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life & death matters<br />
Newsletter of Gippsland Region Palliative Care Consortium<br />
NO.22 SUMMER 2012<br />
www.gha.net.au/GRPCC<br />
This Issue:<br />
MESSAGE from THE CHAIR<br />
Specialist Palliative Care<br />
Consultancy Service Report<br />
Aged Care Link Nurse project update<br />
East Gippsland Palliative Care<br />
Information Sharing day<br />
Nurse Practitioner Program update<br />
Whats new in palliative care<br />
On the Couch WITH Dr Scott King<br />
Introducing Carol Barbeler<br />
Introducing Irene Murphy<br />
Contacts:<br />
Anne Curtin – Chair, GRPCC<br />
t. (03) 5623 0614<br />
e. anne.curtin@wghg.com.au<br />
Vicki Doherty<br />
– Consortium Manager<br />
t. 0419 797 513<br />
e. vicki.doherty@bcrh.com.au<br />
Judy Coombe – Admin Support<br />
t. (03) 5623 0684<br />
e. grpcc@gha.net.au<br />
Anny Byrne – PROJECT OFFICER<br />
t. (03) 5623 0684<br />
e. anny.byrne@wghg.com.au<br />
Carol Barbeler – Palliative<br />
Aged Care Resource Nurse<br />
t. (03) 5622 6482<br />
e. carol.barbeler@wghg.com.au<br />
Irene Murphy – Nurse<br />
Practitioner<br />
t. 0437 123 876<br />
e. irene.murphy@wghg.com.au<br />
Karen Raabe – PROJECT OFFICER<br />
t. (03) 5623 0684<br />
e. karen.raabe@wghg.com.au<br />
MARIA GARRET – PROJECT OFFICER<br />
t. (03) 5622 6481<br />
e. maria.garrett@wghg.com.au<br />
Mary Ross-Heazlewood<br />
– PROJECT OFFICER<br />
t. (03) 5667 5661<br />
e. mary.ross-heazlewood@gshs.com.au<br />
Office Hours:<br />
8.30am - 4.30pm Mon-Fri<br />
Phone (03) 5623 0684<br />
Fax (03) 5622 6488<br />
Message from the Chair<br />
Anne Curtin<br />
As another year<br />
draws to a close<br />
and we start looking<br />
ahead to 2013, it<br />
is timely to take<br />
stock of the GRPCC’s<br />
achievements. Since<br />
the last newsletter,<br />
we have submitted<br />
the 2012 Annual Report to the Department<br />
of Health, finalised the 2012-2015 GRPCC<br />
Strategic Plan and reviewed the Specialist<br />
Palliative Care Consultancy Program. A report<br />
on the Specialist Program is included in this<br />
newsletter.<br />
Two new scholarships were announced<br />
in October to support health professionals<br />
wishing to improve their skills and<br />
confidence in palliative care through<br />
attendance at professional development<br />
or post-graduate education. All applicants<br />
will be notified of the outcome of their<br />
application shortly. Successful scholars will be<br />
announced in our next newsletter.<br />
As part of the Consortium’s regional<br />
governance, an updated Memorandum of<br />
Understanding (MoU) between the member<br />
services has been signed, effective until<br />
December 2015. The MoU underpins the<br />
work of the GRPCC in providing palliative<br />
care services across Gippsland.<br />
Last month the Department of Health<br />
requested that funded palliative care<br />
services complete a self-assessment against<br />
the palliative care Service Capability<br />
Framework. The framework details three<br />
types of palliative care services: inpatient;<br />
community; and consultancy services. There<br />
are three levels of inpatient services; two<br />
levels of community services and one level<br />
of consultancy service. The self-assessment<br />
covers the following capability measures:<br />
staffing profile; education, training and<br />
research; quality framework; service<br />
integration and linkages; infrastructure,<br />
facilities and supporting services. Results will<br />
be available to services in early 2013 with a<br />
statewide forum planned for March.<br />
On behalf of the member services, the<br />
GRPCC delivers the regional Specialist<br />
Palliative Care Consultancy Program with its<br />
monthly multidisciplinary team meetings,<br />
primary consultation clinics, secondary<br />
phone consultations and palliative care<br />
education. The Program also supports the<br />
Nurse Practitioner Candidates who are<br />
part funded by the GRPCC in three of four<br />
Gippsland sub-regions. The GRPCC also<br />
provides regional volunteer support. All of<br />
these activities contribute towards assisting<br />
member services achieving the requirements<br />
of Level 1 and Level 2 palliative care services.<br />
To deliver on increasing work priorities,<br />
