November 2008 - Creighton University School of Medicine

Medical Director
John Bertoni, MD, PhD
Coordinator
Lisa A. Brovold
Nebraska Chapter
Mary Egger, President
Mary Jane Petersen,
Secretary
Bev Baker, Treasurer
———————————
Parkinson’s Progress report
is published quarterly as
an information guide
only. The newsletter does
not serve as legal or medical
advice.
Inside this issue:
APDA 44 Years 1
Later
APDA
INFORMATION
AND
REFERRAL
44 Years Later cont. 2
Message regarding
the Medical Director
Contemplations
from a Car Weary
Coordinator
Three Facilitators
Honored for
3
3
Events 2008 4
Education 2008 5
6
A Place to Belong 7
Gifts 8
FYI 9
Save the Date
10
Parkinson’s Progress report
VOLUME IV ISSUE I I November 2008
The American Parkinson Disease Association, Inc.
44 YEARS LATER
The Nebraska Parkinson’s Information and
Referral Center (I&R) was opened in January
2005. Previously, it had been operated in the
private sector by a family with an interest in Parkison’s
disease. They retired in 2004 and Dr. Bertoni
became Medical Director of the I&R Center
in 2005.
With the hiring of a coordinator, the Center
has stretched its arms to reach clear across the
state of Nebraska. There are support groups in
the north, south, east and west as well as central
Nebraska. Rural areas can now receive current
educational information by participating in the
teleconferences. In 2008, over 540 individuals
were educated through this method, providing
them with the tools they need to live an optimal
quality of life. A website has now been developed,
www.parkinsonsne.org, where patients,
family members and caregivers can access current
information about events and educational
programs happening in their state and local area.
Resources and media learning tools are available
through the Center for individuals wanting
more knowledge about Parkinson’s disease.
With the introduction of the I&R Center, the Parkinson’s
community is now better equipped and
educated than ever.
If it weren’t for the sponsorship of the national
American Parkinson Disease Association
(APDA), located in Staten Island, New York, the
Nebraska I&R Center would not exist, nor would
it have accomplished all the achievements listed
above. It is, therefore, important that every Nebraskan
in the Parkison’s community understand
the history and involvement of the APDA and
how it supports what is being done in our state.
The American Parkinson Disease Association
(APDA) was officially recognized as a not-forprofit
organization by the State of New York in
1964. APDA is unique in its dual mission of providing
information, education and support directly
to Parkinson’s patients and their caregivers, and
also as a major contributor to pioneering Parkinson’s
disease (PD) research.
Since its inception, APDA has been a funding
partner in every scientific breakthrough in understanding
the cause and progress towards a cure
for PD. Included in that research was the pioneering
work of Dr. Roger C. Duvoisin, a chairman
of the APDA Scientific Advisory Board
(SAB) that pinpointed the location of a gene responsible
for PD at Robert Wood Johnson Medical
School, New Jersey, in 1997.
APDA’s funding methodology is driven by its
SAB, composed by 16 of the country’s leading
physicians and scientists, experts in Parkinson’s
disease and movement disorder research diagnosis
and treatment. Now chaired by G. Frederick
Wooten, MD, department of neurology at the
University of Virginia Medical Center, the board
includes representation from leading research
and medical centers across the country including
the UCLA Medical School, Emory University
School of Medicine, the Mayo Clinic Jacksonville,
the University of Wisconsin, the UMDNJ/Robert
Wood Johnson Medical Center, Boston University
School of Medicine, Washington University,
Johns Hopkins Medical School, the University of
Alabama and the University of Chicago. The
board’s composition is designed to represent
expertise in all areas of PD research providing a
knowledgeable panel to evaluate the more than
100 grant applications submitted for funding each
year.
APDA support is offered to encourage research
at all levels. Nine Centers for Advanced
Research across the United States (Boston University
School of Medicine, Emory University
School of Medicine, UCLA School of Medicine,
UMDNJ-Robert Wood Johnson Medical School,
the University of Virginia Medical Center, the
University of Pittsburgh, the University of Chicago,
the University of Alabama, and the Washington
University Medical Center) receive a multiyear
$125,000 annual award, and their scientific
activity is reviewed and evaluated at the SAB
meeting each spring.
Continued on page 2

H I S T O R Y
The George C.
