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Curriculum Guide – Substance use - The College of Social Work

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<strong>Curriculum</strong> guide <strong>–</strong> Physical health, dementia and end <strong>of</strong> life care Dr Julie Fish<br />

Terminology: Physical health<br />

Health is a contested concept. <strong>The</strong> International Federation <strong>of</strong> <strong>Social</strong> <strong>Work</strong>’s (2008) policy i asserts that ‘health<br />

is an issue <strong>of</strong> fundamental human rights and social justice’; this guide draws on the UN Declaration <strong>of</strong> Human<br />

Rights and adopts a definition <strong>of</strong> health as a state <strong>of</strong> physical and social wellbeing and not merely the absence<br />

<strong>of</strong> disease or illness.<br />

Place in the curriculum and links to other curriculum areas (including other guides ())<br />

Health is relevant to all areas <strong>of</strong> SW practice. Links should be made to other curriculum areas such as ethics,<br />

human rights, diversity and oppression (), life-course approaches to human development in HGD (), mental<br />

health (), inter-pr<strong>of</strong>essional and inter-agency collaboration (), international social work (), research (),<br />

social model <strong>of</strong> disability () and the health effects <strong>of</strong> neglect, violence and ab<strong>use</strong> on children and adults ().<br />

Key curriculum issues<br />

Health is an interdisciplinary field drawing on sociology, social policy, psychology, ethics and medicine.<br />

<strong>Social</strong> work practice for health is relevant to all service <strong>use</strong>r and carer groups and all work settings and<br />

<strong>of</strong>ten involves inter-pr<strong>of</strong>essional working with health and allied health pr<strong>of</strong>essionals.<br />

A person’s physical health is <strong>of</strong>ten a ca<strong>use</strong> for, or factor in, social work intervention, while the<br />

disadvantaged lives most service <strong>use</strong>rs experience threaten their health.<br />

<strong>Social</strong> inequalities, that is ‘the conditions in which people are born, grow, live, work, and age’ i <strong>of</strong>ten result in<br />

inequalities in health outcomes, including differences in life expectancy and morbidity. Class, disability,<br />

gender, ‘race’, age, religion, sexual orientation and gender identity alongside adverse life experiences,<br />

such as seeking asylum, being a child in public care, domestic ab<strong>use</strong>, drug mis<strong>use</strong> and mental distress, all<br />

affect people’s health chances. <strong>Social</strong> inequalities are amenable to policy action and the commitment to<br />

social justice requires social workers to address social inequalities in their interventions. Students need to<br />

understand that individuals’ health and social needs are interdependent aspects <strong>of</strong> their wellbeing.<br />

Freely accessible medical services are important. Access to healthcare is influenced by age, class, ‘race’,<br />

gender, disability, religion and belief, sexual orientation and gender identity.<br />

Health inequalities do not only affect those living in poverty. <strong>The</strong>re is a gradient in health chances and<br />

access to services across the whole <strong>of</strong> society.<br />

<strong>Social</strong> workers have key roles to play:<br />

promoting good health and preventing illness by securing the necessary social conditions for health,<br />

including promoting social inclusion and preventing isolation;<br />

facilitating access to healthcare (e.g. ensuring looked after children have immunisations);<br />

assisting individuals and families to secure the social, environmental and psychological resources to<br />

manage acute and long term illness.<br />

i International Federation <strong>of</strong> <strong>Social</strong> <strong>Work</strong>ers (2008) Policy on health. ifsw.org/policies/health<br />

ii Marmot, M (2010) Fair society, healthy lives <strong>–</strong> the Marmot Review. Strategic review <strong>of</strong> health inequalities in England <strong>–</strong><br />

post 2010. Retrieved 13 March 2012 from: http://www.marmotreview.org<br />

Produced in partnership to support curriculum<br />

development in initial social work education(2012)<br />

December 2012. ©<strong>The</strong> <strong>College</strong> <strong>of</strong> <strong>Social</strong> <strong>Work</strong> 2012, 2-4 Cockspur Street London SW1Y 5BH


