a kit might include.)
•If you know a pending disaster is about to
occur, get yourself and the person with
Alzheimer’s to a safe place, and alert others
that you are changing location.
•Be sure people other than the primary caregiver
have copies of the medical history, medications,
physician information, and family contacts of the
person with dementia.
For tips on preventing agitation and how to
handle an episode of agitation, go to
alz.org/care or call 1.800.272.3900.

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Board of Directors
Karen Folster Lesperance, Chair
William M. “Andy” Cahn, III, First Vice Chair
Neil Klar, 2nd Vice Chair
Richard McGuinness, Treasurer
Frances M. Pantaleo, Secretary
David A. “D.A.” Abrams
Diane Aparisio
Donna Maria Blancero, Ph.D.
Karen Burns
Dominic Calgi
Alan E. Dillon
Lawrence T. Force, Ph.D.
Karen Ganis
JoAnn M. Kroner
Barry Meiselman
Carol Monteleoni
Nancy J. O’Connor
Ron Stanton
Staff
Elaine Sproat, President & CEO
Meg Boyce, Director, Programs & Services
Kevin Canavan, Director of Development
Michele Muir, Director, Communications
& Public Policy
Jennifer Scheuermann, Director, Finance
& Operations
Poughkeepsie
Joan Carl, Administrative Assistant
Richard McClurg, Staff Accountant
Karen Skelton, Administrator
Elizabeth A. Johnson, Care Consultant
Mary Varano, Bookkeeper
Middletown
Donna Davies, Care Consultant
Janet Syvertsen, Administrator
New City
Debra Kagan-Birkeland, Care Consultant
Maria Paliotta, Administrator
Brewster
Stuart Greif, Program Development Specialist
Purchase
Curtis Au, Care Consultant
Sydney Binney, Administrative Assistant
Patricia Gaston, Care Consultant
Terry Kean, Administrator
©2013 Alzheimer's Association, Hudson
Valley/ Rockland/ Westchester, NY Chapter, Inc.,
except where specifically stated otherwise. All
rights reserved. All material in newscope is
offered as information to our readers. The
Alzheimer’s Association, Hudson Valley/
Rockland/ Westchester, NY Chapter cannot
warrant, endorse, or recommend any provider,
program, or product.
Chapter News
Among Friends
Transitions
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At one of our Walk to End Alzheimer’s events, I spoke with a
woman who has supported our cause for many years. “In
the 1990’s, I walked for my mother,” she said. “Now I walk
for my husband.” I marveled at her tenacity, but then she
added something my own “close-up” view of Alzheimer’s
sometimes does not let me see: “It’s so much better today!
There are so many more services available to caregivers in
the community.”
Much the same could be said about Alzheimer’s research.
Though the road to an effective treatment or cure is still Elaine Sproat
fraught with obstacles, scientists are light years ahead of where they were in the 1990’s
in their understanding of the disease. In recent years, through brain scans, spinal taps,
and neuropsychological testing, researchers have discovered ways of identifying and
tracking the progression of the disease before any clinical symptoms appear.
Scientists are even testing drugs to prevent the disease in the rare families who are
known to have inherited an autosomal dominant gene that causes the disease.
According to Maria Carrillo, Vice President of Medical and Scientific Relations at
the Alzheimer’s Association, “Within a few years, as researchers simultaneously
compare three approaches to stopping the disease, they should know which drug,
if any, is going to work.”
The long view shows that we have made progress towards building greater caregiver
support and towards eliminating Alzheimer’s, and we must build on that momentum
in the years ahead. We are part of an unstoppable movement.
Elaine
At their September meeting, the Chapter’s Board of Directors
elected one additional Board member--Barry Meiselman--
to those whose terms begin in FY13. Barry’s background
includes work as Vice President for Information Technology
for a health plan and various health care provider organizations.
He has also been active in his community, serving on
Scarsdale Village and school district committees and volunteering
with Boy Scouts and a neighborhood association. Like
many others on the Board, Barry had a close family member
who suffered from Alzheimer’s.
Barry Meiselman
We also welcome a new staff member to our Poughkeepsie office. Elizabeth
Johnson, MSW, will join the Alzheimer’s Association as a Care Consultant, beginning
in January. Liz received her MSW from Fordham in 2007, specializing in Client
Centered Management and focusing on Gerontology. She is passionate about making
a difference in people’s lives, and we are delighted that she has joined our team.
We extend our thanks and best wishes to Faith Kotzker, who served on the Board
for four years--and on the Rockland Walk Committee for many years before that--
as she begins a new chapter in her life. We also say a fond goodbye to Wendy
Rudder, who has worked with us for the past 5½ years, and wish her well as she
begins a new job in mental health.

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Alzheimer’s Association Announces
2012 Research Grant Awards
In 2012, the Alzheimer’s Association International Research
Grant Program awarded approximately $12.2 million in funding
to 78 scientific investigations. Of these, 74 funded projects
represent proposals ranked highest by peer reviewers in an
extremely competitive field of 922 applications. In addition to
funding individual scientists in eight grant categories, the
Alzheimer’s Association awarded four special scientific projects.