two new staff have been recruited to the<br />
GRPCC team: Irene Murphy to the position<br />
of Regional Palliative Care Nurse Practitioner<br />
Mentor; and Carol Barbeler to the<br />
position of Palliative Aged Care Resource<br />
Nurse. Irene comes to us from Melbourne<br />
Citymission with extensive experience in<br />
palliative care and clinical leadership and<br />
will provide support to our Nurse Practitioner<br />
Candidates. Carol joins the team with<br />
extensive experience working in the aged<br />
care and vocational education sectors and<br />
is responsible for the Aged Care Link Nurse<br />
Project. You can read more about Irene and<br />
Carol in this newsletter.<br />
The GRPCC was also successful in obtaining<br />
a $5,000 grant from the Department of<br />
Families, Housing, Community Services and<br />
Indigenous Affairs to develop a regional<br />
education program for palliative care<br />
volunteers.<br />
Hard copies of the Annual Report and<br />
Strategic Plan have been distributed to<br />
member services and are available for<br />
general viewing on the GRPCC website. The<br />
website will undergo a review in the first half<br />
of 2013 with the aim of making it more userfriendly<br />
and easier to navigate.<br />
On behalf of the GRPCC,<br />
I wish you and your<br />
families a joyful and<br />
safe Christmas and look<br />
forward to working with<br />
you in the New Year.<br />
The GRPCC team wish you and<br />
your families a Merry Christmas<br />
and a Happy and Safe New Year<br />
GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012
Report on GRPCC Specialist Palliative Care<br />
Consultancy Program 2007-2012<br />
Access to specialist palliative care<br />
consultancy services has been very limited in<br />
Gippsland until recent years. However this<br />
is changing thanks to the GRPCC Specialist<br />
Palliative Care Consultancy Service Program.<br />
A recently compiled report on the Program<br />
shows that much progress has been made<br />
between 2007 and 2012.<br />
The Program has been possible with<br />
funding from the Department of Human<br />
Services (DHS) and Department of Health<br />
(DH), with recurrent funding since 2007<br />
through a Rural Palliative Care Medical<br />
Purchasing Fund. The GRPCC has built on<br />
this to develop a Specialist Palliative Care<br />
Consultancy Service Plan for Gippsland<br />
2011-15, which aims to have a resident<br />
regional specialist palliative care consultancy<br />
service in place by 2015.<br />
On-going partnerships with three metropolitan<br />
based palliative care consultancy<br />
services were established in 2008: Calvary<br />
Health Care Bethlehem; Peninsula Health<br />
Palliative Care Unit; and Southern Health<br />
Supportive & Palliative Care Service. Visits<br />
to Gippsland commenced later in 2008,<br />
and the service now includes four main<br />
components involving palliative medicine<br />
specialists:<br />
• Palliative care education to health professionals;<br />
• Multidisciplinary team (MDT) meetings;<br />
• Secondary phone consultations; and<br />
• Primary consultation clinics.<br />
The growth of the Program overall and its<br />
components are shown in the Figure below.<br />
Education has been an important part of the<br />
Program since its beginning and an annual<br />
regional calendar is now developed based<br />
on the needs of the region. MDT meetings<br />
to discuss palliative care patients (or issues)<br />
with the purpose of delivering best practice<br />
care started in 2009 and have become a<br />
substantial part of the service since 2010.<br />
Secondary phone consultations have been<br />
available for parts of Gippsland since 2008,<br />
but are now available to medical professionals<br />
and nurses across the region. Primary<br />
consultation clinics commenced in 2012,<br />
and have been held at Bairnsdale Regional<br />
Health Service, <strong>Central</strong> Gippsland Health<br />
Service, Gippsland Lakes Community Health,<br />
Latrobe Community Health Service and<br />
Latrobe Regional Hospital (William Buckland<br />
Radiotherapy Gippsland).<br />
The palliative care consultancy services also<br />
support the Nurse Practitioner Candidates<br />
(NPC), who are part funded by the GRPCC<br />
in three of four Gippsland sub-regions.<br />