Key content areas<br />

Understanding health and illness e.g.<br />

a) <strong>The</strong> social, economic and psychological consequences <strong>of</strong> illness.<br />

b) Key measures <strong>of</strong> health and social inequalities (e.g. life expectancy; infant mortality rates; differences in<br />

self-assessed health; the Index <strong>of</strong> Multiple Deprivation).<br />

c) <strong>The</strong> relationship between health inequalities and the social determinants <strong>of</strong> health approach iii .<br />

d) Recognising that conditions for health extend beyond individual hereditary, biological and lifestyle<br />

factors to encompass social and community networks, living and working conditions, housing, access to<br />

education and the wider socio-economic/cultural environment (Whitehead and Dahlgren (1992) Key<br />

resources 7).<br />

e) <strong>The</strong> social ca<strong>use</strong>s <strong>of</strong> apparently unhealthy behaviours.<br />

f) <strong>The</strong> interdependence <strong>of</strong> mental and physical health (e.g. the relationship between being lonely and<br />

blood pressure, depression and mortality rates iv ).<br />

g) <strong>The</strong> psychosocial impact <strong>of</strong> changes in health status, (e.g. on sense <strong>of</strong> personal identity).<br />

Pr<strong>of</strong>essional responses and practice issues e.g.<br />

a) Health promotion and prevention (e.g. safeguarding children, encouraging positive development,<br />

ensuring access to education, including health education for looked after children, managing the<br />

transition to adulthood for looked after and disabled young people, preventing accidents and isolation<br />

amongst older people.<br />

b) Inter-pr<strong>of</strong>essional care planning and reablement for people with chronic health conditions including<br />

personalisation and co-production.<br />

c) Addressing specific vulnerabilities (e.g. migration, domestic ab<strong>use</strong>, homelessness) and promoting<br />

emotional resilience across the lifecourse).<br />

Rights, policy and ethics e.g.<br />

a) National and international statements on:<br />

health as a human right<br />

the social determinants <strong>of</strong> health<br />

social work policies on health: the IFSW policy i and the Global Agenda for <strong>Social</strong> <strong>Work</strong> and<br />

<strong>Social</strong> Development v<br />

b) National policies on health services including the Health and <strong>Social</strong> Care Act 2012 (e.g. Health and<br />

Wellbeing Boards and the transfer <strong>of</strong> public health to local government in England; the Marmot Review. ii<br />

c) Intervention on a preventive or statutory basis in circumstances where health and wellbeing may be<br />

impaired, e.g. safeguarding vulnerable adults and children from ab<strong>use</strong>, neglect or exploitation.<br />

d) Ethical choices in illness (e.g. euthanasia).<br />

Key resources<br />

1. Bywaters, P, Cowden, S, McLeod, E, Rose, S and Singh, G (2009) Integrating health inequalities in<br />

social work teaching and learning. <strong>The</strong> Higher Education Academy: SWAP <strong>Guide</strong>.<br />

http://www.swap.ac.uk/docs/digests/swapdigest_6.pdf<br />

iii<br />

Navarro, V (2009) What we mean by social determinants <strong>of</strong> health, International Journal <strong>of</strong> Health Services, 39 (3):<br />

429<strong>–</strong>441.<br />

iv<br />

Windle, K, Francis, J, and Coomber, C (2011) Preventing loneliness and social isolation: interventions and outcomes.<br />

London: <strong>Social</strong> Care Institute for Excellence. SCIE briefing 39.<br />

v<br />

IFSW (International Federation <strong>of</strong> <strong>Social</strong> <strong>Work</strong>ers) (2012) Global agenda for social work and social development: A<br />

commitment for action. Retrieved 2 April 2012 from http://cdn.ifsw.org/assets/globalagenda2012.pdf<br />

Produced in partnership to support curriculum<br />

development in initial social work education(2012)<br />

December 2012. ©<strong>The</strong> <strong>College</strong> <strong>of</strong> <strong>Social</strong> <strong>Work</strong> 2012, 2-4 Cockspur Street London SW1Y 5BH


2. SCIE resources including reablement, outcomes-foc<strong>use</strong>d services for older people, social care needs<br />

<strong>of</strong> children with complex health care needs and their families and promoting the quality <strong>of</strong> life <strong>of</strong> looked<br />

after children. http://www.scie.org.uk/publications/index.asp<br />

3. Bywaters, P (2009). Tackling inequalities in health: A global challenge for social work, British Journal <strong>of</strong><br />

