Download het volledig rapport (302 p.) - KCE

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<strong>KCE</strong> reports vol. 6A Prenatale zorg 224 Study Ref Population Intervention on neonatal screening A talk about the present and future possibilities for carrier screening and prenatal diagnosis Questionnaire, testing attitudes to these possibilities Outcomes Results Comments Study type What are the uptake-rates for carrier screening and what is the impact of carrier screening? Study Ref Population Intervention Outcomes Results Comments Stud y Henneman et al., 2001 93 17 identified carriers 15 partners of carriers with negative test results 794 other participants Assessment 6 months after testing by questionnaire Impact, understanding of test results, satisfaction in terms of: Reproductive intentions of the participants Level of concern Perception of health Level of knowledge of CF Recall Understanding of the test results Attitude toward carrier screening None of the carriers changed reproductive intentions 8 participants were worried about their results, including 4 carriers Participants who attended a GP for pre-test education were less worried than those who attend an educational group session 7 carriers felt less healthy EL EL type EV 3
<strong>KCE</strong> reports vol. 6A Prenatale zorg 225 Study Ref Population Intervention Outcomes Results Comments Stud y Henneman et al., 2001 100 76 participating couples 53 eligible nonparticipating couples Comparison of participants and non-participants on characteristic, attitudes and knowledge of both partners Positive test results, high level of knowledge of CF, high level of education, attending an educational session, and previously heard of CF were predictors of a correct understanding of test results All participants who reported that they were worried, all carriers and 95% of the other participants said they would make the decision to be tested again Couples who participated in the CF carrier screening programme as opposed to those who did not: Perceived lower discomfort from screening, higher benefits from screening and lower impact of the consequences of screening Knew more about CF Perceived their own behaviour to be responsible for their health type CO M EL 3
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