Assistance with policy and procedure<br />
development has also been provided, e.g.<br />
the rollout of the Pathway for Improving the<br />
Care of the Dying (PICD).<br />
For further information contact Anny Byrne,<br />
GRPCC Project Officer on (03) 5623 0684 or email<br />
anny.byrne@wghg.com.au<br />
Aged Care Link<br />
Nurse Project<br />
Work is underway on the Aged Care Link<br />
Nurse Project with the recent appointment<br />
of our Palliative Aged Care Resource Nurse,<br />
Carol Barbeler.<br />
Carol’s role will be to support RACFs staff<br />
to deliver a palliative approach to care by<br />
providing free education and resources.<br />
Carol will utilise an education program<br />
that was formulated, researched and tested<br />
through a federally-funded project in<br />
Queensland. The education program and<br />
resources include advance care planning,<br />
advanced dementia care, physical and<br />
emotional care in the terminal phase of<br />
life, and end of life care pathways. This<br />
education is linked to both the Aged Care<br />
Accreditation Standards and Aged Care<br />
Funding Instrument.<br />
Access to this support will be made<br />
available to all RACFs in Gippsland, and<br />
therefore will be rolled out in stages. The<br />
Consortium Management Group has agreed<br />
to pilot the project in East Gippsland and<br />
Wellington in March 2013. We anticipate<br />
that training for RACFs in South Gippsland<br />
and Bass Coast will be available in June<br />
2013, and in La Trobe Valley and Baw<br />
Baw in October 2013. Regular updates on<br />
the Aged Care Link Nurse Project will be<br />
included in this newsletter and on the GRPCC<br />
website.<br />
For further information you can contact<br />
Carol Barbeler, GRPCC’s Palliative Aged Care<br />
Resource Nurse on (03) 5622 6482 (Mon–Fri), or<br />
email carol.barbeler@wghg.com.au<br />
600<br />
Hours<br />
500<br />
400<br />
300<br />
200<br />
100<br />
VISIT *<br />
PRIMARY CONSULTATION<br />
PHONE CONSULTATION<br />
NPC SUPERVISION<br />
MDT<br />
GENERAL ADMIN<br />
0<br />
2008-‐09 2009-‐10 2010-‐11 2011-‐12<br />
EDUCATION<br />
Number of specialist palliative care consultancy service hours to<br />
Gippsland by service category and financial year (excludes travel time). 1<br />
1<br />
Data are based on GRPCC agendas, specialist consultancy service time sheets and health service reports of visits, but it should be noted that data are<br />
not complete and cannot be seen as an accurate record.<br />
* “Visit” includes a variety of tasks, including initial visits to services and time not able to be allocated to a more specific category.<br />
GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012
East Gippsland Palliative<br />
Care Information<br />
Sharing Day<br />
14 November 2012 Bairnsdale RSL.<br />
The GRPCC attended this community forum<br />
which provided people in East Gippsland with<br />
the opportunity to learn about community-based<br />
care options for all stages of palliative care. There<br />
was opportunity for attendees to speak directly<br />
with representatives from community- based<br />
care services, financial and support services, and<br />
residential care facilities.<br />
Presentations included an overview of palliative<br />
care with a focus on quality of life issues; available<br />
support services to assist carers of people living<br />
with advanced dementia; options for people to<br />
think about and pursue in relation to advanced<br />
care directives; and legal and advocacy issues were<br />
addressed through a very engaging speaker from<br />
State Trustees.<br />
It was a valuable information day and provided<br />
networking opportunities with service providers<br />
and industry representatives. It illustrated the<br />
value to all attendees of being informed of choice,<br />
and the importance of planning in advance for<br />
palliative care from an individual perspective.<br />
Nurse Practitioner<br />
Program update<br />
The GRPCC Nurse Practitioner Program was<br />
one of the 11 recommendations of the Specialist<br />
Palliative Care Consultancy Service Plan for<br />
Gippsland. Key achievements of 2011-12 include:<br />
Jo Kelly, Nurse Practitioner Candidate (NPC) for<br />
Southern Region has been undertaking placements<br />
