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life & death matters<br />

Newsletter of Gippsland Region Palliative Care Consortium<br />

NO.22 SUMMER 2012<br />

www.gha.net.au/GRPCC<br />

This Issue:<br />

MESSAGE from THE CHAIR<br />

Specialist Palliative Care<br />

Consultancy Service Report<br />

Aged Care Link Nurse project update<br />

East Gippsland Palliative Care<br />

Information Sharing day<br />

Nurse Practitioner Program update<br />

Whats new in palliative care<br />

On the Couch WITH Dr Scott King<br />

Introducing Carol Barbeler<br />

Introducing Irene Murphy<br />

Contacts:<br />

Anne Curtin – Chair, GRPCC<br />

t. (03) 5623 0614<br />

e. anne.curtin@wghg.com.au<br />

Vicki Doherty<br />

– Consortium Manager<br />

t. 0419 797 513<br />

e. vicki.doherty@bcrh.com.au<br />

Judy Coombe – Admin Support<br />

t. (03) 5623 0684<br />

e. grpcc@gha.net.au<br />

Anny Byrne – PROJECT OFFICER<br />

t. (03) 5623 0684<br />

e. anny.byrne@wghg.com.au<br />

Carol Barbeler – Palliative<br />

Aged Care Resource Nurse<br />

t. (03) 5622 6482<br />

e. carol.barbeler@wghg.com.au<br />

Irene Murphy – Nurse<br />

Practitioner<br />

t. 0437 123 876<br />

e. irene.murphy@wghg.com.au<br />

Karen Raabe – PROJECT OFFICER<br />

t. (03) 5623 0684<br />

e. karen.raabe@wghg.com.au<br />

MARIA GARRET – PROJECT OFFICER<br />

t. (03) 5622 6481<br />

e. maria.garrett@wghg.com.au<br />

Mary Ross-Heazlewood<br />

– PROJECT OFFICER<br />

t. (03) 5667 5661<br />

e. mary.ross-heazlewood@gshs.com.au<br />

Office Hours:<br />

8.30am - 4.30pm Mon-Fri<br />

Phone (03) 5623 0684<br />

Fax (03) 5622 6488<br />

Message from the Chair<br />

Anne Curtin<br />

As another year<br />

draws to a close<br />

and we start looking<br />

ahead to 2013, it<br />

is timely to take<br />

stock of the GRPCC’s<br />

achievements. Since<br />

the last newsletter,<br />

we have submitted<br />

the 2012 Annual Report to the Department<br />

of Health, finalised the 2012-2015 GRPCC<br />

Strategic Plan and reviewed the Specialist<br />

Palliative Care Consultancy Program. A report<br />

on the Specialist Program is included in this<br />

newsletter.<br />

Two new scholarships were announced<br />

in October to support health professionals<br />

wishing to improve their skills and<br />

confidence in palliative care through<br />

attendance at professional development<br />

or post-graduate education. All applicants<br />

will be notified of the outcome of their<br />

application shortly. Successful scholars will be<br />

announced in our next newsletter.<br />

As part of the Consortium’s regional<br />

governance, an updated Memorandum of<br />

Understanding (MoU) between the member<br />

services has been signed, effective until<br />

December 2015. The MoU underpins the<br />

work of the GRPCC in providing palliative<br />

care services across Gippsland.<br />

Last month the Department of Health<br />

requested that funded palliative care<br />

services complete a self-assessment against<br />

the palliative care Service Capability<br />

Framework. The framework details three<br />

types of palliative care services: inpatient;<br />

community; and consultancy services. There<br />

are three levels of inpatient services; two<br />

levels of community services and one level<br />

of consultancy service. The self-assessment<br />

covers the following capability measures:<br />

staffing profile; education, training and<br />

research; quality framework; service<br />

integration and linkages; infrastructure,<br />

facilities and supporting services. Results will<br />

be available to services in early 2013 with a<br />

statewide forum planned for March.<br />

On behalf of the member services, the<br />

GRPCC delivers the regional Specialist<br />

Palliative Care Consultancy Program with its<br />

monthly multidisciplinary team meetings,<br />

primary consultation clinics, secondary<br />

phone consultations and palliative care<br />

education. The Program also supports the<br />

Nurse Practitioner Candidates who are<br />

part funded by the GRPCC in three of four<br />

Gippsland sub-regions. The GRPCC also<br />

provides regional volunteer support. All of<br />

these activities contribute towards assisting<br />

member services achieving the requirements<br />

of Level 1 and Level 2 palliative care services.<br />

To deliver on increasing work priorities,<br />

two new staff have been recruited to the<br />

GRPCC team: Irene Murphy to the position<br />

of Regional Palliative Care Nurse Practitioner<br />

Mentor; and Carol Barbeler to the<br />

position of Palliative Aged Care Resource<br />

Nurse. Irene comes to us from Melbourne<br />

Citymission with extensive experience in<br />

palliative care and clinical leadership and<br />

will provide support to our Nurse Practitioner<br />

Candidates. Carol joins the team with<br />

extensive experience working in the aged<br />

care and vocational education sectors and<br />

is responsible for the Aged Care Link Nurse<br />

Project. You can read more about Irene and<br />

Carol in this newsletter.<br />

The GRPCC was also successful in obtaining<br />

a $5,000 grant from the Department of<br />

Families, Housing, Community Services and<br />

Indigenous Affairs to develop a regional<br />

education program for palliative care<br />

volunteers.<br />

Hard copies of the Annual Report and<br />

Strategic Plan have been distributed to<br />

member services and are available for<br />

general viewing on the GRPCC website. The<br />

website will undergo a review in the first half<br />

of 2013 with the aim of making it more userfriendly<br />

and easier to navigate.<br />

On behalf of the GRPCC,<br />

I wish you and your<br />

families a joyful and<br />

safe Christmas and look<br />

forward to working with<br />

you in the New Year.<br />

The GRPCC team wish you and<br />

your families a Merry Christmas<br />

and a Happy and Safe New Year<br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012


