May - Alberta Health Services

May Stollery FCC Primer ‐ News from Stollery Children's Hospital Famil... 

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9/27/2013 2:59 PM 

"Could a greater miracle take place than for us to look through each other's eyes for an 

instant?" ‐ Henry David Thoreau 

‐ 

IN THIS ISSUE (Click to link) 

FAMILY CENTRED CARE IN THE OR! 

MEMBERSHIP CORNER - LOREEN 

GOMES 

MEMBERSHIP CORNER - CAROL 

CARIFELLE-BRZEZICKI 

FCC SURVEY 

FAMILY TALKS ROUNDUP 

FAMILIES REVIEWING 

DOCUMENTATION 

FCC BROCHURE & APPLICATION 

FORM 

FCC IN THE OR! 

FCC IN THE DESIGN OF THE OR! 

RECOGNIZING OUR CHAMPIONS! 


THE 23 WEEK DILEMMA 

FAMILY TALKS ROUNDUP 

FCC SURVEY - A GREAT RESPONSE! 

MEMBERSHIP CORNER 

Each month, we will 

introduce you to two 

members of the Family 

Centred Care Council and 

NICU Family Advisory Care 

Team. This month we 

feature two FCCC members, 

Loreen Gomes, Co‐Chair and 

Family Member and 

Carol Carifelle‐Brzezicki, 

Manager, Aboriginal Health 

Program 

MEMBERSHIP CORNER ‐ 

LOREEN GOMES 

Marcel Panas (Coordinator, Family Centred Care), Christie Oswald 

(Family Member), James Coughlan (Family Member and Former 

Stollery Patient) return to the OR under a much less stressful 

situation than what they've been used to! 

Members of the Family Centred Care Network had the 

privilege of vising the OR and sharing the patient and 

family perspective with a diverse group of Operating and 

Recovery Room staff. The theme of the presentation was 

centred around three questions provided in advance by 

the staff themselves: 

How can you include families as best as you can? 

What worries parents and children ahead of time? 

What is one suggestion we can do right away that 

would improve the experience for patients and 

families? 

Christie Oswald answered these questions from the 

parent's perspective while James Couchlan did so as a


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previous patient at The Stollery. Here are a couple of 

quotes from the feedback we received after the session: 

"People like yourselves should be commended for taking 

the time and making the effort to ensure we realize our 

actions make a difference and through this, improve the 

care for all our families who visit us." 

What brought you to the FCC 

Council? 

As cliche as it may sound, I 

applied to be apart of the 

original Council members 

because we were at a stage 

in our lives where we had 

the ability to give back. As 

horrific as it is to have a child 

that is in the critical stages of 

an illness, the experience for 

us was so wonderful in terms 

of the quality of care and 

support we received from 

both the medical team as 

well as other families. We 

really wanted to contribute 

to this positive culture and 

the Council was a perfect 

opportunity. 

What is the one thing you 

would like network 

members to know about 

you? 

I think that the whole 

experience of being a part of 

the Council has been very 

humbling for me in that the 

people involved are all so 

amazing both once again 

staff and family members. I 

would just like everyone to 

know how grateful I am for 

having the opportunity to 

have been apart of the 

Network/ Council and 

"This exchanged made us all appreciate the good work we 

do, explore how we can do even better and made for a feel 

good morning! Thank you!" 

Although our intent was to teach and share our 

experiences with the staff, we, as families, learned as 

much if not more from them in return. We do not often 

get to see what happens after the OR doors are closed but 

we all agree that there is a great group of people who do 

everything then can (and more) to make the child and 

family feel as safe and comfortable as possible. We all left 

feeling that if the time should come again, we would feel 

that much better about handing our children over into the 

caring arms of this team. 

Thank you to Clinical Nurse Educators, Lorraine 

Wllox and JoAnne Hamilton, for inviting us into your 

workplace to share this amazing experience with your 

staff! 

OPERATIVE SERVICES DESIGN 

Plans are underway to expand the current operative 

services areas, and family input has been instrumental 

throughout the process. A big Thank You goes to 

Shannon Robertson, family member on the FCC 

Council,for having been representing families on the 

expansion and design committee on a bi‐weekly basis for 

the past year. 