<strong>Social</strong> <strong>Work</strong>, vol. 39, no. 2, pp. 353<strong>–</strong>367.<br />

4. Gehlert, S and Browne, T (2012) Handbook <strong>of</strong> health social work. New Jersey: Wiley.<br />

5. Larkin, M (2011) <strong>Social</strong> aspects <strong>of</strong> health, illness and healthcare. Milton Keynes: Open University<br />

Press.<br />

6. Wilkinson, R and Pickett, K (2009) <strong>The</strong> spirit level <strong>–</strong> why more equal societies almost always do better.<br />

Harmondsworth: Penguin.<br />

7. Whitehead, M and Dahlgren, G (1992) Concepts and principles for tackling inequalities in health.<br />

Copenhagen: World Health Organisation.<br />

Terminology: Dementia<br />

Dementia describes a collection <strong>of</strong> symptoms which are progressive and incurable including memory loss, problems<br />

with reasoning and communication skills and a reduced ability to carry out daily activities, such as washing, dressing,<br />

cooking and caring for the self.<br />

Place in the curriculum this topic might feature, including links to other guides ()<br />

<strong>Work</strong> with adults and older people, lifecourse approaches/Human growth and development (), mental health<br />

() and inter-pr<strong>of</strong>essional and inter-agency collaboration ()<br />

Key curriculum issues<br />

a) <strong>The</strong> national dementia strategy, Living Well with Dementia 2009.<br />

b) <strong>The</strong> diverse incidence <strong>of</strong> dementia, including among younger adults, people with a learning disability<br />

and people from BME backgrounds.<br />

c) Stigma may result in delay in accessing services and low priority from pr<strong>of</strong>essionals. Lack <strong>of</strong> support<br />

and treatment leads to inactivity and consequently to poorer physical health (DH (2009) Key resources<br />

4).<br />

d) ‘Seeing the individual’.<br />

Key content areas<br />

Understanding dementia and developing good communication skills e.g.<br />

a) People with dementia lack the opportunity to talk and express their feelings about the quality <strong>of</strong> their<br />

own life and services they receive. Factors in communication include the type <strong>of</strong> dementia, the length <strong>of</strong><br />

time they have been living with the condition, the effects <strong>of</strong> previous life history and personality, and the<br />

current caring environment.<br />

b) A number <strong>of</strong> interventions have been developed to work directly with people with dementia and also<br />

indirectly with family and pr<strong>of</strong>essional carers and health/social care pr<strong>of</strong>essionals to improve<br />

communication and quality <strong>of</strong> life (QOL) for individuals with dementia and their carers.<br />

c) Reminiscence-based activities, if approached sensitively can be an effective therapeutic intervention.<br />

d) Understand the <strong>use</strong> <strong>of</strong> assessment tools (for cognition, behaviour, activity limitation and QOL).<br />

Quality <strong>of</strong> life(QOL) issues e.g.<br />

a) Good nutritional care for people with dementia depends on knowing some basic information: what they<br />

like to eat and drink, what they do not like, and what they find difficult to eat.<br />

b) Effective communication can improve the QOL <strong>of</strong> a person with dementia (e.g.<br />

through Talking Mats).<br />

Produced in partnership to support curriculum<br />

development in initial social work education(2012)<br />

December 2012. ©<strong>The</strong> <strong>College</strong> <strong>of</strong> <strong>Social</strong> <strong>Work</strong> 2012, 2-4 Cockspur Street London SW1Y 5BH


c) Promote the richness <strong>of</strong> social interactions and relationships and continued engagement in activities.<br />

Pr<strong>of</strong>essional responses e.g.<br />

a) Aiding communication with people with dementia<br />

http://www.scie.org.uk/publications/briefings/briefing03/index.asp (SCIE, 2004).<br />

b) <strong>Work</strong> with Mental Capacity Act implementation networks (www.mca2005.co.uk/pdf_files/impnet.pdf).<br />