Cotzias, MD Memorial
Fellowship, named after a pathfinder
in the pharmacological exploration
of brain functions and in the
treatment of PD with levadopa, is a
three-year annual award of $80,000
to assist promising young neurologists
in establishing careers in research,
teaching and clinical services
relevant to the cause, prevention,
diagnosis and treatment of PD
and related neurological movement
disorders. It is considered APDA’s
most prestigious individual award.
Established scientists affiliated
with research or academic institutions
and presently not working on
PD research are eligible for the
Roger C. Duvoisin, MD Research
Grant. The grant carries a two-year,
$80,000 annual award.
Other funding is available as
research grants ($50,000 for one
year) for young investigators to pursue
research in PD; post-doctoral
research fellowships ($35,000 for
one year) available to post-doctoral
scientists whose research training
holds promise into new insights in
patho-physiology, etiology and/or
treatment of PD; and medical students
summer fellowships designed
to provide a stipend to medical students
to perform supervised laboratory
or clinical research in PD. The
fellowship is $4,000.
At its meeting in May 2007, the
SAB recommended more than $3.5
million in grants, which was unanimously
approved by the executive
committee of the national board of
directors.
Equally important and unique
among U.S. PD organizations is the
APDA mission to support and educate
the country’s 1.5 millions with
Parkinson’s disease and their caregivers.
Recognizing the devastating
effects of the illness upon the patient
and the family, a support program
was launched to motivate patients
in maximizing their strengths,
minimizing impediments and achieving
and maintaining their full potential
for as long as possible.
Through a network of chapters,
which raise awareness and funds;
Information and Referral centers,
each staffed with a medical director
and a coordinator; and more than
1000 support groups, APDA provides
a comprehensive support and
educational system for patients and
caregivers. There are presently 56
chapters and 62 I&R centers located
in major healthcare and academic
facilities across the country,
making it the largest grassroots PD
organization in the United States.
In 2007, APDA opened the
country’s first full-time national
young onset center to serve the
unique challenges of young people
faced with the progressive, degenerative
disease. The center’s director
is Julie Sacks, a clinical social
worker with more than a decade of
experience working with individuals
of all ages and their families. The
center is located in the Chicago,
Illinois area and serves the entire
country. Its website is
www.youngparkinsons.org.
APDA also maintains a dedicated
I&R center for U.S. Armed
Forces veterans and their families.
Located in Reno, Nevada. The center’s
mission is to disseminate information
about services available to
veterans with PD in their home communities
and to serve as a resource
for information about government
benefits available for Parkinson’s
disease patients.
Education is a primary function
of the organization and is provided
through a quarterly newsletter,
which is mailed to more than
200,000 people internationally. A
series of publications includes multipage
booklets written by experts in
specific fields such as symptoms
and medications, support, physiotherapy,
speech problems, and nutrition.
Many of these educational
materials have been translated into
other languages and all are available
free of charge. Educational
supplements dealing with specific
subjects related to PD are issued as
the need may arise.
“Managing Parkinson’s - Straight
Talk and Honest Hope,” is a DVD
created for the newly diagnosed
patient and his/her loved ones.
2
Leading experts explain what PD is
and how it is treated, how to deal
with symptoms of the disease, some
of the medications’ side effects and
how to keep a positive outlook in
dealing with it.
APDA works collaboratively with
other US Parkinson’s organizations
with similar objectives including the
Parkinson’s Action Network, a national
advocacy association based
in the nation’s capital, PD Trials, a
Web-based service to inform patients
of existing clinical trials and to
encourage participation and the Michael
Fox Foundation to support a
PD registry in the state of Nebraska.
Encouraging global cooperation,
APDA was the co-sponsor, with the
Italian Parkinson Disease Association
of the World Parkinson Disease
Association (WPDA), organized in
November 1998. Today, 26 national
affiliates from six continents
work cooperatively to disseminate
the latest information about the progress
of PD research, therapy, and
all vital information about the disease
within their countries. Dr. Paul
Maestrone, APDA director of scientific
and medical affairs and a
WPDA founder, is the president of
this association.
APDA is proud of its diverse
contributions to the Parkinson’s patients
of the United States and of
foreign countries and the dedication
to pursue its mission to “Ease the
Burden - Find the Cure” for Parkinson’s
disease.
