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Report on GRPCC Specialist Palliative Care Consultancy Program 2007-2012 Access to specialist palliative care consultancy services has been very limited in Gippsland until recent years. However this is changing thanks to the GRPCC Specialist Palliative Care Consultancy Service Program. A recently compiled report on the Program shows that much progress has been made between 2007 and 2012. The Program has been possible with funding from the Department of Human Services (DHS) and Department of Health (DH), with recurrent funding since 2007 through a Rural Palliative Care Medical Purchasing Fund. The GRPCC has built on this to develop a Specialist Palliative Care Consultancy Service Plan for Gippsland 2011-15, which aims to have a resident regional specialist palliative care consultancy service in place by 2015. On-going partnerships with three metropolitan based palliative care consultancy services were established in 2008: Calvary Health Care Bethlehem; Peninsula Health Palliative Care Unit; and Southern Health Supportive & Palliative Care Service. Visits to Gippsland commenced later in 2008, and the service now includes four main components involving palliative medicine specialists: • Palliative care education to health professionals; • Multidisciplinary team (MDT) meetings; • Secondary phone consultations; and • Primary consultation clinics. The growth of the Program overall and its components are shown in the Figure below. Education has been an important part of the Program since its beginning and an annual regional calendar is now developed based on the needs of the region. MDT meetings to discuss palliative care patients (or issues) with the purpose of delivering best practice care started in 2009 and have become a substantial part of the service since 2010. Secondary phone consultations have been available for parts of Gippsland since 2008, but are now available to medical professionals and nurses across the region. Primary consultation clinics commenced in 2012, and have been held at Bairnsdale Regional Health Service, <strong>Central</strong> Gippsland Health Service, Gippsland Lakes Community Health, Latrobe Community Health Service and Latrobe Regional Hospital (William Buckland Radiotherapy Gippsland). The palliative care consultancy services also support the Nurse Practitioner Candidates (NPC), who are part funded by the GRPCC in three of four Gippsland sub-regions. Assistance with policy and procedure development has also been provided, e.g. the rollout of the Pathway for Improving the Care of the Dying (PICD). For further information contact Anny Byrne, GRPCC Project Officer on (03) 5623 0684 or email anny.byrne@wghg.com.au Aged Care Link Nurse Project Work is underway on the Aged Care Link Nurse Project with the recent appointment of our Palliative Aged Care Resource Nurse, Carol Barbeler. Carol’s role will be to support RACFs staff to deliver a palliative approach to care by providing free education and resources. Carol will utilise an education program that was formulated, researched and tested through a federally-funded project in Queensland. The education program and resources include advance care planning, advanced dementia care, physical and emotional care in the terminal phase of life, and end of life care pathways. This education is linked to both the Aged Care Accreditation Standards and Aged Care Funding Instrument. Access to this support will be made available to all RACFs in Gippsland, and therefore will be rolled out in stages. The Consortium Management Group has agreed to pilot the project in East Gippsland and Wellington in March 2013. We anticipate that training for RACFs in South Gippsland and Bass Coast will be available in June 2013, and in La Trobe Valley and Baw Baw in October 2013. Regular updates on the Aged Care Link Nurse Project will be included in this newsletter and on the GRPCC website. For further information you can contact Carol Barbeler, GRPCC’s Palliative Aged Care Resource Nurse on (03) 5622 6482 (Mon–Fri), or email carol.barbeler@wghg.com.au 600 Hours 500 400 300 200 100 VISIT * PRIMARY CONSULTATION PHONE CONSULTATION NPC SUPERVISION MDT GENERAL ADMIN 0 2008-‐09 2009-‐10 2010-‐11 2011-‐12 EDUCATION Number of specialist palliative care consultancy service hours to Gippsland by service category and financial year (excludes travel time). 1 1 Data are based on GRPCC agendas, specialist consultancy service time sheets and health service reports of visits, but it should be noted that data are not complete and cannot be seen as an accurate record. * “Visit” includes a variety of tasks, including initial visits to services and time not able to be allocated to a more specific category. GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012
East Gippsland Palliative Care Information Sharing Day 14 November 2012 Bairnsdale RSL. The GRPCC attended this community forum which provided people in East Gippsland with the opportunity to learn about community-based care options for all stages of palliative care. There was opportunity for attendees to speak directly with representatives from community- based care services, financial and support services, and residential care facilities. Presentations included an overview of palliative care with a focus on quality of life issues; available support services to assist carers of people living with advanced dementia; options for people to think about and pursue in relation to advanced care directives; and legal and advocacy issues were addressed through a very engaging speaker from State Trustees. It was a valuable information day and provided networking opportunities with service providers and