Report on GRPCC Specialist Palliative Care<br />

Consultancy Program 2007-2012<br />

Access to specialist palliative care<br />

consultancy services has been very limited in<br />

Gippsland until recent years. However this<br />

is changing thanks to the GRPCC Specialist<br />

Palliative Care Consultancy Service Program.<br />

A recently compiled report on the Program<br />

shows that much progress has been made<br />

between 2007 and 2012.<br />

The Program has been possible with<br />

funding from the Department of Human<br />

Services (DHS) and Department of Health<br />

(DH), with recurrent funding since 2007<br />

through a Rural Palliative Care Medical<br />

Purchasing Fund. The GRPCC has built on<br />

this to develop a Specialist Palliative Care<br />

Consultancy Service Plan for Gippsland<br />

2011-15, which aims to have a resident<br />

regional specialist palliative care consultancy<br />

service in place by 2015.<br />

On-going partnerships with three metropolitan<br />

based palliative care consultancy<br />

services were established in 2008: Calvary<br />

Health Care Bethlehem; Peninsula Health<br />

Palliative Care Unit; and Southern Health<br />

Supportive & Palliative Care Service. Visits<br />

to Gippsland commenced later in 2008,<br />

and the service now includes four main<br />

components involving palliative medicine<br />

specialists:<br />

• Palliative care education to health professionals;<br />

• Multidisciplinary team (MDT) meetings;<br />

• Secondary phone consultations; and<br />

• Primary consultation clinics.<br />

The growth of the Program overall and its<br />

components are shown in the Figure below.<br />

Education has been an important part of the<br />

Program since its beginning and an annual<br />

regional calendar is now developed based<br />

on the needs of the region. MDT meetings<br />

to discuss palliative care patients (or issues)<br />

with the purpose of delivering best practice<br />

care started in 2009 and have become a<br />

substantial part of the service since 2010.<br />

Secondary phone consultations have been<br />

available for parts of Gippsland since 2008,<br />

but are now available to medical professionals<br />

and nurses across the region. Primary<br />

consultation clinics commenced in 2012,<br />

and have been held at Bairnsdale Regional<br />

Health Service, <strong>Central</strong> Gippsland Health<br />

Service, Gippsland Lakes Community Health,<br />

Latrobe Community Health Service and<br />

Latrobe Regional Hospital (William Buckland<br />

Radiotherapy Gippsland).<br />

The palliative care consultancy services also<br />

support the Nurse Practitioner Candidates<br />

(NPC), who are part funded by the GRPCC<br />

in three of four Gippsland sub-regions.<br />

Assistance with policy and procedure<br />

development has also been provided, e.g.<br />

the rollout of the Pathway for Improving the<br />

Care of the Dying (PICD).<br />

For further information contact Anny Byrne,<br />

GRPCC Project Officer on (03) 5623 0684 or email<br />

anny.byrne@wghg.com.au<br />

Aged Care Link<br />

Nurse Project<br />

Work is underway on the Aged Care Link<br />

Nurse Project with the recent appointment<br />

of our Palliative Aged Care Resource Nurse,<br />

Carol Barbeler.<br />

Carol’s role will be to support RACFs staff<br />

to deliver a palliative approach to care by<br />

providing free education and resources.<br />

Carol will utilise an education program<br />

that was formulated, researched and tested<br />

through a federally-funded project in<br />

Queensland. The education program and<br />

resources include advance care planning,<br />

advanced dementia care, physical and<br />

emotional care in the terminal phase of<br />

life, and end of life care pathways. This<br />

education is linked to both the Aged Care<br />

Accreditation Standards and Aged Care<br />

Funding Instrument.<br />

Access to this support will be made<br />

available to all RACFs in Gippsland, and<br />

therefore will be rolled out in stages. The<br />

Consortium Management Group has agreed<br />

to pilot the project in East Gippsland and<br />

Wellington in March 2013. We anticipate<br />

that training for RACFs in South Gippsland<br />

and Bass Coast will be available in June<br />

2013, and in La Trobe Valley and Baw<br />

Baw in October 2013. Regular updates on<br />

the Aged Care Link Nurse Project will be<br />

included in this newsletter and on the GRPCC<br />

website.<br />

For further information you can contact<br />

Carol Barbeler, GRPCC’s Palliative Aged Care<br />

Resource Nurse on (03) 5622 6482 (Mon–Fri), or<br />

email carol.barbeler@wghg.com.au<br />

600<br />

Hours<br />

500<br />

400<br />

300<br />

200<br />

100<br />

VISIT *<br />

PRIMARY CONSULTATION<br />

PHONE CONSULTATION<br />

NPC SUPERVISION<br />

MDT<br />

GENERAL ADMIN<br />

0<br />

2008-­‐09 2009-­‐10 2010-­‐11 2011-­‐12<br />

EDUCATION<br />

Number of specialist palliative care consultancy service hours to<br />

Gippsland by service category and financial year (excludes travel time). 1<br />

1<br />

Data are based on GRPCC agendas, specialist consultancy service time sheets and health service reports of visits, but it should be noted that data are<br />

not complete and cannot be seen as an accurate record.<br />

* “Visit” includes a variety of tasks, including initial visits to services and time not able to be allocated to a more specific category.<br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012