This article was compiled from the
official history of APDA and was
published in the Spring 2008 issue
of the APDA newsletter. It has been
reprinted with permission.
National APDA Headquarters

Message regarding the Medical Director
Nebraska has three Movement Disorder Specialists in the state. Dr. John
Bertoni is one of the Movement Disorder specialists. Beginning December 1,
2008, Dr. Bertoni will be transitioning to a new office location. As patients and
their families, you may have already experienced the transition, especially when
recently calling to schedule an appointment. Please do not be dismayed, you
can schedule an appointment with him by contacting (402) 559-8600 after
John M. Bertoni, MD, PhD January 1, 2009. The clinic will be located at the Doctors North Tower, 4242
Farnam Street, Suite 650. Dr, Bertoni would like to thank you for your patience
and understanding during this transition time.
AROUND
NEBRASKA
IN NINETY
DAYS!
I don’t know what I was thinking when I decided to
embark on this adventure. Maybe I thought I would imitate
Charles Kuralt. However, instead of traveling the
United States, I would start smaller - Nebraska seemed
like a good place to begin.
So I began my first part of the journey by visiting the
support groups in the southeast part of the state. In Lincoln,
I had the very first of many picnics to come. Dellene
and her group were warm and welcoming. It was a
great time of sharing and learning from each other.
From there, I traveled to Beatrice and then onto Falls
City. Did you know that Falls City is smaller than Beatrice?
I didn’t until I arrived there. I spent two days educating
the community as well as the medical professionals.
Finally, I headed back north to Nebraska City—
what a beautiful place with Arbor Lodge and apple trees
everywhere.
My next trip was to head out west. Now to get
across the state takes a little over eight hours! I started
in North Platte with Carolyn, sharing a picnic of good
home cooked food. I learned more about Buffalo Bill
Cody while I was there. The next day, we had our first
meeting in McCook. Twenty-eight people attended the
meeting, which was very exciting! I visited with Flossie
and Lorraine in Hastings the following day, sharing updated
information with their hungry group of people.
While we were there, my son decide to create some excitement
himself. He slammed his head into a pole and
cut a slice into it. He had blood everywhere and, of
course, all the grandmas and pas wanted to make certain
he was okay. He was and he loved the attention.
Moving west past Sydney, Nebraska - the home of Ca-
CONTEMPLATIONS FROM A
CAR-WEARY COORDINATOR
bella’s - we spent a fun-filled day with Jack and Donna’s
two groups. Again, eating more food than is normal for
human consumption. Finally, turning the car east towards
home, I felt the satisfaction of knowing we have a
strong network of support for the Parkinson’s community
throughout central and western Nebraska.
My final trip was to the northeast section of the state.
I visited the Sykes in Norfolk and found that the hospital
is expanding. On my way home, I stopped in Columbus
to touch base with Virgil and Elaine. The following
week, I traveled along the Niobrara to visit Ray and
Nellie Faye in Spencer. It is a beautiful drive. The
Spencer group is always so warm and fuzzy and I hated
to leave them. However, my drive home was a different
story. I found myself dodging high winds, tornados and
rain so heavy you couldn’t see in front of you. I was
elated to finally arrive at home. Alas, Fremont was my
last stop for the summer. We had a wonderful time
learning from each other there.
Nebraska is full of great people. Even though I
am not in a hurry to travel the whole state again, I cherished
the opportunity to meet so many kind and generous
people and to play a small part in making their lives
better. It is an awesome privilege to be a part of Nebraska’s
Parkinson’s community. While I may have the
chance to educate and assist you, I receive so much
more in return. You, individually, bring a special contribution
to the community and to the cause. Thank you
for making this adventure so special.
I didn’t make it to some groups. However, I will be
planning to do so in the future - just not this year ☺
3

Walk-A-Thon
E V E N T S
The Annual Walk-a-thon took place on Sunday,
June 1st in Elmwood Park. The day was
spectacular with a crowd of over 400 peo-
ple attending the event to raise awareness
and support for Parkinson’s disease. Children
soared to new heights in the bounce house while parents
enjoyed the live entertainment with the Country Kickers displaying
their dance moves. A bevy of beauty queens were the delight of
tween and teen girls as they signed autographs and gave out beauty
tips. The walk got underway with Carol Wang, news anchor from
Action 3 News starting it off. Upon returning from the walk, all participants
were fed hot dogs, chips, fruit
and a drink. Wrap- ping up the activities,
Carol announced the winners of the
raffle prizes. The Walk brought in
$25,500 which goes for research. Thank
you for making the walk such a success.