Since 1982, the Alzheimer’s Association has committed over
$300 million to more than 2,100 scientific investigations
around the world.
We are pleased that twelve New York researchers, including
two working at the Nathan S. Kline Institute for Psychiatric
Research (NKI) in Rockland County, were among the 2012
award recipients. We look forward to seeing evidence of the
advances in our knowledge and understanding of
Alzheimer’s disease generated by this work
New Investigator Research Grants (awards of $100,000
over two years) fund the next generation of promising
scientists who have earned their doctoral degrees within the
last ten years. Award recipients include:
Marie Boltz, Ph.D. (NYU)
Dara Dickstein, Ph.D. (Mount Sinai)
Silvia Fossati, Ph.D. (NYU)
Angela Kamer, Ph.D. (NYU)
Mikako Sakurai, Ph.D (Columbia )
Andrew Sharp, Ph.D. (Mount Sinai)
Investigator-Initiated Research Grants (awards of
$240,000 over three years) fund established investigators
exploring questions across the entire research spectrum from
basic neurobiology to treatment, prevention and care. Award
recipients include:
Stephen D. Ginsberg, Ph.D. (NKI)
Bing Gong, M.D., Ph. D. (Mount Sinai)
Yueming Li, Ph.D. (Sloan-Kettering)
Henrieta Scholtzova, M.D., Ph.D. (NYU)
Junichi Shioi, Ph.D. (Mount Sinai)
Neuronal Hyperexcitability in Seizures and
Alzheimer’s Disease Research Grant (an award of
$340,000 over three years for a special scientific project).
Helen E. Scharfman, Ph.D. (NKI)
Based on peer-review scores and review by the Alzheimer’s
Association’s Medical and Scientific Advisory Council, the
Association’s science staff estimates that approximately 25
percent of proposals received in 2012 deserved funding.
Only about 8.5 percent could be supported with available
resources.
Research
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Dr. Gilbert Di Paolo to Receive
Margaret M. Cahn Research Award
Gilbert Di Paolo, Ph.D., Assistant
Professor in the Department of
Pathology and Cell Biology at
Columbia University College of
Physicians and Surgeons, was recently
selected as the recipient of the 2012
Margaret M. Cahn Research Award.
The award was created by our Chapter
to honor the philanthropy of local
Zenith donor Margaret M. Cahn and Dr. Gilbert Di Paolo
to recognize a researcher who is making
promising contributions to the study of Alzheimer’s disease.
Dr. Di Paolo’s research is focused on the role that lipids play
in brain cell communication in both the healthy and diseased
brain. Research supported by a 2008 Alzheimer’s Association
New Investigator Research Grant and a 2011 Investigator-
Initiated Research Grant has led Dr. Di Paolo to identify two
potential targets for drugs to inhibit the damage done by
beta-amyloid in the brain.
Worried about Your Blank Moments?
If you are between 50 and 85 years of age and have noticed
a gradual decline in your memory over the last 12 months,
you may be eligible to participate in a clinical research trial
being conducted at the Nathan Kline Institute for Psychiatric
Research (NKI) in Orangeburg, NY. The clinical trial for
which NKI is recruiting seeks individuals in the earliest
stages of Alzheimer’s disease (known as prodromal AD) and
will evaluate the effect of a subcutaneous beta amyloid
lowering monoclonal antibody (gantenerumab) versus a
placebo on cognition and function.
Beta amyloid is thought to be the major trigger for
Alzheimer’s disease and is known to begin decades before
the onset of clinical manifestations of dementia. The benefit
of this approach may be greater if initiated before prominent
symptoms of AD manifest.
NKI also continues to recruit subjects with early Alzheimer’s
for the Alzheimer’s Disease Neuroimaging Initiative-2.
For more information about NKI’s current clinical trials,
contact Dr. Antero Sarreal at 845.398.6532, 845.398.5582,
or asarreal@nki.rfmh.org.
For information about clinical trials in the NYC Metro area
or elsewhere, contact TrialMatch, a free service of the
Alzheimer’s Association, at 1.800.272.3900 (M-F, 6 a.m.-6
p.m. EST) or at alz.org/trialmatch.

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Alzheimer’s Association Winter Programs
Unless otherwise indicated, all programs are open to
the public and free of charge, but registration is
required. To register or obtain more info, call the
Alzheimer’s Association at 1.800.272.3900.
Dutchess/Ulster
Rockland
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The Dutchess/Ulster Regional Office will be welcoming a
new Care Consultant in January. Please call our office at
1.800.272.3900 or check our web site, alz.org/hudsonvalley,
to learn of winter programs that are being scheduled.
Orange/Sullivan
•Elder Law Presentation: Learn how you can protect your life
savings despite possible long-term care costs, and be paid for
caregiver services offered to a loved one. Elder Law Attorney
and Times Herald Record columnist Sandy Altman will
present this program on Wednesday, January 23, from 2 to
3:30 p.m. at the Greater Hudson Valley Family Health
Center, The Kaplan Family Pavilion, 147 Lake St.,
Newburgh, NY. Please RSVP by Friday, January 18.
