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we'll <strong>make</strong> it<br />
Author : Pierre GENTON<br />
Artist : Vincent RINGLER
Pierre Genton is a neurologist and epileptologist from Marseille, France. He is the author of several scientific articles and <strong>book</strong>s<br />
on epilepsy and, with the association “Santé Sud” and with <strong>Sanofi</strong> Access to Medicines, he is involved in the training of doctors<br />
on epilepsy in developing countries.<br />
Vincent Ringler is a painter with numerous interests. His artwork has been the subject of several exhibitions. He has focused all<br />
his energy and talent on this comic strip.
THIS IS a story that is almost true. it takes place in the great<br />
african continent where there are<br />
large cities, small villages and<br />
many children and teenagers<br />
full of life, energy and hope.<br />
THIS IS THE TOWN<br />
WHERE I LIVE!<br />
but i like to go to<br />
the village to my<br />
grandmother’s.<br />
let’s turn<br />
the page...
Like EVERY YEAR, LAMINE sPends his holidays in the village. He is glad to get away from the city, his school, the noise... and to see his grandma<br />
and his friends.<br />
2
You could say hello !!<br />
We have a surprise<br />
for you.<br />
3
we’ll show you<br />
our new pitch.<br />
4<br />
First I must leave my<br />
luggage at<br />
grandma’s.<br />
HARRY<br />
CENTRAL BACK<br />
JULES<br />
CENTER<br />
you can go, i’ll<br />
take care of it.<br />
SEYDOU<br />
CENTER FORWARD<br />
DANIEL<br />
REFEREE<br />
JOSEPH<br />
RIGHT WING<br />
SEE YOU<br />
TONIGHT, GRAN.<br />
YUSUF<br />
GOALKEEPER
yeah right, dream<br />
on FATOU!<br />
wow this pitch is<br />
really great !<br />
but not all children join in the fun.<br />
5
6<br />
shall we start or what?<br />
who’s that?<br />
that’s keifa.<br />
he’s sick, we mustn’t<br />
go near him.
THE DAYS fly by when<br />
you are having fun.<br />
It’s time to go home.<br />
why can’t I play<br />
soccer with the<br />
others?<br />
you need to brush up<br />
your skills guys. i’ll<br />
coach you<br />
tomorrow.<br />
because you might fall<br />
and hurt yourself.<br />
Yes MuM.<br />
come, let’s go home<br />
and eat.<br />
7
8<br />
He has fits.<br />
one day he fell into a<br />
fire. That’s why he has<br />
burns on his body.<br />
gran, what’s<br />
wrong with<br />
keifa?<br />
there are evil<br />
spirits in his head. It’s a family curse. you mustn’t go near<br />
him because when he falls he drools and you might catch it. his<br />
poor mother, we try to help her, we give some food. Until this year he<br />
practically never left the house.<br />
i didn’t know there<br />
was such a thing! we<br />
don’t have that in<br />
the city.
you know, KEIFA isn’t the only one.<br />
there are two older ones with the<br />
same problem in the village<br />
across the river.<br />
but we mustn’t<br />
talk about this. mind you, it could<br />
happen to you too.<br />
nice one<br />
FATOU, you got<br />
me there!!<br />
right, i’m off to bed!<br />
bye everyone, see you<br />
tomorrow.<br />
9
the holidays are over, lamine is back home in the city with his parents. It’s time to go back to school.<br />
10
HEY LAMINE!<br />
let’s go together ? how were your<br />
holidays, lamine?<br />
take your <strong>book</strong> and go to<br />
exercise on page 18. Hurry<br />
up the day is<br />
nearly over.<br />
the best ever,<br />
by far!<br />
11
12<br />
are you with<br />
us now?<br />
you were making<br />
a funny face. ... what did you say?
you two over<br />
there, stop<br />
chatting!!<br />
LAMINE, what<br />
did i just<br />
say? i don’t<br />
remeMber, ma’am.<br />
MuM.. something<br />
weird happened<br />
to me.<br />
I had a sort of<br />
blackout, i couldn’t<br />
hear anything.<br />
i won’t say<br />
anything this time. you<br />
may go now, see you<br />
tomorrow.<br />
it’s nothing, dear.<br />
you’re probably tired.<br />
Go get a snack<br />
13
14<br />
your platE<br />
please.<br />
MMM...<br />
smells yummy!