Weitz
Volleyball
Weitz Construction Annual Volleyball Tournament
netted support in the amount of
$34,000 this year. This is the sixth year that
Weitz has hosted the event, inviting their
vendors to participate in the tournament. The
tournament’s inception began with an employee who had Parkinson’s
and co-workers wanting a way to help support him in raising
awareness and contributions to fight the disease. Over the past
years, Weitz has contributed over $146,000 to help ease the burden
and find a cure for Parkinson’s. Their donations have helped to promote
education throughout the state of Nebraska, provide resources
to the 22 support groups, assist with administrative costs
and help the Chapter in their marketing functions.
Weitz was honored this year at the Hand in Hand, Linking Lives
for Parkinson’s event for their dedication and support for Parkinson’s
disease.
Golf
Tournament
The 2008 Annual Parkinson’s Golf Tournament
was a success despite Mother Nature’s
attempt to blow it away. On Friday,
June 27th, high winds of 100 mph blew
t h r o u g h Elkhorn, causing destruction and damage
along its path. The next morning, Indian Creek Golf Course informed
the Golf Committee that they would not be able to host the
tournament. Thankfully, a friend with a connection to ArborLinks in
Nebraska City was able to get them to accommodate the tournament.
With quick response, the majority of the golfers were notified,
with 58 players out of 80 registered participating. The event
brought in over $4,000 which is not too bad considering the kind of
start it had to overcome.
The funds raised from the Golf Tournament support education
and empowerment programs for Parkinson’s throughout the state.
4
2009
GOLF TOURNAMENT
SATURDAY,
JUNE 27, 2009
Himark Golf Course
Lincoln, Nebraska
10am
Registration
11:15am
Starting Tee Times
$110 per player
$440 per team
Sponsorships available
For further
information, contact
Lisa Brovold
(402) 449-4535
(866) 626-7347
labrovo@creighton.edu
AND
THEY
ARE
OFF!

NORTH
PLATTE
SYMPOSIUM
E D U C A T I O N
The symposium for Parkinson's Disease was a 'total success.' We had over 70
medical personnel attend the symposium. Comments that I heard were,
"Wonderful, Informative, Awesome and Great".
My ABC's of the Parkinson's Disease Symposium held in at North Platte, Nebraska are:
Awareness: The symposium made us more aware of the disease process of Parkinson's. It made
us aware that Parkinson's disease is manifested in many ways, not just a tremor. We were educated in
regards to some of the very early signs of Parkinson's disease that can be recognized before the diagnosis
is made. We cannot exclude the possibility of Parkinson’s because of a person’s age.
Better Understanding: We now have a better understanding of how Parkinson's disease affects
the person with Parkinson's and their family. The person with PD has to make adjustments in their daily
lives, their social activities and their careers. The person with PD and their families need support and understanding.
Current Treatments: The symposium updated us with the common medications that are prescribed
and also introduced us to the new medications that are being used. We reviewed the purpose of
drug therapy, the dosages and their effect on Parkinson's disease. The possible side effects were also
discussed. We were reminded that not all medications work the same in every person with PD. Many
times the drug therapy is a trial period and has to be adjusted or changed to meet the needs of
the individual person.
We learned the purpose of DBS and how some persons with PD can be treated successfully and be
able to function better.
Complimentary therapies: We were told about the complimentary therapies that can be used to
benefit the Parkinson's person; Physical therapy to help the PD person with balance and coordination.
Occupational therapy can help to enhance their fine motor function. Massage, Yoga, and Reiki can
help with relaxation of the muscles. Speech therapy can be used to aid swallowing problems.
Diagnosis: We were reminded how important it is for a person to be referred to a movement disorder
specialist for a complete evaluation, history and examination for a diagnosis of Parkinson's disease.
Diagnosis can only be made clinically, since Parkinson's disease cannot be determined by doing an X-
Ray, MRI or CT. These diagnostic tools can, however, rule out other neurological problems.
As a Registered Nurse, I am glad I attended the symposium. It was very informative and educational.