On May 13 members of the Family Centred Care Network 

had the opportunity to meet with the Interior Design team 

of the architectural firm, DIALOG, to share how the design 

of the Dayward, OR, and Recovery room has an impact on 

the parents and children's overall experience. Many ideas 

were discussed as a result of the families' experiences and 

suggestions, such as: wayfinding, sensory sensitivities, 

waiting rooms and entry ways, privacy, visual markers to 

guide and engage children through to teens. 

One parent shared what her young daughter suggested


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encourage others to do the 

same. 

What is something that the 

FCC Council has done (past 

or present) that you are 

excited about? 

This question is way too hard 

to answer as as there are so 

many things. The key project 

would have to be seeing the 

whiteboards put into 

practice and being able to 

observe the children and 

families using them. 

Generally it would have to 

be seeing the the strides that 

have been made over the 

last four years in putting the 

children and families at the 

center of all aspects of 

decision making in care. 

when asked what she thought would be helpful: beige and 

green colors make her feel calm, and she would like to 

wake up to ballet music.. While ballet music may not be 

everyone's choice these ideas, along with the many 

others, were addressed in the plan going forward. 

Thanks to Family Centred Care Network members James 

Coughlan, Stacy Grainger‐Schatz, Poonam Madan, 

Shannon Robertson, and Dee‐Ann Schwanke,; Stollery 

staff Dianne Tuterra (Child Life Lead), Heather McCrady 

(Manager FCC); AHS staff Deb Maerz (Clinical Liaison 

Major Capital Projects); and DIALOG staff Rob Swart, 

Michelle Sigurdson, Umid Abdullaev, and Elisa 

Naesgaard. 


There are many people who do great things to unleash the 

culture of Family Centred Care at the Stollery Children's 

Hospital. We have introduced a program to recognize 

these individuals or groups as Family Centred Care 

Champions, celebrate their contributions and share the 

results of their efforts with others to further the growth of 

Family Centred Care. 

MEMBERSHIP CORNER ‐ 

CAROL CARIFELLE‐BRZEZICKI 

What brought you to the FCC 

Council? 

My connection with the 

Stollery has been bitter 

sweet: I have had 

grandchildren come into the 

Stollery and walk out much 

healthier than when they 

first came in and I have had 

grandchildren (through my 

sister) not have the same 

opportunity of seeing their 

granddaughters walk out of 

the Stollery. The common 

factor was how important 

the role of family was in both 

situations. I saw my sister 

and her son's family struggle 

with ensuring that their 

culture as First Nations 

Family Centred Care Champions ‐ Facilities & Maintenance 

Left to Right: John Chalupa, (Manager) Christie Oswald (Family 

Member), Art Kinnear, Terry Hooft (Facilities & Maintenance) & 

James Coughlan (Family Member & Former Stollery Patient) 

Not pictured: Phat Le (Facilities & Maintenance) 

Every job in the hospital is important and has a great 

affect on how care is provided at the bedside and beyond. 

It has been a year since the whiteboards have been 

installed by every bedside at the Stollery. They have 

become an important and well used tool for families and 

staff in establishing relationships and improving 

communication. Art, Terry & Pat spent countless hours 

working with the FCC staff relocating existing boards, 

re‐painting walls and hanging new boards for our families. 

It takes an incredible amount of coordination to go into


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individuals be understood in 

the context of a health 

system. I also saw my 

daughter's negative response 

to questions that we would 

not consider as options 

concerning health/life/death 

as Aboriginal people. 

What brought me to the 

council was the opportunity 

to be able to give back on 

behalf of MY family. In the 

giving back I also wanted the 

opportunity to contribute 

my knowledge of who my 

family is. Using a broad 

definition of who my family 

is as an Aboriginal (Metis) 

person. Within our 

community, life from the 

beginning to the very end is 

to be celebrated. We 

celebrate the changes that 

that road brings from the 

birth, to coming of age, to 

menopause, to Eldership 

and then as we make our 

'way home' in whatever 

spiritual context that is for 

us. We celebrate and 

acknowledge it all. In 

coming to the FCC I bring the 

experience of celebrating, 

celebrating every minute we 

have. Any reason to 

celebrate is good enough for 

me. We do not know when 

our time on earth will be 

done, we need to 

acknowledge every minute 

of life, every step towards 

better health regardless of 

how small. I came to the FCC 

to party‐to celebrate with 

the families that are touched 

by our health system. 

