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<strong>How</strong> <strong>to</strong> <strong>support</strong> <strong>people</strong><br />

<strong>with</strong><br />

<strong>repetitive</strong> <strong>and</strong> <strong>“stuck”</strong> behavior<br />

Nathan E. Ory, M.A.<br />

Ful Lives Conference<br />

24 April 2009<br />

Anchorage, Alaska


Questions <strong>to</strong> ask about<br />

Persistent, <strong>repetitive</strong> behavior<br />

P What is just something <strong>to</strong> do?<br />

< Time-filling activity. Sensory self-stimulation.<br />

P What is behavioral?<br />

< Learned habits <strong>and</strong> rituals. Somehow functional.<br />

P What is neurological?<br />

< Brain-based. Person may not be able <strong>to</strong> selfinitiate<br />

a shift <strong>of</strong> attention, or start/s<strong>to</strong>p a<br />

behavioral sequence.<br />

P What is psychiatric?<br />

< Obsessive-compulsive, anxiety controlling.


Different functions <strong>of</strong><br />

persistent, <strong>repetitive</strong> behavior<br />

P Overcoming insecurity/uncertainty through ritual.<br />

< Comforted by familiar, well rehearsed rituals.<br />

<<br />

<<br />

<<br />

Repeatedly asks questions till answered!<br />

Emotional-behavioral.<br />

Exaggerated by anxiety.


Different functions <strong>of</strong><br />

persistent, <strong>repetitive</strong> behavior<br />

P Overcoming lack <strong>of</strong> internal boundaries.<br />

< Constant “limit testing,” looking for predictability.<br />

<<br />

<<br />

<<br />

With clear, external limits, no testing.<br />

Emotional-behavioral.<br />

Exaggerated by anxiety.


Different functions <strong>of</strong><br />

Persistent, <strong>repetitive</strong> behavior<br />

P Obsessive thoughts - compulsive behavior<br />

< Can’t move on, even <strong>with</strong> prompts.<br />

<<br />

<<br />

<<br />

<<br />

<<br />

Resists interruption.<br />

Stuck in thought-action.<br />

Overwhelmed by thoughts that produce anxiety.<br />

Psychiatric.<br />

Exaggerated by anxiety.


Different functions <strong>of</strong><br />

persistent, <strong>repetitive</strong> behavior<br />

P M aintaining personal continuity.<br />

< Linking our actions in space <strong>and</strong> time.<br />

P O vercoming “discontinuity”, inability <strong>to</strong> sequence.<br />

< Repeating acts keep one’s place in time <strong>and</strong> space.<br />

<<br />

<<br />

<<br />

With external structure, moves on.<br />

Cognitive-neurological-behavioral.<br />

Exaggerated by anxiety


Functional-”continuity” behaviors<br />

Self-anchoring rituals<br />

P- sensory-tactile:<br />

< smelling, <strong>to</strong>uching, licking, spitting, masturbating,<br />

eating, self-injurious acts (e.g., scratching.)<br />

P- kinesthetic:<br />

< rocking, flapping, jumping<br />

P-<br />

<<br />

visual-spatial:<br />

ordering objects, alphabatizing, making lists,<br />

cataloguing, word search


Functional “continuity” behaviors<br />

Self-anchoring rituals<br />

P - social:<br />

< attacking wrong doers,<br />

– keeping the "rules."<br />

P verbal:<br />

< <strong>repetitive</strong> speech, sing-song,<br />

–<br />

–<br />

echoing, vocalizing<br />

asking questions.


Functional “continuity” behaviors<br />

Self-anchoring rituals<br />

P - cognitive/mental:<br />

< - replays <strong>of</strong> videotapes, rereading s<strong>to</strong>ries, copying<br />

“ old” schoolwork.<br />

< - verbal rehearsal <strong>of</strong> the activity <strong>of</strong> the day<br />

< - verbal rehearsal <strong>of</strong> the "rules",<br />

< - single minded pursuit <strong>of</strong> questions <strong>to</strong> end.<br />

P - emotional:<br />

< - mental rehearsal <strong>of</strong> confusions-wrongs<br />

< -"obsessive"<br />

talking about anxiety evoking <strong>to</strong>pics<br />

< -<br />

just for fun


Behavioral characteristics <strong>of</strong><br />

Perseverative Responding<br />

Behaviors are persistent, <strong>and</strong> <strong>repetitive</strong>, but<br />

reflecting neurological disorder, <strong>and</strong>/or <strong>with</strong>out<br />

any apparent functional value.<br />

"Perseverative responding" reflects deficits in<br />

a person's ability <strong>to</strong> self-initiate, self-organize,<br />

self-sequence <strong>and</strong> regulate his/her own<br />

actions <strong>and</strong> thoughts.