The medical profession needs to be aware of and recognize the possible signs, symptoms and
effects of Parkinson's disease. An early diagnosis may give the person with PD a longer and more productive
life. It may give the person with PD a better prognosis.
Thank you, Lisa and the Nebraska Chapter for bringing the symposium to Central and Western Nebraska.
Carolyn Fear, RN and support group facilitator
PARKINSON’S EMPOWERMENT PROGRAMS
Parkinson’s Empowerment Programs (PEP) have developed over the years. The Nebraska Parkinson’s
I&R Center currently has six educational teleconferences a year. In 2009, topics will include LSVT – Loud
speech therapy, Gadgets and Gizmos - aids to make life easier, Depression and PD, Non-Motor Symptoms,
Faith in the Face of Physical Limitations and, an all-time favorite, the First Person Perspective
Panel. Experts in each field will present the program, which will be broadcast from Omaha to a location
close to you. Please check the website, www.parkinsonsne.org for more specific details.
A new educational program, sponsored by funds raised through the Hand in Hand, Linking Lives
for Parkinson’s campaign, is the “Living the Good Life with Parkinson’s” training session. This
training session will be designed for the newly or currently diagnosed patient who has had no in-depth
teaching regarding Parkinson’s disease and its progression. The session will begin in untapped communities
of Nebraska, such as Chadron, Alliance, Valentine and Holdrege. Check the website for the date and
location information. An exciting year for educational opportunities lies ahead for 2009!
5

SUPPORT GROUPS
Three Facilitators Honored for Dedication
By Lisa Brovold
Nebraska is fortunate to have a wealth of
leadership and commitment in the individuals
who facilitate the Parkinson’s
support groups. With 22 support groups
throughout the state, it is a relief
to know that they are being
led by people who have a passion
to help others and some
who have a personal experience
with Parkinson’s disease.
These facilitators give of their
time to organize and manage
the group so others can participate
and enjoy the experience,
so they can learn more
about the disease and begin to get a
sense of control. The facilitators are the
comforters, encouragers, educators, and
motivators for the members in their
groups. They are usually the first contact
for a newly diagnosed person and their
family. They do a lot with little recognition
or reward.
On Thursday, October 16th, at the Annual
Facilitators’ Meeting, Lisa Brovold took
the opportunity to recognize three facilitators
for their contributions to the Parkinson’s
Support Group Network in Nebraska.
Realizing that all the attendees
were deserving of an award, she had the
difficult task of chosing only three.
Dellene Miller, facilitator for the Lincoln
support group, has been involved with the
Parkinson’s community for approximately
29 years. Her husband, Karl was diagnosed
with Parkinson’s in 1978. They
joined a group in 1979 that met at the
Methodist Church. They also became a
part of a special young onset group with
members from all over the state: North
Platte, Kearney, Sutton, York and Beatrice
to name a few. This group would
plan outings over a weekend for the entire
family. They grew to be a very close
Dellene Miller, Lincoln SG
knit “family” and still have that special
connection.
Dellene took over the Lincoln support
group in 2002. Unlike many spouses,
even after Karl’s death in
2005, Dellene has continued to
facilitate the Lincoln group.
For her generous dedication
to the Parkinson’s community,
Dellene was presented with
the Above and Beyond award.
We are so grateful for her generosity!
Jack and Donna Johnson have lead the
Panhandle support group for over nine
years. Jack was diagnosed with Parkinson’s
disease in 1999. He started attending
a support group in Cheyenne, Wyoming
and after a year, decided to start
one in his neck of the woods. The group
now has people coming from Gering, Kimball,
Alliance, Chadron, Scottsbluff and,
yes, Wyoming!
Jack and Donna do not hesitate to go and
pick up their members so they can attend
the meetings. Once a year, they host a
picnic for both support groups and make
all the fixings. They can do this because
between them they have eight children
and many more grandchildren! For their
pioneer spirit and leadership, Jack and
Donna were honored with the Above and
Beyond award. They will be handing off
the groups to new leaders but we hope
they will stay in touch. Thank you both for
everything!
Donna and Jack Johnson
Pandhandle Support Group
6

A Place to Belong...
