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Educati<strong>on</strong> <strong>and</strong> Training in Developmental Disabilities, 2008, 43(3), 334–341<br />

© <str<strong>on</strong>g>Divisi<strong>on</strong></str<strong>on</strong>g> <strong>on</strong> Developmental Disabilities<br />

Therapeutic Interventi<strong>on</strong>s in <str<strong>on</strong>g>the</str<strong>on</strong>g> Ne<str<strong>on</strong>g>the</str<strong>on</strong>g>rl<strong>and</strong>s <strong>and</strong> Belgium in<br />

Support of People with Profound Intellectual <strong>and</strong><br />

Multiple Disabilities<br />

Carla Vlaskamp <strong>and</strong> Han Nakken<br />

University of Gr<strong>on</strong>ingen<br />

Abstract: For several reas<strong>on</strong>s, people with profound <strong>and</strong> multiple disabilities may be offered a variety of<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g>rapeutic interventi<strong>on</strong>s. Thus far, researchers have shown a limited interest in providing an empirical base<br />

for <str<strong>on</strong>g>the</str<strong>on</strong>g>se interventi<strong>on</strong>s. Research is needed <strong>on</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g> <str<strong>on</strong>g>the</str<strong>on</strong>g>oretical rati<strong>on</strong>ale (if any), <str<strong>on</strong>g>the</str<strong>on</strong>g> supposed ‘modus oper<strong>and</strong>i’<br />

<strong>and</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g> claimed benefits of <str<strong>on</strong>g>the</str<strong>on</strong>g>rapeutic interventi<strong>on</strong>s. As a first step, this paper offers an overview of <str<strong>on</strong>g>the</str<strong>on</strong>g> use of<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g>se interventi<strong>on</strong>s. A total of 48 settings in <str<strong>on</strong>g>the</str<strong>on</strong>g> Ne<str<strong>on</strong>g>the</str<strong>on</strong>g>rl<strong>and</strong>s <strong>and</strong> Belgium were included in this study. Results<br />

show that some interventi<strong>on</strong>s are very frequently used, with Snoezelen, Sensory Integrative Therapy, Equine<br />

Therapy, Basic Stimulati<strong>on</strong> <strong>and</strong> Aroma<str<strong>on</strong>g>the</str<strong>on</strong>g>rapy being <str<strong>on</strong>g>the</str<strong>on</strong>g> most comm<strong>on</strong>. Only <strong>on</strong>e of <str<strong>on</strong>g>the</str<strong>on</strong>g>se five has been subjected<br />

to a number of carefully designed studies. Nearly a third of all <str<strong>on</strong>g>the</str<strong>on</strong>g>rapeutic interventi<strong>on</strong>s currently in use are not<br />

clinically evaluated. Of those that are evaluated, more than half are <strong>on</strong>ly evaluated m<strong>on</strong>thly or even less<br />

frequently. The article ends with a call for an effective research strategy to separate interventi<strong>on</strong>s that are<br />

beneficial to people with PIMD from those that are unsubstantiated.<br />

In <str<strong>on</strong>g>the</str<strong>on</strong>g> support of people with profound intellectual<br />

<strong>and</strong> multiple disabilities (PIMD), practiti<strong>on</strong>ers<br />

in centers for special educati<strong>on</strong>, day<br />

services centers <strong>and</strong> residential facilities use a<br />

series of <str<strong>on</strong>g>the</str<strong>on</strong>g>rapeutic interventi<strong>on</strong>s that aim to<br />

achieve a broad spectrum of claimed effects,<br />

ranging from ‘feeling good’ <strong>and</strong> ‘restoring a<br />

natural balance’ to developmental effects <strong>and</strong><br />

regaining functi<strong>on</strong>s. These interventi<strong>on</strong>s or<br />

procedures are generally not carried out by<br />

medical staff but by direct support staff members<br />

or <str<strong>on</strong>g>the</str<strong>on</strong>g>rapists (such as physio<str<strong>on</strong>g>the</str<strong>on</strong>g>rapists or<br />

speech <str<strong>on</strong>g>the</str<strong>on</strong>g>rapists). In practice-oriented journals,<br />

popular magazines <strong>and</strong> <strong>on</strong> televisi<strong>on</strong> <strong>and</strong><br />