What is the one thing you 

patient rooms to do the work that they need to do and 

they did so with great care and compassion for our 

patients and families. Thank you for doing the great work 

you do and for being Champions of Family Centred Care! 

Family Centred Care Champions 

Pediatric Clinical Nurse Educators 

Back Row: Karen Calhoun (Family Member), Maria Goldberg 

(Manager), Vanessa French, Amy Davidson, Julie Rehman, Anna 

Cormier, Jaime Sieuraj Front Row: Kim Bateman & Wanda Ma 

Not Pictured: Jackie Ruszkowski, Denise Capito 

& Sandra Caligiuri 

The Pediatric Clinical Nurse Educators (CNEs) not only 

embrace and demonstrate the values of Family Centred 

Care but also inspire these values in others. The CNEs 

were instrumental in the success of the new whiteboards 

by including their use in the training of nurses as well as 

integrating this tool in the routine safety checks. They 

team up with family members to share their own 

experiences of what Family Centred Care means to them 

from a staff perspective during the orientation of new staff 

each month. They model Family Centred Care in the way 

they educate staff and provide care to patients and their 

families. 

Thank you to the Clinical Nurse Educators for being 

Champions of Family Centerd Care! 

Do you know a person or team who should be recognized 

as champions? 

A "Champion" can be best described by one or more of 

the following statements: 

Have been directly involved in the development of 

the Family Centred Care Network and/or its 

initiatives 

They will have demonstrated the principals of 

Family Centred Care in their own practice and 

through their own modeling and leadership, have


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would like network 

members to know about 

you? 

First, I have 6 BEAUTIFUL 

grandchildren. Second, I am 

the Edmonton Zone 

Manager of the Aboriginal 

Wellness Program and that I 

love my role. I feel that 

helping our community, 

regardless of how apparently 

small an action is, I know 

that it is "worth it" because 

"they are worth it". 

influenced others to be family centred in how they 

carry out their duties 

Have provided a significant contribution to a project 

or event that helps promote and carry out the 

philosophies of Family Centred Care at the Stollery 

If this describes anyone you know, please send a brief 

description as to why you feel they should be recognized 

to: 

FCC Champion Nomination 

RECOGNIZING OUR COUNCIL CHAMPIONS! 

What is something that the 

FCC Council has done (past 

or present) that you are 

excited about? 

There is so much work that 

the FCC has done‐what I 

appreciate are the "Little 

things"‐ the white boards as 

communication in the 

rooms; the support offered 

by peers and of course free 

internet for families that is 

used to connect with friends 

and families. 

SORRY MICHEL! 

Family Centred Care Council Champions left to right: Family and 

Original Council Members, Karen Klak & Karen Calhoun, Family 

Member, Original Council Member and Stepping Down Co‐Chair, 

Loreen Gomes, Original Council Members, Dr. Christine 

Kyriakides & Dr. Ian Adatia, Manager, Family Centred Care, 

Heather Mattson‐McCrady, Administrative Assistant, Kaitlin 

Belair, Original Family Member and Co‐Chair & Coordinator, 

Family Cetnred Care Marcel Panas 

FCC Champion, Michel 

Beaumier receives his pin 

from family member, Christina


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Herbers 

Our apologies to Michel 

Beaumier, Admitting Clerk at 

the 1D1 Ambulatory Clinic for 

misspelling your name in the 

April primer! 

WHAT IS IT LIKE TO PROVIDE 

AND RECEIVE FAMILY 

CENTRED CARE AT THE 

STOLLERY? 

On May 1st staff, physicians 

and inpatient / outpatient 

families are being invited to 

participate in a survey 

conducted by the Stollery 

Family Centred Care Council. 