•“Living with Alzheimer’s, for Caregivers” is a series of
educational programs that provide answers to the questions
that arise in the various stages of the disease.
“Living with Alzheimer’s: The Middle Stage” will be
offered on three consecutive Tuesdays--February 26,
March 5, and March 12--from 2 to 3:30 p.m. The program
will be held at the Alzheimer’s Association, 384 Crystal Run
Rd., Middletown, NY. Please RSVP by Friday, February 22.
Unless otherwise noted, programs will be held at the Alzheimer’s
Association, 301 N. Main St., Ste. 7, New City, NY:
•“Living with Alzheimer’s: The Middle Stage” (Parts 1 & 2)
will be offered from 3 to 4:30 p.m. on Fridays, January 11
& 18.
•“Know the 10 Signs: Early Detection Matters” will be
presented from 2 to 4 p.m. on Wednesday, February 13.
•“Keeping Fit from the Neck Up” will be offered from 1 to
2:30 p.m. on Friday, February 22.
•An Alzheimer’s Association program on “Understanding
Alzheimer’s Disease and Related Dementias” will be offered at
the Tappan Library, 93 Main St., Tappan, NY on Wednesday,
March 27, from 2:30 to 4:30 p.m.
Westchester/Putnam
•“Music Socials”
These programs are for individuals diagnosed with
Alzheimer’s disease and their family caregivers, to meet new
friends and socialize in a safe environment. A program is
held on the 3rd Friday of every month, from 2 to 3:30
p.m., at New Harvest Christian Church, 1230 Route 94,
Vails Gate, NY. Please call to reserve your place.
“Living with Alzheimer’s for Caregivers” is a series of
educational programs that provide answers to the
questions that arise in the various stages of the disease.
•“Living with Alzheimer’s: The Early Stage” will be
presented from 5:30 to 7 p.m. on three consecutive
Thursdays--January 10, 17, and 24--at the Hugh Doyle
Senior Center, Office for the Aging, 94 Davis Avenue, New
Rochelle, NY.
•“Living with Alzheimer’s: The Middle Stage” will be
offered from 5:30 to 7 p.m. on Thursdays--February 7, 21,
and 28--at The Bristal at White Plains, 305 North Street,
White Plains, NY.
•Finally, Parts 1 and 2 of “Living with Alzheimer’s: The Late
Stage” will be offered from 2 to 4 p.m. on Thursday,
March 21, at the Alzheimer’s Association, 2900 Westchester
Ave., Suite 306, Purchase, NY.

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CAREGIVER SUPPORT
GROUPS
DUTCHESS COUNTY
Beacon
Elant at Fishkill
3rd Wed., 3 p.m.
Hopewell Junction
Hopewell Reformed Church
3rd Tues., 1 p.m.
Poughkeepsie
Alzheimer’s Association
1st Wed., 11 a.m.
Rhinebeck
Starr Library
2nd Mon., 4 p.m.
ORANGE COUNTY
Goshen
Valley View Center for
Nursing & Rehabilitation
Last Mon., 7 p.m.
Goshen
Valley View Center for
Nursing & Rehabilitation
2nd Tues., 2-3:30 p.m.
Middletown **
Hand-in Hand Care, 25 Myrtle Ave.
3rd Wed., 2 p.m.
Middletown
Wallkill Living Center
1st Mon., 2 p.m.
Newburgh
Elant at Newburgh Conf. Rm.
2nd Tues., 7 p.m.
PUTNAM COUNTY
Carmel
The Plaza at Clover Lake
3rd Thurs., 6:30-8 p.m.
ROCKLAND COUNTY
Nanuet **
Meals on Wheels
Weds., weekly, 12:30 p.m.
Alzheimer’s Association Support Groups
All support groups are free and open to the public, but pre-registration is required. For exact location,
support group leader contact information, and general questions, or to confirm a group is meeting in
inclement weather, please call 1.800.272.3900.
New City
Sunrise Senior Living
2nd/4th Mon., 6:30-8 p.m.
New City
Alzheimer’s Association
Mons., weekly, 2:30-4 p.m.
Palisades
Esplanade at Palisades
3rd Wed., 7-8:30 p.m.
SULLIVAN COUNTY
Call for info, 1.800.272.3900
ULSTER COUNTY
Kingston **
Always There Adult Day
Program at Kingston
2nd Mon., 1-2:30 p.m.
New Paltz
Woodland Pond at New Paltz
Last Thurs, 3-4:15 p.m.
Woodstock
Christ Lutheran Church
3rd Tues., 2 p.m.
WESTCHESTER COUNTY
Ardsley
Call for info, 1.800.272.3900
Cortlandt Manor
The Seabury at Fieldhome
1st/3rd Wed., 10-11:30 a.m.
New in 2013: Greenwich, CT
The Greens at Greenwich
1st/3rd Mon., 10-11:30 a.m.
Hawthorne ##
Morningside House
Adult Daycare Center
2nd/4th Thurs., 10-11:15 a.m.
Mt. Kisco #
Presbyterian Church
4th Wed., 6:30-8 p.m.
Mount Vernon
Call for info, 1.800.272.3900
Ossining
Atria on the Hudson
1st Tues., 6:30 p.m.