thank you for coming.<br />
we are very worried we<br />
don’t know what<br />
to do.<br />
go get the nurse<br />
next door. she should be<br />
home from work.<br />
move aside please.<br />
i want to examine<br />
Lamine.<br />
why are you<br />
looking at me<br />
like that?<br />
it’s like a blackout.<br />
it happened already at<br />
school today.<br />
in the village there was<br />
a boy who also was having<br />
blackouts.<br />
don’t talk<br />
nonsense.<br />
it’s not his blood<br />
pressure, you must<br />
take him to a brain<br />
specialist.<br />
15
Lamine has stopped going to school. His family is worried. a few days later he has an appointment in the hospital.<br />
16<br />
is it your first<br />
time here?<br />
yes and you?
I come every year for<br />
tests. they look after me<br />
because i’ve had fits.<br />
Mum i’m fed up<br />
waiting.<br />
i’m alright now. i take<br />
pills, that’s all. yeah but me i’m<br />
fine, there’s nothing<br />
wrong with me.<br />
when i’m older i’m<br />
going to be a doctor,<br />
and you?<br />
Me too lamine me too.<br />
let’s be patient for a<br />
little longer.<br />
I don’t know<br />
yet...<br />
FOOTBALL player,<br />
or prime minister...<br />
we’ll see.<br />
come in please.<br />
17
LAMINE has seizures. these are probably<br />
short epileptic seizures that <strong>make</strong> him lose<br />
consciousness for a few seconds. we must<br />
confirm the diagnosis with a test called an<br />
18<br />
ELECTROENCePHALOGRAM.<br />
i’m DOCToR GAMINA. sit<br />
down and tell me what’s<br />
going on.<br />
Lamine’s mother tells the doctor<br />
what has been happening.<br />
the doctor asks many questions.<br />
whether there are other cases in<br />
the family, whether lamine is doing<br />
well at school,...<br />
this test, the EEG; records the<br />
electrical activity of the brain and<br />
can generally confirm that<br />
the person has epilepsy.<br />
doctor LEOPOLD SOUABI<br />
will EXAMINE you.<br />
right young man the<br />
nurse will take you in.<br />
the neurological<br />
examination is<br />
normal.<br />
... no PROBLEM...
LAMINE, there’s no reason<br />
to be scared and NO, we’re<br />
not going home yet !<br />
don’t move and listen<br />
to what you’re told.<br />
it’s here, see. it’s a little<br />
bit scary but it isn’t<br />
painful.<br />
open your<br />
eyes.<br />
close your<br />
eyes.<br />
breathe<br />
deeply.<br />
19
20<br />
look!!<br />
Mum, i had another<br />
one, didn’t I?<br />
what’s your<br />
name?<br />
it’s<br />
nothing,<br />
dear, i’m<br />
here.<br />
it’s done!!<br />
go back to the doctor now.<br />
that’s exactly what he<br />
did at home !!<br />
right young man, you had<br />
an absence during the<br />
recording.<br />
it’s an<br />
absence, ma’am, you can<br />
see it clearly on the<br />
screen.
an ABSENCE is a SIMPLE<br />
loss of CONTACT. it is caused by an<br />
electrical discharge in the brain.<br />
it isn’t fatal and<br />
it isn’t contagious.<br />
now we two have to<br />
talk about your everyday<br />
life.<br />
i can’t play soccer<br />
any more, can I?<br />
Of course you can. you<br />
are going to lead a<br />
completely normal life.<br />
Make sure that you work<br />
hard at school.<br />
but my son isn’t sick! he’s<br />
intelligent.<br />
we never had that in the family.<br />
you will study<br />
hard and get a<br />
good job.<br />
it has nothing to do with<br />
being intelligent or not.<br />
epilepsy is like any other<br />
disease and it is<br />
very treatabale.<br />
actually, i have some<br />
good news...<br />
and some<br />
bad news!!<br />
21
first the good<br />
news : you don’t have<br />
anything serious and<br />
there is no need<br />
for other tests.<br />
22<br />
the other news : you have to take some<br />
medicine, one or two tablets every day.<br />
you’ll have to take this treatment for a<br />
long time... for several<br />
years at least.<br />
hello dear we’re coming<br />
home... yes we feel better.<br />
everthing is going<br />
to be ok.<br />
i feel better now.<br />
lamine will take the<br />
treatment and we won’t<br />
have to worry anymore.<br />
i promise mum<br />
i won’t cause<br />
trouble anymore.<br />
i hope the doctor was<br />
telling the truth and<br />
lamine will be alright.
