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Surgery and Healing in the Developing World - Dartmouth-Hitchcock

Surgery and Healing in the Developing World - Dartmouth-Hitchcock

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Cleft Lip <strong>and</strong> Palate <strong>Surgery</strong> <strong>in</strong> Develop<strong>in</strong>g Countries<br />

215<br />

cess <strong>in</strong> m<strong>in</strong>d dur<strong>in</strong>g screen<strong>in</strong>g is important. Provid<strong>in</strong>g patients <strong>and</strong> families with<br />

accurate, honest <strong>in</strong>formation is essential. Although we work with our <strong>in</strong>-country<br />

partners ahead of <strong>the</strong> mission to identify patients suffer<strong>in</strong>g from cleft deformities, it<br />

should not be assumed that patients <strong>and</strong> families underst<strong>and</strong> <strong>the</strong> specific surgery<br />

that may be performed. A child may have a cleft lip but a parent may be more<br />

<strong>in</strong>terested <strong>in</strong> hav<strong>in</strong>g <strong>the</strong> child’s ear microtia addressed. Misunderst<strong>and</strong><strong>in</strong>gs can be<br />

especially common with patients suffer<strong>in</strong>g from multiple deformities or syndromes.<br />

Accurately portray<strong>in</strong>g <strong>the</strong> surgical result is also important. It is important that patients<br />

<strong>and</strong> families are given a realistic sense of <strong>the</strong> surgical outcome. Stat<strong>in</strong>g <strong>and</strong><br />

restat<strong>in</strong>g <strong>the</strong> specific care <strong>and</strong> likely result throughout <strong>the</strong> screen<strong>in</strong>g process serves to reduce<br />

possible misunderst<strong>and</strong><strong>in</strong>g <strong>and</strong> disappo<strong>in</strong>tment.<br />

Screen<strong>in</strong>g Suggestions<br />

Assign a translator to a nurse, an <strong>in</strong>-country volunteer or <strong>the</strong> speech/dental<br />

team members at <strong>the</strong> end of <strong>the</strong> screen<strong>in</strong>g process to <strong>in</strong>quire specifically if<br />

patients <strong>and</strong> families understood <strong>the</strong> screen<strong>in</strong>g process. It is also important<br />

that <strong>the</strong>y underst<strong>and</strong> <strong>the</strong> possible surgery that will be performed <strong>and</strong><br />

when/how <strong>the</strong>y will be notified if <strong>the</strong>y are selected for surgery.<br />

Arrange for medical team members to be available at <strong>the</strong> notification site to<br />

address <strong>the</strong> needs of patients/families that have been chosen as well as<br />

those that have not been chosen for <strong>the</strong> surgery schedule. Have patient<br />

charts available to answer specific questions from patients <strong>and</strong> families.<br />

Screen<strong>in</strong>g Priorities<br />

Priority 1: Primary Repair of Cleft Lip—All Ages<br />

This procedure can be accomplished safely, quickly <strong>and</strong> with near-guarantee of<br />

vastly improved appearance <strong>and</strong> <strong>the</strong> restoration of a normal face <strong>and</strong> smile.<br />

The mission team should complete all primary lip cases that are healthy<br />

enough for surgery. The safe m<strong>in</strong>imum age <strong>and</strong> body weight of <strong>the</strong> patient<br />

depends on <strong>the</strong> sett<strong>in</strong>g, equipment <strong>and</strong> experience level of <strong>the</strong> anes<strong>the</strong>sia<br />

staff <strong>and</strong> <strong>the</strong> safety of <strong>the</strong> recovery room <strong>and</strong> surgical floor sett<strong>in</strong>g.<br />

Priority 2: Primary Repair of Cleft Palate—Ages 1-6<br />

These cases have <strong>the</strong> greatest success <strong>in</strong> enabl<strong>in</strong>g <strong>the</strong> patient to develop normal<br />

speech. The operation can be done safely <strong>in</strong> most children over 12 months.<br />

The younger <strong>the</strong> patient, <strong>the</strong> better <strong>the</strong> chance of develop<strong>in</strong>g normal speech,<br />

even when no speech <strong>the</strong>rapy is available <strong>in</strong> <strong>the</strong> country.<br />

Priority 3: Primary Repair of Cleft Palates—Ages 6-Adult<br />

When possible, older children <strong>and</strong> adults will have <strong>the</strong> opportunity for reconstruction.<br />

While perfect speech is not likely, a great deal of improvement<br />

can be achieved safely <strong>and</strong> <strong>in</strong> a short period of time. Additionally, <strong>the</strong> psychology<br />

benefits to <strong>the</strong> patient are enormous. These patients will require<br />

good follow-up <strong>and</strong> must be told that additional surgery may be necessary.<br />

Primary pharyngeoplasties <strong>in</strong> conjunction with palatoplasties may be beneficial<br />

<strong>in</strong> this patient population.<br />

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