Purchase
Alzheimer’s Association
1st/3rd Mon., 1-2:30 p.m.
Purchase *
Alzheimer’s Association
1st/3rd Wed., 10-11:30 a.m.
Purchase
Alzheimer’s Association
2nd/4th Mon., 10-11:30 a.m.
Scarsdale
2nd/4th Tues., 6-7:30 p.m.
Call for info, 1.800.272.3900
Tuckahoe
The Fountains at Rivervue
3rd Thurs., 10-11:30 a.m.
White Plains
Hearthstone at the Esplanade
2nd Sun., 10-11 a.m.
Yonkers
Five Star Premier Residences
by Yonkers
2nd Tues., 6-7:30 p.m.
EARLY-STAGE GROUPS
Note: pre-registration
interviews are required.
For an appointment,
please call the staff
member listed below.
ORANGE COUNTY
Donna Davies, 1.800.272.3900
DUTCHESS COUNTY
Meg Boyce, 1.800.272.3900
ROCKLAND COUNTY
Debra Kagan-Birkeland,
1.800.272.3900
ULSTER COUNTY
Meg Boyce, 1.800.272.3900
WESTCHESTER COUNTY
Patricia Gaston, 1.800.272.3900
* Early Stage Caregivers ** Free respite is offered during the group
(pre-registration is required). # Adult Children Only ## Spouse Caregivers Only
Why Attend an
In-Person
Support Group?
While the internet is a
valuable resource for those
who for one reason or
another cannot get to a
Support Group meeting,
there is nothing like being
with peers who are facing
the same problems.
Somehow being in the same
room with individuals dealing
with the same situations
offers a level of connection
that’s hard to match.
Here are some reasons caregivers
attend:
•To receive and provide
mutual support.
•To release pent-up feelings
of frustration, sadness, anger,
or fear.
•To help others by just
being there and listening.
•To find suggestions for
problems that they’ve been
dealing with.
•To share their own ideas
and knowledge with others.

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The 2012 Walk to End Alzheimer’s was
the largest to date! You hailed from each
of the seven counties where the
Alzheimer’s Association – Hudson Valley/
Rockland / Westchester, NY Chapter
held a Walk, bringing family, friends and
loved ones to show your support and let
the public know, Alzheimer’s can’t wait!
Boosting our participant numbers a
record 33% this year were hundreds of
young people--Team G.A.G.A from
Byram Hills High School, Ellenville
High School’s Key Club, Aging United
(a club at Mount Saint Mary), teams
from Clarkstown South High School,
SUNY New Paltz, Dominican College,
and many more.
Thanks to our amazing teams, individual
walkers, local sponsors, community partners,
and national teams, this year’s Walk
events to date have raised $603,556, and
matching gifts are still coming in!
Congratulations, and thank you to all
who participated!
National Teams
Platinum Teams: Brookdale Senior
Living, Emeritus Senior Living,
Genworth, Sunrise Senior Living, The
TJX Companies
Gold Teams: Home Instead Senior Care,
Kindred Healthcare, Sigma Kappa
Silver Team: ParrotHeads in Paradise
Member Teams: Always Best Care,
American Seniors Housing Association,
Lincoln Financial Group, National HealthCare
Corporation, SunBridge Healthcare,
United Healthcare, Visiting Angels
Platinum Sponsor/Top Local Corporate
Sponsor
The Bristal Assisted Living at White Plains
Gold Sponsors
Atria Senior Living
Five Star Premier Residences of Yonkers
Health Quest
Hebrew Hospital Home Continuum of Care
The Kensington
The Seabury at Fieldhome
The Wartburg Adult Care Community
2012 Walk to End Alzheimer’s
Silver Sponsors
Bethel
A&T Certified Home Care
Burke Memory Evaluation and
Treatment Service
Community Home Health Care
Crystal Run Healthcare
Elant
Ettinger Law Firm
The Fountains at Rivervue
The Greens at Greenwich
Hearthstone Alzheimer’s Care
Jewish Home Lifecare - Sarah Neuman Ctr.
Lehigh Lawn & Landscaping, Inc.
Morningside House Adult Day Health
Care Program
The Osborn Retirement Community
P K Management
The Promenade at Blue Hill
Ramachandran Family
Raymour & Flanigan
Schnurmacher Ctr. for Rehab. & Nursing
Somers Manor Nursing Home
Sunrise Senior Living
Viking Industries, Inc.
Westchester Division, Weill Medical College
of Cornell University - New York
Presbyterian Hospital
Bronze Sponsors
Achieve Rehab & Nursing
Bluestein, Shapiro, Rich, & Barone, LLP
Horizon Medical Group, P.C.
Orange Regional Medical Center
Copper Sponsors
Carmel Winwater Works Co.
The Family Drug Store
Family Footcare Group
Goldstein Chiropractic
Honda of Middletown
P.N. Fire & Burglar Alarm, Co., Inc.
Smith, Seaman & Quackenbush, Inc.