East Gippsland Palliative<br />

Care Information<br />

Sharing Day<br />

14 November 2012 Bairnsdale RSL.<br />

The GRPCC attended this community forum<br />

which provided people in East Gippsland with<br />

the opportunity to learn about community-based<br />

care options for all stages of palliative care. There<br />

was opportunity for attendees to speak directly<br />

with representatives from community- based<br />

care services, financial and support services, and<br />

residential care facilities.<br />

Presentations included an overview of palliative<br />

care with a focus on quality of life issues; available<br />

support services to assist carers of people living<br />

with advanced dementia; options for people to<br />

think about and pursue in relation to advanced<br />

care directives; and legal and advocacy issues were<br />

addressed through a very engaging speaker from<br />

State Trustees.<br />

It was a valuable information day and provided<br />

networking opportunities with service providers<br />

and industry representatives. It illustrated the<br />

value to all attendees of being informed of choice,<br />

and the importance of planning in advance for<br />

palliative care from an individual perspective.<br />

Nurse Practitioner<br />

Program update<br />

The GRPCC Nurse Practitioner Program was<br />

one of the 11 recommendations of the Specialist<br />

Palliative Care Consultancy Service Plan for<br />

Gippsland. Key achievements of 2011-12 include:<br />

Jo Kelly, Nurse Practitioner Candidate (NPC) for<br />

Southern Region has been undertaking placements<br />

at Peninsula Health to enhance her clinical skills.<br />

Most recently, Jo submitted her portfolio for<br />

endorsement as Nurse Practitioner.<br />

Jenny Turra, NPC for <strong>Central</strong> West Region has<br />

established a strong relationship with Latrobe<br />

Regional Hospital and William Buckland Radiotherapy<br />

Centre (WBRC). Jenny attends the LRH<br />

Palliative Care Working Party, provides education<br />

to LRH staff and attends ward rounds and primary<br />

clinics with the visiting palliative medicine<br />

specialists.<br />

Nicola Gorwell, NPC for East Gippsland has<br />

established multidisciplinary team meetings and<br />

education sessions with many health services<br />

across East Gippsland. Nicola has also been<br />

measuring the impact of her role using tools<br />

from the Palliative Care Outcomes Collaborative.<br />

Evidence is emergin that there is a strong collaborative<br />

approach in palliative care service delivery<br />

in East Gippsland, which will have great benefits<br />

for clients and carers.<br />

Irene Murphy has been recruited to the GRPCC<br />

as Regional Nurse Practitioner Mentor. Irene<br />

brings many years of clinical leadership experience<br />

to the region and will play a pivotal role in<br />

supporting our NPCs to gain endorsement.<br />

What’s new in palliative care?<br />

Introduction to Palliative Care<br />

Short Course<br />

Monash University’s School<br />

of Nursing and Midwifery will<br />

be running the Introduction<br />

to Palliative Care Short Course<br />

again in August 2013. The course<br />

was developed by Monash in<br />

partnership with the GRPCC in<br />

response to a need for an introductory<br />

course for generalist healthcare<br />

practitioners. The course runs over<br />

13 weeks and covers palliative care<br />

principles, communication, clinical<br />

assessment and intervention in<br />

palliative care as well as optimising<br />

function in palliative care.<br />

The GRPCC will be encouraging<br />

Registered Nurses, Enrolled Nurses<br />

and Allied Health Professionals to<br />

attend the course.<br />

Updates regarding course dates and<br />

enrolments will be available on the<br />

GRPCC website. Follow the Palliative<br />

