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Medicaid Managed Care - U.S. Senate Special Committee on Aging

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837<br />

CURRENT POLICYMAKING ENVIRONMENT<br />

Nati<strong>on</strong>wide, hundreds of thousands of<br />

indiviuduals with developmental disabilities<br />

and theirfamilies rely <strong>on</strong> l<strong>on</strong>g-term services<br />

and supports provided through publiclyfunded<br />

developmental disabilities service<br />

systems. The central missi<strong>on</strong> of these<br />

systems is to enable individuals with developmental<br />

disabilities to live and work in<br />

their communities, achieve self sufficiency,<br />

and excercise their full citizenship rights.<br />

Over the past two decades, states have<br />

made major strides in improving the quality<br />

and cost-effectiveness of publicly-funded<br />

developmental disabilities services. The<br />

number of individuals residing in costly,<br />

segregated public instituti<strong>on</strong>s has been cut<br />

in half and scores of such facilities have<br />

been closed. States have aggressively<br />

expanded their home- and communitybased<br />

waiver programs while de-emphasizing<br />

the development of expensive intermediate<br />

care facilities for pers<strong>on</strong>s with mental<br />

retardati<strong>on</strong> and related c<strong>on</strong>diti<strong>on</strong>s (ICFs/<br />

MR). States also have initiated and rapidly<br />

expanded family support and supported<br />

living and employment programs that more<br />

effectively meet the needs of their customers<br />

and make better. use of scarce public<br />

dollars. More attenti<strong>on</strong> has been focused<br />

<strong>on</strong> improving the quality and acuemsibility of<br />

publicly-funded services as well.<br />

A great deal has been accomplished, but<br />

much miore remains to be d<strong>on</strong>e. Trapped<br />

between rising c<strong>on</strong>sumer expectati<strong>on</strong>s and<br />

tighter budget c<strong>on</strong>straints, public MR/DD<br />

service systems today face enormous<br />

challenges, including:<br />

* Umitati<strong>on</strong>s <strong>on</strong> federal <str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> payments<br />

to the states. Currently, federalstate<br />

<str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> dollars underwrite 70<br />

percent of the operating costs of public<br />

developmental disabilities systems. But<br />

with both President Clint<strong>on</strong> and Republican<br />

and Democratic C<strong>on</strong>gressi<strong>on</strong>al leaders<br />

supporting a balanced federal budget,<br />

legislative steps to c<strong>on</strong>tain the growth in<br />

federal <str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> outlays are inevitable.<br />

Reduced access to federal <str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> dollars<br />

will have serious c<strong>on</strong>sequences for developmental<br />

disabilities services as well as<br />

the public system's capacity to resp<strong>on</strong>d to<br />

the legitimate needs of people with developmental<br />

disabilities and their families.<br />

* State <str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> cost c<strong>on</strong>tainment Initiatives.<br />

States are intensifying their efforts<br />

to c<strong>on</strong>tain <str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> spending, particularly<br />

through the applicati<strong>on</strong> of managed care<br />

. approaches across a wider spectrum of<br />

<str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> recipients and services. Accounting<br />

for 35 percent of all <str<strong>on</strong>g>Medicaid</str<strong>on</strong>g> spending,<br />

l<strong>on</strong>g-term care services -- including<br />

<str<strong>on</strong>g>Medicaid</str<strong>on</strong>g>-funded ICF/MR and home and<br />

community-based services for people with<br />

developmental disabilities - are not likely<br />

to be exempt from these cost c<strong>on</strong>tainment<br />

initiatives.<br />

* Shifting.federal and state budget priorities.<br />

Federal domestic assistance is being<br />

cut in order to reduce the federal deficit.<br />

Furthermore, human services programs are<br />

being assigned lower priority in some states<br />

due to other pressing budgetary priorities.<br />

* Waiting lists.. Despite the steady growth<br />

in funding for developmental disabilities<br />

services over the past decade, most states<br />

today have l<strong>on</strong>g waiting lists for services.<br />

In some states, these waiting lists have<br />

climbed so highithat individuals have little<br />

prospect of receiving services except in dire<br />

emergencies.<br />

* Growing demand. Service demand will<br />

c<strong>on</strong>tinue to grow for the foreseeable future<br />

3

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