Major Media & Community Partners
WBPM
WHUD
Thanks to members of our dedicated and
hard-working Walk to End Alzheimer’s
Planning Committees and the day-ofevent
volunteers who made our 2012
Walk season such a success!
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Grand Total: $603,556
Our top fundraising teams and individual
fundraisers deserve special recognition.
2012 Walk to End Alzheimer’s
Top Fundraisers:
$10.000-$14,999
David Niederhoffer
Abby Salzman
$7,500-$9,999
Cindy Shmerler
Joan Zale
Neil Klar
$5,000-$7,499
Jodi Waxman
Susan Landsberg
Janet Scherf
Philip Petruzzelli
Peter J. Brent, Sr.
Tori Cohen
$2,500-$4,999
Nancy J. O’Connor
Ellen Kearney
Susan Grossman
Nick Bulfamante
Angela Rizzi
Neerja Lyder
Corrie Jacobs
Sue Bondi
Bob Miller & Michele Muir
Lenore Geller
Kenneth Folster
Marsha Forman
Karen Lesperance
Anthony Papa
Sharon O’Connell
$1,000-$2,499
Kris Charter
Anne Gottlieb
Larry & Denise DeGennaro
Bob Bartlett
Siobhan O’Grady
Frances Pantaleo
Joshua Posnick
Max Levy
Migdalia Colon
Vicky Rubenovitch-Fish
Joseph DeMarchis
Ellen Kera
Christine Coyle
Michelle Scotto
Linnett Ruiz
Luigi O’Grady
Mitch Waxman
Rhonda & Seymour Schreiber
Thomas Wojehowski
Nicole Klammer
Lionel Arfin
Joan Greene
Ann Marie Hahr
Diane Aparisio
Susan Mackenzie
Linda Churchill
Tim Osborn
Elaine Sproat
Chelsey Ires-Cohen
Teresa Wilson
Ryan Stewart
Tonja, Charlie & Olivia Wiegand
Thomas Catoliato
Carol Monteleoni
Barbara Mullins
Vito Luongo
Peg Ramsey
Marianne Taylor
Caryn Toren
Andrew Kaplan
Rhona Baron
Debra Kagan-Birkeland
Milagros Goggin
Ellen Davis
Chrissy Coffey
Chad Friedberg
Robert Folster
Meg & Brendan Boyce
JoAnn Kroner
Marie Tait
Theodore Huff
Michele Stowe
Lisa Esack-Rameau
Maggie Shanus
Janet Bosco
Eileen Pane
Mike Gesmundo
Karen Edler
Melissa Flickenschild
Nancy Hecht
Darlene Sparks
Leisa Shatz-Hannon
Karen Dimsey
Rolando Albizua
Kevin Cannon
Steve & Harriet Libov
Raymond O’Connor, Sr.
Jane Veron
(Cont’d on Page 8)

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Walk to End Alzheimer’s (Continued from Page 7)
2012 Walk to End Alzheimer’s Top Fundraising Teams:
$15,000 - $19,999
Byram Hills (Captain, Max Levy)
SQAD (Captain, Neil Klar)
$10,000 - $14,999
The Elephant Project (Captain, David Niederhoffer)
Team Betty (Captain, Joan Greene)
Dottie’s Girls (Captain, Abby Salzman)
Team Schwartz (Captain, Jodi Waxman)
For All the Parents (Captain, Nancy J. O’Connor)
$7,500 - $9,999
Team O’Grady (Captain, Michelle Worob)
Team Bobbie (Captain, Susan Landsberg)
Rockland Jewish Family Service (Captain, Maria Dowling)
$5,000 - $7,499
Bankers Conseco (Captain, Janene Prokes)
Team False Echoes - Metro Parrots Head Club
(Captains, Larry & Denise DeGennaro)
Team Janet (Captain, Janet Scherf)
Wallkill Valley Federal Savings and Loan (Captain, Karen Dimsey)
Time For Change (Captain, Philip Petruzzelli)
Because We Care (Captain, Sharon O’Connell)
Cunningham Clan (Captain, Ellen Kearney)
$2,500 - $4,999
Team Johnny’s Angels (Captain, Sue Bondi)
Team Nannu (Captain, Nick Bulfamante)
Team Posnick (Captain, Joshua Posnick)
Pines at Poughkeepsie (Captain, Leisa Shatz-Hannon)
Team Dutchess Beer (Captain, Kris Charter)
Team Mayo - Lest We Forget (Captain, Debbie Conway)
Team Sal (Captains, Bob Miller & Michele Muir)
Team Luongo, (Captain, Vito Luongo)
Remembering Mike (Captain, Lenore Geller)
Rosemarie’s Raiders (Captain, Anthony Papa)
Joyce’s Gang (Captain, Janice DiDonato)
EJ’s Angels (Captain, Emmajean Macpherson)
Butterfly Kisses ll (Captain, Michelle Scotto)
Flo’s Force (Captain, Joseph DeMarchis)
Forget-me-not (Captain, Carmella Morrison)
M E Smiles Dental (Captain, Vicky Rubenovitch-Fish)
Middletown Park Pacers (Captain, Kelly Fedrizzi)
Marshall & Sterling, Inc. (Captain, Heather Wargo)
Carmela’s Crew (Captain, Jeannie Sherman)
Fran’s Kids (Captain, Peg Ramsey)
St. Patrick Church (Captain, Maria Sanchez)
2012 Walk / Caregiving
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Holidays & Alzheimer Families
The holidays are a time when family and friends often come
together. But for families living with Alzheimer’s and other
dementias, the holidays can be challenging. Take a deep breath.
