Medicaid Managed Care - U.S. Senate Special Committee on Aging

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|CONSENSUS FOR ATO
of many of our current AIDS service organiiartons and the AIDS care infrastrucare that our community
has worked to build over the past fifteen years People living with HMV need to become sophisticated
participants in managed care programs in order to hold state <strong>Medicaid</strong> programs and <strong>Medicaid</strong> managed
care plans accountable for providing optimal quality care.
-iMEDICAID AND AIDS CARE |Sa.
<strong>Medicaid</strong> Is the importn
health care p en ws or pe p e iv s
nubeemost ear offctorsoondo sidse
of illness. in 1992-" 3. the om mawith
Htin 1994, i d providd ay Midi caik AJIIa tifn gr iet osteun
of ten pslit sfrs for HIVI ton, Massachusetts found sdo their
AIDS tam tomthly costa for Die#es Peopl
Arte ~ pe~ p e W~t~~lDS w ith WdV disease varwe at $793
Are esdrr~ 3¢2-pevAD
(or nme app ly -os 3 % o pe ple ris n o $ 3,6 00 T hese-co sts excluded
liviog with AIDS), received lidcod
benefits in tenants 19ln. Additiowaid1yVdis.
in 0
9 ofall dildren leingwith ds
e se depend on. <strong>Medicaid</strong> for their
orl p a m c eofd hc
m~~~wuld
v oari
cotstrbute
in cs.
to sclgrae
d
C o-morbid conditloms sons ag acse
bealth care. Despit dthe ciardepen- systm ss
deoce of the A I~ k com muni ty on con or e o s d r sl t v i r on
medipcadl people ihi cam- whtal i c
Sic ivn er 0% yer odpeope ith o al d b advocte.hav
HW AIDS, " ser on saisn nth
<strong>Medicaid</strong> tOSen, have ca Medaad I9 h e
The cost of a p e w wi ith Icaid rAEc g Groms pe
Ihav varier grolve den oorm d the taged to Medt
acces tohealh cae an hav chalen e e r ro spon s~l p fort a strfp 2re ofrd poalssiv wcisieln s o h a le th r es o oi
Consumers must be partners with <strong>Medicaid</strong> programs managed mnd care
providers in the development and monitoring of managed care systems
serving people living with HIV.
Since the early years of the HIV epidemic, people living with HIV., and their advocates, have foughst for
access to health care aod have challenged the notion that patients are merely passive rceapients of health
care. Rather, we have pushed to help set the nation's researcs agenda; we have created agencies and structuae
within oar own communities to provide health care; and within Ryan White CARE Act prograrnsa, we
have insisted upon formsalized roles foc consumer involvement. in order for <strong>Medicaid</strong> managed care to
meet the needs of people living with HIVt, beneficiaries of managed care programs must be invoived in all
aspects of thedcesign, implementation and monitoring of managed careprogransa.
NATIONAL ASSOCIATION or PEOPLE WITH AIDS
I