at Peninsula Health to enhance her clinical skills.<br />
Most recently, Jo submitted her portfolio for<br />
endorsement as Nurse Practitioner.<br />
Jenny Turra, NPC for <strong>Central</strong> West Region has<br />
established a strong relationship with Latrobe<br />
Regional Hospital and William Buckland Radiotherapy<br />
Centre (WBRC). Jenny attends the LRH<br />
Palliative Care Working Party, provides education<br />
to LRH staff and attends ward rounds and primary<br />
clinics with the visiting palliative medicine<br />
specialists.<br />
Nicola Gorwell, NPC for East Gippsland has<br />
established multidisciplinary team meetings and<br />
education sessions with many health services<br />
across East Gippsland. Nicola has also been<br />
measuring the impact of her role using tools<br />
from the Palliative Care Outcomes Collaborative.<br />
Evidence is emergin that there is a strong collaborative<br />
approach in palliative care service delivery<br />
in East Gippsland, which will have great benefits<br />
for clients and carers.<br />
Irene Murphy has been recruited to the GRPCC<br />
as Regional Nurse Practitioner Mentor. Irene<br />
brings many years of clinical leadership experience<br />
to the region and will play a pivotal role in<br />
supporting our NPCs to gain endorsement.<br />
What’s new in palliative care?<br />
Introduction to Palliative Care<br />
Short Course<br />
Monash University’s School<br />
of Nursing and Midwifery will<br />
be running the Introduction<br />
to Palliative Care Short Course<br />
again in August 2013. The course<br />
was developed by Monash in<br />
partnership with the GRPCC in<br />
response to a need for an introductory<br />
course for generalist healthcare<br />
practitioners. The course runs over<br />
13 weeks and covers palliative care<br />
principles, communication, clinical<br />
assessment and intervention in<br />
palliative care as well as optimising<br />
function in palliative care.<br />
The GRPCC will be encouraging<br />
Registered Nurses, Enrolled Nurses<br />
and Allied Health Professionals to<br />
attend the course.<br />
Updates regarding course dates and<br />
enrolments will be available on the<br />
GRPCC website. Follow the Palliative<br />
Care Education link on the left side of<br />
home page.<br />
Volunteers<br />
The Managers of Palliative<br />
Care Volunteers came together<br />
this month to share ideas about<br />
attracting and retaining volunteers<br />
and ways in which the GRPCC<br />
can support the services in this<br />
endeavour. The majority of member<br />
services have a dedicated manager<br />
or coordinator of volunteers and<br />
have at least two trained palliative<br />
care volunteers. Member services<br />
are responsible for inducting and<br />
educating palliative care volunteers<br />
within their own service.<br />
Volunteers must receive formal<br />
palliative care training as well as<br />
experiential on-the-job training.<br />
Palliative Care Victoria released<br />
the second edition of the Palliative<br />
Care Volunteer Training Resource<br />
Kit earlier this year. The Resource<br />
Kit is designed as a formal core<br />
or induction training program<br />
for prospective palliative care<br />
volunteers which meets the<br />
Victorian Palliative Care Volunteer<br />
Standards (2007) and the Australian<br />
Palliative Care Standards (2005).<br />
There are nine modules covering:<br />
an introduction to palliative<br />
care; the volunteer’s role; communication;<br />
spirituality; diversity;<br />
responding to grief and loss;<br />
illnesses and care; dying and death;<br />
and self care of the volunteer.<br />
One of the challenges faced by<br />
the Managers of Palliative Care<br />
Volunteers, many of whom work<br />
one or two days a week, is limited<br />
time and resources to provide<br />
the formal training component<br />
to volunteers. The GRPCC has<br />
therefore agreed to work with<br />
member services in delivering the<br />
formal training component on a<br />
sub-regional basis and to provide<br />
training to those Managers who<br />
have not had experience in training<br />
others based on the Train the<br />
Trainer model.<br />
Details about the training schedule<br />
will be released in the New Year.<br />
Further information contact<br />