With some planning and adjusted expectations, your celebrations
can still be happy, memorable occasions.
It can help to let guests know what to expect before they arrive.
A person with dementia may have trouble following
conversation or tend to repeat him- or herself. Family can
help with communication by being patient, not interrupting or
correcting, and giving the person time to finish his or her
thoughts.
If the person is in the middle or late stages of Alzheimer’s, there
may be significant changes in cognitive abilities since the last
time an out-of-town friend or relative visited. These changes
can be hard to accept. Make sure visitors understand that
changes in behavior and memory are caused by the disease and
not the person.
You may find it easier to share changes in a letter or email that
can be sent to multiple recipients. Here are some examples:
• “I’m writing to let you know how things are going at our
house. While we’re looking forward to your visit, we thought it
might be helpful if you understood our current situation before
you arrive.
• “You may notice that ___ has changed since you last saw
him/her. Among the changes you may notice are ___.
• “Because ___ sometimes has problems remembering and
thinking clearly, his/her behavior is a little unpredictable.
•“Please understand that ___ may not remember who you are
and may confuse you with someone else. Please don’t feel
offended by this. He/she appreciates your being with us and so
do I.”
For more ideas on how to let others know about changes in
your loved one, join ALZConnected, our online support
community where caregivers like you share tips on what has
worked for them. Go to www.alzconnected.org.

newscope
Research and Advocacy
New Alzheimer’s Disease Risk Gene Discovered
Two articles recently released by The New England Journal of
Medicine (NEJM) report on a newly identified risk gene for
Alzheimer’s disease. These studies advance our knowledge of
the genetics of Alzheimer’s disease and demonstrate real
progress in basic research to discover the causes of
Alzheimer’s.
The NEJM articles report on a mutation on a gene known
as TREM2 that the authors say confers about three times
additional risk of developing Alzheimer’s. At the same time,
the mutation seems to be quite rare, occurring in less than
one-half of 1 percent of the study population. Because of
the rarity and relatively modest risk increase, it will most
likely not be the basis for genetic testing.
The gene mutation is related to reduced control of factors
that lead to inflammation. While the findings need
replication to enhance their credibility, this discovery is
made more plausible by the connection of the identified
gene to inflammation, which has been shown in many
research studies to have a role in the brains of people with
Alzheimer’s--though we don’t know yet exactly what that
role is.
Genetic mutations that are confirmed as Alzheimer’s risk
genes tell us more about the disease--often that Alzheimer’s
is somehow connected to the regular function of the gene.
And they may become targets for therapies or point us to
new targets for therapies.
It takes a lot of work, time and money to find a molecule
or compound that will have the desired effect and to make
that molecule into a safe and effective drug. Next steps for
this research include (1) further confirmation of these findings
by other scientists in different populations and (2) evaluating
this gene mutation as an indicator of targets for therapy.
Page 9
Alzheimer’s Association Involvement
These new discoveries were made through the
application of a relatively new tool--whole genome
sequencing--to people with Alzheimer’s disease. Whole
genome sequencing determines all 6 billion letters in
an individual’s DNA in one comprehensive analysis.
In July 2012, the Alzheimer’s Association announced a
visionary new partnership to launch the first,
pioneering "Big Data" project for Alzheimer’s disease.
New research funding from the Alzheimer’s Association
and the Brin Wojcicki Foundation is enabling scientists
to obtain whole genome sequences on the largest
cohort of individuals related to a single disease--more
than 800 people enrolled in the Alzheimer’s Disease
Neuroimaging Initiative (ADNI). A distinguishing
feature of ADNI is that its research data--including
brain scans, blood and cerebrospinal fluid samples, and
cognitive profiles--are made freely available without
delay to scientists around the globe.
It is vitally important that more funding be made
available for Alzheimer’s research so that we generate
more of these kinds of scientific advancements and
quickly capitalize on them. The first-ever U.S.
National Plan to Address Alzheimer’s Disease was
unveiled in May, and it is imperative that this plan be
effectively implemented. An additional $100 million is
needed in 2013 for Alzheimer’s research, education,
outreach and community support. Let Congress know
that Alzheimer’s research funding is a priority for you.
To join the fight, visit alz.org.
Save These Dates:
Alzheimer’s Association Advocacy Forum
April 22 – 24, 2013
In April 2012 advocates came to Washington, D.C. in record
numbers! More than 700 Alzheimer’s advocates representing
all 50 states took part in the 2012 Alzheimer’s Association
Advocacy Forum in Washington, D.C. Speakers for the Forum
included Health and Human Services Secretary Kathleen
Sebelius, who confirmed the Obama administration’s $100
million commitment to Alzheimer’s. The two-day event
also featured at a star-studded National Alzheimer's Dinner,
including legendary University of Tennessee Head Coach
Emeritus Pat Summitt. Don’t miss the Forum in 2013!