Care Education link on the left side of<br />

home page.<br />

Volunteers<br />

The Managers of Palliative<br />

Care Volunteers came together<br />

this month to share ideas about<br />

attracting and retaining volunteers<br />

and ways in which the GRPCC<br />

can support the services in this<br />

endeavour. The majority of member<br />

services have a dedicated manager<br />

or coordinator of volunteers and<br />

have at least two trained palliative<br />

care volunteers. Member services<br />

are responsible for inducting and<br />

educating palliative care volunteers<br />

within their own service.<br />

Volunteers must receive formal<br />

palliative care training as well as<br />

experiential on-the-job training.<br />

Palliative Care Victoria released<br />

the second edition of the Palliative<br />

Care Volunteer Training Resource<br />

Kit earlier this year. The Resource<br />

Kit is designed as a formal core<br />

or induction training program<br />

for prospective palliative care<br />

volunteers which meets the<br />

Victorian Palliative Care Volunteer<br />

Standards (2007) and the Australian<br />

Palliative Care Standards (2005).<br />

There are nine modules covering:<br />

an introduction to palliative<br />

care; the volunteer’s role; communication;<br />

spirituality; diversity;<br />

responding to grief and loss;<br />

illnesses and care; dying and death;<br />

and self care of the volunteer.<br />

One of the challenges faced by<br />

the Managers of Palliative Care<br />

Volunteers, many of whom work<br />

one or two days a week, is limited<br />

time and resources to provide<br />

the formal training component<br />

to volunteers. The GRPCC has<br />

therefore agreed to work with<br />

member services in delivering the<br />

formal training component on a<br />

sub-regional basis and to provide<br />

training to those Managers who<br />

have not had experience in training<br />

others based on the Train the<br />

Trainer model.<br />

Details about the training schedule<br />

will be released in the New Year.<br />

Further information contact<br />

Karen Raabe, GRPCC Project Officer on<br />

(03) 5622 6481(Tuesday and Thursday)<br />

or email karen.raabe@wghg.com.au<br />

Bereavement support<br />

standards for specialist<br />

palliative care services<br />

New standards for bereavement<br />

support have been developed<br />

by the Australian Centre for Grief<br />

and Bereavement in partnership<br />

with the Centre for Palliative Care.<br />

The standards provide guidance<br />

for the provision of bereavement<br />

support by palliative care services<br />

targeted at all carers and bereaved<br />

individuals with elevated risk<br />

of developing prolonged or<br />

complicated grief or with current<br />

psychosocial and/or spiritual<br />

distress. Minimum standards for<br />

the provision of bereavement<br />

support at different points along<br />

the bereavement trajectory are<br />

provided.<br />

The standards are available<br />

at www.health.vic.gov.au/<br />

palliativecare/publications.htm<br />

Carers Recognition Act 2012<br />

The Carers Recognition Act 2012<br />

came into effect on 1 July 2012.<br />

The Act has principles relating to<br />

carers, people being cared for,<br />

and people in care relationships.<br />

The principles are primarily about<br />

respect, recognition, support, consultation,<br />

health and wellbeing, and<br />

the ability of carers to participate in<br />

education and employment.<br />

An information kit about<br />

the Act, Supporting people in<br />

care relationships in Victoria:<br />

Carers Recognition Act 2012 is<br />

available on the Department<br />

of Human Services website at<br />

www.dhs.vic.gov.au/carersact<br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012


