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Self-Determinati<strong>on</strong> in Relati<strong>on</strong> to Having or Not Having a<br />
Legal Guardian: Case Studies of Two School-Aged Young<br />
Adults with Developmental Disabilities<br />
Dorothy Squatrito Millar<br />
Saginaw Valley State University<br />
Abstract: IDEA m<strong>and</strong>ates that all rights accorded to parents transfer to students when <str<strong>on</strong>g>the</str<strong>on</strong>g>y reach <str<strong>on</strong>g>the</str<strong>on</strong>g> age of<br />
majority, unless <str<strong>on</strong>g>the</str<strong>on</strong>g>ir competence is questi<strong>on</strong>ed. Using case studies, this research examined <str<strong>on</strong>g>the</str<strong>on</strong>g> c<strong>on</strong>cern that when<br />
competence is challenged, guardian appointments may occur, thus negatively impacting <str<strong>on</strong>g>the</str<strong>on</strong>g> self-determinati<strong>on</strong><br />
of school-aged young adults who have developmental disabilities. The assumpti<strong>on</strong> that a young adult who had<br />
a full legal guardian would exhibit fewer, if any, self-determinati<strong>on</strong> skills in comparis<strong>on</strong>s to a peer who did not<br />
have a legal guardian was investigated. Findings include (a) values, beliefs, <strong>and</strong> knowledge impact guardian<br />
roles, <strong>and</strong> (b) more research is needed to determine <str<strong>on</strong>g>the</str<strong>on</strong>g> impact IDEA age of majority <strong>and</strong> transfer of rights<br />
m<strong>and</strong>ates are having <strong>on</strong> families as well as school, law, <strong>and</strong> agency service providers’ interpretati<strong>on</strong>s <strong>and</strong><br />
acti<strong>on</strong>s.<br />
The importance of developing self-determinati<strong>on</strong><br />
related attributes in youth <strong>and</strong> young<br />
adults with disabilities is emphasized in legislati<strong>on</strong><br />
(e.g., IDEA; Rehabilitati<strong>on</strong> Act Amendments<br />
of 1992 <strong>and</strong> 1998), as well as in an<br />
abundance of literature (e.g, Algozzine, Browder,<br />
Karv<strong>on</strong>en, Test, & Wood, 2001; Test,<br />
Fowler, Brewer, & Wood, 2005). In additi<strong>on</strong>,<br />
<str<strong>on</strong>g>the</str<strong>on</strong>g>re is a growing body of research which is<br />
providing evidence that self-determinati<strong>on</strong><br />
does positively impact employment outcomes<br />
(Wehmeyer & Palmer, 2003); post sec<strong>on</strong>dary<br />
educati<strong>on</strong> (Field, Sarver, & Shaw, 2003); <strong>and</strong><br />
overall quality of life (Wehmeyer & Schwartz,<br />
1997). Despite <str<strong>on</strong>g>the</str<strong>on</strong>g> efforts directed toward promoting<br />
<strong>and</strong> increasing self-determinati<strong>on</strong> of<br />
youth <strong>and</strong> young adults with disabilities such<br />
that <str<strong>on</strong>g>the</str<strong>on</strong>g>y can communicate <str<strong>on</strong>g>the</str<strong>on</strong>g>ir preferences,<br />
interests, <strong>and</strong> advocate for <str<strong>on</strong>g>the</str<strong>on</strong>g>mselves, little is<br />
known about how self-determinati<strong>on</strong> is being<br />
impacted at <str<strong>on</strong>g>the</str<strong>on</strong>g> time students reach <str<strong>on</strong>g>the</str<strong>on</strong>g> age of<br />
majority, <strong>and</strong> become legally resp<strong>on</strong>sible for<br />
<str<strong>on</strong>g>the</str<strong>on</strong>g>ir decisi<strong>on</strong>s <strong>and</strong> acti<strong>on</strong>s. When a student<br />
reaches <str<strong>on</strong>g>the</str<strong>on</strong>g> age of majority, IDEA m<strong>and</strong>ates<br />
Corresp<strong>on</strong>dence c<strong>on</strong>cerning this article should<br />
be addressed to Dorothy Squatrito Millar, Saginaw<br />
Valley State University, College of Educati<strong>on</strong>, 7400<br />
Bay Road, University Center, MI 48710.<br />
Educati<strong>on</strong> <strong>and</strong> Training in Developmental Disabilities, 2008, 43(3), 279–293<br />
© <str<strong>on</strong>g>Divisi<strong>on</strong></str<strong>on</strong>g> <strong>on</strong> Developmental Disabilities<br />
that all <str<strong>on</strong>g>the</str<strong>on</strong>g> rights accorded to <str<strong>on</strong>g>the</str<strong>on</strong>g> parents are<br />
to transfer to <str<strong>on</strong>g>the</str<strong>on</strong>g> student unless <str<strong>on</strong>g>the</str<strong>on</strong>g> student is<br />
determined to be incompetent by State law, or<br />
c<strong>on</strong>sidered unable to provide informed c<strong>on</strong>sent<br />
with respect to educati<strong>on</strong>al programming.<br />
When competence is in questi<strong>on</strong>, States<br />
are resp<strong>on</strong>sible for establishing procedures<br />
for appointing an individual (e.g., parent) to<br />
represent <str<strong>on</strong>g>the</str<strong>on</strong>g> educati<strong>on</strong>al interests of <str<strong>on</strong>g>the</str<strong>on</strong>g> student<br />
[614(d)(1)(A)VIII].<br />
To date, <str<strong>on</strong>g>the</str<strong>on</strong>g>re is no known investigati<strong>on</strong><br />
that examines <str<strong>on</strong>g>the</str<strong>on</strong>g> procedures States have established<br />
to address <str<strong>on</strong>g>the</str<strong>on</strong>g> m<strong>and</strong>ate, who is determining<br />
competence, how it is being determined,<br />
<strong>and</strong> what criteria is being used to<br />
determine it. C<strong>on</strong>cern has been raised that<br />
when students are reaching <str<strong>on</strong>g>the</str<strong>on</strong>g> age of majority,<br />
<strong>and</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g>ir competence is questi<strong>on</strong>ed,<br />
guardian appointments might be unnecessarily<br />
sought (Millar, 2007, 2003; Millar & Renzaglia,<br />
2002). As it applies to adults, guardianship<br />
is a process when a judge appoints<br />
some<strong>on</strong>e (a guardian) to make decisi<strong>on</strong>s for<br />
<strong>and</strong> h<strong>and</strong>le <str<strong>on</strong>g>the</str<strong>on</strong>g> affairs of ano<str<strong>on</strong>g>the</str<strong>on</strong>g>r (a ward)<br />
who is believed “partially” or “totally” incompetent<br />
(Bulcroft, Kielkopf, & Tripp, 1991; Lisi,<br />
Burns, & Lussenden, 1994). Dependent <strong>on</strong> a<br />
court order, guardians can assume complete<br />
or limited c<strong>on</strong>trol over decisi<strong>on</strong>s related to <str<strong>on</strong>g>the</str<strong>on</strong>g><br />
ward’s residence, educati<strong>on</strong>al services, voca-<br />
Self-Determinati<strong>on</strong> <strong>and</strong> Guardianship / 279