Alzheimer’s Association New York State Rally
May 14, 2013
Advocates gather in Albany!
More than 250 Alzheimer’s advocates from New York State
rallied for Alzheimer’s awareness at the May 2012 Rally in
the Empire State Plaza’s Well in Albany. Meet and greet
elected state officials in 2013 and ask them to make changes
for those living with Alzheimer’s disease.
For more information and for your early-bird Forum discounts,
e-mail Michele Muir at mmuir@alz.org, or call
800.272.3900. Register today!

Page 10
Dive Headfirst into
the Fight Against
Alzheimer’s!
Have you ever considered diving into a
big hole in the ice on a frozen lake? No?
Well, you can be a Hero and do just that
on Saturday, February 2, 2013!
The third annual Subzero Heroes event
will be held at Berean Park in
Highland, NY, starting at 10 a.m.
Heroes will be taking an icy plunge
and raising funds and awareness for the
Alzheimer's Association by “diving
headfirst into the fight against
Alzheimer's." To learn more about
Subzero Heroes, please visit the website -
www.subzeroheroes.org.
Not into freezing your tail? Register at
www.subzeroheroes.org as a Sidekick.
Sidekicks cheer on their heroes and hand
them nice warm towels when they get out
of the lake. They also raise funds towards
their Heroes’ goals. The more money
raised by a Hero (& his or her sidekicks),
the quicker they are in - and out - of the
water. As an added incentive, every Hero
who raises $1,000 or more will get to
spend some time in a hot tub! What could
be a better treat after an icy plunge?
Last year’s event brought out over a
hundred heroes and at least three times
as many sidekicks and spectators. We
expect even more to join the fun this
year. See you on February 2!
Upcoming & Recent Events
A Perfect Day for Golf & Tennis!
Despite a rainy September,
September 10 brought
perfect weather for the
Alzheimer’s Association’s
14th Annual Golf/Tennis
Tournament. Players enjoyed
the course and courts at the
Elmwood Country Club in
White Plains, to say nothing
of the delicious spreads and
course refreshments and the
camaraderie of the day.
The tournament was chaired
by co-founders Ronald
newscope
Shaut Family Creates Magical Evening
On November 3, the Shaut family
and Swingin’ Jive Patrol (their
professional 10-piece band) presented
“Swinging Moments
Cabaret,” their sixth annual
fundraiser for the Alzheimer’s
Association.
The whole family pitched in,
transforming the gym at Bailey
Middle School into a nightclub,
creating an event web site,
designing posters and preparing
Swingin’ Jive Patrol, with Jenn Zell
refreshments, as well as providing
entertainment. The cabaret honored their grandmother, Marie Wojcio, who
lived with Alzheimer’s for many years.
Featured performers included internationally-known dancers Nathan Pugh and
Elaine Silver, local dancer favorites Chester and Linda Freeman, Dorrie Boice and
Chester’s Cool Kittens, and guest vocalists Jenn Zell and Libby Sokolowski. The
Kingston High School Jazz Ensemble was the evening’s opening act.
The cabaret raised over $4,400 to support the Alzheimer’s Association’s work. We
extend our heartfelt thanks to the Shauts and to all who contributed their time
and talent to this very special evening.
L to R: Committee member Fred Haffner, Co-chairs Ron
& Donna Sylvestri, Mike Torre and Sal DeMatteo
Sylvestri, Senior Vice President of Hudson Valley Bank, and Donna
Sylvestri, President of Madison Home Management. Jeffrey Abrandt
chaired the tennis portion of the event. The funds raised support the
Alzheimer’s Association’s mission of research, education, advocacy and support.
Special thanks to Ron and Donna, to the planning committee, to our sponsors and
donors, and to the players who supported the cause and made the day a success.
If you would like to join the planning committee for the 2013 event, please
contact Terry Kean at terry.kean@alz.org

newscope
Memorials & Tributes / Development
We are grateful for all the memorials and tributes given to the Alzheimer’s Association. These
gifts honor friends and loved ones while helping us meet needs for education, family support,
advocacy, and research. Listed below are individuals honored from 7/1/12 to 9/30/12.
Page 11
Annuals and
Perennials
Memorials
Renata Amoruso
Brigid Apfel
Lawrence & Muriel Asher
Bienvendo Baez
Joel Banker
Victor Bleckman
Robert Bosch
Helen Brennan
Yetta Bronner
Eleanor Brown
Elizabeth A. Brown
Arnold Cardillo
Gaetano Casarella
Tony Castellano
Elaine Cherney
Sy Cohen
Dorothy Coleman
Helen Collins
Gloria Colorelli
Miriam Coren
Ana Rosa Cote
Carol D’Anneo
Natalie Daroff
Anna Deiulio
Thomas DeLuca
Jennie Detres
Al Dobrotsky
Raymond & Bernice Dolan
Eugene D’Onofrio
George (Pete) Eckert
Milton Fishman
Helen Forman
Edna Fugina
Robert Fullem
Gisela M. Gagliardi
William Gallagher
Ruth & Abe Garr
Margrit Garson
Albina Gaster
Irwin Gillule
Mel Ginsburg
Anthony Gisondi, Jr.