After these difficult<br />
times life gets back to normal<br />
and the weeks go by.<br />
Lamine takes his medication<br />
and goes back to school.<br />
so you’re better<br />
now you’ve been to<br />
the hospital?<br />
yep, i just have to<br />
take my tabets every<br />
day, that’s all.<br />
you see this pupil<br />
over there? I have the<br />
impression that he had<br />
epileptic attacks but<br />
now he’s fine, he seems<br />
to be completely<br />
normal.<br />
23
to tell the truth, i’ve<br />
never been totAlly happy<br />
about this treatment.<br />
24<br />
at the market, yesterday,<br />
a woman told me that we<br />
couldn’t leave Lamine like<br />
this, that we have to chase<br />
away the evil spirits.<br />
but lamine is doing<br />
rather well, isn’t he?<br />
what are you<br />
doing in<br />
town ?<br />
I’m here because i am a<br />
friend of the family. I’m<br />
telling you, we have to<br />
immediately stop<br />
poisoning lamine<br />
with these<br />
drugs.<br />
that’s not the point.<br />
we must do as<br />
people say.
it’s this necklace<br />
that you need!<br />
luckily, I have<br />
everything we<br />
need here.<br />
but everything was<br />
rather fine with the<br />
medicines<br />
come on<br />
son!<br />
now you’ll be<br />
well protected!<br />
the family puts its trust in the necklace and lamine<br />
stops taking his medication.<br />
25
a few days later, on the way to school .<br />
26
find his parents<br />
and get them<br />
here<br />
27
at the end of<br />
the corridor,<br />
room 12.<br />
28<br />
WHERE IS<br />
MY SON<br />
LAMINE?<br />
your son had an epileptic<br />
seizure. he must see<br />
a specialist.<br />
doctor gamina is at a<br />
conference. I called doctor<br />
souabi, his assistant. he’ll<br />
see you in the<br />
EEG room.<br />
doctor they’re here at<br />
last. we can start<br />
the test.<br />
are you his mother ?<br />
come in please.
see, doctor, he<br />
must have had quite<br />
a seizure!!<br />
so it’s agreed: you take your<br />
medicines and we’ll see each<br />
other in a year’s time if<br />
everything is<br />
all right.<br />
ok!!<br />
you know, you are very lucky,<br />
there are lots of children<br />
with epilepsy who can’t<br />
get treatment.<br />
we weren’t told that he could<br />
have seizures like that. and we<br />
had to chase away<br />
the evil spirits.<br />
you saw that lamine was doing<br />
well with the treatment, what in<br />
heaven made you stop it?<br />
you are not the first ones unfortunately.<br />
he has to take the treatment and should<br />
never stop it without medical advice.<br />
yes... like<br />
keifa !<br />
29
the months go by, lamine takes his treatment and is doing great. he takes the early morning bus to the village for his holidays, with his mum.<br />
30
we have a game<br />
against the big<br />
village in<br />
two weeks.<br />
well, we’ll<br />
show them !<br />
my<br />
darling<br />
grandson!<br />
... and my girl,<br />
how wonderful!<br />
you know, mother,<br />
lamine’s problems<br />
are over.<br />
I was so worried.<br />
you know that<br />
there’s a little<br />
boy called<br />
keifa here who<br />
has the same<br />
problem.<br />
so how is your<br />
soccer team<br />
going on ?<br />
31
LAMINE TOLD ME. I’D<br />
LIKE TO MEET HIM.<br />
32<br />
I THINK THAT YOUR SON HAS<br />
SOME HEALTH PROBLEMS.<br />
LAMINE, GO PLAY WITH YOUR<br />
FRIENDS. TAKE KEIFA<br />
WITH YOU.<br />
HELLO I’M<br />
LAmine’S<br />
MOTHER.<br />
YOU SEE, MY SON’S EPILEPSY<br />
IS TREATABLE AND HE’S<br />
FINE NOW.