industry representatives. It illustrated the value to all attendees of being informed of choice, and the importance of planning in advance for palliative care from an individual perspective. Nurse Practitioner Program update The GRPCC Nurse Practitioner Program was one of the 11 recommendations of the Specialist Palliative Care Consultancy Service Plan for Gippsland. Key achievements of 2011-12 include: Jo Kelly, Nurse Practitioner Candidate (NPC) for Southern Region has been undertaking placements at Peninsula Health to enhance her clinical skills. Most recently, Jo submitted her portfolio for endorsement as Nurse Practitioner. Jenny Turra, NPC for <strong>Central</strong> West Region has established a strong relationship with Latrobe Regional Hospital and William Buckland Radiotherapy Centre (WBRC). Jenny attends the LRH Palliative Care Working Party, provides education to LRH staff and attends ward rounds and primary clinics with the visiting palliative medicine specialists. Nicola Gorwell, NPC for East Gippsland has established multidisciplinary team meetings and education sessions with many health services across East Gippsland. Nicola has also been measuring the impact of her role using tools from the Palliative Care Outcomes Collaborative. Evidence is emergin that there is a strong collaborative approach in palliative care service delivery in East Gippsland, which will have great benefits for clients and carers. Irene Murphy has been recruited to the GRPCC as Regional Nurse Practitioner Mentor. Irene brings many years of clinical leadership experience to the region and will play a pivotal role in supporting our NPCs to gain endorsement. What’s new in palliative care? Introduction to Palliative Care Short Course Monash University’s School of Nursing and Midwifery will be running the Introduction to Palliative Care Short Course again in August 2013. The course was developed by Monash in partnership with the GRPCC in response to a need for an introductory course for generalist healthcare practitioners. The course runs over 13 weeks and covers palliative care principles, communication, clinical assessment and intervention in palliative care as well as optimising function in palliative care. The GRPCC will be encouraging Registered Nurses, Enrolled Nurses and Allied Health Professionals to attend the course. Updates regarding course dates and enrolments will be available on the GRPCC website. Follow the Palliative Care Education link on the left side of home page. Volunteers The Managers of Palliative Care Volunteers came together this month to share ideas about attracting and retaining volunteers and ways in which the GRPCC can support the services in this endeavour. The majority of member services have a dedicated manager or coordinator of volunteers and have at least two trained palliative care volunteers. Member services are responsible for inducting and educating palliative care volunteers within their own service. Volunteers must receive formal palliative care training as well as experiential on-the-job training. Palliative Care Victoria released the second edition of the Palliative Care Volunteer Training Resource Kit earlier this year. The Resource Kit is designed as a formal core or induction training program for prospective palliative care volunteers which meets the Victorian Palliative Care Volunteer Standards (2007) and the Australian Palliative Care Standards (2005). There are nine modules covering: an introduction to palliative care; the volunteer’s role; communication; spirituality; diversity; responding to grief and loss; illnesses and care; dying and death; and self care of the volunteer. One of the challenges faced by the Managers of Palliative Care Volunteers, many of whom work one or two days a week, is limited time and resources to provide the formal training component to volunteers. The GRPCC has therefore agreed to work with member services in delivering the formal training component on a sub-regional basis and to provide training to those Managers who have not had experience in training others based on the Train the Trainer model. Details about the training schedule will be released in the New Year. Further information contact Karen Raabe, GRPCC Project Officer on (03) 5622 6481(Tuesday and Thursday) or email karen.raabe@wghg.com.au Bereavement support standards for specialist palliative care services New standards for bereavement support have been developed by the Australian Centre for Grief and Bereavement in partnership with the Centre for Palliative Care. The standards provide guidance for the provision of bereavement support by palliative care services targeted at all carers and bereaved individuals with elevated risk of developing prolonged or complicated grief or with current psychosocial and/or spiritual distress. Minimum standards for the provision of bereavement support at different points along the bereavement trajectory are provided. The standards are available at www.health.vic.gov.au/ palliativecare/publications.htm Carers Recognition Act 2012 The Carers Recognition Act 2012 came into effect on 1 July 2012. The Act has principles relating to carers, people being cared for, and people in care relationships. The principles are primarily about respect, recognition, support, consultation, health and wellbeing, and the ability of carers to participate in education and employment. An information kit about the Act, Supporting people in care relationships in Victoria: Carers Recognition Act 2012 is available on the Department of Human Services website at www.dhs.vic.gov.au/carersact GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012
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