Ann Griefer
Barbara Griffis
Antoinette Henry
Jeanette Ho
Shirley Belle Hoen
Harry M. Hudes
Jack Hunter
Elenore Hyatt
Dorothy C. Jankovitz
Genovefa Jarosz
Emily Kata
Amelia Kearns
Eleanor Kobetitsch
Rosalie Korman
Shirley Lavelle
Joan Leonard
Majorie Lysiak
Susan Liss
Keith Marroon
Luciano Martirano
Roy Meyers
Rose Moccio
Solomon Nahum
Jane Newman
Gina Oppedisano
Jean Oppedisano
Annie M. Pedersen
Camille Piazza
Mildred Popish
Judith Hyde Potter
Catherine Prackelt
Mildred Prisco
Isabella Quercia
Edward Rabin
Jo Rapkin
Charles J. Reilly
Valentino Reynaud
Molly Rocha
Roslyn Roitman
Andrew Rose
Esther Rosenblatt
Hyman Rottman
Barbara Rubin
John Michael Ruser
E. Lennea Salomon
Zelma Salow
Rosa Sariego
Jenny Schechter
Maria Schirripa
Rose Schleifer
Virgil Schriver
Marvin Silver
Mae Siragusa
Margaret E. Smith
Dolores Catherine Springer
Ruth Steinbaum
Ruth Stevenson
Fran Stewart
Nicholas & Sophia Szczerva
Dora Tobey
Theresa Triola
Jerry Vitolo
Vera Weisberger
Barbara Wright
Catherine Wurtz
Rae Yablon
Irving Young
George Zach
Sidney Zecker
Victor Zugibe
Tributes
Curtis R. Au
Rose Benvengo
Dan Cohen
on his 90th Birthday
Thomas McDonald
Peggy McEvoy
Judith G. Rubin
Bernard Scheiman
Murray Shertzer
Leonard & Frieda Shniper
Mr. & Mrs. Ron Sylvestri
Debra Tricarico
Thea Wallis
Mike Zucker
Whether you are an avid
gardener or you simply water
the plants in your window,
you know that there are two
kinds of flowers. “Annuals”
are the ones you plant every
year. They are beautiful and
varied but, come autumn,
they are used up. “Perennials”
are those which, when
planted once, reappear every
year--a gentle reminder that
some work pays off well
into the future.
Our work at the Alzheimer’s
Association is thriving
because donors like you
provide a blend of “annual”
and “perennial” gifts.
Perennial gifts may also be
called “planned gifts”and
include such things as gifts
from retirement accounts
and will bequests. These
gifts may require a little
extra effort now, but they
will continue to bloom well
into the future.
For more information about
ways to make a future gift to
the Association, please call
Kevin Canavan, Director of
Development, 914.253.6860,
for a free brochure entitled
Help and Hope: A Charitable
Giving Guide.

Hudson Valley/Rockland/Westchester, NY Chapter
Administrative Office
2 Jefferson Plaza, Ste. 103
Poughkeepsie, NY 12601-4060
Non-Profit Org.
U.S. Postage
PAID
AM Direct Mail
1.800.272.3900 (24-hour Contact Center)
www.alz.org (national web site)
www.alz.org/hudsonvalley (chapter web site)
info@alzhudsonvalley.org
Administrative Office and
Dutchess/Ulster Regional Office
845.471.2655
Orange/Sullivan Regional Office
845.695.2247
Rockland Regional Office
845.639.6776
Westchester/Putnam Regional Office
914.253.6860
Putnam Point of Service
845.278.0343
If you would prefer to receive an e-version of this
newsletter, please let us know! We would appreciate
your re-cycling printed copies at your physician’s office.
In FY12 our Chapter assisted 3,358
individuals through our 24-hour
Helpline, supported 3,134 caregivers
and early-stage individuals, conducted
446 Care Consultations, and educated
2712 family caregivers and professionals.
Highlights included a new peer-to-peer
outreach program, a caregiver retreat,
lectures on the latest Alzheimer research,
and an expanded menu of social programs
and therapeutic activities.
Because of your generosity, we were
able to provide almost all of these
services free of charge.
Happy Holidays,
and thank you
for your support!
How Our Chapter’s Funds Are Used
Condensed Statement of Receipts and Disbursements
for the Year Ended June 30, 2012
Public Support and Revenues*
Direct Public Support
Indirect Public Support
Special Events (less direct benefits to donors)
Government and Other Grants
Shared Fundraising Revenues (net)
Other
Disbursements
Program Services
Management & General
Fundraising
Change in Net Assets
Net Assets, beginning
Net Assets, ending
* Donations restricted to
13.1%
research are not reflected 11.4%
here as they are passed
directly to the national
office of the Alzheimer’s
Association.
Expenses
75.5%
406,739
86,655
714,448
261,077
43,663
8,870
1,137,279
168,973
209,501
5,699
721,515
727,214
Program Services
Mgmt. & General
Fundraising