Medicaid Managed Care - U.S. Senate Special Committee on Aging

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APPENDIX H: BIBLIOGRAPHY
MANAGED CARE EXPERT WORK GROUP ON DEFINING AND IDENTIFYING
CHILDREN WITH SPECIAL HEALTH CARE NEEDS
I ) American Academy of Pediatrics. <strong>Committee</strong> on Children With Disabilities: Why supplemental security income is
important for children and adolescents. Pediatrics. 95: 603-608. 1995.
2) Institute for Child Health Policy: The Directory of Stare Ttle V CSHCN Prograrns: Eligibility Criteria and Scope
of Services. Gainesville. FL: University of Florida. 1996. (Request from the Institute for Child Health Policy,
5700 S.W. 34th Street, Suite 323. Gainesville, FL 32608: Phone 352-392-5904.)
3) Landgraf IMK Abetz L. Ware JE Child Health Querrstionnaire (CHQ): A User's Manual. in press. (Request from
Child Health Assessment Project. The Health Institute. NEMCH-Box 345. 750 Washington Street, Boston. MA
02 1 11: Phone 617-636-8998.)
4) Maternal and Child Health Bureau: National Agenda for Children with <strong>Special</strong> Health <strong>Care</strong> Needs: Achieving the
Goals 2000. Rockville. MD: Maternal and Child Health Bureau. 1995. (Request from Division of Services for
Children with <strong>Special</strong> Health <strong>Care</strong> Needs, Maternal and Child Health Bureau. Parklawn Building, Room 18A27.
5600 Fishers Lane. Rockville, MD. 20857: Phone 301443-2350.)
5) McManus M. Fox H. Newacheck P. McPherson M. and Roy B: Strengthening Partnerships Between Srare
Progrannsfor Children with <strong>Special</strong> Health Needs and <strong>Managed</strong> <strong>Care</strong> Organizations. Chevy Chase. MD:
McManus Health Policy. Inc.. August 1995. (Request from McManus Health Policy. Inc.. 2 Wisconsin Circle,
Suite 700. Chevy Chase. MD 20815. Phone: 202-686-4797. Also available via the internet at
http:/Iwww.ichp.ufl.edu/MCHB MCH-NetLink/MCHPRC/.)
6) McPherson M: New Definition of Clildren with <strong>Special</strong> Health <strong>Care</strong> Needs. Rockville. MD: Division of Services
for Children with <strong>Special</strong> Health <strong>Care</strong> Needs, MCHB. HRSA, August 1995. (Request fromn Division of Services
for Children with special health care needs. Maternal and Child Health Bureau. Parklawn Building. Room 18A27.
5600 Fishers Lane. Rockville, MD. 20857. Phone: 301443-2350.)
7) National Association of Children's Hospital and Related Institutions: NACHRI Classification Systentfor Children
with Congenital and Chronic Health Conditions. Alexandna. VA: NACHRI, 1996. (Request from NACHRI, 401
Wythe Street. Alexandria, VA 22314. Phone 703-684-1355.)
8) National Commission on Childhood Disability: Supplemental Security Incone efor Children vith Disabilities.
Washington. DC: National Comnission on Childhood Disability. 1995. (Request from the National Commission
on Childhood Disability, 801 Pennsylvania Avenue, NW. Suite 625. Washington, DC 20004: Phone 202-272-
2228.)
9) Stein REK. Westbrook LE, Bauman U: The questionnaire for identifying children with chronic conditions
(OulCCC): a measure based on a noncategorical approach, Pediatrics, in press.
10) Stein REK. Bauman U. Westbrook LE. Coupley SM. Ireys HT: Framework for identifying children who have
chronic conditions: the cae for a new definition. Journal of Pediatrics, 122:342-327, 1993.
11) Tobias C. Master R. Kronick R: Defining the Target Population: Policy and Program Developnmenr Issues.
Boston. MA: <strong>Medicaid</strong> Working Group. 1995. (Request from <strong>Medicaid</strong> Working Group, 441 Stuart Street, 6th
Floor. Boston. MA 02116: Phone 617-437-1550.)
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