The goals of the survey is to: 

1) understand the 

experiences and perceptions 

of service providers in 

delivering family centred 

care to children and their 

families at the Stollery. 

2) understand the 

experiences and perceptions 

of families regarding the 

delivery of family centred 

care at the Stollery. 

The results will be used to 

help improve supports for 

staff in delivering care and to 

improve supports for 

children and their families 

while at the Stollery. 

The FCC Council has much to 

learn from this survey and 

look forward to sharing the 

results in the Fall of 2013! 

WELCOMING NEW STAFF TO 

FAMILY CENTRED CARE 

NICU Family Advisory Care Team Champions 

Left to right: Nurse Practitioner and Original FACT member and 

Co‐chair, Denise Clarke, Original FACT member and NIDCAP 

Trainer in Training, Dr, Juzer Tybekhan, on telehealth screen: 

Social Worker, Amanda Schroeder, Nurse, Andrea 

Brandt; Social Worker and Original FACT member, Karen Long 

As we continue to recognize our Family Centred Care 

Champions, we wish to especially recognize the many 

staff, physician and family who have lent their time as 

members or who directly support the work of the FCC 

Council and NICU Family Advisory Care Team since they 

both began meeting in the fall of 2009. Members of both 

councils gather monthly for regular meetings, attend 

various committee meetings and also provide countless 

hours supporting the FCC Network's many initiatives. It is 

through the work of these councils that the seeds of many 

Family Centred Care initiatives have been planted and 

successfully carried out. They set direction and priorities 

for the incredible work that has been accomplished in the 

past 4 years. 

We recognize members of both of these councils who have 

served more than two years as Family Centred Care 

Champions. Over the next couple of months, we will be 

making sure that eligible council members will get their 

pins! 

Regardless of how long you have served on either council, 

we sincerely thank the over 100 members who have, at 

one time or another, served on these councils. 

CARING FOR BABIES BORN VERY EARLY AND VERY SMALL 

... THE 23 WEEK DILEMMA 

As reported in the 

February edition of the 

primer, for the past year, a 

working group consisting 

of Neonatologists, Nurses, 

Nurse Practitioners, Social 

Work, Perinatologists, 

Obstetricians, Ethics, 

Residents, Fellows, Family Centered Care Staff and family 

members of FACT have researched, discussed and debated 

the topic "the 23 week Dilemma". 

Background: 

Up until just recently, parents were not routinely offered 

the option of resuscitating their babies born as early as 23


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May saw us presenting to 

new staff at three different 

orientations! 

SNELP (STOLLERY NURSING 

ENTRY LEVEL PROGRAM) 

Family members, Dee‐Ann 

Schwanke and Christina 

Herbers, teamed up with the 

Clinical Nurse Educators to 

share their experiences 

around Family Centred Care 

to 11 nurses and other staff 

new to the Stollery inpatient 

units. 

PICU 

Karen Calhoun, family 

member, and Marcel Panas 

engaged in a conversation 

with 15 nurses about Family 

Centred Care in the PICU. 

Although only scheduled to 

last one our, the 

conversation continued for 

an additional hour which 

highlights how important 

engaging families is to staff. 

NICU 

We welcomed our newest 

presenters, Krysty Wolfe and 

Nicole Lyste (and their NICU 

grads!!), as they shared their 

recent experiences in the 

NICU to new nurses to that 

unit. Krysty and Nicole's 

families had only graduated 

from the NICU in the last 

year and were very eloquent 

in how they discussed Family 

Centred Care from the family 

perspective. 

Perhaps the evaluation 

response that best describes 

weeks. Experiences in other parts of the world indicate 

that it is possible for babies born this early to survive and 

do well enough to go home with their families. However, 

the inconsistent approach to offering resuscitation to 

families in this situation has been very challenging for 

both families and staff who care for these babies. 

Despite (or because of) the many differing views and 

experiences, this working group exhibited an incredible 

sense of collaboration. This resulted in many significant 

accomplishments that everyone involved believes will 

improve the experience for both families and staff in this 

situation while improving outcomes for these extremely 

vulnerable babies. 

