Medicaid Managed Care - U.S. Senate Special Committee on Aging
Medicaid Managed Care - U.S. Senate Special Committee on Aging Medicaid Managed Care - U.S. Senate Special Committee on Aging
836 We recognize that managed care is fraught with uncertainty and peril. However, we also are convinced that, unless public developmental disabilties service systems become more cost-effective and accountable for valued outcomes, they will be less and less able to fulfill their mission and be increasingly subject to privatization. In the absense of a forthright response to these issues, we are profoundly concemed that existing service systems will be absorbed into managed care arrangements that serve interests other than those of the individuals and families who are the intended beneficiaries. If managed care comes to public MR/DD service systems, all key stakeholders should be involved in designing the state's basic approach in order to assure that the best interests of people with disabilities and their families remain paramount. This white paper summarizes NASDDDS' views regarding the basic challenges which public MRIDD service systems face today; it explains why we believe that such systems will have to be realigned and outlines the principles and policies that should guide this realignment process. The paper is labelled a working document because d should not be viewed as the final word on the subject Instead, our aim is to stimulate discussion and debate within the community of individuals who are committed to the values we share. These values are reflected in the Association's mission statement and guiding principles, which specify in part that NASDDDS will '...assist member states to build a person-centered system of services...' in which '...people with developmental disabilities have a right to: (a) be treated with dignity and respect; (b) be independent and make individual choices; (c) participate in family and community life; (d) have opportunities to maximize their full potential; and (e) receive outcome-based services and supports.' 2
837 CURRENT POLICYMAKING ENVIRONMENT Nationwide, hundreds of thousands of indiviuduals with developmental disabilities and theirfamilies rely on long-term services and supports provided through publiclyfunded developmental disabilities service systems. The central mission of these systems is to enable individuals with developmental disabilities to live and work in their communities, achieve self sufficiency, and excercise their full citizenship rights. Over the past two decades, states have made major strides in improving the quality and cost-effectiveness of publicly-funded developmental disabilities services. The number of individuals residing in costly, segregated public institutions has been cut in half and scores of such facilities have been closed. States have aggressively expanded their home- and communitybased waiver programs while de-emphasizing the development of expensive intermediate care facilities for persons with mental retardation and related conditions (ICFs/ MR). States also have initiated and rapidly expanded family support and supported living and employment programs that more effectively meet the needs of their customers and make better. use of scarce public dollars. More attention has been focused on improving the quality and acuemsibility of publicly-funded services as well. A great deal has been accomplished, but much miore remains to be done. Trapped between rising consumer expectations and tighter budget constraints, public MR/DD service systems today face enormous challenges, including: * Umitations on federal
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836<br />
We recognize that managed care is fraught with uncertainty and peril. However, we also<br />
are c<strong>on</strong>vinced that, unless public developmental disabilties service systems become more<br />
cost-effective and accountable for valued outcomes, they will be less and less able to fulfill<br />
their missi<strong>on</strong> and be increasingly subject to privatizati<strong>on</strong>. In the absense of a forthright<br />
resp<strong>on</strong>se to these issues, we are profoundly c<strong>on</strong>cemed that existing service systems will<br />
be absorbed into managed care arrangements that serve interests other than those of the<br />
individuals and families who are the intended beneficiaries. If managed care comes to<br />
public MR/DD service systems, all key stakeholders should be involved in designing the<br />
state's basic approach in order to assure that the best interests of people with disabilities<br />
and their families remain paramount.<br />
This white paper summarizes NASDDDS' views regarding the basic challenges which<br />
public MRIDD service systems face today; it explains why we believe that such systems<br />
will have to be realigned and outlines the principles and policies that should guide this<br />
realignment process. The paper is labelled a working document because d should not be<br />
viewed as the final word <strong>on</strong> the subject Instead, our aim is to stimulate discussi<strong>on</strong> and<br />
debate within the community of individuals who are committed to the values we share.<br />
These values are reflected in the Associati<strong>on</strong>'s missi<strong>on</strong> statement and guiding principles,<br />
which specify in part that NASDDDS will '...assist member states to build a pers<strong>on</strong>-centered<br />
system of services...' in which '...people with developmental disabilities have a right<br />
to:<br />
(a) be treated with dignity and respect;<br />
(b) be independent and make individual choices;<br />
(c) participate in family and community life;<br />
(d) have opportunities to maximize their full potential; and<br />
(e) receive outcome-based services and supports.'<br />
2