my keifa hasn’t<br />
been lucky.<br />
the other children<br />
were not allowed<br />
to play with him.<br />
when he was a baby, he<br />
had a high fever and<br />
had convulsions for<br />
several days.<br />
I thought i was going<br />
to lose him.<br />
he’s cursed. there’s no prayer or potion that can help him.<br />
he has to get<br />
treatment. let’s go<br />
and see the village<br />
leader.<br />
he couldn’t go to school<br />
because he kept having<br />
fits and falling.<br />
33
the community doctor’s practice is in the big village, more<br />
than an hour away by foot.<br />
34<br />
to cure or not to cure<br />
that is the question!<br />
that’s the respect that made<br />
calamity of his short life.<br />
why didn’t you bring keifa<br />
to me earlier, he’s<br />
probably just having<br />
epileptic seizures.<br />
for you there is a doctor<br />
together you go hither<br />
you will seek his advice<br />
and we’ll help pay the price..
he has to go<br />
into town for<br />
tests. then i can<br />
treat him.<br />
doctor mehdik, i don’t have any<br />
money and i’ve never been<br />
into town.<br />
don’t be scared,<br />
they won’t<br />
hurt you.<br />
the village leader said<br />
that he’d help you and i’ll<br />
come with you.<br />
can i help you with<br />
the match?<br />
we’ll wait<br />
for you!<br />
35
the day after...<br />
36<br />
so now you know<br />
everything<br />
doctor.<br />
we’ll get<br />
keifa tested<br />
immediately.
KEIFA has an EEG but he needs<br />
another test :<br />
a brain scan.<br />
indeed!!<br />
KEIFA has a quite severe<br />
form of epilepsy with a brain<br />
injury that was caused by<br />
the fever and the<br />
convulsions he had<br />
as a baby.<br />
he’ll get better, even if his seizures<br />
don’t disappear completely.<br />
Dr mehdick made the right<br />
diagnosis.<br />
leopold, can<br />
you come and look<br />
at the CT scan<br />
pictures?<br />
...And he’ll give<br />
you the medicine<br />
you need.<br />
37
Keifa’s visit to the<br />
town was short. he’s<br />
back at the village.<br />
with the medicine, he<br />
has fewer seizures.<br />
the others boys know<br />
what happened, lamine<br />
explained it all.<br />
38<br />
we’re going to<br />
beat them<br />
hands down!<br />
for tomorrow, i propose that<br />
keifa be in charge of<br />
the drinks.<br />
ok, guys, training is<br />
over.<br />
we’re ready!<br />
I agree, now that we know<br />
what’s wrong with him. he’s<br />
doing better and we can talk<br />
to him.<br />
i came to bring you<br />
some water.
it’s the big day. the whole village is at the game and waiting for the kick-off.<br />
so keifa,<br />
confident?<br />
39
Lamine and Keifa have epilepsy<br />
Two of our boys have this bizarre disease called epilepsy: this word means surprise, and, indeed, persons with<br />
epilepsy have unexpected manifestations called seizures, that they cannot control.<br />
Lamine does well in school, is ambitious and wants to have a successful life. Seizures happened while<br />
everything was going well. He ends up taking his medication and the seizures disappear. He is the leader<br />
of his pack of friends and has a gift for soccer. His disease does not<br />
change this.<br />
Keifa, on the contrary, is not like any other boy: he was<br />
severely sick as a baby, with convulsions that left a trace, a<br />
scar in his brain. Later he had problems with learning and had<br />
seizures that <strong>make</strong> him fall and hurt himself. He did not enjoy<br />
a normal life like other boys of his age. But when he finally gets<br />
medical attention and receives medication, he becomes a normal<br />
boy again, even though he still has some attacks. Before that, Keifa<br />
had been considered as «possessed», «cursed» and even contagious.<br />
Of course, epilepsy is neither a contagious disease nor a curse. The condition was explained to the other boys,<br />
and then they accepted Keifa among them. He took part in the big soccer match. There are indeed two important<br />
things : the first is that one must seek (and have access to) medical care ; the second is that «the others», family,<br />
friends, fellow pupils, teachers, colleagues, neighbours… must understand what epilepsy really is.