The results: 

All parents, through consults with their health care 

team, will be provided the option of resuscitation of 

babies born this early 

The decisions that the families make with the health 

care team will be respected ... regardless of the 

decision 

Tools and teaching methods are being developed to 

help develop the skills of the team providing the 

consults to families 

Tools and information sheets are being developed to 

provide parents some of the information, in a way 

that is meaningful to them, they need to make 

these challenging decisions (such as the document 

which you may download 

Congratulations and thank you to the members of the 

working group and to the hundreds of people throughout 

the many disciplines who continue to be engaged in the 

necessary conversations. This has been a great example of 

collaboration and engagement. 

COLLABORATION & ENGAGEMENT AT EDUFEST 

The theme of this year's Edufest, which took place during 

National Nurse's Week, was Engagement. Sharon 

Drury, Clinical Unit Manager andGeri St. Jean, Clinical 

Nurse Educator ‐ both of the Stollery Emergency 

Department, "engaged" with 

Marcel Panas, Coordinator, Family Centred Care, to share 

the experience of implementing the whiteboards. The 

three presenters focused on how staff, families, 

management and other resources were continually


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the value that staff see in all 

of these presentations is the 

one which said "it's 

presentations like these that 

remind me why I chose this 

career and love the work 

that I do" 

REVIEW OF FAMILY 

EDUCATION MATERIALS 

AND POLICY & PROCEDURE 

Families are key stakeholders in 

the review of educational 

materials for families and 

policies that guide how care is 

provided. 

Managing Your Child's Pain 

Pamphlet 

Codeine is no longer 

recommended for children and 

a provincial group is addressing 

changing practice to administer 

morphine instead. Family 

members Mary Bell, and Stacy 

Grainger‐Schatz along with 

Nurse Practitioner Kathy 

Reid had input on this new 

document available to families 

throughout the province. 

Two policies were reviewed by 

family members Karen Gartner 

and Michelle Edwards 

Thompson on: 

Sharon Drury, Geri St. Jean 

and Marcel Panas team up 

to present theWhiteboards 

at Edufest 2013 

engaged throughout the design, 

implementation and evaluation 

phases of the project. We 

shared our own observations of 

the implementation of the 

whiteboards, not only in 

Emergency Department, but 

throughout the Stollery 

Children's Hospital. The 

presentation was well received 

and has even resulted staff from 

adult health care centres 

contacting us for assistance in 

implementing something similar. 

A GREAT RESPONSE RATE TO DATE: FAMILY CENTRED 

CARE SURVEY 

May 1st was the first day of the rollout of the Family Centred Care 

Survey. This survey is being conducted by the FCC Council to 

evaluate the perceptions of staff and families regarding the delivery 

of FCC at the Stollery. 

We are excited to see so many families and staff responding. As of 

May 24th, 1,038 families, 44 physicians / residents, and 206 staff. 

We have reached 72% of our targeted number of responses. The 

survey will continue until June 28. 

If your child was at the Stollery since May 1, 2013 and you didn't 

have the opoprtunity, please complete the survey online at: 

https://survey.albertahealthservices.ca 

/TakeSurvey.aspx?SurveyID=72LKlp9K 

We look forward to reviewing the expected rich responses from 

staff and families to inform the future directions and priorities of 

the FCC Council. 

Prevention of Pressure 

Related Injury 

Stollery Visitor Policy 

FCC BROCHURE AND 

APPLICATION FORM 

Many of our network's most 

involved members have 

joined the network after 

being referred by physicians, 

staff and family members. A 

new FCC Brochure and 

Application form has been


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created to assist in sharing 

what FCC is at the Stollery 

and how physicians, staff 

and families can get 

involved. 

To view the new brochure, 

click on the following link. 

Feel free to pass it along to 

anyone you feel would be a 

great addition to the 

network! 

FCC Brochure & Application 

Form 

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Stollery Children's Hospital Family Centred Care | The Family Room | 452.02, 8440 - 112 Street | Edmonton | AB | T6G 2B7 | Canada

May - Alberta Health Services

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