Beatrice
Harold Brown – Facilitator
Good Samaritan
1306 S. 9th Street
(866) 421-0816
1 st Monday at 10am
Blair
Facilitator
Carter House
1028 JoAnn Drive
(402) 426-1977
4 th Wednesday at 1:30pm
Columbus
Virgil Chochon – Facilitator
Columbus Community Hospital
4600 38 th Street
(402) 564-1438
2 nd Thursday at 1:30pm
Fairbury
Lana Likens – Facilitator
Jefferson Community Health Ctr.
2200 “H” Street
(402) 729-3351
1 st Monday at 10am
Fremont
Facilitator
Pathfinder House
3010 N. Clarkson
(402) 721-7714
3 rd Wednesday at 11:30am
Gering
Jack & Donna Johnson-Facilitators
Northfield Villa
2550 21 Street
(308) 235-2513
4 th Wednesday at 1:30pm
Grand Island
Rhonda McGuire – Facilitator
Tiffany Care Center
3119 W. Faidley Avenue
(308) 398-5322
1 st Tuesday at 1:30pm
Hastings
Flossie Saathoff - Facilitator
First St. Paul Lutheran
918 W. 4th Street
(402) 462-9970
4 th Wednesday at 2pm
Kearney
Andy & Nevabelle Howe – Facilitators
First United Methodist Church
4500 Linden Drive
(308) 234-1570
2 nd Tuesday at 2pm
Lincoln
Dellene Miller – Facilitator
Madonna Rehab Center
54 and South Streets
(402) 486-4810
4 th Sunday at 2pm
Early Onset
Bruce & Kristi Griffith - Co-Facilitators
(402) 449-2584 - Kristi
Call for day/time
McCook
Wally & Gloria Gummere – Facilitators
Community Hospital
1301 E. “H” Street
(308) 276-2651
3rd Monday at 7pm
Nebraska City
Sandi Rippe – Facilitator
Morton House
1500 14 th Avenue
(402) 873-5551
4 th Wednesday at 10:30am
Norfolk
Phil & Bonnie Sykes – Facilitators
Lutheran Hospital Nebraska Rm.
2700 Norfolk Avenue
(402) 371-6613
1 st Tuesday at 2pm
North Platte
Carolyn Fear – Facilitator
First United Methodist Church
1600 W. “E” Street
(308) 534-7404
1 st Monday at 7pm
Omaha
Ron & Maxine Kantor – Facs.
Creighton Univ. Med. Center
601 N. 30 Street, Dining Rms A-C
(402) 393-9169
3 rd Thursday at 11:30am
7
Caregiver’s Gathering
Mary Mick - Facilitator
APDA Nebraska Chapter Office
501 N. 87 Street, Suite 207
(402) 449-4535
2 nd Wednesday at 10am
Early Onset
Katie Domayer – Co-Facilitator
Colleen Wuebben - Co-Facilitator
(402) 551-0602 - Katie
(402) 397-0327 - Colleen
Call for day/time
Evening
Lisa Brovold
APDA Nebraska Chapter office
501 N. 87 Street, Suite 207
(402) 449-4535
4th Monday at 6:30pm
Sioux City, Iowa
Marilee Lynn - Facilitator
Sioux Land Senior Center
217 Pierce
(712) 389-2954
3 rd Monday at 1pm
Spencer
Ray & Nellie Faye Hagberg–Facilitators
Our Savior Lutheran Church
101 S. Whipple
(402) 589-1576
3 rd Tuesday at 2:30pm
York
Brenda Mumm/Rita Maloley – Facilitators
York General Hospital
2222 Lincoln Avenue
(402) 362-0426 or 362-0440
3 rd Tuesday at 2pm
Exercise Only – Omaha
Melanie Clark, RPT – Co-Facilitator
Linda Fuchs, RPT – Co-Facilitator
St. Leo’s Church, 102 and Blondo
(402) 391-4052 or 553-8242
Every Tuesday at 11am
Fitness Works
Jacey Gengenbach, NSCA - CPT
1032 S. 74th Plaza
(402) 934-8881
Monday: 12pm - 1pm
Tuesday: 6pm - 7pm
Saturday: 9am - 10am

G I F T S
Memorial:
Kenneth Arch
Andrea Hoig
Alan Barney
Bob Barney
Ann Philson
Milton Brighton
Brian & Cindy Brigham
Christopher Columbus
Society Inc.