Epilepsy, what is it ?<br />
Epilepsy is a condition characterized by the occurrence of epileptic seizures. More than one person in 100 has<br />
epilepsy in developing countries.<br />
Most do not have other problems besides epilepsy, but some do, such as psychological difficulties.<br />
Epileptic seizures are varied:<br />
The «big seizure», also called Grand Mal seizure, is the most dramatic one: there is first a stiffening of the whole body, then a fall,<br />
followed by jerks of all four limbs, then the person sleeps, sometimes for several hours. Lamine had this type of seizure when he<br />
stopped his medication.<br />
The least impressive seizure is a simple blackout, called an «absence», that lasts only for a few seconds. Lamine had absences,<br />
and the one recorded in the hospital allowed his doctors to <strong>make</strong> a precise diagnosis and to choose the right medication.<br />
Between these two extremes, there are more or less impressive, more or less dangerous seizures that affect only a part of the<br />
brain : they are called partial or focal seizures. Keifa probably had this type of seizures, which were due to a scar in his brain.<br />
How do doctors <strong>make</strong> a diagnosis of epilepsy?<br />
In order to be sure that a person has epileptic seizures, the doctor will gather a maximum of<br />
information. The best solution is to witness a seizure directly, or to see one filmed by the patient’s<br />
family (for instance on a cellular phone). The doctor will ask many questions and try to find an<br />
explanation, a cause for the epilepsy. In many cases, like for Lamine, there is no precise cause.
Some procedures may be necessary:<br />
The electroencephalogram (in short: EEG), which records the electrical activity of the brain. This<br />
procedure is painless and without danger!<br />
Other procedures are necessary in order to show whether there is a permanent lesion in the brain:<br />
the CT scan or the magnetic resonance imaging (MRI). These procedures use impressive<br />
machines, but are not painful; the patient has to remain totally quiet for about 15 minutes.<br />
Epilepsy is not a curse, epilepsy can be cured<br />
Medication can totally or partially prevent the occurrence of seizures. More than half<br />
of all epilepsies are easily controlled and seizures disappear (as for Lamine). In other<br />
cases, seizures become less frequent without stopping completely. More rarely,<br />
seizures do not respond to medication, and other means will be used to help the<br />
patients.<br />
In all cases, the treatment of epilepsy must be taken regularly, and for a long time.<br />
In the best cases, treatment can be stopped after a few years and seizures will not<br />
recur. In other cases, the seizures are simply « suspended », masked by the<br />
medication, and recur when the medication is stopped.
In Africa, as in the rest of the world, epilepsy is a public health issue. This is the reason<br />
why <strong>Sanofi</strong> Access to Medicines has supported the creation of this educational comic <strong>book</strong>.<br />
Our objective is to raise awareness about epilepsy, to fight misconceptions which are often<br />
associated with it, and to improve access to treatment which in most cases can prevent seizures.<br />
This <strong>book</strong> talks about Lamine, Keifa, their families, and the doctors who have treated them,<br />
so that Lamine and Keifa can keep playing football and going to school like every other kid.<br />
Of course this story is a fiction. Everything is not exactly as in real life, however all information<br />
regarding epilepsy is accurate. Epilepsy is a disease like any other disease, a disease which can<br />
be treated.<br />
We hope that the story of Lamine and Keifa will help fight the stigma surrounding<br />
epilepsy, and therefore improve access to proper care for everyone needing treatment.<br />
ACM.CNS.11.11.04