Staff Profile – Introducing Irene Murphy<br />

I have been appointed to the position of Regional<br />

Nurse Practitioner Mentor by the GRPCC. I have been<br />

been in palliative care practice for sixteen years in the<br />

sub-acute and community settings. I am grateful for the<br />

professional opportunities given to me by my former<br />

workplace (Melbourne City Mission Palliative Care)<br />

to develop my skills base, knowledge and expertise<br />

that resulted in Nurse Practitioner – Palliative Care<br />

Endorsement by the NBV in 2005. I am committed to<br />

excellence in clinical practice and have a strong interest<br />

in the formation, training and education of palliative<br />

care clinicians as well as the acquisition of effective<br />

clinical leadership.<br />

I am delighted to be working for the Consortium to<br />

assist, participate and collaborate to effect its vision and<br />

strategic planning to strengthen palliative care delivery<br />

in the region. I want to express my thanks to the GRPCC<br />

team for making me feel so welcome.<br />

Staff Profile – Introducing Carol Barbeler<br />

I am delighted to be taking up the role of Palliative<br />

Aged Care Resource Nurse for Gippsland with the<br />

GRPCC. After nearly ten years of teaching nursing<br />

and aged care in the TAFE sector, I look forward to<br />

supporting residential aged care facilities in their<br />

palliative approach to care.<br />

I am a registered nurse and have recently completed<br />

my Master of Applied Gerontology at Flinders University.<br />

I have a special interest in older people and their<br />

experiences, and value the contributions that they<br />

have made through their lives. Ensuring that the last<br />

months and weeks of people’s lives are as comfortable<br />

as possible and lead to a peaceful death is an important<br />

and core component of residential aged care.<br />

Even in my early weeks in this role, I am excited and<br />

invigorated by the enthusiasm and support offered by<br />

all of the GRPCC team. We are currently planning the<br />

pilot implementation of palliative approach training for<br />

Gippsland, and I look forward to keeping you up to date<br />

with our progress.<br />

On the Couch with Dr Scott King<br />

1. What do you do for a living?<br />

I am a palliative medicine specialist<br />

working at Calvary Health Care<br />

Bethlehem, Cabrini Health and Alfred<br />

Health. I have a background in general<br />

practice although I have not worked in<br />

that area for 18 months.<br />

2. What did you want to be when you<br />

grew up?<br />

I often said I wanted to be a doctor,<br />

although I said a lot of other professions<br />

as well. I grew up on a farm in Western<br />

Victoria, but I never said I was going to<br />

be a farmer.<br />

3. What’s your favourite holiday<br />

destination?<br />

I’ve been quite fortunate to have<br />

travelled to many parts of the world and<br />

lived in the UK for almost four years. So<br />

many places come to mind for so many<br />

different reasons. Port Fairy is right up<br />

there as it is lovely and was where we<br />

always had our summer holidays as a<br />

kid. Abroad, the Rasa Ria Resort Saba<br />

- great facilities, great kids club. I’m at<br />

that stage of life where kids clubs are<br />

VERY important.<br />

4. What will be written on your<br />

headstone?<br />

I never gave it a lot of thought. Maybe I<br />

wouldn’t have one.<br />

5. What music will be played at your<br />

funeral?<br />