Deloris Ellison
Ronald & Lind Gerst
Wayne & Joan John
Stan & Fran Bonk
Darlene Bart
Helga Casser-Zohren
Warren & Margaret
Fredrickson
Kim Winther
Lois Wright
Richard Dannelly
Gertrude Dannelly
Joan Dietrick
Thomas & Maryann Balla
Ervin & Joan Deitrick
Kenneth & Shirley Dermann
Joseph & Catherine
Dorenbach
Lawrence & Dorothy Glaser
Shirley Hartley
Edgardo Katigbak
Gale Marsh
Teresa Pegler
William & Dorothy Reinsch
Ida Mae Siefkes
Alan & Sharon Smith
Rip & Elaine Van Winkle
Norrie Egger
Beverly Baker
Tim & Amy Harrington
Ron & Carol Kopiasz
Bob, Sandy & Bobby
Kreifels
Dave & Bev Kudron
Ron & Ann Kudron
Mike & Elaine McGuire
Mike & Mary Jane Maguire
Peggy Michaelsen
Mike & Jayne Molacek
Wayne & Colleen Morris
Bob & Judy Zimmer
Luke Heckman
Arthur & Ruth Albright
Teryl & Norma Bohwski
Tony & Patricia Brown
Iris & Jean Doksansky
Barbara Fanning
Ruth Farrenkopf
Junior & Doris Gregerson
Donna Heckman
Susan Heckman
Lois Kimbrell
Coleen Kingsley
Nicki McIntyre
James & Lynda Moser
Beulah Petersen
Chris & Marilyn Petersen
Emma Shada
Clayton & Diane Skurdahl
Michael Thomas
Richard Heim
Ernest & Mary Arrigo
Duane & Ruth Ann Burd
Eunice Hingst
Alvin Hingst
Peter Hoagland
Helen Muskin
Robert Guiles
Fae Guile
Deloris Keating
Raymond & Nellie Faye
Hagberg
Lloyd Klebe
Danile Daily
Hilma Klebe
Roger & Sandra Mills
John & Nancy Olsson
Vicki Sheridan
Opal McNurlin
Richard & Mary Annin
William & Lois Annin
Darwin & Vicki Garton
George Muchacek
Weston & Gloria Hill
Willow Olsen
Blue Cross Blue Shield of
Nebrasla
Catherine Lane
Dennis Murphy
Buddy & Geraldine Novak
Richard & Patricia Nowak
Howard & Mary Ann Shipley
Evelyn Peterson
Larry & Frieda Calhoon
Marvin & Betty Cozad
Robert & Carolyn Erickson
Bob Hadfield
Ed Hadfield
Gloria Lamp
Shirley McDonald
Cathe McKee
Darrel & Ester Michael
Mable Oltmann
Wand Quier
Jack & Mike Roane
Marjorie Shelly
8
James Pipan
Irene Pipan
Rodney Rathman
Leland Bredthauer
Ruby Harders
Patricia Moss
Jeff or Michelle Lane
Betty Rogers
Rex & Wilma Messersmith
Kenneth Snyder
Richard & Jacquelin
Danielson
Franklin & Lillian Jeppesen
Don Schmitz
Shirley Bailey
K.A. & M.R. Baker
Joseph Stroesser
Richard & Diana Cupich
P.A. Kauk
Ortho Sport Therapy and
Rehab
Joseph Weiss
Janie Augustine
Bob & Jean Bartunek
Francis & Linda Cavlovic
William & Carol Clark
Pamela Fletmeyer
John & Debra Garner
Cyd Hall
Allen & Chris Hansen
Barry & Joann King
Brad Langenfeld
Liz Neal
Raymond & Kathleen
Pentagulio
Dwaine & Mary Pedler
Kathryn Rybensky
Eugene Witt
Nancy Ethington
Honorariums:
Lola Anderson
Dwight Anderson
James Naumann
Max & Karen Rudolph
Keith Knudsen
Leola Knudsen
Clare Skattebo
Maxine Skattebo
Kate Domayer
Ralph & Madonna Oglebay
Christopher & Michelle
Patrick
Lisa Russell

G I F T S
Donations:
Ameritas
Cindy Berry
Elaine Carter
Jennifer Dalbey
Robert & Elaine DeFord
Darelynn Egger
Lila Egger
Eustis Community Chest
Eric Gehringer
Raymond & Nellie Faye Hagberg
David & Susan Hebda
Lance & Debbie Herald
Susan Hruby
Richard Jensen
Franklin & Lillian Jeppesen
Richard & Maureen Kizer
D.G. & Marie Kleinschmidt
Ron & Carol Kopiasz
Tim & Elizabeth Langan
Stuart & Carol Leonard
Charles & Kristin Lewis
Gregory Loyd
James Mallory
William & Margaret March
Sonya Maryott
McCormick Charitable Trust
John & Kay Monzingo
Omaha Community Foundation
W.E. & Alice Padgett
James & Joanne Pennella
Richard & Mary Ranallo
John Rohacik
Betty Schneider
Daniel & Dorothy Sheppard
Erik & Mary Jo Torring
Union Pacific
Wendell & Verna Wertz
T
hank you for your generous
gifts and donations
to the Nebraska
Chapter of the American Parkinson
Disease Association. All
contributions are used in Nebraska
for supportive services
and across the country for
Parkinson research.