Different functions <strong>of</strong><br />

perseverative behavior<br />

NONE<br />

P Actions have no “functional” value.<br />

< Person is <strong>“stuck”</strong> in action, thought, sensation.<br />

<<br />

<<br />

<<br />

With prompt, can move on. Cue dependent <strong>to</strong> shift.<br />

Neurological.<br />

Exaggerated by anxiety.


Some diagnostic categories showing<br />

perseverative responding<br />

P Developmental brain dysfunctions<br />

< Fetal alcohol spectrum disorders<br />

< Anoxia at birth, cerebral palsy, seizures, tuberous<br />

sclerosis, arrested hydrocephaly<br />

P Acquired Traumatic Brain Injury<br />

P Genetic Syndromes:<br />

< Fragile X, Prader-Willie, Williams Syndrome<br />

P Pervasive Developmental Disorders<br />

< Autistic spectrum disorders<br />

P Dementias<br />

P<br />

Psychiatric disorders


Indica<strong>to</strong>rs that<br />

persistent, <strong>repetitive</strong> behaviors are<br />

Perseverative responding<br />

PPerson appears <strong>to</strong> have no self-control over<br />

<strong>repetitive</strong> behaviors. Person gets "stuck in a<br />

rut" <strong>and</strong> can not shift activity on his own<br />

initiative.<br />

PPerson is dependent upon a caregiver <strong>to</strong><br />

assist him <strong>to</strong> mediate his experiences.<br />

PSomething reliably “works” <strong>to</strong> bring <strong>repetitive</strong><br />

behavior <strong>to</strong> an abrupt halt.<br />

< “S<strong>to</strong>ps on a dime” “Switches channels”


Some methods for assisting <strong>people</strong><br />

<strong>to</strong> transition out <strong>of</strong> perseverative actions<br />

PDirect or redirect <strong>with</strong> a rule<br />

PPre-correct<br />

PBring<br />

in a new face <strong>to</strong> break the pattern<br />

PRescue<br />

methods<br />

< Use humour<br />

<<br />

<<br />

Displace <strong>to</strong> own sensory-mo<strong>to</strong>r ritual<br />

Take <strong>of</strong>f the emotional hook<br />

PDisappear<br />

< Out <strong>of</strong> sight = out <strong>of</strong> mind<br />

P“Read their mind”


P Sensory perseveration<br />

P Mo<strong>to</strong>r perseveration<br />

Behavioral examples <strong>of</strong><br />

perseverative behavior<br />

– Persistent movement patterns<br />

P Verbal perseveration<br />

P Mental perseveration<br />

– Single-track mind, mental inflexibility<br />

– Perseverative thought<br />

– Once in mind = impulsive action.


Behavioral examples <strong>of</strong><br />

perseverative behavior<br />

PEmotional<br />

perseveration<br />

< Leading <strong>to</strong> mo<strong>to</strong>r accelleration<br />

<<br />

Leading <strong>to</strong> mo<strong>to</strong>r inhibition


Emotional perseveration <strong>and</strong> disinhibition<br />

Person can become <strong>“stuck”</strong><br />

in any <strong>of</strong> these<br />

sensory-emotional reactions.<br />

PEmotional mirror--magnifying glass<br />

PEmotional<br />

radar: Imprinting on prior emotion<br />

PLimited<br />

self-modulation <strong>of</strong> emotion


Emotional perseveration <strong>and</strong> disinhibition<br />

Person can become <strong>“stuck”</strong> in<br />

sensory-emotional reactions.<br />

Limited self-modulation <strong>of</strong> emotion


Perseverative disorder in<br />

"starting" actions:<br />

P Person knows what <strong>to</strong> do, but is dependent<br />

upon step-by-step-prompting.<br />

P<br />

Person knows what <strong>to</strong> do, but is dependent<br />

upon prompt <strong>to</strong> initiate act.<br />

– C an't tell what <strong>to</strong> do now<br />

– Can't tell what's most important<br />

– C an't tell (what <strong>to</strong> do next)<br />

– Can’t tell when <strong>to</strong> start


Perseverative disorder in<br />

"s<strong>to</strong>pping" actions:<br />

P - Can not s<strong>to</strong>p perseveration until directed.<br />

P -<br />

Can not s<strong>to</strong>p perseveration until completed.<br />

P - "Captured" by perseveration, can not s<strong>to</strong>p<br />

until "rescued".


