Medicaid Managed Care - U.S. Senate Special Committee on Aging

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Again, I want to thank LaVita Westbrook and Meredith
Levenson for their assistance. I appreciate it.
Our panelists today-and I'm not even sure that they have all
met each other; we are being a little less formal than in a hearing-in
not any particular order, I will introduce our panelists.
Our first is Al Guida, who is vice president of the National Mental
Health Association, where he coordinates education and Statelevel
advocacy efforts of the organization's field network encompassing
326 affiliates in 43 States. He spent much of the last 10
years working on children's policy issues at the Federal and State
level.
I am also pleased to introduce Tony Young, who is a policy associate
in the Governmental Activities Department of United Cerebral
Palsy Associations. He is an advisor to several national
projects.
Kathy McGinley is the assistant director at The Arc, formerly the
Association for Retarded Citizens, of the United States. She coordinates
efforts of the Health and Housing Task Forces of the Consortium
for Citizens with Disabilities. She helped to develop the CCD
Health Task Forces's "Principles for Health <strong>Care</strong> Reform from a
Disability Perspective."
Nancy Leonard is a care manager at Connecticut Community
<strong>Care</strong>, an independent care management organization currently
serving over 3,500 older adults statewide in Connecticut. She has
11 years of care management experience with the frail elderly in
the community, and she is here on behalf of the Alzheimer's Association
in Connecticut.
Donald Minor comes from Tennessee, where he works as a client
advocate for <strong>Care</strong>mark. He is a person living with hemophilia who
was diagnosed with HIV in 1985. He has been a health care advocate
for more than 10 years and has been a recipient of Tenn<strong>Care</strong>
since its inception in 1994. He is here today representing the National
Association of People with AIDS.
I think we'll go ahead and let you folks get started. We'll just go
down the table, hear the presentations, and save questions until
the end.
Tony.
STATEMENT OF TONY YOUNG, POLICY ASSOCIATE, UNITED
CEREBRAL PALSY ASSOCIATIONS, WASHINGTON, DC
Mr. YOUNG. Good morning. Thank you for this opportunity to
present you with some profiles of individuals with physical disabilities
and their need for health care and long-term services. I have
attempted to select profiles of individuals of varying ages, conditions
and needs for services. While they do not cover full gamut
of circumstances and needs, they are nonetheless representative of
many people with disabilities who are facing the uncertain prospect
of receiving their health care and long-term services from managed
care providers.
I have four profiles to share with you this morning, and I will
try to get through as many of them as time will allow.
Our first profile is of a 12-year-old male with severe cerebral
palsy, along with mild cognitive impairment and a seizure disorder.
He is actually here with us this morning, but managed to escape