Medicaid Managed Care - U.S. Senate Special Committee on Aging

Medicaid Managed Care - U.S. Senate Special Committee on Aging Medicaid Managed Care - U.S. Senate Special Committee on Aging

aging.senate.gov
from aging.senate.gov More from this publisher
29.07.2013 Views

55 enough history of this treatment to give us absolute evidence that it will eradicate the virus. Many cannot take these medications. Many of these medications have severe side-effects. Many cannot afford these medications or are denied them for various reasons. These medications can average close to $15,000 per year plus. I average taking $3,700 per month, not counting my hemophilia medication. I am not speaking to you as a committed managed care foe. I believe managed care can work. But, everybody needs to be on the same page when it comes to disease state management. For every obstacle to quality care with optimum outcomes, there is a solution. From our perspective, I would like to recommend three elements as part of the solution. First, there must be an assurance that gatekeepers, case managers, utilization review officials, and others who approve or disapprove claims must become knowledgeable HIV. ong>Managedong> care needs to protect consumers by making sure that payers demonstrate expertise in disease management and are held accountable for providing high quality care. Those of us who have been fortunate to be treated in a comprehensive hemophilia center can testify to the improved outcomes generated by those trained the management of hemophilia. Second, there must be a federal role in setting certain standards and creating expectations for specific outcomes. At present, every HMO is different, every state is different, and managed care plans set their own rules on a daily basis. I also believe that the federal government must support efforts to risk adjust capitated payments that managed care organizations use to control their costs. There must be incentives for quality care instead of incentives to just do it the cheapest way-or where the best profit is. Most of the time, managed care sees the cost today, but not the cost tomorrow. Third, a great amount of interest exists in the HIV community for exploring ways to expand ong>Medicaidong> coverage to people living with HIV, but who are not yet disabled by AIDS. Incomplete data suggest that this could be done in a cost neutral manner because individuals could be given protease inhibitors and other treatments that could prevent them from progressing to AIDS. Finding ways for the federal government, state governments and managed care organizations to expand coverage and improve outcomes for persons living with HIV and other disorders is the right thing to do. I wish that I had more time to discuss with you all that I have dealt with, witnessed, discovered, and have been educated about as a catastrophic disease advocate. By your invitation, I will be happy to communicate with you on this issue in our nation's health care system. I very much appreciate the opportunity to address this respected body. I would be pleased to answer any questions that you may have. 3

56 Ms. CHRISTENSEN. Thank you. [Inaudible comments.] DISCUSSION Ms. CHRISTENSEN. If people would write their questions out, I think it would save time and [inaudible] Ms. McGINLEY. Can I say something? Does anybody here work for any Members from Pennsylvania? [No response.] No. OK I just happened to have something specific to the State of Pennsylvania which I would share with people. Mr. YOUNG. At CCD, the Consortium for Citizens with Disabilities, we have a Web page, and we are going to be putting this information up on the Web page, too; so if anybody needs to get it in electronic format, I put my e-mail address on the cover of my statement, and you can either get the Web address from me-or, Kathy, did you bring it- Ms. McGINLEY. Actually, we have it. Mr. YOUNG. OK Ms. CHRISTENSEN. Tony, is your statement on the table? Mr. YOUNG. Yes, it is over there. Ms. McGINLEY. Here is the Web address. www.radix.net/-ccd. That will give the general page. This testimony will be posted on the Health Task Force page-with other information that would be helpful, too. Ms. CHRISTENSEN. Questions, comments? QUESTION. I have a question for Donald Minor. [Inaudible.] Mr. MINOR. I believe she was wanting to know, at the beginning of the implementation of Tennong>Careong> in the State of Tennessee, what were the major problems as far as catastrophic disease was concerned, and then what has helped it improve to this point. First of all, let me say this carefully, because other States are looking at Tennong>Careong>, and I am very alarmed at them copying the same program. No. 1, Tennong>Careong> was implemented by putting the buggy before the horse. Very simply stated, they enacted a program without input from physicians who were specialists, and in many instances, they did not have because they had no physician enrolled in Tennong>Careong> at that particular hospital. He went to four counties before he was treated, and it took me threatening the Governor with putting him on the front page in the morning, and he made the telephone call to get that patient treated. So we have been through that, and we are still going through some of those scenarios today. I met with Blue Cross/Blue Shield 2 weeks ago, talking about the same problem with primary care physicians. If you are familiar with the gatekeeper role, in order to get specialty care, you have ot to go to the primary care physician first and physically be referred to that specialist. Well, if you are a primary care physician and all of a sudden, overnight, they give you 1,700 patients, and you have no earthly idea what disease states they have, and you call in for an appointment, and they say, "Well, the first appointment I can give you is 3 months from now," you are looking at people who are panicking overnight who have got to have medication such as Factor 8 for hemophilia or protease inhibitors that you cannot miss a day taking who are not able to get in to see a primary