Again not something that I have given<br />

much thought. It would be something<br />

uplifting though, not sombre.<br />

6. What would your last outfit be?<br />

What I am most comfortable in: tee<br />

shirt, jeans and either bare-footed or in<br />

my bright red Nikes.<br />

7. Buried, cremated or snap-frozen?<br />

Whatever the cheaper option is for the<br />

family, funerals are so expensive. The<br />

cheapest option is probably “dumped in<br />

bushland” which would not be so bad.<br />

Doubt I would care much.<br />

8. What are you reading now?<br />

I’m reading “Cloud Atlas” (soon to be<br />

a major motion picture starring Tom<br />

Hanks) when I can find it again. It’s<br />

gone missing in the house somewhere. I<br />

blame the kids. I have just finished “The<br />

Hydrogen Sonata” by Ian M Banks.<br />

9. What would youhave for your last<br />

meal?<br />

I would like to be able to cook my last<br />

meal. I have great fun making a dinner,<br />

with a good bottle (or two) of wine<br />

for the cook, of course. Probably do<br />

something Moroccan.<br />

10. Which famous person would you like<br />

to invite to dinner?<br />

J.R.R. Tolkien, I am such a fan of<br />

his incredible work. I have a million<br />

questions.<br />

11. If you were an animal what would it<br />

be?<br />

I was born in the year of the dog, and<br />

I have a lot of dog-like characteristics.<br />

Draw your own conclusions.<br />

12. What lessons has your work life<br />

taught you?<br />

There have been many lessons. The<br />

main one would be that you will not<br />

achieve your goals if you don’t put in<br />

the effort needed. It sounds straight<br />

forward, but once I realised that<br />

the excuses I made to myself for not<br />

achieving goals, were really reasons and<br />

that I could change or overcome these,<br />

things changed. The effort required does<br />

not have to be much, but appropriate.<br />

The GRPCC is an alliance of 14<br />

member agencies that provide inpatient<br />

and/or community palliative care for<br />

the residents of Gippsland. The GRPCC’s<br />

vision is that Gippslanders with a lifethreatening<br />

illness and their families and<br />

carers will have access to a high quality<br />

service system which is innovative and<br />

provides evidence based co-ordinated<br />

care and support that is responsive to<br />

their individual needs.<br />

The opinions expressed in “Life and<br />

Death Matters” are those of contributors<br />

and not necessarily shared by the GRPCC<br />

or its individual member health services.<br />

The Department of Health provides<br />

GRPCC with core operational funding.<br />

“Life and Death Matters” is produced<br />

quarterly and distributed free of charge.<br />

To subscribe, email your contact details<br />

to grpcc@gha.net.au<br />

The “Life and Death Matters” editorial<br />

group is Vicki Doherty (Manager, GRPCC),<br />

Steve Kirkbright (Design & Production);<br />

with regular contributors Anny Byrne,<br />

Mary Ross-Heazlewood, Karen Raabe,<br />

Carol Barbeler, Irene Murphy, Maria<br />

Garrett, member health services and<br />

friends of GRPCC.<br />

Letters to the editor are welcome.<br />

Please email these to: grpcc@gha.net.au<br />

or send to: The Editor “Life and Death<br />

Matters” c/- West Gippsland Healthcare<br />

Group 41 Landsborough St Warragul<br />

3820 Victoria Australia. Phone (03)<br />

5623 0684<br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.22 SUMMER 2012

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