<str<strong>on</strong>g>the</str<strong>on</strong>g> internet, a large range of <str<strong>on</strong>g>the</str<strong>on</strong>g>se interventi<strong>on</strong>s<br />

or <str<strong>on</strong>g>the</str<strong>on</strong>g>rapies are documented. They may<br />

claim ‘to cure’, such as Gentle Teaching, for<br />

example, which promises to cure self-injurious<br />

behavior by using unc<strong>on</strong>diti<strong>on</strong>al acceptance<br />

<strong>and</strong> a gentle touch. They may promise impor-<br />

The authors would like to thank prof. dr J.H.<br />

Hogg for his comments <strong>on</strong> a previous versi<strong>on</strong> of <str<strong>on</strong>g>the</str<strong>on</strong>g><br />

manuscript. Corresp<strong>on</strong>dence c<strong>on</strong>cerning this article<br />

should be addressed to Carla Vlaskamp, Department<br />

of Health Care Psychology, University of Gr<strong>on</strong>ingen,<br />

Grote Rozenstraat 38, 9712 TJ Gr<strong>on</strong>ingen,<br />

The NETHERLANDS. Email: c.vlaskamp@rug.nl<br />

334 / Educati<strong>on</strong> <strong>and</strong> Training in Developmental Disabilities-September 2008<br />

tant sounding but vague benefits, such as<br />

Therapeutic Touch, which states that <str<strong>on</strong>g>the</str<strong>on</strong>g>re is<br />

‘a natural human potential which can be actualized<br />

through <str<strong>on</strong>g>the</str<strong>on</strong>g> intent to help or enhance<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g> recipients’ own ability to support<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g>mselves towards wholeness,’ or ‘Dolphin<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g>rapy’ which states that ‘swimming with dolphins<br />

makes children with special needs learn<br />

up to four times faster <strong>and</strong> more intensively.’<br />

These kinds of interventi<strong>on</strong>s are used<br />

throughout <str<strong>on</strong>g>the</str<strong>on</strong>g> human services area, <strong>and</strong><br />

while no area or enterprise has been immune<br />

to <str<strong>on</strong>g>the</str<strong>on</strong>g> phenomen<strong>on</strong> of unsubstantiated <str<strong>on</strong>g>the</str<strong>on</strong>g>rapeutic<br />

interventi<strong>on</strong>s, <str<strong>on</strong>g>the</str<strong>on</strong>g> field of profound<br />

<strong>and</strong> multiple disabilities appears to be particularly<br />

vulnerable. This may be due to several<br />

reas<strong>on</strong>s. Firstly, <str<strong>on</strong>g>the</str<strong>on</strong>g>re is <str<strong>on</strong>g>the</str<strong>on</strong>g> size <strong>and</strong> complexity<br />

of <str<strong>on</strong>g>the</str<strong>on</strong>g> disabilities of those with PIMD. In<br />

additi<strong>on</strong> to <str<strong>on</strong>g>the</str<strong>on</strong>g>ir profound intellectual <strong>and</strong><br />

severe or profound motor disabilities, individuals<br />

with PIMD also have a high prevalence of<br />

sensory disability (Nakken & Vlaskamp, 2006;<br />

Schrojenstein, Lantman-de Valk et al., 1997;<br />

Van Splunder, Stilma, Bernsen, Arentz, &<br />

Evenhuis, 2003). Fur<str<strong>on</strong>g>the</str<strong>on</strong>g>rmore, as well as <str<strong>on</strong>g>the</str<strong>on</strong>g>se<br />

impairments, people with PIMD have an overall<br />

risk of developing medical complicati<strong>on</strong>s<br />

<strong>and</strong> almost all require regularly administered

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