Medicaid Managed Care - U.S. Senate Special Committee on Aging

Medicaid Managed Care - U.S. Senate Special Committee on Aging Medicaid Managed Care - U.S. Senate Special Committee on Aging

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.as31. JVFM. vU~flflrian ju.y, 1996 11 d ong>Careong> for People With Disabilities The CCD Health Task Force "Principles for Health ong>Careong> Reform firom aDisability Perspective" have been used since their development in 1991 to assess the ability of health care reform measures to meet the needs of people with disabilities. The CCD asserts that any effort to reform the nation's health care system must be built on five basic principles: non-discrimination, comprehensiveness, appropriateness/choice, equity, and efficiency.. This means that: * both the public and private health care systems must not discriminate against people with disabilities; these systems must make r a full range of health and health related services and supports available to people with disabilities in an effcient manner based on their individual needs and choices and T people with disabilities must not be burdened with inequitable and disproportionate costs which limit their access to services Policy makers at both the national and state levels must recognize that there are at least 43 people million with disabilities in the United States, as well as a large number of anyh witat special care health needs. This includes individuals of all ages with physical. and mental impairments, or conditions disorders that are severe, acute, or chronhi ch limit or impede their ability to function. Therefore, reform efforts must ttketinto consideration the needs ofpeople with disabilities. Currently, the role of managed care occupies center stage in the health care debate. ong>Managedong> care is viewed by many as a means to control health care costs while at the same time promoting good health. However, this is not the view of the disability community' Reports from consumers with disabilities indicate that access to necessary services is either denied or severely limited by managed care organizations because of a lack of understanding of the needs of individuals with disabilities. Building on its earser work, the CCD Health Task Force has developed the following managed care principles to help consumers and advocates evaluate current and emerging managed care United Cerebral Palsy Associations Page 4 of 9

JlSAes CRi. E CalD5Vilb J~iiiLi ulsbO iB. l^* CRAMER BARWS AEOSRTEA S ECERROCC SHELBY. ALEARRA MR Ufl CYO.A HABEN antSCOZSSJS evWoseals, pacM hT W an gi 12 *,i,,,, asosals, prac~fG~os~a& ls and guideIni me5,Edepu ,,MrrEnaEirna e application to people with disabilities. This is a set of guiding pri e10,N MWAU ' T ook" for the perfect managed care system. These principles should be viewed only as a starting place by advocates who are working to ensure that managed care systems meet the varied needs of children and adults with disabilities and their families. Issues in managed care concerning long term services and supports for people with disabilities are not expressly addressed in this document. Other CCD materials address these issues. However, the CCD wants to stress that if a managed care entity is responsiblefor any long term services and supports, these must be provided in accordance with best practices and emphasize community-based, consumer directed services. Long term services must not become overly medicalized because a health care entity is responsible for payment. Consumers of long term services must be given choices and fiidl range of quality assurance measures mustbe available based on individual needs and personal preferences about types, methods, providers, and sites of services. Principles For ong>Managedong> ong>Careong> For People With Disabilities The CCD believes that if managed care systems/plans are to meet the needs of people with disabilities, they must embody the following principles. Consumer Participation ong>Managedong> care systems/plans must ensure that all key stakeholders, including individuals with disabilities, family members, support agencies, providers, advocates, and others are enlisted in designing, implementing, and -overseeing the operation of both public and private managed care systems and plans. ong>Managedong> care systems/plans must not encourage placement in institutions but, instead, encourage the provision of services that support people to live as independently as possible and to participate in the every day life of the community. Consumer Choice ong>Managedong> care systems/plans must expand, not diminish, opportunities for people with disabilities and their families to choose services and supports that will improve the quality of their lives. ong>Managedong> care systems/plans must be structured in a _manner that decentralizes decision making and promotes innovation in providing appropriate services and supports to people with United Cerebral Palsy Associations Page 5 of 9

JlSAes CRi. E CalD5Vilb J~iiiLi ulsbO iB. l^*<br />

CRAMER BARWS AEOSRTEA S<br />

ECERROCC SHELBY. ALEARRA<br />

MR Ufl CYO.A<br />

HABEN antSCOZSSJS<br />

evWoseals, pacM hT W an gi<br />

12<br />

*,i,,,, asosals, prac~fG~os~a& ls and guideIni me5,Edepu ,,MrrEnaEirna e applicati<strong>on</strong> to people<br />

with disabilities. This is a set of guiding pri e10,N MWAU ' T ook" for the perfect<br />

managed care system. These principles should be viewed <strong>on</strong>ly as a starting place by advocates<br />

who are working to ensure that managed care systems meet the varied needs of children and<br />

adults with disabilities and their families.<br />

Issues in managed care c<strong>on</strong>cerning l<strong>on</strong>g term services and supports<br />

for people with disabilities are not expressly addressed in this<br />

document. Other CCD materials address these issues. However, the<br />

CCD wants to stress that if a managed care entity is resp<strong>on</strong>siblefor<br />

any l<strong>on</strong>g term services and supports, these must be provided in<br />

accordance with best practices and emphasize community-based,<br />

c<strong>on</strong>sumer directed services. L<strong>on</strong>g term services must not become<br />

overly medicalized because a health care entity is resp<strong>on</strong>sible for<br />

payment. C<strong>on</strong>sumers of l<strong>on</strong>g term services must be given choices and<br />

fiidl range of quality assurance measures mustbe available based <strong>on</strong><br />

individual needs and pers<strong>on</strong>al preferences about types, methods,<br />

providers, and sites of services.<br />

Principles For <str<strong>on</strong>g>Managed</str<strong>on</strong>g> <str<strong>on</strong>g>Care</str<strong>on</strong>g> For People With Disabilities<br />

The CCD believes that if managed care systems/plans are to meet the needs of people with<br />

disabilities, they must embody the following principles.<br />

C<strong>on</strong>sumer Participati<strong>on</strong><br />

<str<strong>on</strong>g>Managed</str<strong>on</strong>g> care systems/plans must ensure that all key stakeholders, including individuals with<br />

disabilities, family members, support agencies, providers, advocates, and others are enlisted in<br />

designing, implementing, and -overseeing the operati<strong>on</strong> of both public and private managed care<br />

systems and plans.<br />

<str<strong>on</strong>g>Managed</str<strong>on</strong>g> care systems/plans must not encourage placement in instituti<strong>on</strong>s but, instead, encourage<br />

the provisi<strong>on</strong> of services that support people to live as independently as possible and to participate<br />

in the every day life of the community.<br />

C<strong>on</strong>sumer Choice<br />

<str<strong>on</strong>g>Managed</str<strong>on</strong>g> care systems/plans must expand, not diminish, opportunities for people with disabilities<br />

and their families to choose services and supports that will improve the quality of their lives.<br />

<str<strong>on</strong>g>Managed</str<strong>on</strong>g> care systems/plans must be structured in a _manner that decentralizes decisi<strong>on</strong> making<br />

and promotes innovati<strong>on</strong> in providing appropriate services and supports to people with<br />

United Cerebral Palsy Associati<strong>on</strong>s Page 5 of 9

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