You can make a taxdeductible
donation by sending
a check to:
Nebraska Chapter/APDA
501 N. 87 Street, Suite 207
Omaha, NE 68114
Caregiver’s Gathering
A group for caregivers
was started a year ago
in Omaha. It has grown
from three people to up
12 people. The group
meets the first
Wednesday of the
month at 501 N. 87
Street, Suite 207, which is the
Nebraska Chapter office on
the corner of 87th and Dodge.
The meeting begins at 10am.
Parking is provided in the rear
of the building.
Equipment for Sale
A DynaVox model series DV 4
computer is for sale. The DynaVox
4 provides patients
who have little or no speech
with tools necessary to
unleash the power to communicate
with family members,
friends and their own care
team members. The DV 4
computer has a small case.
The cost of the computer is
$3000. An external printer
and phone can also be purchased
for an additional cost.
Please contact the I&R Center
office at 866-626-7347 for
more details.
f.y.i
FLU FACTS
Think you have the flu. Know the FACTS.
9
New Exercise Class
In Omaha, Jacey Gengenbach,
NSCA, CPT, with Fitness
Works, has begun exercise
classes specifically
designed for people with
Parkinson’s. The classes
cost $10.00 a session. The
sessions are as follows:
Monday 12pm - 1pm
Tuesday 6pm - 7pm
Saturday 9am - 10am
The classes are held at Fitness
Works, 1032 S. 74 Plaza
in Omaha. For more details
call Jacey at (402) 934-8881.
New Group in Broken Bow
A new support group has recently
met in Broken Bow.
Glenda Ward, facilitator, reports
a great beginning for her
group. A total of six people
attended the dessert reception
and planned to meet next
month on December 8th for
their first Christmas party.
You are welcome to attend if
you live in Broken Bow’s area.
Call Glenda at (308) 870-3239
for further information.
Fever Aches Chills Tiredness Sudden symptoms
Flu symptoms can be mild or severe — and if they’re mild can become
severe without much notice. Be aware of your body and monitor
your body temperature. When possible, get a flu shot. If you can’t,
be sure you know your treatment and prevention options so you can
be prepared.
You don’t need to experience all of these symptoms to have the flu.
If you have one or two, it's recommended that you see your doctor.

APDA
Information and
Referral Center
601 North 30th Street
Suite 2902B
Omaha, NE 68131
Phone: 866-626-PDIR
(7347)
Fax: 402-449-4278
E-mail:
labrovo@creighton.edu
Dedicated to ease the
burden and find the cure
www.parkinsonsne.org
APDA
Nebraska Chapter
501 N. 87th Street
Suite 207
Omaha, NE 68114
(402) 392-APDA (2732)
Nebraska@apda.omhcoxmail.com
All memorials/donations are
tax deductible. Checks should
be made payable to the APDA
and sent to this address.
ADDRESS CORRECTION REQUESTED
SAVE THE DATE!
APRIL
PARKINSON’S AWARENESS MONTH
(Special Events will be posted on the website)
May 31, 2009
Walk-a-thon
Miller’s Landing - Omaha
June 27, 2009
Golf Invitational Tournament
Hand in Hand, Linking Lives for Parkinson’s
April 2010
10