Karen Raabe, GRPCC Project Officer on<br />
(03) 5622 6481(Tuesday and Thursday)<br />
or email karen.raabe@wghg.com.au<br />
Bereavement support<br />
standards for specialist<br />
palliative care services<br />
New standards for bereavement<br />
support have been developed<br />
by the Australian Centre for Grief<br />
and Bereavement in partnership<br />
with the Centre for Palliative Care.<br />
The standards provide guidance<br />
for the provision of bereavement<br />
support by palliative care services<br />
targeted at all carers and bereaved<br />
individuals with elevated risk<br />
of developing prolonged or<br />
complicated grief or with current<br />
psychosocial and/or spiritual<br />
distress. Minimum standards for<br />
the provision of bereavement<br />
support at different points along<br />
the bereavement trajectory are<br />
provided.<br />
The standards are available<br />
at www.health.vic.gov.au/<br />
palliativecare/publications.htm<br />
Carers Recognition Act 2012<br />
The Carers Recognition Act 2012<br />
came into effect on 1 July 2012.<br />
The Act has principles relating to<br />
carers, people being cared for,<br />
and people in care relationships.<br />
The principles are primarily about<br />
respect, recognition, support, consultation,<br />
health and wellbeing, and<br />
the ability of carers to participate in<br />
education and employment.<br />
An information kit about<br />
the Act, Supporting people in<br />
care relationships in Victoria:<br />
Carers Recognition Act 2012 is<br />
available on the Department<br />
of Human Services website at<br />
www.dhs.vic.gov.au/carersact<br />
GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012
Staff Profile – Introducing Irene Murphy<br />
I have been appointed to the position of Regional<br />
Nurse Practitioner Mentor by the GRPCC. I have been<br />
been in palliative care practice for sixteen years in the<br />
sub-acute and community settings. I am grateful for the<br />
professional opportunities given to me by my former<br />
workplace (Melbourne City Mission Palliative Care)<br />
to develop my skills base, knowledge and expertise<br />
that resulted in Nurse Practitioner – Palliative Care<br />
Endorsement by the NBV in 2005. I am committed to<br />
excellence in clinical practice and have a strong interest<br />
in the formation, training and education of palliative<br />
care clinicians as well as the acquisition of effective<br />
clinical leadership.<br />
I am delighted to be working for the Consortium to<br />
assist, participate and collaborate to effect its vision and<br />
strategic planning to strengthen palliative care delivery<br />
in the region. I want to express my thanks to the GRPCC<br />
team for making me feel so welcome.<br />
Staff Profile – Introducing Carol Barbeler<br />
I am delighted to be taking up the role of Palliative<br />
Aged Care Resource Nurse for Gippsland with the<br />
GRPCC. After nearly ten years of teaching nursing<br />
and aged care in the TAFE sector, I look forward to<br />
supporting residential aged care facilities in their<br />
palliative approach to care.<br />
I am a registered nurse and have recently completed<br />
my Master of Applied Gerontology at Flinders University.<br />
I have a special interest in older people and their<br />
experiences, and value the contributions that they<br />
have made through their lives. Ensuring that the last<br />
months and weeks of people’s lives are as comfortable<br />
as possible and lead to a peaceful death is an important<br />
and core component of residential aged care.<br />
Even in my early weeks in this role, I am excited and<br />
invigorated by the enthusiasm and support offered by<br />
all of the GRPCC team. We are currently planning the<br />
pilot implementation of palliative approach training for<br />
Gippsland, and I look forward to keeping you up to date<br />
with our progress.<br />
On the Couch with Dr Scott King<br />
1. What do you do for a living?<br />
I am a palliative medicine specialist<br />
working at Calvary Health Care<br />
Bethlehem, Cabrini Health and Alfred<br />
Health. I have a background in general<br />
practice although I have not worked in<br />
that area for 18 months.<br />
2. What did you want to be when you<br />
grew up?<br />
I often said I wanted to be a doctor,<br />