Perseverative disorder in<br />

"shifting" actions:<br />

P -"Stuck", but responds <strong>to</strong> "come", "do", "start" next<br />

action.<br />

– Reactive <strong>to</strong> "no", "don't", "s<strong>to</strong>p"<br />

P -"Stuck", but able <strong>to</strong> shift when "completed" action.<br />

– Reactive <strong>to</strong> interruption before "all done"<br />

P -"Trapped" in escalating emotional arousal.<br />

– "Rescue" <strong>with</strong> "prop", "rule", <strong>and</strong> "role"<br />

P -"Trapped" in sensory state.<br />

– "Rescue" by causing <strong>to</strong> get "cognitive"<br />

– "Rescue" by "capturing" <strong>with</strong> alternate stimulus


Structured methods for <strong>support</strong>ing individuals<br />

who show<br />

perseverative responding<br />

P Prevent<br />

perseveration by protecting individual from<br />

situations that will predictably lead <strong>to</strong> them<br />

becoming <strong>“stuck”</strong>.<br />

P Give prompts <strong>to</strong> transition person in<strong>to</strong> what comes<br />

“next”<br />

< Body language (specific gestures)<br />

Verbal direction (specific phrases)<br />

<<br />

<<br />

<<br />

<<br />

Numbered lists<br />

Picture lists (car<strong>to</strong>on sequences)<br />

Time schedules (dayplanner, calendar)


P<br />

To assist transitions<br />

get person “ready <strong>to</strong> be ready”<br />

Constant visual reminders<br />

P “Finished” or “All done” <strong>and</strong> “Ready-Next”


Structured methods for <strong>support</strong>ing individuals<br />

who show<br />

perseverative responding<br />

P Mediate transitions<br />

< Physically assist person <strong>to</strong> complete<br />

what they are doing.<br />

< Talk them through (give the “answer key”)<br />

so they can be certain their action will be<br />

“correct”.<br />

< Act as a “sensory anchor” throughout the<br />

transition.


Use <strong>of</strong> a “Prop”, a “Rule” <strong>and</strong> a “Role”<br />

<strong>to</strong> assist transitions<br />

P Give prop “here & now” <strong>to</strong> transition <strong>to</strong> “then”<br />

P<br />

P<br />

Props signal “beginning” <strong>of</strong> “next” <strong>and</strong> “end” <strong>of</strong><br />

current action. Act as “brackets for behavior.”<br />

For each “prop”, have a “rule” that defines a<br />

meaningful social “role”.


The use <strong>of</strong> “structure”<br />

<strong>to</strong> overcome resistance <strong>to</strong> <strong>and</strong> <strong>to</strong><br />

assist transitions<br />

Anchor in their own familiar reper<strong>to</strong>ire<br />

P Sensory-tactile<br />

< Solitary or social<br />

P Audi<strong>to</strong>ry-visual


The use <strong>of</strong> “structure”<br />

<strong>to</strong> overcome resistance <strong>to</strong> <strong>and</strong> <strong>to</strong><br />

assist transitions<br />

Anchor in their own familiar reper<strong>to</strong>ire<br />

P Cognitive<br />

< Solitary or social<br />

P Emotional-social


Use <strong>of</strong> a “Prop”, a “Rule” <strong>and</strong> a “Role”<br />

<strong>to</strong> assist transitions<br />

PGive rule in terms <strong>of</strong> single action<br />

PGive role <strong>of</strong> being needed <strong>and</strong> useful


Guidelines for caregivers<br />

P Transitions: have a plan or a map for each day.<br />

P<br />

Provide continuity <strong>to</strong> person you are <strong>support</strong>ing.<br />

P<br />

Giving advance notice: CAUTION


Nathan E. Ory, M.A. © 2008<br />

Challenging Behavior Analysis <strong>and</strong> Consultation, Ltd.<br />

543 Marine View, Cobble Hill, BC<br />

V0R 1L1, Canada<br />

phone: (250) 743-1667<br />

www.psychologists.bc.ca/pro/nathanory<br />

challengingbehavior@shaw.ca<br />

“Working <strong>with</strong> <strong>people</strong> <strong>with</strong> challenging behaviors:<br />

A guide for maintaining positive relationships”<br />

2nd edition 2007<br />

www.fasdconnections.ca<br />

www.autism<strong>to</strong>dayory.com

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