56<br />

Ms. CHRISTENSEN. Thank you. [Inaudible comments.]<br />

DISCUSSION<br />

Ms. CHRISTENSEN. If people would write their questi<strong>on</strong>s out, I<br />

think it would save time and [inaudible]<br />

Ms. McGINLEY. Can I say something? Does anybody here work<br />

for any Members from Pennsylvania? [No resp<strong>on</strong>se.]<br />

No. OK I just happened to have something specific to the State<br />

of Pennsylvania which I would share with people.<br />

Mr. YOUNG. At CCD, the C<strong>on</strong>sortium for Citizens with Disabilities,<br />

we have a Web page, and we are going to be putting this informati<strong>on</strong><br />

up <strong>on</strong> the Web page, too; so if anybody needs to get it<br />

in electr<strong>on</strong>ic format, I put my e-mail address <strong>on</strong> the cover of my<br />

statement, and you can either get the Web address from me-or,<br />

Kathy, did you bring it-<br />

Ms. McGINLEY. Actually, we have it.<br />

Mr. YOUNG. OK<br />

Ms. CHRISTENSEN. T<strong>on</strong>y, is your statement <strong>on</strong> the table?<br />

Mr. YOUNG. Yes, it is over there.<br />

Ms. McGINLEY. Here is the Web address. www.radix.net/-ccd.<br />

That will give the general page. This testim<strong>on</strong>y will be posted <strong>on</strong><br />

the Health Task Force page-with other informati<strong>on</strong> that would be<br />

helpful, too.<br />

Ms. CHRISTENSEN. Questi<strong>on</strong>s, comments?<br />

QUESTION. I have a questi<strong>on</strong> for D<strong>on</strong>ald Minor. [Inaudible.]<br />

Mr. MINOR. I believe she was wanting to know, at the beginning<br />

of the implementati<strong>on</strong> of Tenn<str<strong>on</strong>g>Care</str<strong>on</strong>g> in the State of Tennessee, what<br />

were the major problems as far as catastrophic disease was c<strong>on</strong>cerned,<br />

and then what has helped it improve to this point.<br />

First of all, let me say this carefully, because other States are<br />

looking at Tenn<str<strong>on</strong>g>Care</str<strong>on</strong>g>, and I am very alarmed at them copying the<br />

same program. No. 1, Tenn<str<strong>on</strong>g>Care</str<strong>on</strong>g> was implemented by putting the<br />

buggy before the horse. Very simply stated, they enacted a program<br />

without input from physicians who were specialists, and in many<br />

instances, they did not have because they had no physician enrolled<br />

in Tenn<str<strong>on</strong>g>Care</str<strong>on</strong>g> at that particular hospital. He went to four<br />

counties before he was treated, and it took me threatening the Governor<br />

with putting him <strong>on</strong> the fr<strong>on</strong>t page in the morning, and he<br />

made the teleph<strong>on</strong>e call to get that patient treated. So we have<br />

been through that, and we are still going through some of those<br />

scenarios today.<br />

I met with Blue Cross/Blue Shield 2 weeks ago, talking about the<br />

same problem with primary care physicians. If you are familiar<br />

with the gatekeeper role, in order to get specialty care, you have<br />

ot to go to the primary care physician first and physically be referred<br />

to that specialist. Well, if you are a primary care physician<br />

and all of a sudden, overnight, they give you 1,700 patients, and<br />

you have no earthly idea what disease states they have, and you<br />

call in for an appointment, and they say, "Well, the first appointment<br />

I can give you is 3 m<strong>on</strong>ths from now," you are looking at people<br />

who are panicking overnight who have got to have medicati<strong>on</strong><br />

such as Factor 8 for hemophilia or protease inhibitors that you cannot<br />

miss a day taking who are not able to get in to see a primary

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!