Key resources<br />

1. Assessing the mental health needs <strong>of</strong> older people (Nichols, A. 2006).<br />

http://www.scie.org.uk/publications/practiceguides/practiceguide02/index<br />

2. <strong>Work</strong> with Mental Capacity Act implementation networks<br />

(www.mca2005.co.uk/pdf_files/impnet.pdf)<br />

3. Department <strong>of</strong> Health best practice tool (www.dh.gov.uk/publications) in dementia care.<br />

4. DH (2009) Living well with dementia 2009. Retrieved from:<br />

http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalass<br />

et/dh_094051.pdf<br />

Terminology: End <strong>of</strong> life care<br />

End <strong>of</strong> life care (EOLC) refers to the care people receive in the final period <strong>of</strong> their life and includes care for the<br />

terminally ill and those with a condition that is advanced and incurable. Palliative care is relevant for people<br />

throughout the lifecourse.<br />

Place in the curriculum this topic might feature, including links to other guides ()<br />

<strong>Work</strong> with children, adults and older people, lifecourse approaches/HGD (), palliative care, and interpr<strong>of</strong>essional<br />

and inter-agency collaboration ().<br />

Key curriculum issues<br />

<strong>Social</strong> workers may take a number <strong>of</strong> roles to support individuals through the process <strong>of</strong> dying, including<br />

providing support for family and carers during a person’s illness and following bereavement, initiating<br />

discussions about preferences for end <strong>of</strong> life care, care planning and coordinating services between home,<br />

hospital, care home and hospice; addressing financial/welfare rights issues. Educators can help students to:<br />

a) reflect on their own attitudes to death and dying and develop their emotional resilience in working in EOLC;<br />

b) develop awareness <strong>of</strong> cultural, spiritual or humanist needs at end <strong>of</strong> life;<br />

c) initiate discussions/recognise triggers for discussions about death and dying;<br />

d) explore a range <strong>of</strong> interventions: one-to-one, self-help support groups, online contacts.<br />

Key content areas<br />

<strong>The</strong> EOLC strategy was introduced to promote high quality care for all adults at the end <strong>of</strong> life. It aims to<br />

provide the conditions necessary for a ‘good death’ which include being treated with dignity and respect, being<br />

without pain and other symptoms, being in familiar surroundings and in the company <strong>of</strong> close family/friends.<br />

a) <strong>The</strong> framework for social care identifies six steps in the EOLC pathway (DH, 2010):<br />

o discussions as the end <strong>of</strong> life approaches<br />

o agreed care plan and regular review <strong>of</strong> needs and preferences<br />

o coordination <strong>of</strong> care e.g. rapid response services<br />

o delivery <strong>of</strong> high quality services in different settings and for diverse groups such as LGBT; BME<br />

o care in the last days <strong>of</strong> life and identification <strong>of</strong> dying phase<br />

Produced in partnership to support curriculum<br />

development in initial social work education(2012)<br />

December 2012. ©<strong>The</strong> <strong>College</strong> <strong>of</strong> <strong>Social</strong> <strong>Work</strong> 2012, 2-4 Cockspur Street London SW1Y 5BH


o care after death: practical issues e.g. registering the death; bereavement support for carer and family.<br />

b) Enabling people to die in their own ‘home’ (including a care home).<br />

c) Anticipatory care planning.<br />

d) Crisis management.<br />

Key resources<br />

1. National End <strong>of</strong> Life Care Programme (2010) Supporting people to live and die well: A framework for<br />

social care at the end <strong>of</strong> life.<br />

http://www.end<strong>of</strong>lifecareforadults.nhs.uk/assets/downloads/<strong>Social</strong>_Care_Framework.pdf<br />

2. SCIE (2012) End <strong>of</strong> life care for people with dementia living in care homes<br />

http://www.scie.org.uk/publications/ataglance/ataglance59.pdf<br />

3. NHS (2012) <strong>The</strong> route to success in end <strong>of</strong> life care <strong>–</strong> achieving quality for lesbian, gay, bisexual and<br />

transgender people. National End <strong>of</strong> Life Care Programme<br />

http://www.end<strong>of</strong>lifecareforadults.nhs.uk/publications/rts-lgbt<br />

4. Holloway, M (2007) Negotiating death in contemporary health and social care. Bristol: Policy Press.<br />

Produced in partnership to support curriculum<br />

development in initial social work education(2012)<br />

December 2012. ©<strong>The</strong> <strong>College</strong> <strong>of</strong> <strong>Social</strong> <strong>Work</strong> 2012, 2-4 Cockspur Street London SW1Y 5BH

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