although I said a lot of other professions<br />
as well. I grew up on a farm in Western<br />
Victoria, but I never said I was going to<br />
be a farmer.<br />
3. What’s your favourite holiday<br />
destination?<br />
I’ve been quite fortunate to have<br />
travelled to many parts of the world and<br />
lived in the UK for almost four years. So<br />
many places come to mind for so many<br />
different reasons. Port Fairy is right up<br />
there as it is lovely and was where we<br />
always had our summer holidays as a<br />
kid. Abroad, the Rasa Ria Resort Saba<br />
- great facilities, great kids club. I’m at<br />
that stage of life where kids clubs are<br />
VERY important.<br />
4. What will be written on your<br />
headstone?<br />
I never gave it a lot of thought. Maybe I<br />
wouldn’t have one.<br />
5. What music will be played at your<br />
funeral?<br />
Again not something that I have given<br />
much thought. It would be something<br />
uplifting though, not sombre.<br />
6. What would your last outfit be?<br />
What I am most comfortable in: tee<br />
shirt, jeans and either bare-footed or in<br />
my bright red Nikes.<br />
7. Buried, cremated or snap-frozen?<br />
Whatever the cheaper option is for the<br />
family, funerals are so expensive. The<br />
cheapest option is probably “dumped in<br />
bushland” which would not be so bad.<br />
Doubt I would care much.<br />
8. What are you reading now?<br />
I’m reading “Cloud Atlas” (soon to be<br />
a major motion picture starring Tom<br />
Hanks) when I can find it again. It’s<br />
gone missing in the house somewhere. I<br />
blame the kids. I have just finished “The<br />
Hydrogen Sonata” by Ian M Banks.<br />
9. What would youhave for your last<br />
meal?<br />
I would like to be able to cook my last<br />
meal. I have great fun making a dinner,<br />
with a good bottle (or two) of wine<br />
for the cook, of course. Probably do<br />
something Moroccan.<br />
10. Which famous person would you like<br />
to invite to dinner?<br />
J.R.R. Tolkien, I am such a fan of<br />
his incredible work. I have a million<br />
questions.<br />
11. If you were an animal what would it<br />
be?<br />
I was born in the year of the dog, and<br />
I have a lot of dog-like characteristics.<br />
Draw your own conclusions.<br />
12. What lessons has your work life<br />
taught you?<br />
There have been many lessons. The<br />
main one would be that you will not<br />
achieve your goals if you don’t put in<br />
the effort needed. It sounds straight<br />
forward, but once I realised that<br />
the excuses I made to myself for not<br />
achieving goals, were really reasons and<br />
that I could change or overcome these,<br />
things changed. The effort required does<br />
not have to be much, but appropriate.<br />
The GRPCC is an alliance of 14<br />
member agencies that provide inpatient<br />
and/or community palliative care for<br />
the residents of Gippsland. The GRPCC’s<br />
vision is that Gippslanders with a lifethreatening<br />
illness and their families and<br />
carers will have access to a high quality<br />
service system which is innovative and<br />
provides evidence based co-ordinated<br />
care and support that is responsive to<br />
their individual needs.<br />
The opinions expressed in “Life and<br />
Death Matters” are those of contributors<br />
and not necessarily shared by the GRPCC<br />
or its individual member health services.<br />
The Department of Health provides<br />
GRPCC with core operational funding.<br />
“Life and Death Matters” is produced<br />
quarterly and distributed free of charge.<br />
To subscribe, email your contact details<br />
to grpcc@gha.net.au<br />
The “Life and Death Matters” editorial<br />
group is Vicki Doherty (Manager, GRPCC),<br />
Steve Kirkbright (Design & Production);<br />
with regular contributors Anny Byrne,<br />
Mary Ross-Heazlewood, Karen Raabe,<br />
Carol Barbeler, Irene Murphy, Maria<br />
Garrett, member health services and<br />
friends of GRPCC.<br />
Letters to the editor are welcome.<br />
Please email these to: grpcc@gha.net.au<br />
or send to: The Editor “Life and Death<br />
Matters” c/- West Gippsland Healthcare<br />
Group 41 Landsborough St Warragul<br />
3820 Victoria Australia. Phone (03)<br />
5623 0684<br />
GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012